Israel Palestine Conflict, The issue and historical context!
Agenda 22 06_17
1. IPOPI 9TH
PID FORUM
GROWING OLDER WITH PIDs:
ISSUES OF TRANSITIONAL CARE AND AGEING
THURSDAY 22 JUNE 2017 | 11:00 - 13:00
ROOM ASP3H1 | EUROPEAN PARLIAMENT | BRUSSELS
11.00 Welcome address
Dr Elena Gentile MEP, Committee on the Environment,
Public Health and Food Safety
11.05 Setting the scene
Leire Solis, IPOPI
11.10 EU actions on rare diseases
Dr Jarosław Waligóra, European Commission
11.20 EMRaDi: a field analysis of rare disease patient pathways
Alain Coheur, Solidaris Mutual Health Insurance (Belgium), Member of the EESC
11.30 Transition of care for primary immunodeficiency patients: from youth to adult
Patient perspective – Andrea Gressani, Association of Primary Immunodeficiencies, Italy
Nurse perspective – An Reniers, International Nursing Group for Immunodeficiencies
Physician perspective – Dr Nizar Malhaoui, Necker-Enfants Malades Hospital, France
12.00 Ageing with a primary immunodeficiency
Patient perspective – Janika Sundström, Primary Immunodefiencies Patient Organisation, Finland
Physician perspective – Prof Martin Van Hagen, Erasmus MC
Social perspective – Dr Renate Heinisch, Federal Association
of German Senior Citizens' Organisations, Member of the EESC
12.30 Discussion
12.55 Conclusions
Carlos Zorrinho MEP, Committee on the Environment,
Public Health and Food Safety
