SlideShare a Scribd company logo
Byron Pitts of 60 Minutes Joins Famous People Poster
                                                          for National Stuttering Awareness Week, May 10-16
                                                                                                            Page 5



       T HE S TUTTERING F OUNDATION
       A Nonprofit Organization              SUMMER 2010                         Since 1947 ... Helping Those Who Stutter



  Starkweather
    Receives
 Malcolm Fraser
     Award
   C. Woodruff Starkweather,
Ph.D., received the 2010
Malcolm Fraser Award during
the January meeting of the
Special Interest Division for
Fluency         and       Fluency
Disorders. Barbara Amster,
Ph.D. made the following
award presentation:
   I was asked to give the high-
lights of the awardee’s career.
This is not an easy feat as his
CV is more than 25 pages long,        Dennis Drayna, Ph.D., researcher for the National Institute on Deafness and Other
                                      Communication Disorders. See page 2 for the NIDCD press release.
but I will try to give you only
the highlights.
   Woody Starkweather is an in-
dividual whose contributions                Researchers Discover
over more than 40 years have
promoted and enhanced public              First Genes for Stuttering
and professional understanding              The mystery behind a complex        therapy and early intervention
of the nature of stuttering and its      disorder called stuttering became      with young children remain the
treatment. He has demonstrated           a little clearer with the announce-    best option for now.”
excellence in the field of stutter-      ment of the discovery of three            “We have long known that
ing as a master teacher, advo-           genes for stuttering by Dennis         stuttering runs in families,” says
cate for people who stutter, and         Drayna, Ph.D., a director of the       Fraser. “We want to emphasize
scholar/researcher. In the words         Stuttering Foundation and re-          that a genetic predisposition for
of one of his nominators, “I be-         searcher for the National Institute    stuttering does not mean a per-
                                         on      Deafness       and    Other    son will have a lifelong prob-
lieve that he is one of only a few       Communication Disorders.               lem. Early treatment in young
people whose contributions to               “This research is important be-     children can effectively prevent
the field of stuttering go beyond        cause it’s another indication that     stuttering.”
a listing of research, teaching,         emotional factors such as anxiety         Developing an understanding
and service accomplishments.             or ‘bad parenting’ do not cause        of the biological basis of stutter-
                Continued on page 6      stuttering. It could also point the    ing may someday lead to better
                                         way for a cure one day,” says          early diagnosis, differential
                                         Jane Fraser, president of the          treatments for people with ge-
                                         Stuttering Foundation.                 netic indicators, and a better un-
                                            “We hear every day from par-        derstanding of how speech pro-
                                         ents worried that they have            duction happens differently for
                                         caused their child’s stuttering.       people who stutter. Although
                                         Parents don’t cause stuttering,        Dr. Drayna notes that his find-
                                         and this research should lift the      ings are unlikely to have any
Jean Gruss, grandson of SFA              burden of guilt from their shoul-      immediate impact on treatment,
founder Malcolm Fraser, and              ders,” Fraser noted. “But because      they nonetheless represent a
C. Woodruff Starkweather at              a cure may be years away, speech       giant step forward.
the award ceremony.
THE
                                                             STUTTERING
2      www.stutteringhelp.org                                FOUNDATION                                                      800-992-9392


