The APTIC social network has been developed by the PSINET research group at the Universitat Oberta de Catalunya, in collaboration with Hospital de St. Joan de Déu and the Fesalud Foundation. The network aims at enabling the individual members of patients’ associations (mostly parents of children with chronic and rare diseases) to share experiences, information, resources and advice.
In parallel, we created a group on Facebook (APTIC Facebook Group) to publicize the network and analyse differences in the use of the two platforms (APTIC Social Network vs. APTIC Facebook Group)
Presentación de Manuel Armayones del Grupo de Investigación Psinet de la Universitat Oberta de Catalunya en el Congreso Medicine 2.0 en la Universidad de Stanford.
Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?
A basic introduction into evolution of web architecture, fragmented healthcare, rise of e-patients and a peek at how clinicians use of social media in healthcare
Presentación de Manuel Armayones del Grupo de Investigación Psinet de la Universitat Oberta de Catalunya en el Congreso Medicine 2.0 en la Universidad de Stanford.
Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?
A basic introduction into evolution of web architecture, fragmented healthcare, rise of e-patients and a peek at how clinicians use of social media in healthcare
22 Reasons Why Social Media is the Future of Patient RelationshipsNicole Stagg
The fact is, health care professionals cannot ignore social media any longer. Existing patients expect them to be on social media, and prospective patients use social media to learn more about a provider. Here, 22 more reasons why social media needs to be a made a priority for health and wellness providers.
Presentation to first Phillipine health care social media (#hcsmph) conference on future of social media - Feb. 21, 2014
(Please note date on cover slide is wrong - I'm not that much of a futurist!!)
Social media in health--what are the safety concerns for health consumers? Luis Fernandez Luque
Social media in health--what are the safety concerns for health consumers? by Lau AY, Gabarron E, Fernandez-Luque L, Armayones M. HIM J. 2012;41(2):30-5. https://www.ncbi.nlm.nih.gov/pubmed/23705132
Abstract: Recent literature has discussed the unintended consequences of clinical information technologies (IT) on patient safety, yet there has been little discussion about the safety concerns in the area of consumer health IT. This paper
presents a range of safety concerns for consumers in social media, with a case study on YouTube. We conducted a scan of abstracts on ‘quality criteria’ related to YouTube. Five areas regarding the safety of YouTube for consumers were identified: (a) harmful health material targeted at consumers (such as inappropriate marketing of tobacco or direct-to-consumer drug advertising); (b) public display of unhealthy behaviour (such as people displaying self-injury behaviours or hurting others); (c) tainted public health messages (i.e. the rise of negative voices against public health messages); (d) psychological impact from accessing inappropriate, offensive or biased social media content; and (e) using social media to distort policy and research funding agendas. The examples presented should contribute to a better understanding about how to promote a safe consumption and production of social
media for consumers, and an evidence-based approach to designing social media interventions for health. The
potential harm associated with the use of unsafe social media content on the Internet is a major concern. More empirical and theoretical studies are needed to examine how social media influences consumer health decisions, behaviours and outcomes, and devise ways to deter the dissemination of harmful influences in social media.
Doctors who use social media not only can spread the word about new medical updates, treatments or other relevant news, but also specific information about their practices. Dr. Howard Luks, an orthopedic surgeon, says: “Only the oil refinery business lags behind health care in digital media adoption.” For doctors, it is no longer practical not to have an online presence. While it might seem foolish to be updating a Facebook page or uploading YouTube videos, there are plenty of advantages.
Social media and people with HIV. Results from an Italian surveyGiuseppe Fattori
As it is evident from the literature, the use of Internet, particularly Web 2.0 in
healthcare, is now under debate. Mainly, in Italy there is a shortage of specific studies concerning
the use of social media and new technologies in the infectious disease field, particularly in HIV/AIDS.
In order to explore this issue, we carried out a survey to understand how, today, the use of new
media could influence the behaviour of people living with HIV (PLWH) and their physician-patient
relationship.
22 Reasons Why Social Media is the Future of Patient RelationshipsNicole Stagg
The fact is, health care professionals cannot ignore social media any longer. Existing patients expect them to be on social media, and prospective patients use social media to learn more about a provider. Here, 22 more reasons why social media needs to be a made a priority for health and wellness providers.
Presentation to first Phillipine health care social media (#hcsmph) conference on future of social media - Feb. 21, 2014
(Please note date on cover slide is wrong - I'm not that much of a futurist!!)
