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shinecharity.org.uk
                                                   info@shinecharity.org.uk
                                                             42 Park Road
                                                             Peterborough
                                                                 PE1 2UQ
                                                            01733 555988




Depression and Disability
Feelings and Disability                  to you dies it can take many months
                                         to get over it but during this time
Many people with long-term physical      your mind is working hard at getting
difficulties don’t like using the word   used to the loss. At first, you may
‘disabled’ about themselves but it       be sad all the time; gradually you
is the word that the government          are sad for less time and eventually
uses to talk about people who            you may be able to remember the
have a long-term health problem.         person with fondness and even
If you need to claim Benefits then       smile at good memories.
it may be a ‘Disability’ Benefit or if
an employer or a college treat you       We call this feeling ‘grief’ and
unfairly then it will ‘Disability’ law   the process ‘grieving’. But other
that is being broken. So we will         changes in our lives can make us
carry on using this word here.           feel the same way. Breaking up with
                                         a close friend, losing a job we like,
Everybody, disabled or not, goes         and so on. While we are getting
through times when they feel ‘down’      used to the changes, we will feel
or low in mood, sometimes for days       low.
or weeks at a time. Sometimes we
know why we feel this way – losing       Sometimes we don’t know why
somebody close, or having other          we are feeling this way but there is
things go on in our lives which we       always a reason. Sometimes we are
don’t want, for instance.                so used to trying to deal with what
                                         is making us feel low that we stop
Because we can’t control everything      noticing it. When the feelings go on
that happens in our lives, bad things    for a long time this can be puzzling
are bound to happen from time to         for us, and for those around us who
time. What this means is that feeling    can see that there is something
down is ‘normal’. If someone close       wrong.
Depression and Disability
Living with any type of disability is     So, if you feel down for a week
difficult. It can often seem that other   or so, try:
people around you get what they
want more easily. It may seem to          To talk to someone else you
you that there are things you would       trust about how you feel
like to do that you will never be able
to. Other people are not always           To remember that what you are
kind if they know you are disabled.       having to cope with is difficult
But because disabled people have
to cope with these things every day,      Not to get angry with yourself
they sometimes stop realising how         –remember that you are coping
hard it is, begin to feel very down       with something that some
and sometimes don’t know why.             people couldn’t cope with at all
If you get down sometimes, try
to think how someone who is not
disabled would feel if they suddenly      To    treat     yourself  as
became disabled and had to cope           sympathetically as you would
with all the problems you have            want to treat somebody else
to cope with all the time. You are        who was going through the
probably doing very well to cope          same thing.
with all your problems.
                                          To keep on meeting friends and
Actually, a lot of people who become      doing the things you know you
disabled, as a result of accidents        enjoy - even if you don’t really
for instance, do find it very hard        feel like it you will probably feel
to cope and get very down before          better afterwards.			
they learn how to cope.
                                          Disability and Depression
Even when we know why we are
feeling low it is often helpful to talk   If you feel low for more than a few
about it to somebody else. Sharing        weeks and you don’t know why; if
problems with somebody you trust          you can’t tell yourself to ‘snap out
is usually a good idea, especially if     of it’ or if the things that usually
they have experienced the same            interest you don’t cheer you up
difficulties themselves. If that isn’t    then you may be experiencing
possible then you can sometimes           what is often called ‘depression’
find people who are trained to help.      and you may need special help to
                                          start feeling better.
Most disabled people are not          Feeling that you are to blame
depressed and disabled people         for a lot of what goes wrong
who become depressed do not
stay depressed. This is another       Losing confidence in yourself
way of saying that it may not be
the disability itself which causes    Wanting to harm or kill yourself
depression but how people cope
with it. If you become depressed it   Crying or feeling like crying
may be that you are having to cope    although you didn’t cry easily
with change or something new.         before

