The role of social media in enhancing connection and communities has been under question for some time. Using several case studies, a case is made to improve the digital literacy and social media capabilities of healthcare staff in order to amplify their effect and impact.

2. Lessons from using social media to
advance personal and collective growth
A Connected Way of Life
15th January 2015
Sarah Amani
@S_Amani #SeacoleScholar
www.ehealthconsultant.org

3. 1 Background
2 Discovery
3 The journey so far
4 Challenges and woes
Overview
5 Growth

4. What is Social Media?
Social media refers to the means of
interactions among people in which they
create, share, and exchange information
and ideas in virtual communities and
networks.

5. Facebook = Friend Builder
Twitter = Community Builder
YouTube = Broadcast Content to the World
Flickr = Photographs to Inspire
LinkedIn = Professional Connections
Blogs = Your Own Online Newspaper
Tumblr = Sharing Information

6. “The impact of social media on the balance of power
and knowledge between patient and professional is
enormously significant...”
Disruptive Technologies Report

8. Tracing my
Roots,
Malawi, 2010

9. Malawi
Total Population = 13 Million
15% of Population Living
with HIV/AIDS

11. Moyo = Life

12. 15%of Secondary School Age
Girls Attend School
30%of Secondary School
Age Boys Attend
School
Nkhota-Kota, Malawi
13,000 Children aged 14-17
29 Secondary Schools
1:63 Teacher - Pupil Ratio

15. 2008 2012 20132009 2010 2011
Started work at EIP +
University of Surrey
Vision Unclear
Noted frequent
Staff turnover
Poor pt satisfaction
Poor staff morale
Poor clinical outcomes
Manager left
Staff posts cut
Staff sickness rocketed
PIER Project
awarded £10,000
(National Leadership Council)
Took up management of team
Began developing a vision
Completed Transformational
Leadership Programme
Reach Out Project
awarded £12,500 Mary
Seacole Award
(DoH)
Youth Mental Health Network
Project (YMHN) awarded £20, 000
for My Journey app (SHA)
Started Proactive
Intervention to Enhance
Recovery (PIER) project
YMHN awarded £35, 000 for
YMH economic evaluation by
LSE (NHS Confed)
After numerous
rejected proposals
My Journey App
awarded £40,000
for evaluation
(Burdett Trust)
2014
Moyo Project

16. Success is an Iceberg

18. 1. Create a youth orientated & accessible online resource for first
episode psychosis & mental health.
2. Raise awareness & reduce Duration of Untreated Psychosis &
enhance Recovery.
3. Embed leadership, innovation & service user involvement in
EIP.
Triple Aim

21. Released: 1998
CPU: 233 MHz
RAM: 32 MB (512 MB max)
Storage: 4 GB (+ optical drive)
Display: 38.1 cm Millions of colours
Dimensions: 40.1 x 38.6 x 44.7 cm
Weight: 17.3 kgs
Released: 2007
CPU: 412 MHz
RAM: 128 MB
Storage: 4 GB (8 GB max)
Display: 8.9 cm Millions of colours
Dimensions: 11.4 x 6.1 x 1.2 cm
Weight: 135 g
This was ‘portable’...
<10 years...

23. 23
Engaging young people with familiar tools
92% of 14-25 year olds
own a smartphone
Sensors, devices, networks,
software, sensors
and data

24. work
learning
navigation
discovery
With a button or two!
creativity
video
a big screen...
web browser
+
application
layer
+
APIs
communication
play camera
sharing
Enabling users to determine
music their own experience
chat
Health

31. Community Health Ambassadors should be members of the
communities where they live, work, study, play… should be
selected by their communities, should be answerable to the
communities for their activities, should be supported by the
health system but not necessarily a part of its organization,
and have shorter training than professional workers.
World Health Organization
(2007)
“
”
Community Health Ambassadors (CHAs)

33. The Wisdom of Crowds?

34. “A lie can travel halfway around the world while
the truth is putting on its shoes.”
Mark Twain
Tracking Anti-Vaccination Sentiment in Europe Using Social Media. Unicef, April 2013

35. #vaccineswork
The main findings were:
• In all four languages, blogs were the most frequently used channel for posting anti-vaccine content in social
media (86 per cent in Romanian, 85 per cent in Polish, 65 per cent in Russian and 47 per cent in English).
• Facebook was the second largest channel among all four languages. Twitter was the second largest
channel in Russian, with 24 per cent of total volume.
• While conversations on forums only made up 2 per cent of total conversations, they accounted for 25 per
cent of interactions.
• The data skews towards female audiences on issues such as developmental disabilities (59 per cent),
chemical and toxins (56 per cent), and side effects (54 per cent).
• Men focused on arguments around conspiracy theory (63 per cent) and religious/ethical beliefs (58 per cent).
• Participants discussing anti-vaccination sentiments are approximately 56 per cent female and 44 per cent
male.

36. Implications
• Majority do vaccinate & immunize themselves & their children
• But many have concerns over safety
• They are seeking information online & via social media
• How reliable is this information?

38. BME Networks
United for Equality

40. Where are we now?
• ‘Subtle’ incidents of intentional and non intentional disadvantaging of minorities - that can
not be proven
• Disproportionate repercussions with BME people being more likely to face hearings but
many cases reversed by registering bodies e.g NMC, GMC etc
• Many of these events have ‘unspoken’ outcomes (Non Disclosure Agreements)
• Secrecy means contributory factors + facts are hidden and therefore lessons are not learnt*
*A basic definition of madness is: Doing the same and expecting different results….

41. Knowledge is Power
• Do you know enough about the status quo?
• Where does race equality sit your organisation’s current
priority list?
• Who are your sponsors and detractors?
• Who is being real and who is pretending?

42. Where are you going?

48. AUTHOR’S PROOF
Technological innovations in mental
healthcare: harnessing the digital revolution
Chris Hollis, Richard Morriss, Jennifer Martin, Sarah Amani, Rebecca Cotton,
Mike Denis and Shon Lewis
Summary
Digital technology has the potential to transform mental
healthcare by connecting patients, services and health data
in new ways. Digital online and mobile applications can offer
patients greater access to information and services and
enhance clinical management and early intervention through
access to real-time patient data. However, substantial gaps
exist in the evidence base underlying these technologies.
Greater patient and clinician involvement is needed to
evaluate digital technologies and ensure they target unmet
needs, maintain public trust and improve clinical outcomes.
Declaration of interest
C.H. receives research funding from Shire Pharmaceuticals
paid to his employing institution. R.C. reports that Janssen
Cilag Ltd have provided a grant to support an upcoming
Mental Health Network event on the subject of technology
and mental health services. S.L. is chief investigator on the
Clintouch project. C.H., R.M. and J.M. are all involved in the
National Institute of Health Research (NIHR) MindTech
Healthcare Technology Co-operative.
The British Journal of Psychiatry (2015)
206, 1–3. doi: 10.1192/bjp.bp.113.142612
Editorial
Author:
Please note we
have separated
off some of
the material
from this
section and
placed it in the
Funding
section instead
– please check
the changes
are acceptable.
Also please
check that the
last sentence,
which we have
added, is
appropriate
and amend as
necessary
(included here

51. Q & A
Thank You
Sarah Amani
@S_Amani #SeacoleScholar
www.ehealthconsultant.org
sarah.amani@ehealthconsultant.org