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Watch the film:
www.autismchildsigns.com
INCREASING
PROFESSIONAL
UNDERSTANDING OF
THE SIGNS OF AUTISM:
EVALUATION OF A
TRAINING FILM IN FIVE
EUROPEAN COUNTRIES
M. Caputi, C. Jones, S. Barrett, S. Bunce, S. Carrington, J. Condon, J. Gould, T. Hinton, L. Berzina, I. Bite, R.
Campos, C. Nieto, R. Vidriales, S. Montanari, R. Geležiniene, K. Radžvilaite, V. Judickaite-Žukovske, S. Leekam.
SUMMARY
o Governments and charities systematically highlight the
problems of delayed diagnosis, lack of educational support,
and stigmatisation due to poor understanding of autism.
o We formed a partnership across five European countries to
develop a training film for use in each country.
o The film, based on research from Cardiff University, describes
the SIGNS of autism and the varied way in which these signs
present themselves.
o Here we share an evaluation of how the film is working to help
improve understanding of autism signs and reduce stigma, not
only in professionals but in students, parents and others.
2
3
OUR PARTNERSHIPS
OUR
THANKS
Italy
University:
Vita-Salute San Raffaele University
Charity: Associazione Autismo Pavia Onlus
Lithuania
University: Siauliai University
Charity: Lithuanian Autism Association
Spain
University: Universidad Autónoma de Madrid
Charity: Autismo España
Latvia
University: University of Latvia
Charity: Autism Society of Latvia
United Kingdom
University: Cardiff University, Aston University
Government Welsh Local Governmment
Association (WLGA)
THANKS
TO OUR
FUNDERS
Thank you to parents,
autistic people and
professionals in each
country who developed
the film with us.
Thank you to Johanna Condon
and the film production team,
Injan Ltd, actors, translators,
and narrators.
Thank you to National Autism
Team (ASDinfoWales), WLGA,
(Sara Harvey, Tracy Hinton
Wendy Thomas) for hosting
and promoting the film.
INTRODUCTION
4
In front-line professionals, poor
understanding of autism is linked
to lack of knowledge of:
The signs
to look for
The varied way in which
these signs show
themselves in different
individuals
A NEW TRAINING FILM
We designed the BIRTHDAY PARTY film to describe the SIGNS of autism in three
different fictitious characters.
5
AMY JACK RHYS
6
Watch the film at:
www.autismchildsigns.com
autismchildsigns.com
THE BIRTHDAY PARTY: A TRAINING
FILM ABOUT THE SIGNS OF AUTISM
7
What the film shows:
• When particular behaviours are found together, they form a
distinctive and enduring pattern of SIGNS (Social interaction,
Imagination, Gestures, Narrow interests, Sensory responses).
• There is variation in the way that the SIGNS present in
different children and sometimes they can be missed.
• It is vital to understand the SIGNS as all children with these
SIGNS require support at school and home.
BACKGROUND:
HOW WE
DEVELOPED THE
FILM
FUNDERS:
8
Note: Johanna Condon (formerly Manikiza) is now at Healios Ltd.;
Sarah Carrington is now at Aston University
2015
• The Cardiff team, Sue Leekam and Sarah Carrington,
worked with clinician Judith Gould and colleagues.
• They identified and published a set of essential
signposting items for autism.
2016
• Johanna Condon, Welsh Local Government Association,
created the SIGNS acronym for a public health campaign
and integrated the signposting items into materials for
the Welsh national health and education services.
2017
• The film script was written, led by the Cardiff University
team.
• The film was produced, led by Johanna Condon, Welsh
Local Government Association team.
THE BIRTHDAY
PARTY FILM:
FIRST EDITION
9
In 2017, the first edition was available in the
UK and made available in English and in
Welsh.
At the end of 2017 interest from Latvia led
to first edition being adapted and
translated.
This gave the opportunity to evaluate the
first edition in two European countries.
EVALUATION OF BIRTHDAY PARTY: FIRST EDITION
731 people evaluated the film: 69%
professionals, 23% parents, 8%
students. There were 390 in UK and
338 in Latvia.
Before viewing, they rated their
current understanding of the signs of
autism (1-10 scale).
After viewing, they rated if the film
improved understanding of the signs
(1-10 scale).
Results: A significant improvement in
understanding the signs of autism
was reported in both countries after
watching, with a larger improvement
in the Latvian group.
