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Confidentiality
ED HOROWICZ
Objectives
 To define confidentiality.
 Understand the legal obligations relating to confidentiality.
 Understand the circumstances in which a breach of
confidentiality is justified under English law.
 Understand your professional responsibilities and obligations
under confidentiality.
What does confidentiality mean?
 Put simply confidentiality means to ‘trust wholly’.
 Confidentiality has long been regarded as a fundamental
ethical obligation, recognised from the Hippocratic Oath.
“ Whatever, in connection with my professional practice, or
not in connection with it, I see or hear in the life of men,
which ought not to be spoken of abroad, I will not divulge,
as reckoning that all such should be kept secret.”
Confidentiality
 Healthcare professions regard confidentiality as of the upmost
importance and requires that unauthorised third parties do not
acquire confidential information relating to patients without the
patient’s consent.
 English law protects legally recognises a person’s right to medical
confidentiality and protects this under;
 Common Law,
 The Human Rights Act 1998,
 The Data Protection Act 1998
 Specific healthcare legislation such as the National Health Service Act 2006
and the Health Protection (Notification) Regulations 2010.
Common Law
 The common law applies to civil claims for breach of
confidence.
 In W v Egdell [1990] confidential information could be
disclosed to appropriate professionals, in the public interest,
provided that the risk is real and that it involves the danger of
physical harm to the public.
 Confidence is also not dependent upon being in a confidential
relationship.
 In Campbell V MGM [2004] the court held that the duty of
confidentiality will arise whenever a person receives
information that they know or should know is confidential. E.g.
finding medical notes.
The Data Protection Act 1998
 Enacted over concern that existing common law did not
sufficiently protect confidential personal information.
 Section 2 (e) classifies medical records as sensitive personal
data.
 Specifically section 68 (2) defines medical information as any
record which;
‘a) consists of information relating to the physical and mental
health or condition of an individual and,
b) Has been made by or on behalf of a health professional in
connection with the care of an individual’.
 Applies only to the living!
Data Protection Act 1998
 Data can only be released or ‘processed’ when;
 The patient consents.
 When it is necessary to protect the vital interests of the patient.
 When the court demands it.
 When the data controller (the trust) needs the information for medical
purposes (preventative medicine, medical diagnosis, medical research and
the provision of treatment), importantly this must be undertaken by a
healthcare professional or a person owing the same duty of confidentiality
to such information.
 It is in the public interest.
 The Act does provide remedies to those who have suffered damage as a
result of breach in confidentiality such as; the halting of any data processing,
compensation or that data is amended.
The Human Rights Act 1998
 Article 10: The Freedom of Expression provides that ;
‘ Everyone shall have the right to freedom of expression.
The exercise of these freedoms may be subject to
restriction; conditions or penalties which are described
in law... For the protection of reputation of others, for
preventing the disclosure of information received in
confidence…’
The Human Rights Act 1998
 Article 8: Right to Respect for Private and Family Life.
 Can only be overridden in interests of national
security, public safety, economic well-being,
prevention of crime, protection of health or morals
and protection of the rights and freedoms of others.
 Campbell v MGM [2004]
Breaching Confidentiality
 There are circumstances where confidentiality may be breached but also
circumstances where confidentiality must be breached.
 Legal obligation to breach;
 Health and Social Care Act 2012, in circumstances of infection or
contamination of disease that presents or could present significant harm
to human health. Consider recent Ebola cases.
 Safeguarding children following recent government guidelines.
 If giving evidence to a court, although only to the extent necessary.
 To answer police questions relating to a serious offence or suspected
terrorism. No professional protection to refuse to answer.
May Breach Confidentiality- Adults
 When a patient has consented to information being shared with relatives.
 If it is in the public interest and there is a risk of physical harm;
 such as mental health tribunals,
 where drugs beyond personal consumption are found,
 where infections such as HIV are likely to be contracted,
 where the patient is incompetent and
 where language barriers exist and require an interpreter, as a person who
cannot speak English is vulnerable by definition. However, this should be
official for best practice, as the interpreter holds responsibilities to
confidentiality.