Social media in health--what are the safety concerns for health consumers? Luis Fernandez Luque
Social media in health--what are the safety concerns for health consumers? by Lau AY, Gabarron E, Fernandez-Luque L, Armayones M. HIM J. 2012;41(2):30-5. https://www.ncbi.nlm.nih.gov/pubmed/23705132
Abstract: Recent literature has discussed the unintended consequences of clinical information technologies (IT) on patient safety, yet there has been little discussion about the safety concerns in the area of consumer health IT. This paper
presents a range of safety concerns for consumers in social media, with a case study on YouTube. We conducted a scan of abstracts on ‘quality criteria’ related to YouTube. Five areas regarding the safety of YouTube for consumers were identified: (a) harmful health material targeted at consumers (such as inappropriate marketing of tobacco or direct-to-consumer drug advertising); (b) public display of unhealthy behaviour (such as people displaying self-injury behaviours or hurting others); (c) tainted public health messages (i.e. the rise of negative voices against public health messages); (d) psychological impact from accessing inappropriate, offensive or biased social media content; and (e) using social media to distort policy and research funding agendas. The examples presented should contribute to a better understanding about how to promote a safe consumption and production of social
media for consumers, and an evidence-based approach to designing social media interventions for health. The
potential harm associated with the use of unsafe social media content on the Internet is a major concern. More empirical and theoretical studies are needed to examine how social media influences consumer health decisions, behaviours and outcomes, and devise ways to deter the dissemination of harmful influences in social media.
Doctors who use social media not only can spread the word about new medical updates, treatments or other relevant news, but also specific information about their practices. Dr. Howard Luks, an orthopedic surgeon, says: “Only the oil refinery business lags behind health care in digital media adoption.” For doctors, it is no longer practical not to have an online presence. While it might seem foolish to be updating a Facebook page or uploading YouTube videos, there are plenty of advantages.
Social media and people with HIV. Results from an Italian surveyGiuseppe Fattori
As it is evident from the literature, the use of Internet, particularly Web 2.0 in
healthcare, is now under debate. Mainly, in Italy there is a shortage of specific studies concerning
the use of social media and new technologies in the infectious disease field, particularly in HIV/AIDS.
In order to explore this issue, we carried out a survey to understand how, today, the use of new
media could influence the behaviour of people living with HIV (PLWH) and their physician-patient
relationship.
Psicología 2.0. Retos y Oportunidades. Presentación utilizada en la I Jornada de Psicología 2.0 realizada el 31 de Mayo en el Col.legi Oficial de Psicòlegs de Catalunya.
En esta presentación aparecen algunos de los tópicos del Máster Universitarioen Psicología,Salud y Calidad de Vida. Uso de las TIC en la promoción de la Calidad de Vida de la UOC http://estudios.uoc.edu/es/masters-universitarios/psicologia-salud-calidad-vida-castellano/presentacion
Innovación en investigación en Enfermedades Raras: ePacibard. Inteligencia Co...Manuel Armayones
Presentación en la Mesa 3 de las Jornadas Salud Investiga en la Escuela Andaluza de Salud Pública a cargo de Manuel Armayones (UOC) y Mercedes Serrano (Hospital St.Joan de Déu)
Vídeo en
http://new.livestream.com/easptv/JornadasAndaluzasSaludInvestiga
Promoción de la Salud y Cambio de Hábitos: Retos permanentes en una sociedad ...Manuel Armayones
Se describen algunas de las dificultades para el cambio de hábitos y se reflexiona sobre la vigencia del abordaje clásico de la promoción de la salud en una sociedad cambiante. Se plantean dudas sobre como nos afectará el uso de asistentes personales (robots) en el ámbito de la promoción de estilos de vida saludables. Se hizo la presentación durante el evento Health4Good de DKV en Noviembre 2016
Leveraging the power of social media in healthcare researchInSites on Stage
Leveraging the power of social media in healthcare research, presented by Robert Dossin at the MRS Healthcare Congress in London (UK) on Thursday March 6, 2013.
The Future of Specialized Health Care ProvidersJosinaV
This project is for the game-changers and rabble-rousers working within health care to create much needed transformation within the industry. For those that are frustrated with the way things are and seek a better future, this project is an example of the power of foresight to provoke deep insights and inform thoughtful strategic directions.
This project was completed by Phouphet Sihavong, Uma Maharaj, and Josina Vink as part of Ontario College of Art and Design University’s (OCADU) Master of Design in Strategic Foresight and Innovation (SFI) program in Toronto, Ontario.
By 2020, the number of Americans who are expected to need assistance is projected to be 117 million, yet the number of unpaid family caregivers is expected to reach only 45 million. We need technology more than ever to bridge the gap. Project Catalyst, in collaboration with HITLAB, conducted a survey with over 1,000 caregivers, aimed at identifying their technology interest and usage. The research found that caregivers have a high interest in using technology to care for their loved ones – 71 percent of survey participants expressed interest in using technology to support caregiving activities while less than 10 percent have currently or previously used caregiving technology. Adoption rates are low due to a range of factors including lack of awareness, high cost, perception that technology may not be a benefit, and lack of time to learn and adapt new technologies. This presents an opportunity for the technology industry to leapfrog existing offerings and provide viable alternatives to the 40 million caregivers actively seeking ways to lessen their workload.
Personal Connected Health Alliance StrategyPCHA2016
Discover the new 5 year strategy of the Personal Connected Health Alliance (PCHA) to achieve personal health and wellness for everyone. Visit pchalliance.org for more information about PCHA.
