Watch the webinar here: http://encore.meetingbridge.com/MB005418/140528/
Webinar transcript: http://hdc.membershipsoftware.org/Files/webinars/HDC-PwC%20NIH%20&%20PCORI%20Webinar%20Transcript%205_28_14.pdf
Patient-Centered Outcomes Research Institute (PCORI) Executive Director Joe Selby, MD, MPH; National Institutes of Health (NIH) Director and PCORI Board of Governors member Francis Collins, MD, PhD; and NIH Associate Director for Data Science Philip Bourne, PhD discussed new and emerging trends in big data for health, including:
- How researchers, patients, clinicians, and others are forging new models for data-sharing.
- Leveraging the quantity, variety, and analytic potential of health-related data for research and practice.
- Addressing patients’ perspectives, needs, and concerns in creating new opportunities for innovation and translational science.
- Exciting initiatives such as PCORnet, the National Patient-Centered Clinical Research Network initiative that PCORI is now helping to develop, and related open data and technology efforts such - as the NIH Health Systems Collaboratory and Big Data to Knowledge (BD2K) initiative.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
One Funder’s View for Advancing Open SciencePhilip Bourne
Robert Wood Johnson Foundation & SPARC Workshop on October 19, 2015 intended to catalyze a dialogue about opportunities for philanthropy and other funders in open access.
Josephine Briggs, MD
Director
National Center for Complementary and Alternative Medicine
National Institutes of Health
Opening Keynote "Research in an IT Connected World: Building Better Partnerships – NIH and Health Care Systems"
The era of ‘Big Data’ has arrived for biomedical research, bringing with it immense challenges as well as spectacular opportunities. NIH is establishing major programs with the potential to transform the future of US biomedical research by building the capacities necessary for these challenges. These programs will strengthen research partnerships with health care systems and the IT networks that support them.
The Big Data to Knowledge (BD2K) initiative, to be launched in 2014, will implement a set of recommendations from the Data and Informatics Working Group to the Advisory Committee to the Director. Investments are planned to meet scientific needs to manage and utilize large complex datasets, including strengthening training, and investing in improved analysis methods and software development and dissemination. NIH is also evaluating strengthening data and software sharing policies, and the potential creation of catalogs of research data, and data/metadata standards.
The Common Fund’s Health Care Systems (HCS) Research Collaboratory program has the goal to strengthen the national capacity to implement cost-effective large-scale research studies by engaging major health care delivery organizations as research partners. The aim of the program is to provide a framework of implementation methods and best practices that will enable the participation of many health care systems in clinical research. Research conducted in partnership with health care systems is essential to strengthen the relevance of research results to health practice. Seven demonstration projects, currently in a feasibility phase, are developing detailed methods to implement rigorous randomized studies of questions of major public health impact. These studies, and the IT infrastructure that will make them possible, will be described in detail.
One Funder’s View for Advancing Open SciencePhilip Bourne
Robert Wood Johnson Foundation & SPARC Workshop on October 19, 2015 intended to catalyze a dialogue about opportunities for philanthropy and other funders in open access.
Josephine Briggs, MD
Director
National Center for Complementary and Alternative Medicine
National Institutes of Health
Opening Keynote "Research in an IT Connected World: Building Better Partnerships – NIH and Health Care Systems"
The era of ‘Big Data’ has arrived for biomedical research, bringing with it immense challenges as well as spectacular opportunities. NIH is establishing major programs with the potential to transform the future of US biomedical research by building the capacities necessary for these challenges. These programs will strengthen research partnerships with health care systems and the IT networks that support them.
The Big Data to Knowledge (BD2K) initiative, to be launched in 2014, will implement a set of recommendations from the Data and Informatics Working Group to the Advisory Committee to the Director. Investments are planned to meet scientific needs to manage and utilize large complex datasets, including strengthening training, and investing in improved analysis methods and software development and dissemination. NIH is also evaluating strengthening data and software sharing policies, and the potential creation of catalogs of research data, and data/metadata standards.
The Common Fund’s Health Care Systems (HCS) Research Collaboratory program has the goal to strengthen the national capacity to implement cost-effective large-scale research studies by engaging major health care delivery organizations as research partners. The aim of the program is to provide a framework of implementation methods and best practices that will enable the participation of many health care systems in clinical research. Research conducted in partnership with health care systems is essential to strengthen the relevance of research results to health practice. Seven demonstration projects, currently in a feasibility phase, are developing detailed methods to implement rigorous randomized studies of questions of major public health impact. These studies, and the IT infrastructure that will make them possible, will be described in detail.
Quality analysis of NSF DMP plans - Wayne State Universityrds-wayne-edu
With assistance from WSU's office of Sponsored Programs Administration, 119 data management plans (half funded and half unfunded) from NSF grants submitted between 2012-2014 were obtained for scrutiny. Each DMP was evaluated by two reviewers, who reached consensus on a rating of how well the plan integrated elements required by NSF guidance. Descriptive statistics of ratings were formed, and statistical association between ratings and funding status were conducted.
NCI Cancer Genomics, Open Science and PMI: FAIR Warren Kibbe
Talk given to the NLM Fellows on July 8, 2016. Touches on Cancer Genomics, Open Science and PMI: FAIR in NCI genomics thinking and projects. Includes discussion of the Genomic Data Commons (GDC), Cancer Data Ecosystem, Data sharing, and the NCI cancer clinical trials open API.
Medical Question Answering: Dealing with the complexity and specificity of co...Asma Ben Abacha
"Medical Question Answering: Dealing with the complexity and specificity of consumer health questions and visual questions". Invited talk at the Allen Institute for AI (AI2), Seattle, Washington.
Dr. Asma Ben Abacha.
November 12, 2019.
