3. What we will discuss today:
* A quick overview of what drives Family
Driven Care
* A working definition of Family Driven Care
* Guiding Principles that support Family
Driven Care
* Best practices for moving to a Family
Driven Care culture
4. A quick overview of what drives
Family Driven Care
1974-Environment accounted for all human behavior (Skinner, 1974)
therefore a child’s behavior and emotional status was the result of care
giving. Parental failure.
1982- Publication of Unclaimed Children: the Failure of Public
Responsibility to Children and Adolescents in Need of Mental Health
(Knitzer, 1982) posed that families needed to be a part of the solution
rather than a source of problems.
1986-Reseach and Training Center at Portland State University convened
the first of several conferences titled Families as Allies.
5. A quick overview of what drives
Family Driven Care (continued)
1989- The National Federation of Families for Children’s Mental Health was formed as the
first national advocacy organization.
1993- The largest children’s mental health initiative ever undertaken in the US established.
The Comprehensive Community Mental Health Services for Children and their Families
Program with a $4.9 million investment.
1990- Establishment of federal Statewide Family Networks program.
2010- The National Federation of Families for Children’s Mental Health had over 100 local
chapters and state organizations.
6. “Families have a primary decision making role in
the care of their own child/ren as well as the
policies and procedures governing care for all
children in their community, state, tribe, territory
and nation.”
-National Federation of Families for Children’s Mental Health
What do we mean by Family Driven Care?
7. Including…
Choosing culturally and linguistically competent support
services and providers
Setting goals
Designing, implementing and evaluating
programs
Monitoring outcomes
Partnering in funding decisions
Competent supports
8. Principles that Guide Family Driven Care
Shared decision making
and responsibility for
outcomes
Accurate, understandable
and complete information
is shared to set goals and
make informed decisions
A family voice is always
present and a family may
substitute decision makers
at any time
Families and family-run
organizations engage in
peer support
Families and family-run
organizations provide
direction for decisions
that impact funding
9. Principles that Guide Family Driven Care
Providers take the
initiative to change policy
from provider driven to
Family Driven
Funds are allocated to
make Family Driven
practice work including
sustaining funds for family
run organizations
Change efforts focus on
removing barriers and
discrimination created by
stigma
Embrace, value and
celebrate the diverse
cultures of families and
eliminate mental health
disparities
Appropriately address the
needs of diverse
populations
10. Activity:
In triads, choose 2-3
principles and
discuss:
**Why it is important to
family driven care
**Is there a context that
you see the principle in
action currently and what
does it look like
**What barriers may need
to be addressed to fully
implement the principle
in your work
14. Being Family Driven Requires…
Active and meaningful family involvement
*in policy and goal setting
*in strategic and action planning
*in planning and selecting what will be done
*in monitoring and evaluating
15. Being Family Driven Requires…
Families knowing and understanding the
pros and cons of ALL the options
*popular and not so popular
*traditional and non traditional
*provided locally and at a distance
16. Family Driven Care Requires…
Families having the time,
tools, skills and supports to
make good decisions.
17. So what does Family Driven Care look
like to those involved?
Families
Family Leaders/Family Run Organizations
Providers
Systems and System Leaders
18. Activity:
Count off by 3’s
1’s take the role of Families
2’s take the role of System
Leaders
3’s take the role of Providers
**What needs do we have
from each of the other
two groups?
**Develop one or two
strategies to address your
needs that would support
Family Driven Care
19. Families
Families communicate with providers about challenges,
needs successes in accessing services and partner in the
development and implementation
Families communicate with the family-run organization
and parent support partners
Family take advantage of trainings and resources in order
to fully participate in services, committees and decision
making events.
Families participate in evaluation of programs because
they know their voice impacts system change and
development
20. Family Leaders/Family Run Organizations
The family run organization is an equal partner with agencies in the
community
Family leaders are involved in developing agency and system goals and
choosing supports that will meet the needs of families
At the program level family leaders and organizations represent the
families being served
The family run organization recruits and trains family members to
work in provider networks providing family support services
Peer support is provided by Certified Family Peer Support Providers
and easily accessible by families
Families who attend system, agency and community meetings are
supported by family leaders, including preparation for the content and
process of the meeting, support during and after the meeting
21. Providers
Providers and their agencies are committed to putting family-driven
practices into operation by supporting family run organizations
financially and are allies in decision making, planning and
implementation of practices
Experience raising a child with mental health challenges is considered
an asset when family members seek employment as providers or in
other agency roles
Agencies are welcoming to families and provide accurate and full
information about practices, supports and all the possibilities for
participation.
Family members with lived experience are employed as intake workers;
the first contact a family will have when calling for assistance
Provider agencies seek family voices and work to break down barriers
Providers support the understanding of practices, diagnosis and skills so
therefore they open all of their training and events to families
22. Systems and System Leaders
System leaders embrace and practice family driven principles in all
they do
Family leaders are free to express the frustrations and challenges as
well as the satisfactions that families have experienced
System leaders ensure family leaders authentically represent families
on every board, committee and in every plan
The system acknowledges the stigma, discrimination and barriers a
mental health challenge elicits
Active and purposeful education about mental health is seen and
combats the ignorance and misconceptions of mental health
challenges
At the system level, family members who have experience accessing
services are voting members of boards, committees and councils and
are fully compensated for the time involved
Family members are included in hiring decisions and are presenters at
orientations, as well as ongoing training of staff
23. The Impact of Family Driven Care
“Systems’ and providers agencies’ programs
exist to serve families. When families are
equal partners they are more invested in the
success of those programs and feel more
connected to the systems. Shared work
makes each step authentically valuable to
all.”
National Federation of Families for Children’s Mental Health
