Marie Curie's strategic plan for 2014-2019 has a vision of providing a better life for terminal illness patients and their families. The objectives are to reach more people, improve end of life care across the UK, and manage the charity effectively. Marie Curie provides nursing services, day hospices, rapid response, and a helper service in Northern Ireland to support terminal illness patients and their families. The helper service matches volunteers to provide companionship, respite for families, emotional support, information on services, and some practical support. The companions project also uses trained volunteers to support patients and families in hospitals during final hours of life.
Improving access to palliative care services for Minority Ethnic communitiesMarie Curie
Shameem Nawaz, Project Manager at Marie Curie Cardiff Hospice, spoke at the Barriers Conference Wales on 25th May.
Shameem shared on the project she led on improving access to palliative care for ethnic minorities.
Find out more information about the project here: https://www.mariecurie.org.uk/help/hospice-care/hospices/cardiff/services/ethnic-minorities-support
Improving access to palliative care services for Minority Ethnic communitiesMarie Curie
Shameem Nawaz, Project Manager at Marie Curie Cardiff Hospice, spoke at the Barriers Conference Wales on 25th May.
Shameem shared on the project she led on improving access to palliative care for ethnic minorities.
Find out more information about the project here: https://www.mariecurie.org.uk/help/hospice-care/hospices/cardiff/services/ethnic-minorities-support
Making it work for everyone - using evidenceMarie Curie
Dr Phil McCarvill, Head of Policy and Public Affairs at Marie Curie Cancer Care spoke on 11 September 2014 on ‘Making it work for everyone - using evidence' at the NCPC.
Here in his presentation, Dr McCarvill makes a case for the role of data and evidence in end of life care. Using evidence that is currently available such as the Marie Curie Atlas; independent evaluations (e.g. Nuffield Trust); user, patient and carer feedback and social media, we are continuing to increase our understanding of experiences of end of life care.
Marie Curie is using this evidence and responding to feedback when we work with commissioners around the country to redesign end services.
For more information on commissioning, have a look at our website mariecurie.org.uk/commissioning or get in touch at servicedevelopment@mariecurie.org.uk
What could we all learn from a recent scandal in healthcare?scanFOAM
A presentation by Hans Rutberg at the 2017 meeting of the Scandinavian Society of Anaestesiology and Intensive Care Medicine.
All available content from SSAI2017: https://scanfoam.org/ssai2017/
Delivered in collaboration between scanFOAM, SSAI & SFAI.
"putting patients at the heart": the workforce implicationsJeremy Taylor
Slides I presented at the NHS Employers autumn workforce summit on 13 October 2015. They set out National Voices' perspective on what good person centred, community-focussed care looks like, and the implications for the healthcare workforce of making it real.
Phil McCarvill, Head of Policy and Public Affairs at Marie Curie Cancer Care spoke at Commissioning Live on 26 March 2014 on 'End of life: using evidence'.
Using evidence that is currently available such as the Marie Curie Atlas; independent evaluations (e.g. Nuffield Trust); user, patient and carer feedback and social media, we are continuing to increase our understanding of experiences of end of life care.
Marie Curie is using this evidence and responding to feedback when we work with commissioners around the country to redesign end services.
For more information on commissioning, have a look at our website mariecurie.org.uk/commissioning or get in touch at servicedevelopment@mariecurie.org.uk
Lessons Learned in the Turning Point Scotland Housing First ProgrammeFEANTSA
Patrick McKay's presentation in the "Encouraging Housing Retention and Recovery for Tenants with Addictions" workshop at the Housing First in Europe conference on the 9th of June 2016.
Making it work for everyone - using evidenceMarie Curie
Dr Phil McCarvill, Head of Policy and Public Affairs at Marie Curie Cancer Care spoke on 11 September 2014 on ‘Making it work for everyone - using evidence' at the NCPC.
Here in his presentation, Dr McCarvill makes a case for the role of data and evidence in end of life care. Using evidence that is currently available such as the Marie Curie Atlas; independent evaluations (e.g. Nuffield Trust); user, patient and carer feedback and social media, we are continuing to increase our understanding of experiences of end of life care.
Marie Curie is using this evidence and responding to feedback when we work with commissioners around the country to redesign end services.
For more information on commissioning, have a look at our website mariecurie.org.uk/commissioning or get in touch at servicedevelopment@mariecurie.org.uk
What could we all learn from a recent scandal in healthcare?scanFOAM
A presentation by Hans Rutberg at the 2017 meeting of the Scandinavian Society of Anaestesiology and Intensive Care Medicine.
All available content from SSAI2017: https://scanfoam.org/ssai2017/
Delivered in collaboration between scanFOAM, SSAI & SFAI.
"putting patients at the heart": the workforce implicationsJeremy Taylor
Slides I presented at the NHS Employers autumn workforce summit on 13 October 2015. They set out National Voices' perspective on what good person centred, community-focussed care looks like, and the implications for the healthcare workforce of making it real.
Phil McCarvill, Head of Policy and Public Affairs at Marie Curie Cancer Care spoke at Commissioning Live on 26 March 2014 on 'End of life: using evidence'.