Press Release from the National Institute on Deafness and Other Communication Disorders:
     Findings Suggest Stuttering, in Some Cases,
    May Actually be an Inherited Metabolic Disorder
   Feb. 10, 2010 — Stuttering may be          rounding a new marker and identi-          some. Large deposits of these sub-
the result of a glitch in the day-to-day      fied mutations in a gene known as          stances ultimately cause joint, skele-
process by which cellular components in       GNPTAB in the affected family              tal system, heart, liver, and other
key regions of the brain are broken           members. The GNPTAB gene is                health problems as well as develop-
down and recycled, says a study in the        carried by all higher animals, and         mental problems in the brain. They
Feb. 10 Online First issue of the New         helps encode an enzyme that assists        are also known to cause problems
England Journal of Medicine. The              in breaking down and recycling cel-        with speech.
study, led by researchers at the National     lular components, a process that              “You might ask, why don’t people
Institute on Deafness and Other               takes place inside a cell structure        with the stuttering mutations have
Communication Disorders (NIDCD),              called the lysosome.                       more serious complications? Why
part of the National Institutes of Health,       They then analyzed the genes of         don’t they have an ML disease?”
has identified three genes as a source of     123 Pakistani individuals who stut-        posed Dr. Drayna, senior author of the
stuttering in volunteers in Pakistan, the     ter—46 from the original families and      paper. “ML disorders are recessive.
United States, and England. Mutations         77 who are unrelated—as well as 96         You need to have two copies of a de-
in two of the genes have already been         unrelated Pakistanis who don’t stutter,    fective gene in order to get the dis-
implicated in other rare metabolic disor-     and who served as controls.                ease. Nearly all of the unrelated indi-
ders also involved in cell recycling,         Individuals from the United States and     viduals in our study who stuttered had
while mutations in a third, closely relat-    England also took part in the study,       only one copy of the mutation. Also,
ed, gene have now been shown to be as-        270 who stutter and 276 who don’t.         with stuttering, the protein is still
sociated for the first time with a disorder                                  The re-     made, but it’s not made exactly right.
in humans.                                                                   searchers   With ML diseases, the proteins typi-
   “For hundreds of years, the cause                                         found       cally aren’t made at all. Still, there are
of stuttering has remained a mystery                                         some in-    a few complexities remaining to be
for researchers and health care profes-                                      dividuals   understood, and we’d like to learn
sionals alike, not to mention people                                         who stut-   more about them.”
who stutter and their families,” said                                        ter pos-       The findings open new research
James F. Battey, Jr., M.D., Ph.D., di-        sessed the same mutation as that found     avenues into possible treatments for
rector of the NIDCD. “This is the first       in the large Pakistani family. They also   stuttering. For example, current
study to pinpoint specific gene muta-         identified three other mutations in the    treatment methods for some lysoso-
tions as the potential cause of stutter-      GNPTAB gene which showed up in             mal storage disorders involve inject-
ing, a disorder that affects 3 million        several unrelated individuals who stut-    ing manufactured enzyme into a per-
Americans, and by doing so, might             ter but not in the controls.               son’s bloodstream to replace the
lead to a dramatic expansion in our              GNPTAB encodes its enzyme with          missing enzyme. The researchers
options for treatment.”                       the help of another gene called            wonder if enzyme replacement ther-
   Stuttering is a speech disorder in         GNPTG. In addition, a second en-           apy might be a possible method for
which a person repeats or prolongs            zyme, called NAGPA, acts at the next       treating some types of stuttering in
sounds, syllables, or words, disrupting       step in this process. Together, these      the future.
the normal flow of speech. It can             enzymes make up the signaling                 The researchers estimate that
severely hinder communication and a           mechanism that cells use to steer a        roughly 9 percent of people who stut-
person’s quality of life. Most children       variety of enzymes to the lysosome to      ter possess mutations in one of the
who stutter will outgrow stuttering,          do their work. Because of the close        three genes. Among the next steps,
although many do not; roughly 1 per-          relationship among the three genes in      they are conducting a worldwide epi-
cent of adults stutter worldwide.             this process, the GNPTG and                demiological study to better deter-
   Stuttering tends to run in families,       NAGPA genes were the next logical          mine the percentage of people who
and researchers have long suspected a         place for the researchers to look for      carry one or more of these mutations.
genetic component. Previous studies           possible mutations in people who           They are also conducting biochemi-
of stuttering in a group of families          stutter. Indeed, when they examined        cal studies to determine specifically
from Pakistan had been done by                these two genes, they found muta-          how the mutations affect the en-
Dennis Drayna, Ph.D., a geneticist            tions in individuals who stutter, but      zymes. A long-term goal is to use
with the NIDCD, which indicated a             not in control groups.                     these findings to determine how this
place on chromosome 12 that was                  The GNPTAB and GNPTG genes              metabolic defect affects structures
likely to harbor a gene variant that          have already been tied to two serious      within the brain that are essential for
caused this disorder.                         metabolic diseases known as mucol-         fluent speech.
   In the latest research, Dr. Drayna         ipidosis (ML) II and III. MLII and            In addition to the NIDCD, researchers at the
and his team refined the location of          MLIII are part of a group of diseases      University of Punjab, Lahore, Pakistan; the
this place on chromosome 12 and               called lysosomal storage disorders         Hollins Communications Research Institute,
focused their efforts on the new              because improperly recycled cell           Roanoke, Va.; the National Human Genome
                                                                                         Research Institute (NHGRI); and the NIH Clinical
site. They sequenced the genes sur-           components accumulate in the lyso-         Center contributed to this work.
THE
                                                                                                 STUTTERING
SUMMER 2010                                                                                      FOUNDATION                                                                     800-992-9392                    3



    More than 100,000,000 People Reached!
          Feb. 10 was a blockbuster day with news of the discov-
       ery of the first three genes for stuttering.
          Stephanie Nano’s Associated Press wire story reached
                   more than 1,700 newspapers, 5,000 radio and
                   television outlets in the United States, and radio,
                   television and newspaper subscribers interna-
                   tionally. In her article, Nano
                   quotes Dennis Drayna as saying
       “stuttering is almost certainly a biological
       problem.” She also included SFA’s Jane
       Fraser’s comment that “in terms of mythbusters, this is re-
       ally an important step forward.”
          Richard Knox’s NPR segment for Morning Edition
       reached more than 20 million listeners. He interviewed
       Dr. Drayna extensively as well as speech-language
       pathologist Kristin Chmela and Fraser. Chmela shared
       her excitement about the new research not only from the
                        viewpoint of a therapist, but also of a
                        person who stutters herself.
                          Fraser shared with Knox how thrilled her
       father, Stuttering Foundation founder
       Malcolm Fraser would have been to learn
       of this discovery. “He always felt that if he
       just tried hard enough, he wouldn’t stutter.
       This research would have lifted a heavy
       burden of guilt from his shoulders.”
                      The news appeared around the world at light-
                    ning speed with additional articles and seg-
                    ments by Agence France Presse, the China
                    Daily, AAJ Pakistan TV, The Tehran Times,
       The Watan Daily in Kuwait, the Brisbane Times, and a live
       interview in Sydney, Australia with Dr. Drayna.                                                                Coverage of the discovery of the first genes for
            Other U.S. outlets featuring the findings include                                                         stuttering included the Stuttering Foundation’s
       HealthNewsDigest, The Philadelphia                                                                             being featured on marquees in Times Square.
       Inquirer, The Commercial Appeal, the
       Arizona Daily Star, El Paso Times,
       Cleveland Plain Dealer, Newsday,
       MarketWatch, ABC, CBS, Fox News, CNN, the Miami
       Herald, and many more too numerous to list.


