Presentación de Manuel Armayones del Grupo de Investigación Psinet de la Universitat Oberta de Catalunya en el Congreso Medicine 2.0 en la Universidad de Stanford.
The APTIC social network has been developed by the PSINET research group at the Universitat Oberta de Catalunya, in collaboration with Hospital de St. Joan de Déu and the Fesalud Foundation. The network aims at enabling the individual members of patients’ associations (mostly parents of children with chronic and rare diseases) to share experiences, information, resources and advice.
In parallel, we created a group on Facebook (APTIC Facebook Group) to publicize the network and analyse differences in the use of the two platforms (APTIC Social Network vs. APTIC Facebook Group)
Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?
A basic introduction into evolution of web architecture, fragmented healthcare, rise of e-patients and a peek at how clinicians use of social media in healthcare
Use of digital to engage patients and providersPat Rich
The document summarizes a presentation on using digital technologies and social media in healthcare. It discusses trends in US hospitals adopting technologies like connected health and patient portals. It also reviews literature on best practices for social media use in hospitals and interviews hospital communications experts. Key challenges discussed are leveraging social media to its full potential for patient engagement and clinical uses while ensuring privacy and developing appropriate strategies and resources.
This document discusses the rise of empowered patients, or "e-patients", who use the internet to research their medical conditions and treatments. It describes how e-patients have formed online communities to share information and support each other. Some key points made are that e-patients feel more prepared to discuss their care with doctors due to their online research, and that the collective knowledge of e-patients researching online may uncover new findings more quickly than doctors alone. The document also outlines e-patients' wishlists for more online access to medical records and consultations.
The document discusses the vision of the "empowered patient" where patients can collect and share their own health data with doctors in order to receive more accurate remote diagnoses. It contrasts the traditional patient who relies solely on caregivers for information with the empowered patient who takes control of their health by tracking their own data, deciding what to share, and using online information. Several elements like smart technology and privacy concerns can either facilitate or prevent this evolution to a fully empowered patient where integrated systems provide easy-to-use solutions for all parties.
Digital Citizenship and Social Media in Patient Caresephma
Digital citizenship and social media can transform patient care by facilitating new forms of communication. There are nine elements of digital citizenship, including digital communication, literacy, etiquette, and rights/responsibilities. Digital communication now allows constant connectivity through options like email, phones, and messaging. In healthcare, social media platforms give doctors opportunities to encourage patient/doctor communication in new styles. Blogs, podcasts, and Twitter are examples of social media that can be used to provide patients with medical advice, experiences, and answers to questions. The benefits include improved patient/doctor communication and access to information/other patients, while barriers include legal risks, costs, privacy issues, and lack of technology knowledge.
The APTIC social network has been developed by the PSINET research group at the Universitat Oberta de Catalunya, in collaboration with Hospital de St. Joan de Déu and the Fesalud Foundation. The network aims at enabling the individual members of patients’ associations (mostly parents of children with chronic and rare diseases) to share experiences, information, resources and advice.
In parallel, we created a group on Facebook (APTIC Facebook Group) to publicize the network and analyse differences in the use of the two platforms (APTIC Social Network vs. APTIC Facebook Group)
Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?
A basic introduction into evolution of web architecture, fragmented healthcare, rise of e-patients and a peek at how clinicians use of social media in healthcare
Use of digital to engage patients and providersPat Rich
The document summarizes a presentation on using digital technologies and social media in healthcare. It discusses trends in US hospitals adopting technologies like connected health and patient portals. It also reviews literature on best practices for social media use in hospitals and interviews hospital communications experts. Key challenges discussed are leveraging social media to its full potential for patient engagement and clinical uses while ensuring privacy and developing appropriate strategies and resources.
This document discusses the rise of empowered patients, or "e-patients", who use the internet to research their medical conditions and treatments. It describes how e-patients have formed online communities to share information and support each other. Some key points made are that e-patients feel more prepared to discuss their care with doctors due to their online research, and that the collective knowledge of e-patients researching online may uncover new findings more quickly than doctors alone. The document also outlines e-patients' wishlists for more online access to medical records and consultations.
The document discusses the vision of the "empowered patient" where patients can collect and share their own health data with doctors in order to receive more accurate remote diagnoses. It contrasts the traditional patient who relies solely on caregivers for information with the empowered patient who takes control of their health by tracking their own data, deciding what to share, and using online information. Several elements like smart technology and privacy concerns can either facilitate or prevent this evolution to a fully empowered patient where integrated systems provide easy-to-use solutions for all parties.
Digital Citizenship and Social Media in Patient Caresephma
Digital citizenship and social media can transform patient care by facilitating new forms of communication. There are nine elements of digital citizenship, including digital communication, literacy, etiquette, and rights/responsibilities. Digital communication now allows constant connectivity through options like email, phones, and messaging. In healthcare, social media platforms give doctors opportunities to encourage patient/doctor communication in new styles. Blogs, podcasts, and Twitter are examples of social media that can be used to provide patients with medical advice, experiences, and answers to questions. The benefits include improved patient/doctor communication and access to information/other patients, while barriers include legal risks, costs, privacy issues, and lack of technology knowledge.
E-patients use social media and the internet to educate themselves and others about health care issues. As patients become more engaged in their own care, the relationship between patients and health care providers is shifting from the traditional Health 1.0 model where providers control information, to a Health 2.0 model of increased collaboration. Social media allows communication across all groups involved in health care, and can be used to enhance individuals' health and care through participatory approaches. While there are cautions, social media also presents opportunities to improve health care delivery through public health messaging, answering general questions, connecting patients to resources and care, and building professional networks.
