Personal Information
Organization / Workplace
Ireland Ireland
Occupation
Audit & Research Facilitator (TSCUH), Honorary Clinical Associate at Royal College of Surgeons Ireland
Industry
Education
About
I am a PhD trained researcher working with Temple Street Children's University Hospital as a Clinical Audit & Nursing Research Facilitator. I completed Doctor of Philosophy (PhD) in 2016 with UCD in collaboration with the National Centre for Inherited Metabolic Diseases (NCIMD) looking at “Parents’ experience of living with and caring for children, adolescents or young adults with Mucopolysaccharidoses (MPS) a rare genetic life-limiting condition”. My primary research interests are psychosocial aspects of Genetic Rare Diseases in children, adolescents and young adults and their families and service user engagement in health care. I have more specific passion towards Evidence-Based Care, ...
Personal Information
Organization / Workplace
Ireland Ireland
Occupation
Audit & Research Facilitator (TSCUH), Honorary Clinical Associate at Royal College of Surgeons Ireland
Industry
Education
About
I am a PhD trained researcher working with Temple Street Children's University Hospital as a Clinical Audit & Nursing Research Facilitator. I completed Doctor of Philosophy (PhD) in 2016 with UCD in collaboration with the National Centre for Inherited Metabolic Diseases (NCIMD) looking at “Parents’ experience of living with and caring for children, adolescents or young adults with Mucopolysaccharidoses (MPS) a rare genetic life-limiting condition”. My primary research interests are psychosocial aspects of Genetic Rare Diseases in children, adolescents and young adults and their families and service user engagement in health care. I have more specific passion towards Evidence-Based Care, ...