             Annual Audit                                               funds and expenditures for the year.                                   be assured that their gifts will go direct-
    The annual audit of the Stuttering                                     The 3.8% of expenditures for ad-                                    ly to support our program services.
 Foundation financial reports for 2009                                  ministration and general expenses and                                     The Foundation is a 501(c)(3) pri-
 was recently completed by the account-                                 the 7/10 of 1% for fund raising are very                               vate operating foundation which ex-
 ing firm of Cannon and Company,                                        low, and since we are fortunate to have                                pends its funds on its own programs and
 Certified     Public    Accountants,                                   an endowment which more than cov-                                      operations and does not make grants to
 Memphis, Tenn. Following is a recap of                                 ers our overhead expenses, donors can                                  other institutions.
 Funds expended for:
 Creation, production, printing and distribution
    of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $503,615 . . . . . . . 36.5%
 Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 300,781 . . . . . . . 21.8%
 Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .172,360 . . . . . . . . 12.5%
 Research on causes/treatment of stuttering and therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 254,687 . . . . . . . . 18.4%
 Maintain Web site and toll-free information hotline . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 87,169 . . . . . . . . . 6.3%
 Total for Program Services:. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,318,612 . . . . . . 95.5%
 Other expenditures:
    Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51,984 . . . . . . . . . 3.8%
    Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10,318 . . . . . . . . 0.7%
 Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,380,914 . . . . . . . 100%
THE
                                                      STUTTERING
4        www.stutteringhelp.org                       FOUNDATION                                                    800-992-9392




                                                                                          Jane Fraser, Lady Caroline
              Michael Palin                       Prince Charles                          Egremont and Prince Charles.
                                    Prince Charles Supports
                                       Stammering Centre
                                     Stuttering Foundation President Jane Fraser at-
                                  tended a luncheon reception at Clarence House
                                  hosted by Prince Charles to announce His Royal
                                  Highness’ support of an appeal to fund treatment
                                  for children who stutter. The appeal was launched
                                  by the Association for Research into Stammering
    Education Secretary Ed        in Childhood (ARSC), our Foundation partner in                   Prince Charles greeting
    Balls, Michael Palin and      the United Kingdom.                                              Travers and Sandra Reid.
    Prince Charles.                  “It was a great honor to meet Prince Charles                  Travers is Life President
                                  and work to increase awareness and support for                   and co-Founder of ARSC.
                                  stuttering,” Fraser said.
                                     The Prince of Wales commented, “I am so
                                  pleased to be Patron of this Appeal particularly in
                                  memory of my grandfather, King George VI, who,
                                  as many of you will know, was afflicted with a
                                  stammer for many years. His stammer cut him off
                                  I think in so many ways from his parents and his
                                  brothers and sisters and drove him into himself as
                                  I suspect so many stammerers will understand.
                                  Above all he experienced that awful fear of feel-                Dame Gail Ronson and
    Renowned author Lord          ing different from others.”                                      Major General Bryan
    Max Egremont with Prince         Read more about this event, view press cov-                   Dutton greet Prince
    Charles.                      erage, and find the Prince’s entire speech at                    Charles.
                                  www.stutteringhelp.org.




                                                            Mrs. Jane Fraser and Mr. Joe Fulcher


Jane Fraser is seen meet-
ing Prince Charles on the                                                                           Prince Charles      and
TV news.                                                                                            Frances Cook.



                         National Stuttering Awareness Week
                                           May 10-16, 2010
THE
                                                                  STUTTERING
SUMMER 2010                                                       FOUNDATION                                800-992-9392      5