Using evidence that is currently available such as the Marie Curie Atlas; independent evaluations (e.g. Nuffield Trust); user, patient and carer feedback and social media, we are continuing to increase our understanding of experiences of end of life care.
Marie Curie is using this evidence and responding to feedback when we work with commissioners around the country to redesign end services.
For more information on commissioning, have a look at our website mariecurie.org.uk/commissioning or get in touch at servicedevelopment@mariecurie.org.uk
Lessons Learned in the Turning Point Scotland Housing First ProgrammeFEANTSA
Patrick McKay's presentation in the "Encouraging Housing Retention and Recovery for Tenants with Addictions" workshop at the Housing First in Europe conference on the 9th of June 2016.
My presentation at the kick off event for the 29 vanguards who will be testing new models of care as part of the NHS Five Year Forward View. This highlights key issues for vanguards in making a reality of the commitment to a "new relationship with patients and communities", and explains the role of the People & Communities Board which I chair.
Building the right support for people with a learning disability and/or autis...NHS England
Presentations from NHS England's national event Building the right support for people with a learning disability and/or autism: one year on and two years ahead, 8 November 2016.
Wednesday, 4 February 2015 marks World Cancer Day and CANSA is emphasising that cancer is “not beyond us” in terms of cancer control and reducing the impact of the disease.
Taking place under the tagline ‘Not beyond us’, World Cancer Day focusses on taking a positive and proactive approach to the fight against cancer, highlighting that solutions do exist regarding cancer care and early detection and that they are within reach.
http://www.cansa.org.za/maximising-the-quality-of-life-this-world-cancer-day-4-feb-2015/
Michelle Pilling, Lay Member Patient and Public Involvement and Deputy Chair with Dave Rogers, Head of Communications & Engagement at East Lancashire CCG
Transforming the relationship with patients and communities (are we getting t...Jeremy Taylor
Slides to accompany a presentation at Member Engagement Services Challenge 2020 event on 6 July 2016. Is engagement getting better? An overview of policy, practice and lived experience, and what needs to happen next
BILD Event – 21 March 2018 : Transforming care - Sharing solutions that make ...NHS England
Stream A – Developing Community Housing Solutions
Anna McEwan and James Rosborough from Shared Lives tell the story of three people who have been able to move from residential care settings into the community through their involvement in Shared Lives. The presentation also explains how Shared Lives works and how it can support the Transforming Care agenda.
BILD Event – 21 March 2018 : Transforming care - Sharing solutions that make ...
Eamon o'kane marie curie
1.
2. Our Public Health Approach to
End of Life Care: Marie Curie
Eamon O’Kane
Divisional General Manager NI
3rd December 2015
3. Marie Curie Strategic Plan 2014-2019
Vision
A better life for people and their families living with a terminal illness
Objectives
• Reach more people and their families living with a terminal illness
• Improve the way terminally ill people are cared for across the UK
• Manage our charity as effectively and efficiently as possible.
5. Marie Curie Helper Service
Matching specially trained volunteers (Helpers) to people with a
terminal illness, their families and carers.
A Marie Curie Helper provides:
• One-to-one support and companionship
• A short respite break for families and carers
• A listening ear and emotional support
• Information on local services
• Some practical support e.g. shopping
• Support for a few months after bereavement
6. Companions Project
Hospital Companions - trained volunteers supporting patients & families
in final hours of life.
People dying in hospital may have few visitors or, if they do, patient & visitor's
can be overwhelmed
Companions provide
• emotional support - someone to talk to at this difficult time
• reassurance for families -someone is with their loved one when they need
to take a break or make arrangements
• more local people with volunteering opportunities in the hospital to support
members of their own community
7. Our Challenge
• Allow people with a terminal diagnosis to stay at home/in their
communities permanently or for as long as possible
• Reduce isolation for people with a diagnosis and their families
• Connect patients & families to wider support networks
• Closer to home service access/provision
• Support capacity growth in the voluntary sector
• Build alliances with the expertise that’s out there
• Partnerships that work - Diagnosis to Prognosis to Post Bereavement
8. What is Mobilisation?
Community
mobilisation on
is a comprehensive
response to an issue,
involving a wide
range of individuals,
agencies and
organisations
that come together to
change the
‘environment’ or
‘context’ within which
the issue occurs
Families
District Nursing
Community Centres
Volunteer Groups
Businesses
Support Groups
Local Government
Therapists
Politicians
GPs
Counselling
Health Services
Care Homes
Transport
Meals on Wheels
Craft Groups
Social ClubsGoogle Images
Could it challenge/enhance current End of Life
culture in the community?
10. • Develops community Ownership and Leadership in
addressing approaches/cultures
• Improves levels of support for families, individuals
and communities to improve End of Life experiences
• Educates/creates understanding with stakeholders in
relation to their role in supporting people with
changing needs
• Adopts/Introduces evidenced based action in
response to locally identified need
• Develops sustainable capacity to continue/progress
mobilisation in the future
• Builds Social Capital for change
Why Mobilisation?
