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  1. 1. Haemophilia Haemophilia is a inherited and lifelong blood disorder where an essential blood clotting factor is either party or completely missing. It occurs in all racial groups and affects about 1 in 10,000 of the male population.
  2. 2. What is Haemophilia? <ul><li>Haemophilia is passed from parent to child it cannot be caught. </li></ul><ul><li>Men with haemophilia pass the gene that has messages for haemophilia on to their daughters,but not their sons </li></ul><ul><li>These daughters blood usually clots normally though they carry the gene for Haemophilia in their blood they are called “carriers” </li></ul><ul><li>When these daughters have babies, they may pass </li></ul><ul><li>haemophilia on to some of their children. Affected </li></ul><ul><li>girls will be carriers of the haemophilia gene, like </li></ul><ul><li>them. Affected boys will have haemophilia. </li></ul>
  3. 3. Is All Haemophilia The Same? <ul><li>No </li></ul><ul><li>If a person has a small amount of factor VIII or factor IX, his haemophilia is moderate. He will most likely bleed less often than a person with severe haemophilia, and usually following an accident. </li></ul><ul><li>If a person’s factor VIII or factor IX level is just a bit higher than in moderate haemophilia, but still below the level needed for a good clot, his haemophilia is mild. Unusual bleeding will only happen when people like this have a tooth taken out or when they have an operation or a big accident. </li></ul><ul><li>All people with haemophilia must see a haemophilia healthcare worker if they need to have a tooth taken out or have an operation, or if they have a big accident. </li></ul>
  4. 4. Will I Always Have Haemophilia? <ul><li>Yes . </li></ul><ul><li>A person with haemophilia is born with it and has it all his life. </li></ul><ul><li>The amount of factor VIII or IX in his blood usually stays the same throughout his life. </li></ul><ul><li>Once a child is an adult, he will usually bleed less often. </li></ul>
  5. 5. <ul><li>Protect toddlers with helmets and knee pads when riding a bicycle </li></ul><ul><li>Seat belts , high chair safety belts , stroller safety belts </li></ul><ul><li>Furniture with sharp edges </li></ul><ul><li>Keep harmful and dangerous items away from small children </li></ul>Safety when children have haemophilia Living with haemophilia <ul><li>Doctors who specialize in blood disorders </li></ul><ul><li>Social works – financial issues , transportation , and mental health </li></ul><ul><li>Special Dentists </li></ul>
  6. 6. How Is My Haemophilia Treated? <ul><li>Missing clotting factor can be put into the blood through a needle in the person’s vein. </li></ul><ul><li>This added clotting factor only lasts for a short time. </li></ul><ul><li>If a person has treatment during the morning, it may not be working any more by the evening. </li></ul>
  7. 7. <ul><li>Researchers are trying to develop ways to correct the defective gene’s that cause hemophilia </li></ul><ul><li>Such as gene therapy hasn’t yet developed to the point that its an accepted treatment </li></ul><ul><li>Researchers continue to test </li></ul><ul><li>gene therapies for hemophilia </li></ul><ul><li>in clinical trails </li></ul>Gene Therapy
  8. 8. <ul><li>Rare bleeding disorder that causes excessive bleeding and easy bruising </li></ul><ul><li>If you have hemophilia you have little to none of certain clotting factors </li></ul><ul><li>Physical activity is important for the children and adults living with hemophilia </li></ul>Key Points
  9. 9. THANK YOU!