Join us at the Connected Health Conference in Washington D.C. on December 11-14, 2016. For more information, visit www.pchaconference.org.
Personal connected health is currently characterized by limited thought leadership, insufficient coordination and collaboration, and a lack of awareness and understanding of the full potential by all stakeholders: public, providers, policymakers, industry and patients. The Personal Connected Health Alliance is defining the the field of personal connected health to inspire market and policy innovation, research and collective action for sustained adoption of personal connected health technology. The vision is better health and well being for all through increased personal responsibilities and connectivity as well as improved care delivery enabled by technology.
Behavior Design Lab-eHealth Center-Open University of CataloniaManuel Armayones
In this presentation, we describe projects and research interests of Behavior Design Lab of the eHealth Center at the Open University of Catalonia (UOC).
We are open to collaborate in consortiums for Horizon Europe RIA projects in the field of eHealth & behavior design & adherence
Please feel free to contact us to further information.
mail: marmayones@uoc.edu Twitter: @armayones
Redes sociales como herramientas de alfabetización digital en salud:algunas b...Manuel Armayones
Presentación realizada en el I Congreso Nacional de la Malformación de Arnold Chiari https://enfermedades-raras.org/index.php/feder-cataluna/9447-inf%C3%B3rmate-sobre-el-i-congreso-nacional-de-malformaci%C3%B3n-de-chiari
Alfabetización Digital en Salud: cuestión de "H-Alma"Manuel Armayones
Tomando la idea de "H-Alma" de los Drs. March y Bimbela de la Escuela Andaluza de Salud Pública reflexionamos en 2017 sobre alfabetización en salud y su vías a través de Internet
¿Cómo pueden combinarse para ayudarnos a cambiar nuestro comportamiento hacia...Manuel Armayones
Presentación en el Cluster for Patient Empowerment. https://www.elsevier.es/corp/conecta/cluster-for-patient-empowerment-futuro-la-psicologia-pasar-la-tecnologia-empoderamiento-del-paciente/
¿Que sabemos sobre la relación entre tecnología y personas?Manuel Armayones
Presentación en mHealth Barcelona https://www.fundacionisys.org/es/mhealth-bcn-conference/conference Hablando sobre Psicología, Salud, Tecnología y Persuasión
Algunas reflexiones sobre el futuro de la eSaludManuel Armayones
Presentación de Manuel Armayones en la II Jornada R+D+I TicSalut organizada en el Parc Científic de la Universitat de Girona per la Fundació TIC-SALUT (Dept.Salut, Generalitat de Catalunya)
First Part IN3,UOC,Seminar Research: Social Media an Rare Disease
http://in3.uoc.edu/opencms_portalin3/opencms/en/activitats/seminaris/agenda/2011/agenda_011
Presentación de la sesión sobre Promoción de la Salud y TIC impartida en el marco de unas jornadas organizadas por Proyecto Hombre y el Excmo. Ayuntamiento de Oviedo.
Las Redes Sociales Como Herramientas De IntervencióN Social En SaludManuel Armayones
En el marco del IV Encuentro de Investigación, Innovación e Ingeniería organizado con CINTEL (Centro de Investigación para las Telecomunicaciones) en Bogotá (Colombia) en Agosto 2009 tuvimos la oportunidad de exponer la presentación: Las redes sociales como herramientas de Intervención Social y en Salud.
Title: Sense of Smell
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the primary categories of smells and the concept of odor blindness.
Explain the structure and location of the olfactory membrane and mucosa, including the types and roles of cells involved in olfaction.
Describe the pathway and mechanisms of olfactory signal transmission from the olfactory receptors to the brain.
Illustrate the biochemical cascade triggered by odorant binding to olfactory receptors, including the role of G-proteins and second messengers in generating an action potential.
Identify different types of olfactory disorders such as anosmia, hyposmia, hyperosmia, and dysosmia, including their potential causes.
Key Topics:
Olfactory Genes:
3% of the human genome accounts for olfactory genes.
400 genes for odorant receptors.
Olfactory Membrane:
Located in the superior part of the nasal cavity.
Medially: Folds downward along the superior septum.
Laterally: Folds over the superior turbinate and upper surface of the middle turbinate.
Total surface area: 5-10 square centimeters.
Olfactory Mucosa:
Olfactory Cells: Bipolar nerve cells derived from the CNS (100 million), with 4-25 olfactory cilia per cell.
Sustentacular Cells: Produce mucus and maintain ionic and molecular environment.
Basal Cells: Replace worn-out olfactory cells with an average lifespan of 1-2 months.
Bowman’s Gland: Secretes mucus.
Stimulation of Olfactory Cells:
Odorant dissolves in mucus and attaches to receptors on olfactory cilia.
Involves a cascade effect through G-proteins and second messengers, leading to depolarization and action potential generation in the olfactory nerve.
Quality of a Good Odorant:
Small (3-20 Carbon atoms), volatile, water-soluble, and lipid-soluble.
