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Ned - Innovative Technology for Prostate Cancer Patients


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We welcomed Dr. Andrew Feifer for a presentation about Ned, an app designed specifically for prostate cancer patients, as well as a discussion about the incorporation of data driven smart technology in the survivorship of cancer patients.

The webinar was followed by an interactive question & answer session.

Ned was conceptualized and co-founded by our webinar presenter: Dr. Andrew Feifer, a Urologic Surgical Oncologist at Trillium Health Centre in Toronto. Dr. Feifer evisioned a tool that would empower prostate cancer survivors by putting their health into their own hands and giving them more options to manage their own care.

Published in: Health & Medicine
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Ned - Innovative Technology for Prostate Cancer Patients

  1. 1. Innovating in Prostate Cancer Survivorship Care Dr. Andrew Feifer
  2. 2. Innovation: A Crucial Measure of Change in Medicine • What are the desirable features and necessities of innovation? • What major innovation has occurred in prostate cancer? • How do we evaluate and embrace innovation? • What examples can we follow and not follow?
  3. 3. Desirable features in a definition of “surgical innovation” 3 1. Able to be applied easily and consistently in practice 2. Appropriately sensitive to actual uses of the term 3. Comprehensive enough to identify the full range of surgical innovations 4. Able to distinguish: • innovation from variation • innovation from introduction 5. Prospective and focused on features relevant to safety and evaluation » Hutchison et al 2015 Annals of Surgery
  4. 4. Surgeons’ definition of surgical innovation 4 • Interviews with practising surgeons identified the following features that they associated with innovation 1. “Newness” 2. Provides a Degree of change to what we are already doing” 3. Degree of risk 4. Impact on patient care 5. Formal processes • Rogers et al 2014 Annals of Surgery
  5. 5. Innovation distinguishes between a leader and a follower – Steve Jobs (2001) People think focus means saying yes to the thing you've got to focus on. But that's not what it means at all. It means saying no to the hundred other good ideas that there are. You have to pick carefully. I'm actually as proud of the things we haven't done as the things I have done. Innovation is saying no to 1,000 things Innovation distinguishes between a leader and a follower – Steve Jobs (2001) ple think focus means saying yes to the g you've got to focus on. But that's not t it means at all. It means saying no to hundred other good ideas that there
  6. 6. How do we Innovate in Survivoship?
  7. 7. The vision for technologies Precision eHealth
  9. 9. Ned Timeline PMH Launch Trillium Launch Partnership with Scale Ned Winner of Patient & Clinician Interviews Product Defined & Product Development Cancer Care Ontario Strategic Conversations First consumer app to access provincial data assets OLIS & SPARK Partnership
  10. 10. • Is this normal? Is my body healing or healthy? • How long will this last? • I feel like a burden on my family • Are we really in the clear? • I guess some issues can’t be helped The Patient Experience
  11. 11. Ned brings together: • Patient reported outcomes (reported through Ned on a monthly bases) • Lab results (directly from OLIS) Ned shares this information with both patients and their clinicians. Giving patients and clinicians access to the same information in one location provides a cohesive picture of the patient’s well-being and enables shared strategies for improved quality of life.
  12. 12. Patient Interface
  13. 13. Clinician Interface
  14. 14. Patient logs into Ned account Reports sym ptom s m onthly (EPIC-26, FACT- P) Stored and can view trends over tim e Patient views his PSA result Stored and can view trends over tim e Reviews patient sym ptom s (EPIC- 26, FACT-P) Views patient PSA results Releases New PSA results Updates treatm ent plans as necessary Views PSA Kinetics User Workflow
  15. 15. PATIENT Report PROs (EPIC-26, FACT-P) View PROs & View PSA results View relevant prostate cancer inform ation via RSS feed Add personal notes View relevant events View Care Team inform ation CAREGIVER* Report patient PROs View PROs & View PSA results View Care Team inform ation *level of access is determ ined by patient CLINICIAN View PRO alerts (over tim e) View PSA alerts (over tim e) View all patient PSA results Release PSA results to patient through Ned CLINICIAN’S ADMIN ASSISTANT* Add/rem ove patients to Ned *access granted by clinician ORGANIZATION ADMINISTRATOR Modify user account inform ation SYSTEM ADMINISTRATOR Modify user account inform ation Create new users Audit User Types & their Functions
  16. 16. Deployments Ned @ Princess Margaret GU Clinic Ned @ Peel Region Cancer Centre Ned @ Urologist Private Clinic Oct 2017 June 2018 Summer 2018
  17. 17. Current Future Patient Reported Outcomes Provider Interface Patient Self-Enrollment Lab Results Bluetooth Captured Patient Parameters Product Roadmap
  18. 18. What The Ned App is a prostate cancer survivorship tool, once this app is downloaded, it works to support the patient by providing a three-way communication from patient, physician and caregiver, helping to quickly and clearly articulate and to receive, timely patient data (i.e.. PSA, PROs). Why The Ned App fills a void in the prostate cancer patient journey, in that it enables a real-time communication link between physician, patient and potentially, their caregiver. This link will help to reduce waiting and anxiety, all while having a significant impact on patient’s quality of life. The app will work to encourage the patient to engage in their journey and work intercept critical changes along the continuum (i.e.. PSADT, QOL decreases, changes in symptoms). How The Ned App captures the patients PSA and PROs (i.e. EPIC-26, FACT-P) information into the Ned Server (OAUTH 2.0 & FHIR compliant). Presently, Ned utilizes the OLIS (Ontario Laboratories Information System) health information to seamlessly and accurately create an real-time patient profile and communication linkage between patient, physician and caregiver. Progress Determine potential incorporation within Integrated Care Model to support disease progression and enable physician to patient dialogue
  19. 19. Canadian Cancer Survivor Network Contact Info 1750 Courtwood Crescent, Suite 210 Ottawa, ON K2C 2B5 Telephone / Téléphone : 613-898-1871 E-mail: or Website: Twitter: @survivornetca Facebook: Instagram: @survivornet_ca Pinterest: