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Developing Positive Policy
       Proposals

  March 2011 Webinar
1.   The historical context
2.   Cuts & the challenge
     today
3.   Positive policy
     alternatives
1. Our History...

Moving beyond the institutional
walls and building community...
There is a long history of
confused policy on
disability and old age...


• Benefit or services?
• Local or central?
• Personalised or
  institutional?

But there has been
progress...
There is a long history of resistance and
innovation by disabled people and their
allies
‘Personalisation’ is just another name for the long-
term effort to restore citizenship to the many who
lose it through prejudice and institutional responses




‘The technologies of personalisation’ include:
supported employment, supported living, self-
advocacy, citizen advocacy, individual budgets,
person-centred planning, direct payments, self help,
centres for independent living and many more...
Six Keys to Citizenship from Keys to Citizenship by Simon Duffy
Real Wealth from A Fair Start by Pippa Murray
Personalised Transition from Personalised Transition by Alison Cowen
I want patients to have far more control over the care they get. So
people with long term conditions get to be part of designing the care
they need. Choosing what suits them - and making it work. For
mental health patients. For pensioners in need of care. For people
with disabilities. It works.
A couple of weeks ago in Sheffield, I met a wonderful woman called
Katrina. She's got three disabled sons. The oldest is Jonathan, a
charming, warm hearted young man of 19. He can't walk or talk
clearly, or feed himself alone. He's had a breathing tube in his neck
since he was a toddler. Under a scheme the new Liberal Democrat
council in Sheffield is extending, Jonathan's just got his own
individual budget and care plan.
Now he's doing work with a local charity, attending a music group,
has his own personal assistant. A child whose potential seemed so
limited. Finally as a young man, engaged in life in a way he and his
mother never thought possible. Katrina told me with the biggest
smile I've ever seen. She said: We've gone from having nothing to
having everything. I wish every child's needs would be taken this
seriously.
All this enthusiasm and rhetoric,
   but...
• Virtual budgets used to maintain status quo
• Individual budgets bureaucratised and
   controlled
• Rationing becoming more obscure, entitlements
   weaker
• Commissioners limit choice and market
   development
• Advocacy and legal aid slashed
  Personalisation is struggling to
   survive
Reform has always been met with resistance - and that
resistance takes different forms at different stages...


Personalisation will not move forward unless we tackle
the deeper systemic blocks of power, money and
legislation that undermine it.
2. The Unfair Cuts...

what do they mean for disabled
people and other vulnerable
groups?
An economic crisis caused by the
bursting of a bubble created by...

• Bankers who benefited from bonuses
• Home owners who benefited from unsustainable
   house price increases
• Investors who benefited from unsustainable
   profits in finance industry
• Politicians who benefited from the illusion of a
   booming economy

Who did not benefit from the bubble?
- the poor and disabled people
But where will the cuts fall?

Part 1 - on Local Government services
Local government will face (excluding police and
fire) a cut in funding of 28% from £28.5 to £22.9
billion - in real terms. However approximately £21
billion of local government expenditure is on social
care services (for children and adults). By 2014 - in
order to deliver these cuts - local government will
be forced to:
• Cut £5.9 billion from social care
• Reduce eligibility - 250,000 people will lose vital
  supports
Where will the cuts fall?

Part 2 - on benefits, income and
housing
The multiple benefit reforms and the creation of a
system of Universal Credit mean final impact is
uncertain in many areas. However government strategy
is to:
• protect and strengthen pensions
• invest more in back to work programmes to reduce
  the tax burden on those on the verge of work
• reduce the overall cost of benefits
The only way of squaring this circle is to reduce
spending on disabled people, families and carers.
Benefit                                      (£ billions)                             10/11 (mn)               pc pa
Retirement Pension                            £72.392         protected              12,509,000              £5,787
Tax Credits                                   £24.000         protected               7,200,000              £3,333
Housing Benefit                                £21.519         vulnerable              4,750,000              £4,530
Disability Living Allowance                   £12.467         vulnerable              3,214,000              £3,879
Attendance Allowance                           £5.436         vulnerable              1,635,000              £3,325
Child Benefit                                  £11.000         questionabl             7,200,000              £1,528
                                                              e
Income Support                                 £5.763         vulnerable              1,746,000              £3,301
Pension Credit                                 £7.673         vulnerable              2,664,000              £2,880
Council tax benefits                            £4.085         vulnerable              5,794,000               £705
Jobseeker’s Allowance                          £4.841         questionabl             1,402,000              £3,453
                                                              e
Carer’s Allowance                              £1.000         vulnerable                566,000              £1,767
Employment Support                             £6.869         questionabl             2,469,000              £2,782
                                                              e
Allowance + IB
Independent Living Fund                        £0.200         terminated                 21,000              £9,524
TOTAL                                        £177.245