Patient communities that emerge online provide crucial support for those dealing with rare or chronic illnesses. They fulfill basic human needs for belonging, validation, hope and connection. By sharing information and experiences, these virtual communities help patients and caregivers feel less alone and provide insights that can guide medical research into new diagnostic and treatment paths. The future of healthcare depends on leveraging these networks of "micro-experts" to accelerate progress.
Health 2.0: Patient Empowerment Through Innovative TechnologiesSean Mirk
This document discusses the concept of Health 2.0, which refers to using Web 2.0 technologies to empower patients and engage them in their own healthcare. It describes how patients can use tools like personal health records, mobile apps, and social networks to search for health information, share experiences, and collaborate with professionals. The document outlines potential benefits like increased patient empowerment and improved care, as well as barriers such as privacy issues and technology standards. It discusses the role of pharmacists and pharmacy educators in developing health technologies and preparing future professionals to use informatics.
Canadian physicians and social media: A prognosisPat Rich
This document discusses Canadian physicians' use of social media based on available research. It finds limited data but indicates use is increasing personally and professionally. Physicians are cautious due to privacy, liability and time concerns. Benefits of social media include communicating with patients and peers, research, and public health monitoring. Medical associations are more actively using social media than individual doctors. Overall, the prognosis is that Canadian physicians' social media use will continue growing as benefits become clearer.
Presentation to first Phillipine health care social media (#hcsmph) conference on future of social media - Feb. 21, 2014
(Please note date on cover slide is wrong - I'm not that much of a futurist!!)
Social media is becoming increasingly important in the medical field. While some doctors are slow to adopt social media, medical schools are now teaching students how to properly use social media in their practices. Social media allows doctors to connect with existing patients and attract new ones. It provides a way for doctors to share medical updates and advice and build relationships with patients. Although some doctors worry about privacy and professionalism, social media can enhance a practice if used appropriately. The majority of adults now use social media, so it remains an effective way for doctors to communicate with patients of all ages.
Doctors who use social media not only can spread the word about new medical updates, treatments or other relevant news, but also specific information about their practices. Dr. Howard Luks, an orthopedic surgeon, says: “Only the oil refinery business lags behind health care in digital media adoption.” For doctors, it is no longer practical not to have an online presence. While it might seem foolish to be updating a Facebook page or uploading YouTube videos, there are plenty of advantages.
Social media can be leveraged by medical experts and patient advocacy groups to disseminate research and connect networks of "microexperts", taking an active model of sharing information through relevant, targeted, and accessible online communities and platforms. This represents an exponential leap forward from traditional passive models of merely providing access to information by bringing research directly to interested networks and empowering patients to learn from each other.
22 Reasons Why Social Media is the Future of Patient RelationshipsNicole Stagg
The fact is, health care professionals cannot ignore social media any longer. Existing patients expect them to be on social media, and prospective patients use social media to learn more about a provider. Here, 22 more reasons why social media needs to be a made a priority for health and wellness providers.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
Social media and online tools are empowering patients and enabling new forms of participatory healthcare known as Health 2.0. Patients are increasingly educated online and use social platforms like Facebook, Twitter, blogs and YouTube to find health information and connect with providers. While this presents challenges around privacy and professional standards, it also offers opportunities if used strategically. Social media could help disseminate public health updates, answer general questions, send reminders, and help patients access resources and care. Early evidence suggests some providers are seeing new patients and income from their online presence.
Week 5 Assignment Social Media Changing Healthcare Lauren Manas
This document discusses how social media and technology are changing healthcare. It provides examples of how patients can use online resources like ZocDoc to find and book appointments with doctors, and how healthcare professionals use tools like LexiComp as a medical encyclopedia. The document also discusses how technology helps with patient education through email, videos, and aids in overcoming communication barriers with services like video interpreters. Social media allows patients to form online support communities and share health experiences.
This document discusses characteristics of online healthcare consumers and the implications of internet and social media use. It describes that about half of US adults own smartphones and use them to look up health information online. It discusses benefits and risks of various technologies like email, texting, videos and social media. It also examines ethical issues around unreliable health information online and privacy breaches. Finally, it analyzes the role of nurses in ensuring effective health information dissemination and enhancing provider-patient communication through technology.
This document discusses developing an effective social media policy for health care organizations to prevent HIPAA violations. It begins by providing an example where a hospital employee shared a professional athlete's protected health information on social media. This demonstrated how easily PHI can be disclosed to many people. The document then discusses common employee misconceptions about what constitutes a HIPAA breach on social media, such as thinking privacy settings prevent violations or that posting without patient names is allowed. It stresses the importance of educating employees that any identifiable patient information and content posted publicly can breach privacy. Finally, it offers tips for creating a smart social media policy, including determining objectives, collaborative drafting, effective training, and enforcement.