2016 Data Commons and Data Science Workshop June 7th and June 8th 2016. Genomic Data Commons, FAIR, NCI and making data more findable, publicly accessible, interoperable (machine readable), reusable and support recognition and attribution
DOE-NCI Pilots presentation at the Frederick National Laboratory Advisory Com...Warren Kibbe
May 2016 FNLAC presentation of the DOE-NCI partnership around three pilots focused on existing projects in NCI and existing NSCI directives and activities in DOE.
May 2016 NCI Cancer Center Directors meeting. Data Sharing and the Cancer Genomic Data Commons (GDC). Focus is on cancer genomic and clinical phenotype data.
Nci clinical genomics data sharing ncra sept 2016Warren Kibbe
Gave an update on the Cancer Research Data Ecosystem, the Genomic Data Commons, Cloud Pilots, incentives for data sharing in cancer research to the NCI Council of Research Advocates (NCRA) on Monday, September 26th, 2016
160929 teamscope presentation molecule to businessSMBBV
Teamscope; mHealth, a paradigm shift in clinical reseach. Presentation by Diego Mechaca during 'From Molecule to Business' event by SMB Life Sciences and Health Valley at NovioTechCampus, Nijmegen, The Netherlands on September 29, 2016.
Big Data and its Impact on Industry (Example of the Pharmaceutical Industry)Hellmuth Broda
While we bemoan the ever increasing data tsunami new technologies allow to harvest the gold nuggets in the hay stack.
Using the example of the Pharmaceutical Industry some of the possible business uses for Big Data Analitics are outlined.
Quality analysis of NSF DMP plans - Wayne State Universityrds-wayne-edu
With assistance from WSU's office of Sponsored Programs Administration, 119 data management plans (half funded and half unfunded) from NSF grants submitted between 2012-2014 were obtained for scrutiny. Each DMP was evaluated by two reviewers, who reached consensus on a rating of how well the plan integrated elements required by NSF guidance. Descriptive statistics of ratings were formed, and statistical association between ratings and funding status were conducted.
NCI Cancer Genomics, Open Science and PMI: FAIR Warren Kibbe
Talk given to the NLM Fellows on July 8, 2016. Touches on Cancer Genomics, Open Science and PMI: FAIR in NCI genomics thinking and projects. Includes discussion of the Genomic Data Commons (GDC), Cancer Data Ecosystem, Data sharing, and the NCI cancer clinical trials open API.
Medical Question Answering: Dealing with the complexity and specificity of co...Asma Ben Abacha
"Medical Question Answering: Dealing with the complexity and specificity of consumer health questions and visual questions". Invited talk at the Allen Institute for AI (AI2), Seattle, Washington.
Dr. Asma Ben Abacha.
November 12, 2019.
2016 Data Commons and Data Science Workshop June 7th and June 8th 2016. Genomic Data Commons, FAIR, NCI and making data more findable, publicly accessible, interoperable (machine readable), reusable and support recognition and attribution
DOE-NCI Pilots presentation at the Frederick National Laboratory Advisory Com...Warren Kibbe
May 2016 FNLAC presentation of the DOE-NCI partnership around three pilots focused on existing projects in NCI and existing NSCI directives and activities in DOE.
May 2016 NCI Cancer Center Directors meeting. Data Sharing and the Cancer Genomic Data Commons (GDC). Focus is on cancer genomic and clinical phenotype data.
Nci clinical genomics data sharing ncra sept 2016Warren Kibbe
Gave an update on the Cancer Research Data Ecosystem, the Genomic Data Commons, Cloud Pilots, incentives for data sharing in cancer research to the NCI Council of Research Advocates (NCRA) on Monday, September 26th, 2016
160929 teamscope presentation molecule to businessSMBBV
Teamscope; mHealth, a paradigm shift in clinical reseach. Presentation by Diego Mechaca during 'From Molecule to Business' event by SMB Life Sciences and Health Valley at NovioTechCampus, Nijmegen, The Netherlands on September 29, 2016.
Big Data and its Impact on Industry (Example of the Pharmaceutical Industry)Hellmuth Broda
While we bemoan the ever increasing data tsunami new technologies allow to harvest the gold nuggets in the hay stack.
Using the example of the Pharmaceutical Industry some of the possible business uses for Big Data Analitics are outlined.
Webinar: Time Is Money - How Well Do You Manage It?Ali Zeeshan
To view recording: http://youtu.be/LVbnpSmLfYk or watch the video at end of the slide
For other Informa Webinars: http://www.informa-mea.com/webinars
On this webinar you will gain valuable tools to save you time, and money. You will learn prioritisation techniques, how to identify productivity killers, and how to control your email.
Liberating Health Data: What we learned in New York, with Dr. Nirav ShahHealth Data Consortium
You can watch this webinar at: http://www.screencast.com/t/CA4ROcdVdo
Dr. Nirav Shah from the New York State Health Department (NYS) discussed lessons learned in providing open access to state health data and why such innovation in health care is critical in this era of health reform for the Health Data Consortium's inaugural webinar. In March 2013, New York State launched health.data.ny.gov and became one of the first states in the country to liberate health data from its files. NYS’s health data website aims to support the Triple Aim: improve individual care, improve population health, and lower costs, and may also create business opportunities that allow developers to use this data to develop new apps that can benefit health.