              2010-11 Figures from DWP for major benefits - child benefit and tax credits from other sources
Examples of cuts already lined up
include:

• a change in indexation of uprating benefits from the
  higher Retail Price Index (RPI) or Rossi to the lower
  Consumer Price Index (CPI), said to save £6 billion a
  year by 2015
• the reassessment of claimants of Disability Living
  Allowance (DLA) to drive a 20 per cent reduction in
  costs [c. £2.4 billion]
• and the reassessment of Incapacity Benefit (IB)
  claimants to move more onto JSA – a plan first
  proposed by the previous government and intended
  to save £1.5 billion, and which the current
  government believes will see 23 per cent of IB
  claimants moved to JSA
This is a pincer attack on the rights of disabled
people. If we just focus on the 1.5 million people
with the most significant disabilities - they will lose:
• £5.88 billion in social care support
• £1 billion in disability living allowance
• Termination of ILF
• Cuts to Supporting People
• Many further cuts in housing support and other
  benefits
So, more than £7 billion of the total £27 billion
(>25%) which government is saving from
departmental budgets is being born by less than 3%
of the population - those who are least able to bear
This is an
unprecedented
attack on the
rights of disabled
people
- which must be
challenged
And many other cuts will continue to
fall on:
•   People with less severe,
    but still significant,
    disabilities

•   People with mental
    health problems

•   Women suffering
    domestic violence

•   People not in work

•   Refugees and asylum
    seekers
3. The future...

beginning to challenge the
third institution: the welfare
system itself
There are opportunities,
amidst the madness
• Lets remember and clarify the values that have
   helped us make progress
• Lets keep working at the technologies that we
   know work,
• But let’s also propose policies and legislation
   that will support progress
• And let’s build bridges with other disadvantaged
   groups
At the heart of our values




Everyone is equal, no matter their differences or
disabilities. A fair society sees each of its members as a
full citizen - a unique person with a life of their own. A
fair society is organised to support everyone to live a
full life, with meaning and respect.
Seven key principles...

1. Family - we give families the support they need to
   look after each other.
2. Citizenship - we are all of equal value and all have
   unique and positive contributions to make.
3. Community - we root support and services in local
   communities.
4. Connection - we all get chances to make friends
   and build relationships.
5. Capacity - we help each other to be the best that we
   can be.
6. Equality - we all share the same basic rights and
   entitlements.
Good work must continue
But current policy must be
challenged
•   Weak entitlements - eligibility thresholds high and
    rising, housing rights weak, legal rights weak - the
    cuts demonstrate the fragility of the current system
•   Super-taxation for disabled people - means-
    testing, charging
•   Poverty traps - benefit systems that punish
    families, savers, earners and disabled people
•   Weakened families - support focused on
    crises,family control undermined, families
    disrespected
•   Imprisonment for many - up to 20,000 people
    with learning difficulties in prison, 7,000 with IQ
    less than 70 and many more people with mental
    health problems
Instead
1. Integrate tax and benefits - remove stigma and
   complexity

2. Take means-testing out of benefits - we’ve
   already paid our taxes... we don’t need extra taxes
   on vulnerable people

3. Define minimum level of eligibility for all -
   transparently define a level sufficient for
   citizenship

4. Constitutional rights to support and control -
   clear law that can be tested and protected

5. Fix a robust organisational framework - escape
   the era of ‘organisational fixes’
A system of ‘family security’ is
necessary
Current system panders to the swing
voter and median-earner...
Current system undermines local
democracy and centralises power




        From Women at the Centre (forthcoming) by Simon Duffy & Clare Hyde
Can we build the necessary bridges?
• Avoid blaming local government, instead make
   alliance with local government
• Avoid falling back on a defence of ‘services’,
   even when services are not the answer - we
   need rights
• Build an alliance across and beyond ‘disability’
• Connect to the general public’s common-sense
   understanding of fairness and social justice
www.campaignforafairsociet
                     y.org

