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Munchausen Syndrome
and Munchausen
Syndrome by ProxySyndrome by Proxy
Stephen Messner, MD, FAAP
Stephanie V. Blank Center for Safe and Healthy
Children
Children’s Healthcare of Atlanta
Child Abuse
Many forms
Sexual abuse
Physical abusePhysical abuse
Medical neglect
Fatal child abuse
Typically from Physical abuse
Medical neglect
NeglectNeglect
Rate increasing over past years from 1.96 to
2.03 / 100K
May represent increased reporting
Munch…what?
Munchausen syndrome is psychiatric
diagnosis
Fake illnesses, diseases in order to drawFake illnesses, diseases in order to draw
attention to themselves
AKA self-inflicted factitious disorder
Malingering vs. Muchausen
Malingering
Fabricated physical or psych disorder
Secondary gainSecondary gain
Munchausen
Fabricated physical or psych disorder
No secondary gain
Origins
Named for Baron von Münchhausen
Told tall tales after returning from war
of going to the moon, etc.of going to the moon, etc.
1720-1797
In 1950, Sir Richard Asher was first to
describe condition of self-harm
Munchausen Syndrome
Need to assume role of patient
Welcome invasive testing
Welcome surgical interventionsWelcome surgical interventions
Munchausen Syndrome by Proxy
(MSBP)
Pediatric falsification syndrome
Fabricated or induced illness
Polle’s syndromePolle’s syndrome
Meadow’s syndrome
Recent changes to nomenclature
APSAC recommends use of terms:
Pediatric condition falsification – describe the
abuse itselfabuse itself
Factitious disorder by proxy – describe the motive
behind the abuse
Munchausen Syndrome by Proxy when both are
present
MSBP
First described in 1977 by British pediatrician
Sir Roy Meadow
2 mothers
One fed child excessive amounts of salt
One put her own blood in child’s urine specimens
Intentionally producing physical and/or
psychological signs or symptoms in another
person
MSBP
Typically seen in children
Form of physical, sexual abuse and/or neglect
Falls under child abuse laws in terms of reportingFalls under child abuse laws in terms of reporting
Cases documented in adults
MSBP
Different from somatoform disorder
Signs/symptoms real to person
Not voluntary, not simulatedNot voluntary, not simulated
Different from malingering by proxy
Children coached to fake disabilities
Secondary gain
Epidemiology
True numbers unknown
Diagnostic criteria vary
Children < 1 yearChildren < 1 year
2 cases/ 100K
Children < 16 years
0.5 cases/ 100K
MSBP families
Siblings often victims
Study by Bools 1992
30% siblings poisoned or abused30% siblings poisoned or abused
Numerous sibling deaths
Sibling deaths from SIDS
Sequential MSBP reported 1998 by Arnold
Benadryl poisoning
2 siblings
Simulating illness
State false history
Seizure
FeverFever
Illness without physical signs
Producing illness
Caregiver causes a condition in the child
Poisoning child
Asphyxiating childAsphyxiating child
Much more common than simulating illness
Rosenberg study showed 70% producing
illness
Victims
Usually less than 5 years old
Mean age 20 months
No gender predominanceNo gender predominance
Signs/symptoms disappear when removed
from offender
Offender
Typically white, middle to upper class,
educated
No socioeconomic group immuneNo socioeconomic group immune
Usually mother/female caregiver
Contrast to MS – offender is typically male
Usually have healthcare training
Common Characteristics
MSBP Offender
Bio mother
Extensive praise to medical staff
High degree of attentiveness
Calm despite severity of child’s illness
Shelters the victim
Knowledgeable about victim’s illness
Some degree of medical education
History of similar illness as the child
Welcomes painful medical tests and procedures without question
From: Holstege and Dobmeier. “Criminal Poisoning: Munchausen by Proxy”. Clin Lab Med 26 (2006) 246
Common Characteristics
MSBP Victims
Dependent
Display separation anxiety
Immature
Symbiotic relationship with caregiver
Views offender as ideal parentViews offender as ideal parent
Passively tolerates medical procedures
Excessive school absence
Not involved in normal social activities
Failure to thrive
Illness corresponds with presence of caregiver