This webinar also led into the HDC event, Putting Health Data to Work in Our States and Communities, which took place in Chicago on Friday, November 8. Take a look at out our blog to learn more about this thought-providing, invigorating day for health data.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
Health Datapalooza 2013: Illuminating Disease at the Speed of Light - Michael...Health Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
Illuminating Disease at the Speed of Light: How Big Data Is Accelerating Biomedical Research
Convener:
Marcia A. Kean, Chairman, Strategic Initiatives, Feinstein Kean Healthcare
Moderator:
Kevin Davies, Author, “The $1,000 Genome”; Founding Editor, Nature Genetics and Bio-IT World magazine; and Vice President Business Development, American Chemical Society
Speakers:
Amy P. Abernethy, Director, Center for Learning Healthcare (CLHC), Duke Clinical Research Institute
Michael Cantor, Senior Director, Information Strategy and Analytics, World Research Development, Pfizer
Dave King, Founder, Exaptive
Robert McBurney, Chief Executive Officer, Accelerated Cure Project for Multiple Sclerosis
Dietrich Stephan, Founder and Chief Executive Officer, Silicon Valley Biosystems (SV Bio)
Until recently, biomedical research was conducted in small silos, separated by huge cultural and technical walls and inability to exchange data facilely. But the field is now exploding: massive amounts of complex, multi-dimensional clinical, imaging, and genomic data are being collected, aggregated, integrated, analyzed, and shared. The pioneers driving this digital transformation are working in novel collaborations among patients, providers, and scientists. In this session, speakers will showcase multimodal, computational, and analytic tools for biomarker discovery, patient stratification, and intelligent clinical decision solutions; high-speed genome profiling, with algorithms of individual and population profiles, for real-time molecular-based diagnoses of ‘mystery’ diseases; a point-of-care quality monitoring program used by clinicians, in which data are used for important research questions and then transitioned into clinical trials; and collection and aggregation of data and samples from patients with a neurological disease, enabling queries into markers of disease origins and discovery of new therapies.
In May 2014, the Health Care Cost Institute (HCCI) announced a new national health care cost and quality transparency initiative. The initiative is supported by Aetna, Humana, and UnitedHealthcare; other payers will be announced shortly. The presentation will provide background information on HCCI and describe the initial release of the three tier public transparency website that HCCI is developing. Tier 1, the public website, will be launched by 12/31/15 and was the focus of the discussion.
Addressing Privacy and Security Concerns to Unlock Insights in Big Data in He...Health Data Consortium
Watch the webinar here: http://www.screencast.com/t/6E1ZgTOb
Deven McGraw, Partner at Manatt, Phelps & Phillips, discussed privacy and security concerns in regards to the liberation and usage of health data. There is enormous potential to glean valuable insights from large data sets of health (and health-related) information - but the collection and use of health information for analytics purposes raises privacy and security concerns. Solution of these issues is key to realizing the benefits of health big data. This presentation will focus primarily on some of the regulatory challenges to learning uses of clinical and administrative claims data but also touch on challenges to big data analytics in other contexts (for example, government data and data collected by consumer-facing commercial entities like mobile health apps, social networking sites, search engines, and other personal health tools).
Discover more health data resources on our website at http://www.healthdataconsortium.org/
The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon DavisHealth Data Consortium
Watch the webinar here: http://www.screencast.com/t/a43QB5zqjP5
Damon Davis, Director of the Health Data Initiative at the U.S. Department of Health and Human Services, discussed HHS' new Health Data Strategy and Execution Plan. Since the Department of Health and Human Services (HHS) launched its efforts to make the vast array of data resources it curates openly available for public consumption in 2010, the data available in HealthData.gov catalog has grown exponentially. HHS’s efforts to release data for the purpose of sparking innovations in healthcare and the delivery of human services is known as the Health Data Initiative (HDI). The mission of HDI is to help improve health, healthcare, and the delivery of human services by harnessing the power of data and fostering a culture of innovative uses of data in public and private sector institutions, communities, research groups, and policy making arenas.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
Webinar: Develop and establish a business improvement strategy – your impleme...Ali Zeeshan
To view recording: http://youtu.be/bFvhmVOJdpA or watch the video at end of the slides
For other Informa Webinars: http://www.informa-mea.com/webinars
Choose the right improvement strategies that are appropriate to your business and it's level of maturity. (e.g. Lean, Six Sigma, Business Excellence Models, ISO standards together with a number of support strategies e.g. Benchmarking, the Balanced Scorecard)
Get a model template that will help you plan and implement your improvement strategy. (i.e. what needs to be done at each stage; how much time will need to be devoted to each stage; what are the outcomes to be expected from each stage; etc.)
ODF III - 3.15.16 - Day Two Morning SessionsMichael Kerr
Slide presentations delivered during morning sessions of Day Two of the California Statewide Health and Human Services Open DataFest - March 14 - 15, 2016, Sacramento, CA
HEC 2016 Panel: Putting User-Generated Data in Action: Improving Interpretabi...Pei-Yun Sabrina Hsueh
Chair/Moderator: Pei-Yun Sabrina HSUEH, PhD (IBM T.J. Watson Research Center)
Panelists: XinXin ZHU, Bian YANG, Ying-Kuen CHEUNG , Thomas WETTER, and Sanjoy DEY
a IBM T.J. Watson Research Center, USA
b Norwegian University of Science and Technology, Norway
c Mailman School of Public health, Columbia University, USA
d, Department of Biomedical Informatics, University of Washington, USA
e Department of Medical Informatics, University of Heidelberg, Germany
The rise of consumer health awareness and the recent advent of personal health management tools (including mobile and health wearable devices) have contributed to another shift transforming the healthcare landscape. Despite the rise of health consumers, the impact of user-generated health data remains to be validated. In fact, many applications are hinged on the interpretability issues of this sort of data. The aim of this panel is two-fold. First, this panel aims to review the key dimensions in the interpretability, spanning from quality and reliability to information security and trust management. Secondly, since similar issues and methodologies have been proposed in different application areas ranging from clinical decision support to behavioral interventions and clinical trials, the panelists will also discuss both the success stories and the areas that fall short. The opportunities and barriers identified can then serve as guidelines or action items individuals can bring to their organizations to further improve the interpretability of user-generated data.