     The Centre for Welfare Reform
     The Quadrant, 99 Parkway Avenue,
     Parkway Business Park
     Sheffield, S9 4WG
     T +44 114 251 1790 | M +44
     7729 7729 41
     admin@centreforwelfarereform.org
     Get a free subscription at:

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Positive Policy Proposals for Disabled People

  • 1. Developing Positive Policy Proposals March 2011 Webinar
  • 2. 1. The historical context 2. Cuts & the challenge today 3. Positive policy alternatives
  • 3. 1. Our History... Moving beyond the institutional walls and building community...
  • 4. There is a long history of confused policy on disability and old age... • Benefit or services? • Local or central? • Personalised or institutional? But there has been progress...
  • 5. There is a long history of resistance and innovation by disabled people and their allies
  • 6.
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  • 10. ‘Personalisation’ is just another name for the long- term effort to restore citizenship to the many who lose it through prejudice and institutional responses ‘The technologies of personalisation’ include: supported employment, supported living, self- advocacy, citizen advocacy, individual budgets, person-centred planning, direct payments, self help, centres for independent living and many more...
  • 11. Six Keys to Citizenship from Keys to Citizenship by Simon Duffy
  • 12. Real Wealth from A Fair Start by Pippa Murray
  • 13. Personalised Transition from Personalised Transition by Alison Cowen
  • 14. I want patients to have far more control over the care they get. So people with long term conditions get to be part of designing the care they need. Choosing what suits them - and making it work. For mental health patients. For pensioners in need of care. For people with disabilities. It works. A couple of weeks ago in Sheffield, I met a wonderful woman called Katrina. She's got three disabled sons. The oldest is Jonathan, a charming, warm hearted young man of 19. He can't walk or talk clearly, or feed himself alone. He's had a breathing tube in his neck since he was a toddler. Under a scheme the new Liberal Democrat council in Sheffield is extending, Jonathan's just got his own individual budget and care plan. Now he's doing work with a local charity, attending a music group, has his own personal assistant. A child whose potential seemed so limited. Finally as a young man, engaged in life in a way he and his mother never thought possible. Katrina told me with the biggest smile I've ever seen. She said: We've gone from having nothing to having everything. I wish every child's needs would be taken this seriously.
  • 15. All this enthusiasm and rhetoric, but... • Virtual budgets used to maintain status quo • Individual budgets bureaucratised and controlled • Rationing becoming more obscure, entitlements weaker • Commissioners limit choice and market development • Advocacy and legal aid slashed Personalisation is struggling to survive
  • 16. Reform has always been met with resistance - and that resistance takes different forms at different stages... Personalisation will not move forward unless we tackle the deeper systemic blocks of power, money and legislation that undermine it.
  • 17. 2. The Unfair Cuts... what do they mean for disabled people and other vulnerable groups?
  • 18. An economic crisis caused by the bursting of a bubble created by... • Bankers who benefited from bonuses • Home owners who benefited from unsustainable house price increases • Investors who benefited from unsustainable profits in finance industry • Politicians who benefited from the illusion of a booming economy Who did not benefit from the bubble? - the poor and disabled people
  • 19. But where will the cuts fall? Part 1 - on Local Government services Local government will face (excluding police and fire) a cut in funding of 28% from £28.5 to £22.9 billion - in real terms. However approximately £21 billion of local government expenditure is on social care services (for children and adults). By 2014 - in order to deliver these cuts - local government will be forced to: • Cut £5.9 billion from social care • Reduce eligibility - 250,000 people will lose vital supports
  • 20. Where will the cuts fall? Part 2 - on benefits, income and housing The multiple benefit reforms and the creation of a system of Universal Credit mean final impact is uncertain in many areas. However government strategy is to: • protect and strengthen pensions • invest more in back to work programmes to reduce the tax burden on those on the verge of work • reduce the overall cost of benefits The only way of squaring this circle is to reduce spending on disabled people, families and carers.
  • 21. Benefit (£ billions) 10/11 (mn) pc pa Retirement Pension £72.392 protected 12,509,000 £5,787 Tax Credits £24.000 protected 7,200,000 £3,333 Housing Benefit £21.519 vulnerable 4,750,000 £4,530 Disability Living Allowance £12.467 vulnerable 3,214,000 £3,879 Attendance Allowance £5.436 vulnerable 1,635,000 £3,325 Child Benefit £11.000 questionabl 7,200,000 £1,528 e Income Support £5.763 vulnerable 1,746,000 £3,301 Pension Credit £7.673 vulnerable 2,664,000 £2,880 Council tax benefits £4.085 vulnerable 5,794,000 £705 Jobseeker’s Allowance £4.841 questionabl 1,402,000 £3,453 e Carer’s Allowance £1.000 vulnerable 566,000 £1,767 Employment Support £6.869 questionabl 2,469,000 £2,782 e Allowance + IB Independent Living Fund £0.200 terminated 21,000 £9,524 TOTAL £177.245 2010-11 Figures from DWP for major benefits - child benefit and tax credits from other sources
