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         T HE S TUTTERING F OUNDATION


                                                   The Podcast
  Clinical Trial
             A Nonprofit Organization            WINTER 2009                       Since 1947... Helping Those Who Stutter




  on Cognitive
                                           Three Guys Who Stutter...
Behavior Therapy
By Susan Block
                                              StutterTalk is a weekly podcast
   Social anxiety (i.e. anxiety aris-      where three guys who stutter talk
ing in social encounters) cannot be        openly about stuttering.
overlooked in the management of               Co-hosts Peter Reitzes, Greg
chronic stuttering. The evidence for       Snyder and Eric Jackson get to-
a relationship between anxiety and         gether and talk about
stuttering is con-                         stuttering and life.
siderable. Adults                          Peter explains, “We
who stutter have                           have fun, laugh, argue
reported high lev-                         and agree, talk about
els of trait, state,                       the stuttering world,                                   Nan Ratner and
and social anxiety                         music, movies, and                                    Lee Caggiano
on standard mea-                           our wives and girlfriends. We try         Joe Donaher share their
surement instru-
                                                                                  talk s to the
                                           and make sense of the whole stut-      “3 Guy s” from
                                                                                                 thoughts.
ments (Hancock                             tering thing by talking about it.”     StutterTalk .
& Craig, 1998; Susan Block, Ph.D.             Recently, StutterTalk’s “3 guys”
Kraaimaat,                                 attended the Stuttering Foundation      Eric Jack son
Janssen, & Vandambaggen, 1991).            Workshop Reunion reception and              holds the
Those who stutter appear to experi-        interviewed several Foundation          microphone.
ence higher than normal levels of          workshoppers for their podcast,
anxiety, independent of speech. A          asking their opinion of the training
recent, large-scale population study       they received at SFA workshops
of Australians (Craig, Hancock,            through the years.
Tran, & Craig, 2003) found trait              “The workshops include really
anxiety levels to be higher in stut-       intense practice and knowledge-
tering participants than in controls.      able discussions. You walk away        see Dr. Hugo Gregory “in action”
   This paper presents the results of      feeling comfortable with treating      during the workshop she attended.
a study in Australia in which the          people who stutter,” comments Dr.        Joe Donaher, who now leads the
authors examined social anxiety            Nan Bernstein Ratner. She noted        Philadelphia workshop, added, “It
and stuttering. The study examined         how stimulating it was for her to
the rate of social phobia among 32
                                                                                                       Continued on page 4

adults who stutter, the effects of
                                           James Waitus Garrison Remembered
speech restructuring treatment on
social anxiety, and then the effects
on anxiety and stuttering of a cog-                                        1917-2008
nitive-behavior therapy (CBT)                Longtime Stuttering Foundation     its inception in 1947.
package for social anxiety.               Board member, James Waitus               “He was razor sharp and always
                                          Garrison, passed away at home in      asked the tough questions,” noted
                    Continued on page 6   Memphis on Sept. 29,                              Foundation President
                                          2008, the morning of his                          Jane Fraser.
                                          91st birthday.                                      “He kept me on my
 Inside...                                   Jimmie was SFA                                 toes and made sure we
   10 Downing Street . . . . . . . . 3    Founder        Malcolm                            were on track at all
   Brochure for Teens .. . . . . . . 4    Fraser’s most trusted                             times, fulfilling my fa-
   Windy City Hosts ASHA . . . 5          friend and colleague and Garrison celebrate their ther’s hopes of making
                                                                   Jimmie and Louise
   Golfing for a Cause . . . . . . . 7    had been on the 70th wedding anniv er- a real difference for
   Awareness Worldwide . . . . 10         Foundation Board since sary in September 2008. those who stutter.” K
2                                                                                                    800-992-9392
                                                  THE

      www.stutteringhelp.org
                                                  STUTTERING



  Distinguished                      ʻFind Yourself a Dreamʼ Wins Emmy
                                                  FOUNDATION




Professor Emeritus                       “Find Yourself A Dream - The      school, getting an education, per-
    Bill Perkins                      Bob Love Story,” a documentary       severing over adversity, and

   Remembered
                                      about Bob Love and his struggle      achieving one’s dreams.
                                      to overcome his                                      More recently,
   William H. Perkins, a nation-      stuttering, has won                                SFA Board mem-
ally recognized authority on          an Emmy in the                                     ber, Jean Gruss rec-
stuttering, died Oct. 6, 2008.        c a t e g o r y ,                                  ommended Love as
He was 85.                            Outstanding                                        keynote speaker for
   Perkins received the American      Achievement for a                                  the 2008 Southwest
Speech-Language-Hearing               Documentary                                        Florida Blue Chip
              Association’s high-     Program. The an-                                   Community
              est honor in 1973.      nouncement was                                     Business Award
              Perkins was profes-     made on Saturday,                                  luncheon in Fort
              sor emeritus of         October 18, 2008,                                  Myers, Florida. It
              speech pathology        by the Chicago/                                    was a most fitting
              and otolaryngology      Midwest Chapter                                    setting for him as
              at the University of    of the National                                    this award recog-
 William H. Southern Califor-         Academy           of                               nizes small busi-
  Perk ins    nia’s Keck School       Television Arts &                                   ness leaders who
of Medicine, and speech com-          Sciences at their       New 2009 SFA poster with    have overcome ad-
munication at the Annenberg           50th        Annual Chicago Bulls’ legend Bob Love. versity to achieve
School for Communication. He          Chicago Midwest                                     success and shares
was awarded Distinguished             Emmy Awards ceremony.                their stories as models for other
Emeritus status at USC in 1991.          Love is not only a spokesman      entrepreneurs just as Love him-
   “Bill was a delightful and         for the Stuttering Foundation but    self has.
stimulating person, always            also is featured on the                 Love autographed his book
ready to challenge traditional        Foundation’s Famous People           and Stuttering Foundation posters
ways of seeing a problem,” said       Who Stutter poster and brochure.     for hundreds of banquet guests. K
Jane Fraser, who worked with             As Director of Community
Perkins editing several SFA           Affairs for the Chicago Bulls,                            The SFA’s
books. “He possessed a quick          Bob Love makes over three hun-                            Famous
wit and a great sense of humor.”      dred appearances each year, and                           People Who
   As      director    of     The     speaks to over 250,000 young                              Stutter poster
Stuttering Center at USC, he          people and their parents about                            and brochure.
oversaw a speech clinic that          the importance of staying in
specialized in the treatment of
stuttering. At the end of his ca-
reer, Perkins became an outspo-      entific approach that accounted       1983 as a lieutenant commander.
ken critic of his field, calling     for the subjective experience of         After retiring in 1988, Perkins
into question the conventional       the stutterer.                        devoted his career to solving what
understanding of stammering            “If science requires objectify-     he called “the unsolvable problem
and how it should be treated.        ing stutterers to the extent of di-   of stammering.” It was his contro-
   “I realized that the road we      vesting them of their subjective      versial book, Tongue Wars:
were on was not leading to an        experience because it cannot be       Recovery from Stammering, which
                                     measured traditionally by what is     challenged the profession to re-
understanding of the fundamen-                                             consider long-held orthodoxy.
                                     readily observed,” he said, “then
tal nature of stammering; it was     science is the loser.”                   He is survived by his wife, Jill
a circular track that was being        After receiving his B.S. in         and     sons,      Scott,    Kyle,
repaved regularly,” he wrote. “I     1943 from Missouri State              Christopher, and his daughter-in-
left the paving crew to blaze my     College, Perkins enlisted in the      law, Denise. The family requests
own trail in a different direction   Navy and served in World War II       that donations be made to the
by following markers of those        as a gunnery officer stationed in     Alzheimer’s Association in Dr.
who stammer.”                        the South Pacific. He retired         Perkins’ name to further scientif-
   He went on to advocate a sci-     from the U.S. Naval Reserve in        ic research.                     K
800-992-9392        3
                                                            THE
                                                            STUTTERING
         2009                                               FOUNDATION



  10 Downing Street
WINTER




     Stuttering Foundation representa-
  tives Joe Fulcher and Jane Fraser
  joined actor Michael Palin and the
  staff of the Michael Palin Centre for
  Stammering Children at the
  September 11 reception at 10
  Downing Street hosted by Mrs. Sarah
  Brown, wife of the Prime Minister
                                               A portrait of Queen Elizabeth I graces
                                               the room abov e the crowd.
  Gordon Brown, in honor of the work
  done on behalf of children who stutter.                                               Lord Max Egremont, Cabinet Minister Ed
     “It was a most remarkable experi-                                                  Balls, Sarah Brown and Michael Palin.
  ence at such an historic site,” com-
  mented Jane Fraser.
     Speakers at the reception included
  Michael Palin, The Right Honorable
  Edward Balls, and noted author,
  Lord Max Egremont.                           The Right Honorable Edward Balls,
     Cabinet Minister Ed Balls spoke           Sarah Brown and Michael Palin.
  eloquently of his difficulties as a
  stuttering child. In the past year, he
  has been a driving force in obtaining                                      Jane Fraser,
  additional funding for children who                                      Joe Fulcher,
  stammer. This funding will help ex-                                      Trav ers Reid
  pand the work the Centre does in                                         and Mrs. Reid.
  training therapists throughout the
  United Kingdom.
     The Stuttering Foundation, in
  turn, is striving to promote these ef-
  fective treatment ideas worldwide.
                                                                                            Back row: David Botterill, Oliver
                                                                                            Rawlins (a Trustee of the Michael
     Lord Max Egremont also recalled                                                        Palin Centre), Kit Sparkes andWillie
  his school days as a child who stam-                                                      Botterill. Front row: Sharon Millard,
  mered and the difficulties that they en-                                                  Sarah Broadhead, Jane Fry, Frances
  tailed. Both joined in praise for the out-                                                Cook, Diana de Grunwald, Elaine
  standing work on behalf of children                                                       Kelman, Ali Berquez and Liz Jorden.
  and young people being carried out by
  the staff of the Michael Palin Centre.            Michael Palin and Sarah Brown.
     In a recent letter to Jane Fraser,
  Balls emphasized, “Helping children
  and young people who stutter is vital.
  Meeting and talking to so many peo-
  ple who work with the Centre, or are
  patients, really demonstrated just
  how important its work is.”             K


                                                  Frances Cook , Michael Palin, Jane
                                                  Fraser and Joe Boulding.




                                                                                              Joe Fulcher and Jane Fraser at
                                                                                              10 Downing Street.