Clinical trial data wants to be free: Lessons from the ImmPort Immunology Dat...Barry Smith
Presentation to the Clinical and Research Ethics Seminar, Clinical and Translational Science Center, Buffalo, January 21, 2014
https://immport.niaid.nih.gov/
http://youtu.be/booqxkpvJMg
Slide presentation from Day One of the PCORnet Partners meeting. The January 21-2, 2014 meeting took place at the Brookings Institute. This event launched the development of the nation’s most ambitious and promising clinical research network aimed at delivering high quality care through patient-centered outcomes research.
Overview of the Patient-Centered Outcomes Research Institute (PCORI), how PCORI views Patient-Centered Outcomes Research and how this is related to PCORI’s major funding mechanisms.
Improving health care outcomes with responsible data scienceWessel Kraaij
Keynote presentation by Wessel Kraaij at the Dutch pattern recognition and impage processing society (NVPBV) 29/5/2018, Eindhoven.
This talk discusses
1. trends in health care and respondible data science and their intersection
2. Secure federated analytics on distributed data repositories
3. Generating clinically relevant hypotheses from patient forum discussions.
This presentation outlines a mechanism for using the power of "Big Data", social networking and technology infrastructure to speed the process of curing a horrible disease.
With the upcoming move to ICD-10 Procedure Codes across the world, information flow will reach many new recipients to improve the world's health conditions!
Clinical Trial Data Transparency: Explaining Governance for Public Data SharingHealth Data Consortium
Watch the webinar here: http://www.screencast.com/t/0lATKYlJ8
Dr. Chris Boone, then-VP in Avalere’s Evidence Translation and Implementation Practice, discussed clinical trial data transparency and considerations for governance and open data sharing. Clinical trials are extremely valuable as the primary data source for seeking regulatory approval of products. Historically, regulatory agencie have been the sole recipients of clinical trial data, butthere has been a recent push from various stakeholder groups to open access to clinical trial data to non-regulatory researchers as an act of ethical responsibility to patients, a contribution to public health, and a demonstrated commitment to advancing the science. Some of the barriers include developing a sound approach for de-identifying patient data, adopting universal clinical trial data format, and managing the proactive and non-selective access and security of clinical data once collected. Dr. Boone discusses rationales and benefits/risks of clinical trial transparency, responsible use of publicly sharing this data, barriers and legal implications, and reasonable data sharing models.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
You can watch this webinar at: http://www.screencast.com/t/QqEn0CyB
Dr. David Knott and Erica Hutchins Coe from McKinsey & Company examined both current market participants and new entrants including Medicaid health plans, co-ops, and provider sponsored health plans using a database of rate filings for 21,000 plans across 50 states and Washington, DC. View a recording of their presentation to understand where competitors are playing, who is selling what kinds of products and networks, and who is most competitively priced to win.
Discover more health data resources on our website at http://www.healthdataconsortium.org/
Health Datapalooza IV: June 3rd-4th, 2013
Health Industry Bootcamp: A Real-World Crash Course in Everything You Didn’t Learn in Business School about Using Public Data to Create Market Value, Navigate Perverse Incentives, and Deliver Public and Social Good
Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraphHealth Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
HEALTH DATA CONSORTIUM AFFILIATES APP DEMOS
Monday June 3, 2013 • 4:30pm - 5:30pm
Location: Regency Ballroom
Moderator: Sunnie Southern, Founder and Chief Executive Officer, Viable Synergy, LLC; Ohio Health Data Affiliate
hGraph is an open source information visualization which provides a complete overview of an
individual’s health from an aggregated, high-level “how am I doing” status to detailed, metriclevel results and analysis. This single picture method can have a profound effect on a person’s
understanding of his/her total well-being, because it compiles multiple metrics and inputs into a
unified graph that can be viewed at a glance.
Health Datapalooza IV: June 3rd-4th, 2013
Linked Data – Structured Data on the Web
Moderator:
David Wood, Chief Technology Officer, 3 Round Stones
Speaker:
Bernadette Hyland, Chief Executive Officer, 3 Round Stones
Linked Data is a standards-driven model for representing structured data on the Web that gives developers, publishers, and information architects a consistent, predictable way to publish, merge and consume data. Find out what Linked Data is all about from Bernadette Hyland and David Wood from 3 Round Stones, who will present the Linked Data mode in plain, jargon-free language while provide an example of how Linked Data is being used by Sentara Healthcare to combine authoritative open government data with user entered information to providing personalized guidance for patients suffering from asthma, diabetes and heart disease.
Health Datapalooza IV: June 3rd-4th, 2013
Cooperation Without Coordination: Managed Distributed Clinical Trial Data
Moderator:
Bernadette Hyland, Chief Executive Officer, 3 Round Stones
Speaker:
David Wood, Chief Technology Officer, 3 Round Stones
Sivaram Arabandi, Clinical Informatician, Ontopro
Tom Plasterer, Principal Informatics Scientist, AstraZeneca
A challenge common among many healthcare organizations is to relate the detailed outcomes of external data, e.g., clinical trials, to their own research. Learn how Linked Data techniques were developed for the Web and allow for “cooperation without coordination”. This presentation will describe how 3 Round Stones and an international pharmaceutical company created a system to allow coordinated views of distributed clinical trial information. The system extended the Callimachus Project, an Open Source Linked Data management system.
