The document discusses the growth of digital health data and Estonia's successful national health information system. It argues that a digital single market for health in Europe would empower citizens, improve health, and advance the digital economy by establishing a framework for individuals to actively manage their own health data across borders through value-adding services, oversight of data usage, and secure integration of information. Estonia aims to serve as an example for efficient digital services and citizen-centric healthcare through its national eHealth strategy and investments in areas like personalized medicine.

1. Building European digital health environment:
view from an open eSociety - Estonia
Mobile World Congress, Barcelona, 24 Feb 2016
Ain Aaviksoo, MD MPH
Chief Information and Innovation Officer

2. Mobile World Congress 2016 - Aaviksoo
2013 2020
The volume of (digital) data in healthcare
is growing inconceivably
• 153 exabytes
• 5,500 miles'
stack of laptops
• 2,314 exabytes
• 82,500 miles'
stack of laptops
Source: IDC/EMC Digital Universe Study 2014

3. Mobile World Congress 2016 - Aaviksoo
„In the next 10 years,
data science will do more for medicine
than all biological sciences combined“
Vinod Khosla, Khosla Ventures
29 Sept, 2013, Stanford Medicine X Keynote
https://www.youtube.com/watch?v=SxVJoKqrOsI

4. Mobile World Congress 2016 - Aaviksoo
„Big data is not just a quantitative change,
it is a conceptual and methodological change.
It will transform the way we do science and
the way we deliver care. “
dr Martin Rossor
via „Data-Driven Innovation.
Big Data for Growth and Well-Being“. OECD 2015

5. Mobile World Congress 2016 - Aaviksoo
Estonian National Health Information System
is successful
• Nationwide medical data exchange platform launched in 2008
✓95% of data in hospitals and family doctors’ offices is digital
✓up to 30% process efficiency - more services for the same money
✓94% of prescriptions digital - citizen satisfaction l
✓100% insurance claims digital - precise state oversight and planning
✓97% of patients have countrywide digital record - exponential demand for new services
✓60% of limited workability assessments based on HIS documents only
(i.e. without any additional paperwork or medical investigations)
✓/…/

7. Mobile World Congress 2016 - Aaviksoo
Trustworthy eSociety: robust technology implemented
with citizen-centric approach
1. Provision of truly value-adding public digital services
2. Full individual oversight over their health data usage
3. Legal & technical framework for transparent data processing
4. Robust and secure integration of health data

8. Mobile World Congress 2016 - Aaviksoo
A chair, a computer and an individual

9. Mobile World Congress 2016 - Aaviksoo
Efficient digital services
for effective & citizen-centric health system
in support of various health needs
1
High quality
health data &
IT infrastructure
2
Citizen-centric
and personalized
care
3
Holistic care
management
processes and
collaborative
providers
4
Outcome-
oriented service
development and
analysis
5
Teleservices for
service efficiency
BETTER INFORMATION – MORE HEALTH!
Estonian
National
eHealth
Strategy
2020

10. Genome Bank (Est 2001)
52 000 donors
(5% of the population)
Digital health data
from 9 sources
(+10y history)
International investments
for personalized medicine+ +
Estonian National
Personalized Medicine
Programme
1. Feasibility and value in clinical environment
2. ICT infrastructure build-up
3. Innovation ecosystem for collaborative
R&D, clinical and business development
2016-2020
International
business collaboration
Rapid clinical application
of personalized medicine
approach & decision-
support tools
Personalized medicine
centre of excellence
Internationally open
research and business
development
collaboration platform
Example
of
a strategic
investment

11. Mobile World Congress 2016 - Aaviksoo
Digital Single Market for Health - a categorical imperative
ACCESS
for consumers & businesses
ENVIRONMENT
for innovation & development
ECONOMY & SOCIETY
with strong growth potential
Empowered
citizens/
Effective
health
system
New
products &
services
Well-
monitored
patients
Growing
health
economy
Citizen-
centered
services
Cross-
border
collaboration

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Empowering all European individuals with
... technologial, organisational and legal framework to
actively manage their own health data
will yield in ...
1. opportunities to improve the health of European citizens
2. contribute to the advancement of European digital economy

13. Mobile World Congress 2016 - Aaviksoo
We just do IT here
… but IT is only the beginning
Further inquiries:
Ain.Aaviksoo@sm.ee