Facilitated by odorant-binding proteins in mucus.
Membrane Potential and Action Potential:
Resting membrane potential: -55mV.
Action potential frequency in the olfactory nerve increases with odorant strength.
Adaptation Towards the Sense of Smell:
Rapid adaptation within the first second, with further slow adaptation.
Psychological adaptation greater than receptor adaptation, involving feedback inhibition from the central nervous system.
Primary Sensations of Smell:
Camphoraceous, Musky, Floral, Pepperminty, Ethereal, Pungent, Putrid.
Odor Detection Threshold:
Examples: Hydrogen sulfide (0.0005 ppm), Methyl-mercaptan (0.002 ppm).
Some toxic substances are odorless at lethal concentrations.
Characteristics of Smell:
Odor blindness for single substances due to lack of appropriate receptor protein.
Behavioral and emotional influences of smell.
Transmission of Olfactory Signals:
From olfactory cells to glomeruli in the olfactory bulb, involving lateral inhibition.
Primitive, less old, and new olfactory systems with different path
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Ve...kevinkariuki227
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
Tom Selleck Health: A Comprehensive Look at the Iconic Actor’s Wellness Journeygreendigital
Tom Selleck, an enduring figure in Hollywood. has captivated audiences for decades with his rugged charm, iconic moustache. and memorable roles in television and film. From his breakout role as Thomas Magnum in Magnum P.I. to his current portrayal of Frank Reagan in Blue Bloods. Selleck's career has spanned over 50 years. But beyond his professional achievements. fans have often been curious about Tom Selleck Health. especially as he has aged in the public eye.
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Introduction
Many have been interested in Tom Selleck health. not only because of his enduring presence on screen but also because of the challenges. and lifestyle choices he has faced and made over the years. This article delves into the various aspects of Tom Selleck health. exploring his fitness regimen, diet, mental health. and the challenges he has encountered as he ages. We'll look at how he maintains his well-being. the health issues he has faced, and his approach to ageing .
Early Life and Career
Childhood and Athletic Beginnings
Tom Selleck was born on January 29, 1945, in Detroit, Michigan, and grew up in Sherman Oaks, California. From an early age, he was involved in sports, particularly basketball. which played a significant role in his physical development. His athletic pursuits continued into college. where he attended the University of Southern California (USC) on a basketball scholarship. This early involvement in sports laid a strong foundation for his physical health and disciplined lifestyle.
Transition to Acting
Selleck's transition from an athlete to an actor came with its physical demands. His first significant role in "Magnum P.I." required him to perform various stunts and maintain a fit appearance. This role, which he played from 1980 to 1988. necessitated a rigorous fitness routine to meet the show's demands. setting the stage for his long-term commitment to health and wellness.
Fitness Regimen
Workout Routine
Tom Selleck health and fitness regimen has evolved. adapting to his changing roles and age. During his "Magnum, P.I." days. Selleck's workouts were intense and focused on building and maintaining muscle mass. His routine included weightlifting, cardiovascular exercises. and specific training for the stunts he performed on the show.
Selleck adjusted his fitness routine as he aged to suit his body's needs. Today, his workouts focus on maintaining flexibility, strength, and cardiovascular health. He incorporates low-impact exercises such as swimming, walking, and light weightlifting. This balanced approach helps him stay fit without putting undue strain on his joints and muscles.
Importance of Flexibility and Mobility
In recent years, Selleck has emphasized the importance of flexibility and mobility in his fitness regimen. Understanding the natural decline in muscle mass and joint flexibility with age. he includes stretching and yoga in his routine. These practices help prevent injuries, improve posture, and maintain mobilit
Flu Vaccine Alert in Bangalore Karnatakaaddon Scans
As flu season approaches, health officials in Bangalore, Karnataka, are urging residents to get their flu vaccinations. The seasonal flu, while common, can lead to severe health complications, particularly for vulnerable populations such as young children, the elderly, and those with underlying health conditions.
Dr. Vidisha Kumari, a leading epidemiologist in Bangalore, emphasizes the importance of getting vaccinated. "The flu vaccine is our best defense against the influenza virus. It not only protects individuals but also helps prevent the spread of the virus in our communities," he says.
This year, the flu season is expected to coincide with a potential increase in other respiratory illnesses. The Karnataka Health Department has launched an awareness campaign highlighting the significance of flu vaccinations. They have set up multiple vaccination centers across Bangalore, making it convenient for residents to receive their shots.
To encourage widespread vaccination, the government is also collaborating with local schools, workplaces, and community centers to facilitate vaccination drives. Special attention is being given to ensuring that the vaccine is accessible to all, including marginalized communities who may have limited access to healthcare.
Residents are reminded that the flu vaccine is safe and effective. Common side effects are mild and may include soreness at the injection site, mild fever, or muscle aches. These side effects are generally short-lived and far less severe than the flu itself.