Health Datapalooza 2013: Hearing from the Community - Richard MartinHealth Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
Hearing from the Community: Where We Are and Where We Would Like to Be
Moderator:
Edward J. Sondik, former Director, National Center for Health Statistics
Speakers:
Georges Benjamin, Executive Director, American Public Health Association (APHA)
Samuel ‘Woodie’ Kessel, Professor, University of Maryland School of Public Health
Patrick Remington, Associate Dean for Public Health, University of Wisconsin School of Medicine and Public Health
Jean Nudelman, Director, Community Benefits Programs, Kaiser Permanente
Donald F. Schwarz, Health Commissioner, Deputy Mayor for Health and Opportunity, City of Philadelphia, Pennsylvania
Afshin Khosravii, Chief Executive Officer, Trilogy Integrated Resources
Richard Martin, Vice President, Heritage Provider Network
This session will focus on advances in the use of health data in developing or implementing new tools that impact local community health. It will explore the data and technology needs of local community health organizations and discuss the challenges they face when attempting to meet these needs. It will also present recommendations from non-data oriented people regarding opportunities in the data and technology fields that could enhance their experience in local community health.
Health Datapalooza 2013: Hearing from the Community - Jean NudelmanHealth Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
Hearing from the Community: Where We Are and Where We Would Like to Be
Moderator:
Edward J. Sondik, former Director, National Center for Health Statistics
Speakers:
Georges Benjamin, Executive Director, American Public Health Association (APHA)
Samuel ‘Woodie’ Kessel, Professor, University of Maryland School of Public Health
Patrick Remington, Associate Dean for Public Health, University of Wisconsin School of Medicine and Public Health
Jean Nudelman, Director, Community Benefits Programs, Kaiser Permanente
Donald F. Schwarz, Health Commissioner, Deputy Mayor for Health and Opportunity, City of Philadelphia, Pennsylvania
Afshin Khosravii, Chief Executive Officer, Trilogy Integrated Resources
Richard Martin, Vice President, Heritage Provider Network
This session will focus on advances in the use of health data in developing or implementing new tools that impact local community health. It will explore the data and technology needs of local community health organizations and discuss the challenges they face when attempting to meet these needs. It will also present recommendations from non-data oriented people regarding opportunities in the data and technology fields that could enhance their experience in local community health.
Health Datapalooza IV: June 3rd-4th, 2013
Closing Session
Gather to share insights with Health Datapalooza organizers and to establish future pathways for progress in efforts to liberate health data. Health Code-a-palooza and Apps Finalists will also be announced.
Speakers:
Bob Kocher, Planning Committee Co-Chair, Health Datapalooza; Venture Partner, Venrock
Steven Krein, Planning Committee Co-Chair, Health Datapalooza; Co-Founder and Chief Executive Officer, StartUp Health
Dwayne Spradlin, Chief Executive Officer, Health Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
Data Rich, Data Poor: Leveling the Open Data Playing Field for Local and State Governments
Moderator:
Andrew Krackov, Senior Program Officer, Market & Policy Monitor, California Health Care Foundation
Speakers:
Nirav Shah, Commissioner of Health, New York State Department of Health
Ted Smith, Director, Department of Economic Growth and Innovation, Louisville Metro Government
Mark Headd, Chief Data Officer, City of Philadelphia
Abhi Nemani, Chief of Staff, Code for America
John Bracken, Director of Media Innovation, Knight Foundation
Some state and local jurisdictions are further along than others in effectively using health data – both in providing public access to data and in ensuring use of these data by policymakers, health care consumers, advocacy organizations, start-ups, and others. This session will feature local and state leaders in open data for a candid discussion of successes and lessons learned with open data. Panelists will share ideas for how other local communities can free their public domain health data and supply recommendations for what’s needed to help ensure that government entities across America can publish, promulgate, and encourage broad use of local health data.
Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...Health Data Consortium
Health Datapalooza IV: June 3rd-4th, 2013
Health Data Consortium Affiliates: Igniting Around Health Data in Your Community
Moderator:
Dwayne Spradlin, Chief Executive Officer, Health Data Consortium
Speakers:
Sunnie Southern, Founder and Chief Executive Officer, Viable Synergy, LLC and Innov8 for Health
Colorado: Phil Kalin, Center for Improving Values in Health Care (CIVHC)
Louisiana: Ramesh Kolluru, NSF Center for Visual and Decision Informatics (CVDI)
New York: Dave Whitlinger, New York eHealth Collaborative
The Health Data Consortium Affiliates have spent the past year rallying their communities around health data. Leaders from each affiliate will discuss how they have liberated data at the state and local levels and how they have seeded data with local entrepreneurs and application developers to build solutions. If you are interested in working on health data in your region, this is the panel for you. (And the Affiliate network is now accepting applications!) Whether hosting a state-level Datapalooza, setting up a new incubator, or just hosting local meet-ups, representatives from affiliates will answer your questions about what has worked well and what can be improved.
Report Back from SGO 2024: What’s the Latest in Cervical Cancer?bkling
Are you curious about what’s new in cervical cancer research or unsure what the findings mean? Join Dr. Emily Ko, a gynecologic oncologist at Penn Medicine, to learn about the latest updates from the Society of Gynecologic Oncology (SGO) 2024 Annual Meeting on Women’s Cancer. Dr. Ko will discuss what the research presented at the conference means for you and answer your questions about the new developments.
Ethanol (CH3CH2OH), or beverage alcohol, is a two-carbon alcohol
that is rapidly distributed in the body and brain. Ethanol alters many
neurochemical systems and has rewarding and addictive properties. It
is the oldest recreational drug and likely contributes to more morbidity,
mortality, and public health costs than all illicit drugs combined. The
5th edition of the Diagnostic and Statistical Manual of Mental Disorders
(DSM-5) integrates alcohol abuse and alcohol dependence into a single
disorder called alcohol use disorder (AUD), with mild, moderate,
and severe subclassifications (American Psychiatric Association, 2013).