Social media in health--what are the safety concerns for health consumers? Luis Fernandez Luque
Social media in health--what are the safety concerns for health consumers? by Lau AY, Gabarron E, Fernandez-Luque L, Armayones M. HIM J. 2012;41(2):30-5. https://www.ncbi.nlm.nih.gov/pubmed/23705132
Abstract: Recent literature has discussed the unintended consequences of clinical information technologies (IT) on patient safety, yet there has been little discussion about the safety concerns in the area of consumer health IT. This paper
presents a range of safety concerns for consumers in social media, with a case study on YouTube. We conducted a scan of abstracts on ‘quality criteria’ related to YouTube. Five areas regarding the safety of YouTube for consumers were identified: (a) harmful health material targeted at consumers (such as inappropriate marketing of tobacco or direct-to-consumer drug advertising); (b) public display of unhealthy behaviour (such as people displaying self-injury behaviours or hurting others); (c) tainted public health messages (i.e. the rise of negative voices against public health messages); (d) psychological impact from accessing inappropriate, offensive or biased social media content; and (e) using social media to distort policy and research funding agendas. The examples presented should contribute to a better understanding about how to promote a safe consumption and production of social
media for consumers, and an evidence-based approach to designing social media interventions for health. The
potential harm associated with the use of unsafe social media content on the Internet is a major concern. More empirical and theoretical studies are needed to examine how social media influences consumer health decisions, behaviours and outcomes, and devise ways to deter the dissemination of harmful influences in social media.
This document discusses the impact of social media on the patient's role in healthcare. It begins with background information on trends in social media usage. The methodology section describes searches of medical databases to identify relevant articles. The results section finds that social media facilitates communication and patient empowerment, but can also raise professionalism and privacy issues. It concludes that social media is making patients more informed users of healthcare services.
Social media and people with HIV. Results from an Italian surveyGiuseppe Fattori
As it is evident from the literature, the use of Internet, particularly Web 2.0 in
healthcare, is now under debate. Mainly, in Italy there is a shortage of specific studies concerning
the use of social media and new technologies in the infectious disease field, particularly in HIV/AIDS.
In order to explore this issue, we carried out a survey to understand how, today, the use of new
media could influence the behaviour of people living with HIV (PLWH) and their physician-patient
relationship.
Psicología 2.0. Retos y Oportunidades. Presentación utilizada en la I Jornada de Psicología 2.0 realizada el 31 de Mayo en el Col.legi Oficial de Psicòlegs de Catalunya.
En esta presentación aparecen algunos de los tópicos del Máster Universitarioen Psicología,Salud y Calidad de Vida. Uso de las TIC en la promoción de la Calidad de Vida de la UOC http://estudios.uoc.edu/es/masters-universitarios/psicologia-salud-calidad-vida-castellano/presentacion
El documento habla sobre el concepto de eSalud. Define eSalud como un campo emergente que surge de la intersección entre la informática médica, la salud pública y los negocios, relacionado con los servicios sanitarios y la información proporcionada a través de Internet. También introduce el concepto de "e-paciente" como una persona interesada en su salud que usa intensivamente las tecnologías para cuidarse, colaborar con su equipo médico y participar en el sistema de salud.
E-patients use social media and the internet to educate themselves and others about health care issues. As patients become more engaged in their own care, the relationship between patients and health care providers is shifting from the traditional Health 1.0 model where providers control information, to a Health 2.0 model of increased collaboration. Social media allows communication across all groups involved in health care, and can be used to enhance individuals' health and care through participatory approaches. While there are cautions, social media also presents opportunities to improve health care delivery through public health messaging, answering general questions, connecting patients to resources and care, and building professional networks.
Patient communities that emerge online provide crucial support for those dealing with rare or chronic illnesses. They fulfill basic human needs for belonging, validation, hope and connection. By sharing information and experiences, these virtual communities help patients and caregivers feel less alone and provide insights that can guide medical research into new diagnostic and treatment paths. The future of healthcare depends on leveraging these networks of "micro-experts" to accelerate progress.
Health 2.0: Patient Empowerment Through Innovative TechnologiesSean Mirk
This document discusses the concept of Health 2.0, which refers to using Web 2.0 technologies to empower patients and engage them in their own healthcare. It describes how patients can use tools like personal health records, mobile apps, and social networks to search for health information, share experiences, and collaborate with professionals. The document outlines potential benefits like increased patient empowerment and improved care, as well as barriers such as privacy issues and technology standards. It discusses the role of pharmacists and pharmacy educators in developing health technologies and preparing future professionals to use informatics.
Canadian physicians and social media: A prognosisPat Rich
This document discusses Canadian physicians' use of social media based on available research. It finds limited data but indicates use is increasing personally and professionally. Physicians are cautious due to privacy, liability and time concerns. Benefits of social media include communicating with patients and peers, research, and public health monitoring. Medical associations are more actively using social media than individual doctors. Overall, the prognosis is that Canadian physicians' social media use will continue growing as benefits become clearer.
Presentation to first Phillipine health care social media (#hcsmph) conference on future of social media - Feb. 21, 2014
(Please note date on cover slide is wrong - I'm not that much of a futurist!!)
Social media is becoming increasingly important in the medical field. While some doctors are slow to adopt social media, medical schools are now teaching students how to properly use social media in their practices. Social media allows doctors to connect with existing patients and attract new ones. It provides a way for doctors to share medical updates and advice and build relationships with patients. Although some doctors worry about privacy and professionalism, social media can enhance a practice if used appropriately. The majority of adults now use social media, so it remains an effective way for doctors to communicate with patients of all ages.
Doctors who use social media not only can spread the word about new medical updates, treatments or other relevant news, but also specific information about their practices. Dr. Howard Luks, an orthopedic surgeon, says: “Only the oil refinery business lags behind health care in digital media adoption.” For doctors, it is no longer practical not to have an online presence. While it might seem foolish to be updating a Facebook page or uploading YouTube videos, there are plenty of advantages.
