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MENTAL RETARDATION
Shivani singh
M.Sc. (N) 2nd year
AIIMS, Jodhpur
INTELLECTUAL
DISABILITY
INTRODUCTION:
Mental retardation (MR) refers to sub-average
general intellectual functioning which originates
during the development period of the child and is
associated with impairment in adaptive behaviour. It
is a genetic disorder manifested significantly below
average overall intellectual functioning and deficits
in adaptive behaviour.
DEFINTION:
According To American Association On
Mental Retardation (AAMR) 1983:
Mental Retardation Refers To
Significantly Subaverage General
Intellectual Functioning, Resulting In Or
Associated With Concurrent Impairments
In Adaptive Behavior, As Manifested
During The Developmental Period
'GENERAL INTELLECTUAL FUNCTIONING' is defined as
the results obtained by the administration of standardized general
intelligence tests developed for the purpose, and adapted to the
conditions of the region / country.
'SIGNIFICANTLY SUBAVERAGE' is defined as IQ of 70 or
below on standardized measures of intelligence. The upper limit is
intended as a guideline; it could be extended to 75 or more,
depending upon the reliability of intelligence test used.
'ADAPTIVE BEHAVIOUR' is defined as the degree with which
the individual meets the standards of personal independence and
social responsibility expected of his age and cultural group. The
expectations of adaptive behavior vary with the chronological age.
The term mental retardation
was introduced by the
American association on
mental retardation in 1961,
and soon afterwards was
adopted by the American
psychiatric association
(APA) in its diagnostic and
statistical manual for mental
disorders (DSM)
THE JOURNEY FROM
MENTAL RETARDATIO TO
INTELLECTUAL DISABILITY
Rosa Marcellino, an 8 year old girl with down
syndrome from Maryland was taunted frequently
and pejoratively called RETARD in a demeaning
manner
With support from state representative and U.S
senator Barbara Mikulski, legislation was
initiated leading to the change in law
The term mental retardation has been eliminated
under federal statute law 111-256, ROSA’s law
Now the person first language be used when
referring to those affected in all federal laws.
Prevalence Of Intellectual Disability
2%
Of
population
CLASSIFICATION
SOURCE: Sen AK. A Decade of Experimental Research in Mental Retardation in India. In: International Review of Research
in Mental Retardation [Internet]. Elsevier; 1976 [cited 2022 Nov 7]. p. 139–72. Available from:
https://linkinghub.elsevier.com/retrieve/pii/S0074775008600646
Proposed ICD 11 criteria for intellectual
developmental disorder
The presence of
significant limitations in
intellectual functioning
The presence of
significant limitations in
adaptive behavior
Onset during the
developmental period
LEVEL OF SUPPORT
The maximum mental age a person can
attain with the various degrees of mental
retardation is
FACTORS AFFECTING MENTAL
RETARDATION:
Genetic
factors
Environmental and
sociocultural factors
Prenatal
factors
Intranatal
factors
Postnatal
factors
CHARACTERISTICS OF PERSONS
WITH MENTAL RETARDATION
Impaired
developmenta
l milestone
Deficiencies
in cognitive
functioning
Reduced
ability to learn
or to meet
academic
demand
Expressive or
receptive
language
problems
Psychomotor
skill deficits
Difficulty
performing
self care
activities
Neurologic
impairment
SOURCE: American Association of Mental Retardation (1992). Mental retardation definition classification, and
system of supports (9th ed.) Washington, DC: American Association on mental retardation
COMMON COMORBID PSYCHIATRIC
DISORDERS
The prevalence of psychiatric disorders in individual with ID is estimated
between 30% and 60 %
INTERNATIONAL STUDIES
Prevalence of psychiatric disorder was 36% among children with intellectual
disability
Emerson E. Prevalence of psychiatric disorders in children and adolescents with
and without intellectual disability. J Intellect Disabil Res. 2003 Jan;47(1):51–8.