In the DSM-5, all types of substance abuse and dependence have been
combined into a single substance use disorder (SUD) on a continuum
from mild to severe. A diagnosis of AUD requires that at least two of
the 11 DSM-5 behaviors be present within a 12-month period (mild
AUD: 2–3 criteria; moderate AUD: 4–5 criteria; severe AUD: 6–11 criteria).
The four main behavioral effects of AUD are impaired control over
drinking, negative social consequences, risky use, and altered physiological
effects (tolerance, withdrawal). This chapter presents an overview
of the prevalence and harmful consequences of AUD in the U.S.,
the systemic nature of the disease, neurocircuitry and stages of AUD,
comorbidities, fetal alcohol spectrum disorders, genetic risk factors, and
pharmacotherapies for AUD.
The prostate is an exocrine gland of the male mammalian reproductive system
It is a walnut-sized gland that forms part of the male reproductive system and is located in front of the rectum and just below the urinary bladder
Function is to store and secrete a clear, slightly alkaline fluid that constitutes 10-30% of the volume of the seminal fluid that along with the spermatozoa, constitutes semen
A healthy human prostate measures (4cm-vertical, by 3cm-horizontal, 2cm ant-post ).
It surrounds the urethra just below the urinary bladder. It has anterior, median, posterior and two lateral lobes
It’s work is regulated by androgens which are responsible for male sex characteristics
Generalised disease of the prostate due to hormonal derangement which leads to non malignant enlargement of the gland (increase in the number of epithelial cells and stromal tissue)to cause compression of the urethra leading to symptoms (LUTS
These simplified slides by Dr. Sidra Arshad present an overview of the non-respiratory functions of the respiratory tract.
Learning objectives:
1. Enlist the non-respiratory functions of the respiratory tract
2. Briefly explain how these functions are carried out
3. Discuss the significance of dead space
4. Differentiate between minute ventilation and alveolar ventilation
5. Describe the cough and sneeze reflexes
Study Resources:
1. Chapter 39, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 34, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 17, Human Physiology by Lauralee Sherwood, 9th edition
4. Non-respiratory functions of the lungs https://academic.oup.com/bjaed/article/13/3/98/278874
- Video recording of this lecture in English language: https://youtu.be/lK81BzxMqdo
- Video recording of this lecture in Arabic language: https://youtu.be/Ve4P0COk9OI
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
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Title: Sense of Smell
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the primary categories of smells and the concept of odor blindness.
Explain the structure and location of the olfactory membrane and mucosa, including the types and roles of cells involved in olfaction.
Describe the pathway and mechanisms of olfactory signal transmission from the olfactory receptors to the brain.
Illustrate the biochemical cascade triggered by odorant binding to olfactory receptors, including the role of G-proteins and second messengers in generating an action potential.
Identify different types of olfactory disorders such as anosmia, hyposmia, hyperosmia, and dysosmia, including their potential causes.
Key Topics:
Olfactory Genes:
3% of the human genome accounts for olfactory genes.
400 genes for odorant receptors.
Olfactory Membrane:
Located in the superior part of the nasal cavity.
Medially: Folds downward along the superior septum.
Laterally: Folds over the superior turbinate and upper surface of the middle turbinate.
Total surface area: 5-10 square centimeters.
Olfactory Mucosa:
Olfactory Cells: Bipolar nerve cells derived from the CNS (100 million), with 4-25 olfactory cilia per cell.
Sustentacular Cells: Produce mucus and maintain ionic and molecular environment.
Basal Cells: Replace worn-out olfactory cells with an average lifespan of 1-2 months.
Bowman’s Gland: Secretes mucus.
Stimulation of Olfactory Cells:
Odorant dissolves in mucus and attaches to receptors on olfactory cilia.
Involves a cascade effect through G-proteins and second messengers, leading to depolarization and action potential generation in the olfactory nerve.
Quality of a Good Odorant:
Small (3-20 Carbon atoms), volatile, water-soluble, and lipid-soluble.
Facilitated by odorant-binding proteins in mucus.
Membrane Potential and Action Potential:
Resting membrane potential: -55mV.
Action potential frequency in the olfactory nerve increases with odorant strength.
Adaptation Towards the Sense of Smell:
Rapid adaptation within the first second, with further slow adaptation.
Psychological adaptation greater than receptor adaptation, involving feedback inhibition from the central nervous system.
Primary Sensations of Smell:
Camphoraceous, Musky, Floral, Pepperminty, Ethereal, Pungent, Putrid.
Odor Detection Threshold:
Examples: Hydrogen sulfide (0.0005 ppm), Methyl-mercaptan (0.002 ppm).
Some toxic substances are odorless at lethal concentrations.
Characteristics of Smell:
Odor blindness for single substances due to lack of appropriate receptor protein.
Behavioral and emotional influences of smell.
Transmission of Olfactory Signals:
From olfactory cells to glomeruli in the olfactory bulb, involving lateral inhibition.
