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PATIENTSASPARTNERS
Patients as Subjects
Pharma
Trial DatabasesTrial Databases
Patient
Investigator
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Investigator
?
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Investigator
Peer communication
before, during,
and after clinical trial
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Investigator
Individual trial data and
human-readable
summaries
Peer communication
before, during,
and after clinical trial
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Investigator Primary care
physician
Data
sharing
Data
sharing
Individual trial data and
human-readable
summaries
Peer communication
before, during,
and after clinical trial
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Investigator Primary care
physician
Data
sharing
Data
sharing
Individual trial data and
human-readable
summaries
Peer communication
before, during,
and after clinical trial
PATIENTSASPARTNERS
Patients as Partners
Pharma
Trial DatabasesTrial Databases
Patient
Researchers
Investigator Primary care
physician
Data donation

(de-identified)
Data
sharing
Integration of

patient-reported
outcomes
Data
sharing
Patient is
the sole owner
of his/her data
Individual trial data and
human-readable
summaries
Peer communication
before, during,
and after clinical trial

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