Social media can be leveraged by medical experts and patient advocacy groups to disseminate research and connect networks of "microexperts", taking an active model of sharing information through relevant, targeted, and accessible online communities and platforms. This represents an exponential leap forward from traditional passive models of merely providing access to information by bringing research directly to interested networks and empowering patients to learn from each other.
22 Reasons Why Social Media is the Future of Patient RelationshipsNicole Stagg
The fact is, health care professionals cannot ignore social media any longer. Existing patients expect them to be on social media, and prospective patients use social media to learn more about a provider. Here, 22 more reasons why social media needs to be a made a priority for health and wellness providers.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
Social media and online tools are empowering patients and enabling new forms of participatory healthcare known as Health 2.0. Patients are increasingly educated online and use social platforms like Facebook, Twitter, blogs and YouTube to find health information and connect with providers. While this presents challenges around privacy and professional standards, it also offers opportunities if used strategically. Social media could help disseminate public health updates, answer general questions, send reminders, and help patients access resources and care. Early evidence suggests some providers are seeing new patients and income from their online presence.
Week 5 Assignment Social Media Changing Healthcare Lauren Manas
This document discusses how social media and technology are changing healthcare. It provides examples of how patients can use online resources like ZocDoc to find and book appointments with doctors, and how healthcare professionals use tools like LexiComp as a medical encyclopedia. The document also discusses how technology helps with patient education through email, videos, and aids in overcoming communication barriers with services like video interpreters. Social media allows patients to form online support communities and share health experiences.
This document discusses characteristics of online healthcare consumers and the implications of internet and social media use. It describes that about half of US adults own smartphones and use them to look up health information online. It discusses benefits and risks of various technologies like email, texting, videos and social media. It also examines ethical issues around unreliable health information online and privacy breaches. Finally, it analyzes the role of nurses in ensuring effective health information dissemination and enhancing provider-patient communication through technology.
This document discusses developing an effective social media policy for health care organizations to prevent HIPAA violations. It begins by providing an example where a hospital employee shared a professional athlete's protected health information on social media. This demonstrated how easily PHI can be disclosed to many people. The document then discusses common employee misconceptions about what constitutes a HIPAA breach on social media, such as thinking privacy settings prevent violations or that posting without patient names is allowed. It stresses the importance of educating employees that any identifiable patient information and content posted publicly can breach privacy. Finally, it offers tips for creating a smart social media policy, including determining objectives, collaborative drafting, effective training, and enforcement.
Social media in health--what are the safety concerns for health consumers? Luis Fernandez Luque
Social media in health--what are the safety concerns for health consumers? by Lau AY, Gabarron E, Fernandez-Luque L, Armayones M. HIM J. 2012;41(2):30-5. https://www.ncbi.nlm.nih.gov/pubmed/23705132
Abstract: Recent literature has discussed the unintended consequences of clinical information technologies (IT) on patient safety, yet there has been little discussion about the safety concerns in the area of consumer health IT. This paper
presents a range of safety concerns for consumers in social media, with a case study on YouTube. We conducted a scan of abstracts on ‘quality criteria’ related to YouTube. Five areas regarding the safety of YouTube for consumers were identified: (a) harmful health material targeted at consumers (such as inappropriate marketing of tobacco or direct-to-consumer drug advertising); (b) public display of unhealthy behaviour (such as people displaying self-injury behaviours or hurting others); (c) tainted public health messages (i.e. the rise of negative voices against public health messages); (d) psychological impact from accessing inappropriate, offensive or biased social media content; and (e) using social media to distort policy and research funding agendas. The examples presented should contribute to a better understanding about how to promote a safe consumption and production of social
media for consumers, and an evidence-based approach to designing social media interventions for health. The
potential harm associated with the use of unsafe social media content on the Internet is a major concern. More empirical and theoretical studies are needed to examine how social media influences consumer health decisions, behaviours and outcomes, and devise ways to deter the dissemination of harmful influences in social media.
This document discusses the impact of social media on the patient's role in healthcare. It begins with background information on trends in social media usage. The methodology section describes searches of medical databases to identify relevant articles. The results section finds that social media facilitates communication and patient empowerment, but can also raise professionalism and privacy issues. It concludes that social media is making patients more informed users of healthcare services.
Social media and people with HIV. Results from an Italian surveyGiuseppe Fattori
As it is evident from the literature, the use of Internet, particularly Web 2.0 in
healthcare, is now under debate. Mainly, in Italy there is a shortage of specific studies concerning
the use of social media and new technologies in the infectious disease field, particularly in HIV/AIDS.
In order to explore this issue, we carried out a survey to understand how, today, the use of new
media could influence the behaviour of people living with HIV (PLWH) and their physician-patient
relationship.
Psicología 2.0. Retos y Oportunidades. Presentación utilizada en la I Jornada de Psicología 2.0 realizada el 31 de Mayo en el Col.legi Oficial de Psicòlegs de Catalunya.
En esta presentación aparecen algunos de los tópicos del Máster Universitarioen Psicología,Salud y Calidad de Vida. Uso de las TIC en la promoción de la Calidad de Vida de la UOC http://estudios.uoc.edu/es/masters-universitarios/psicologia-salud-calidad-vida-castellano/presentacion
El documento habla sobre el concepto de eSalud. Define eSalud como un campo emergente que surge de la intersección entre la informática médica, la salud pública y los negocios, relacionado con los servicios sanitarios y la información proporcionada a través de Internet. También introduce el concepto de "e-paciente" como una persona interesada en su salud que usa intensivamente las tecnologías para cuidarse, colaborar con su equipo médico y participar en el sistema de salud.