Primitive, less old, and new olfactory systems with different path
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
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From Research to Practice - New Models for Data-sharing and Collaboration to Improve Health and Healthcare
1. From Research to Practice: New Models
for Data-sharing and Collaboration to
Improve Health and Healthcare
Joe Selby, MD, MPH, Executive Director, PCORI
Francis Collins, MD, PhD, Director, National Institutes of Health
Philip Bourne, PhD, Associate Director for Data Science, NIH
Moderator: Dwayne Spradlin, CEO Health Data Consortium
May 28, 2014
2. Presenters and Moderator
Joe Selby, MD, MPH
Executive Director
PCORI
Francis Collins, MD, PhD
Director
NIH
Philip Bourne, PhD
Associate Director for
Data Science
NIH
Dwayne Spradlin
CEO
Health Data Consortium
3. Agenda
Time Agenda Item
1:00 – 1:10 p.m. Welcome
1:10 – 1:20 p.m. Dr. Joe Selby, Executive Director, PCORI
1:20 – 1:30 p.m. Dr. Francis Collins, Director, NIH
1:30 – 1:40 p.m. Dr. Philip Bourne, Associate Director for Data Science, NIH
1:40 – 1:55 p.m. Question and Answer Session
1:55 – 2:00 p.m. Wrap Up and Conclusion
4. 4
1. Click in the Q&A box on the right side
of your screen, type your question into
the dialog box, click Send button
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Reminder: for audio, Dial 866-640-4044 - Entry Code: 416641#
Need help? Press *0 on phone to reach the operator
6. Joe Selby, MD MPH, Executive Director
PCORI
PCORnet: Harnessing Real-World
Health Data in Patient-Centered Research
7. PCORI’s Mission
PCORI helps people make informed health care decisions, and improves
health care delivery and outcomes, by producing and promoting high
integrity, evidence-based information that comes from research guided
by patients, caregivers and the broader health care community.
8. Influence Research Funded by Others
Speed the Implementation and
Use of Evidence
Increase Quantity, Quality and
Timeliness of Research Information
PCORI’s Strategic Goals…
9. …Set the Stage for PCORNet
Improve the nation’s capacity to conduct clinical
research more efficiently, by creating a large,
highly representative, national patient-centered
clinical research network with a focus on
conducting CER – both randomized and
observational.
Support a learning US healthcare system, which
would allow for large-scale research to be
conducted with enhanced accuracy and efficiency
within real-world care delivery systems.
12. PCORnet Goals for Phase I
Each CDRN will have a defined set of standardized clinical data that is fully
inter-operable with data from other CDRNs; each PPRN will also have a
standard database with varying amounts of clinical and patient-generated data.
PCORnet will have clear policies on decision-making, uses of data,
collaboration and knowledge sharing, data sharing, data privacy and security
Within each participating CDRN, patients, clinicians and health systems will
be actively engaged in governance and use of the network and its data
Both CDRNs and PPRNs will have capacity to participate in both large
observational studies and pragmatic (simple) randomized clinical trials
Networks will demonstrate a readiness to collaborate with researchers from
outside PCORnet
By 18 Months:
14. NIH: Data Sharing Challenges and Solutions
Francis S. Collins, M.D., Ph.D.
Director, National Institutes of Health
From Research to Practice: New Models for Data Sharing and
Collaboration to Improve Health and Healthcare
May 28, 2014
15. Value of Data Sharing
Increases return on investment
Facilitates additional research
Helps to validate findings
Promotes transparency
Many ongoing efforts to increase and facilitate data
sharing
– Big Data to Knowledge (BD2K)
– Plan for increasing public access to data
16. Explosion of Big Data
By Daily Users of NCBI
0
1
2
3
4
5
Users(Millions)
Daily Page Views: 28 Million
Daily Users: ~4 Million
Daily Downloads: 35 Terabytes
Peak Hits: 7000 Per Second
17. Data Sharing Challenges and Solutions
Genomic Data Sharing
Clinical Data Sharing
Human Subjects Protection
18. Data Sharing Challenges and Solutions
Genomic Data Sharing
Clinical Data Sharing
Human Subjects Protection
20. NIH Genomic Data Sharing (GDS) Policy
Expands expectations to share genomic data under the current NIH
Genome-Wide Association Studies (GWAS) Policy to large-scale non-
human and human genomic data
Ensures the broad, responsible sharing of genomic research data
– Responsibilities of investigators submitting data
• Provide data sharing plan to NIH with grant application
• Submit data in a timely manner
• For human data, obtain consent for data to be used for future
research purposes and shared broadly and submit Institutional
Certification
– Responsibilities of investigators accessing and using data
• Terms and conditions for research use of controlled-access data
• Conditions for use of unrestricted-access data
Final will be implemented in January 2015
21. More to come?
Genomic Sequencing in the Clinic
Authorized Platform: llumina’s MiSeqDx
FDA cleared two CF tests that use the Illumina platform
– Panel of 139 mutations
– Sequencing assay
Paves the way for more genomic technologies to gain
regulatory clearance
Will allow for the development
and use of new genome-based
tests
MiSeq Benchtop Sequencer
(Credit: Illumina)
22.
23. Data-sharing Challenges and Solutions
Genomic Data Sharing
Clinical Data Sharing
Human Subjects Protection
24. Source: BMJ 2012;344:d7292.
Publication of Clinical Trial Results
NIH-Funded trials published within 100 months of
completion
Less than 50% are published within 30 months of
completion
25. Publication of Clinical Trial Results
NHLBI Clinical Trial Data: Time to Publication by End Point
Gordon, et al. N Engl J Med 2013; 369(20): 1926-34
26. ClinicalTrials.gov: Public Benefits
Enhance patient access to enrollment in clinical trials
Prevent unnecessary or unwitting duplication of trials,
especially those found to be unsafe
Honor ethical obligation to participants (results inform
science)
Mitigate bias (non publication of negative results)
Inform future research and funding decisions
Increase access to data about marketed products
Facilitate use of findings to improve health
All contribute to public trust in clinical research
27. Data Sharing Challenges and Solutions
Genomic Data Sharing
Clinical Data Sharing
Human Subjects Protection
28. Revisions to the Common Rule
Rationale for the reforms: human subjects research is changing
Growth in research volume
Increase in multi-site studies
Increase in health services and social science research
New technologies: e.g., genomics, imaging, informatics
Increased role of private sector
Increased sharing of specimens and data
The nature and volume of potential research data
is one key rationale for reforms
29. Common Rule Reforms –
July 2011 ANPRM
Enhancing Protections
Require consent for
research with
biospecimens/data
Enhance data security and
information protection
standards
Extend protections to all
research conducted at
federally-funded institutions
Reducing Burden
Promote use of broad
consent for future research
with biospecimens/data
Broaden exemptions for
low risk research
Eliminate redundant IRB
reviews and reduce impact
of IRB reviews
32. Towards the NIH as a Digital Enterprise
Philip E. Bourne, Ph.D.