0
1
2
3
4
5
6
7
8
9
10
UK Latvia
Understanding of autism signs before and after
watching film (mean rating)
Before film
After film
10
Excellent job in explaining
complexity and showing one
size does not fit all. (UK)
EVALUATION OF BIRTHDAY PARTY: FIRST EDITION
Comments about the film
11
Thank you for raising
awareness of autistic
girls. (UK)
[The film] could be useful for
educating society [and]
improving acceptance of
autism. (Latvia)
Concisely named signs
that are visually
recognizable. (Latvia)
Shows that each child is
different and signs are
different. (Latvia)
A MESSAGE
FROM A PARENT
(UK)
I would just like to say that I found your video wonderful.
This is the first time in 2 1/2 years that I have come across
something which is finally 'current' and open about possible
behaviours, and most importantly comes away from the
stereotypical. My son ticks a lot of those shown in your
video, yet I have been met many times by different
therapists and psychologists that have said, “Oh he looked
at me and made eye contact, he's fine. I can take him off
the waiting list if you like”, or, “He just doesn’t like sharing,
its behavioural issues because he does interact with me”
(and so on).
I sincerely hope that your brilliant video is sent to all
professionals that have anything to do with dealing with
children that could be or are on the spectrum. A simple,
well thought out, and respectful film like yours can be
emailed easily with no cost to councils and government, but
could well help a child who deserves to get the help they
need, as early as possible.
12
MESSAGES FROM
PROFESSIONALS
(LATVIA)
13
o Expanded my world view a lot. I recognised several
cases that I had not noticed before. I understood how
far we are in Latvia yet from understanding that
everyone is different. I liked the positive and light
tone of the film.
o Would be good to show it to wider public to change
the stereotypical thinking of what a child with autism
looks like.
o Well-structured movie allows you to create an
awareness scheme that lets you spot signs and
connect to support staff on a daily basis.
o Very, very useful. A material that is simple and easy
to understand.
EVALUATION OF
FIRST EDITION:
FURTHER
DEVELOPMENT
14
Professionals, parents
and autistic people in
the UK and other
countries advised us
on how the film could
be improved.
1) Make language and
description of autism more
positive
2) Improve explanation of
the ‘imagination’ sign
3) Be clear about the
purpose of the film (about
recognition of behaviour, not
about cause)
The second
edition
addressed
these issues.
THE BIRTHDAY PARTY
FILM: SECOND EDITION oResearchers and clinicians from other
countries showed an interest in the film and
a coordinated project began.
oUniversities, charities, autistic people and
their families worked together to create
culturally adapted versions/translations.
oIn 2018, the new film was recorded in
Italian, Lithuanian and Spanish as well as
English, Welsh and Latvian.
oThe new film was supported and
promoted by Welsh Local Government
Association.
15
16
17
EVALUATION OF BIRTHDAY PARTY: SECOND EDITION
910 people evaluated the film
including: 62% students, 32%
professionals, 6% parents/autistic
people.
537 in Italy, 255 in Lithuania, 118 in
Spain.
Results: A significant improvement
in understanding in all countries
after watching. Largest improvements
were for the student group, which
made up 100% of the Spain and
82.5% of the Italian samples.
0
1
2
3
4
5
6
7
8
9
10
Understanding of autism signs before
and after film (mean rating)
before film after film
18
LEARNING THE SIGNS OF AUTISM :
UNDERSTANDING OF AUTISM BEFORE AND AFTER FILM, SPLIT BY COUNTRY
0
1
2
3
4
5
6
7
8
9
10
High school student University student Professional
ITALY
0
1
2
3
4
5
6
7
8
9
10
University student:
Medicine
University student:
Psychology
SPAIN
Before film After film
19
0
1
2
3
4
5
6
7
8
9
10
University student Professional
LITHUANIA
IS THE FILM A USEFUL TOOL TO IMPROVE
ATTITUDES AND REDUCE STIGMA?
We asked this question to professionals,
students and others in Italy (537), Spain
(118) and Lithuania (255).
Results: A high rating was given with
mean score of 7.9/10 across all
countries.
0
1
2
3
4
5
6
7
8
9
10
Usefulness to improve attitudes and
reduce stigma (mean rating)
Italy Lithuania Spain
20
RESULTS OF EVALUATION: FINAL EDITION
The film evaluation shows a significant improvement in understanding of
the signs of autism.
The largest improvement in self-rated understanding was in high school
students and in university medical students. However, professionals also
reported significant improvement.
