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JOURNAL CLUB
PRESENTATION ON
BREAKING BAD NEWS
Dr. Samee M Adnan
Phase A Resident (Neurology)
“I would rather feel compassion than know the
meaning of it”
Thomas Aquinas
“If we do it badly, the patients or family members may
never forgive us; if we do it well, they may never
forget us”
Rob Buckman
WHAT IS A BAD NEWS?
Bad news is defined as “Any information which
adversely and seriously affects an individual's view
of his or her future”
Bad news situations can include:
 Disease recurrence,
 Spread of disease, or failure of treatment to affect
disease progression,
 The presence of irreversible side effects, or
 Raising the issue of palliative care and resuscitation
EMOTIONAL RESPONSE TO
A BAD NEWS
Denial
Despair
Anger
Bargaining
Depression
Acceptance
WHY IS IT DIFFICULT?
 It usually means that biomedical measures cannot
help, and thus it undermines the clinician’s familiar
role of the healer.
 The clinician is upset.
 The patient will be upset too, and can respond
unexpectedly.
 The patient may blame the clinician, and indeed
there may be an element of medical mishap to
complicate matters.
SOME OTHER BARRIERS
 Clinician’s long-standing relationship with the
patient.
 The patient is young.
 When strong optimism had been expressed for a
successful outcome.
 Strong emotions such as anxiety, a burden of
responsibility for the news, and fear of negative
evaluation. This stress creates a reluctance to
deliver bad news, which is named as “MUM” effect.
WHO SHOULD BREAK THE
BAD NEWS?
 Ideally, bad news should be imparted by the lead
consultant or senior non-consultant hospital doctor,
who is known to the patient or in whom the patient
has trust.
 In the exceptional circumstances of sudden death a
senior member of the nursing staff may have to
break bad news. Nurses may play a particular role
in relation to breaking bad news in the inpatient
clinical setting.
PATIENT’S RIGHT WITH
REGARD TO BAD NEWS
Patients have a right to:
 Accurate and true information.
 Receive or not receive bad news.
 Decide how much information they want or do not
want.
 Decide who should be present during the
consultation, i.e. family.
 Members including children and/or significant
others.
 Decide who should be informed about their
diagnosis and what information that person(s)
should receive.
HOW DO WE KNOW HOW MUCH A
PATIENT WANTS TO KNOW?
Two ways:
BUCKMAN (Canada)
“If this condition turns out to be something serious are you
the type of person who likes to know exactly what is
going on.”
SANSON-FISHER (Australia)
Explicit catagorisation by direct questions in succession
“If you would like to know, I will tell you…..”
 What the diagnosis is?
 What the treatment will be?
 What sort of symptoms you will have?
 What examination and test will be necessary?
 What can be done for any physical discomfort or pain
you may have?
 What the outcome may be?
TIME FOR BREAKING THE
BAD NEWS
As early as possible in the diagnostic process the
multidisciplinary team should begin to prepare the
patient for the possibility of bad news.
APPROACHES IN BREAKING
BAD NEWS
 There are several strategy for braking bad news are
described in various articles.
 The important protocols are SPIKES, ABCDE &
BREAK.
SPIKES: A SIX STEP
STRATEGY
The protocol (SPIKES) consists of six steps. The goal
is to enable the clinician to fulfill the four most
important objectives of the interview:
 Disclosing bad news,
 Gathering information from the patient,
 Transmitting the medical information providing
support to the patient,
 Eliciting the patient's collaboration in developing a
strategy or treatment plan for the future.
THE SIX STEPS
 Step 1: S—Setting up the interview.
 Step 2: P—Assessing the patient's perception.
 Step 3: I—Obtaining the patient's invitation.
 Step 4: K—Giving knowledge and information to
the patient.
 Step 5: E—Addressing the patient's emotions with
empathic responses.
 Step 6: S—Strategy & summary.
SETTING UP THE INTERVIEW
 Arrange for some privacy.
 Involve significant others.
 Sit down.
 Make connection and
establish rapport with the
patient.
 Manage time constraints
and interruptions.
PERCEPTION OF THE CONDITION
 Determine what the patient knows about the
medical condition or what he suspects. (Before you
tell, ASK)
 Listen to the patient's level of comprehension.
 Accept denial but do not confront at this stage.
 Example:
 “What have you been told about your condition so far?”
 “What is your understanding about why we carried out
the MRI?”
INVITATION BY THE PATIENT
 Ask patient if s/he wishes to know the details of the
medical condition and/or treatment.
 Accept patient's right not to know.
 The patient may chose to involve a family member
or friend
 Offer to answer questions later if s/he wishes.