                                                        National Stuttering Awareness Week is May 10-16


   In response to the exciting genetic find-
ings, our Friends on Facebook let us know
what they thought:
Ray
           As I listened to the NPR broadcast
          regarding the new genetic finding
          about the cause of stuttering, tears
          were streaming down my cheeks. I
reflected back on the 60 years of my life, and
it just seemed as though so much of the
ridicule, self doubts and struggles melted
away; in their stead were knowledge, under-
standing and a feeling of inner peace. I now
think that I know how Atlas must have felt
when he was allowed to remove the weight of
the world from his shoulders.
Katie
           As an SLP and Mom to 3 beautiful
          kids ages 8, 7, and 5 who've all stut-                 60 Minutes Correspondent Byron Pitts
          tered to varying degrees this re-                        Joins the Team of Famous People
          search is very exciting! Our oldest
and youngest responded positively to modifi-
cations at home to promote fluency (modeling
reduced speaking rate, daily one on one time,
etc.), but for our middle daughter who also                                         Outreach to Pediatricians
had multiple articulation errors and relatively
weak language skills, the modifications                                                The new Pediatrics Review and
weren’t enough. She has been in speech for 3                                        Education Program, PREP The Curriculum
years, and is doing great! As an SLP I knew
that there were many misconceptions about                                           2010, displays the Stuttering Foundation’s
stutterers and their parents. However, until I                                      Physician’s Checklist for Referral.
faced these misconceptions as a parent, and                                            This Checklist helps physicians know
encountered people’s reactions to my chil-
dren’s stuttering; I didn’t fully appreciate how                                    when and how to refer their young pa-
painful they can be to stutterers and their                                         tients to a speech-language pathologist
loved ones!                                                                         for treatment.
Susanne                                                                                Barry Guitar, Ph.D., and Edward G.
           As a mother of a 12 year old who stut-                                   Conture, Ph.D., compiled this Checklist;
          ters, I’ve been told numerous times
          that it is nothing the parent has done                                    and it is part of the bestseller, The Child
          to cause this stuttering, yet the doubt                                   Who Stutters: To the Pediatrician, pub-
was always lingering there. This is great news                                      lished by the Stuttering Foundation.
for all who have been affected by stuttering.
                                                                                       “Reaching pediatricans with accurate in-
Brandon                                                                             formation on stuttering is one of our most
          As a teen that stutters I really
          hope that it is a gene defect and                                         important goals,” said June Campbell,
          doctors can somehow change it.                                            M.A., CCC-SLP, who represents the
          I’ve always joked around with my                                          Foundation at the American Academy of
speech teachers about that and now it may
actually happen.                                                                    Pediatrics convention every year.
Alan
          As a life long stutterer this could fi-
          nally lead to better treatment, too
          late for me but for the younger peo-         T-shirts featuring running backs
          ple this is potentially good news.        LaDanian Tomlinson and Darren
                                                    Sproles have sold out.
Jackie
          As a mom of a 7 year old boy who             Greathouse Screen Printing cranked out
          has struggled with this for 2 years it    thousands of these special edition Chargers
          is heart breaking knowing there is        shirts with the headline “Thunderbolt and
          not a pill, cure or simple fix. And as
with Susanne, I was told there is nothing we        Lightning, Very, Very Frightening.”
could have done to cause it, you still always          Each player donated the proceeds
question yourself. But this study helps with
relieving some of that doubt. The Stuttering        from the sale of the t-shirts to chari-
Foundation has provided our family with a lot       ties close to his heart. Sproles, an
of information & the SLP & my son’s teach-          SFA spokesman, chose the Stuttering
ers have been amazing. Thank you all!
                                                    Foundation.                                   T-shirt supports Foundation
THE
6        www.stutteringhelp.org
                                                             STUTTERING                                     800-992-9392
                                                             FOUNDATION

                                  Award   Continued from front page
                            Woody truly cares about people who stutter, and has worked tirelessly to give them
                            a voice through his writing, his leadership, and his creative vision.”
                               Many of his writings have changed the way speech-language pathologists
                            evaluate and treat stuttering. His work on the Demands and Capacities Model has
                            had a profound impact on stuttering prevention and has influenced our under-
    Malcolm Fraser and      standing of factors that contribute to the onset and maintenance of stuttering be-
    Woody Starkweather      haviors, thus setting the stage for multi-factorial views of stuttering.
    in the 1970s               He has had a stellar career as a scholar and researcher. His book Stuttering, co-writ-
                                                           ten with Janet Givens, received the Choice Magazine
                                                           Award as the “Best Academic Book of 1997.” This was
                                                           the first time that this “Oscar of Academic Publishing”
                                                           had been given in the field of Speech Pathology. Other
                                                           books he has written are now considered classics in the
                                                           field including: Stuttering Prevention: a Clinical Method
                                                           (1990; co-authored with Sheryl Gottwald & Murray
    Woody Starkweather      Woody Starkweather             Halfond) and Fluency and Stuttering (1987). He is the
    and Jane Fraser         and Janet Givens               author of more than forty articles and chapters concern-
                                                                                      ing: learning processes in stut-
                                                                                      tering, the Demands and
                                                                                      Capacities Model of stuttering,
                                                                                      stuttering development, stutter-
                                                                                      ing prevention, the assessment
                                                                                      of stuttering, the experience of
                                                                                      stuttering, and the efficacy of
    Woody Starkweather      Barbara Amster, Ken St.        Woody Starkweather         stuttering therapy.
    and Vianne Bjornberg    Louis, Hayley Arnold           and Sheryl Gottwald          In the words of one nomina-
                            and Vianne Bjornberg                                      tor, “his contributions go far
                                                                                      beyond the walls of the class-
                                                                                      room and clinic. He has made
                                                                                      the greatest contribution of
                                                                                      anyone I know towards con-
                                                                                      necting people who care about
                                                                                      stuttering, and developing
                                                                                      mechanisms for allowing them
    Rossanna Portley,       Woody Starkweather             Jennifer Watson and        to learn and support one anoth-
    Hayley Arnold, Courtney and Vivian Sisskin             Susan Cochrane             er. He demonstrated this
    Byrd and Jane Fraser                                                              through his leadership as pres-
                                                                                      ident of the International
                                                            Fluency Association, helping develop and nurture it as it
                                                            grew from a fledgling organization into a recognized av-
                                                            enue of exchange and communication among the inter-
                                                            national community in stuttering. He was instrumental
                                                            in the development of ASHA’s Specialty Recognition
                                                            program. He served on ASHA’s Special Interest
    Glen Tellis, Kathy       Rossanna Portley and           Division 4, Fluency and Fluency Disorders, helping to
    Scaler-Scott and         Shelley Brundage               write guidelines and to unify professionals otherwise
    Marilyn Langevin        working in isolation in schools, clinics, hospitals and universities across the country.”
                               His tireless advocacy for people who stutter has given a strong voice to children and
                            adults who stutter. His leadership in the development of support groups provided the
                            model for future support organizations throughout the world. When he founded
                            STUTT_L, an internet discussion list for researchers, clinicians, and people who stut-
                            ter, individuals from all of these groups had a forum to discuss and share ideas for the
                            first time. He has had a profound influence on people who stutter, their families, and
    Woody Starkweather,     the speech-language pathologists who treat them. It is with great respect and admira-
    Vivan Sisskin and       tion that we present the 2010 Malcolm Fraser award to Dr. C. Woodruff Starkweather.
    Liz Edwards
THE
SUMMER 2010                                               STUTTERING                                   800-992-9392         7
                                                          FOUNDATION



