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SICK AND TIRED OF
BEING SICK AND TIRED
COPING WITH CANCER
RELATED FATIGUE
SPOON THEORY
A N H O N E S T & C O M P A S S I O N A T E C H O I C E F O R H O W Y O U S P E N D Y O U R E N E R G Y
Julie Larson, LCSW - www.julielarsonlcsw.com
Introducing…
EVERYTHING WE DO
REQUIRES ENERGY
Having a hard
conversation
Brushing
teeth
Running
errands
Connecting
with friends
Walking
the dog
Making a
meal
Julie Larson, LCSW - www.julielarsonlcsw.com
TOP TREATMENT
RELATED SIDE EFFECTS
• Loss of appetite
• Loss of hair
• Pain
• Anemia
• Nausea & Vomiting
Julie Larson, LCSW - www.julielarsonlcsw.com
BREAK IT DOWN:
Cancer related fatigue is different
than “normal” activity related fatigue
Usually not resolved by a cup of
coffee or a nap – lasts longer
Not fully understood
Not a one size fits all strategy
Energy level permeates many
different areas of our life
Julie Larson, LCSW - www.julielarsonlcsw.com
ENERGY ZAPPERS
WEAKNESS FATIGUE DEPRESSION
• Extreme tiredness
• Listless
• Drained
• Exhausted
• Decreased strength
• Loss of muscle mass
• Heaviness
• Slow – harder to move
• Hopelessness
• Lack of motivation
• Lack of interest
• Unrelenting sadness
Julie Larson, LCSW - www.julielarsonlcsw.com
IMPACT OF FATIGUE
Mental Emotional Physical
Julie Larson, LCSW - www.julielarsonlcsw.com
BUT YOU DON’T
LOOK SICK?
• Fatigue can be a silent,
lingering and insidious side
effect of cancer.
• Often a side effect survivors
“mask” and struggle to
explain to others.
• Leaves many survivors
feeling alone – all of which
compound the fatigue!
Julie Larson, LCSW - www.julielarsonlcsw.com
YEP. KNEW ALL OF THAT.
… NOW WHAT?!
1. How do YOU understand and respond to your differing energy levels?
2. What can you say to OTHERS to manage expectations and help them get it?
3. Can this change over time?
Julie Larson, LCSW - www.julielarsonlcsw.com
SPOON THEORY
FIRST DEFINED BY CHRISTINE MISERANDINO
An analogy to help you visualize
your energy, so you make
intentional choices about how
you navigate your day based on
how much energy different
activities demand.
Spoon Theory fine tunes your
self-awareness, helps you
understand your own limits and
and communicate with others to
set boundaries and protect
yourself. Julie Larson, LCSW - www.julielarsonlcsw.com
HOW DO YOU “SPEND” YOUR SPOONS?
Get out of bed
Get dressed
Get medication
Watch TV, Play Games
Shower/bathe
Read or Study
Work on Computer
Calling a friend
Laundry
Make a meal
Going for a walk
Running an errand
Hard conversation
Working
Time with friends
Travel
SPOON
=
UNIT
OF
ENERGY
Julie Larson, LCSW - www.julielarsonlcsw.com
RESEARCH HAS SHOWN THE MOST
EFFECTIVE TREATMENT FOR FATIGUE…
Julie Larson, LCSW - www.julielarsonlcsw.com
KEY FACTORS FOR THOSE WHO
MANAGE THEIR FATIGUE…
Julie Larson, LCSW - www.julielarsonlcsw.com
SELF CARE ALWAYS BEGINS
WITH SELF-AWARENESS
How many Spoons
are available to you
on this day?
Develop a habit of checking in with yourself.
Can I name the feeling I am having?
Where am I feeling this stress in my body?
What am I doing that is helpful?
What am I doing that is not working well for
me?
Julie Larson, LCSW - www.julielarsonlcsw.com
WHAT IMPACTS YOUR AMOUNT OF
SPOONS ON A GIVEN DAY?