Healthcare providers are also stressing the importance of continuing COVID-19 precautions. Wearing masks, practicing good hand hygiene, and maintaining social distancing are still crucial, especially in crowded places.
Protect yourself and your loved ones by getting vaccinated. Together, we can help keep Bangalore healthy and safe this flu season. For more information on vaccination centers and schedules, residents can visit the Karnataka Health Department’s official website or follow their social media pages.
Stay informed, stay safe, and get your flu shot today!
Prix Galien International 2024 Forum ProgramLevi Shapiro
June 20, 2024, Prix Galien International and Jerusalem Ethics Forum in ROME. Detailed agenda including panels:
- ADVANCES IN CARDIOLOGY: A NEW PARADIGM IS COMING
- WOMEN’S HEALTH: FERTILITY PRESERVATION
- WHAT’S NEW IN THE TREATMENT OF INFECTIOUS,
ONCOLOGICAL AND INFLAMMATORY SKIN DISEASES?
- ARTIFICIAL INTELLIGENCE AND ETHICS
- GENE THERAPY
- BEYOND BORDERS: GLOBAL INITIATIVES FOR DEMOCRATIZING LIFE SCIENCE TECHNOLOGIES AND PROMOTING ACCESS TO HEALTHCARE
- ETHICAL CHALLENGES IN LIFE SCIENCES
- Prix Galien International Awards Ceremony
Ethanol (CH3CH2OH), or beverage alcohol, is a two-carbon alcohol
that is rapidly distributed in the body and brain. Ethanol alters many
neurochemical systems and has rewarding and addictive properties. It
is the oldest recreational drug and likely contributes to more morbidity,
mortality, and public health costs than all illicit drugs combined. The
5th edition of the Diagnostic and Statistical Manual of Mental Disorders
(DSM-5) integrates alcohol abuse and alcohol dependence into a single
disorder called alcohol use disorder (AUD), with mild, moderate,
and severe subclassifications (American Psychiatric Association, 2013).
In the DSM-5, all types of substance abuse and dependence have been
combined into a single substance use disorder (SUD) on a continuum
from mild to severe. A diagnosis of AUD requires that at least two of
the 11 DSM-5 behaviors be present within a 12-month period (mild
AUD: 2–3 criteria; moderate AUD: 4–5 criteria; severe AUD: 6–11 criteria).
The four main behavioral effects of AUD are impaired control over
drinking, negative social consequences, risky use, and altered physiological
effects (tolerance, withdrawal). This chapter presents an overview
of the prevalence and harmful consequences of AUD in the U.S.,
the systemic nature of the disease, neurocircuitry and stages of AUD,
comorbidities, fetal alcohol spectrum disorders, genetic risk factors, and
pharmacotherapies for AUD.
Acute scrotum is a general term referring to an emergency condition affecting the contents or the wall of the scrotum.
There are a number of conditions that present acutely, predominantly with pain and/or swelling
A careful and detailed history and examination, and in some cases, investigations allow differentiation between these diagnoses. A prompt diagnosis is essential as the patient may require urgent surgical intervention
Testicular torsion refers to twisting of the spermatic cord, causing ischaemia of the testicle.
Testicular torsion results from inadequate fixation of the testis to the tunica vaginalis producing ischemia from reduced arterial inflow and venous outflow obstruction.
The prevalence of testicular torsion in adult patients hospitalized with acute scrotal pain is approximately 25 to 50 percent
Ozempic: Preoperative Management of Patients on GLP-1 Receptor Agonists Saeid Safari
Preoperative Management of Patients on GLP-1 Receptor Agonists like Ozempic and Semiglutide
ASA GUIDELINE
NYSORA Guideline
2 Case Reports of Gastric Ultrasound
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
Report Back from SGO 2024: What’s the Latest in Cervical Cancer?bkling
Are you curious about what’s new in cervical cancer research or unsure what the findings mean? Join Dr. Emily Ko, a gynecologic oncologist at Penn Medicine, to learn about the latest updates from the Society of Gynecologic Oncology (SGO) 2024 Annual Meeting on Women’s Cancer. Dr. Ko will discuss what the research presented at the conference means for you and answer your questions about the new developments.
The prostate is an exocrine gland of the male mammalian reproductive system
It is a walnut-sized gland that forms part of the male reproductive system and is located in front of the rectum and just below the urinary bladder
Function is to store and secrete a clear, slightly alkaline fluid that constitutes 10-30% of the volume of the seminal fluid that along with the spermatozoa, constitutes semen
A healthy human prostate measures (4cm-vertical, by 3cm-horizontal, 2cm ant-post ).
It surrounds the urethra just below the urinary bladder. It has anterior, median, posterior and two lateral lobes
It’s work is regulated by androgens which are responsible for male sex characteristics
Generalised disease of the prostate due to hormonal derangement which leads to non malignant enlargement of the gland (increase in the number of epithelial cells and stromal tissue)to cause compression of the urethra leading to symptoms (LUTS
1. APTIC. A social network to
meet the needs of families and
professionals around chronic
conditions in childhood.