Illness resolves with close surveillance
From: Holstege and Dobmeier. “Criminal Poisoning: Munchausen by Proxy”. Clin Lab Med 26 (2006) 24
Suspicions for MSBP
Child with multiple hospitalizations/medical visits
Medical problems unresponsive to treatment, follow
unusual course
PE/lab findings that are highly unusual, don’t fit with
history, or are impossible
Caregiver is medically knowledgeable or is
interested in medical details
Caregiver enjoys being in hospital environment
Suspicions for MSBP
Caregiver expresses interest in other patients’
illnesses
Typically reluctant to leave child’s side
May be unusually calm in face of child’s illness and
is supportive/encouraging of the physician
May be angry, demanding more procedures/transfer
to “better” hospital
Suspicions for MSBP
Symptoms not present when away from
caregiver
May be family history of sibling withMay be family history of sibling with
unexplained illness or death
Emotionally distant relationship between the
parents
Intentional poisonings
McClure article 1996 case series 128 children
MSBP
40 children poisoned40 children poisoned
38 different toxins
71% were prescription drugs
Most common drugs were anticonvulsants and
opiates
Poisonings
Very difficult to differentiate from true illness
Window for toxicology usually closed once
realization of possible poisoningrealization of possible poisoning
Cases of hypoglycemia
Low blood glucose
Seen in patients with insulinoma
Also seen in patients taking insulin or oralAlso seen in patients taking insulin or oral
hypoglycemic meds
Case report in Pediatrics 2005 of patient
undergoing pancreatectomy
Vomiting and ipecac
Most common reported toxin in MSBP
cases
Available on Amazon.com for $2.79
Can detect emetine and cephaeline inCan detect emetine and cephaeline in
the urine for several weeks
If given chronically, can cause GI
bleed, electrolyte abnormalities,
skeletal and cardiac myopathy
Cardiomyopathy deaths reported
Initial Clues
Medical providers
Nurses
Social workersSocial workers
Difficulties in recognition
Majority of parents have legitimate concerns
There are medical conditions with these signs
and symptomsand symptoms
Involvement of numerous
doctors/subspecialties
Making the diagnosis
Need to suspect MSBP
Detailed, specific testing of blood, urine for
toxinstoxins
Resolution of symptoms when separated from
caregiver
Covert video surveillance (CVS)
Covert Video Surveillance
Allows for 24/7 access to child’s environment
without caregiver knowledge
Not available in all hospital settingsNot available in all hospital settings
Is available at Children’s Healthcare of Atlanta
Making the call for CVS
Multidisciplinary team
Doctors
NursesNurses
Risk Management
Social Work
Legal
Security
Role of Physician
Usually the first person to raise concerns
about MSBP
Reviews medical records to look for patterns,Reviews medical records to look for patterns,
unexplained illnesses in past
Relay to team information about work-up and
results to date
Role of Nursing
Have more direct interaction with patient and
family
Can fill the team in on details of hospitalCan fill the team in on details of hospital
behaviors
Give insight about mom’s interaction with
hospital staff and other parents
Role of Risk Management
Evaluate the need for invasion of privacy
Evaluate risk of harm to child
Make recommendations to team aboutMake recommendations to team about
necessity of CVS
Role of Social Work
Explore social aspects of parent
Serve as resource for parent
Report to team any information gleaned fromReport to team any information gleaned from
parent about life outside of hospital
Role of Attorney
Work with risk management to determine
when invasion of privacy outweighs risk of
possible harm to childpossible harm to child
Create documents allowing for CVS
Role of Security
Monitor the CVS 24/7
Report any suspicious activity to nursing staff
Maintain accurate documentationMaintain accurate documentation
Team approach
“The complexities involved in MSBP case
compilation necessitates a union of forces
within the legal, medical, social/protectivewithin the legal, medical, social/protective
service, and law enforcement professions.