• Bad night of sleep
• Upcoming medical appointment or scan
• A social event the day before
• A hard or emotional conversation that is still
on your mind or upcoming
• Work deadlines
• Negative self-talk
• Caring for others (children, friends, older
parents?)
• Physical labor the day before
The number of Spoons you have each day may change over time.
Julie Larson, LCSW - www.julielarsonlcsw.com
VISUALIZE ENERGY BANK ACCOUNT
“What draws on my energy in an unhelpful
way?
STRESSFUL RELATIONSHIPS WORRY PAIN
SLEEP PROBLEMS
“What isn’t working? What is
helpful?”
HEALTHY EATING REGULAR EXERCISE HUMOR
MEANINGFUL WORK
Julie Larson, LCSW - www.julielarsonlcsw.com
TAKING INVENTORY
PLANNING:
Watch for patterns. Learn your triggers. Begin to
assign values to physical, mental and emotional
tasks.
PRIORITIZING:
Cancer can bring clarity to what matters to you.
What is urgent? What is important to you? Talk
with your loved ones to get a shared vision around
how you prioritize energy.
PACING:
Balancing optimism with realism. Managing
expectations. Hope for the best, prepare for less.
Watching for signs of crossing your limit.
Julie Larson, LCSW - www.julielarsonlcsw.com
KNOWING
WHAT TO
DO IS NOT
ENOUGH
Begin tracking your effort to address cancer related
fatigue
Problem solve
Seek support from others on the same journey
Talk about the strategies to address fatigue, your
small successes and obstacles with other survivors
and your health care team
Keep a diary
Take notes on what you have done (even if it is
small) so you can see change over time
Julie Larson, LCSW - www.julielarsonlcsw.com
THE
IMPACT OF
FATIGUE
Mood Performance
Socialization
Self-
confidence
So, doesn’t it also mean that addressing
our fatigue could have a beneficial
impact on all of these things!
Julie Larson, LCSW - www.julielarsonlcsw.com
REQUIRES SPECIAL
POWERS
ADAPTIVE
FLEXIBLE
GIVE YOURSELF
TIME
Julie Larson, LCSW - www.julielarsonlcsw.com

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Let's Talk About It: Sick and Tired of Being Sick and Tired

  • 1. SICK AND TIRED OF BEING SICK AND TIRED COPING WITH CANCER RELATED FATIGUE
  • 2. SPOON THEORY A N H O N E S T & C O M P A S S I O N A T E C H O I C E F O R H O W Y O U S P E N D Y O U R E N E R G Y Julie Larson, LCSW - www.julielarsonlcsw.com Introducing…
  • 3. EVERYTHING WE DO REQUIRES ENERGY Having a hard conversation Brushing teeth Running errands Connecting with friends Walking the dog Making a meal Julie Larson, LCSW - www.julielarsonlcsw.com
  • 4. TOP TREATMENT RELATED SIDE EFFECTS • Loss of appetite • Loss of hair • Pain • Anemia • Nausea & Vomiting Julie Larson, LCSW - www.julielarsonlcsw.com
  • 5. BREAK IT DOWN: Cancer related fatigue is different than “normal” activity related fatigue Usually not resolved by a cup of coffee or a nap – lasts longer Not fully understood Not a one size fits all strategy Energy level permeates many different areas of our life Julie Larson, LCSW - www.julielarsonlcsw.com
  • 6. ENERGY ZAPPERS WEAKNESS FATIGUE DEPRESSION • Extreme tiredness • Listless • Drained • Exhausted • Decreased strength • Loss of muscle mass • Heaviness • Slow – harder to move • Hopelessness • Lack of motivation • Lack of interest • Unrelenting sadness Julie Larson, LCSW - www.julielarsonlcsw.com
  • 7. IMPACT OF FATIGUE Mental Emotional Physical Julie Larson, LCSW - www.julielarsonlcsw.com
  • 8. BUT YOU DON’T LOOK SICK? • Fatigue can be a silent, lingering and insidious side effect of cancer. • Often a side effect survivors “mask” and struggle to explain to others. • Leaves many survivors feeling alone – all of which compound the fatigue! Julie Larson, LCSW - www.julielarsonlcsw.com