   The recent Disney version of                                                     read out the first verse where the
Lewis Carroll’s classic, Alice in                                                   two words ‘strife, strengthened’
Wonderland, garnered a great deal of          “Rules & Regulations”                                 coming together were
media hype. Even though the main-              Learn well your grammar                                  too much for me,
stream media has not made mention               And never stammer…                                        and I had to
that Carroll was a person who stut-              Eat bread with butter                                     leave the verse
tered, his family history gives cre-           Once more, don’t stutter.                                     unfinished.”
dence to the discovery of the genetic                             ~Lewis Carroll                              C a r r o l l ’s
link to stuttering. Carroll was born to    true essential life, expressed in the                             nephew,
parents who were first cousins; al-        Alice books and in some poems …..                                 S t u a r t
most all of their eleven children,         When he spoke to these children, he                               Dodgson
three girls and seven boys, struggled      lost his habitual stammer. He simply                             Collingwood,
with stuttering past childhood.            became one of them …… This                                      wrote that his
   In       Lewis                          perennial childhood, together with                            uncle “saw that
Carroll:         A                         the fantasy and poetry that some-                          the impediment of
Biography, au-                             times expressed it, was his reality.”    speech from which he suffered
thor Morton N.                                In 1859, Carroll undertook speech     would greatly interfere with the prop-
Cohen stated,                                                                       er performance of clerical duties.”
“The newborn                                                                           One longtime friend, May Barber,
son was the                                                                         described Carroll’s speech, “Those
third of what                                                                       stammering bouts were rather terri-
eventually be-                                                                      fying. It wasn’t exactly a stammer
came a family                                                                       because there was no noise, he just
of eleven chil-                                                                     opened his mouth …. When he was
dren, and if these bloodlines deserve                                               in the middle of telling a story ……
credit for the creative genius we                                                   he suddenly stopped and you won-
know to be Lewis Carroll’s, so per-                                                 dered if you had done anything
haps they bear the blame for the                                                    wrong. Then you looked at him and
stammer epidemic in Charles’                                                        you knew that you hadn’t, it was all
speech and in the speech of much of                                                 right. You got used to it after a bit.
his brothers and sisters.”                                                          He fought it wonderfully.”
   Lewis Carroll, the pseudonym of                                                     Biographer John Pudney wrote,
Charles Lutwidge Dodgson, was                                                       “Perhaps his failure to correct his
born in 1827 to Charles Dodgson                                                     speech impediment was the overar-
and the former Frances Jane                                                         ching symbol of his entire life. He
Lutwidge. In addition to being a                                                    learned to live with his stammering;
writer, Carroll was a mathematician,       therapy lessons from James Hunt,         he knew
a logician, an Anglican deacon and a                                                what it per-
                                           who was considered the foremost
photographer. His most notable lit-                                                 mitted him
erary works are Alice’s Adventures         speech correctionist in Great Britain
                                                                                    to do, what
in Wonderland, Through the                 at the time and was estimated to have    not, where
Looking Glass, The Hunting of the          treated 1,700 people who stutter. In     it would
Snark, and Jabberwocky.                    The Mystery of Lewis Carroll, biog-      snare him
   Biographer John Pudney ex-              rapher Jenny Woolf stated that Hunt      and       de-
pressed in Lewis Carroll and his           boasted he taught the patient to         stroy the
World how Carroll’s childlike fan-         speak consciously in a way that other    effects he
tasies were not only the spark for his     men spoke unconsciously.                 sought to
creative genius but also brought him          Nothing bothered Carroll more         achieve and how to avoid the traps.”
                        into a new         about his speech than how it affect-        Stuttering did not stop Lewis
                        world where        ed his ministry in the Anglican          Carroll. He brought to life many last-
                        stuttering did     Church. His father had been an           ing and imaginative stories for chil-
                        not exist, “This   Anglican priest, and Carroll himself     dren. It is a shame that his own strug-
                        ‘perfectly hard    became a deacon. Upon one occa-          gles and family history of stuttering
                        crystal’ con-      sion he accepted the invitation to       are not well known as they would
                        taining child-     preach and recalled, “I got through it   further inspire as well as help chil-
                        hood was his       all with great success, till I came to   dren who stutter.
THE
                                                   STUTTERING
8                                                  FOUNDATION
      www.stutteringhelp.org                                                                            800-992-9392