    Lord Max Egremont and Jane Fraser.                                                    Michael Palin, The Right Honorable
                                                                                        Edward Balls and 15-year-old Catherine.
4                                                                                                               800-992-9392
                                                        THE

          www.stutteringhelp.org
                                                        STUTTERING




Hot Off the Press
                                                        FOUNDATION




       The Stuttering Foundation
    just published a new brochure                                                     Co-host Bios:
                                                                                      StutterTalk
                for teens.
                    Stuttering: Myths,                                                 Greg Snyder is an adult stut-
                 Beliefs and Straight                                                 terer and is currently an assis-
                 Talk is written by                                                   tant professor at
                 Peter Reitzes, M.A.,                                                 the Department of
                 CCC-SLP, and Greg                                                    Communicative
                                                                                      Disorders at the
                  Snyder, Ph.D.
                                                                                      University        of
                     In addition to                                                   Mississippi.
                  addressing issues                                                      He earned a Ph.D.
                   facing teens and      Caroly n Gregory is interv iewed by          from the Department of
                   debunking myths,      Eric Jack son.
                                                                                      Communication Sciences and
    the brochure lists numerous re-                                                   Disorders at East Carolina
    sources, many of them new and        Podcast          Continued from front page   University. After graduation,
    available free on the Web.           has been 10 years since I attended           Greg was assistant professor in
       The brochure can be down-         the Northwestern workshop with               the Department of Hearing,
    loaded at www.stutteringhelp.org,    Hugo, June Campbell and Diane                Speech, and Language Sciences
    click on “brochures” or call 800-    Hill. It was incredibly valuable not         at Gallaudet University. Greg
    992-9392 for information on our      only in terms of treatment but also in       and his family currently reside in
    printed version.                     terms of networking with other clin-         Oxford, MS.
                                         icians.”
                                    K

                                                                                      Peter Reitzes is an adult stutterer
                                            Joe Klein, who attended this
                                                                                      and an ASHA certified, speech-
                                         year’s Philly workshop, joked that                        language pathologist
                                         since then he now knows every-
    Gets National Press                  thing there is to know. On a more
                                                                                                   working in an ele-
     Trouble at Recess
                                                                                                   mentary school and
                                         serious note, he added how much                           in private practice in
   The October issue of the na-          he valued his five workshop days.
tional publication, American                                                                       Brooklyn,        New
                                            Lee Caggiano said, “It was                             York. He is the au-
Teacher, generously spread the           tremendous to be able to be at a
word that Trouble at Recess is                                                                     thor of 50 Great
                                         workshop with Dr. David Luterman                          Activities         for
available free of charge to school       and interact with him and with               Children Who Stutter: Lessons,
libraries across the country.            other clinicians! The workshops are          Insights, and Ideas for Therapy
                    Through this         affordable, and                              Success (PRO-ED), is co-editor
                  exposure, the          you get to see the Contact                   of the Journal of Stuttering
                  Miami-Dade             world’s best thera- Information:             Therapy, Advocacy and Research
                   County school                                Web s i tes :
                                         pists doing therapy http://stutter           (www.JournalOfStuttering.com),
                   system quick-         live.” In addition talk .com and             and is adjunct professor at St.
                   ly got the            to her work as a http://stutter              John’s University and Touro
                   word to the           therapist, Lee also 101.com l :              University.
                    media spe-                                  Vo i cemai
                                         heads up Friends: 206-888-4619
                    cialists    in       The Association of Emai l :                  Eric Jackson is an adult stutter-
                    their elemen-        Young People Who stuttertalk@                er and a graduate student in the
                    tary schools         Stutter.
                                                                stuttertalk           Speech-Language
and in one week the Stuttering              Other podcasts
                                                                .com
                                                                                      Pathology program
Foundation received 55 re-               feature special                              at Brooklyn College
quests for the book! To date,            guests, such as workbook author              in New York. As a
hundreds have been sent to li-           Kristin Chmela, SFA Board mem-               Graduate Fellow in
brarians in 15 states throughout         ber Dennis Drayna, Counseling                the program, he
the country.                                                                          teaches an under-
                                         DVD “star” David Luterman, and               graduate course in
                                         many others.                                 public speaking. Eric is also a
                                 K


                                                                                      musician in two Brooklyn-based
                                           Listen to the podcasts online              bands.
                                         at http://stuttertalk.com.    K
800-992-9392          5
                                                      THE
                                                       STUTTERING
                                                       FOUNDATION




                              Windy City Hosts
WINTER   2009


                                                                                      Setting up...



                                   ASHA 2008
                                                                                                       Charlie Osborne
                                                                                                       sits on 800
                                                                                                       pounds of SFA
                                                                                                       materials - all
                                                                                                       needing to be
                                                                                                       unpack ed.




                                                                                            Carol Eck e, Frances
                                                                                            Cook , Willie Botterill,
                                                                                            and Charlie Osborne -
                                                                                            The Setup Team.
      The temperature in Chicago was
   chilly, but the Stuttering
   Foundation booth was
   bustling with warmth and
   activity at the American
   Speech-Language–Hearing
   Association Convention in                                                            Carol Eck e tak es a picture
   mid-November. The newest                                                             of the crowds waiting for
   items were hot: Trouble at
                                                                                        the ex hibitors to open.
   Recess flew off the shelf and                                           Traffic Was Hot!
   sold out on the first day!
      Many were disappointed
   to discover the 8 Tips for
   Teachers and 7 Tips for
   Talking with Your Child fly- Jones get the Stuttering Foundation
                                     Renee Shepherd, Carol Eck e and Terri
   ers had already disappeared booth ready for the big rush.
   by the second day of the
   convention. Other items proving to be
   popular were the old and the new: The
   DVD Working with Preschoolers Who
   Stutter:         Successful Intervention
   Strategies and Sharpening Counseling                                                          Carol Eck e and Terri
   Skills with David Luterman, D.Ed.
                                                                                                Jones discuss a book
                                                                       Susan Cochrane,              with an attendee.
      A record number of volunteers helped                             Vianne Bjornberg
   staff the thirty-foot booth – 33! A special                         and Caroly n Gregory .
   thanks to Steffi Schopick, Katerina Ntourou,
   Willie Botterill, Frances Cook, Patrice
   Carothers, Robin Jones, Sheryl Gottwald,
   Joseph Donaher, Rita Thurman, Vivian
   Sisskin, Judy and Tom Kuster, Jennifer
   Watson, Charlie Healey, Julie Gasway,
   Anthony Buhr, Ryan Pollard, James Panico,
   Glenn Weybright, Peter Reitzes, Charlie
   Osborne, Susan Cochrane, Bill Murphy,
   Lynne Shields, Kristin and Tom Chmela,
   Kim Krieger, Susan Short, Kathleen Scaler-
   Scott, Tom and Maria Gurrister, Dahye Choi Peter Reitzes
   and Kristel Kubart.                            helps SLPs
      Watch the video from the ASHA confer- select the per-
                                                  fect resources.
   ence at www.stutteringhelp.org.           K
6                                                                                                                       800-992-9392


                                                                                        SFA Spokesman
        www.stutteringhelp.org




    Remembering Courtney Stromsta
                                                              THE
                                                              STUTTERING
                                                              FOUNDATION




     Stuttering: Its Nature                        Several years after his death,         in the News
                                                                                          In the Nov. 3, 2008, issue of
      and Management by                          his daughter Sveri asked her
                                                 mother (Rose Stromsta) if there       Newsweek, the magazine writes,
      Courtney Stromsta,                         was perhaps a briefcase that          “Alan Rabinowitz, a long-time di-
    Ph.D., is now available at                   Sveri could have. They located        rector at the Wildlife Conservation
                                                 one that had belonged to              Society (WCS) in New York, is
     www.stutteringhelp.org.                     Courtney. Just as they were           taking a new ap-
       Click on “eBooks.”                        reaching for it, Sveri said to        proach to big cat
                                                 Rose “what if there is a book         conservation. Not
       Courtney Stromsta (1922-1995)             manuscript in there?” and indeed      only is he working
    was a profes-                                                     there was.       to bring back the
    sor of Speech                                                       This man-      world’s vanishing
    and Hearing                                                       uscript was      tiger populations,
    Science at                                                        originally       he is establishing
    We s t e r n                                                      edited by        passageways for
    Michigan                                                          Gordon           those populations to mix and pre-
    University in                                                     De Young         serve genetic diversity.
    Kalamazoo,                                                        of      Key         “Two years ago, Rabinowitz part-
    Michigan                                                          Publishing       nered with philanthropist Tom
    from 1968 to                                                      Services in      Kaplan to form Panthera, a nonprof-
    1987. Along                                                       1994. It has     it firm devoted to cat conservation.
    with       Dr.                                                    not been re-     Their first objective is constructing
    Charles Van                                                       edited for       ‘genetic corridors,’ which will tra-
    Riper,      he                                                    more con-        verse wilderness and cultivated land
    conducted                                                         temporary        alike to connect existing habitats
    research into                                                     vocabulary.      and allow individual cats to seek
    the problem                                                       The term         new territory for prey and new pop-
    of stuttering,                                                    “stutterer”      ulations for breeding. Think of these
    looking for                                                       while not        as a kind of underground railroad for
    ways to improve therapy.                     used as frequently now, was the       tigers: the conductors are the cats
       In 1986, he published                     norm then, and has been retained      themselves, and the endangered
    Elements of Stuttering which is              for this edition.                     cargo they bear is their genes.”
    now available from the                                                                For the complete article, visit our
    Stuttering Foundation.                         ~ Carroll Guitar             K
                                                                                       Web site, www.stutteringhelp.org. K


Clinical Trial       Continued from front page   participants who had received         on research by Ross G. Menzies,
                                                 CBT showed no social phobia           Sue O’Brian, Mark Onslow and
   Thirty-two adults with chronic                and greater improvements than         Ann Packman of the Australian
stuttering were randomly allocated               control participants on a range of    Stuttering Research Centre, The
to receive either speech restructur-             psychological measures of anxi-       University of Sydney, Australia;
ing (Prolonged Speech) following                 ety and avoidance. However, the       Tamsen St Clare of The University
a CBT package for social anxiety                 CBT package made no difference        of Sydney and Westmead Hospital,
or speech restructuring alone. Data              to the speech outcomes of those       Sydney, Australia; and Susan
were obtained on a variety of                    with social phobia.                   Block of La Trobe University,
speech and psychological mea-                       Consequently, it was concluded     Melbourne, Australia.
sures at pre-treatment, post-CBT,                that the CBT treatment was asso-
post–speech restructuring, and 12
                                                                                           Craig, A., Hancock, K., Tran, Y., & Craig,
                                                 ciated with significant and sus-      M. (2003). Anxiety levels in people who stut-
months follow-up.                                tained improvements in psycho-        ter: A randomized population study. Journal
   Sixty percent of the cohort
                                                                                       of Speech, Language, and Hearing Research,
                                                 logical functioning but did not im-   46, 1197–1206.
were diagnosed with social pho-                  prove fluency.                            Hancock, K., & Craig, A. (1998). Predictors
bia. Speech restructuring treat-
                                                                                       of stuttering relapse one year following treat-
                                                    This article is from the Journal   ment for children aged 9 to 14 years. Journal of
ment alone had no impact on the                  of Speech, Language, and              Fluency Disorders, 23, 31–48.
social phobia of the cohort at 12                Hearing Research Vol. 51 1451-            Kraaimaat, F. W., Janssen, P., &
                                                                                       Vandambaggen, R. (1991). Social anxiety and stut-
months follow-up. At follow-up,                  1464 December 2008. It is based       tering. Perceptual and Motor Skills, 72, 766. K
800-992-9392         7
                                                     THE
WINTER   2009                                        STUTTERING
                                                     FOUNDATION



     International Stuttering
  Awareness Day Breaks Record!
    Media coverage of International       “I have a 10-year old who stut-
 Stuttering Awareness Day, October     ters — also father, grandmother,
 22, surpassed all expectations. SFA   and great-grandmother — any
 embarked on a Letter to the Editor    new hope in last 50 years?”
 campaign sending letters to hun-                              Kentucky
 dreds of media outlets and in turn       “I am a 37- year old and have
 many newspapers printed the letter!   been dealing with this problem all
    Here are                                                 of my life. I
 a few ex-                                                   have had        Jane Fraser holding a copy of the
                                                                             Stuttering Foundation newsletter
 cerpts from                                                 no      luck    with John Tarv er on Oct. 8 at the
 e-mails re-                                                 with      my    Wedgewood Golf Club.
 ceived from                                                 stuttering. I
                                                                               Shelby Railroad
 readers:                                                    need your
    “My son                                                  help.”
 is 14 years                                                      Florida      Keeps on Track
                                                                                for Stuttering
 old.      He                                                  “I have
 stutters,                                                   an inter-
 and I want                                                  mittent
 to      know                                                stutter. It        Kirk and John Tarver and
 how I can                                                   comes and       their Memphis-based Shelby
 help him. Is                                                g o e s .       Railroad Services Inc. raised
 it too late?                                                However, I      a record $6,000 to help those
    New York                                                 work in an      who stutter. Jane Fraser was
    “I am the                                                office envi-    in attendance to receive this
 parent of a                                                 ronment,        outstanding gift along with
 3-year old                                                  and it is       Pat Hamm, the Office
 boy. He just                                                becoming        Manager of the Stuttering
 started hav-                                                frequently      Foundation.
 ing trouble                                                 a source of        The      annual    Tin-Cup
 with the be-                                                embar-          Tournament took place on Oct.
 ginning of                                                  rassment.”      8 at Wedgewood Golf Club in
 sentences.                                                         Texas    Olive Branch, Miss.
 He has trou-                                                  “I have a        This is the seventh year the
 ble starting                                                friend who      company teamed up with the
 the     word                                                has stut-       Stuttering Foundation to honor
 and seems                                                   tered hor-      Ruth McGuiness Tarver, the
 to stay stuck                                               ribly his       late mother of company presi-
 on the initial                                              whole life,     dent and founder John Tarver.
 sound and                                                   and         I   Ruth stuttered from the time
 drag it out.                                                would like      she was a young child.
 Any infor-                                                  to get some        “She was a great lady,”
 mation                                                      info to see     Shelby       Railroad     Vice
 would be                                                    if we can       President Kirk Tarver said of
 greatly appreciated.”                 help him.”                            his grandmother. “It didn’t
                      Rhode Island                                  Idaho    matter to us, but it embar-
    “Sir, I need self-therapy,            “I am both a parent and a          rassed her. Back in the ‘30s,
 there are thousands like me           teacher. I teach high school, but     there wasn’t any help.”
 here ashamed of this disorder. I      my 3 year old daughter has               “We are so grateful for the
 want to help myself and show          been stuttering for the last five     dedicated friendship and sup-
 right way to others so that they      months and lately has been get-       port the Tarvers and Shelby
 can live a dignified life.”           ting worse.”                          Railroad have shown us,”
                               India                          Montana K      Fraser said during the event. K
Dear SFA: Reader Response
 8                                                                                                            800-992-9392
                                                        THE
                                                        STUTTERING
         www.stutteringhelp.org
                                                        FOUNDATION




Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org.