INDIAN STUDIES
A study conducted by C.R.J. khess etal at the child psychiatric unit of central
institute of psychiatry over one year period found that psychiatric comorbidity was
present in 34% patient
ADHD
Autism
spectrum
disorder
Anxiety
disorder
Bipolar
Depressive
disorder
Schizophrenia
Disruptive,
impulse control
and conduct
disorders
EARLY IDENTIFICATION AND PREVENTION OF
MENTAL RETARDATION
SCREENING
Pre-natal
Procedures
• Blood test
• Ultrasonography
• Amniocentesis
• Fetoscopy
• Chorionic villous
sampling
Neonatal and
Post-natal
Screening and
Diagnostic
Procedure
Chromosomal
analysis
Neonatal neuro
behavioural
assessments.
EEG
Biochemical
test
EEG
CT
MRI
Indian ScreeningTools
Functional
Assessment
Check List for
Programming
(FACP) 1991.
The revised
Madras
Developmental
Programme
System
Behavioural
Scale (MDPS)
Behavior
assessment
scale for Indian
children with
mental
retardation
(BASIC-MR)
Evaluation
program for
intellectually
challenged
children (EPICC)
Comparison of Characteristics of Different
Functional Skills Assessment Tools for
Children with Intellectual Disabilities
VARIOUS INTELLIGENCETEST
MANAGEMENT
Parent
counselling
Community
awareness
Vocational
training
and job
placement
COMMUNITY AWARENESS
PARENT COUNSELLING
Impart information
regarding the condition of
the mentally retarded
child
Help the parents to
develop right attitudes
towards their handicapped
child
Create awareness in
educating the parents
regarding their role In
training their mentally
retarded child
VOCATIONALTRAINING AND JOB
PLACEMENT
Assess a mentally
retarded person for
vocational training
Identify various
jobs in which a
mentally retarded
person can be
placed
OTHER TREATMENT MODALITIES:
Behaviour management
Environment supervision
Ongoing evaluation for
overlapping psychiatric
disorders
PREVENTION:
TERTIARY
PREVENTION
SECONDARY
PREVENTION
PRIMARY
PREVENTION
ARRAY OF SERVICES FOR
PERSONS WITH MENTAL
RETARDATION
TRAINING
RCI (Rehabilitation council of India) has developed a 45-
day training program, a foundation course, which
includes five areas of disability: mental retardation,
hearing impairment, visual impairment, learning
disabilities and locomotor impairment, with the intention
of giving knowledge, skills, attitudes and instructional
teaching techniques.
Though there are six types of courses operational at 79
institutions in the field of Mental Retardation, other
courses like M.Phil & Certificate courses in Clinical
Psychology, M.Phil & PG Diploma courses in
Rehabilitation Psychology, Diploma courses in CBR &
MRW, Bachelor & Diploma courses in Rehabilitation
Therapy, and PG Diploma in Early Intervention give
sufficient coverage to mental retardation in addition to
other disabilities.
PARENT TRAINING PROGRAMS
• NIMH had initiated and
conducted training programs for
groups of parents. The intention
in this model is to empower the
parents and family members to
look after their children with
mental retardation as against
providing expensive institutional
support or residential programs.
Teaching Process and Materials for
Children with Mental Retardation
The Montessori
method
Individualization
Learning by
doing
Repetition
Graded
curriculum
Projects
Teaching Learning Material for Persons
with Mental Retardation
•The Department of Special
Education, NIMH, had
undertaken a project on the
development of learning
materials, specifically to teach
persons with mental retardation.
FORMATION OF SELF-HELP GROUPS
AND PARENTS’ASSOCIATIONS
Parivaar –
Its Genesis
Sibling
Groups.
Family
Cottages
INNOVATIVE PRACTICES IN THE
FIELD OF MENTAL RETARDATION
• Yoga and its
effects on the child
with mental
retardation.
• Community
Based
Rehabilitation in
the community.