KNOWLEDGE TO THE PATIENT
 Use language intelligible to patient. Example- use
non technical words such as “spread” rather than
“metastasized”.
 Consider educational level, socio-cultural
background, current emotional state.
 Give information in small chunks.
 Check whether the patient understood what you
said.
 Respond to the patient's reactions as they occur.
 Give any positive aspects first. Example- Cancer
has not spread to lymph nodes, highly responsive
to therapy, treatment available locally etc.
 Give facts accurately about treatment options,
prognosis, costs etc.
EXPLORE EMOTIONS & SYMPATHIZE
 Identify emotions expressed by the patient
(sadness, silence, shock etc.)
 Identify cause/ source of emotion
 Give the patient time to express his or her feelings,
and then respond in a way that demonstrates you
have recognized connection between first two
points.
EXPLORE EMOTIONS &
SYMPATHIZE (CONT.)
 Doctor; “I’m sorry to inform you that the scan shows
that you have not responded to the chemotherapy
(pause), unfortunately the cancer has grown
further”
 Patient: “I’ve been afraid of this” (cries)
 Doctor: (moves his chair closer and offers the
patient a tissue, pauses) “I realise this is news that
you did not want to hear, I am sorry” (allows time for
the patient to respond or allows space for silence).
EXPLORE EMOTIONS &
SYMPATHIZE (CONT.)
Empathic statements:
 I can see how upsetting this is for you
 I can see this news has come as a shock to you
 I understand this must be difficult for you
 I can see this news has left you feeling angry
Exploratory statements:
 You said you were afraid of this news, tell me what frightens
you
 Are you able to share with me the reason you feel so angry
Validating responses:
 I can understand why that may frighten you
 I think your anger is a very normal response to the
circumstances in which you find yourself
STRATEGY & SUMMARY
 Close the interview.
 Ask whether they want to clarify something else.
 Explore patients agenda (ICE),
 Ideas what may help,
 Concerns what is worrying them,
 Expectations what are their hope’s for the future
ABCDE MODEL
 Advance preparation,
 Building a therapeutic setting /relationship,
 Communicate well,
 Deal with patient and family responses,
 Encourage and authenticate feelings
ADVANCE PREPARATION
 What the patient already know/understand already.
 Arrange for the presence of a support person and
appropriate family.
 Arrange a time and place to be undisturbed.
 Prepare yourself emotionally.
 Decide on which words and phrases to use—write a
script.
BUILD A THERAPEUTIC
ENVIRONMENT
 Arrange a private, quiet place without interruptions
 Provide adequate seating for all
 Sit close enough to touch if appropriate
 Reassure about pain, suffering, abandonment.
COMMIUNICATE WELL
 Be direct - "I am sorry that I have bad news for you.”
 Do not use euphemisms, jargon, acronyms.
 Use the words – "Cancer," "AIDS," "Death" as
appropriate.
 Allow for silence.
 Use touch appropriately.
DEAL WITH PATIENT & FAMILY
REACTIONS
 Assess patient’s reaction: physiologic responses,
cognitive coping strategies, affective responses.
 Listen actively, explore, have empathy.
ENCOURAGE & VALIDATE
EMOTIONS
 Address further needs: What are the patient's
immediate and near term plans?
 Make appropriate referrals for more support.
 Explore what the news means to the patient.
 Express your own feelings.
BREAK MODEL
 B-Background,
 R-Rapport,
 E-Explore,
 A-Announce;
 K-Kindling
BACKGROUND
 An effective therapeutic communication is
dependent on the in-depth knowledge of the
patient's problem. The accessibility of electronic
media has given ample scope for obtaining enough
data on any issue, though authenticity is
questionable.
 It is highly desirable to prepare answers for all
questions that can be anticipated from the patient.
The physician must be aware of the patient/relative
who comes after “googling” the problem
RAPPORT
 Building rapport is fundamental to continuous
professional relationship.
 The physician should establish a good rapport with the
patient. He needs to have an unconditional positive
regard, but has to stay away from the temptation of
developing a patronizing attitude.
 The ease with which the rapport is being built is the
key to continue conversation.
EXPLORING
 Whenever attempting to break the bad news, it is easier for
the physician to start from what the patient knows about
his/her illness.
 Most of the patients will be aware of the seriousness of the
condition, and some may even know their diagnosis. The
physician is then in a position of confirming bad news
rather than breaking it.
 The history, the investigations, the difficulties met in the
process etc need to be explored.
 What he/she thinks about the disease and even the
diagnosis itself can be explored, and the potential conflicts
between the patient's beliefs and possible diagnosis can
be identified.