The difference between feeling        Being restless a lot of the time
‘down’ and feeling depressed is
that when you are depressed, the      Lack of energy and feeling tired
feelings are deeper and last for      a lot of the time
longer. If you are down, you can
often tell yourself to do things to   Sleeping much more than usual
make you feel better; that doesn’t    or having trouble getting off to
work when people are depressed        sleep
because they lose interest totally.
                                      Feeling bad tempered a lot of
This is list of what might happen     the time
if you or someone you know gets
depressed.
                                      Wanting to eat a lot more or a
                                      lot less than usual
Feeling sad nearly all the time
                                      Not being able to concentrate
Feeling hopeless about your           as well as before, finding it very
future                                difficult to make decisions
Feeling like a failure or feeling     Smoking or drinking too much.
worthless                             Relying on social drugs.
Not enjoying things you used to       If you have had a number of these
enjoy, losing interest in things      problems for more than a couple
you used to be interested in,         of weeks, or if you know someone
losing interest in sex                who seems to have these problems,
Depression and Disability
then getting help from someone else You will probably need to see
is important.                       your counsellor every one or two
                                    weeks to begin with and you
Remember, becoming depressed should expect to be seeing them
is not being “silly” or a sign of for at least 6 months – feelings of
weakness. There are always real depression tend to get better quite
reasons for becoming depressed slowly but you can expect to get
and help is available.              back to normal eventually.

You may be a part of a support Anti-Depressants
group or be part of an organisation
(such as Shine) which can help, so If counselling is not available or
try this first.                            if you are really depressed, your
                                           doctor might suggest you take
Most        people      who      become anti-depressants.
depressed go to their own doctor,
who can make a further referral if It is true that taking pills will not solve
specialist treatment is required.          problems but sometimes people
                                           are so depressed that they lack the
Dealing with Depression                    mental energy to sort things out.
                                           Anti-depressants will sometimes
There are two main ways of dealing help by making you feel more like
with depression:                           tackling problems. Sometimes you
                                           can take anti-depressants and have
Talking about problems to a counselling at the same time but
trained person                             the type of antidepressant needs to
                                           be carefully chosen by your doctor
Taking drugs called                 ‘anti- for this to happen.
depressants’             which         are
prescribed by a doctor.                    Most anti-depressants are not
                                           addictive and you can come off
Your doctor should be able to refer them quite easily when the time
you to a counsellor or another comes. You need to be taking them
suitable therapist who will be able to for 3 to 4 weeks before they start
find out why you are depressed and to work and you need to take them
help you to deal with it. When this is for at least 3 months before you
available, this is first thing to try.     can tell whether they are working
for you. Doctors prefer depressed      					
patients to keep taking them for 6     How to help other people
months.                                who become depressed.
Anti-depressants can make you          People who become badly
feel peculiar or a bit poorly when     depressed can lose interest in
you first start taking them but most   helping themselves and they may
people manage to cope. If you          have started to shut themselves
get severe problems you should         away from other people. It may
tell your doctor. Do not increase      seem to you that they are not
or reduce the amount you take          interested in being with you.
without discussing it with your
doctor. Drinking alcohol or taking     Underneath the depression though,
other drugs while you are taking       there is usually a strong need to be
anti-depressants can be dangerous      close to others.
– again, discuss this with your
doctor.                                If they don’t seem interested in
                                       seeing you, try to show that you still
When you feel the time has come        want to see them. Listen to them if
to stop taking antidepressants,        they want to talk about problems.
discuss this with your doctor. You
will usually need to reduce the        Being with a depressed person
amount you take gradually.             is often no fun – be prepared for
                                       their gloomy thoughts and lack
                                       of interest. Don’t tell them to “pull
                                       themselves together”. Being badly
					                                  depressed means that they can’t
                                       do this.

                                       Most important, accept that you
					                                  may not be able bring them out of
					                                  depression yourself and try not to
                                       feel responsible if you seem to be
                                       failing.
If you are worried, suggest that       					
they go to see their doctor if they    For further information
haven’t already been. If they won’t,
don’t be afraid to tell someone else   For more help and information about
who can help, even if the depressed    depression contact:
person seems not to want you to.
It is important that they get to see   MIND					
someone who can help without           www.mind.org.uk			
becoming too emotionally involved.     Mindinfo Line: 0845 766 0163
The person’s doctor, a teacher or a
parent are people you could tell.
                                       The Depression Alliance			
                                       www.depressionalliance.org		
A depressed person may not want        0845 123 23 20
you to do this at the time, but may
well thank you later when they can
                                       The Royal College of Psychiatrists	
understand that you needed to
                                       www.rcpsych.ac.uk
help.