• Augmentative
Intervention, the
catalysts
POLICIES AND PROGRAMMES
The National Policy for Children, 1974
Integrated Education of Disabled Children (IEDC), 1974
The National Policy on Education (NPE)
The International Year for the Disabled Persons (IYDP), 1981
Project Integrated Education for Disabled (PIED), 1987
The Community Based Rehabilitation (CBR)
Mental Health Act, 1987
The Program of Action, 1992
Schemes of the Ministry of Health & Family Welfare
Non-Governmental Organizations –Job
Training and Placements
Thakur Hari
Prasad
Institute of
Rehabilitation
& Research for
the Mentally
Retarded,
Hyderabad;
Sweekar
Rehabilitation
Institute for
Handicapped,
Indore
Secunderabad;
Swyam Krushi,
Hyderabad
Amar Jyothi
Institute of
Delhi
SUMMARY
CONCLUSION:
• Mental retardation is a serious intellectual disability. The
diagnosis of Mental retardation in a child can trigger a range of
emotional responses in parents & across the whole family.
Parenting a child with a Mental retardation is a very difficult task
as lot of stress, frustration, and hopelessness is experienced by
them. The need of the hour is to determine the early identification
steps and preventive techniques of the mental retardation so that
immediate steps would be taken by the parents to prevent and
control the disability
REFERENCES:
ï‚· Russell PSS, Nagaraj S, Vengadavaradan A, Russell S, Mammen PM, Shankar SR, Viswanathan SA, Earnest R,
Chikkala SM, Rebekah G. Prevalence of intellectual disability in India: A meta-analysis. World J Clin
Pediatr 2022; 11(2): 206-214 [PMID: 35433303 DOI: 10.5409/wjcp.v11.i2.206]
ï‚· American Association of Mental Retardation (1992). Mental retardation definition classification, and system of
supports (9th ed.) Washington, DC: American Association on mental retardation.
ï‚· Armates,V. (2009). Mental retardation: definitions, etiology, epistemology and diagnosis. Journal of sports &
health research.1(2), 112-122.
ï‚· Daily, D.K., Ardinger, H.H., & Holmes, G.E. (2000). Identification and evaluation of mental retardation. Am
Fam Physician; 62(5):961-963
 Rutter, L.Q. (2006). First Diagnosis of Severe Mental and Physical Disability: A Study of Doctor– Parent
Communication. Journal of Child Psychology & Psychiatry, 35(7): 1273- 1287
ï‚· Roberts MC, editor. Handbook of pediatric psychology. 3rd ed. New York: Guilford Press; 2003. 772 p.
ï‚· Sen AK. A Decade of Experimental Research in Mental Retardation in India. In: International Review of
Research in Mental Retardation [Internet]. Elsevier; 1976 [cited 2022 Nov 7]. p. 139–72. Available from:
https://linkinghub.elsevier.com/retrieve/pii/S0074775008600646
EVALUATION
Approximately _______% of population in
India is considered mentally retarded.
THANK YOU

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Understanding Intellectual Disability

  • 1. MENTAL RETARDATION Shivani singh M.Sc. (N) 2nd year AIIMS, Jodhpur INTELLECTUAL DISABILITY
  • 2. INTRODUCTION: Mental retardation (MR) refers to sub-average general intellectual functioning which originates during the development period of the child and is associated with impairment in adaptive behaviour. It is a genetic disorder manifested significantly below average overall intellectual functioning and deficits in adaptive behaviour.
  • 3. DEFINTION: According To American Association On Mental Retardation (AAMR) 1983: Mental Retardation Refers To Significantly Subaverage General Intellectual Functioning, Resulting In Or Associated With Concurrent Impairments In Adaptive Behavior, As Manifested During The Developmental Period
  • 4. 'GENERAL INTELLECTUAL FUNCTIONING' is defined as the results obtained by the administration of standardized general intelligence tests developed for the purpose, and adapted to the conditions of the region / country. 'SIGNIFICANTLY SUBAVERAGE' is defined as IQ of 70 or below on standardized measures of intelligence. The upper limit is intended as a guideline; it could be extended to 75 or more, depending upon the reliability of intelligence test used. 'ADAPTIVE BEHAVIOUR' is defined as the degree with which the individual meets the standards of personal independence and social responsibility expected of his age and cultural group. The expectations of adaptive behavior vary with the chronological age.