ANNOUNCE
 A warning shot is desirable, so that the news will
not explode like a bomb.
 Euphemisms are welcome, but they should not
create confusion.
 The patient has the right to know the diagnosis, at
the same time he has the right to refrain from
knowing it.
 Hence, announcement of diagnosis has to be made
after getting consent.
KINDLING
 People listen to their diagnosis differently.
 They may break down in tears. Some may remain
completely silent, some of them try to get up and
pace round the room. Sometimes the response will
be a denial of reality, as it protects the ego from a
potential shatter.
 Whatever their reactions may be, the doctor has to
give him time to settle & respond positively.
DO’S IN BREAKING BAD NEWS
 Allow for silence, tears and other patient reactions.
 Allow time.
 Be sensitive to the non-verbal language.
 Document and liaise with the multidisciplinary team.
 Ensure honest and simple language is used.
 Ensure privacy and confidentiality and respect both.
 Gauge the need for information on an individual basis.
 Let the patient talk.
 Listen to what the patient says.
DON’TS IN BREAKING BAD
NEWS
 Assume that you know what is concerning the
patient.
 Criticise or make judgements.
 Distort the truth
 Feel obliged to keep talking all the time.
 Give false reassurance.
 Overload with information.
 Withhold information.
DOCUMENTATION OF
BREAKING BAD NEWS
 It is important that accurate records are maintained
of the conversation and the information and details
exchanged.
 These will assist in the future care of the patient
and enhance communication within the
multidisciplinary team including the patient's
General Practitioner.
 This record should be documented in the patient's
notes. The specific words used to describe the
disease should be recorded, for example, tumour,
growth or malignant disease.
DOCUMENTATION OF BREAKING
BAD NEWS (CONT.)
The record should min include :
 Patients Name/Address:
 Hospital Name:
 Date and time of interview:
 Location: Ward /Outpatients
 Names of those present:
 Name:
 Position/Relationship:
 Clinical Diagnosis:
 Clinical Options for future management and immediate plan
discussed:
 Detail of the words used when breaking the bad news:
 Sign of auth physician / social worker / MO
CONCLUSION
 Breaking bad news is part of the art of medicine.
 A bad news is always a bad news, however well it
is said.
 But the manner in which it is conveyed can have a
profound effect on both the recipient (the patient)
and the giver (the physician).
 If done badly, it will hamper the well being of
patient, impair the quality of life and future contact
with the health care professional will be thwarted.
 It is a skill that has to be learnt by the physicians
and other caregivers.
breaking bad news

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breaking bad news

  • 1. JOURNAL CLUB PRESENTATION ON BREAKING BAD NEWS Dr. Samee M Adnan Phase A Resident (Neurology)
  • 2. “I would rather feel compassion than know the meaning of it” Thomas Aquinas “If we do it badly, the patients or family members may never forgive us; if we do it well, they may never forget us” Rob Buckman
  • 3. WHAT IS A BAD NEWS? Bad news is defined as “Any information which adversely and seriously affects an individual's view of his or her future” Bad news situations can include:  Disease recurrence,  Spread of disease, or failure of treatment to affect disease progression,  The presence of irreversible side effects, or  Raising the issue of palliative care and resuscitation
  • 4. EMOTIONAL RESPONSE TO A BAD NEWS Denial Despair Anger Bargaining Depression Acceptance
  • 5. WHY IS IT DIFFICULT?  It usually means that biomedical measures cannot help, and thus it undermines the clinician’s familiar role of the healer.  The clinician is upset.  The patient will be upset too, and can respond unexpectedly.  The patient may blame the clinician, and indeed there may be an element of medical mishap to complicate matters.
  • 6. SOME OTHER BARRIERS  Clinician’s long-standing relationship with the patient.  The patient is young.  When strong optimism had been expressed for a successful outcome.  Strong emotions such as anxiety, a burden of responsibility for the news, and fear of negative evaluation. This stress creates a reluctance to deliver bad news, which is named as “MUM” effect.
  • 7. WHO SHOULD BREAK THE BAD NEWS?  Ideally, bad news should be imparted by the lead consultant or senior non-consultant hospital doctor, who is known to the patient or in whom the patient has trust.  In the exceptional circumstances of sudden death a senior member of the nursing staff may have to break bad news. Nurses may play a particular role in relation to breaking bad news in the inpatient clinical setting.
  • 8. PATIENT’S RIGHT WITH REGARD TO BAD NEWS Patients have a right to:  Accurate and true information.  Receive or not receive bad news.  Decide how much information they want or do not want.  Decide who should be present during the consultation, i.e. family.  Members including children and/or significant others.  Decide who should be informed about their diagnosis and what information that person(s) should receive.