Hernández-Encuentra, E.; Armayones, M.; Gómez-Zúñiga, B.; Guillamón,
N.; Nafría, B.; Ontiveros, G. & Bosque, A.
PSiNET research group. Universitat Oberta de Catalunya- IN3 Institute.
PSiNET is supported by the University, Research and ITSociety Department of the Catalan Government.
1
2. 10% of youth in Catalonia have a cronic disease
or disability.
95% of the associations have a Web; 24% a
Web 2.0; 5% tailored resources.
ICT have supported 90% of families in their
health care.
80% of families and associations do want a web
for health.
85% of families want better tailored online
information, beyond Google.
2
3. Sant Joan de Déu pediatric Hospital has an Area
for patients’ Associations and their families.
64% of recorded paediatric associations have an
active role in the Area for patients.
Parents of children with chronic diseases are twice
as likely to suffer health problems.
50% of parents of children with chronic diseases
look at the Internet before or after visiting their
GP; and 34% talk about it with him/her.
50% of not Internet users will be ready to do it.
3
4. APTIC: A COMMUNITY WITHIN A
SOCIAL NETWORK
A community of practice for chronic disease management.
Pretending voluntary changes in improving common
engagement and empowerment in health care.
Taking profit of previous structures.
4
8. 3 basic needs that could be met by
a Web
Tailored and accredited information.
Personal and social support.
Coordination and Engagement of different
health actors.
8
9. Web design and running by using 3
strategies
Col.laborative initiative.
Social network structure.
Coordination, facilitation.
9
10. A Collaborative initiative from the
very beggining
Health system
Sant Joan de Déu Information and
pediatric Hospital dissemination
Associations’ Area Patients Associations
University- Applied
research Technological
Support
General Execution UOC
Support Fe Salud Foundation
Research group PSiNET
Centre for Global
ehealth Innovation
Financtial support for
Open Software.
coordination Developers community
TicSalut Foundation 10
11. A Community of practice within a
social network structure
11
17. Coordination is the key for running
the network
Welcome and on-going support
Connection among users
Chat
Quick answering
Feedback
Information updatings
17
18. WE DID and THEY DO
We
Needs analysis
Design and running platform
They do
What they want
…and on surprising ways
18
19. That’s APTIC… and users do what
they want…
73% 84%
The user is a Spanish mother, health
professional, and linked to a patients
50% association.
75%
19
20. … and ask for continous
adjustments.
In general communities.
In professionals resources.
In access controlling and tracking.
In dissemination strategies.
20
21. After participating in APTIC,
… and in surprising ways
…met offline?
…when taking a decision?
…better informed?
The most important is NOT on
…better relationship with their health
care team? / your patients?
the …more confortable in health caring?
web.
… positive change in their lives?
… feel better?
…
21
23. WE DID, THEY DO, WHAT IF?
“... If APTIC includes resources for the
management of the disease, what if an
assistencial team decides to create a
community to interact with their patients?
Up to now this is not an assistencial tool
but, could it be?; why not?; would
APTIC support it?...” (from a Department of the
hospital)
23
24. WHAT IF?
Improve positioning services.
Collect useful information of rare diseases.
Contact to your own health care team.
24
These data are the basic information we gathered to state which is the situatioin around paediatric chronic diseases management in relation to the Internet in our context. Data show us some needs for health care in chronic conditions, a few existant services for chronic diseases (such as patients associations and the Patients area in the Hospital), and the positive experience and the willingness to use IT for health, we decided to meet these situation by designing APTIC.
Which is a: Community of practise whithin users share their expertise (such as experiences, information, advices, resources). This social network aims to improve health professionals and parents in health care. By Promoting voluntary use of empowering strategies. This community is buit on preexisting structures such as Patients associations and the Patients area in the hospital. Our social network aims to enable the individual members of patients' associations (mostly parents of children with chronic and rare diseases) and professionals to share experiences, information, advice and, ultimately, to offer them on-line tools to improve the quality of life of the entire family. Thus, the main objective should be transforming health care delivery, as well as being able to take care of the users’ own health. Based on this structure, our main idea is that APTIC --------------------------------------------
Could be an example of patients leading professionals going beyond the walls of their services and looking for new opportunities, although they still feel threatened by web solutions and social networking for health care.
I will try to explain our experience by focusinf in two ideas: What we, the project team did; and b) what users do one APTIC is running. Each of these ideas will be developed by two arguments. And in the end, I will try to think abou designing a new path.