  • 5. The term mental retardation was introduced by the American association on mental retardation in 1961, and soon afterwards was adopted by the American psychiatric association (APA) in its diagnostic and statistical manual for mental disorders (DSM)
  • 6. THE JOURNEY FROM MENTAL RETARDATIO TO INTELLECTUAL DISABILITY
  • 7. Rosa Marcellino, an 8 year old girl with down syndrome from Maryland was taunted frequently and pejoratively called RETARD in a demeaning manner With support from state representative and U.S senator Barbara Mikulski, legislation was initiated leading to the change in law The term mental retardation has been eliminated under federal statute law 111-256, ROSA’s law Now the person first language be used when referring to those affected in all federal laws.
  • 9.
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  • 13. CLASSIFICATION SOURCE: Sen AK. A Decade of Experimental Research in Mental Retardation in India. In: International Review of Research in Mental Retardation [Internet]. Elsevier; 1976 [cited 2022 Nov 7]. p. 139–72. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0074775008600646
  • 14. Proposed ICD 11 criteria for intellectual developmental disorder The presence of significant limitations in intellectual functioning The presence of significant limitations in adaptive behavior Onset during the developmental period
  • 16. The maximum mental age a person can attain with the various degrees of mental retardation is
  • 17. FACTORS AFFECTING MENTAL RETARDATION: Genetic factors Environmental and sociocultural factors Prenatal factors Intranatal factors Postnatal factors
  • 18. CHARACTERISTICS OF PERSONS WITH MENTAL RETARDATION Impaired developmenta l milestone Deficiencies in cognitive functioning Reduced ability to learn or to meet academic demand Expressive or receptive language problems Psychomotor skill deficits Difficulty performing self care activities Neurologic impairment
  • 19. SOURCE: American Association of Mental Retardation (1992). Mental retardation definition classification, and system of supports (9th ed.) Washington, DC: American Association on mental retardation
  • 21. The prevalence of psychiatric disorders in individual with ID is estimated between 30% and 60 % INTERNATIONAL STUDIES Prevalence of psychiatric disorder was 36% among children with intellectual disability Emerson E. Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. J Intellect Disabil Res. 2003 Jan;47(1):51–8. INDIAN STUDIES A study conducted by C.R.J. khess etal at the child psychiatric unit of central institute of psychiatry over one year period found that psychiatric comorbidity was present in 34% patient
  • 23. EARLY IDENTIFICATION AND PREVENTION OF MENTAL RETARDATION SCREENING Pre-natal Procedures • Blood test • Ultrasonography • Amniocentesis • Fetoscopy • Chorionic villous sampling
  • 24. Neonatal and Post-natal Screening and Diagnostic Procedure Chromosomal analysis Neonatal neuro behavioural assessments. EEG Biochemical test EEG CT MRI
  • 25. Indian ScreeningTools Functional Assessment Check List for Programming (FACP) 1991. The revised Madras Developmental Programme System Behavioural Scale (MDPS) Behavior assessment scale for Indian children with mental retardation (BASIC-MR) Evaluation program for intellectually challenged children (EPICC)
  • 26. Comparison of Characteristics of Different Functional Skills Assessment Tools for Children with Intellectual Disabilities
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  • 31. PARENT COUNSELLING Impart information regarding the condition of the mentally retarded child Help the parents to develop right attitudes towards their handicapped child Create awareness in educating the parents regarding their role In training their mentally retarded child
  • 32. VOCATIONALTRAINING AND JOB PLACEMENT Assess a mentally retarded person for vocational training Identify various jobs in which a mentally retarded person can be placed
  • 33. OTHER TREATMENT MODALITIES: Behaviour management Environment supervision Ongoing evaluation for overlapping psychiatric disorders
  • 35. ARRAY OF SERVICES FOR PERSONS WITH MENTAL RETARDATION
  • 36. TRAINING RCI (Rehabilitation council of India) has developed a 45- day training program, a foundation course, which includes five areas of disability: mental retardation, hearing impairment, visual impairment, learning disabilities and locomotor impairment, with the intention of giving knowledge, skills, attitudes and instructional teaching techniques.
