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Compiled by: Leigh Kendall @leighakendall ,
and Rosie Redstone @rosieredstone
of the Horizons team.
Empowering People and
Communities Taskforce
Report of the tweet chat about frailty held on
Thursday 30 August 2018
1
Contents
Slide
What happened in the tweet chat? 3
What is the Empowering People and Communities Taskforce? 3/4
What happened in the tweet chat? 5
What were the outputs? 6
The themes that emerged:
- What is frailty?
- Diagnosis and support
- Is ‘frailty’ the right word to use?
- Challenging stereotypes of frailty
- Hearing about the experiences of people living with frailty
7 to 18
2
What is the Empowering People and Communities
Taskforce?
Formed in September 2017, the Taskforce oversees delivery across the health and care system on
progress being made towards achieving the ambitions for empowering people and communities set
out in the Five Year Forward View, facilitated by the People and Communities Board as the six
principles for empowered people and communities.
In particular, the taskforce will be focused on three interrelated ambitions:
(i) People – Population engagement, participation and co-production in supporting the future delivery
of services and policy;
(ii) Patients – The role of insight and learning from the experience of patients, families and carers in
improving the quality and outcomes of services;
(iii) Voluntary Sector – Our partnerships with voluntary, community and social enterprise (VCSE)
sector organisations to both add value to our work and deliver a wider range of services that are
holistic in nature and focus on wellbeing
3
Members of the Taskforce
The taskforce is chaired by Lord Victor Adebowale, NHE England Non-Executive Director and Chief
Executive of Turning Point, and the vice chair is Michelle Mitchell, also NHS England Non-Executive
Director and Chief Executive of the MS Society.
Other members include:
• Chris Askew, Diabetes UK
• Jabeer Butt, Race Equality Foundation and member of the VCSE Health and Wellbeing Alliance
• Neil Churchill, NHS England
• Jane Cummings, NHS England
• Martin Farron, York City Council
• Alex Fox OBE, Chair of the VCSE Oversight Group and Shared Lives Plus
• Fatima Khan-Shah, Patient and Public Voice (PPV) Partner
• Michael Macdonnell, NHS England
• Jeremy Taylor, National Voices and member of the VCSE Health and Wellbeing Alliance
Previous Taskforce Topics
• Experience of cancer care
• Co-production and patient experience
• Co-production in mental health commissioning
• Personalised Care
4
What happened in the tweet chat?
On Thursday 30 August 2018 a tweet chat was held about
frailty on behalf of the Empowering People and
Communities Taskforce. The chat was hosted by
@horizonsnhs
The following questions were asked:
1. Introduce yourself
2. What do you understand by the term ‘frailty’?
3. We don’t think we hear enough about experiences of
people living with frailty. What can we do to improve
that?
4. Do you have any examples of where a voluntary or
community group has supported people living with
frailty?
79 people participated with a total
audience of 250,353 generating
439 tweets.
Source: FollowtheHashtag
The #EPCT influencers. Source: Symplur
Most participants were from the UK, with
some in the US, Australia, and New Zealand.
Source: FollowtheHashtag
5
What were the outputs?
The NHS Horizons team evaluated the 439 tweets* from the tweet chat.
We grouped the ideas into the following themes:
- What is frailty? – There is no one definition of ‘frailty’. There is also a lot of misconception and
misunderstanding about what frailty is, what it means, and who experiences it.
- Diagnosis and support – The importance, as with any condition, of early diagnosis and appropriate
support. This is complicated by the misconceptions as above.
- Is ‘frailty’ the right word to use? – Due to the misconceptions related to the term, is ‘frailty’ the right
word to use? People might not identify themselves as ‘frail’, which presents further challenges in being
able to offer appropriate support.
- Challenging stereotypes of frailty- Old doesn’t mean frail, and frail doesn’t mean old!
- Hearing about the experiences of people living with frailty
Tweets about these topics are grouped on pages 7 to 18.
Leigh Kendall, Communications Lead, NHS Horizons
How to run a successful twitter chat6
What is ‘frailty?’
7
What is ‘frailty’? (continued)
8
What is frailty? (continued)
9
Diagnosis and Support
10
Diagnosis and Support (continued)
11
Diagnosis and Support (continued)
12
Diagnosis and Support (continued)
13
Is ‘frailty’ the right word to use?
14
Is ‘frailty’ the right word to use?