Speech class is fun                                                                 tongue, shake my head and say
Dear SFA:                                                                           “ahhh.” When that happens I feel
  I was 5 when I started noticing                                                   nervous, so I try to forget that it
that I was stuttering. Then when I                                                  happened and use easy speech to
got older I kept getting madder                                                     keep talking. Easy speech is a
and madder at my stuttering. But                                                    great technique because I talk
when I was 5, I didn’t mind it                                                      more fluently and now I’m OK
‘cause I didn’t know how bad it                                                     with my stuttering.
would be. Now I’m in 2nd grade.                                                     Edgard
I’m getting used to my stuttering                                                   Orlando, Fla.
and I’m getting better. Sometimes
I still get mad at my mouth. By 6th                                                 Be proud of who you are
grade I hope I stop stuttering. I                                                   Dear SFA:
went to summer speech school and                                                      My name is Maddy. I'm 10 years
that helped me a lot. We read and                                                   old. I enjoy going to speech class
recorded stories. It was F-U-N!                 A self-portrait of Carter.          because I want to learn and get bet-
My school speech teacher teaches                                                    ter at my stuttering. My friends don't
me to relax my body. I get pluses        with my friends. I’ve been in              tease me because we all know that
for the words I am fluent on. I say      speech class for 2 years. However,         no one is perfect, but unfortunately
words with 2- and 3-syllables, and       that doesn’t bother me anymore.            there are people in the world who
I did it perfectly.                      Ever since my speech teacher told          make fun of other people. You have
Carter                                   me that everyone stutters — even           to remember stuttering is okay and
Minnesota                                she does now and then — it makes           over 3 million people in America
                                         me happy to be who I am.                   stutter, so don't be ashamed. Be
Technique helps                            My teacher teaches me how to             proud of who you are. Everyone is
Dear SFA:                                use easy speech. Sometimes we              perfect in their own way. You can do
  I am Edgard. I’m 10 years old          have homework for easy speech,             everything that you want to.
and in 5th grade. My hobbies are         and it helps me use my strategies.         Maddy, 10
being with my family, playing            When I stutter, I stick out my             St. Charles, MO
with my brothers, and playing                                                                           Continued on page 9



     Young author writes books
     Josette, 10, from Brooklyn, N.Y., has been working on a
     book series titled “Stuttering Sara.” She is writing the se-
     ries in hopes of helping other children who stutter. In the
     first book, Sara was chosen for the lead in a school play.
     But she is scared to perform because she might stutter. At
     first, Sara doesn’t even show up and the stage remains
     empty! Sara finally decides she would rather perform than
     quit the play and she comes up with an idea. She knows that
     when she speaks in unison chorus with another person, it
     helps alleviate her stuttering. So she enlists the help of a
     friend and together they successfully perform in front of the
     whole school. The play is a big success and Sara is happy
     to have conquered her stage fright with a great solution.
     Josette is a student of Peter Reitzes, M.A., CCC-SLP.                                  A n em pt y st age.
800-992-9392        9
                                                   THE
                                                   STUTTERING




                                      World War II Veteran Shares Journey
                                                   FOUNDATION
WINTER   2009

Tips for teasing
Dear SFA:
  I have gone through a lot of        Dear Stuttering Foundation,              always hold a special place in
things like kids picking on me           After seeing an article for           my memory.
and calling me names. The way         your organization in the Journal            In 1946, I joined the U.S.
I deal with it is to not pay atten-   of the American Medical                  Army Air Corp and became an
tion to them and not listen to        Association, I decided to send           aircraft mechanic. I then passed
them. Now I am 10 years old           you this letter to hopefully help        exams to become a flight engi-
and people don’t pick on me that      others who stutter today.                neer on B29s. Because I liked to
much because I’ve gotten better          First off, I have to brag a little.   talk they made me a classroom
at not stuttering.                    Today, I no longer stutter as I          and “hands on” flight instructor.
Desmond                               once did. Giving speeches to             This duty lasted for 21 years.
Chicago                               business or classroom groups is             One week after retiring in
                                      a pleasure for me. I have been a         1967 I was hired by Douglas
School, baseball are favorites        Toastmaster president and won            Aircraft Company to teach sys-
Dear SFA:                             many speech                                                  tems to air-
  I am 9 years old. I like to play    contests!                                                    line pilots and
baseball. I have been going to           I started off                                             flight engi-
speech for 6 years. My favorite       in life as a                                                 neers. Now it
subjects are science and math. I      New        York                                              was all jet air-
like school. Stuttering is like       City youngster                                               craft (DC8,
somebody hitting you in the           who could not                                                DC9         and
face. I sometimes get worried,        say my own                                                   DC10), but I
but I know its okay. I have two       name. Kids                                                   learned fast
brothers and one sister, and she      would jeer me.                                               and became a
is so cute.                           I had zero                                                   top classroom
Tripp                                 friends. I got into many fights and      instructor. After another 21
E-mail                                was expelled, failing elementary         years, I again retired.
                                      school and not attending high               I took two subsequent jobs,
Encouragement for others              school.                                  one as a DC10 pilot instructor
Dear SFA:                                In 1943, the U.S. needed mer-         at Continental Airlines, and
  My name is Cricynda (crih-          chant sailors in the war with            one as a certified teacher of an
sin-dah ). I am 11 years old and      Japan and Germany, so at age 16,         aviation course at the Long
in the 5th grade. I like to do        my Dad signed me into                    Beach City College. My ability
many things, like swimming and        Sheepshead Bay Merchant                  to talk as a teacher, instructor,
drawing. I’ve been in speech          Marine School. Dad said I might          Toastmaster, and everyday per-
class for two years. I feel okay      learn a trade and off I went to sea      son makes me feel very good.
about my stuttering. I’ve been        in the cold Atlantic.                    Education is never-ending. I
learning about one thing … Easy          Disliking icy weather, I volun-       am also a self-taught cartoonist
speech! Easy speech is slowing        teered for engine room duty. It          and often go on cruise ships to
down when you’re talking. We          was warm but the job required            entertain people with my art. I
use this very often. Our goal is      yelling information above the            started to draw because my
to use it outside of class. Thank     engine noise to the watch engi-          writing was terrible. I can
you for reading my letter. I hope     neer. I found that by yelling, I         “draw” in any language!
this helps other kids know that       didn’t stutter! No one can stutter          Today, I am 81 years old, re-
other people stutter as well.         when you yell or sing! I soon            tired three times, married 61
They are not the only ones.           learned to fake a hearing loss and       years to the same lady, and am
Cricynda                              talk louder. I was so pleased to         in relatively good health except
Orlando, Fla.                         be fluent, I talked to anyone who        for profound hearing loss.
                                      would listen.                               Stuttering can be overcome!
  Please include contact informa-        I studied the engines and sys-        Find your way, the sooner the
tion and parent’s permission when     tems and learned fast since this         better. I do hope this letter and
sending children’s drawings and       was my first real “school.” No           my story serves someone some
letters. You can e-mail them to       stuttering and no laughing kids. I       value.
info@stutteringhelp.org or mail       passed the required Coast Guard             Respectfully yours,
them to P.O. Box 11749, Memphis,      exams and advanced to better                James Walker
TN 38111-0749.                  K     jobs. The war-time sea duty will            Lakewood, CA                   K
10



The Second African Conference on Stuttering
                                                                                                           800-992-9392
                                                         THE


        www.stutteringhelp.org
                                                         STUTTERING
                                                         FOUNDATION




By Joseph Lukong                                                                     • The need for collaboration
Secretary & Board Member of                                                       among African stuttering associa-
the International Stuttering                                                      tions to share information on self
Association Coordinator General                                                   help issues, treatment and research
of Speak Clear Association of                                                     in stuttering with each other.
Cameroon                                                                             • The creation of a Federation of
                                                                                  African Stuttering Associations. A
   The International Stuttering                                                   provisional committee of three
Association (ISA) and Stuttering                                                  persons was formed: Moussa Dao
Association of Burkina Faso
                                              Attendees at the conference.
                                                                                  from Burkina Faso, Joseph
(Action Contre Le Bégaiement -                                                    Lukong from Cameroon and Zan
ABC) organized and sponsored the                                                  Camera from Mali.
Second African Conference on                                                         • Emphasis on the need for
Stuttering      in     Ouagadougou                                                training of African speech pathol-
Burkina Faso during October 27th          After the conference, Anne
                                                                                  ogists who specialize in stuttering.
– 30th. The conference explored
                                          Marie Simon works with a
                                          person who stutters.                    - Advocacy efforts to be made to-
Stuttering In Africa: Strategies for                                              ward African governments in view
Effective Reawakening.                     Moussa Dao, president of               of recognizing stuttering as a com-
   The opening ceremony took place         the Burk ina Stutterers’
                                                                                  munication disorder and for it to be
at the auditorium of the Burkinabe         Association.
                                                                                  given due attention.
Shippers        Council      (Conseil
Burkinabe des Chargeurs) and was                                                     • The ISA and other internation-
chaired by the Representative of the                                              al bodies should offer financial
Minister of State in Charge of                                                    and other assistance to young
                        Foreign                                                   African associations to enable
  World Event Affairs and                 Anne Marie and Dr. Moussa Dao           them to take off and work for PWS
  Approximately         Regional          discuss stuttering on liv e TV.         in their respective countries.
  230 delegates at-     Integration of                                               • The wish to continue hosting
  tended the confer-                                             Blind children
                        Burkina Fas                              play musical     African conferences on stuttering
  ence with 60 dele-
  gates from
                        Speeches                                 instruments
                                                                                  for African PWS to meet and learn
  Burkina Faso.         were made                                during the
                                                                 closing          from each other. To this effect, it
  Other countries       by         Dr.                           ceremony .       was resolved that the next African
  represented were      Moussa Dao,
                        Conference         Media outlets                          conference will take place in
  Mali, Niger,
  Nigeria, Senegal,     Convenor
                                                 cov ered                         Kenya, East Africa in 2011.
                                            the ev ent.
  Mauritania, Cote      and President                                                • A million thanks to the
  D’Ivoire ( Ivory      of the Action                                             International Stuttering Association
  Coast), Ghana,        Contre Le                                                 and the Stuttering Association of
  Togo, Benin,          Begaiement;                                               Burkina Faso for organizing and
  Chad, DR Congo, T h o m a s                                  Traditional        sponsoring this conference.
  Burundi, Rwanda,      K r a l l ,
                                                               clothing and
                                                               dancing.
                                                                                     The Representative of the Minister
  Kenya,                                                                          in charge of Basic (Primary)
  Cameroon,             Coordinator
                        of the Board                                              Education of Burkina Faso presid-
  Germany, France,                       the international self-help move-        ed over the closing ceremony
  the United States     of Directors,
                                         ment for people who stutter,             promising that much attention
  of America,           presented
                                         renowned speech language patholo-        would be given by her ministerial
  Lithuania, and the B e n n y
  United Kingdom.       Ravid’s          gists, researchers, and leaders of ex-   department to stuttering in
                        speech      as   isting national stuttering associa-      Burkina Faso.
ISA Chairman Ravid was unable to         tions in Africa. Fourteen African del-   Certificates of honor were given
attend. All the major newspapers,        egates recounted their personal ex-      to people and organizations in
television and radio stations in         periences as people who stutter and      Burkina Faso to Anne Marie
Burkina Faso were present and car-       what the situation is for those who      Simon from France to the ISA rep-
ried the story of the conference.        stutter in their respective countries.   resentative, Joseph Lukong, for
   The twenty-one presentations             The following resolutions were        the ISA’s support of conferences
were made by leading members of          made …                                   on stuttering in Africa.           K
11
                                                       THE