  • 37. Though there are six types of courses operational at 79 institutions in the field of Mental Retardation, other courses like M.Phil & Certificate courses in Clinical Psychology, M.Phil & PG Diploma courses in Rehabilitation Psychology, Diploma courses in CBR & MRW, Bachelor & Diploma courses in Rehabilitation Therapy, and PG Diploma in Early Intervention give sufficient coverage to mental retardation in addition to other disabilities.
  • 38. PARENT TRAINING PROGRAMS • NIMH had initiated and conducted training programs for groups of parents. The intention in this model is to empower the parents and family members to look after their children with mental retardation as against providing expensive institutional support or residential programs.
  • 39. Teaching Process and Materials for Children with Mental Retardation The Montessori method Individualization Learning by doing Repetition Graded curriculum Projects
  • 40. Teaching Learning Material for Persons with Mental Retardation •The Department of Special Education, NIMH, had undertaken a project on the development of learning materials, specifically to teach persons with mental retardation.
  • 41. FORMATION OF SELF-HELP GROUPS AND PARENTS’ASSOCIATIONS Parivaar – Its Genesis Sibling Groups. Family Cottages
  • 42. INNOVATIVE PRACTICES IN THE FIELD OF MENTAL RETARDATION • Yoga and its effects on the child with mental retardation. • Community Based Rehabilitation in the community. • Augmentative Intervention, the catalysts
  • 43. POLICIES AND PROGRAMMES The National Policy for Children, 1974 Integrated Education of Disabled Children (IEDC), 1974 The National Policy on Education (NPE) The International Year for the Disabled Persons (IYDP), 1981 Project Integrated Education for Disabled (PIED), 1987 The Community Based Rehabilitation (CBR) Mental Health Act, 1987 The Program of Action, 1992 Schemes of the Ministry of Health & Family Welfare
  • 44. Non-Governmental Organizations –Job Training and Placements Thakur Hari Prasad Institute of Rehabilitation & Research for the Mentally Retarded, Hyderabad; Sweekar Rehabilitation Institute for Handicapped, Indore Secunderabad; Swyam Krushi, Hyderabad Amar Jyothi Institute of Delhi
  • 45.
  • 47. CONCLUSION: • Mental retardation is a serious intellectual disability. The diagnosis of Mental retardation in a child can trigger a range of emotional responses in parents & across the whole family. Parenting a child with a Mental retardation is a very difficult task as lot of stress, frustration, and hopelessness is experienced by them. The need of the hour is to determine the early identification steps and preventive techniques of the mental retardation so that immediate steps would be taken by the parents to prevent and control the disability
  • 48. REFERENCES: ï‚· Russell PSS, Nagaraj S, Vengadavaradan A, Russell S, Mammen PM, Shankar SR, Viswanathan SA, Earnest R, Chikkala SM, Rebekah G. Prevalence of intellectual disability in India: A meta-analysis. World J Clin Pediatr 2022; 11(2): 206-214 [PMID: 35433303 DOI: 10.5409/wjcp.v11.i2.206] ï‚· American Association of Mental Retardation (1992). Mental retardation definition classification, and system of supports (9th ed.) Washington, DC: American Association on mental retardation. ï‚· Armates,V. (2009). Mental retardation: definitions, etiology, epistemology and diagnosis. Journal of sports & health research.1(2), 112-122. ï‚· Daily, D.K., Ardinger, H.H., & Holmes, G.E. (2000). Identification and evaluation of mental retardation. Am Fam Physician; 62(5):961-963 ï‚· Rutter, L.Q. (2006). First Diagnosis of Severe Mental and Physical Disability: A Study of Doctor– Parent Communication. Journal of Child Psychology & Psychiatry, 35(7): 1273- 1287 ï‚· Roberts MC, editor. Handbook of pediatric psychology. 3rd ed. New York: Guilford Press; 2003. 772 p. ï‚· Sen AK. A Decade of Experimental Research in Mental Retardation in India. In: International Review of Research in Mental Retardation [Internet]. Elsevier; 1976 [cited 2022 Nov 7]. p. 139–72. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0074775008600646
  • 50. Approximately _______% of population in India is considered mentally retarded.
  • 51.