Across all groups, increases in understanding were also significantly higher
for those who had no previous training in autism.
Most participants considered the film to be a useful tool for reducing
stigma associated with autism.
These results help us target early-stage training for both professionals and
for young people in schools/colleges, both to improve understanding and
attitudes.
21
IMPACT
o The film has been adopted for national practitioner training
courses in special education, and speech/ language therapy.
o It is now used in a number of university courses in Europe to train
teachers, professionals and medicine/psychology students.
o It is part of national clinical toolkits for medical staff and part
of the national training resources for schools in the United
Kingdom.
o145 requests* for permission to use the film for educational
purposes have been received from 15 different countries across
the world including Venezuela, Kenya and Vietnam. *April 2020
22
IMPACT
Total number of plays: ~ 72,000
23
ttps:/autismchil
Watch the film on:
www.autismchildsigns.com
Language Number of plays*
English 23,740
Italian 18,470
Latvian 2,923
Lithuanian 10,194
Spanish 16,159
Welsh 457
*April 2020
CONCLUSION
The second evaluation confirmed the
usefulness of the Birthday Party for
flagging up signs of concern for future
referral and for changing attitudes and
reducing stigma.
Notably, the film is effective in improving
understanding of autism signs, not only in
front-line professionals but also in skilled
professionals and even in high-school
students.
24
www.autismchildsigns.com
FUTURE DIRECTIONS
Opportunities for:
1) Developing training packages to be used with the film
2) Working with policy developers of different countries to
make sure that the film is part of the training of
education/medicine/psychology students.
25
ACHIEVEMENTS AND AWARDS
UK
Sue, Catherine and
Sarah win a 2019
Innovation and Impact
Award from Cardiff
University with UK
partners the National
Autism Team, WLGA
(Sara, Wendy, Tracy).
Italy
Marcella wins an
award from
Fondazione Banca del
Monte di Lombardia to
present at the Autism
Europe conference and
visit Cardiff University.
Latvia
Liga and Ieva launch
conferences for
professionals, as well
as new research and
training collaborations
with the Birthday Party
film partners in the UK.
Lithuania
Kristina, Valdona and
Renata celebrate the
the film as the first
Lithuanian training for
special education
teachers and speech
and language
therapists.
Spain
Carmen and Ruth
celebrate the
introduction of the film
into medical and
psychology training at
Autónoma University of
Madrid.
26

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Birthday party film impact report

  • 1. Watch the film: www.autismchildsigns.com INCREASING PROFESSIONAL UNDERSTANDING OF THE SIGNS OF AUTISM: EVALUATION OF A TRAINING FILM IN FIVE EUROPEAN COUNTRIES M. Caputi, C. Jones, S. Barrett, S. Bunce, S. Carrington, J. Condon, J. Gould, T. Hinton, L. Berzina, I. Bite, R. Campos, C. Nieto, R. Vidriales, S. Montanari, R. Geležiniene, K. Radžvilaite, V. Judickaite-Žukovske, S. Leekam.
  • 2. SUMMARY o Governments and charities systematically highlight the problems of delayed diagnosis, lack of educational support, and stigmatisation due to poor understanding of autism. o We formed a partnership across five European countries to develop a training film for use in each country. o The film, based on research from Cardiff University, describes the SIGNS of autism and the varied way in which these signs present themselves. o Here we share an evaluation of how the film is working to help improve understanding of autism signs and reduce stigma, not only in professionals but in students, parents and others. 2
  • 3. 3 OUR PARTNERSHIPS OUR THANKS Italy University: Vita-Salute San Raffaele University Charity: Associazione Autismo Pavia Onlus Lithuania University: Siauliai University Charity: Lithuanian Autism Association Spain University: Universidad Autónoma de Madrid Charity: Autismo España Latvia University: University of Latvia Charity: Autism Society of Latvia United Kingdom University: Cardiff University, Aston University Government Welsh Local Governmment Association (WLGA) THANKS TO OUR FUNDERS Thank you to parents, autistic people and professionals in each country who developed the film with us. Thank you to Johanna Condon and the film production team, Injan Ltd, actors, translators, and narrators. Thank you to National Autism Team (ASDinfoWales), WLGA, (Sara Harvey, Tracy Hinton Wendy Thomas) for hosting and promoting the film.
