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[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],1 P2I Care – A research network P2I – The individual Patient, Provider and Information used  The locus of health care improvement
Patient Provider IS / IT The clinical microsystem - the atom of health care to be redesigned
4500 hrs the last 78 months
Sending sputum and doing monthly check-ups
Testing stuff from the web
And being luckily at a good place
Calling the office [sound clip]
There are easy to use tools
There are even simple web resources emerging, showing the way [Movie clip]
There are measures that mean something for all the stakeholders
And we develop some things one on one
Something is missing, there is so much opportunity and so much energy lost in space
This is me, I am a patienteer
Dreaming about what could be healthcare in society
- And have PER - And do PEP - And start a PEO movement? - If I could be at PEF not FEV1 - raising the bar
Meeting this guy
And Anna
Staffan has this – movie clip BCG filmen
Using Quality Registries to empower patients
The Swedish Rheumatology Quality Registry ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],20 [email_address]
Statistics Counties in Sweden Number of visits last year Registered patients Coverage
RA-registry homepage, www.swerre.se To log on to the register database and PER General information about the register Updated news regarding the register
Professional’s view Search for a patient Menue for  your clinic Menue for  statistical tools Menue for  administration of  user account
Search patient Latest disease activity Deceased patient Patient personal number, name,  diagnose and clinic Date of last visit
PER-  Patientent’s sElf Registration   25
Available from home via national online access platform [email_address] 26
Patient’s self-assessment Pain estimation  via VAS entered by patient Patient’s self-assessment of swollen and tender joints
28
Answer questions about pain,joint swollenness, daily function,   quality of life  Patient gets printed overview of assessments over time, including medications and lab-tests. The specialist examines the patient, informed by the patient’s self-assessment Patient and specialist goes through results and treatment together
Studies show.... ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Patiens definition of involvement :  * Knowledge about my body, treatments, the disease and medicines  * To be a part of the planning process * To be heard and understood * To be trusted ” Medicines control my whole life – of course I like to be part of the treatment decisions ”  There is a small difference between physicians and patients joint status.  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],–
Why is PER a useful tool for patients? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],31 [email_address]
PER – integrated in everyday practice ,[object Object],[object Object],[object Object],[object Object]
 
So we can now imagine and see some solutions. Not only calling in. But having networks connect.
Yet, there is still a long way to go. We need to continue working on the challenges.

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Careum

Editor's Notes

  1. Jag   ing å r i ett forskningsn ä tverk kallat P2i Care. Inom P2i Care p å g å r utvecklings- och forskningsprojekt som har ett gemensamt m å l - att skapa b ä ttre h ä lsa genom att utveckla och st ö dja m ö tet mellan patienten och den professionella v å rdgivaren. Deltagare i nätverket är personer med skilda kompetenser och erfarenheter.   Mitt arbete inneb ä r bl.a att skapa, utveckla och implementera   nya   "verktyg" f ö r patienter. Detta f ö r att f å b ä ttre v å rdkvalitet   och underl ä tta livet   f ö r m ä nniskor med en kronisk sjukdom. Research Group Leader Staffan Lindblad, MD, Associate Professor Research Group Members Vårddesigner - Carin Andrén (carina.andren@karolinska.se) Reumatolog - Sofia Ernstam (sofia ernstam@ks.se) Media???? - Anna Essén (anna.essen@ki.se) Doktorand sim.- Daniel Glaser (daniel.glaser@ki.se) Jurist mm - Andreas Hager (andreas.hager@chimes.se Doktorand sim - Helena Hvitfeldt-Forsberg (helena.hvitfeldt@ki.se) ??????Christina Keller (christina.keller@hhs.se) Projektkontor????- Elin Lindblad (elin.lindblad@connecta.se) Registret - Inga Lodin (inga.lodin@ks.se) IT Carmona - Gunnar Severin (gunnar@carmona.se) ??????- Leszek Stawiarz (leszek.stawiarz@ki.se)
  2. Ett projekt som jag driver är PER Internettjänst - där patienterna själva registrerar sina värden på en pekskärm eller hemifrån före läkarbesöket Uppgifterna som registreras går direkt in i SRQ ,
  3. Given that the county council is connected to Vårdguiden and the patient is registered personal accounts at ’ Mina vårdkontakter’ at Landstinget måste vara anslutet till Vårdguiden Given that the patient is included in the regsitry and the county council connected to Vårdguiden. www.vardguiden.nu Anslutna landsting Stockholms läns landsting Landstinget Västmanland Västra Götalandsregionen Region Skåne Landstinget Dalarna Landstinget Halland Landstinget i Jönköpings län Landstinget Kronoberg Landstinget i Östergötland Landstinget i Kalmar län Landstinget Gävleborg Landstinget i Uppsala län Landstinget Västernorrland Västerbottens läns landsting Örebro läns landsting 2010-09-20