Let’s move to the first idea, what we did. In this context, part of the Associations, Patients and TIC (APTIC) project, aims to analyze needs, new technologies uses and their effects on the wellbeing of individuals. 74 members of associations have been interviewed, 35 associations were surveyed, and 3 focus groups conducted. Data collected shed some light on the relationship between associations and TIC. A 2.0 web should provide: relevant, screened, and accredited information; support and help to individuals; and also provide identity referents. Members value mainly the information gathering easiness, but its possibilities as a collaborative space are not particularly esteemed. Individuals perceive TIC as tools for improving their knowledge of the disease, patient autonomy and the relationship with health professionals. In other words, a 2.0 web must allow for the improvement of their daily lives. Needs seem to be association specific and time changing, and, accordingly, TICs should be time evolving, flexible and customized. In spite of waking up some doubts, a web solution provokes great hopes. These features need to be taken into account in the design and construction of our social network APTIC. Hence, APTIC should: combine validated information with a social network; be easy to use, useful; provide a channel for sharing positive and significant experiences; offer maximum customizability; provide tools for network administration and facilitate members’ participation; provide a platform for the interaction of agents acting in different capacities (parents, professionals, managers, …), a platform that facilitates coordination and engagement of different health actors; and is easily scalable platform to accommodate growth. From this perspective, the aim is to build a community of practice with a shared objective and an expertise that could be shared. This is the reason why a preexisting structure and a constant change are so important. A social network is always in progress, and its nature is, precisely, changing (cambiante). Our social network aims to enable the individual members of patients' associations (mostly parents of children with chronic and rare diseases) and professionals to share experiences, information, advice and, ultimately, to offer them on-line tools to improve the quality of life of the entire family. Thus, the main objective should be transforming health care delivery, as well as being able to take care of the users’ own health beyond the walls. These features have been taken into account in the design and construction of our social network APTIC. It is a free software social network based on communities’ structure (each of them having blog, forum, files and other resources) and it is designed using metacognition and captology premises. Moreover, APTIC has a facilitator to run the network in a systematic way, which makes easier the ongoing adjustment to the user’s needs. Specifically, the facilitator main tasks are (aquí podem citar el nostre poster de Cracòvia?): Send the access form. Send customized messages to users. Answer rapidly. Identify key users and encourage them with useful information. Create general communities and encourage them to contribute with useful information. Provide users with validated and updated information by the research group. Create private communities management and transfer control. Ensure compliance with the Guide for use and the Terms of Use. Contact with association’s presidents and social network promotion at public events (conferences, meetings). Dissemination through the media and Facebook.
We did a needs analysis by an extended survey, some interviews and a few focus groups with associations members. 74 members, 35 associations surveys i 3 focus. From the needs analysis, we’ve identified three major needs: First: Tailored and accredited information. That means needs for significant information. Second, Not only information about the care process but informations and strategies about how taking care of oneself. And third, Needs to engage every person involved in the care processes in the same project, so sharing objectives and collaborating to promote each others tasks. All these three needs can be met by a We strategy and, despite some initial fears, patients associations rely on the inernet and look at this as something with lots of possibilities. So they are motivated to use it. No eren 4? Des d’una visió de la Web que Desperta dubtes. Genera grans esperances
On the basis of these results, we designed a web by tinking of three key aspects: 1. APTIC is a project which engages different actors all along their processes. 2. We’d better use a social network structure in order to keep this collaborative spirit. 3. And finally, the need of having a community coordinator to make it run properly.
Since the beginning, APTIC is a collaborative initivative, that means there are diferent agents working together in it and coordinated by the group at the University. The idea was born in a seminair And was defined after talking with the professionals of the Hospital. Immediately after, we contacted with the Patients Associations in order to know what they needed and their willingnes to collaborate. After that, we need technological support (since we are just psychologists) to design the platform, and this is when an ehealth Foundation joined the project and suggested us to work together with a developers community, since whe wanted to use open software. And when we had to run the platform we needed a coordinator to do it in a systematic way, so we ask for some funds to the catalan health governement.
And this is APTIC, a community of practice within a social network structure. That means we pretend to grow up and feed the platform in a collaborative way, by sharing and adding different expertises in a common project. For that purpose, we thought the best sructure was a social network. This is the main page of the website. As you can see, you have to register before joining the network. DIAPOS d’APTIC Des de fora Un cop dins Dashboard Perfil Comunitats
From the very beggining you can tailor your dashboard just by selecting and draging the widget you prefer. So it is completely dynamic.
One you are logged in you have access to all the functionalities from the same page.
And have several resources from your profile. As well as a private intraweb mail.
We expect the processes will be centered on the communities, so the main exchange may be within each community. We have initially created different communities in a wide scope of interests, such as welcome and how to start, preparing questions to the psysicians, analyzing the information on the internet, specific tools about technology or about healthy lifestyles, relax techniques, social and financtial resources… And different associations have already created their own, such as Klinefelter Syndrome in Chile, Feder Spanish Association of Rare Diseases, or ADIAM Disabilities Association in the Maresme, a zone in Catalonia.
There’s a general calendar and also an specific one for each community where members can share different events. And, as you can see, resources can be rated.
Beyond its structure, one of the key aspects of APTIC is the coordination. APTIC has a coordinator which provides 50% of the posts. Among them, the coordinator: Provides users support since the very begging. She puts in contact users according to their (real/possible) interests She also chats with users just to keep in contact. She aswers vey quick when she’s asked about anything. She provides feedback to posters and encourages lurkers. And she provides updated resources every date, at least an event in the calendar or a new link.