  • 4. INTRODUCTION 4 In front-line professionals, poor understanding of autism is linked to lack of knowledge of: The signs to look for The varied way in which these signs show themselves in different individuals
  • 5. A NEW TRAINING FILM We designed the BIRTHDAY PARTY film to describe the SIGNS of autism in three different fictitious characters. 5 AMY JACK RHYS
  • 6. 6 Watch the film at: www.autismchildsigns.com autismchildsigns.com
  • 7. THE BIRTHDAY PARTY: A TRAINING FILM ABOUT THE SIGNS OF AUTISM 7 What the film shows: • When particular behaviours are found together, they form a distinctive and enduring pattern of SIGNS (Social interaction, Imagination, Gestures, Narrow interests, Sensory responses). • There is variation in the way that the SIGNS present in different children and sometimes they can be missed. • It is vital to understand the SIGNS as all children with these SIGNS require support at school and home.
  • 8. BACKGROUND: HOW WE DEVELOPED THE FILM FUNDERS: 8 Note: Johanna Condon (formerly Manikiza) is now at Healios Ltd.; Sarah Carrington is now at Aston University 2015 • The Cardiff team, Sue Leekam and Sarah Carrington, worked with clinician Judith Gould and colleagues. • They identified and published a set of essential signposting items for autism. 2016 • Johanna Condon, Welsh Local Government Association, created the SIGNS acronym for a public health campaign and integrated the signposting items into materials for the Welsh national health and education services. 2017 • The film script was written, led by the Cardiff University team. • The film was produced, led by Johanna Condon, Welsh Local Government Association team.
  • 9. THE BIRTHDAY PARTY FILM: FIRST EDITION 9 In 2017, the first edition was available in the UK and made available in English and in Welsh. At the end of 2017 interest from Latvia led to first edition being adapted and translated. This gave the opportunity to evaluate the first edition in two European countries.
  • 10. EVALUATION OF BIRTHDAY PARTY: FIRST EDITION 731 people evaluated the film: 69% professionals, 23% parents, 8% students. There were 390 in UK and 338 in Latvia. Before viewing, they rated their current understanding of the signs of autism (1-10 scale). After viewing, they rated if the film improved understanding of the signs (1-10 scale). Results: A significant improvement in understanding the signs of autism was reported in both countries after watching, with a larger improvement in the Latvian group. 0 1 2 3 4 5 6 7 8 9 10 UK Latvia Understanding of autism signs before and after watching film (mean rating) Before film After film 10
  • 11. Excellent job in explaining complexity and showing one size does not fit all. (UK) EVALUATION OF BIRTHDAY PARTY: FIRST EDITION Comments about the film 11 Thank you for raising awareness of autistic girls. (UK) [The film] could be useful for educating society [and] improving acceptance of autism. (Latvia) Concisely named signs that are visually recognizable. (Latvia) Shows that each child is different and signs are different. (Latvia)
  • 12. A MESSAGE FROM A PARENT (UK) I would just like to say that I found your video wonderful. This is the first time in 2 1/2 years that I have come across something which is finally 'current' and open about possible behaviours, and most importantly comes away from the stereotypical. My son ticks a lot of those shown in your video, yet I have been met many times by different therapists and psychologists that have said, “Oh he looked at me and made eye contact, he's fine. I can take him off the waiting list if you like”, or, “He just doesn’t like sharing, its behavioural issues because he does interact with me” (and so on). I sincerely hope that your brilliant video is sent to all professionals that have anything to do with dealing with children that could be or are on the spectrum. A simple, well thought out, and respectful film like yours can be emailed easily with no cost to councils and government, but could well help a child who deserves to get the help they need, as early as possible. 12
  • 13. MESSAGES FROM PROFESSIONALS (LATVIA) 13 o Expanded my world view a lot. I recognised several cases that I had not noticed before. I understood how far we are in Latvia yet from understanding that everyone is different. I liked the positive and light tone of the film. o Would be good to show it to wider public to change the stereotypical thinking of what a child with autism looks like. o Well-structured movie allows you to create an awareness scheme that lets you spot signs and connect to support staff on a daily basis. o Very, very useful. A material that is simple and easy to understand.
  • 14. EVALUATION OF FIRST EDITION: FURTHER DEVELOPMENT 14 Professionals, parents and autistic people in the UK and other countries advised us on how the film could be improved. 1) Make language and description of autism more positive 2) Improve explanation of the ‘imagination’ sign 3) Be clear about the purpose of the film (about recognition of behaviour, not about cause) The second edition addressed these issues.