There is no other type of investigation that
requires an understanding and protocol
between agencies to the degree required in
MSBP investigations”
Kathryn Artingstall in “Practical aspects of muchausen by proxy and munchausen syndrome investigation”
Use of CVS at CHOA
Started in 1993
41 patients monitored 1993-1997
Dr Hall published results in Pediatrics in 2000Dr Hall published results in Pediatrics in 2000
CHOA cases
23 of the 41 cases were determined to be
MSBP
13 required CVS in making the diagnosis and13 required CVS in making the diagnosis and
supportive of the diagnosis in 5
5 confirmed case without requiring CVS
2 confirmed by labs
2 confirmed by direct observation
1 confession
CHOA cases
Recurrent sepsis
Mom found to be injecting urine into IV
Unexplained lethargyUnexplained lethargy
Mom putting chloral hydrate in GTube
Mothers’ behaviors
Remarkable for the fabrication group
Heard on phone telling lies to family members and
friends
Mom told of need for operation and her unwillingness
Mom described constant seizures when there were
none
Moms attentive to child when medical staff present
and ignore child later
Atlanta profiles
All perpetrators in study were the mothers
Subsequently, there has been at least 1 father
seen on CVS harming childseen on CVS harming child
Majority of moms (55%) worked in healthcare
setting
25% worked in daycare
85% either mom or dad worked in healthcare or
daycare fields
Atlanta presenting signs/symptoms
Apnea
Persistent undiagnosed symptoms
VomitingVomiting
Atlanta methods of injury
Suffocation
Injection of body fluid
Giving oral medicationGiving oral medication
Fabrication
MSBP ruled out by CVS
4 cases with CVS for suspicion of MSBP
8 month old with central sleep apnea
7 year old with multiple diagnoses7 year old with multiple diagnoses
1 year old with apneic episodes observed to have
anxious and frightened mom with false alarms
3 year old with apnea diagnosed with seizures
CVS in UK
2 hospitals in UK
Children admitted with ALTEs
39 children39 children
33 of 39 shown to be abused using CVS
Suffocation shown in 30 cases
Poisoning and intentional fracture observed
As in the AJC 3/12/07
Father caught trying to suffocate son
A father was arrested Sunday at a children's hospital, charged with trying to kill his baby.
Concerned because the 3-month-old boy was having recurring breathing problems that a battery of tests failed to diagnose,
hospital officials placed a camera in the baby's room and were shocked by what they saw: The boy's father, police said, had
his hands over the infant's mouth and nose, suffocating him.
Staffers stopped the father and called police. The father, Michael Charles Callaway, is now in the Fulton County Jail,
charged with aggravated assault and cruelty to children.
Callaway's son had been at the Children's Healthcare of Atlanta at Scottish Rite since late February.
Sandy Springs police said the child was placed in a room with a hidden video camera, which caught Callaway, 28, of
Blairsville, covering his child's nose and mouth deliberately, said Lt. Steve rose.
Kevin McClelland, a hospital spokesman, said hospital officials are working with authorities but would not release any details
about the case, citing patient confidentiality and the ongoing criminal investigation.
Rose said police are trying to see whether it is a case of Munchausen Syndrome by Proxy, a mental condition where a
caregiver induces an illness in a person under their care in order to attract attention to themselves.
The boy was released from the hospital Monday because doctors found nothing wrong with him.
Despite proven MSBP, there’s
the discredited theory of Mothers Against
Munchausen Syndrome by Proxy Allegations
Per the website www.msbp.com
“The madness continues as the "experts" debate over this controversial diagnosis. Some say it is rare,
while others claim it is common. The evolution of this diagnosis continues as even the name is
debated...Factitious Disorder by Proxy, Meadow's Syndrome, Pediatric Falsification, etc. All while vying to
be the top expert in this field, some claim it is a psychiatric condition, while others state it is a medical
diagnosis, or a pattern of behavior. Yet they all involve identifying the psychological motivation of the
parent. Munchausen by Proxy is not recognized by the American Medical Association or the American
Psychiatric Association. Any physician who diagnoses this 'disorder' rather than identifying actual abuse byPsychiatric Association. Any physician who diagnoses this 'disorder' rather than identifying actual abuse by
medical evidence, should be reported to the Ethics board.
