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Apple - ResearchKit
HealthKit
Healthkit provides a single platform where applications can
contribute to a composite profile of different health and
activity data. Data can be gathered by using iPhone’s
motion sensors, accelerometers, gyroscopes, microphones
or even the touch screen. There are other third party
devices like blood sugar meters, weight machines, heart
rate monitors, blood oxygen level monitors etc. that can be
connected to the iPhone via various methods to provide
data to health app. This data is very helpful to the
individuals, doctors and researchers.
ResearchKit
ResearchKit is an open source framework introduced by
Apple that allows researchers and developers to create
powerful apps for medical research
Our focus for this article is to present an overview on
how apple’s health kit is being used in medical research-
the ResearchKit. Research kit is a framework tailored
towards medical research. Using ResearchKit,
researchers can create app easily. ResearchKit works
with iPhone, Healthkit and third party apps or devices to
turn itself in powerful diagnostic tool.
Apps
ResearchKit
The basic principle for these apps can be divided into
three modules-
1. Surveys
2. Informed Consent
3. Active Tasks
mPower App
The variability in Parkinson’s disease
symptoms has left many questions
unanswered. So the University of Rochester
and Sage Bionetworks created the mPower app
to precisely measure data such as dexterity,
balance, memory, and gait. This information
could help researchers better understand how
various symptoms are connected to
Parkinson’s disease. In turn, participants could
start to recognize their own signs and
symptoms.
mPower App
mPower App
Who will host the data?
According to Fortune-
Apple is acting only as a conduit for the iPhone data to get to
researchers. For now, universities that build apps on the ResearchKit
platform will host their own data. However, it’s possible that the data
might eventually end up on government servers, especially if the
National Institutes of Health deems it essential to the public good, said
Ramirez. Meanwhile, health data from private companies often is
hosted on the companies’ own servers if they are large, or Amazon’s
AMZN -0.83% cloud if the companies are small.
src-http://fortune.com/2015/03/15/apples-researchkit-is-a-big-hit-at-
sxsw/
Who will have access to data?
This study gives you the option to share your data in 2 ways:
1- Share broadly with the research world: You can choose to share your coded study data with qualified researchers worldwide for
use in this research and beyond. Coded study data is data that does not include personal information such as your name or email.
Qualified researchers are registered users of Synapse who have agreed to use the data in an ethical manner for research purposes,
and have agreed to not attempt to re-identify you. If you choose to share your coded study data, the coded data will be added to a
shared dataset available to qualified researchers on the Sage Bionetworks Synapse servers. (www.synapse.org). Sage Bionetworks
will have no oversight on the future research that qualified researchers may conduct with the coded study data.
2- Share with Sage Bionetworks and its partners only: You can choose to share your study data only with the study team and its
partners. The study team includes the sponsor of the research and any other researchers or partners named in the consent
document. Sharing your data only with Sage Bionetworks means that your data will not be made available to anyone other than those
listed in the consent document and for the purposes of this study only.
If required by law, your data (study data and account information), and the signed consent form may be disclosed to:
• The US National Institute of health, Department of Health and Human Services agencies, Office for Human Research
Protection, and other agencies as required,
• Institutional Review Board who monitors the safety, effectiveness and conduct of the research being conducted,
• Others, if the law requires
The results of this research study may be presented at meetings or in publications. If the results of this study are made public, only
coded study data will be used, that is, your personal information will not be disclosed.
You can change the data sharing setting through the app’s preferences at any time. For additional information review the study
website parkinsonmpower.org
Development Resources

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Apple ResearchKit

  • 2. HealthKit Healthkit provides a single platform where applications can contribute to a composite profile of different health and activity data. Data can be gathered by using iPhone’s motion sensors, accelerometers, gyroscopes, microphones or even the touch screen. There are other third party devices like blood sugar meters, weight machines, heart rate monitors, blood oxygen level monitors etc. that can be connected to the iPhone via various methods to provide data to health app. This data is very helpful to the individuals, doctors and researchers.
  • 3. ResearchKit ResearchKit is an open source framework introduced by Apple that allows researchers and developers to create powerful apps for medical research Our focus for this article is to present an overview on how apple’s health kit is being used in medical research- the ResearchKit. Research kit is a framework tailored towards medical research. Using ResearchKit, researchers can create app easily. ResearchKit works with iPhone, Healthkit and third party apps or devices to turn itself in powerful diagnostic tool.
  • 5. ResearchKit The basic principle for these apps can be divided into three modules- 1. Surveys 2. Informed Consent 3. Active Tasks
  • 6. mPower App The variability in Parkinson’s disease symptoms has left many questions unanswered. So the University of Rochester and Sage Bionetworks created the mPower app to precisely measure data such as dexterity, balance, memory, and gait. This information could help researchers better understand how various symptoms are connected to Parkinson’s disease. In turn, participants could start to recognize their own signs and symptoms.
  • 9. Who will host the data? According to Fortune- Apple is acting only as a conduit for the iPhone data to get to researchers. For now, universities that build apps on the ResearchKit platform will host their own data. However, it’s possible that the data might eventually end up on government servers, especially if the National Institutes of Health deems it essential to the public good, said Ramirez. Meanwhile, health data from private companies often is hosted on the companies’ own servers if they are large, or Amazon’s AMZN -0.83% cloud if the companies are small. src-http://fortune.com/2015/03/15/apples-researchkit-is-a-big-hit-at- sxsw/
  • 10. Who will have access to data? This study gives you the option to share your data in 2 ways: 1- Share broadly with the research world: You can choose to share your coded study data with qualified researchers worldwide for use in this research and beyond. Coded study data is data that does not include personal information such as your name or email. Qualified researchers are registered users of Synapse who have agreed to use the data in an ethical manner for research purposes, and have agreed to not attempt to re-identify you. If you choose to share your coded study data, the coded data will be added to a shared dataset available to qualified researchers on the Sage Bionetworks Synapse servers. (www.synapse.org). Sage Bionetworks will have no oversight on the future research that qualified researchers may conduct with the coded study data. 2- Share with Sage Bionetworks and its partners only: You can choose to share your study data only with the study team and its partners. The study team includes the sponsor of the research and any other researchers or partners named in the consent document. Sharing your data only with Sage Bionetworks means that your data will not be made available to anyone other than those listed in the consent document and for the purposes of this study only. If required by law, your data (study data and account information), and the signed consent form may be disclosed to: • The US National Institute of health, Department of Health and Human Services agencies, Office for Human Research Protection, and other agencies as required, • Institutional Review Board who monitors the safety, effectiveness and conduct of the research being conducted, • Others, if the law requires The results of this research study may be presented at meetings or in publications. If the results of this study are made public, only coded study data will be used, that is, your personal information will not be disclosed. You can change the data sharing setting through the app’s preferences at any time. For additional information review the study website parkinsonmpower.org