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Stigma, sex work and non-disclosure to health care
providers: Exploring dynamics of anal sex through
community led monitoring to bridge gaps in HIV care
continuum services
Dr Harjyot Khosa
Asia Pacific Conference on Reproductive and Sexual
Health and Rights (APCRSHR10)
Community score card
Community score card is an approach to increase the engagement of the community
in improving HIV service delivery.
Local Problems – Local Solutions
Build capacity of community on awareness creation, demand generation, advocacy,
service delivery, process of monitoring and accountability, facilitate implementation,
planning and decision-making, management of services, peer learning and teaching.
One of the recommendations of mid-term appraisal of NACP-IV was to strengthen the
community feedback mechanism. Community scorecard is an approach to receive
systematic feedback from the community and service providers. This is to increase the
engagement of the community in improving the quality of HIV service delivery.
Using the Community Score Card as tool to interface KPs, TI
programme and Health Care Services
• A community score card is developed
among KP, TI and Service Provider
• Participatory in nature and process,
scoring is developed on a range of
issues from attitudes to actual delivery
of services
• Scores are mutually agreed upon, how
to get better scores in futures paves the
way to develop a plan
• Empowering process for both KP
communities and service providers
• Sustainable mechanism to monitor
and record change in quality and
efficiency of services over a period of
time
Key features
• The community score card has a set of seven core indicators and sub-indicators.
• The community and health care providers conducts the scoring separately and
individual group arrive at a consensus score
• An interface meeting between the community and the HCPs is conducted where the
scores provided by the HCPs and the community is reviewed. An action plan is
developed with concrete action steps for improving the service delivery, based on
the discussions.
• This exercise is repeated on a quarterly basis, to review the progress on action
taken and develop the action plan for the next quarter.
• Community score card will be implemented by DAPCU, SACS/TSU PO and
facilitated by TI Project Manager.
• SACS will have the overall responsibility to monitor the implementation of community
scorecard system.
Revamped and Revised Elements of Targeted Intervention for, HIV Prevention
and Care Continuum among Core Population
The Framework
6
KP experience
Poor / Absent Service/
Denial
Consolidate collective
community
experience into a
score card
Share Score Card
with Providers
Action Plan for improved
service delivery – provider
and community
responsibilities outlined
New Experience of
service delivery
Consolidate New
collective community
experience into a new
score card
Interface meeting
The interface meeting brings together both community members and
service providers (facility staff) to discuss the results of the scorecards.
During this facilitated discussion a mutually agreed reform agenda and
action plan is developed.
KP community
Score card
Health input
tracking form
Interface
Meeting
Review the Action Plan
Completed By:
Facility Staff (providers)
&
KP Community Members
Implementation experience: 72 score cards were developed engaging 1526 KPs and 466
Service providers, Nirantar, CDC/ PEPFAR
Advocacy Tracker
 STI issues are seldom discussed
No one EXAMINED ANAL STIs
 CD4 testing machine is there but the testing is not done regularly
 No IEC material available for KPs on HIV/AIDS – prevention or treatment
 Lubes are not available in TIs
 Lack of awareness about HIV bill
 Separate room is not available for counseling
 KPs are made to wait longer than others
169 issues out of 230
resolved till date!
Head of hospital, health care
providers, TI functionaries and
communities developed and
resolved action points during
the INTERFACE MEETINGS!
Challenges
At the Programme/ Macro level
• Health system involvement
• Time bound programme
• Both parties believe in the developmental nature of the process, otherwise
it can become an opportunity for preparing a list of complaints or a
confrontation, or tokenism
• Jointly accepted set of parameters for monitoring –Quality of Care
standards, treatment protocols, programme guidelines
At the Implementation /Micro level
• Orientation and capacity building of targeted intervention team.
• Programme flexibility to incorporate new suggestions
• Get providers ready to listen – not dismiss
• Manage community relationship with providers – avoid ‘blaming’
• Follow up
HCP are the frontline to service delivery to women who have sex, however
are yet not prepared socially and have internal moral conflicts to treat
anal STIs. Considering that community monitoring is imperative to
broaden HIV service reach, engaging KPs to facilitate better health,
improve access to health care and overcome stigma, discrimination.
