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From Me to We: Sharing Stories, Working Together, Transforming Services

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Presentation by Leigh Kendall to the Better Births South West Conference 6 November, 2018

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From Me to We: Sharing Stories, Working Together, Transforming Services

  1. 1. From Me to We Sharing Stories, Working Together, Transforming Services Leigh Kendall NHS Horizons Leigh Kendall Communications Lead, NHS Horizons @leighakendall Better Births South West, 6 November 2018 #BetterBirths
  2. 2. • A small, diverse team of people within the NHS that supports change agents and builds change agency. • We tune into the latest change thinking and practice in healthcare and other industries around the world. • The team has emerged through years of supporting change in the NHS and the wider health and care system. #BetterBirths
  3. 3. • 4.7 million population • 9000 square miles • 9 CCGs • 12 LAs (8 Unitary, 4 County Councils) • 14 Acute Trusts • 4 MH trusts • 6 STP’s/LMS’s • 50,000 live births • Distance between our furthest reaches is similar distance as London to Newcastle • Limited transport infrastructure – both road and public transport and further west you go the slower it gets by road or rail South West Clinical Network #BetterBirths
  4. 4. • Introduce yourself to someone near you whom you don’t know • Tell them what you’re most proud of about maternity services where you work We’re All About Humans #BetterBirths
  5. 5. My Story • HELLP syndrome at 24 weeks’ pregnant (rare, life-threatening pregnancy complication – can cause multiple organ failure unless baby is born). • My son Hugo weighed just 420 grams (about the same size as a tin of baked beans) • Hugo lived for 35 days. • He was too small, and premature. His treatment was withdrawn. #BetterBirths
  6. 6. • I was transferred to a hospital two hours away from my home, where Hugo was born. • Lack of communication between maternity, neonatal, and ICU (staff argued over whose responsibility I was). • Lack of communication between tertiary services and my local hospital. • Lack of follow-up support. Complications #BetterBirths
  7. 7. Life after… • Diagnosed with post- traumatic stress disorder. • Finding appropriate support took more than two years. • Trying to find a ‘new normal’, a way of living a life unexpected. #BetterBirths
  8. 8. My new normal… • I started a blog: Headspace Perspective • I am a patient leader and campaigner – #HugosLegacy #MatExp • Co-led the Nobody’s Patient project with Maternity Challenge Funding #BetterBirths
  9. 9. Campaigning… • Campaigning for improved support for bereaved parents • Raising awareness of pregnancy complications, and issues affecting neonatal families. • Spoken at House of Commons, and House of Lords #BetterBirths
  10. 10. #BetterBirths The Better Births Workstreams Model
  11. 11. #BetterBirths It’s all important The focus can often be on this part (workstreams will change) How do we make sure we don’t lose focus of this part? (That should always be at the centre of all we do)
  12. 12. #BetterBirths
  13. 13. Because we WANT to, not because we HAVE to #BetterBirths
  14. 14. Which kind of activists are most successful at creating agency & delivering results? Lone wolves Build power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century #BetterBirths
  15. 15. Which kind of activists are most successful at creating agency & delivering results? Lone wolves Build power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation Mobilisers Build power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century #BetterBirths
  16. 16. Which kind of activists are most successful at creating agency & delivering results? Lone wolves Build power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation Mobilisers Build power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action Organisers Build power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century #BetterBirths
  17. 17. Which kind of activists are most successful at creating agency & delivering results? Lone wolves Build power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation Mobilisers Build power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action Organisers Build power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century #BetterBirths
  18. 18. Which kind of activists are most successful at delivering change? Lone wolves Build power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation Mobilisers Build power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action Organisers Build power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century#BetterBirths
  19. 19. #BetterBirths
  20. 20. We do not become transformed alone, we become transformed when we’re in relationship with others. Hahrie Han #BetterBirths
  21. 21. The predominant approach in recent years has been STRUCTURE but globally there is a big shift towards AGENCY The design dilemma at the heart of change & implementation #BetterBirths
  22. 22. Jeremy Heimens, Henry Timms This is New Power old power new power Currency Held by a few Pushed down Commanded Closed Transaction Current Made by many Pulled in Shared Open Relationship #BetterBirths
  23. 23. The people making change happen is changing 23 List B • The mavericks and rebels • The deviants (positive). Who do things differently and succeed • The nonconformists who see things through glasses no one else has • The hyper-connected who spread behaviours, role model at a scale, set mountains on fire and multiply anything they get their hands on • The hyper-trusted. Multiple reasons, doesn’t matter which ones Source: adapted by Helen Bevan from Leandro Herrera List A • The Delivery Board • The programme sponsors • The programme management office • The work stream leads • The Clinical Leads • The Directors of participating functions • The Change Facilitators #BetterBirths
  24. 24. #BetterBirths
  25. 25. To stay in touch, connect with the 3% Just 3% of people in the organisation or system typically drive conversations with 90% of the other people Source: research by Innovisor #BetterBirths
  26. 26. #BetterBirths
  27. 27. #BetterBirths
  28. 28. #BetterBirths
  29. 29. #BetterBirths
  30. 30. #BetterBirths Create a Spectrum of Allies
  31. 31. Turn to the person next to you, and share with them what you hope to gain from today. #BetterBirths
  32. 32. #BetterBirths
  33. 33. #BetterBirths
  34. 34. #BetterBirths
  35. 35. Thank you #BetterBirths @leighakendall / leigh.kendall@nhs.net http://horizonsnhs.com/ / @HorizonsNHS

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