                                                                                                   800-992-9392
                                                       STUTTERING




 I Kid You Not! Paar is an Inspiration to Others
                                                       FOUNDATION
WINTER   2009




    While Jack Paar is among the         months. During this time, the future    was in several B-movies. He co-
 most prominent of the entertain-        television legend became obsessed       starred in the 1951 movie “Love
 ers      on      the      Stuttering    with radio, constantly fantasizing      Nest,” with another newcomer,
 Foundation’s list of Famous             about overcoming his stuttering         Marilyn Monroe; ironically
 People Who Stutter, he deserves         and becoming a radio star. Every        Marilyn Monroe also struggled
 special recognition as he was           day he hosted “make believe” radio      with stuttering.
 among the first to openly address       shows in which he was the star.            Paar then turned to television,
 his stuttering in public. As host of                                            hosting quiz shows and game
 “The Tonight Show” from 1957-                                                   shows. In 1954, he became the co-
 1962, he spoke of his difficulties                                              host of CBS’ “Morning Show”
 as a stuttering child and teenager,                                             and in 1957 received the defining
 giving hope to young people.                                                    role of his career, taking over the
    Born in 1918, Paar stuttered                                                 reins of “The Tonight Show” on
 from an early age and faced the                                                 NBC from Steve Allen.
 typical problems of a child who                                                    Paar made “The Tonight Show”
 stutters. He described his stutter-                                             a staple of American culture.
 ing in his 1959 autobiography, I                                                Writing in the New York Times in
 Kid You Not. “I didn’t mix much                                                 1997, critic John O’Connor put it
 with the other children growing                                                 best: “Before Jack Paar, there were
 up. It seems strange to me now,                                                 various variety shows doing the
 when I make my living talking,                                                  midnight watch. He simplified the
 mostly without written material or                                              format into a talk show, complete
 rehearsal, but I stuttered badly as a                                           with the sofa–and-desk set that re-
 child. This made me ill at ease in      Stev e Allen, Bob Hope and Jack Paar.
                                                                                 mains a fixture. His secret?
 school and with other children.                                                 Interesting guests, far more so than
    “Like many youngsters who               Paar left school at age 16 to        the celebrity hordes working on
 stammer, I lived a great deal in the    work full-time for a radio station.     product plugs today, and an uncan-
 world of imagination and books.         At first the station only let him an-   ny ability to listen carefully and ac-
 One day I read about                    nounce the words “This is Station       tually engage in clever and often
 Demosthenes, the great Greek or-        WIBM, Jackson”. Other tasks in-         witty conversation.”
 ator, who had cured himself of          cluded sweeping the floor and              Fans were shocked and sad-
 stammering by putting pebbles in        emptying the waste baskets. In his      dened with his leaving “The
 his mouth and declaiming over           autobiography, he wrote, “They          Tonight Show” in 1962. Retiring
 the roar of the sea. Since we were      wouldn’t let me do commercials          early to a secluded life, Jack Paar
 living in Michigan, with no sea         because I stuttered, and the station    did the occasional network special.
 handy, I made the best I could do.      was so small you could walk out         One special, “Jack Paar Comes
 Instead of pebbles, I used buttons      of its coverage area by going down      Home” aired in 1986, and featured
 from my mother’s sewing box.            the street for a cup of coffee, but I   Paar talking about his past stutter-
 And with no sea shore nearer than       was a real live radio announcer.”       ing problem and how he never gave
 a thousand miles, I used my room           Eventually the station let him       up trying; urging people with chal-
 at home. Then I would stuff some        spin records and do a few commer-       lenges to strive for their dreams and
 buttons in my mouth and practice        cials; though he still stuttered on     not listen to the nay-sayers.
 speaking. I read papers and maga-       the commercials, the sponsors ac-          Jack Paar died on January 27,
 zines. I talked about anything that     tually received a bit more airtime      2004. Younger generations may
 came into my head. I read books,        because of it and did not seem to       not be familiar with him. He not
 watching myself in the mirror.          mind. Making radio his life’s goal,     only created the late night talk
 Apart from once nearly swallow-         his speech greatly improved on the      show format that has been copied
 ing a shirt button in a burst of ora-   air; and he was finally able to do      by his “Tonight Show” successors
 torical fervor, the system worked       the news and interviews, develop-       Johnny Carson and Jay Leno as
 very well. Little by little my          ing the “hemming and hawing”            well as so many others, but he con-
 speech improved.”                       style that became his trademark.        tinues to give hope and inspiration,
    At age 14 Paar was bedridden            After service in World War II,       as well as a sense of pride to the
 with tuberculosis for several           Paar tried his luck at acting and       stuttering community.               K
12                                                                                                                 800-992-9392
                                                               THE

         www.stutteringhelp.org
                                                               STUTTERING




                                             Tools for Success!
                                                               FOUNDATION




                                              The Stuttering Foundation in 2009
                                              will release a new DVD, Tools for
                                              Success, a “taster” on cognitive be-
                                              havior therapy and how it may be
                                              used in stuttering therapy.
                                                                                          Jane Fraser, Matt Murphy , Katherine
                                                                                K

                                                                                          Preston and Bob Wellington after their
                                                                                          interv iews on December 14th.

                                                                                           Katherineʼs Myths
                                                                                             Katherine Preston is traveling
                                                                                          the United States, interviewing
 Videographer Bob O’Brien films                                                           people who stutter and gathering
 Frances Cook and Willie Botterill in                                                     information for her book.
 Nov ember at the ASHA Conv ention                                                           “The book will be a compila-
 in Chicago.                                                                              tion of interviews with people
                                                                                          who stutter around America. It
                                                                                          will be aimed at debunking the
                                                                                          myths that many ‘fluent’ people
 Reaching Out to School-based therapists!                                                 have about stuttering and stop
 October 10-11, 2008: Two-day conference at Cal. State - Fullerton                        stuttering from being such a taboo
                                                                                          subject. The stutterers I am talk-
                                                                                          ing to are different ages and have
                                                                                          varying backgrounds and person-
                                                                                          alities,” shares Katherine.
                                                                                             She has already interviewed 35
                                                                                          people from all walks of life.
                                                                                          Some are well known like Jack
                                                                                          Welch of GE, conservationist Alan
     Carol Eck e at                                                                       Rabinowitz, and geneticist Dennis
      the booth.                                                                          Drayna and others are not so fa-
                                       All the SFA resources on display .                 mous but just as important to her.
                                                                                             Katherine adds, “I would be
 Bravo to the Rileys                                                                      very interested in hearing from
 for starting the 2-day                                                                   anyone who would like to be in-
 event in Fullerton                                                                       terviewed. My email address is
 and kudos to Gary                                                                        k.e.l.preston@hotmail.com.”
 Montooth, Sherri
 Wolff and the local                                                 Dav id Daly and
 NSSLHA Chapter                                                                           Ads Strike a Chord
                                                                     Walter Manning
                                                                     hold their awards.
 for keeping it alive.                                                                       Public service ads have appeared
                                  Sherri Wolff and Drs. Jeanna
                                  and Gly ndon Riley .                                    in many magazines this year – ev-
                                                                                          erything from Good Housekeeping
 July 2008                                                                                and Newsweek to The
                                                                                          National Hog Farmer!
 ASHA School                                                                                 Delta Sky Magazine,
 Conference in                                                                            which reaches millions
 Orlando reach-                                                                           of travelers each
 es hundreds of                                                                           month, has donated
 school-based                                           Carol Ecke discusses
                                                                                          space for PSAs several
 SLPs too!                                              an SFA DVD with
                                                        Ellen Estomin, the di-            times this year. If you
                                                        rector of special educa-          spot a PSA, be sure to
                                                        tion for the Pittsburgh           thank the magazine for
                         Renee Shepherd and Carol Eck e Schools, and Wendy
                         answer questions.              Wingard-Gay.                      donating space to charity. Their gen-
                                                                                          erosity is making a difference.
800-992-9392       13
                                                         THE
                                                         STUTTERING




                                             Hip Hop Rap Artist Finds His Voice
         2009


  17th Annual Media
WINTER                                                   FOUNDATION




                                                                                    AMybutgreatestfreely andnot to
 Awards Competition

                                             QWhat ainspired you to be-
                                              Interview with Travis Kruck                            obstacle is
   The Stuttering Foundation an-                                                         not focus on trying     to



                                             AImyselffoundable toway at the
nounces that it will recognize jour-                                                stutter,   speak          learn
                                                 come rap artist?                   to control my speech as I go
nalists for the thir-
teenth consecutive                                 wasn’t          express          along. Lately I've been doing
year for excellence in                                 any other                    rather well on this, but when all
reporting that fur-                          time and       joy and great           eyes are on me I tend to be as
thers the understand-                        satisfaction in doing                         choppy as the sea below
ing of this complex disorder.                something well, vocally.                      the storm and my control
   “We are happy to announce                 Performances are amaz-                        goes out the window. I’m
these awards to further public               ing! Being on stage,                          learning to block all dis-
awareness of stuttering,” said               under the lights, doing                       tractions out though and
Jane Fraser. “Media coverage                 my thing is probably the                      just try to focus on the



                                                                                            Qdream? your biggest
has grown substantially in vol-              only time I feel like a free                  subject I’m speaking on.
ume and sensitivity in recent                spirit where thoughts
years. We want to continue rec-              don’t control me; my                                What is



                                             QIs there any memory your                      Aabout alwaysbydream
ognizing outstanding reporters.”             spirit and heart do.           Trav is Kruck
   The seventeenth annual                                                                        You
Stuttering Foundation Awards                               specific                                     that big break,
will be given to journalists in two              childhood          that            that hit single, followed     your
                                             stands out regarding


                                             A
categories: print and electronic                                                    prize work of an album and just
media. They will recognize news              speech?                                making a living doing what I love
stories over the last year that:                  One story that sticks in my       to do. If you would have asked
   • Advanced the public’s un-                    head was auditioning for a        me this a couple years ago, I
derstanding of stuttering;                   school play. I had to walk up on       probably would have said to
   • Introduced information on               stage, in front of a cafeteria full    speak fluently and not stutter. But
stuttering to a significant new              of classmates and first say my         I’ve realized I will never speak
audience.                                    full name, followed by the song        perfectly nor can anyone else. I
   Print and electronic journalists          I was going to sing for the play.      shouldn't take it so seriously, but
are invited to submit copies or              When my turn came up, of               just live and have faith in myself
DVDs of their news items to the              course I was nervous and unde-         that I can do what I want to do
Stuttering Foundation, 3100


                                                                                    QIf you couldteenagerssimple
                                             niably expecting to stutter, but as    and in turn say what I want to say.
Walnut Grove Road, Suite 603,                I was waiting in line for my turn
P.O. Box 11749, Memphis, TN                  to speak I tried to focus and                             give a
38111-0749. All entries must have            block those thoughts out. Sure              message to               who


                                                                                    ARunning awayfrustrationprob-
been published or aired between              enough as the pressure I was           stutter, what would it be?
Jan. 1, 2008, and April 20, 2009.            holding back came thundering                               is not the an-
   In addition to a public an-               in, I couldn’t even say my first            swer. Hiding from the
nouncement of the Award recip-               name, only the first letter of my      lem and letting               and
ients, each honoree will receive             name about a thousand times.           anger build up inside will only
a cash award of $250.00 from                 And to make it worse, the in-          hurt you more. Building confi-
the Foundation.                              structor had thought the mic was       dence the is key in learning to



      T
                                             turned off or not working prop-        cope with your stutter. Find out
                                  K


                                             erly, so he instructed me to say       what it is you like to do and makes
                                             "mic check" and when I couldn’t        you feel worth something more
            he Stuttering Foundation of      say that, I desperately resorted to
           America is a tax-exempt or-                                              than your stutter. Soon you’ll
      ganization under section               tapping the mic head to show           have left your negative stuttering
      501(c)(3) of the Internal Revenue      him the mic was in fact working.       thoughts and judgments far be-
 Code and is classified as a private oper-   But I guess I wasn’t supposed to       hind, and you’ll be on your way to
 ating foundation as defined in section      do that, he yelled at me pretty        a future of your own choosing.