Este documento resume varias herramientas web 2.0 útiles para dermatólogos, incluyendo almacenamiento en la nube (Dropbox, Box), lectores de feeds (Google Reader, Feedly), trabajo colaborativo (Google Drive), gestores de referencias (Zotero, Mendeley), compartir presentaciones (Slideshare) y aumentar la productividad con Evernote.
Rare diseases affect over 30 million people in the European Union, with each disease impacting less than 1 in 2000 citizens. Rare diseases show a broad diversity of disorders and varying symptoms, both between diseases and among patients of the same disease, making diagnosis difficult. Social media presents an opportunity for people with rare diseases to connect with others and help increase understanding of their long-tail conditions.
Innovación en investigación en Enfermedades Raras: ePacibard. Inteligencia Co...Manuel Armayones
Presentación en la Mesa 3 de las Jornadas Salud Investiga en la Escuela Andaluza de Salud Pública a cargo de Manuel Armayones (UOC) y Mercedes Serrano (Hospital St.Joan de Déu)
Vídeo en
http://new.livestream.com/easptv/JornadasAndaluzasSaludInvestiga
Promoción de la Salud y Cambio de Hábitos: Retos permanentes en una sociedad ...Manuel Armayones
Se describen algunas de las dificultades para el cambio de hábitos y se reflexiona sobre la vigencia del abordaje clásico de la promoción de la salud en una sociedad cambiante. Se plantean dudas sobre como nos afectará el uso de asistentes personales (robots) en el ámbito de la promoción de estilos de vida saludables. Se hizo la presentación durante el evento Health4Good de DKV en Noviembre 2016
The document summarizes lessons learned from developing Aptic, a social network for patients (ePatients). Key points include:
1) Extensive user research and engagement was critical to developing a platform that met patient needs over alternatives like Facebook.
2) While overall usage was modest, interviews found Aptic provided valuable support, resources and community for many users.
3) Local projects like Aptic can contribute to global issues, but the focus must remain on patients' experiences rather than any single platform.
Studying and Using Social Media in Academic Research_Paton_Chrisyan_stanford
The document discusses using social media in academic research. It provides examples of studies using technologies like iPods, Twitter, Facebook and Skype for data collection and communication. It raises questions about developing research methods for studying social media given its rapid evolution. It also discusses establishing a research agenda for IMIA to explore leveraging social tools and implications at the intersection of health, informatics and social media.
Paper Beni Gómez - APTIC: a knowledge repository for parents and caregivers o...WTHS
The APTIC social network was developed by researchers to enable members of patient associations, mostly parents of children with chronic diseases, to share experiences and information online. Interviews were conducted with six active APTIC users. Analysis found that users were motivated to join for social support and advice. They viewed APTIC contents as useful but preferred it over Facebook for more serious health discussions. Users saw the facilitator's role in moderating APTIC as important. In conclusion, social networks may help improve quality of life for parents by increasing empowerment, self-efficacy, and social support.
This document summarizes a presentation on social media use in healthcare. The presenter defines social media and reviews major platforms like blogs, Facebook, Twitter, YouTube and podcasts. Potential benefits of social media for healthcare professionals are discussed, including information sharing, collaboration and teaching/education. Challenges and limits around privacy, standards and time constraints are also reviewed. The presentation promotes the idea that healthcare professionals should engage in appropriate social media use to share expertise and connect with patients.
This document summarizes a research article about using professional social media to connect healthcare researchers. It finds that social media provides a rapid way to connect researchers worldwide and share information like profiles, publications and expertise. However, more optimization is needed to tailor connections to specific needs and applications. While sites like PubMed and LinkedIn are useful, the researchers propose developing a new scientific social network that combines features of existing sites to better meet the needs of researchers and society.
Professional social media has become an important tool for connecting researchers and healthcare professionals. It allows them to easily find and share information about each other's profiles, publications, expertise and interests. This facilitates new collaborations and multidisciplinary work. While social media has provided significant benefits, there is still room for improvement. Optimizing how researchers communicate and making use of social media more efficient could help it reach its full potential.
Online communities as a vehicle to improving interactions between patients an...Manuel Armayones
This document discusses using online communities to improve interactions between patients and medical professionals. It notes the gap between patients and doctors/hospitals and proposes a bridge in the form of personally controlled health records. The document also summarizes feedback from patient associations who want a customized online platform to share experiences and collaborate with doctors, but have concerns about privacy, costs, and clinical data use.
Communities of practice vs the status quoKatie Brown
2011 UK Mental Health 2.0
A presentation on service delivery level - forming conversations on collaborative models of working between service user led and service led mental health.
Framing thinking for ongoing innovation.
This document discusses the potential benefits of physicians using social media and engaging patients. It outlines how social media can enhance patient engagement, be used in medical education, and provide a return on investment. Some key points include:
- Social media allows bidirectional communication between patients, doctors, and other stakeholders.
- It can help empower patients and move towards a health 2.0 model with more engaged patients.
- Physicians should consider using social media to engage with patients, enhance their expertise, and stay relevant in an increasingly digital world.
- There are opportunities to use social media in medical education and for collaborations, but privacy and professionalism must be considered.
The document discusses social media use at Ohio State University Medical Center (OSUMC). It provides an overview of OSUMC's departments and facilities. It then discusses using social media to build relationships, listen to audiences, and influence medicine. OSUMC uses platforms like blogs, Facebook, YouTube, and custom sites to engage audiences and tell stories. The goal is to deliver more personalized healthcare using predictive, preventive, personalized and participatory approaches.