(continued)
15
Challenging stereotypes of frailty
16
Hearing about the experiences of people living
with frailty
17
Hearing about the experiences of people living
with frailty
18

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Empowering People and Communities Taskforce Tweet Chat on Frailty 30 August 2018

  • 1. Compiled by: Leigh Kendall @leighakendall , and Rosie Redstone @rosieredstone of the Horizons team. Empowering People and Communities Taskforce Report of the tweet chat about frailty held on Thursday 30 August 2018 1
  • 2. Contents Slide What happened in the tweet chat? 3 What is the Empowering People and Communities Taskforce? 3/4 What happened in the tweet chat? 5 What were the outputs? 6 The themes that emerged: - What is frailty? - Diagnosis and support - Is ‘frailty’ the right word to use? - Challenging stereotypes of frailty - Hearing about the experiences of people living with frailty 7 to 18 2
  • 3. What is the Empowering People and Communities Taskforce? Formed in September 2017, the Taskforce oversees delivery across the health and care system on progress being made towards achieving the ambitions for empowering people and communities set out in the Five Year Forward View, facilitated by the People and Communities Board as the six principles for empowered people and communities. In particular, the taskforce will be focused on three interrelated ambitions: (i) People – Population engagement, participation and co-production in supporting the future delivery of services and policy; (ii) Patients – The role of insight and learning from the experience of patients, families and carers in improving the quality and outcomes of services; (iii) Voluntary Sector – Our partnerships with voluntary, community and social enterprise (VCSE) sector organisations to both add value to our work and deliver a wider range of services that are holistic in nature and focus on wellbeing 3
  • 4. Members of the Taskforce The taskforce is chaired by Lord Victor Adebowale, NHE England Non-Executive Director and Chief Executive of Turning Point, and the vice chair is Michelle Mitchell, also NHS England Non-Executive Director and Chief Executive of the MS Society. Other members include: • Chris Askew, Diabetes UK • Jabeer Butt, Race Equality Foundation and member of the VCSE Health and Wellbeing Alliance • Neil Churchill, NHS England • Jane Cummings, NHS England • Martin Farron, York City Council • Alex Fox OBE, Chair of the VCSE Oversight Group and Shared Lives Plus • Fatima Khan-Shah, Patient and Public Voice (PPV) Partner • Michael Macdonnell, NHS England • Jeremy Taylor, National Voices and member of the VCSE Health and Wellbeing Alliance Previous Taskforce Topics • Experience of cancer care • Co-production and patient experience • Co-production in mental health commissioning • Personalised Care 4
  • 5. What happened in the tweet chat? On Thursday 30 August 2018 a tweet chat was held about frailty on behalf of the Empowering People and Communities Taskforce. The chat was hosted by @horizonsnhs The following questions were asked: 1. Introduce yourself 2. What do you understand by the term ‘frailty’? 3. We don’t think we hear enough about experiences of people living with frailty. What can we do to improve that? 4. Do you have any examples of where a voluntary or community group has supported people living with frailty? 79 people participated with a total audience of 250,353 generating 439 tweets. Source: FollowtheHashtag The #EPCT influencers. Source: Symplur Most participants were from the UK, with some in the US, Australia, and New Zealand. Source: FollowtheHashtag 5
  • 6. What were the outputs? The NHS Horizons team evaluated the 439 tweets* from the tweet chat. We grouped the ideas into the following themes: - What is frailty? – There is no one definition of ‘frailty’. There is also a lot of misconception and misunderstanding about what frailty is, what it means, and who experiences it. - Diagnosis and support – The importance, as with any condition, of early diagnosis and appropriate support. This is complicated by the misconceptions as above. - Is ‘frailty’ the right word to use? – Due to the misconceptions related to the term, is ‘frailty’ the right word to use? People might not identify themselves as ‘frail’, which presents further challenges in being able to offer appropriate support. - Challenging stereotypes of frailty- Old doesn’t mean frail, and frail doesn’t mean old! - Hearing about the experiences of people living with frailty Tweets about these topics are grouped on pages 7 to 18. Leigh Kendall, Communications Lead, NHS Horizons How to run a successful twitter chat6
  • 8. What is ‘frailty’? (continued) 8
  • 9. What is frailty? (continued) 9
  • 11. Diagnosis and Support (continued) 11
  • 12. Diagnosis and Support (continued) 12
  • 13. Diagnosis and Support (continued) 13
  • 14. Is ‘frailty’ the right word to use? 14
  • 15. Is ‘frailty’ the right word to use? (continued) 15
  • 17. Hearing about the experiences of people living with frailty 17
  • 18. Hearing about the experiences of people living with frailty 18