From One Clutterer to Another … Strategies that Helped Me
By Lacey Heid                                                              how strained my voice sound-
   I was diagnosed with a mild clut-                                       ed at the end of my sentences
tering disorder when I was 24 years                                        (because I would speak on
old. Cluttering is a type of fluency                                       residual air). Then, we lis-
disorder, and it often gets misdiag-                                       tened to the recordings of the
nosed or undiagnosed altogether. I                                         reading samples.
want to discuss what has helped me                                            This was the turning point in
improve my speech. Hopefully,                                              my speech therapy, because I
this will help others who clutter                                          heard the difference. I heard the
find some strategies that may help                                         pausing. I heard every sound in
                                                                           every word. I understood every-
improve their speech, as well as        The Stuttering Foundation          thing I had said. That is the point
shed some light for SLPs on ways        offers a DVD and brochure          when I realized that I could talk
to help their clients with fluency      on cluttering.                     more slowly and I could be un-
disorders.                                                                 derstood. All I had to do was take
   As I got older, my peers started    unaware of them, and there-         these strategies and apply them
reacting to my speech rate.            fore, has a hard time self-mon-     to everyday conversation.
Although I had a lot of friends,       itoring. Cluttering is often mis-
there would be that occasional per-                                           Self-Monitoring — This was
                                       diagnosed, or in my case, undi-     by far the most important strate-
son that playfully mocked my           agnosed, even though onset
“stuttering” or mentioned that I al-                                       gy for me. I needed to be able to
                                       can occur as early as the           hear my own speech rate as I was
ways talked too fast.                  preschool years.
   In the working world, it be-                                            speaking and adjust my speech
                                          After my initial speech and      accordingly.
came worse. Co-workers and             language evaluation, my SLP
customers had a hard time under-                                              If I couldn’t hear myself omit-
                                       (who at the time was a student      ting syllables, or hear myself
standing me, and it became more        clinician) and I began to work on
obvious to me as their comments                                            “cramming” words together, I
                                       numerous strategies focusing on     wouldn’t be successful in stop-
became more numerous. I had            slowing my speech rate, and be-
difficulties speaking to authority                                         ping or preventing myself from
                                       coming more intelligible.           cluttering.
figures, as well as talking on the        Although I understood the
phone. I was constantly told to                                               This is where the uncomfort-
                                       point to the exercises, I didn’t    able recordings of my voice
speak more quietly, and “what’s”       appreciate their meaning until
and “huh’s” became a more fre-                                             helped so much, because I was
                                       the day I walked into the room      able to feel myself performing
quent response from my listen-         and my SLP told me we were          the action of speaking more
ers. At age 24, I realized how         going to record parts of the ses-   slowly, and then I was able to
much I was letting my speech           sion, and then play the record-     play back and hear myself speak
hold me back from better jobs          ings back so that I could hear      at a normal rate. There was a
and opportunities. I wanted to be      myself talk.                        huge positive reinforcement
an overall better communicator. I         Not many people like hearing     when I discovered this.
decided to start speech therapy.       the sound of their own voice, my       To read more about what
   And that’s when I learned the       being one of them, so I was high-   worked for Lacey, go to www.stut-
truth. I was not a stutterer at        ly reluctant, but I turned to my    teringhelp.org.
all. In fact, I was a clutterer.       positive attitude. It was for my
While stuttering is noted by           own good.
repetitions,        prolongations,
blocking, and secondary “es-
                                          She had taped our casual
                                       conversations at the start of the             T   he Stuttering Foundation
                                                                                         of America is a tax-ex-
                                                                                     empt organization under
cape” behaviors, cluttering is         session, and then she taped my                section 501(c)(3) of the
noted by excessive normal dis-         reading samples using the                     Internal Revenue Code and
fluencies, rapid bursts of             strategies that we were focus-                is classified as a private op-
speech (“excited speech”), and         ing on. When she replayed our                 erating foundation as de-
                                                                                     fined in section 4942(j)(3).
slurred/omitted syllables.             conversations, I heard it. I                  Charitable contributions
   While a stutterer can usually       heard how fast I spoke. I heard       and bequests to the Foundation are
hear and feel their speech dis-        the missing parts of the words,       tax-deductible, subject to limitations
                                       the rapid speech, and I heard         under the Code.
fluencies, a clutterer is usually
THE
                                                  STUTTERING
                                                  FOUNDATION                                800-992-9392       9
SUMMER 2010