  • 15. THE BIRTHDAY PARTY FILM: SECOND EDITION oResearchers and clinicians from other countries showed an interest in the film and a coordinated project began. oUniversities, charities, autistic people and their families worked together to create culturally adapted versions/translations. oIn 2018, the new film was recorded in Italian, Lithuanian and Spanish as well as English, Welsh and Latvian. oThe new film was supported and promoted by Welsh Local Government Association. 15
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  • 18. EVALUATION OF BIRTHDAY PARTY: SECOND EDITION 910 people evaluated the film including: 62% students, 32% professionals, 6% parents/autistic people. 537 in Italy, 255 in Lithuania, 118 in Spain. Results: A significant improvement in understanding in all countries after watching. Largest improvements were for the student group, which made up 100% of the Spain and 82.5% of the Italian samples. 0 1 2 3 4 5 6 7 8 9 10 Understanding of autism signs before and after film (mean rating) before film after film 18
  • 19. LEARNING THE SIGNS OF AUTISM : UNDERSTANDING OF AUTISM BEFORE AND AFTER FILM, SPLIT BY COUNTRY 0 1 2 3 4 5 6 7 8 9 10 High school student University student Professional ITALY 0 1 2 3 4 5 6 7 8 9 10 University student: Medicine University student: Psychology SPAIN Before film After film 19 0 1 2 3 4 5 6 7 8 9 10 University student Professional LITHUANIA
  • 20. IS THE FILM A USEFUL TOOL TO IMPROVE ATTITUDES AND REDUCE STIGMA? We asked this question to professionals, students and others in Italy (537), Spain (118) and Lithuania (255). Results: A high rating was given with mean score of 7.9/10 across all countries. 0 1 2 3 4 5 6 7 8 9 10 Usefulness to improve attitudes and reduce stigma (mean rating) Italy Lithuania Spain 20
  • 21. RESULTS OF EVALUATION: FINAL EDITION The film evaluation shows a significant improvement in understanding of the signs of autism. The largest improvement in self-rated understanding was in high school students and in university medical students. However, professionals also reported significant improvement. Across all groups, increases in understanding were also significantly higher for those who had no previous training in autism. Most participants considered the film to be a useful tool for reducing stigma associated with autism. These results help us target early-stage training for both professionals and for young people in schools/colleges, both to improve understanding and attitudes. 21
  • 22. IMPACT o The film has been adopted for national practitioner training courses in special education, and speech/ language therapy. o It is now used in a number of university courses in Europe to train teachers, professionals and medicine/psychology students. o It is part of national clinical toolkits for medical staff and part of the national training resources for schools in the United Kingdom. o145 requests* for permission to use the film for educational purposes have been received from 15 different countries across the world including Venezuela, Kenya and Vietnam. *April 2020 22
  • 23. IMPACT Total number of plays: ~ 72,000 23 ttps:/autismchil Watch the film on: www.autismchildsigns.com Language Number of plays* English 23,740 Italian 18,470 Latvian 2,923 Lithuanian 10,194 Spanish 16,159 Welsh 457 *April 2020
  • 24. CONCLUSION The second evaluation confirmed the usefulness of the Birthday Party for flagging up signs of concern for future referral and for changing attitudes and reducing stigma. Notably, the film is effective in improving understanding of autism signs, not only in front-line professionals but also in skilled professionals and even in high-school students. 24 www.autismchildsigns.com
  • 25. FUTURE DIRECTIONS Opportunities for: 1) Developing training packages to be used with the film 2) Working with policy developers of different countries to make sure that the film is part of the training of education/medicine/psychology students. 25
  • 26. ACHIEVEMENTS AND AWARDS UK Sue, Catherine and Sarah win a 2019 Innovation and Impact Award from Cardiff University with UK partners the National Autism Team, WLGA (Sara, Wendy, Tracy). Italy Marcella wins an award from Fondazione Banca del Monte di Lombardia to present at the Autism Europe conference and visit Cardiff University. Latvia Liga and Ieva launch conferences for professionals, as well as new research and training collaborations with the Birthday Party film partners in the UK. Lithuania Kristina, Valdona and Renata celebrate the the film as the first Lithuanian training for special education teachers and speech and language therapists. Spain Carmen and Ruth celebrate the introduction of the film into medical and psychology training at Autónoma University of Madrid. 26