Innocent Mothers Are Profiled and removed from their medically fragile child without any evidence that
a crime has even occurred. Often, on the basis of a single phone call from a doctor, CPS will rush in and
confiscate a child without even interviewing the parents, leaving the "investigation" to the accusing
physician! Mom and dad will be instantly treated as criminals, guilty until proven innocent, and may lose
the rest of their children as well. In reality, the accusers, medical caregivers and Child Protective Service
(CPS) workers often perpetrate the real abuse.”
Stems from a case at Vanderbilt
Philip Patrick
Died at 11 months of age
Mother, Julie, started the webpageMother, Julie, started the webpage
She was exonerated after review of autopsy
showed he died of peritonitis
MSBP was given as initial cause of death and
parents were only allowed limited visitations
AAP
Recognize MSBP
States that CVS is not the gold standard for
diagnosis of MSBPdiagnosis of MSBP
Advises use of multidisciplinary team
approach to cases of suspected MSBP
Dr Meadows
First to describe MSBP in UK (1977)
“one sudden infant death is a tragedy, two is suspicious and
three is murder, until proved otherwise“ – Meadow’s Law
Expert testimony about cot death and MSBPExpert testimony about cot death and MSBP
Sally Clark found guilty of death of her 2 sons mainly due to
Meadows’ testimony
Court overturned some convictions in past
Does NOT discount diagnosis of MSBP
Often cited by defense to counter MSBP diagnosis
A diagnosis is made, now what?
First and foremost, protect the child
At CHOA, nurse alerted and removes child
from caregiverfrom caregiver
CVS reviewed and if felt to show intentional
harm, law enforcement notified
Psychiatric treatment
Needed for caregivers
Often needed for victims
Reports of having significant psychologicalReports of having significant psychological
difficulties later in life
Conversion symptoms
Fabrications
Poor school attendance
Poor concentration
Survivors of MSBP
Many suffer from PTSD
Difficulty maintaining relationships
InsecurityInsecurity
Often play victim role
Difficulty separating fantasy from reality
Role of the internet
Increasing availability of medical diagnoses to
lay persons
Potentially enabling offendersPotentially enabling offenders
Allows for sympathizers as well
Confusion and misdiagnosis
Patients with unexplained medical findings
may have real disease
Numerous tests often necessary to rule in orNumerous tests often necessary to rule in or
rule out various diagnoses
Don’t want to “jump” to diagnosis of MSBP
Doctor shoppers
Parents often take their children to numerous
doctors for “second opinions”
Seen in both MSBP and non-MSBP casesSeen in both MSBP and non-MSBP cases
Isn’t indicative of harm, and in most cases,
shows true concern
Role of community
Recognize that MSBP does occur
Awareness of child abuse in general
Collaboration of various agencies on theseCollaboration of various agencies on these
difficult cases
Maintain balance of privacy and protecting
children from harm
Refining the process
Analyze each case to make improvements
Expand surveillance of the rooms
Put plans in place for unique situations – suchPut plans in place for unique situations – such
as non-English speaking parents
Protocol
Case of MSBP in PICU
Not previously described
Often felt that MSBP couldn’t occur in closely-
monitored environment such as the ICUmonitored environment such as the ICU
3 year old seen being extubated by mother on
CVS
Increasing awareness
Needed by all medical providers in order to
diagnose MSBP early
Will save lives, invasive proceduresWill save lives, invasive procedures
Not limited to medical personnel
Summary of MSBP
Caregiver, typically mother, either inducing or
simulating illness in child
Perps seem to “enjoy” the medicalPerps seem to “enjoy” the medical
environment
Diagnosis often not in differential
Requires multidisciplinary team approach
There is a role for CVS
Videos
http://www.youtube.com/watch?v=UVLqADEdr
ig&feature=related
Questions