  • 22. Examples of cuts already lined up include: • a change in indexation of uprating benefits from the higher Retail Price Index (RPI) or Rossi to the lower Consumer Price Index (CPI), said to save £6 billion a year by 2015 • the reassessment of claimants of Disability Living Allowance (DLA) to drive a 20 per cent reduction in costs [c. £2.4 billion] • and the reassessment of Incapacity Benefit (IB) claimants to move more onto JSA – a plan first proposed by the previous government and intended to save £1.5 billion, and which the current government believes will see 23 per cent of IB claimants moved to JSA
  • 23. This is a pincer attack on the rights of disabled people. If we just focus on the 1.5 million people with the most significant disabilities - they will lose: • £5.88 billion in social care support • £1 billion in disability living allowance • Termination of ILF • Cuts to Supporting People • Many further cuts in housing support and other benefits So, more than £7 billion of the total £27 billion (>25%) which government is saving from departmental budgets is being born by less than 3% of the population - those who are least able to bear
  • 24. This is an unprecedented attack on the rights of disabled people - which must be challenged
  • 25. And many other cuts will continue to fall on: • People with less severe, but still significant, disabilities • People with mental health problems • Women suffering domestic violence • People not in work • Refugees and asylum seekers
  • 26. 3. The future... beginning to challenge the third institution: the welfare system itself
  • 27. There are opportunities, amidst the madness • Lets remember and clarify the values that have helped us make progress • Lets keep working at the technologies that we know work, • But let’s also propose policies and legislation that will support progress • And let’s build bridges with other disadvantaged groups
  • 28. At the heart of our values Everyone is equal, no matter their differences or disabilities. A fair society sees each of its members as a full citizen - a unique person with a life of their own. A fair society is organised to support everyone to live a full life, with meaning and respect.
  • 29. Seven key principles... 1. Family - we give families the support they need to look after each other. 2. Citizenship - we are all of equal value and all have unique and positive contributions to make. 3. Community - we root support and services in local communities. 4. Connection - we all get chances to make friends and build relationships. 5. Capacity - we help each other to be the best that we can be. 6. Equality - we all share the same basic rights and entitlements.
  • 30. Good work must continue
  • 31. But current policy must be challenged • Weak entitlements - eligibility thresholds high and rising, housing rights weak, legal rights weak - the cuts demonstrate the fragility of the current system • Super-taxation for disabled people - means- testing, charging • Poverty traps - benefit systems that punish families, savers, earners and disabled people • Weakened families - support focused on crises,family control undermined, families disrespected • Imprisonment for many - up to 20,000 people with learning difficulties in prison, 7,000 with IQ less than 70 and many more people with mental health problems
  • 32. Instead 1. Integrate tax and benefits - remove stigma and complexity 2. Take means-testing out of benefits - we’ve already paid our taxes... we don’t need extra taxes on vulnerable people 3. Define minimum level of eligibility for all - transparently define a level sufficient for citizenship 4. Constitutional rights to support and control - clear law that can be tested and protected 5. Fix a robust organisational framework - escape the era of ‘organisational fixes’
  • 33. A system of ‘family security’ is necessary
  • 34. Current system panders to the swing voter and median-earner...
  • 35. Current system undermines local democracy and centralises power From Women at the Centre (forthcoming) by Simon Duffy & Clare Hyde
  • 36. Can we build the necessary bridges? • Avoid blaming local government, instead make alliance with local government • Avoid falling back on a defence of ‘services’, even when services are not the answer - we need rights • Build an alliance across and beyond ‘disability’ • Connect to the general public’s common-sense understanding of fairness and social justice
  • 37. www.campaignforafairsociet y.org The Centre for Welfare Reform The Quadrant, 99 Parkway Avenue, Parkway Business Park Sheffield, S9 4WG T +44 114 251 1790 | M +44 7729 7729 41 admin@centreforwelfarereform.org Get a free subscription at:

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