Presentation given on June 8, 2010 at the GAME Conference in Montreal covering the evolving role of Social Media and Networking in Continuing Medical Education and Continuing Physician Professional Development
Internet as place: Policy, practice, and research in e-mental health for Scot...Diane Rasmussen Pennington
This document summarizes a presentation on place-based approaches to e-mental health in Scotland. It discusses how geographic context is important in policy and practice. Place-based policies that involve local and higher-level groups working together can help address social exclusion and underutilization of potential in different areas. The document also reviews Scotland's national strategies and plans for improving digital health, including increasing access to online cognitive behavioral therapy, developing self-help resources, and ensuring technologies support independent living for those with dementia.
The document discusses the ALISS project which aims to empower those with long-term conditions by making local support information easier to access, create, and share. It does this by developing an information architecture and open innovation process to gather, organize, and present local health resources. The goal is to move beyond traditional static directories and engage various groups like schools in contributing to a more fluid and socially driven system.
"Wikis, Blogs, Texting, and More" presentation at the U.S. Conference on AIDS in San Francisco on October 30, 2009. Facilitated by Michelle Samplin-Salgado and Miguel Gomez.
This slides wer presented at the Medicine 2.0 conference at Stanford University on 09.17.11 and include data that was collected as part of a research collaboration b/w Bob Miller (Hopkins), Bryan Vartabedian (Baylor), Molly Wasko (UAB), and the team at CE Outcomes. This research was funded in part by the Medical Education Group at Pfizer, Inc.
PatientDoctor Relationships & Social Media - Himss Virtual Conf 09 - Amy ...Amy Cueva
Social media could help facilitate provider-patient relationships by providing timely information sharing and collaboration. It allows for more frequent interactions that can lead to informed, empowered patients through convenient access. However, risks like ensuring quality information, legal issues, and information overload must be addressed for successful implementation.
The future interface of mental health with information technology: high touch...HealthXn
The document discusses the future of mental health and technology, including:
- Technology may help address challenges in healthcare systems but also presents pitfalls if not implemented carefully.
- The roles of health professionals and patients may change as technology becomes more integrated in care, requiring new skills.
- Data and information from various sources can provide insights if analyzed properly, but also raise privacy and security concerns.
- Future health systems will rely more on knowledge management and using data/analytics to provide personalized, predictive care while maintaining the human touch.
Behavior Design Lab-eHealth Center-Open University of CataloniaManuel Armayones
This document provides an overview of the eHC Behavior Design Lab led by Dr. Manuel Armayones. The lab applies theories and techniques from behavioral sciences and design to promote behavior change through digital technologies in individual and public health interventions. Their goal is to improve health and quality of life. The lab conducts research on topics like healthy habits, physical activity promotion, smoking cessation, and more using theoretical models like the Behavior Change Wheel. They also collaborate on projects to design more accessible experiences for museums, transportation, airports, and more. The document outlines the lab's research approach and some of their current and past projects.
Redes sociales como herramientas de alfabetización digital en salud:algunas b...Manuel Armayones
El documento describe las redes sociales como herramientas para la alfabetización digital en salud, explicando que la alfabetización en salud implica entender, interpretar y evaluar información para tomar decisiones y acceder a recursos. También presenta el proyecto JUNTS financiado por RECERCAIXA, el cual usa redes sociales para mejorar la alfabetización en salud.
Alfabetización Digital en Salud: cuestión de "H-Alma"Manuel Armayones
Tomando la idea de "H-Alma" de los Drs. March y Bimbela de la Escuela Andaluza de Salud Pública reflexionamos en 2017 sobre alfabetización en salud y su vías a través de Internet
¿Cómo pueden combinarse para ayudarnos a cambiar nuestro comportamiento hacia...Manuel Armayones
Presentación en el Cluster for Patient Empowerment. https://www.elsevier.es/corp/conecta/cluster-for-patient-empowerment-futuro-la-psicologia-pasar-la-tecnologia-empoderamiento-del-paciente/
¿Que sabemos sobre la relación entre tecnología y personas?Manuel Armayones
El documento presenta la metodología DARCA desarrollada por el eHealth Center de la UOC para analizar el nivel de cambio/persuasión de intervenciones tecnológicas teniendo en cuenta el objetivo de cambio, el contexto y variables personales. La metodología se basa en diversas teorías del cambio de conducta e involucra el asesoramiento en el diseño de tecnologías para integrar estrategias de cambio, así como la investigación aplicada y la creación de un corpus de conocimiento.
Este documento describe el potencial de las redes colaborativas de pacientes con enfermedades crónicas. Señala que los pacientes (llamados "epacientes") están cada vez más involucrados en su propia salud a través del uso de Internet y las redes sociales. Comparten conocimientos e información sobre sus enfermedades con otros pacientes y profesionales, lo que puede generar nuevos conocimientos útiles para la investigación biomédica. También destaca iniciativas como Patientslikeme que funcionan como comunidades virtuales donde los pacientes se
Algunas reflexiones sobre el futuro de la eSaludManuel Armayones
El documento habla sobre el futuro de la salud digital (eSalud). Predice que los principales actores serán los propios usuarios (pacientes, profesionales e investigadores) y que habrá un movimiento hacia modelos más horizontales con el apoyo de profesionales. Los pacientes participarán activamente compartiendo conocimientos y datos para generar nuevo conocimiento para la investigación médica. Se referencia teóricamente a la "Salud 2.0", comunidades de salud en línea, redes sociales y la inteligencia colectiva.