                                             Q
 4942(j)(3). Charitable contributions and    bad for that move!
 bequests to the Foundation are tax-                                                  If you would like to hear
 deductible, subject to limitations under        What is your greatest obstacle,    Kruck’s music, visit www.my
 the Code.                                       and how do you deal with it?       space.com/dapoetking.            K
16     www.stutteringhelp.org                                                                                            800-992-9392
                                                            THE
                                                            STUTTERING
                                                            FOUNDATION


                                               Jennifer Watson, Ph.D., Texas
                                               Christian University;
    The Eastern Workshop:
Newsbriefs
                                               and Ellen Reuler,
  Diagnosis and Treatment of                   M.A., Portland State
  Preschool and School-Age                     University.
     Children Who Stutter                        Fellowships cover tuition, room
        June 10-14, 2009                       and board, and CEUs are avail-
      at Boston University                     able. Download application at
Speakers include Diane Parris, M.S.,           www.stutteringhelp.org or call
Boston University; Edward G.                   800-992-9392.
                 Conture, Ph.D.,
                 Va n d e r b i l t              The Sixth IFA World Congress         Chinese celebrate 2008 International
                 University; Sheryl            on Fluency Disorders will be held      Stuttering Awareness Day .
Gottwald, Ph.D., University of New                         August 5 – 8, 2009 at
Hampshire; and Adriana DiGrande,                           the Veiga de Almeida
M.A., Boston University.                                   University located in
                                                           Rio de Janeiro, Brazil.
  The Midwestern Workshop:                                 For more information,
  Diagnosis and Treatment of                               visit www.theifa.org.
     Children Who Stutter
        June 22-26, 2009                          The 9th World Congress of
   at the University of Iowa                   the International Stuttering
Speakers include Patricia M.
Zebrowski, Ph.D.,
                                               Association will be August 1st -         Happy new year from...
                                               7th, 2010 in Beijing, China.
University of Iowa;                            For an overview                         Renee Shepherd, Joan Warner, Roberta
Toni Cilek, M.A.,                              of the theme -                          Brugge, Terri Jones, Lisa Hinton,
University of Iowa;                                                                    Anne Edwards, Jane Fraser and Pat
                                               Benefit the People                      Hamm, Susie Hall, Patty Reed, Scot
and Lisa Scott,                                Who Stutter, Benefit                    Squires, John Bell and Carol Ecke.
Ph.D., Florida State University.               the Society, and a list
                                               of speakers, as well as fees, vis-
    The Western Workshop:
                                                                                       This newsletter is published quarterly. Please
                                               itwww.bj2010isc.cn/index.ph.            e-mail address changes and story ideas to
  Diagnosis and Treatment of
                                                                                       info@stutteringhelp.org.

     Children Who Stutter
        July 15-19, 2009                                   You can donate to the
                                                                                                Volume18, Issue 1
                                                           Stuttering Foundation
 at Portland State University
                                                                                       Renee Shepherd . . . . . . . . . . . . . Editor

                                                           di rectl y thro ug h the
Directed by Susan Hamilton, M.A.,
                                                                                       Scot Squires . . . . . . . . . . Writer/Designer

                                                           United Way.
University Way Speech Services;
                                                                                       Special thanks to Joan Warner, Patty Reed,
                                                                                       Susie Hall, Pat Hamm, Lisa Hinton, Terri
                                                                                       Jones, and Carol Ecke.



     THE
     STUTTERING
     FOUNDATION
     3100 Walnut Grove Road, Suite 603
     P.O. Box 11749 • Memphis, TN 38111-0749

