Presentation valencia roundtable

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Looking forward the “classical” e-patient: approach to a typology
Can we combine information from eHealth Literacy Scale with Patient Activation Measure to offer a tailored intervention?

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Presentation valencia roundtable

  1. 1. Looking forward the “classical” e-patient: approach to a typology PSINET Research Group Open University of Catalonia. [email_address] @armayones III Workshop on Technology for HealthCare and Healthy Life Polytechnic University of Valencia
  2. 2. Challenges in Health Social Networks <ul><li>We need to know more about “Law of attrition” here is the observation that in any eHealth trial/tool a substantial proportion of users drop out before completion or stop using the application. (Eynsebach;2005) </li></ul><ul><li>“ Our user (APTIC) shows a high level of self-efficacy, perceived social supports in the PRE analysis” …Can we improve more the “key variables”? What about the rest of patients? </li></ul><ul><li>Our (unrealistic) vision: “If I create a “wonderful” Social Network , people will come”. </li></ul><ul><li>Not taking in account the role of Facilitator/ Community manager? … Are you specialist in human behavior? ….Captology. </li></ul>
  3. 3. <ul><li>Why the people “hate” my Social Network? </li></ul><ul><li>Why they don’t are “active users” with a high level of participation? </li></ul><ul><li>Why they don’t come? It’s “Free” and “Wonderful tool for the patients” </li></ul><ul><li>Why we are working for only a part o population? </li></ul><ul><li>At list…… </li></ul>Do you have questions like?...
  4. 4. Where are the ePatients?
  5. 5. We need to know more about ePatients: <ul><ul><ul><li>Evaluating all their characteristics: </li></ul></ul></ul><ul><ul><ul><li>Educational level </li></ul></ul></ul><ul><ul><ul><li>Age </li></ul></ul></ul><ul><ul><ul><li>Attitudes </li></ul></ul></ul><ul><ul><ul><li>Informatics skills </li></ul></ul></ul><ul><ul><ul><li>Informational skills </li></ul></ul></ul><ul><ul><ul><li>Reading level </li></ul></ul></ul><ul><ul><ul><li>Writing skills </li></ul></ul></ul><ul><ul><ul><li>Social skills </li></ul></ul></ul><ul><ul><ul><li>Expectative about health/disease </li></ul></ul></ul><ul><ul><ul><li>Interest in collaborate in research </li></ul></ul></ul>
  6. 6. Our approach <ul><li>Survey/Focus Group/In-deep interviews about demographic and social information </li></ul><ul><li>Use of two specific Scales (or create one) </li></ul><ul><li>-eHeals Scale: eHealth Literacy Scale </li></ul><ul><li>-Patient Activation Measure Scale. </li></ul>
  7. 10. eHealth Literacy Scale <ul><li>I know what health resources are accessible through the Internet. </li></ul><ul><li>I know where to find useful health resources on the Internet. </li></ul><ul><li>I know how to find useful health resources on the Internet. </li></ul><ul><li>I know how to use the Internet to find answers to health issues. </li></ul><ul><li>I know how to use the information you find on the Internet about health for me to be helpful. </li></ul><ul><li>I have the skills to assess health resources found on the Internet. </li></ul><ul><li>I can distinguish in Internet health resources of good quality of poor quality </li></ul><ul><li>I feel safe when using Internet information in making health decisions. </li></ul>
  8. 11. Patient Activation Measure (PAM) <ul><li>When all is said and done, I am the person who is responsible for managing my health condition. </li></ul><ul><li>I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health condition. </li></ul><ul><li>I know what each of my medications do. </li></ul><ul><li>I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself. </li></ul>
  9. 12. <ul><li>I know the different medical treatment options available for my health condition. </li></ul><ul><li>I have been able to maintain the lifestyle changes for my health that I have made. </li></ul><ul><li>I know how to prevent further problems with my health conditions. </li></ul><ul><li>I am confident I can figure out solutions when new situations or problems arise with my health. </li></ul><ul><li>I am confident that I can maintain lifestyle changes like diet and exercise even during times of stress. </li></ul>
  10. 13. But, if…we combine both..?
  11. 23. At the end…The Personalized intervention with ePatients can be a good strategy to improve our knowledge about <ul><li>Personalized Medicine: </li></ul><ul><ul><ul><li>Right Drug, Right Patient, Right Moment </li></ul></ul></ul><ul><li>Personalized ePatient Intervention </li></ul><ul><ul><li>Right Social Media Tool, Right Person, Right Moment </li></ul></ul>
  12. 24. <ul><li>Thanks for your attention! </li></ul><ul><li>[email_address] </li></ul><ul><li>@armayones </li></ul>

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