First Part IN3,UOC,Seminar Research: Social Media an Rare Disease
http://in3.uoc.edu/opencms_portalin3/opencms/en/activitats/seminaris/agenda/2011/agenda_011
Presentación de la sesión sobre Promoción de la Salud y TIC impartida en el marco de unas jornadas organizadas por Proyecto Hombre y el Excmo. Ayuntamiento de Oviedo.
Este documento describe un proyecto para mejorar la calidad de vida de los padres de niños con enfermedades crónicas a través del desarrollo de una red social online. El proyecto busca empoderar a los padres mediante el apoyo social, la autoeficacia y el uso de las TIC. Se espera que la participación en la red social incremente la calidad de vida de los usuarios al tiempo que mejora su aprendizaje y empoderamiento.
Las Redes Sociales Como Herramientas De IntervencióN Social En SaludManuel Armayones
En el marco del IV Encuentro de Investigación, Innovación e Ingeniería organizado con CINTEL (Centro de Investigación para las Telecomunicaciones) en Bogotá (Colombia) en Agosto 2009 tuvimos la oportunidad de exponer la presentación: Las redes sociales como herramientas de Intervención Social y en Salud.
The biomechanics of running involves the study of the mechanical principles underlying running movements. It includes the analysis of the running gait cycle, which consists of the stance phase (foot contact to push-off) and the swing phase (foot lift-off to next contact). Key aspects include kinematics (joint angles and movements, stride length and frequency) and kinetics (forces involved in running, including ground reaction and muscle forces). Understanding these factors helps in improving running performance, optimizing technique, and preventing injuries.
“Psychiatry and the Humanities”: An Innovative Course at the University of Mo...Université de Montréal
“Psychiatry and the Humanities”: An Innovative Course at the University of Montreal Expanding the medical model to embrace the humanities. Link: https://www.psychiatrictimes.com/view/-psychiatry-and-the-humanities-an-innovative-course-at-the-university-of-montreal
Breast cancer: Post menopausal endocrine therapyDr. Sumit KUMAR
Breast cancer in postmenopausal women with hormone receptor-positive (HR+) status is a common and complex condition that necessitates a multifaceted approach to management. HR+ breast cancer means that the cancer cells grow in response to hormones such as estrogen and progesterone. This subtype is prevalent among postmenopausal women and typically exhibits a more indolent course compared to other forms of breast cancer, which allows for a variety of treatment options.
Diagnosis and Staging
The diagnosis of HR+ breast cancer begins with clinical evaluation, imaging, and biopsy. Imaging modalities such as mammography, ultrasound, and MRI help in assessing the extent of the disease. Histopathological examination and immunohistochemical staining of the biopsy sample confirm the diagnosis and hormone receptor status by identifying the presence of estrogen receptors (ER) and progesterone receptors (PR) on the tumor cells.
Staging involves determining the size of the tumor (T), the involvement of regional lymph nodes (N), and the presence of distant metastasis (M). The American Joint Committee on Cancer (AJCC) staging system is commonly used. Accurate staging is critical as it guides treatment decisions.
Treatment Options
Endocrine Therapy
Endocrine therapy is the cornerstone of treatment for HR+ breast cancer in postmenopausal women. The primary goal is to reduce the levels of estrogen or block its effects on cancer cells. Commonly used agents include:
Selective Estrogen Receptor Modulators (SERMs): Tamoxifen is a SERM that binds to estrogen receptors, blocking estrogen from stimulating breast cancer cells. It is effective but may have side effects such as increased risk of endometrial cancer and thromboembolic events.
Aromatase Inhibitors (AIs): These drugs, including anastrozole, letrozole, and exemestane, lower estrogen levels by inhibiting the aromatase enzyme, which converts androgens to estrogen in peripheral tissues. AIs are generally preferred in postmenopausal women due to their efficacy and safety profile compared to tamoxifen.
Selective Estrogen Receptor Downregulators (SERDs): Fulvestrant is a SERD that degrades estrogen receptors and is used in cases where resistance to other endocrine therapies develops.
Combination Therapies
Combining endocrine therapy with other treatments enhances efficacy. Examples include:
Endocrine Therapy with CDK4/6 Inhibitors: Palbociclib, ribociclib, and abemaciclib are CDK4/6 inhibitors that, when combined with endocrine therapy, significantly improve progression-free survival in advanced HR+ breast cancer.
Endocrine Therapy with mTOR Inhibitors: Everolimus, an mTOR inhibitor, can be added to endocrine therapy for patients who have developed resistance to aromatase inhibitors.
Chemotherapy
Chemotherapy is generally reserved for patients with high-risk features, such as large tumor size, high-grade histology, or extensive lymph node involvement. Regimens often include anthracyclines and taxanes.
Nutritional deficiency Disorder are problems in india.
It is very important to learn about Indian child's nutritional parameters as well the Disease related to alteration in their Nutrition.
Travel Clinic Cardiff: Health Advice for International TravelersNX Healthcare
Travel Clinic Cardiff offers comprehensive travel health services, including vaccinations, travel advice, and preventive care for international travelers. Our expert team ensures you are well-prepared and protected for your journey, providing personalized consultations tailored to your destination. Conveniently located in Cardiff, we help you travel with confidence and peace of mind. Visit us: www.nxhealthcare.co.uk
Travel vaccination in Manchester offers comprehensive immunization services for individuals planning international trips. Expert healthcare providers administer vaccines tailored to your destination, ensuring you stay protected against various diseases. Conveniently located clinics and flexible appointment options make it easy to get the necessary shots before your journey. Stay healthy and travel with confidence by getting vaccinated in Manchester. Visit us: www.nxhealthcare.co.uk
The skin is the largest organ and its health plays a vital role among the other sense organs. The skin concerns like acne breakout, psoriasis, or anything similar along the lines, finding a qualified and experienced dermatologist becomes paramount.
