This document summarizes a presentation given by Leigh Kendall of NHS Horizons on transforming maternity services. The presentation discusses Kendall's work supporting change agents in the NHS and tuning into innovative practices worldwide. It also shares a personal story about Kendall's son Hugo who was born prematurely and passed away, and how this experience motivated her advocacy and campaigning work. The presentation promotes building agency through relationships, mobilizing people rather than just structures, and connecting with influencers to drive conversations.

1. From Me to We
Sharing Stories, Working Together,
Transforming Services
Leigh Kendall
NHS Horizons
Leigh Kendall
Communications Lead, NHS Horizons
@leighakendall
Better Births South West, 6 November 2018
#BetterBirths

2. • A small, diverse team of people within the
NHS that supports change agents and
builds change agency.
• We tune into the latest change thinking and
practice in healthcare and other industries
around the world.
• The team has emerged through
years of supporting change
in the NHS and the wider
health and care system.
#BetterBirths

3. • 4.7 million population
• 9000 square miles
• 9 CCGs
• 12 LAs (8 Unitary, 4 County
Councils)
• 14 Acute Trusts
• 4 MH trusts
• 6 STP’s/LMS’s
• 50,000 live births
• Distance between our furthest
reaches is similar distance as
London to Newcastle
• Limited transport infrastructure –
both road and public transport and
further west you go the slower it
gets by road or rail
South West Clinical Network
#BetterBirths

4. • Introduce yourself to someone near you whom you don’t know
• Tell them what you’re most proud of about maternity services where
you work
We’re All About Humans
#BetterBirths

5. My Story
• HELLP syndrome at 24 weeks’
pregnant (rare, life-threatening
pregnancy complication – can cause
multiple organ failure unless baby is
born).
• My son Hugo weighed just 420
grams (about the same size as
a tin of baked beans)
• Hugo lived for 35 days.
• He was too small, and
premature. His treatment was
withdrawn.
#BetterBirths

6. • I was transferred to a hospital two hours
away from my home, where Hugo was
born.
• Lack of communication between maternity,
neonatal, and ICU (staff argued over
whose responsibility I was).
• Lack of communication between tertiary
services and my local hospital.
• Lack of follow-up support.
Complications
#BetterBirths

7. Life after…
• Diagnosed with post-
traumatic stress
disorder.
• Finding appropriate
support took more than
two years.
• Trying to find a ‘new
normal’, a way of living
a life unexpected.
#BetterBirths

8. My new normal…
• I started a blog:
Headspace Perspective
• I am a patient leader
and campaigner –
#HugosLegacy
#MatExp
• Co-led the Nobody’s Patient
project with Maternity
Challenge Funding
#BetterBirths

9. Campaigning…
• Campaigning for improved
support for bereaved parents
• Raising awareness of
pregnancy complications,
and issues affecting neonatal
families.
• Spoken at House of
Commons, and House of
Lords
#BetterBirths

10. #BetterBirths
The Better Births Workstreams Model

11. #BetterBirths
It’s all important
The focus can
often be on
this part
(workstreams
will change)
How do we make
sure we don’t lose
focus of this part?
(That should always
be at the centre of
all we do)

12. #BetterBirths

13. Because we WANT to,
not because we HAVE to
#BetterBirths

14. Which kind of activists are most successful
at creating agency & delivering results?
Lone wolves
Build power by expertise and information —
through advocacy, oversight, contributing to
committees, public comments and other forms of
consultation
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
#BetterBirths

15. Which kind of activists are most successful at
creating agency & delivering results?
Lone wolves
Build power by expertise and information —
through advocacy, oversight, contributing to
committees, public comments and other forms of
consultation
Mobilisers
Build power by mobilising people – being able to
call on large numbers of people to contribute,
engage in change and take action
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
#BetterBirths

16. Which kind of activists are most successful at
creating agency & delivering results?
Lone wolves
Build power by expertise and information —
through advocacy, oversight, contributing to
committees, public comments and other forms of
consultation
Mobilisers
Build power by mobilising people – being able to
call on large numbers of people to contribute,
engage in change and take action
Organisers
Build power by growing leaders – identifying,
recruiting and training future leaders in a distributed
network: building a community and protecting its
strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
#BetterBirths

17. Which kind of activists are most successful
at creating agency & delivering results?
Lone wolves
Build power by expertise and information —
through advocacy, oversight, contributing to
committees, public comments and other forms of
consultation
Mobilisers
Build power by mobilising people – being able to
call on large numbers of people to contribute,
engage in change and take action
Organisers
Build power by growing leaders – identifying,
recruiting and training future leaders in a distributed
network: building a community and protecting its
strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
#BetterBirths

18. Which kind of activists are most
successful at delivering change?
Lone wolves
Build power by expertise and information —
through advocacy, oversight, contributing to
committees, public comments and other forms of
consultation
Mobilisers
Build power by mobilising people – being able to
call on large numbers of people to contribute,
engage in change and take action
Organisers
Build power by growing leaders – identifying,
recruiting and training future leaders in a distributed
network: building a community and protecting its
strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century#BetterBirths

19. #BetterBirths

20. We do not become transformed alone,
we become transformed when we’re in
relationship with others.
Hahrie Han
#BetterBirths

21. The predominant approach in recent years has been
STRUCTURE but globally there is a big shift towards
AGENCY
The design dilemma at the heart of
change & implementation
#BetterBirths

22. Jeremy Heimens, Henry Timms
This is New Power
old power new power
Currency
Held by a few
Pushed down
Commanded
Closed
Transaction
Current
Made by many
Pulled in
Shared
Open
Relationship
#BetterBirths

23. The people making change happen is
changing
23
List B
• The mavericks and rebels
• The deviants (positive). Who
do things differently and
succeed
• The nonconformists who see
things through glasses no one
else has
• The hyper-connected who
spread behaviours, role model
at a scale, set mountains on
fire and multiply anything they
get their hands on
• The hyper-trusted. Multiple
reasons, doesn’t matter which
ones
Source: adapted by Helen Bevan from Leandro Herrera
List A
• The Delivery Board
• The programme
sponsors
• The programme
management office
• The work stream leads
• The Clinical Leads
• The Directors of
participating functions
• The Change Facilitators
#BetterBirths

24. #BetterBirths

25. To stay in touch, connect with the 3%
Just 3% of people in
the organisation or
system typically drive
conversations with
90% of the other
people
Source: research by Innovisor
#BetterBirths

26. #BetterBirths

27. #BetterBirths

28. #BetterBirths

29. #BetterBirths

30. #BetterBirths
Create a Spectrum of Allies

31. Turn to the person next to you,
and share with them what you
hope to gain from today.
#BetterBirths

32. #BetterBirths

33. #BetterBirths

34. #BetterBirths

35. Thank you
#BetterBirths
@leighakendall / leigh.kendall@nhs.net
http://horizonsnhs.com/ / @HorizonsNHS