May Breach Confidentiality- Children
 Children are owed a duty of confidence .
 Young people between 16-18 are provided with this duty under the Family
Reform Act 1969.
 If a child is Gillick competent then advice and treatment may be given if
the criteria are satisfied. In R (Axon) v SoS for Health [2006] the court
affirmed the duty of confidence owed to a competent child.
 Young children obviously have their information shared with their
parent(s)/guardian as part of parental responsibilities under the Children’s
Act 1989, importantly such information is protected from sharing with any
other unauthorised person.
Professional Obligations
 The Department of Health has a code of
practice for confidentiality.
 The GMC has specific guidance for
confidentiality and confidentiality with respect
to children.
 The NMC and HCPC all have professional
conduct standards for confidentiality.
Caldicott Report 1997
 Recognised that each individual, each trust and the NHS as a corporate entity
has a duty to uphold confidentiality.
 6 principles were set out;
 If confidential information is required, there should always be a justification for
this purpose.
 Patient-identifiable information should only be used when it is absolutely
necessary.
 When patient-identifiable information is required, only the minimum necessary
to achieve the desired purpose should be used.
 Access to patient-identifiable information should be on a strict need-to-know
basis.
 Everyone who has access to this information is under a duty of confidence.
 Everyone should understand and comply with the law.
QUESTIONS????
References
 Brazier.M. and Cave.E, 2011. Medicine, Patients and the Law. 5th Edition, London
:LexisNexis / Penguin.
 Department of Health, 2003. Confidentiality: NHS Code of Practice. London: Department
of Health.
 Department of Health, 2003. Confidentiality: NHS Code of Practice. Supplementary
Guidelines: Public Interest Disclosures. London: Department of Health.
 Fletcher.N, Holt.J, Brazier.M and Harris.J, 1995, Ethics, Law and Nursing. Manchester:
Manchester University Press.
 General Medical Council, 2006. Good Medical Practice. 2006, London: General Medical
Council.
 Herring.J, 2012. Medical Law and Ethics. 5th Edition, Oxford: Oxford University Press.
 Pattinson.S, 2011. Medical Law and Ethics. 3rd Edition, London: Sweet and Maxwell.

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Confidentiality and Data Protection

  • 2. Objectives  To define confidentiality.  Understand the legal obligations relating to confidentiality.  Understand the circumstances in which a breach of confidentiality is justified under English law.  Understand your professional responsibilities and obligations under confidentiality.
  • 3. What does confidentiality mean?  Put simply confidentiality means to ‘trust wholly’.  Confidentiality has long been regarded as a fundamental ethical obligation, recognised from the Hippocratic Oath. “ Whatever, in connection with my professional practice, or not in connection with it, I see or hear in the life of men, which ought not to be spoken of abroad, I will not divulge, as reckoning that all such should be kept secret.”
  • 4. Confidentiality  Healthcare professions regard confidentiality as of the upmost importance and requires that unauthorised third parties do not acquire confidential information relating to patients without the patient’s consent.  English law protects legally recognises a person’s right to medical confidentiality and protects this under;  Common Law,  The Human Rights Act 1998,  The Data Protection Act 1998  Specific healthcare legislation such as the National Health Service Act 2006 and the Health Protection (Notification) Regulations 2010.
  • 5. Common Law  The common law applies to civil claims for breach of confidence.  In W v Egdell [1990] confidential information could be disclosed to appropriate professionals, in the public interest, provided that the risk is real and that it involves the danger of physical harm to the public.  Confidence is also not dependent upon being in a confidential relationship.  In Campbell V MGM [2004] the court held that the duty of confidentiality will arise whenever a person receives information that they know or should know is confidential. E.g. finding medical notes.
  • 6. The Data Protection Act 1998  Enacted over concern that existing common law did not sufficiently protect confidential personal information.  Section 2 (e) classifies medical records as sensitive personal data.  Specifically section 68 (2) defines medical information as any record which; ‘a) consists of information relating to the physical and mental health or condition of an individual and, b) Has been made by or on behalf of a health professional in connection with the care of an individual’.  Applies only to the living!