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Dr messner munchausen

  • 1. Munchausen Syndrome and Munchausen Syndrome by ProxySyndrome by Proxy Stephen Messner, MD, FAAP Stephanie V. Blank Center for Safe and Healthy Children Children’s Healthcare of Atlanta
  • 2. Child Abuse Many forms Sexual abuse Physical abusePhysical abuse Medical neglect
  • 3. Fatal child abuse Typically from Physical abuse Medical neglect NeglectNeglect Rate increasing over past years from 1.96 to 2.03 / 100K May represent increased reporting
  • 4. Munch…what? Munchausen syndrome is psychiatric diagnosis Fake illnesses, diseases in order to drawFake illnesses, diseases in order to draw attention to themselves AKA self-inflicted factitious disorder
  • 5. Malingering vs. Muchausen Malingering Fabricated physical or psych disorder Secondary gainSecondary gain Munchausen Fabricated physical or psych disorder No secondary gain
  • 6. Origins Named for Baron von Münchhausen Told tall tales after returning from war of going to the moon, etc.of going to the moon, etc. 1720-1797 In 1950, Sir Richard Asher was first to describe condition of self-harm
  • 7. Munchausen Syndrome Need to assume role of patient Welcome invasive testing Welcome surgical interventionsWelcome surgical interventions
  • 8. Munchausen Syndrome by Proxy (MSBP) Pediatric falsification syndrome Fabricated or induced illness Polle’s syndromePolle’s syndrome Meadow’s syndrome
  • 9. Recent changes to nomenclature APSAC recommends use of terms: Pediatric condition falsification – describe the abuse itselfabuse itself Factitious disorder by proxy – describe the motive behind the abuse Munchausen Syndrome by Proxy when both are present
  • 10. MSBP First described in 1977 by British pediatrician Sir Roy Meadow 2 mothers One fed child excessive amounts of salt One put her own blood in child’s urine specimens Intentionally producing physical and/or psychological signs or symptoms in another person
  • 11. MSBP Typically seen in children Form of physical, sexual abuse and/or neglect Falls under child abuse laws in terms of reportingFalls under child abuse laws in terms of reporting Cases documented in adults
  • 12. MSBP Different from somatoform disorder Signs/symptoms real to person Not voluntary, not simulatedNot voluntary, not simulated Different from malingering by proxy Children coached to fake disabilities Secondary gain
  • 13. Epidemiology True numbers unknown Diagnostic criteria vary Children < 1 yearChildren < 1 year 2 cases/ 100K Children < 16 years 0.5 cases/ 100K
  • 14. MSBP families Siblings often victims Study by Bools 1992 30% siblings poisoned or abused30% siblings poisoned or abused Numerous sibling deaths Sibling deaths from SIDS Sequential MSBP reported 1998 by Arnold Benadryl poisoning 2 siblings
  • 15. Simulating illness State false history Seizure FeverFever Illness without physical signs
  • 16. Producing illness Caregiver causes a condition in the child Poisoning child Asphyxiating childAsphyxiating child Much more common than simulating illness Rosenberg study showed 70% producing illness
  • 17. Victims Usually less than 5 years old Mean age 20 months No gender predominanceNo gender predominance Signs/symptoms disappear when removed from offender
  • 18. Offender Typically white, middle to upper class, educated No socioeconomic group immuneNo socioeconomic group immune Usually mother/female caregiver Contrast to MS – offender is typically male Usually have healthcare training
  • 19. Common Characteristics MSBP Offender Bio mother Extensive praise to medical staff High degree of attentiveness Calm despite severity of child’s illness Shelters the victim Knowledgeable about victim’s illness Some degree of medical education History of similar illness as the child Welcomes painful medical tests and procedures without question From: Holstege and Dobmeier. “Criminal Poisoning: Munchausen by Proxy”. Clin Lab Med 26 (2006) 246