Thank you!

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APCRSHR10 Virtual abstract presentation of Dr Harjyot Khosa

  • 1. Stigma, sex work and non-disclosure to health care providers: Exploring dynamics of anal sex through community led monitoring to bridge gaps in HIV care continuum services Dr Harjyot Khosa Asia Pacific Conference on Reproductive and Sexual Health and Rights (APCRSHR10)
  • 2. Community score card Community score card is an approach to increase the engagement of the community in improving HIV service delivery. Local Problems – Local Solutions Build capacity of community on awareness creation, demand generation, advocacy, service delivery, process of monitoring and accountability, facilitate implementation, planning and decision-making, management of services, peer learning and teaching. One of the recommendations of mid-term appraisal of NACP-IV was to strengthen the community feedback mechanism. Community scorecard is an approach to receive systematic feedback from the community and service providers. This is to increase the engagement of the community in improving the quality of HIV service delivery.
  • 3. Using the Community Score Card as tool to interface KPs, TI programme and Health Care Services • A community score card is developed among KP, TI and Service Provider • Participatory in nature and process, scoring is developed on a range of issues from attitudes to actual delivery of services • Scores are mutually agreed upon, how to get better scores in futures paves the way to develop a plan • Empowering process for both KP communities and service providers • Sustainable mechanism to monitor and record change in quality and efficiency of services over a period of time
  • 4. Key features • The community score card has a set of seven core indicators and sub-indicators. • The community and health care providers conducts the scoring separately and individual group arrive at a consensus score • An interface meeting between the community and the HCPs is conducted where the scores provided by the HCPs and the community is reviewed. An action plan is developed with concrete action steps for improving the service delivery, based on the discussions. • This exercise is repeated on a quarterly basis, to review the progress on action taken and develop the action plan for the next quarter. • Community score card will be implemented by DAPCU, SACS/TSU PO and facilitated by TI Project Manager. • SACS will have the overall responsibility to monitor the implementation of community scorecard system. Revamped and Revised Elements of Targeted Intervention for, HIV Prevention and Care Continuum among Core Population
  • 6. 6 KP experience Poor / Absent Service/ Denial Consolidate collective community experience into a score card Share Score Card with Providers Action Plan for improved service delivery – provider and community responsibilities outlined New Experience of service delivery Consolidate New collective community experience into a new score card
  • 7. Interface meeting The interface meeting brings together both community members and service providers (facility staff) to discuss the results of the scorecards. During this facilitated discussion a mutually agreed reform agenda and action plan is developed. KP community Score card Health input tracking form Interface Meeting Review the Action Plan Completed By: Facility Staff (providers) & KP Community Members
  • 8. Implementation experience: 72 score cards were developed engaging 1526 KPs and 466 Service providers, Nirantar, CDC/ PEPFAR
  • 9. Advocacy Tracker  STI issues are seldom discussed No one EXAMINED ANAL STIs  CD4 testing machine is there but the testing is not done regularly  No IEC material available for KPs on HIV/AIDS – prevention or treatment  Lubes are not available in TIs  Lack of awareness about HIV bill  Separate room is not available for counseling  KPs are made to wait longer than others 169 issues out of 230 resolved till date! Head of hospital, health care providers, TI functionaries and communities developed and resolved action points during the INTERFACE MEETINGS!
  • 10. Challenges At the Programme/ Macro level • Health system involvement • Time bound programme • Both parties believe in the developmental nature of the process, otherwise it can become an opportunity for preparing a list of complaints or a confrontation, or tokenism • Jointly accepted set of parameters for monitoring –Quality of Care standards, treatment protocols, programme guidelines At the Implementation /Micro level • Orientation and capacity building of targeted intervention team. • Programme flexibility to incorporate new suggestions • Get providers ready to listen – not dismiss • Manage community relationship with providers – avoid ‘blaming’ • Follow up
  • 11. HCP are the frontline to service delivery to women who have sex, however are yet not prepared socially and have internal moral conflicts to treat anal STIs. Considering that community monitoring is imperative to broaden HIV service reach, engaging KPs to facilitate better health, improve access to health care and overcome stigma, discrimination.