Personal Information
Organization / Workplace
Port Washington, NY United States
Industry
Medical / Health Care / Pharmaceuticals
Website
www.marfan.org
About
The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.
The Foundation accomplishes these goals through:
Research-Promoting research to improve diagnosis and treatment and to find a cure through:
•A grant and fellowship program for all Marfan-related disciplines
•Advocacy for federal funding and policies that support the NMF mission
•Medical and Scientific Symposia
•Partnerships with government agencies and other voluntary health organizations
Education-Providing accurate and up-to-date inf
Tags
marfan
nmf
marfans
national marfan foundation
genetics
marfan syndrome
marfan's
storybook
children's resources
genetic counseling
rare disorder
genetic disorder
syndrome
genetic
disorder
aortic
dissection
See more
Presentations
(4)Personal Information
Organization / Workplace
Port Washington, NY United States
Industry
Medical / Health Care / Pharmaceuticals
Website
www.marfan.org
About
The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.
The Foundation accomplishes these goals through:
Research-Promoting research to improve diagnosis and treatment and to find a cure through:
•A grant and fellowship program for all Marfan-related disciplines
•Advocacy for federal funding and policies that support the NMF mission
•Medical and Scientific Symposia
•Partnerships with government agencies and other voluntary health organizations
Education-Providing accurate and up-to-date inf
Tags
marfan
nmf
marfans
national marfan foundation
genetics
marfan syndrome
marfan's
storybook
children's resources
genetic counseling
rare disorder
genetic disorder
syndrome
genetic
disorder
aortic
dissection
See more