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BUILDING
A SELF-
CARE
TOOLBOX
Julie Larson, LCSW
Changing landscape
Changing self-care
NEWLY DIAGNOSED (Change inTreatment Plan)
■ Education on individuality of diagnosis and
treatment options
■ Formulating questions for medical team
■ Navigating the hospital system
■ Learning the members of the medical team and
their role
■ Pacing information and getting organized
Beginning the
Toolbox
■ Establish a list of trusted
resources for educating yourself
■ Connect with a support group or
cancer mentor for a first-person
perspective to gather tips and
tricks for coping
■ Get a binder or notebook to
organize information in one
place
■ Write down all questions then
prioritize them before medical
appointments
■ Consider what you want people
to know as you begin to share
the news.
EmotionalToolbox
Starter Kit
■ Noticing.
■ Connecting with body
■ Connecting with others
■ Paying attention to
what is working for you
& what is not.
■ Learn how stress shows
up for you
Changing landscape
Changing self-care
ACTIVETREATMENT
■ Track treatment to understand side
effects and changes throughout course of
care
■ Need for control
■ Navigating work or school
■ Supporting or establishing boundaries
with family & loved ones
■ Understanding & accessing supportive
care resources
Adding to the
EmotionalToolbox
■ Breaking time into
manageable chunks
■ Fine tuning self-awareness
about unmet needs
■ Self-compassion Break:
– Reality Check
– Acceptance
– Manage expectations
■ Connection with other
survivor peers
■ Prepare scripts for
challenging situations
A Support System
Who’s Who
■ Health Care Professionals
■ Peers (other who “get it!”)
■ Friends and Family
Health Care
Professionals
■ Identify the qualities that are
uniquely important to you about
this important relationship
■ Points to Consider:
- Practical Reasons: Location,
Cost or Insurance
- Professional Reasons:
Training, Background or
Experience
- Interpersonal Reasons:
Gender, Age or Style
Remember, a professional who works well with one person may not be a good choice for someone els
Peer to Peer
Support Groups
■ Feel more normal
■ Share information
■ Unite to effect real
change
■ Learn from others
■ Provide support in
fulfilling ways
■ Find reassurance and
validation
Family & Friends
■ You have a history within
these relationships that may
be informative
■ May be more available to
you on a consistent basis.
■ You may feel more
comfortable sharing
vulnerabilities
■ They may serve as an
escape or distraction
The Feelers,The Doers &The Distractors
YOU
FEELING
Friends
DOING
Friends
RESPITE
Friends
CommunicationTools
■ Consider those in your support network. Who is
the best audience for your need today?
■ Create (and rehearse!) simple responses for
casual interactions
■ Have ”Conversation Changers” ready if you
need to redirect.
■ Begin to pay attention to the topics that feel
sensitive to you.
■ Talking about cancer can be complicated.
Remember, important conversations are an
ongoing dialogue, not a one shot deal.
Changing landscape
Changing self-care
POST-TREATMENT SURVIVORSHIP
■ Grieving losses and changes
■ Reconciling identity
■ Reconnecting with relationships and
activities outside of cancer
■ Finding meaning and purpose
Mind Body SpiritToolbox
■ Body:
– Breathwork
– Ground yourself by using your 5 senses
– Exercise – move your body
– Visualization
■ Mind:
– Challenge thoughts: What if toWhat is
– Schedule out worry
– Thought watch
– Claim your Executive Self
■ Spirit:
– Perspective
– Universal suffering
– Purpose and meaning
Building a Self-Care Toolbox

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Building a Self-Care Toolbox

  • 2. Changing landscape Changing self-care NEWLY DIAGNOSED (Change inTreatment Plan) ■ Education on individuality of diagnosis and treatment options ■ Formulating questions for medical team ■ Navigating the hospital system ■ Learning the members of the medical team and their role ■ Pacing information and getting organized
  • 3. Beginning the Toolbox ■ Establish a list of trusted resources for educating yourself ■ Connect with a support group or cancer mentor for a first-person perspective to gather tips and tricks for coping ■ Get a binder or notebook to organize information in one place ■ Write down all questions then prioritize them before medical appointments ■ Consider what you want people to know as you begin to share the news.
  • 4. EmotionalToolbox Starter Kit ■ Noticing. ■ Connecting with body ■ Connecting with others ■ Paying attention to what is working for you & what is not. ■ Learn how stress shows up for you
  • 5. Changing landscape Changing self-care ACTIVETREATMENT ■ Track treatment to understand side effects and changes throughout course of care ■ Need for control ■ Navigating work or school ■ Supporting or establishing boundaries with family & loved ones ■ Understanding & accessing supportive care resources
  • 6. Adding to the EmotionalToolbox ■ Breaking time into manageable chunks ■ Fine tuning self-awareness about unmet needs ■ Self-compassion Break: – Reality Check – Acceptance – Manage expectations ■ Connection with other survivor peers ■ Prepare scripts for challenging situations
  • 7. A Support System Who’s Who ■ Health Care Professionals ■ Peers (other who “get it!”) ■ Friends and Family
  • 8. Health Care Professionals ■ Identify the qualities that are uniquely important to you about this important relationship ■ Points to Consider: - Practical Reasons: Location, Cost or Insurance - Professional Reasons: Training, Background or Experience - Interpersonal Reasons: Gender, Age or Style Remember, a professional who works well with one person may not be a good choice for someone els
  • 9. Peer to Peer Support Groups ■ Feel more normal ■ Share information ■ Unite to effect real change ■ Learn from others ■ Provide support in fulfilling ways ■ Find reassurance and validation
  • 10. Family & Friends ■ You have a history within these relationships that may be informative ■ May be more available to you on a consistent basis. ■ You may feel more comfortable sharing vulnerabilities ■ They may serve as an escape or distraction
  • 11. The Feelers,The Doers &The Distractors YOU FEELING Friends DOING Friends RESPITE Friends
  • 12. CommunicationTools ■ Consider those in your support network. Who is the best audience for your need today? ■ Create (and rehearse!) simple responses for casual interactions ■ Have ”Conversation Changers” ready if you need to redirect. ■ Begin to pay attention to the topics that feel sensitive to you. ■ Talking about cancer can be complicated. Remember, important conversations are an ongoing dialogue, not a one shot deal.
  • 13. Changing landscape Changing self-care POST-TREATMENT SURVIVORSHIP ■ Grieving losses and changes ■ Reconciling identity ■ Reconnecting with relationships and activities outside of cancer ■ Finding meaning and purpose
  • 14. Mind Body SpiritToolbox ■ Body: – Breathwork – Ground yourself by using your 5 senses – Exercise – move your body – Visualization ■ Mind: – Challenge thoughts: What if toWhat is – Schedule out worry – Thought watch – Claim your Executive Self ■ Spirit: – Perspective – Universal suffering – Purpose and meaning