  • 9. HOW DO WE KNOW HOW MUCH A PATIENT WANTS TO KNOW? Two ways: BUCKMAN (Canada) “If this condition turns out to be something serious are you the type of person who likes to know exactly what is going on.” SANSON-FISHER (Australia) Explicit catagorisation by direct questions in succession “If you would like to know, I will tell you…..”  What the diagnosis is?  What the treatment will be?  What sort of symptoms you will have?  What examination and test will be necessary?  What can be done for any physical discomfort or pain you may have?  What the outcome may be?
  • 10. TIME FOR BREAKING THE BAD NEWS As early as possible in the diagnostic process the multidisciplinary team should begin to prepare the patient for the possibility of bad news.
  • 11. APPROACHES IN BREAKING BAD NEWS  There are several strategy for braking bad news are described in various articles.  The important protocols are SPIKES, ABCDE & BREAK.
  • 12. SPIKES: A SIX STEP STRATEGY The protocol (SPIKES) consists of six steps. The goal is to enable the clinician to fulfill the four most important objectives of the interview:  Disclosing bad news,  Gathering information from the patient,  Transmitting the medical information providing support to the patient,  Eliciting the patient's collaboration in developing a strategy or treatment plan for the future.
  • 13. THE SIX STEPS  Step 1: S—Setting up the interview.  Step 2: P—Assessing the patient's perception.  Step 3: I—Obtaining the patient's invitation.  Step 4: K—Giving knowledge and information to the patient.  Step 5: E—Addressing the patient's emotions with empathic responses.  Step 6: S—Strategy & summary.
  • 14. SETTING UP THE INTERVIEW  Arrange for some privacy.  Involve significant others.  Sit down.  Make connection and establish rapport with the patient.  Manage time constraints and interruptions.
  • 15. PERCEPTION OF THE CONDITION  Determine what the patient knows about the medical condition or what he suspects. (Before you tell, ASK)  Listen to the patient's level of comprehension.  Accept denial but do not confront at this stage.  Example:  “What have you been told about your condition so far?”  “What is your understanding about why we carried out the MRI?”
  • 16. INVITATION BY THE PATIENT  Ask patient if s/he wishes to know the details of the medical condition and/or treatment.  Accept patient's right not to know.  The patient may chose to involve a family member or friend  Offer to answer questions later if s/he wishes.
  • 17. KNOWLEDGE TO THE PATIENT  Use language intelligible to patient. Example- use non technical words such as “spread” rather than “metastasized”.  Consider educational level, socio-cultural background, current emotional state.  Give information in small chunks.  Check whether the patient understood what you said.  Respond to the patient's reactions as they occur.  Give any positive aspects first. Example- Cancer has not spread to lymph nodes, highly responsive to therapy, treatment available locally etc.  Give facts accurately about treatment options, prognosis, costs etc.
  • 18. EXPLORE EMOTIONS & SYMPATHIZE  Identify emotions expressed by the patient (sadness, silence, shock etc.)  Identify cause/ source of emotion  Give the patient time to express his or her feelings, and then respond in a way that demonstrates you have recognized connection between first two points.
  • 19. EXPLORE EMOTIONS & SYMPATHIZE (CONT.)  Doctor; “I’m sorry to inform you that the scan shows that you have not responded to the chemotherapy (pause), unfortunately the cancer has grown further”  Patient: “I’ve been afraid of this” (cries)  Doctor: (moves his chair closer and offers the patient a tissue, pauses) “I realise this is news that you did not want to hear, I am sorry” (allows time for the patient to respond or allows space for silence).
  • 20. EXPLORE EMOTIONS & SYMPATHIZE (CONT.) Empathic statements:  I can see how upsetting this is for you  I can see this news has come as a shock to you  I understand this must be difficult for you  I can see this news has left you feeling angry Exploratory statements:  You said you were afraid of this news, tell me what frightens you  Are you able to share with me the reason you feel so angry Validating responses:  I can understand why that may frighten you  I think your anger is a very normal response to the circumstances in which you find yourself
  • 21. STRATEGY & SUMMARY  Close the interview.  Ask whether they want to clarify something else.  Explore patients agenda (ICE),  Ideas what may help,  Concerns what is worrying them,  Expectations what are their hope’s for the future
  • 22. ABCDE MODEL  Advance preparation,  Building a therapeutic setting /relationship,  Communicate well,  Deal with patient and family responses,  Encourage and authenticate feelings
  • 23. ADVANCE PREPARATION  What the patient already know/understand already.  Arrange for the presence of a support person and appropriate family.  Arrange a time and place to be undisturbed.  Prepare yourself emotionally.  Decide on which words and phrases to use—write a script.