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Winter2009newsletter

  • 1. www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org T HE S TUTTERING F OUNDATION The Podcast Clinical Trial A Nonprofit Organization WINTER 2009 Since 1947... Helping Those Who Stutter on Cognitive Three Guys Who Stutter... Behavior Therapy By Susan Block StutterTalk is a weekly podcast Social anxiety (i.e. anxiety aris- where three guys who stutter talk ing in social encounters) cannot be openly about stuttering. overlooked in the management of Co-hosts Peter Reitzes, Greg chronic stuttering. The evidence for Snyder and Eric Jackson get to- a relationship between anxiety and gether and talk about stuttering is con- stuttering and life. siderable. Adults Peter explains, “We who stutter have have fun, laugh, argue reported high lev- and agree, talk about els of trait, state, the stuttering world, Nan Ratner and and social anxiety music, movies, and Lee Caggiano on standard mea- our wives and girlfriends. We try Joe Donaher share their surement instru- talk s to the and make sense of the whole stut- “3 Guy s” from thoughts. ments (Hancock tering thing by talking about it.” StutterTalk . & Craig, 1998; Susan Block, Ph.D. Recently, StutterTalk’s “3 guys” Kraaimaat, attended the Stuttering Foundation Eric Jack son Janssen, & Vandambaggen, 1991). Workshop Reunion reception and holds the Those who stutter appear to experi- interviewed several Foundation microphone. ence higher than normal levels of workshoppers for their podcast, anxiety, independent of speech. A asking their opinion of the training recent, large-scale population study they received at SFA workshops of Australians (Craig, Hancock, through the years. Tran, & Craig, 2003) found trait “The workshops include really anxiety levels to be higher in stut- intense practice and knowledge- tering participants than in controls. able discussions. You walk away see Dr. Hugo Gregory “in action” This paper presents the results of feeling comfortable with treating during the workshop she attended. a study in Australia in which the people who stutter,” comments Dr. Joe Donaher, who now leads the authors examined social anxiety Nan Bernstein Ratner. She noted Philadelphia workshop, added, “It and stuttering. The study examined how stimulating it was for her to the rate of social phobia among 32 Continued on page 4 adults who stutter, the effects of James Waitus Garrison Remembered speech restructuring treatment on social anxiety, and then the effects on anxiety and stuttering of a cog- 1917-2008 nitive-behavior therapy (CBT) Longtime Stuttering Foundation its inception in 1947. package for social anxiety. Board member, James Waitus “He was razor sharp and always Garrison, passed away at home in asked the tough questions,” noted Continued on page 6 Memphis on Sept. 29, Foundation President 2008, the morning of his Jane Fraser. 91st birthday. “He kept me on my Inside... Jimmie was SFA toes and made sure we 10 Downing Street . . . . . . . . 3 Founder Malcolm were on track at all Brochure for Teens .. . . . . . . 4 Fraser’s most trusted times, fulfilling my fa- Windy City Hosts ASHA . . . 5 friend and colleague and Garrison celebrate their ther’s hopes of making Jimmie and Louise Golfing for a Cause . . . . . . . 7 had been on the 70th wedding anniv er- a real difference for Awareness Worldwide . . . . 10 Foundation Board since sary in September 2008. those who stutter.” K
  • 2. 2 800-992-9392 THE www.stutteringhelp.org STUTTERING Distinguished ʻFind Yourself a Dreamʼ Wins Emmy FOUNDATION Professor Emeritus “Find Yourself A Dream - The school, getting an education, per- Bill Perkins Bob Love Story,” a documentary severing over adversity, and Remembered about Bob Love and his struggle achieving one’s dreams. to overcome his More recently, William H. Perkins, a nation- stuttering, has won SFA Board mem- ally recognized authority on an Emmy in the ber, Jean Gruss rec- stuttering, died Oct. 6, 2008. c a t e g o r y , ommended Love as He was 85. Outstanding keynote speaker for Perkins received the American Achievement for a the 2008 Southwest Speech-Language-Hearing Documentary Florida Blue Chip Association’s high- Program. The an- Community est honor in 1973. nouncement was Business Award Perkins was profes- made on Saturday, luncheon in Fort sor emeritus of October 18, 2008, Myers, Florida. It speech pathology by the Chicago/ was a most fitting and otolaryngology Midwest Chapter setting for him as at the University of of the National this award recog- William H. Southern Califor- Academy of nizes small busi- Perk ins nia’s Keck School Television Arts & ness leaders who of Medicine, and speech com- Sciences at their New 2009 SFA poster with have overcome ad- munication at the Annenberg 50th Annual Chicago Bulls’ legend Bob Love. versity to achieve School for Communication. He Chicago Midwest success and shares was awarded Distinguished Emmy Awards ceremony. their stories as models for other Emeritus status at USC in 1991. Love is not only a spokesman entrepreneurs just as Love him- “Bill was a delightful and for the Stuttering Foundation but self has. stimulating person, always also is featured on the Love autographed his book ready to challenge traditional Foundation’s Famous People and Stuttering Foundation posters ways of seeing a problem,” said Who Stutter poster and brochure. for hundreds of banquet guests. K Jane Fraser, who worked with As Director of Community Perkins editing several SFA Affairs for the Chicago Bulls, The SFA’s books. “He possessed a quick Bob Love makes over three hun- Famous wit and a great sense of humor.” dred appearances each year, and People Who As director of The speaks to over 250,000 young Stutter poster Stuttering Center at USC, he people and their parents about and brochure. oversaw a speech clinic that the importance of staying in specialized in the treatment of stuttering. At the end of his ca- reer, Perkins became an outspo- entific approach that accounted 1983 as a lieutenant commander. ken critic of his field, calling for the subjective experience of After retiring in 1988, Perkins into question the conventional the stutterer. devoted his career to solving what understanding of stammering “If science requires objectify- he called “the unsolvable problem and how it should be treated. ing stutterers to the extent of di- of stammering.” It was his contro- “I realized that the road we vesting them of their subjective versial book, Tongue Wars: were on was not leading to an experience because it cannot be Recovery from Stammering, which measured traditionally by what is challenged the profession to re- understanding of the fundamen- consider long-held orthodoxy. readily observed,” he said, “then tal nature of stammering; it was science is the loser.” He is survived by his wife, Jill a circular track that was being After receiving his B.S. in and sons, Scott, Kyle, repaved regularly,” he wrote. “I 1943 from Missouri State Christopher, and his daughter-in- left the paving crew to blaze my College, Perkins enlisted in the law, Denise. The family requests own trail in a different direction Navy and served in World War II that donations be made to the by following markers of those as a gunnery officer stationed in Alzheimer’s Association in Dr. who stammer.” the South Pacific. He retired Perkins’ name to further scientif- He went on to advocate a sci- from the U.S. Naval Reserve in ic research. K
  • 3. 800-992-9392 3 THE STUTTERING 2009 FOUNDATION 10 Downing Street WINTER Stuttering Foundation representa- tives Joe Fulcher and Jane Fraser joined actor Michael Palin and the staff of the Michael Palin Centre for Stammering Children at the September 11 reception at 10 Downing Street hosted by Mrs. Sarah Brown, wife of the Prime Minister A portrait of Queen Elizabeth I graces the room abov e the crowd. Gordon Brown, in honor of the work done on behalf of children who stutter. Lord Max Egremont, Cabinet Minister Ed “It was a most remarkable experi- Balls, Sarah Brown and Michael Palin. ence at such an historic site,” com- mented Jane Fraser. Speakers at the reception included Michael Palin, The Right Honorable Edward Balls, and noted author, Lord Max Egremont. The Right Honorable Edward Balls, Cabinet Minister Ed Balls spoke Sarah Brown and Michael Palin. eloquently of his difficulties as a stuttering child. In the past year, he has been a driving force in obtaining Jane Fraser, additional funding for children who Joe Fulcher, stammer. This funding will help ex- Trav ers Reid pand the work the Centre does in and Mrs. Reid. training therapists throughout the United Kingdom. The Stuttering Foundation, in turn, is striving to promote these ef- fective treatment ideas worldwide. Back row: David Botterill, Oliver Rawlins (a Trustee of the Michael Lord Max Egremont also recalled Palin Centre), Kit Sparkes andWillie his school days as a child who stam- Botterill. Front row: Sharon Millard, mered and the difficulties that they en- Sarah Broadhead, Jane Fry, Frances tailed. Both joined in praise for the out- Cook, Diana de Grunwald, Elaine standing work on behalf of children Kelman, Ali Berquez and Liz Jorden. and young people being carried out by the staff of the Michael Palin Centre. Michael Palin and Sarah Brown. In a recent letter to Jane Fraser, Balls emphasized, “Helping children and young people who stutter is vital. Meeting and talking to so many peo- ple who work with the Centre, or are patients, really demonstrated just how important its work is.” K Frances Cook , Michael Palin, Jane Fraser and Joe Boulding. Joe Fulcher and Jane Fraser at 10 Downing Street. Lord Max Egremont and Jane Fraser. Michael Palin, The Right Honorable Edward Balls and 15-year-old Catherine.
  • 4. 4 800-992-9392 THE www.stutteringhelp.org STUTTERING Hot Off the Press FOUNDATION The Stuttering Foundation just published a new brochure Co-host Bios: StutterTalk for teens. Stuttering: Myths, Greg Snyder is an adult stut- Beliefs and Straight terer and is currently an assis- Talk is written by tant professor at Peter Reitzes, M.A., the Department of CCC-SLP, and Greg Communicative Disorders at the Snyder, Ph.D. University of In addition to Mississippi. addressing issues He earned a Ph.D. facing teens and Caroly n Gregory is interv iewed by from the Department of debunking myths, Eric Jack son. Communication Sciences and the brochure lists numerous re- Disorders at East Carolina sources, many of them new and Podcast Continued from front page University. After graduation, available free on the Web. has been 10 years since I attended Greg was assistant professor in The brochure can be down- the Northwestern workshop with the Department of Hearing, loaded at www.stutteringhelp.org, Hugo, June Campbell and Diane Speech, and Language Sciences click on “brochures” or call 800- Hill. It was incredibly valuable not at Gallaudet University. Greg 992-9392 for information on our only in terms of treatment but also in and his family currently reside in printed version. terms of networking with other clin- Oxford, MS. icians.” K Peter Reitzes is an adult stutterer Joe Klein, who attended this and an ASHA certified, speech- year’s Philly workshop, joked that language pathologist since then he now knows every- Gets National Press thing there is to know. On a more working in an ele- Trouble at Recess mentary school and serious note, he added how much in private practice in The October issue of the na- he valued his five workshop days. tional publication, American Brooklyn, New Lee Caggiano said, “It was York. He is the au- Teacher, generously spread the tremendous to be able to be at a word that Trouble at Recess is thor of 50 Great workshop with Dr. David Luterman Activities for available free of charge to school and interact with him and with Children Who Stutter: Lessons, libraries across the country. other clinicians! The workshops are Insights, and Ideas for Therapy Through this affordable, and Success (PRO-ED), is co-editor exposure, the you get to see the Contact of the Journal of Stuttering Miami-Dade world’s best thera- Information: Therapy, Advocacy and Research County school Web s i tes : pists doing therapy http://stutter (www.JournalOfStuttering.com), system quick- live.” In addition talk .com and and is adjunct professor at St. ly got the to her work as a http://stutter John’s University and Touro word to the therapist, Lee also 101.com l : University. media spe- Vo i cemai heads up Friends: 206-888-4619 cialists in The Association of Emai l : Eric Jackson is an adult stutter- their elemen- Young People Who stuttertalk@ er and a graduate student in the tary schools Stutter. stuttertalk Speech-Language and in one week the Stuttering Other podcasts .com Pathology program Foundation received 55 re- feature special at Brooklyn College quests for the book! To date, guests, such as workbook author in New York. As a hundreds have been sent to li- Kristin Chmela, SFA Board mem- Graduate Fellow in brarians in 15 states throughout ber Dennis Drayna, Counseling the program, he the country. teaches an under- DVD “star” David Luterman, and graduate course in many others. public speaking. Eric is also a K musician in two Brooklyn-based Listen to the podcasts online bands. at http://stuttertalk.com. K
  • 5. 800-992-9392 5 THE STUTTERING FOUNDATION Windy City Hosts WINTER 2009 Setting up... ASHA 2008 Charlie Osborne sits on 800 pounds of SFA materials - all needing to be unpack ed. Carol Eck e, Frances Cook , Willie Botterill, and Charlie Osborne - The Setup Team. The temperature in Chicago was chilly, but the Stuttering Foundation booth was bustling with warmth and activity at the American Speech-Language–Hearing Association Convention in Carol Eck e tak es a picture mid-November. The newest of the crowds waiting for items were hot: Trouble at the ex hibitors to open. Recess flew off the shelf and Traffic Was Hot! sold out on the first day! Many were disappointed to discover the 8 Tips for Teachers and 7 Tips for Talking with Your Child fly- Jones get the Stuttering Foundation Renee Shepherd, Carol Eck e and Terri ers had already disappeared booth ready for the big rush. by the second day of the convention. Other items proving to be popular were the old and the new: The DVD Working with Preschoolers Who Stutter: Successful Intervention Strategies and Sharpening Counseling Carol Eck e and Terri Skills with David Luterman, D.Ed. Jones discuss a book Susan Cochrane, with an attendee. A record number of volunteers helped Vianne Bjornberg staff the thirty-foot booth – 33! A special and Caroly n Gregory . thanks to Steffi Schopick, Katerina Ntourou, Willie Botterill, Frances Cook, Patrice Carothers, Robin Jones, Sheryl Gottwald, Joseph Donaher, Rita Thurman, Vivian Sisskin, Judy and Tom Kuster, Jennifer Watson, Charlie Healey, Julie Gasway, Anthony Buhr, Ryan Pollard, James Panico, Glenn Weybright, Peter Reitzes, Charlie Osborne, Susan Cochrane, Bill Murphy, Lynne Shields, Kristin and Tom Chmela, Kim Krieger, Susan Short, Kathleen Scaler- Scott, Tom and Maria Gurrister, Dahye Choi Peter Reitzes and Kristel Kubart. helps SLPs Watch the video from the ASHA confer- select the per- fect resources. ence at www.stutteringhelp.org. K