                                         Workshopper Reaches Spanish
                                             Speaking Community
                                         Judi Cheng, M.S., CCC-SLP, a




                                                                                          ?
                                      Stuttering Foundation Eastern                  Did You Know?
                                      2009 workshopper appeared re-             The Stuttering Foundation has
                                      cently on Univision Television            numerous resources in Spanish
                                                             N e t w o r k ’s   as well as a Spanish Web site,
                                                             Despierta          www.tartamudez.org.
                                                             America for
                                      a segment on Spanish speaking           ed the mother of a 6-year old boy.
                                      kids who stutter.                       “I want more information on how
                                         Immediately           following      to help him with teasing, and I
                                      Cheng’s interview with Yahaira          need the name of a therapist.”
                                      Maldonado, the Foundation                  Another concerned parent
     Another                          began receiv-
                                      ing hundreds
                                                                                                   emailed,
                                                                                                   “My child
    Great Year!                       of calls and
                                      e-mails from
                                                                                                   began stut-
                                                                                                   tering when
  The Stuttering Foundation           Spanish                                                      he was 5 and
PSAs are in national and re-          speaking                                                     now he is 7.
gional magazines as well as           people look-                                                 He is getting
newspapers across the country.        ing for help                                                 therapy two
Readers may spot an ad featur-        with stutter-                                                days a week,
ing Winston Churchill, Nick           ing.                                                         but we need
Brendon, conservationist Alan            One view-                                                 more help.”
Rabinowitz and many others.           er wrote, “I                                                  “My daugh-
  A new PSA with San Diego            am 17 years                                                  ter is 6-years
Charger Darren Sproles has            old. I have Stuttering Foundation workshopper Judi old and has a
been sent to sports magazines         been stutter- Cheng, M.S., CCC-SLP, speaks about stut- slight stutter
for use in upcoming issues.           ing since I tering on Univision’s Despierta America. when               she
  Recent PSAs appeared in Good        was about 5. My mother saw              speaks Spanish and sometimes
Housekeeping, Redbook, ESPN,          your interview on TV. We saw on         when she speaks English. Can you
Seventeen, Popular Mechanics,         your website that you can give us       send me information to help?”
Time, American Baby and news-         a list of people that might be able     asked a mother from New Jersey.
papers including the Philadelphia     to help.”                                  To view the Univision Despierta
Inquirer, New York Post, and the         “My son is the only one who          America segment on stuttering,
NY Times Magazine.                    stutters at his school,” comment-       visit www.stutteringhelp.org.
  The Stuttering Foundation
thanks these publications for this
valuable donated space that
reaches thousands and thousands
of readers looking for help.            Gregory’s Basic Principles on DVD
                                         Clinicians are still receiving training in the
                                      treatment of stuttering by the expert speech
Help Available in Croatian            language pathologist, Hugo Gregory,
           The Child Who Stutters:    Ph.D., through footage shot at Texas
           To the Pediatrician has    Christian University in 1998. The
           been translated into       new DVD, Basic Principles of
            Croatian by Dubravka      Stuttering Therapy, is now available
            Prpic. It can be down-    at www.stutteringhelp.org. The
            loaded from our Web       Foundation is grateful for the tireless
            site,      www.stutter-   efforts of Carolyn Gregory, June Campbell,
            inghelp.org. Click on     Diane Hill, Jennifer Watson and Kristin Chmela
“Translations” on the left.           who worked to make this DVD a reality.
THE
                                                         STUTTERING
10                                                       FOUNDATION                                              800-992-9392
        www.stutteringhelp.org