  • 7. Data Protection Act 1998  Data can only be released or ‘processed’ when;  The patient consents.  When it is necessary to protect the vital interests of the patient.  When the court demands it.  When the data controller (the trust) needs the information for medical purposes (preventative medicine, medical diagnosis, medical research and the provision of treatment), importantly this must be undertaken by a healthcare professional or a person owing the same duty of confidentiality to such information.  It is in the public interest.  The Act does provide remedies to those who have suffered damage as a result of breach in confidentiality such as; the halting of any data processing, compensation or that data is amended.
  • 8. The Human Rights Act 1998  Article 10: The Freedom of Expression provides that ; ‘ Everyone shall have the right to freedom of expression. The exercise of these freedoms may be subject to restriction; conditions or penalties which are described in law... For the protection of reputation of others, for preventing the disclosure of information received in confidence…’
  • 9. The Human Rights Act 1998  Article 8: Right to Respect for Private and Family Life.  Can only be overridden in interests of national security, public safety, economic well-being, prevention of crime, protection of health or morals and protection of the rights and freedoms of others.  Campbell v MGM [2004]
  • 10. Breaching Confidentiality  There are circumstances where confidentiality may be breached but also circumstances where confidentiality must be breached.  Legal obligation to breach;  Health and Social Care Act 2012, in circumstances of infection or contamination of disease that presents or could present significant harm to human health. Consider recent Ebola cases.  Safeguarding children following recent government guidelines.  If giving evidence to a court, although only to the extent necessary.  To answer police questions relating to a serious offence or suspected terrorism. No professional protection to refuse to answer.
  • 11. May Breach Confidentiality- Adults  When a patient has consented to information being shared with relatives.  If it is in the public interest and there is a risk of physical harm;  such as mental health tribunals,  where drugs beyond personal consumption are found,  where infections such as HIV are likely to be contracted,  where the patient is incompetent and  where language barriers exist and require an interpreter, as a person who cannot speak English is vulnerable by definition. However, this should be official for best practice, as the interpreter holds responsibilities to confidentiality.
  • 12. May Breach Confidentiality- Children  Children are owed a duty of confidence .  Young people between 16-18 are provided with this duty under the Family Reform Act 1969.  If a child is Gillick competent then advice and treatment may be given if the criteria are satisfied. In R (Axon) v SoS for Health [2006] the court affirmed the duty of confidence owed to a competent child.  Young children obviously have their information shared with their parent(s)/guardian as part of parental responsibilities under the Children’s Act 1989, importantly such information is protected from sharing with any other unauthorised person.
  • 13. Professional Obligations  The Department of Health has a code of practice for confidentiality.  The GMC has specific guidance for confidentiality and confidentiality with respect to children.  The NMC and HCPC all have professional conduct standards for confidentiality.
  • 14. Caldicott Report 1997  Recognised that each individual, each trust and the NHS as a corporate entity has a duty to uphold confidentiality.  6 principles were set out;  If confidential information is required, there should always be a justification for this purpose.  Patient-identifiable information should only be used when it is absolutely necessary.  When patient-identifiable information is required, only the minimum necessary to achieve the desired purpose should be used.  Access to patient-identifiable information should be on a strict need-to-know basis.  Everyone who has access to this information is under a duty of confidence.  Everyone should understand and comply with the law.
  • 16. References  Brazier.M. and Cave.E, 2011. Medicine, Patients and the Law. 5th Edition, London :LexisNexis / Penguin.  Department of Health, 2003. Confidentiality: NHS Code of Practice. London: Department of Health.  Department of Health, 2003. Confidentiality: NHS Code of Practice. Supplementary Guidelines: Public Interest Disclosures. London: Department of Health.  Fletcher.N, Holt.J, Brazier.M and Harris.J, 1995, Ethics, Law and Nursing. Manchester: Manchester University Press.  General Medical Council, 2006. Good Medical Practice. 2006, London: General Medical Council.  Herring.J, 2012. Medical Law and Ethics. 5th Edition, Oxford: Oxford University Press.  Pattinson.S, 2011. Medical Law and Ethics. 3rd Edition, London: Sweet and Maxwell.