Associate Director for Data Science, National Institutes of Health
From Research to Practice: New Models for Data Sharing and
Collaboration to Improve Health and Healthcare
May 28, 2014
33. Some Observations
Good News
– Data sharing offers
unprecedented
opportunities to
improve healthcare
– We have a plan
– We are beginning to
quantify the issues
– We have some of the
best data scientists in
the world to work on
the problems
34. Some Observations
Bad News
– Sustainability will not
be possible without
change
– OSTP have defined
the why but not the
how
– We do not know how
the data we currently
have are used
– It is difficult to estimate
supply and demand
Good News
– Data sharing offers
unprecedented
opportunities to
improve healthcare
– We have a plan
– We are beginning to
quantify the issues
– We have some of the
best data scientists in
the world to work on
the problems
36. Associate Director for Data Science
Commons
Training
Center
BD2K
Modified
Review
Sustainability Education Innovation Process
• Cloud – Data &
Compute
• Search
• Security
• Reproducibility
Standards
• App Store
• Coordinate
• Hands-on
• Syllabus
• MOOCs
• Community
• Centers
• Training Grants
• Catalogs
• Standards
• Analysis
• Data
Resource
Support
• Metrics
• Best
Practices
• Evaluation
• Portfolio
Analysis
The Biomedical Research Digital Enterprise
Communication
Collaboration
Programmatic Theme
Deliverable
Example Features
• IC’s
• To Researchers
• Federal
Agencies
• International
Partners
• Computer
Scientists
Scientific Data Council External Advisory
Board
37. Associate Director for Data Science
Commons
Training
Center
BD2K
Modified
Review
Sustainability Education Innovation Process
• Cloud – Data &
Compute
• Search
• Security
• Reproducibility
Standards
• App Store
• Coordinate
• Hands-on
• Syllabus
• MOOCs
• Community
• Centers
• Training Grants
• Catalogs
• Standards
• Analysis
• Data
Resource
Support
• Metrics
• Best
Practices
• Evaluation
• Portfolio
Analysis
The Biomedical Research Digital Enterprise
Communication
Collaboration
Programmatic Theme
Deliverable
Example Features
• IC’s
• To Researchers
• Federal
Agencies
• International
Partners
• Computer
Scientists
Scientific Data Council External Advisory
Board
38. Associate Director for Data Science
Commons
Training
Center
BD2K
Modified
Review
Sustainability Education Innovation Process
• Cloud – Data &
Compute
• Search
• Security
• Reproducibility
Standards
• App Store
• Coordinate
• Hands-on
• Syllabus
• MOOCs
• Community
• Centers
• Training Grants
• Catalogs
• Standards
• Analysis
• Data
Resource
Support
• Metrics
• Best
Practices
• Evaluation
• Portfolio
Analysis
The Biomedical Research Digital Enterprise
Communication
Collaboration
Programmatic Theme
Deliverable
Example Features
• IC’s
• To Researchers
• Federal
Agencies
• International
Partners
• Computer
Scientists
Scientific Data Council External Advisory
Board
39. The Power of the Commons
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
40. The Power of the Commons
Data
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
41. The Power of the Commons
Data
The Why:
Data Sharing Plans
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
42. The Power of the Commons
Data
The Why:
Data Sharing Plans
The How:
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
43. The Power of the Commons
Data
The Why:
Data Sharing Plans
The How:
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
44. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
The How:
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
45. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
The How:
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
Knowledge
Metrics/
Standards
46. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
The How:
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
KnowledgeNIH
Awardees
Metrics/
Standards
47. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
Government
The How:
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
KnowledgeNIH
Awardees
Private
Sector Metrics/
Standards
Rest of
Academia
48. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
Government
The How:
Data
Discovery
Index
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
KnowledgeNIH
Awardees
Private
Sector Metrics/
Standards
Rest of
Academia
Software Standards
Index
BD2K
Centers
49. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
The
Commons
Government
The How:
Data
Discovery
Index
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
KnowledgeNIH
Awardees
Private
Sector Metrics/
Standards
Rest of
Academia
Software Standards
Index
BD2K
Centers
50. The Power of the Commons
Data
The Long Tail
Core Facilities/HS Centers
Clinical /Patient
The Why:
Data Sharing Plans
The
Commons
Government
The How:
Data
Discovery
Index
Sustainable
Storage
Quality
Scientific
Discovery
Usability
Security/
Privacy
Commons == Extramural NCBI == Research Object Sandbox == Collaboratory
The End Game:
KnowledgeNIH
Awardees
Private
Sector Metrics/
Standards
Rest of
Academia
Software Standards
Index
BD2K
Centers
Cloud, Research Objects,
Business Models
51. What Will the Commons Accomplish?
Community Building - support sharing, accessibility, and
discoverability of biomedical data and analytical tools
Enable Innovation - data resources co-located with
advanced computing resources
Provide cost effectiveness – through economies of scale,
new business models, including public private
partnerships
Provide opportunities for interagency and international
cooperation
52. BD2K will Empower the Commons
Data discovery index
Data/metadata standards
Software index and software
development
Training centers and grants
Centers engaged in advanced
biomedical data science for the
community at large
55. 55
To submit a question:
1. Click in the Q&A box on the right side
of your screen, type your question into
the dialog box, click Send button
2. You can also submit questions via
twitter at @hdconsortium
Questions may be submitted at any time