  • 20. Common Characteristics MSBP Victims Dependent Display separation anxiety Immature Symbiotic relationship with caregiver Views offender as ideal parentViews offender as ideal parent Passively tolerates medical procedures Excessive school absence Not involved in normal social activities Failure to thrive Illness corresponds with presence of caregiver Illness resolves with close surveillance From: Holstege and Dobmeier. “Criminal Poisoning: Munchausen by Proxy”. Clin Lab Med 26 (2006) 24
  • 21. Suspicions for MSBP Child with multiple hospitalizations/medical visits Medical problems unresponsive to treatment, follow unusual course PE/lab findings that are highly unusual, don’t fit with history, or are impossible Caregiver is medically knowledgeable or is interested in medical details Caregiver enjoys being in hospital environment
  • 22. Suspicions for MSBP Caregiver expresses interest in other patients’ illnesses Typically reluctant to leave child’s side May be unusually calm in face of child’s illness and is supportive/encouraging of the physician May be angry, demanding more procedures/transfer to “better” hospital
  • 23. Suspicions for MSBP Symptoms not present when away from caregiver May be family history of sibling withMay be family history of sibling with unexplained illness or death Emotionally distant relationship between the parents
  • 24. Intentional poisonings McClure article 1996 case series 128 children MSBP 40 children poisoned40 children poisoned 38 different toxins 71% were prescription drugs Most common drugs were anticonvulsants and opiates
  • 25. Poisonings Very difficult to differentiate from true illness Window for toxicology usually closed once realization of possible poisoningrealization of possible poisoning
  • 26. Cases of hypoglycemia Low blood glucose Seen in patients with insulinoma Also seen in patients taking insulin or oralAlso seen in patients taking insulin or oral hypoglycemic meds Case report in Pediatrics 2005 of patient undergoing pancreatectomy
  • 27. Vomiting and ipecac Most common reported toxin in MSBP cases Available on Amazon.com for $2.79 Can detect emetine and cephaeline inCan detect emetine and cephaeline in the urine for several weeks If given chronically, can cause GI bleed, electrolyte abnormalities, skeletal and cardiac myopathy Cardiomyopathy deaths reported
  • 29. Difficulties in recognition Majority of parents have legitimate concerns There are medical conditions with these signs and symptomsand symptoms Involvement of numerous doctors/subspecialties
  • 30. Making the diagnosis Need to suspect MSBP Detailed, specific testing of blood, urine for toxinstoxins Resolution of symptoms when separated from caregiver Covert video surveillance (CVS)
  • 31. Covert Video Surveillance Allows for 24/7 access to child’s environment without caregiver knowledge Not available in all hospital settingsNot available in all hospital settings Is available at Children’s Healthcare of Atlanta
  • 32. Making the call for CVS Multidisciplinary team Doctors NursesNurses Risk Management Social Work Legal Security
  • 33. Role of Physician Usually the first person to raise concerns about MSBP Reviews medical records to look for patterns,Reviews medical records to look for patterns, unexplained illnesses in past Relay to team information about work-up and results to date
  • 34. Role of Nursing Have more direct interaction with patient and family Can fill the team in on details of hospitalCan fill the team in on details of hospital behaviors Give insight about mom’s interaction with hospital staff and other parents
  • 35. Role of Risk Management Evaluate the need for invasion of privacy Evaluate risk of harm to child Make recommendations to team aboutMake recommendations to team about necessity of CVS
  • 36. Role of Social Work Explore social aspects of parent Serve as resource for parent Report to team any information gleaned fromReport to team any information gleaned from parent about life outside of hospital
  • 37. Role of Attorney Work with risk management to determine when invasion of privacy outweighs risk of possible harm to childpossible harm to child Create documents allowing for CVS