  • 9. YEP. KNEW ALL OF THAT. … NOW WHAT?! 1. How do YOU understand and respond to your differing energy levels? 2. What can you say to OTHERS to manage expectations and help them get it? 3. Can this change over time? Julie Larson, LCSW - www.julielarsonlcsw.com
  • 10. SPOON THEORY FIRST DEFINED BY CHRISTINE MISERANDINO An analogy to help you visualize your energy, so you make intentional choices about how you navigate your day based on how much energy different activities demand. Spoon Theory fine tunes your self-awareness, helps you understand your own limits and and communicate with others to set boundaries and protect yourself. Julie Larson, LCSW - www.julielarsonlcsw.com
  • 11. HOW DO YOU “SPEND” YOUR SPOONS? Get out of bed Get dressed Get medication Watch TV, Play Games Shower/bathe Read or Study Work on Computer Calling a friend Laundry Make a meal Going for a walk Running an errand Hard conversation Working Time with friends Travel SPOON = UNIT OF ENERGY Julie Larson, LCSW - www.julielarsonlcsw.com
  • 12. RESEARCH HAS SHOWN THE MOST EFFECTIVE TREATMENT FOR FATIGUE… Julie Larson, LCSW - www.julielarsonlcsw.com
  • 13. KEY FACTORS FOR THOSE WHO MANAGE THEIR FATIGUE… Julie Larson, LCSW - www.julielarsonlcsw.com
  • 14. SELF CARE ALWAYS BEGINS WITH SELF-AWARENESS How many Spoons are available to you on this day? Develop a habit of checking in with yourself. Can I name the feeling I am having? Where am I feeling this stress in my body? What am I doing that is helpful? What am I doing that is not working well for me? Julie Larson, LCSW - www.julielarsonlcsw.com
  • 15. WHAT IMPACTS YOUR AMOUNT OF SPOONS ON A GIVEN DAY? • Bad night of sleep • Upcoming medical appointment or scan • A social event the day before • A hard or emotional conversation that is still on your mind or upcoming • Work deadlines • Negative self-talk • Caring for others (children, friends, older parents?) • Physical labor the day before The number of Spoons you have each day may change over time. Julie Larson, LCSW - www.julielarsonlcsw.com
  • 16. VISUALIZE ENERGY BANK ACCOUNT “What draws on my energy in an unhelpful way? STRESSFUL RELATIONSHIPS WORRY PAIN SLEEP PROBLEMS “What isn’t working? What is helpful?” HEALTHY EATING REGULAR EXERCISE HUMOR MEANINGFUL WORK Julie Larson, LCSW - www.julielarsonlcsw.com
  • 17. TAKING INVENTORY PLANNING: Watch for patterns. Learn your triggers. Begin to assign values to physical, mental and emotional tasks. PRIORITIZING: Cancer can bring clarity to what matters to you. What is urgent? What is important to you? Talk with your loved ones to get a shared vision around how you prioritize energy. PACING: Balancing optimism with realism. Managing expectations. Hope for the best, prepare for less. Watching for signs of crossing your limit. Julie Larson, LCSW - www.julielarsonlcsw.com
  • 18. KNOWING WHAT TO DO IS NOT ENOUGH Begin tracking your effort to address cancer related fatigue Problem solve Seek support from others on the same journey Talk about the strategies to address fatigue, your small successes and obstacles with other survivors and your health care team Keep a diary Take notes on what you have done (even if it is small) so you can see change over time Julie Larson, LCSW - www.julielarsonlcsw.com
  • 19. THE IMPACT OF FATIGUE Mood Performance Socialization Self- confidence So, doesn’t it also mean that addressing our fatigue could have a beneficial impact on all of these things! Julie Larson, LCSW - www.julielarsonlcsw.com