Spontaneous Bacterial Peritonitis - Pathogenesis , Clinical Features & Manage...Jim Jacob Roy
In this presentation , SBP ( spontaneous bacterial peritonitis ) , which is a common complication in patients with cirrhosis and ascites is described in detail.
The reference for this presentation is Sleisenger and Fordtran's Gastrointestinal and Liver Disease Textbook ( 11th edition ).
PGx Analysis in VarSeq: A User’s PerspectiveGolden Helix
Since our release of the PGx capabilities in VarSeq, we’ve had a few months to gather some insights from various use cases. Some users approach PGx workflows by means of array genotyping or what seems to be a growing trend of adding the star allele calling to the existing NGS pipeline for whole genome data. Luckily, both approaches are supported with the VarSeq software platform. The genotyping method being used will also dictate what the scope of the tertiary analysis will be. For example, are your PGx reports a standalone pipeline or would your lab’s goal be to handle a dual-purpose workflow and report on PGx + Diagnostic findings.
The purpose of this webcast is to:
Discuss and demonstrate the approaches with array and NGS genotyping methods for star allele calling to prep for downstream analysis.
Following genotyping, explore alternative tertiary workflow concepts in VarSeq to handle PGx reporting.
Moreover, we will include insights users will need to consider when validating their PGx workflow for all possible star alleles and options you have for automating your PGx analysis for large number of samples. Please join us for a session dedicated to the application of star allele genotyping and subsequent PGx workflows in our VarSeq software.
Know the difference between Endodontics and Orthodontics.Gokuldas Hospital
Your smile is beautiful.
Let’s be honest. Maintaining that beautiful smile is not an easy task. It is more than brushing and flossing. Sometimes, you might encounter dental issues that need special dental care. These issues can range anywhere from misalignment of the jaw to pain in the root of teeth.
Know the difference between Endodontics and Orthodontics.
Medicine20 Stanford
1. APTIC. Developing a Social Network for ePatients: lessonslearned. M. Armayones1,B. Gómez-Zúñiga1,E. Hernández1,N. Guillamón1; B. Nafría1, G. Ontiveros1,A. Bosque2& M. Pousada1. 1PSiNET Research Group. IN3. Open University of Catalonia (Spain) 2 Hospital Materno Infantil St. Joan de Déu (Barcelona, Spain) marmayones@uoc.edu http://www.uoc.edu/in3/psinet
2. A collaborative initiative from the very beginning Health system Sant Joan de Déu pediatric Hospital Patients Associations’ Area Information and dissemination Patients Associations University- Applied research UOC Research group PSiNET General Execution Support Centre for Global ehealth Innovation Technological Support Carlos Bocanegra Financial support for coordination TicSalut Foundation Open Software. Developers community
21. Lessons learned... and some ideas we hope will be useful We are workingwithusers (families and professionals) notfortheusers. Thefacilitator (community manager) iskey inthesuccess of ourplatform. Thecommunity manager can’tbepaternalistic, like in the “oldmodel”, butcollaborative, motivator.... shouldmakethingshappen.
22. Lessons learned... and some ideas we hope will be useful The needs analysis presents a wonderful opportunity to work and learn from the ePatients. Work with the “Patients Association's Area” of the Hospital increases the trust of users.
23. 9 A Community of practicewithin a social networkstructure 9
26. 12 Menu with community options Latest posts in the community 12
27. Somethoughts 20 users represent the 80% of the activity in APTIC (Law 1-9-90). Is there something we can do about it? 70% of most active users have an average or a high academic level. What about the rest? Is there an “eHealth literacy divide”? The level of “self-disclosure” is not as high as we expected. (APTIC is more a “community of practice” than a site for social relationships).
28. Somethoughts Users are mostly professionals. We are finding ways of collaboration in a “peer to peer” platform. APTIC group in Facebook:1500 people. It will disappear… be careful.
31. Platformactivitystatistics Users (sept 2011): 384 Mail messagesbetweenusers: 20733 Bookmarks: 420 Fileuploads: 291 Vídeos: 170 Blogs entries: 135 Events in Calendar: 123 ForumsTopics : 71 Quotes of theday: 65 Messages in friend'swall: 734
32. Somedifficulties Serious difficulties in obtaining data for a pre-post design. People don’t want to be subjects in an experiment. Perhaps our instruments are too long? Quantitative analysis can prevent us from understanding what is happening on the network. We decided to make a qualitative assessment (through in-depth interviews)
44. Someconclusions We are workingwith a littlenumber of families. Formost of them, APTIC is a usefultool and they are findinghelp, support, solidarity and goodresources. “Local” projects can bepart of thesolutionfor“global” problems. Wemustavoidworking from a “social networkcentered” perspective. Themostimportantisthepatient, notourplatform (itseemsobvious...). Weshouldn'tbelievethatourtoolisthe “best”, “unique” or “final”. Theusershave a “ personal time” for social network and weneedtooffersomethingdifferenttoFacebook. WeneedtoknowwhatistheeROI (emotional ROI) of APTIC.