  • 6. 6 800-992-9392 SFA Spokesman www.stutteringhelp.org Remembering Courtney Stromsta THE STUTTERING FOUNDATION Stuttering: Its Nature Several years after his death, in the News In the Nov. 3, 2008, issue of and Management by his daughter Sveri asked her mother (Rose Stromsta) if there Newsweek, the magazine writes, Courtney Stromsta, was perhaps a briefcase that “Alan Rabinowitz, a long-time di- Ph.D., is now available at Sveri could have. They located rector at the Wildlife Conservation one that had belonged to Society (WCS) in New York, is www.stutteringhelp.org. Courtney. Just as they were taking a new ap- Click on “eBooks.” reaching for it, Sveri said to proach to big cat Rose “what if there is a book conservation. Not Courtney Stromsta (1922-1995) manuscript in there?” and indeed only is he working was a profes- there was. to bring back the sor of Speech This man- world’s vanishing and Hearing uscript was tiger populations, Science at originally he is establishing We s t e r n edited by passageways for Michigan Gordon those populations to mix and pre- University in De Young serve genetic diversity. Kalamazoo, of Key “Two years ago, Rabinowitz part- Michigan Publishing nered with philanthropist Tom from 1968 to Services in Kaplan to form Panthera, a nonprof- 1987. Along 1994. It has it firm devoted to cat conservation. with Dr. not been re- Their first objective is constructing Charles Van edited for ‘genetic corridors,’ which will tra- Riper, he more con- verse wilderness and cultivated land conducted temporary alike to connect existing habitats research into vocabulary. and allow individual cats to seek the problem The term new territory for prey and new pop- of stuttering, “stutterer” ulations for breeding. Think of these looking for while not as a kind of underground railroad for ways to improve therapy. used as frequently now, was the tigers: the conductors are the cats In 1986, he published norm then, and has been retained themselves, and the endangered Elements of Stuttering which is for this edition. cargo they bear is their genes.” now available from the For the complete article, visit our Stuttering Foundation. ~ Carroll Guitar K Web site, www.stutteringhelp.org. K Clinical Trial Continued from front page participants who had received on research by Ross G. Menzies, CBT showed no social phobia Sue O’Brian, Mark Onslow and Thirty-two adults with chronic and greater improvements than Ann Packman of the Australian stuttering were randomly allocated control participants on a range of Stuttering Research Centre, The to receive either speech restructur- psychological measures of anxi- University of Sydney, Australia; ing (Prolonged Speech) following ety and avoidance. However, the Tamsen St Clare of The University a CBT package for social anxiety CBT package made no difference of Sydney and Westmead Hospital, or speech restructuring alone. Data to the speech outcomes of those Sydney, Australia; and Susan were obtained on a variety of with social phobia. Block of La Trobe University, speech and psychological mea- Consequently, it was concluded Melbourne, Australia. sures at pre-treatment, post-CBT, that the CBT treatment was asso- post–speech restructuring, and 12 Craig, A., Hancock, K., Tran, Y., & Craig, ciated with significant and sus- M. (2003). Anxiety levels in people who stut- months follow-up. tained improvements in psycho- ter: A randomized population study. Journal Sixty percent of the cohort of Speech, Language, and Hearing Research, logical functioning but did not im- 46, 1197–1206. were diagnosed with social pho- prove fluency. Hancock, K., & Craig, A. (1998). Predictors bia. Speech restructuring treat- of stuttering relapse one year following treat- This article is from the Journal ment for children aged 9 to 14 years. Journal of ment alone had no impact on the of Speech, Language, and Fluency Disorders, 23, 31–48. social phobia of the cohort at 12 Hearing Research Vol. 51 1451- Kraaimaat, F. W., Janssen, P., & Vandambaggen, R. (1991). Social anxiety and stut- months follow-up. At follow-up, 1464 December 2008. It is based tering. Perceptual and Motor Skills, 72, 766. K
  • 7. 800-992-9392 7 THE WINTER 2009 STUTTERING FOUNDATION International Stuttering Awareness Day Breaks Record! Media coverage of International “I have a 10-year old who stut- Stuttering Awareness Day, October ters — also father, grandmother, 22, surpassed all expectations. SFA and great-grandmother — any embarked on a Letter to the Editor new hope in last 50 years?” campaign sending letters to hun- Kentucky dreds of media outlets and in turn “I am a 37- year old and have many newspapers printed the letter! been dealing with this problem all Here are of my life. I a few ex- have had Jane Fraser holding a copy of the Stuttering Foundation newsletter cerpts from no luck with John Tarv er on Oct. 8 at the e-mails re- with my Wedgewood Golf Club. ceived from stuttering. I Shelby Railroad readers: need your “My son help.” is 14 years Florida Keeps on Track for Stuttering old. He “I have stutters, an inter- and I want mittent to know stutter. It Kirk and John Tarver and how I can comes and their Memphis-based Shelby help him. Is g o e s . Railroad Services Inc. raised it too late? However, I a record $6,000 to help those New York work in an who stutter. Jane Fraser was “I am the office envi- in attendance to receive this parent of a ronment, outstanding gift along with 3-year old and it is Pat Hamm, the Office boy. He just becoming Manager of the Stuttering started hav- frequently Foundation. ing trouble a source of The annual Tin-Cup with the be- embar- Tournament took place on Oct. ginning of rassment.” 8 at Wedgewood Golf Club in sentences. Texas Olive Branch, Miss. He has trou- “I have a This is the seventh year the ble starting friend who company teamed up with the the word has stut- Stuttering Foundation to honor and seems tered hor- Ruth McGuiness Tarver, the to stay stuck ribly his late mother of company presi- on the initial whole life, dent and founder John Tarver. sound and and I Ruth stuttered from the time drag it out. would like she was a young child. Any infor- to get some “She was a great lady,” mation info to see Shelby Railroad Vice would be if we can President Kirk Tarver said of greatly appreciated.” help him.” his grandmother. “It didn’t Rhode Island Idaho matter to us, but it embar- “Sir, I need self-therapy, “I am both a parent and a rassed her. Back in the ‘30s, there are thousands like me teacher. I teach high school, but there wasn’t any help.” here ashamed of this disorder. I my 3 year old daughter has “We are so grateful for the want to help myself and show been stuttering for the last five dedicated friendship and sup- right way to others so that they months and lately has been get- port the Tarvers and Shelby can live a dignified life.” ting worse.” Railroad have shown us,” India Montana K Fraser said during the event. K
  • 8. Dear SFA: Reader Response 8 800-992-9392 THE STUTTERING www.stutteringhelp.org FOUNDATION Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org. Speech class is fun tongue, shake my head and say Dear SFA: “ahhh.” When that happens I feel I was 5 when I started noticing nervous, so I try to forget that it that I was stuttering. Then when I happened and use easy speech to got older I kept getting madder keep talking. Easy speech is a and madder at my stuttering. But great technique because I talk when I was 5, I didn’t mind it more fluently and now I’m OK ‘cause I didn’t know how bad it with my stuttering. would be. Now I’m in 2nd grade. Edgard I’m getting used to my stuttering Orlando, Fla. and I’m getting better. Sometimes I still get mad at my mouth. By 6th Be proud of who you are grade I hope I stop stuttering. I Dear SFA: went to summer speech school and My name is Maddy. I'm 10 years that helped me a lot. We read and old. I enjoy going to speech class recorded stories. It was F-U-N! A self-portrait of Carter. because I want to learn and get bet- My school speech teacher teaches ter at my stuttering. My friends don't me to relax my body. I get pluses with my friends. I’ve been in tease me because we all know that for the words I am fluent on. I say speech class for 2 years. However, no one is perfect, but unfortunately words with 2- and 3-syllables, and that doesn’t bother me anymore. there are people in the world who I did it perfectly. Ever since my speech teacher told make fun of other people. You have Carter me that everyone stutters — even to remember stuttering is okay and Minnesota she does now and then — it makes over 3 million people in America me happy to be who I am. stutter, so don't be ashamed. Be Technique helps My teacher teaches me how to proud of who you are. Everyone is Dear SFA: use easy speech. Sometimes we perfect in their own way. You can do I am Edgard. I’m 10 years old have homework for easy speech, everything that you want to. and in 5th grade. My hobbies are and it helps me use my strategies. Maddy, 10 being with my family, playing When I stutter, I stick out my St. Charles, MO with my brothers, and playing Continued on page 9 Young author writes books Josette, 10, from Brooklyn, N.Y., has been working on a book series titled “Stuttering Sara.” She is writing the se- ries in hopes of helping other children who stutter. In the first book, Sara was chosen for the lead in a school play. But she is scared to perform because she might stutter. At first, Sara doesn’t even show up and the stage remains empty! Sara finally decides she would rather perform than quit the play and she comes up with an idea. She knows that when she speaks in unison chorus with another person, it helps alleviate her stuttering. So she enlists the help of a friend and together they successfully perform in front of the whole school. The play is a big success and Sara is happy to have conquered her stage fright with a great solution. Josette is a student of Peter Reitzes, M.A., CCC-SLP. A n em pt y st age.
  • 9. 800-992-9392 9 THE STUTTERING World War II Veteran Shares Journey FOUNDATION WINTER 2009 Tips for teasing Dear SFA: I have gone through a lot of Dear Stuttering Foundation, always hold a special place in things like kids picking on me After seeing an article for my memory. and calling me names. The way your organization in the Journal In 1946, I joined the U.S. I deal with it is to not pay atten- of the American Medical Army Air Corp and became an tion to them and not listen to Association, I decided to send aircraft mechanic. I then passed them. Now I am 10 years old you this letter to hopefully help exams to become a flight engi- and people don’t pick on me that others who stutter today. neer on B29s. Because I liked to much because I’ve gotten better First off, I have to brag a little. talk they made me a classroom at not stuttering. Today, I no longer stutter as I and “hands on” flight instructor. Desmond once did. Giving speeches to This duty lasted for 21 years. Chicago business or classroom groups is One week after retiring in a pleasure for me. I have been a 1967 I was hired by Douglas School, baseball are favorites Toastmaster president and won Aircraft Company to teach sys- Dear SFA: many speech tems to air- I am 9 years old. I like to play contests! line pilots and baseball. I have been going to I started off flight engi- speech for 6 years. My favorite in life as a neers. Now it subjects are science and math. I New York was all jet air- like school. Stuttering is like City youngster craft (DC8, somebody hitting you in the who could not DC9 and face. I sometimes get worried, say my own DC10), but I but I know its okay. I have two name. Kids learned fast brothers and one sister, and she would jeer me. and became a is so cute. I had zero top classroom Tripp friends. I got into many fights and instructor. After another 21 E-mail was expelled, failing elementary years, I again retired. school and not attending high I took two subsequent jobs, Encouragement for others school. one as a DC10 pilot instructor Dear SFA: In 1943, the U.S. needed mer- at Continental Airlines, and My name is Cricynda (crih- chant sailors in the war with one as a certified teacher of an sin-dah ). I am 11 years old and Japan and Germany, so at age 16, aviation course at the Long in the 5th grade. I like to do my Dad signed me into Beach City College. My ability many things, like swimming and Sheepshead Bay Merchant to talk as a teacher, instructor, drawing. I’ve been in speech Marine School. Dad said I might Toastmaster, and everyday per- class for two years. I feel okay learn a trade and off I went to sea son makes me feel very good. about my stuttering. I’ve been in the cold Atlantic. Education is never-ending. I learning about one thing … Easy Disliking icy weather, I volun- am also a self-taught cartoonist speech! Easy speech is slowing teered for engine room duty. It and often go on cruise ships to down when you’re talking. We was warm but the job required entertain people with my art. I use this very often. Our goal is yelling information above the started to draw because my to use it outside of class. Thank engine noise to the watch engi- writing was terrible. I can you for reading my letter. I hope neer. I found that by yelling, I “draw” in any language! this helps other kids know that didn’t stutter! No one can stutter Today, I am 81 years old, re- other people stutter as well. when you yell or sing! I soon tired three times, married 61 They are not the only ones. learned to fake a hearing loss and years to the same lady, and am Cricynda talk louder. I was so pleased to in relatively good health except Orlando, Fla. be fluent, I talked to anyone who for profound hearing loss. would listen. Stuttering can be overcome! Please include contact informa- I studied the engines and sys- Find your way, the sooner the tion and parent’s permission when tems and learned fast since this better. I do hope this letter and sending children’s drawings and was my first real “school.” No my story serves someone some letters. You can e-mail them to stuttering and no laughing kids. I value. info@stutteringhelp.org or mail passed the required Coast Guard Respectfully yours, them to P.O. Box 11749, Memphis, exams and advanced to better James Walker TN 38111-0749. K jobs. The war-time sea duty will Lakewood, CA K
  • 10. 10 The Second African Conference on Stuttering 800-992-9392 THE www.stutteringhelp.org STUTTERING FOUNDATION By Joseph Lukong • The need for collaboration Secretary & Board Member of among African stuttering associa- the International Stuttering tions to share information on self Association Coordinator General help issues, treatment and research of Speak Clear Association of in stuttering with each other. Cameroon • The creation of a Federation of African Stuttering Associations. A The International Stuttering provisional committee of three Association (ISA) and Stuttering persons was formed: Moussa Dao Association of Burkina Faso Attendees at the conference. from Burkina Faso, Joseph (Action Contre Le Bégaiement - Lukong from Cameroon and Zan ABC) organized and sponsored the Camera from Mali. Second African Conference on • Emphasis on the need for Stuttering in Ouagadougou training of African speech pathol- Burkina Faso during October 27th After the conference, Anne ogists who specialize in stuttering. – 30th. The conference explored Marie Simon works with a person who stutters. - Advocacy efforts to be made to- Stuttering In Africa: Strategies for ward African governments in view Effective Reawakening. Moussa Dao, president of of recognizing stuttering as a com- The opening ceremony took place the Burk ina Stutterers’ munication disorder and for it to be at the auditorium of the Burkinabe Association. given due attention. Shippers Council (Conseil Burkinabe des Chargeurs) and was • The ISA and other internation- chaired by the Representative of the al bodies should offer financial Minister of State in Charge of and other assistance to young Foreign African associations to enable World Event Affairs and Anne Marie and Dr. Moussa Dao them to take off and work for PWS Approximately Regional discuss stuttering on liv e TV. in their respective countries. 230 delegates at- Integration of • The wish to continue hosting tended the confer- Blind children Burkina Fas play musical African conferences on stuttering ence with 60 dele- gates from Speeches instruments for African PWS to meet and learn Burkina Faso. were made during the closing from each other. To this effect, it Other countries by Dr. ceremony . was resolved that the next African represented were Moussa Dao, Conference Media outlets conference will take place in Mali, Niger, Nigeria, Senegal, Convenor cov ered Kenya, East Africa in 2011. the ev ent. Mauritania, Cote and President • A million thanks to the D’Ivoire ( Ivory of the Action International Stuttering Association Coast), Ghana, Contre Le and the Stuttering Association of Togo, Benin, Begaiement; Burkina Faso for organizing and Chad, DR Congo, T h o m a s Traditional sponsoring this conference. Burundi, Rwanda, K r a l l , clothing and dancing. The Representative of the Minister Kenya, in charge of Basic (Primary) Cameroon, Coordinator of the Board Education of Burkina Faso presid- Germany, France, the international self-help move- ed over the closing ceremony the United States of Directors, ment for people who stutter, promising that much attention of America, presented renowned speech language patholo- would be given by her ministerial Lithuania, and the B e n n y United Kingdom. Ravid’s gists, researchers, and leaders of ex- department to stuttering in speech as isting national stuttering associa- Burkina Faso. ISA Chairman Ravid was unable to tions in Africa. Fourteen African del- Certificates of honor were given attend. All the major newspapers, egates recounted their personal ex- to people and organizations in television and radio stations in periences as people who stutter and Burkina Faso to Anne Marie Burkina Faso were present and car- what the situation is for those who Simon from France to the ISA rep- ried the story of the conference. stutter in their respective countries. resentative, Joseph Lukong, for The twenty-one presentations The following resolutions were the ISA’s support of conferences were made by leading members of made … on stuttering in Africa. K
