Health Economics and Burden of Disease Breakout Report

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This document summarizes the discussions from a health economics and burden of disease breakout group on alopecia areata. The group discussed questions that still need answers around how alopecia areata impacts work, income, mental health, and patients' life courses. They also identified the need for partnerships to measure clinically relevant outcomes, better database access, and connections between stakeholders. The group suggested the North American Alopecia Areata Foundation could help fund research to address practice gaps, identify patients for research, and coordinate among pharmaceutical companies and payers.

Health Economics & Burden of Disease
Breakout Group Report

What has already been done and how is it related?
• Understanding impact of non-scalp hair loss
• Sexual Quality of Life
• Out of Pocket Costs
• Prevalence studies/who is going to be a candidate for the drug

What questions still need to be answered?
• How does AA impact work related outcomes?
• Impact on patient time/income
• Anxiety/depression/suicidality
• What is the cumulative impact of alopecia areata on patients’ life
course
• Practice gap between patient and provider’s views of what is
important and what works for patients
• What is wean-off criteria

What resources are needed?
• Partnership with clinical outcome assessments to make sure we
are measuring what matters
• Database access—how do we have ready access to data that
people want?
• Connections between patients, payers, clinicians, and
pharmaceuticals

What can NAAF do to help?
• Coordination and funding of clinical research focused on specific
practice gaps
• Identify patients for qualitative interviews or focus groups—link
research to PRO development
• Coordinate among pharma and payers to facilitate access

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2. What has already been done and how is it related? • Understanding impact of non-scalp hair loss • Sexual Quality of Life • Out of Pocket Costs • Prevalence studies/who is going to be a candidate for the drug

3. What questions still need to be answered? • How does AA impact work related outcomes? • Impact on patient time/income • Anxiety/depression/suicidality • What is the cumulative impact of alopecia areata on patients’ life course • Practice gap between patient and provider’s views of what is important and what works for patients • What is wean-off criteria

4. What resources are needed? • Partnership with clinical outcome assessments to make sure we are measuring what matters • Database access—how do we have ready access to data that people want? • Connections between patients, payers, clinicians, and pharmaceuticals

5. What can NAAF do to help? • Coordination and funding of clinical research focused on specific practice gaps • Identify patients for qualitative interviews or focus groups—link research to PRO development • Coordinate among pharma and payers to facilitate access

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