National Marfan Foundation
Personal Information
Organization / Workplace
National Marfan FoundationLocation
Port Washington, NY United StatesIndustry
Medical / Health Care / Pharmaceuticals
Website
www.marfan.orgAbout
The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders. The Foundation accomplishes these goals through: Research-Promoting research to improve diagnosis and treatment and to find a cure through: •A grant and fellowship program for all Marfan-related disciplines •Advocacy for federal funding and policies that support the NMF mission •Medical and Scientific Symposia •Partnerships with government agencies and other voluntary health organizations Education-Providing accurate and up-to-date inf