  • 11. 11 THE 800-992-9392 STUTTERING I Kid You Not! Paar is an Inspiration to Others FOUNDATION WINTER 2009 While Jack Paar is among the months. During this time, the future was in several B-movies. He co- most prominent of the entertain- television legend became obsessed starred in the 1951 movie “Love ers on the Stuttering with radio, constantly fantasizing Nest,” with another newcomer, Foundation’s list of Famous about overcoming his stuttering Marilyn Monroe; ironically People Who Stutter, he deserves and becoming a radio star. Every Marilyn Monroe also struggled special recognition as he was day he hosted “make believe” radio with stuttering. among the first to openly address shows in which he was the star. Paar then turned to television, his stuttering in public. As host of hosting quiz shows and game “The Tonight Show” from 1957- shows. In 1954, he became the co- 1962, he spoke of his difficulties host of CBS’ “Morning Show” as a stuttering child and teenager, and in 1957 received the defining giving hope to young people. role of his career, taking over the Born in 1918, Paar stuttered reins of “The Tonight Show” on from an early age and faced the NBC from Steve Allen. typical problems of a child who Paar made “The Tonight Show” stutters. He described his stutter- a staple of American culture. ing in his 1959 autobiography, I Writing in the New York Times in Kid You Not. “I didn’t mix much 1997, critic John O’Connor put it with the other children growing best: “Before Jack Paar, there were up. It seems strange to me now, various variety shows doing the when I make my living talking, midnight watch. He simplified the mostly without written material or format into a talk show, complete rehearsal, but I stuttered badly as a with the sofa–and-desk set that re- child. This made me ill at ease in Stev e Allen, Bob Hope and Jack Paar. mains a fixture. His secret? school and with other children. Interesting guests, far more so than “Like many youngsters who Paar left school at age 16 to the celebrity hordes working on stammer, I lived a great deal in the work full-time for a radio station. product plugs today, and an uncan- world of imagination and books. At first the station only let him an- ny ability to listen carefully and ac- One day I read about nounce the words “This is Station tually engage in clever and often Demosthenes, the great Greek or- WIBM, Jackson”. Other tasks in- witty conversation.” ator, who had cured himself of cluded sweeping the floor and Fans were shocked and sad- stammering by putting pebbles in emptying the waste baskets. In his dened with his leaving “The his mouth and declaiming over autobiography, he wrote, “They Tonight Show” in 1962. Retiring the roar of the sea. Since we were wouldn’t let me do commercials early to a secluded life, Jack Paar living in Michigan, with no sea because I stuttered, and the station did the occasional network special. handy, I made the best I could do. was so small you could walk out One special, “Jack Paar Comes Instead of pebbles, I used buttons of its coverage area by going down Home” aired in 1986, and featured from my mother’s sewing box. the street for a cup of coffee, but I Paar talking about his past stutter- And with no sea shore nearer than was a real live radio announcer.” ing problem and how he never gave a thousand miles, I used my room Eventually the station let him up trying; urging people with chal- at home. Then I would stuff some spin records and do a few commer- lenges to strive for their dreams and buttons in my mouth and practice cials; though he still stuttered on not listen to the nay-sayers. speaking. I read papers and maga- the commercials, the sponsors ac- Jack Paar died on January 27, zines. I talked about anything that tually received a bit more airtime 2004. Younger generations may came into my head. I read books, because of it and did not seem to not be familiar with him. He not watching myself in the mirror. mind. Making radio his life’s goal, only created the late night talk Apart from once nearly swallow- his speech greatly improved on the show format that has been copied ing a shirt button in a burst of ora- air; and he was finally able to do by his “Tonight Show” successors torical fervor, the system worked the news and interviews, develop- Johnny Carson and Jay Leno as very well. Little by little my ing the “hemming and hawing” well as so many others, but he con- speech improved.” style that became his trademark. tinues to give hope and inspiration, At age 14 Paar was bedridden After service in World War II, as well as a sense of pride to the with tuberculosis for several Paar tried his luck at acting and stuttering community. K
  • 12. 12 800-992-9392 THE www.stutteringhelp.org STUTTERING Tools for Success! FOUNDATION The Stuttering Foundation in 2009 will release a new DVD, Tools for Success, a “taster” on cognitive be- havior therapy and how it may be used in stuttering therapy. Jane Fraser, Matt Murphy , Katherine K Preston and Bob Wellington after their interv iews on December 14th. Katherineʼs Myths Katherine Preston is traveling the United States, interviewing Videographer Bob O’Brien films people who stutter and gathering Frances Cook and Willie Botterill in information for her book. Nov ember at the ASHA Conv ention “The book will be a compila- in Chicago. tion of interviews with people who stutter around America. It will be aimed at debunking the myths that many ‘fluent’ people Reaching Out to School-based therapists! have about stuttering and stop October 10-11, 2008: Two-day conference at Cal. State - Fullerton stuttering from being such a taboo subject. The stutterers I am talk- ing to are different ages and have varying backgrounds and person- alities,” shares Katherine. She has already interviewed 35 people from all walks of life. Some are well known like Jack Welch of GE, conservationist Alan Carol Eck e at Rabinowitz, and geneticist Dennis the booth. Drayna and others are not so fa- All the SFA resources on display . mous but just as important to her. Katherine adds, “I would be Bravo to the Rileys very interested in hearing from for starting the 2-day anyone who would like to be in- event in Fullerton terviewed. My email address is and kudos to Gary k.e.l.preston@hotmail.com.” Montooth, Sherri Wolff and the local Dav id Daly and NSSLHA Chapter Ads Strike a Chord Walter Manning hold their awards. for keeping it alive. Public service ads have appeared Sherri Wolff and Drs. Jeanna and Gly ndon Riley . in many magazines this year – ev- erything from Good Housekeeping July 2008 and Newsweek to The National Hog Farmer! ASHA School Delta Sky Magazine, Conference in which reaches millions Orlando reach- of travelers each es hundreds of month, has donated school-based Carol Ecke discusses space for PSAs several SLPs too! an SFA DVD with Ellen Estomin, the di- times this year. If you rector of special educa- spot a PSA, be sure to tion for the Pittsburgh thank the magazine for Renee Shepherd and Carol Eck e Schools, and Wendy answer questions. Wingard-Gay. donating space to charity. Their gen- erosity is making a difference.
  • 13. 800-992-9392 13 THE STUTTERING Hip Hop Rap Artist Finds His Voice 2009 17th Annual Media WINTER FOUNDATION AMybutgreatestfreely andnot to Awards Competition QWhat ainspired you to be- Interview with Travis Kruck obstacle is The Stuttering Foundation an- not focus on trying to AImyselffoundable toway at the nounces that it will recognize jour- stutter, speak learn come rap artist? to control my speech as I go nalists for the thir- teenth consecutive wasn’t express along. Lately I've been doing year for excellence in any other rather well on this, but when all reporting that fur- time and joy and great eyes are on me I tend to be as thers the understand- satisfaction in doing choppy as the sea below ing of this complex disorder. something well, vocally. the storm and my control “We are happy to announce Performances are amaz- goes out the window. I’m these awards to further public ing! Being on stage, learning to block all dis- awareness of stuttering,” said under the lights, doing tractions out though and Jane Fraser. “Media coverage my thing is probably the just try to focus on the Qdream? your biggest has grown substantially in vol- only time I feel like a free subject I’m speaking on. ume and sensitivity in recent spirit where thoughts years. We want to continue rec- don’t control me; my What is QIs there any memory your Aabout alwaysbydream ognizing outstanding reporters.” spirit and heart do. Trav is Kruck The seventeenth annual You Stuttering Foundation Awards specific that big break, will be given to journalists in two childhood that that hit single, followed your stands out regarding A categories: print and electronic prize work of an album and just media. They will recognize news speech? making a living doing what I love stories over the last year that: One story that sticks in my to do. If you would have asked • Advanced the public’s un- head was auditioning for a me this a couple years ago, I derstanding of stuttering; school play. I had to walk up on probably would have said to • Introduced information on stage, in front of a cafeteria full speak fluently and not stutter. But stuttering to a significant new of classmates and first say my I’ve realized I will never speak audience. full name, followed by the song perfectly nor can anyone else. I Print and electronic journalists I was going to sing for the play. shouldn't take it so seriously, but are invited to submit copies or When my turn came up, of just live and have faith in myself DVDs of their news items to the course I was nervous and unde- that I can do what I want to do Stuttering Foundation, 3100 QIf you couldteenagerssimple niably expecting to stutter, but as and in turn say what I want to say. Walnut Grove Road, Suite 603, I was waiting in line for my turn P.O. Box 11749, Memphis, TN to speak I tried to focus and give a 38111-0749. All entries must have block those thoughts out. Sure message to who ARunning awayfrustrationprob- been published or aired between enough as the pressure I was stutter, what would it be? Jan. 1, 2008, and April 20, 2009. holding back came thundering is not the an- In addition to a public an- in, I couldn’t even say my first swer. Hiding from the nouncement of the Award recip- name, only the first letter of my lem and letting and ients, each honoree will receive name about a thousand times. anger build up inside will only a cash award of $250.00 from And to make it worse, the in- hurt you more. Building confi- the Foundation. structor had thought the mic was dence the is key in learning to T turned off or not working prop- cope with your stutter. Find out K erly, so he instructed me to say what it is you like to do and makes "mic check" and when I couldn’t you feel worth something more he Stuttering Foundation of say that, I desperately resorted to America is a tax-exempt or- than your stutter. Soon you’ll ganization under section tapping the mic head to show have left your negative stuttering 501(c)(3) of the Internal Revenue him the mic was in fact working. thoughts and judgments far be- Code and is classified as a private oper- But I guess I wasn’t supposed to hind, and you’ll be on your way to ating foundation as defined in section do that, he yelled at me pretty a future of your own choosing. Q 4942(j)(3). Charitable contributions and bad for that move! bequests to the Foundation are tax- If you would like to hear deductible, subject to limitations under What is your greatest obstacle, Kruck’s music, visit www.my the Code. and how do you deal with it? space.com/dapoetking. K
  • 14. 16 www.stutteringhelp.org 800-992-9392 THE STUTTERING FOUNDATION Jennifer Watson, Ph.D., Texas Christian University; The Eastern Workshop: Newsbriefs and Ellen Reuler, Diagnosis and Treatment of M.A., Portland State Preschool and School-Age University. Children Who Stutter Fellowships cover tuition, room June 10-14, 2009 and board, and CEUs are avail- at Boston University able. Download application at Speakers include Diane Parris, M.S., www.stutteringhelp.org or call Boston University; Edward G. 800-992-9392. Conture, Ph.D., Va n d e r b i l t The Sixth IFA World Congress Chinese celebrate 2008 International University; Sheryl on Fluency Disorders will be held Stuttering Awareness Day . Gottwald, Ph.D., University of New August 5 – 8, 2009 at Hampshire; and Adriana DiGrande, the Veiga de Almeida M.A., Boston University. University located in Rio de Janeiro, Brazil. The Midwestern Workshop: For more information, Diagnosis and Treatment of visit www.theifa.org. Children Who Stutter June 22-26, 2009 The 9th World Congress of at the University of Iowa the International Stuttering Speakers include Patricia M. Zebrowski, Ph.D., Association will be August 1st - Happy new year from... 7th, 2010 in Beijing, China. University of Iowa; For an overview Renee Shepherd, Joan Warner, Roberta Toni Cilek, M.A., of the theme - Brugge, Terri Jones, Lisa Hinton, University of Iowa; Anne Edwards, Jane Fraser and Pat Benefit the People Hamm, Susie Hall, Patty Reed, Scot and Lisa Scott, Who Stutter, Benefit Squires, John Bell and Carol Ecke. Ph.D., Florida State University. the Society, and a list of speakers, as well as fees, vis- The Western Workshop: This newsletter is published quarterly. Please itwww.bj2010isc.cn/index.ph. e-mail address changes and story ideas to Diagnosis and Treatment of info@stutteringhelp.org. Children Who Stutter July 15-19, 2009 You can donate to the Volume18, Issue 1 Stuttering Foundation at Portland State University Renee Shepherd . . . . . . . . . . . . . Editor di rectl y thro ug h the Directed by Susan Hamilton, M.A., Scot Squires . . . . . . . . . . Writer/Designer United Way. University Way Speech Services; Special thanks to Joan Warner, Patty Reed, Susie Hall, Pat Hamm, Lisa Hinton, Terri Jones, and Carol Ecke. THE STUTTERING FOUNDATION 3100 Walnut Grove Road, Suite 603 P.O. Box 11749 • Memphis, TN 38111-0749