With thanks to Dr James Meikle,
Consultant Clinical Psychologist




Help us
Shine relies on people’s generosity and support so we can help our clients
who depend on us for help and advice - people with hydrocephalus,
spina bifida, their families and carers. To donate to Shine please visit
www.shinecharity.org.uk or call 01733 421329.

This information has been produced by Shine’s medical advisers and
approved by Shine’s Medical Advisory Committee of senior medical
professionals.

Shine - Registered charity no.249338
To see our full range of information sheets and to find out how to donate
to Shine please visit www.shinecharity.org.uk

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Depression and Disability

  • 1. shinecharity.org.uk info@shinecharity.org.uk 42 Park Road Peterborough PE1 2UQ 01733 555988 Depression and Disability Feelings and Disability to you dies it can take many months to get over it but during this time Many people with long-term physical your mind is working hard at getting difficulties don’t like using the word used to the loss. At first, you may ‘disabled’ about themselves but it be sad all the time; gradually you is the word that the government are sad for less time and eventually uses to talk about people who you may be able to remember the have a long-term health problem. person with fondness and even If you need to claim Benefits then smile at good memories. it may be a ‘Disability’ Benefit or if an employer or a college treat you We call this feeling ‘grief’ and unfairly then it will ‘Disability’ law the process ‘grieving’. But other that is being broken. So we will changes in our lives can make us carry on using this word here. feel the same way. Breaking up with a close friend, losing a job we like, Everybody, disabled or not, goes and so on. While we are getting through times when they feel ‘down’ used to the changes, we will feel or low in mood, sometimes for days low. or weeks at a time. Sometimes we know why we feel this way – losing Sometimes we don’t know why somebody close, or having other we are feeling this way but there is things go on in our lives which we always a reason. Sometimes we are don’t want, for instance. so used to trying to deal with what is making us feel low that we stop Because we can’t control everything noticing it. When the feelings go on that happens in our lives, bad things for a long time this can be puzzling are bound to happen from time to for us, and for those around us who time. What this means is that feeling can see that there is something down is ‘normal’. If someone close wrong.
  • 2. Depression and Disability Living with any type of disability is So, if you feel down for a week difficult. It can often seem that other or so, try: people around you get what they want more easily. It may seem to To talk to someone else you you that there are things you would trust about how you feel like to do that you will never be able to. Other people are not always To remember that what you are kind if they know you are disabled. having to cope with is difficult But because disabled people have to cope with these things every day, Not to get angry with yourself they sometimes stop realising how –remember that you are coping hard it is, begin to feel very down with something that some and sometimes don’t know why. people couldn’t cope with at all If you get down sometimes, try to think how someone who is not disabled would feel if they suddenly To treat yourself as became disabled and had to cope sympathetically as you would with all the problems you have want to treat somebody else to cope with all the time. You are who was going through the probably doing very well to cope same thing. with all your problems. To keep on meeting friends and Actually, a lot of people who become doing the things you know you disabled, as a result of accidents enjoy - even if you don’t really for instance, do find it very hard feel like it you will probably feel to cope and get very down before better afterwards. they learn how to cope. Disability and Depression Even when we know why we are feeling low it is often helpful to talk If you feel low for more than a few about it to somebody else. Sharing weeks and you don’t know why; if problems with somebody you trust you can’t tell yourself to ‘snap out is usually a good idea, especially if of it’ or if the things that usually they have experienced the same interest you don’t cheer you up difficulties themselves. If that isn’t then you may be experiencing possible then you can sometimes what is often called ‘depression’ find people who are trained to help. and you may need special help to start feeling better.
  • 3. Most disabled people are not Feeling that you are to blame depressed and disabled people for a lot of what goes wrong who become depressed do not stay depressed. This is another Losing confidence in yourself way of saying that it may not be the disability itself which causes Wanting to harm or kill yourself depression but how people cope with it. If you become depressed it Crying or feeling like crying may be that you are having to cope although you didn’t cry easily with change or something new. before The difference between feeling Being restless a lot of the time ‘down’ and feeling depressed is that when you are depressed, the Lack of energy and feeling tired feelings are deeper and last for a lot of the time longer. If you are down, you can often tell yourself to do things to Sleeping much more than usual make you feel better; that doesn’t or having trouble getting off to work when people are depressed sleep because they lose interest totally. Feeling bad tempered a lot of This is list of what might happen the time if you or someone you know gets depressed. Wanting to eat a lot more or a lot less than usual Feeling sad nearly all the time Not being able to concentrate Feeling hopeless about your as well as before, finding it very future difficult to make decisions Feeling like a failure or feeling Smoking or drinking too much. worthless Relying on social drugs. Not enjoying things you used to If you have had a number of these enjoy, losing interest in things problems for more than a couple you used to be interested in, of weeks, or if you know someone losing interest in sex who seems to have these problems,