Once we’ve reviewed APTIC’s STRUCTURE, now let’s look at HOW APTIC is used.
And users do what they want. Now APTIC has around one hundred and sixty users (more than 60% are active members). They fluctuate in their visits according to some dissemination activities we – the APTIC team- do or new resources in the network. And the most common profile is a Spanish mother of a child with a chronic disease, woking in a health care service and engaged in a patients associations in a broad sense. Users do what they want while using APTIC, so it forces us to create and remove in a dynamic way. These are the users, and they 165 users 92% active members 84% women 75% tied to a patients association 50% sanitary professionals 40% gets APTIC per un altre user 30% surfing the internet PROFESSIONALS families COMMON COMMUNITIES associations’ communities 37% of people reaching APTIC log in Evidences of INTERACTION Common communities: Initially APTIC was buit for patients and their families. And now there are more professionals. We though of basing APTIC on tools and resources for associations, but there are more general communities than private communities tied to an specific association. General communities: ‘Welcome’, ‘Diary’, ‘Social and Economic benefits and grants’, ‘Library’, ‘Educative resources’, ‘Technology and disability’, ‘Emotional wellbeing’, ‘Health resources’, ‘Scientific advances’, ‘Among us’. Espai d’Associacions. ^”Professionals”. Associations communities: Espai d’Associacions of Hospital Sant Joan de Déu, FEDER, MPS Spain, ADIAM, Lowe Spain, Klinefelter Chili. There’s evidence of chating, posting in other people’s wall, commenting resources, modifiyng blog posts...
So that users asks us for continuous adjustments in the platform. For example, 1. We’ve renamed communities with a general content scope. Such as replacing emotional wellbeing title with Take care of yourself to a better care. And we’ve also created new general communities. Such as Questions and Answers, to promote sharing and make more visible the questions/answers within each community. 2. Qüestionaris, comunitats. Indicacions. As the majority of users are health/social professionals, we’ve created communities specially devoted to them. At the same time we’ve adapted initial and impact questionaires to them. 3. Necessitat de loginar-se, qüestionari d’accés i validació, seguiment primeres participacions. Third, the Hospital and Associations asked us for controlling access in order to feel safier. That’s why we designed a brief registration questionnaire prior to geting a username. And we also track posts to prevent from misuses. 4. And finally, we are also carrying on several dissemination activites, such as press notes, a brochure; and promoting APTIC in conferences, meetings, etc.
OTHER COLLEAGUES HAVE SHOWN THAT IS NOT NECESSARY TO POST TO OBTAIN BENEFITS FROM PARTICIPATION IN THE SOCIAL NETWORK, IT’S ENOUGH LURKING AND PARTICIPATING IN WHAT WE CAN CALL “A PASSIVE WAY”. IN LINE WITH IT, WE’RE CONVINCED THE MOST IMPORTANT THINGS DOES’NT HAPPEN ON THE NET, BUT IN PEOPLES LIFE. And so think about if; After participatin in APTIC People have met offline Have they taken a decision more confidently? Do they feel they are better informed ? Have a better relationship with their health care team? /with their patients? Do they feel more confortable in health caring? Have they experienced a positive change in their lives? Do they feel better ? Do they perceive they have a better control of their lives? We’re working now on how to measure those efectes, and gather evidences of the impact the participation in APTIC has on parents (mainly) and professionals. We’ve prepared some questionaires and personal interviews for that purpose.
Let’s go back to our main idea. APTIC is an example of leading patients going beyond the walls of their services and looking for new opportunities. And it seems something is moving on. Please read the next sentence of a Health professional at St Joan de Déu paediatric Hospital.
The answer to this what if question is YES. APTIC will support these services. So Why not using it? pot incloure comunitats pel “maneig” d’una malaltia, si un equip assistencial decideix obrir una comunitat privada i comunicar-se així amb els pacients incloent recomanacions, instruccions, etc (de moment no és informació assistencial, però ho podria ser (?).ara que ho penso, per què no? l’eina ho permetria?...).
In line with it, we can let our minds think of some possibilities such as: Collect information useful for research about rare diseases (general condition, treatments, etc). Or may be Overcoming barriers among countries putting in contact different nationalities associations. Improve positioning services to facilitate contacts in the physical world through instant messaging. - reminders where and when needes; information about someone interesting for you is near you. 1) Mobile versions that send patients remainders and informations exactly when and where they need. (f.ex. Menjar). Contact among patients associations from different countries. 2) Designing new services on the basis of the real impact on the people, not on the basis of research “results”. 3) There are some professional networks where xxxxx (usually not related to health institutions) answer questions, solve doubts and make suggestions through the net, but now the challenge is having online access to your own health care team, and not whatever team. In sum, turning a threat into a challenge for health care. -------------------------------------------------------------------------------------
You can contact us for futher information. Thank you.