  • 24. BUILD A THERAPEUTIC ENVIRONMENT  Arrange a private, quiet place without interruptions  Provide adequate seating for all  Sit close enough to touch if appropriate  Reassure about pain, suffering, abandonment.
  • 25. COMMIUNICATE WELL  Be direct - "I am sorry that I have bad news for you.”  Do not use euphemisms, jargon, acronyms.  Use the words – "Cancer," "AIDS," "Death" as appropriate.  Allow for silence.  Use touch appropriately.
  • 26. DEAL WITH PATIENT & FAMILY REACTIONS  Assess patient’s reaction: physiologic responses, cognitive coping strategies, affective responses.  Listen actively, explore, have empathy.
  • 27. ENCOURAGE & VALIDATE EMOTIONS  Address further needs: What are the patient's immediate and near term plans?  Make appropriate referrals for more support.  Explore what the news means to the patient.  Express your own feelings.
  • 28. BREAK MODEL  B-Background,  R-Rapport,  E-Explore,  A-Announce;  K-Kindling
  • 29. BACKGROUND  An effective therapeutic communication is dependent on the in-depth knowledge of the patient's problem. The accessibility of electronic media has given ample scope for obtaining enough data on any issue, though authenticity is questionable.  It is highly desirable to prepare answers for all questions that can be anticipated from the patient. The physician must be aware of the patient/relative who comes after “googling” the problem
  • 30. RAPPORT  Building rapport is fundamental to continuous professional relationship.  The physician should establish a good rapport with the patient. He needs to have an unconditional positive regard, but has to stay away from the temptation of developing a patronizing attitude.  The ease with which the rapport is being built is the key to continue conversation.
  • 31. EXPLORING  Whenever attempting to break the bad news, it is easier for the physician to start from what the patient knows about his/her illness.  Most of the patients will be aware of the seriousness of the condition, and some may even know their diagnosis. The physician is then in a position of confirming bad news rather than breaking it.  The history, the investigations, the difficulties met in the process etc need to be explored.  What he/she thinks about the disease and even the diagnosis itself can be explored, and the potential conflicts between the patient's beliefs and possible diagnosis can be identified.
  • 32. ANNOUNCE  A warning shot is desirable, so that the news will not explode like a bomb.  Euphemisms are welcome, but they should not create confusion.  The patient has the right to know the diagnosis, at the same time he has the right to refrain from knowing it.  Hence, announcement of diagnosis has to be made after getting consent.
  • 33. KINDLING  People listen to their diagnosis differently.  They may break down in tears. Some may remain completely silent, some of them try to get up and pace round the room. Sometimes the response will be a denial of reality, as it protects the ego from a potential shatter.  Whatever their reactions may be, the doctor has to give him time to settle & respond positively.
  • 34. DO’S IN BREAKING BAD NEWS  Allow for silence, tears and other patient reactions.  Allow time.  Be sensitive to the non-verbal language.  Document and liaise with the multidisciplinary team.  Ensure honest and simple language is used.  Ensure privacy and confidentiality and respect both.  Gauge the need for information on an individual basis.  Let the patient talk.  Listen to what the patient says.
  • 35. DON’TS IN BREAKING BAD NEWS  Assume that you know what is concerning the patient.  Criticise or make judgements.  Distort the truth  Feel obliged to keep talking all the time.  Give false reassurance.  Overload with information.  Withhold information.
  • 36. DOCUMENTATION OF BREAKING BAD NEWS  It is important that accurate records are maintained of the conversation and the information and details exchanged.  These will assist in the future care of the patient and enhance communication within the multidisciplinary team including the patient's General Practitioner.  This record should be documented in the patient's notes. The specific words used to describe the disease should be recorded, for example, tumour, growth or malignant disease.
  • 37. DOCUMENTATION OF BREAKING BAD NEWS (CONT.) The record should min include :  Patients Name/Address:  Hospital Name:  Date and time of interview:  Location: Ward /Outpatients  Names of those present:  Name:  Position/Relationship:  Clinical Diagnosis:  Clinical Options for future management and immediate plan discussed:  Detail of the words used when breaking the bad news:  Sign of auth physician / social worker / MO
  • 38. CONCLUSION  Breaking bad news is part of the art of medicine.  A bad news is always a bad news, however well it is said.  But the manner in which it is conveyed can have a profound effect on both the recipient (the patient) and the giver (the physician).  If done badly, it will hamper the well being of patient, impair the quality of life and future contact with the health care professional will be thwarted.  It is a skill that has to be learnt by the physicians and other caregivers.