  • 38. Role of Security Monitor the CVS 24/7 Report any suspicious activity to nursing staff Maintain accurate documentationMaintain accurate documentation
  • 39. Team approach “The complexities involved in MSBP case compilation necessitates a union of forces within the legal, medical, social/protectivewithin the legal, medical, social/protective service, and law enforcement professions. There is no other type of investigation that requires an understanding and protocol between agencies to the degree required in MSBP investigations” Kathryn Artingstall in “Practical aspects of muchausen by proxy and munchausen syndrome investigation”
  • 40. Use of CVS at CHOA Started in 1993 41 patients monitored 1993-1997 Dr Hall published results in Pediatrics in 2000Dr Hall published results in Pediatrics in 2000
  • 41. CHOA cases 23 of the 41 cases were determined to be MSBP 13 required CVS in making the diagnosis and13 required CVS in making the diagnosis and supportive of the diagnosis in 5 5 confirmed case without requiring CVS 2 confirmed by labs 2 confirmed by direct observation 1 confession
  • 42. CHOA cases Recurrent sepsis Mom found to be injecting urine into IV Unexplained lethargyUnexplained lethargy Mom putting chloral hydrate in GTube
  • 43. Mothers’ behaviors Remarkable for the fabrication group Heard on phone telling lies to family members and friends Mom told of need for operation and her unwillingness Mom described constant seizures when there were none Moms attentive to child when medical staff present and ignore child later
  • 44. Atlanta profiles All perpetrators in study were the mothers Subsequently, there has been at least 1 father seen on CVS harming childseen on CVS harming child Majority of moms (55%) worked in healthcare setting 25% worked in daycare 85% either mom or dad worked in healthcare or daycare fields
  • 45. Atlanta presenting signs/symptoms Apnea Persistent undiagnosed symptoms VomitingVomiting
  • 46. Atlanta methods of injury Suffocation Injection of body fluid Giving oral medicationGiving oral medication Fabrication
  • 47. MSBP ruled out by CVS 4 cases with CVS for suspicion of MSBP 8 month old with central sleep apnea 7 year old with multiple diagnoses7 year old with multiple diagnoses 1 year old with apneic episodes observed to have anxious and frightened mom with false alarms 3 year old with apnea diagnosed with seizures
  • 48. CVS in UK 2 hospitals in UK Children admitted with ALTEs 39 children39 children 33 of 39 shown to be abused using CVS Suffocation shown in 30 cases Poisoning and intentional fracture observed
  • 49. As in the AJC 3/12/07 Father caught trying to suffocate son A father was arrested Sunday at a children's hospital, charged with trying to kill his baby. Concerned because the 3-month-old boy was having recurring breathing problems that a battery of tests failed to diagnose, hospital officials placed a camera in the baby's room and were shocked by what they saw: The boy's father, police said, had his hands over the infant's mouth and nose, suffocating him. Staffers stopped the father and called police. The father, Michael Charles Callaway, is now in the Fulton County Jail, charged with aggravated assault and cruelty to children. Callaway's son had been at the Children's Healthcare of Atlanta at Scottish Rite since late February. Sandy Springs police said the child was placed in a room with a hidden video camera, which caught Callaway, 28, of Blairsville, covering his child's nose and mouth deliberately, said Lt. Steve rose. Kevin McClelland, a hospital spokesman, said hospital officials are working with authorities but would not release any details about the case, citing patient confidentiality and the ongoing criminal investigation. Rose said police are trying to see whether it is a case of Munchausen Syndrome by Proxy, a mental condition where a caregiver induces an illness in a person under their care in order to attract attention to themselves. The boy was released from the hospital Monday because doctors found nothing wrong with him.
  • 50. Despite proven MSBP, there’s the discredited theory of Mothers Against Munchausen Syndrome by Proxy Allegations
  • 51. Per the website www.msbp.com “The madness continues as the "experts" debate over this controversial diagnosis. Some say it is rare, while others claim it is common. The evolution of this diagnosis continues as even the name is debated...Factitious Disorder by Proxy, Meadow's Syndrome, Pediatric Falsification, etc. All while vying to be the top expert in this field, some claim it is a psychiatric condition, while others state it is a medical diagnosis, or a pattern of behavior. Yet they all involve identifying the psychological motivation of the parent. Munchausen by Proxy is not recognized by the American Medical Association or the American Psychiatric Association. Any physician who diagnoses this 'disorder' rather than identifying actual abuse byPsychiatric Association. Any physician who diagnoses this 'disorder' rather than identifying actual abuse by medical evidence, should be reported to the Ethics board. Innocent Mothers Are Profiled and removed from their medically fragile child without any evidence that a crime has even occurred. Often, on the basis of a single phone call from a doctor, CPS will rush in and confiscate a child without even interviewing the parents, leaving the "investigation" to the accusing physician! Mom and dad will be instantly treated as criminals, guilty until proven innocent, and may lose the rest of their children as well. In reality, the accusers, medical caregivers and Child Protective Service (CPS) workers often perpetrate the real abuse.”
  • 52. Stems from a case at Vanderbilt Philip Patrick Died at 11 months of age Mother, Julie, started the webpageMother, Julie, started the webpage She was exonerated after review of autopsy showed he died of peritonitis MSBP was given as initial cause of death and parents were only allowed limited visitations
  • 53. AAP Recognize MSBP States that CVS is not the gold standard for diagnosis of MSBPdiagnosis of MSBP Advises use of multidisciplinary team approach to cases of suspected MSBP
  • 54. Dr Meadows First to describe MSBP in UK (1977) “one sudden infant death is a tragedy, two is suspicious and three is murder, until proved otherwise“ – Meadow’s Law Expert testimony about cot death and MSBPExpert testimony about cot death and MSBP Sally Clark found guilty of death of her 2 sons mainly due to Meadows’ testimony Court overturned some convictions in past Does NOT discount diagnosis of MSBP Often cited by defense to counter MSBP diagnosis
  • 55. A diagnosis is made, now what? First and foremost, protect the child At CHOA, nurse alerted and removes child from caregiverfrom caregiver CVS reviewed and if felt to show intentional harm, law enforcement notified
  • 56. Psychiatric treatment Needed for caregivers Often needed for victims Reports of having significant psychologicalReports of having significant psychological difficulties later in life Conversion symptoms Fabrications Poor school attendance Poor concentration
  • 57. Survivors of MSBP Many suffer from PTSD Difficulty maintaining relationships InsecurityInsecurity Often play victim role Difficulty separating fantasy from reality
  • 58. Role of the internet Increasing availability of medical diagnoses to lay persons Potentially enabling offendersPotentially enabling offenders Allows for sympathizers as well
  • 59. Confusion and misdiagnosis Patients with unexplained medical findings may have real disease Numerous tests often necessary to rule in orNumerous tests often necessary to rule in or rule out various diagnoses Don’t want to “jump” to diagnosis of MSBP
  • 60. Doctor shoppers Parents often take their children to numerous doctors for “second opinions” Seen in both MSBP and non-MSBP casesSeen in both MSBP and non-MSBP cases Isn’t indicative of harm, and in most cases, shows true concern
  • 61. Role of community Recognize that MSBP does occur Awareness of child abuse in general Collaboration of various agencies on theseCollaboration of various agencies on these difficult cases Maintain balance of privacy and protecting children from harm
  • 62. Refining the process Analyze each case to make improvements Expand surveillance of the rooms Put plans in place for unique situations – suchPut plans in place for unique situations – such as non-English speaking parents Protocol
  • 63. Case of MSBP in PICU Not previously described Often felt that MSBP couldn’t occur in closely- monitored environment such as the ICUmonitored environment such as the ICU 3 year old seen being extubated by mother on CVS
  • 64. Increasing awareness Needed by all medical providers in order to diagnose MSBP early Will save lives, invasive proceduresWill save lives, invasive procedures Not limited to medical personnel
  • 65. Summary of MSBP Caregiver, typically mother, either inducing or simulating illness in child Perps seem to “enjoy” the medicalPerps seem to “enjoy” the medical environment Diagnosis often not in differential Requires multidisciplinary team approach There is a role for CVS