  • 4. Depression and Disability then getting help from someone else You will probably need to see is important. your counsellor every one or two weeks to begin with and you Remember, becoming depressed should expect to be seeing them is not being “silly” or a sign of for at least 6 months – feelings of weakness. There are always real depression tend to get better quite reasons for becoming depressed slowly but you can expect to get and help is available. back to normal eventually. You may be a part of a support Anti-Depressants group or be part of an organisation (such as Shine) which can help, so If counselling is not available or try this first. if you are really depressed, your doctor might suggest you take Most people who become anti-depressants. depressed go to their own doctor, who can make a further referral if It is true that taking pills will not solve specialist treatment is required. problems but sometimes people are so depressed that they lack the Dealing with Depression mental energy to sort things out. Anti-depressants will sometimes There are two main ways of dealing help by making you feel more like with depression: tackling problems. Sometimes you can take anti-depressants and have Talking about problems to a counselling at the same time but trained person the type of antidepressant needs to be carefully chosen by your doctor Taking drugs called ‘anti- for this to happen. depressants’ which are prescribed by a doctor. Most anti-depressants are not addictive and you can come off Your doctor should be able to refer them quite easily when the time you to a counsellor or another comes. You need to be taking them suitable therapist who will be able to for 3 to 4 weeks before they start find out why you are depressed and to work and you need to take them help you to deal with it. When this is for at least 3 months before you available, this is first thing to try. can tell whether they are working
  • 5. for you. Doctors prefer depressed patients to keep taking them for 6 How to help other people months. who become depressed. Anti-depressants can make you People who become badly feel peculiar or a bit poorly when depressed can lose interest in you first start taking them but most helping themselves and they may people manage to cope. If you have started to shut themselves get severe problems you should away from other people. It may tell your doctor. Do not increase seem to you that they are not or reduce the amount you take interested in being with you. without discussing it with your doctor. Drinking alcohol or taking Underneath the depression though, other drugs while you are taking there is usually a strong need to be anti-depressants can be dangerous close to others. – again, discuss this with your doctor. If they don’t seem interested in seeing you, try to show that you still When you feel the time has come want to see them. Listen to them if to stop taking antidepressants, they want to talk about problems. discuss this with your doctor. You will usually need to reduce the Being with a depressed person amount you take gradually. is often no fun – be prepared for their gloomy thoughts and lack of interest. Don’t tell them to “pull themselves together”. Being badly depressed means that they can’t do this. Most important, accept that you may not be able bring them out of depression yourself and try not to feel responsible if you seem to be failing.
  • 6. If you are worried, suggest that they go to see their doctor if they For further information haven’t already been. If they won’t, don’t be afraid to tell someone else For more help and information about who can help, even if the depressed depression contact: person seems not to want you to. It is important that they get to see MIND someone who can help without www.mind.org.uk becoming too emotionally involved. Mindinfo Line: 0845 766 0163 The person’s doctor, a teacher or a parent are people you could tell. The Depression Alliance www.depressionalliance.org A depressed person may not want 0845 123 23 20 you to do this at the time, but may well thank you later when they can The Royal College of Psychiatrists understand that you needed to www.rcpsych.ac.uk help. With thanks to Dr James Meikle, Consultant Clinical Psychologist Help us Shine relies on people’s generosity and support so we can help our clients who depend on us for help and advice - people with hydrocephalus, spina bifida, their families and carers. To donate to Shine please visit www.shinecharity.org.uk or call 01733 421329. This information has been produced by Shine’s medical advisers and approved by Shine’s Medical Advisory Committee of senior medical professionals. Shine - Registered charity no.249338 To see our full range of information sheets and to find out how to donate to Shine please visit www.shinecharity.org.uk