                                                Keep a Positive Attitude              ily. It’s easy for me to talk to peo-
                                               I’ve been a stutterer for as long      ple without bumping when I
                                            as I can remember. It has always          quote others, and it makes me
                                            weighed down my shoulders like            happy when I tell stories to peo-
                                            I’m wearing a backpack full of            ple that make them laugh.
                                            rocks. It has stopped me from try-           It’s also good to have a sense of
                                            ing out in plays, doing extra-credit      humor when other kids say things
                                            oral reports, running for 7th grade       that hurt your feelings. You just
                                            officer, and, in general, speaking        have to remember that they don’t
                                            aloud to any kind of audience.            understand and haven’t learned how
                                               When I came to the Center, I was       to treat anyone with respect.
Carol Ecke was ably assisted by Jennifer    able to learn some new techniques to         Remember, bullies have more
Watson, Valerie Johnston, Tara Hepler,      control my stuttering, ones that actu-    personal issues than other kids.
Montse Vallejo, and Geoff Coalson at        ally worked. Sadly, although “pro-        Ignore them and remember always
the marvelously successful convention of    longation”, “pull outs”, and “easy        how great you are.
the Texas Speech-Language-Hearing
Association. Russ Hicks of NSA provided     bumps” had helped my stuttering,          London, 12
this fine photo.                            they didn’t really help my confi-
                                            dence. I could use the tools and speak      What Listeners Should Know
                                            okay, but it didn’t mean I wanted to         One percent of the world’s popu-
                                            talk to an audience.                      lation stutters as adults and 1 in
                                               So Maria gave me a challenge to        every 20 children have a stuttering
                                            volunteer to read at school, offer to     problem. We need time to get out
                                            pray at church, and raise my hand if I    what to say, and if you insult one of
                                            knew the answer to a teacher’s ques-      us, are you going to insult all 6.7
                                            tion. This chal-                                                million of us?
                                            lenge terrified                                                 We need time
                                            me, and at first                                                to get our
                                            it was like tor-                                                words out, and
Darlene Sommers, Kavita Kaul, and Maryann   ture. Gradually,                                                if you ignore
Kaminsky at the conference of the Speech-   I realized that                                                 us, can you be
Language-Hearing Association of Virginia.   each time I did                                                 certain     you
                                            it, it became                                                   didn’t     miss
                                            easier and easi-                                                something im-
                                            er. Soon it was                                                 portant? Do
                                            no big deal Students in the Wasatch Children’s Stuttering not make as-
                                            when I spoke or Management Program wrote these stories s u m p t i o n s
                                            read in class, and presented them to the group on selected about people
                                            and now I even topics regarding stuttering.                     who stutter,
                                            find it fun.                                                    you might be
                                               Stuttering is what makes me an         quite a bit wrong.
                                            individual, and I’m not ashamed              I am saying this because I do not
                                            that I’m a little different from ev-      want people to assume I have a
                                            eryone else.                              mental issue, or that I forgot my
                                               We should keep practicing our          name, just because I got stuck on
Charlie Osborne and Jessica DeMille at      techniques to stay fluent, but most of    the first C. Give us time, let us
the conference of the Wisconsin Speech-                                               speak!
Language Pathology and Audiology
                                            the stuttering is in your heart. When
Professional Association.                   you release the embarrassment, the        Clay, 13
                                            sadness, and the stress of stuttering
                                            out of you, it will become little more             Feels Like a Maze
                                            than the nose on your face, the shape        I’m in a maze, trying to find my
                                            of your eyes, the color of your hair.     way out. It seems like, there’s no
                                               Yes, I stutter, but I don’t care. It’s way out of this never-ending
                                            what makes me, me.                        maze. Every stutter, block, and
                                            Megan, 14                                 struggle makes me more con-
                                                                                      fused. The only way out is to use
                                                 Sense of Humor Helps                 my techniques, prolongation,
                                               I think it’s good for everyone         pull-outs, easy/fake stuttering,
SFA’s Terri Jones prepares the booth at     to have a good sense of humor. I          and responding to my moments of
the Georgia Organization of School-                                                   stuttering. Finally, I’ve found my
Based Speech-Language Pathologists          like Jeff Dunham and Dane
Best Practices Conference in March.         Cook. I like to quote some of             way out of the maze.
Patty Reed joined her at the booth.         their lines to my friends and fam-        Devan, 14
THE
                                                        STUTTERING
                                                        FOUNDATION                                                   11
SUMMER 2010                                                                                        800-992-9392



                  Turning a Negative Into a Positive
By Dylan Levin                             knew that I stuttered and that        could tell that it was directed at
                                           bothered me because what if I         what happened to me. Nobody
Two years ago Dylan Levin asked            stuttered during the spelling bee?    knew what I had just gone
friends and family to donate to the        How would people respond?             through and nobody understood
Stuttering Foundation as a way to
honor his Bar-Mitzvah. Now as a high          At 2 p.m., it was time for the     my situation.
school student, he is busy making          spelling bee. I walked down the          Later that night, the phone rang
speeches and presentations without let-    stairs to the cafeteria where it      and it was Allie’s teacher calling
ting stuttering get in the way. The fol-   was being held and I took my          to discuss what happened at
lowing essay is a podcast script Dylan     seat on the stage. The problem        school. I did not tell my mom be-
gave recently at his school.
                                           was that I psyched myself out. I      cause I did not want her to get in-
                  As many of you           knew that I was going to fail.        volved. I did not want her to get
              know or don’t know, I        One by one the kids spelled and       upset. The truth is that I probably
              have a speech disflu-        one by one they got it right. My      should have told her the moment
              ency called stuttering.      turn. The word was population.        I got in the car, right after school.
              I have had this since        Dead silence. I must have said        Mr. L told my mom the whole sit-
              the age of four. My          uh and um about a hundred             uation, and she wanted to come
              stuttering is an invol-      times to make it seem like I was-     into his class, to talk with the
untary movement, which I can’t             n’t stuttering. And the thing was     kids about my disfluency and
control. Stuttering was never an           that I knew how to spell the          how to be accepting of a person
issue at school; I always participat-      word, but I just could not get the    with disabilities. I know that my
ed in class and I never felt that there    word out. Population is not a         mom, when it comes to my
was a problem until one day in             hard word to spell. Then the          speech disfluency, will always
sixth grade. That was the day when                                               have my back.
I realized that my stuttering was                                                   Four years have passed since
never going to go away and there-                                                this happened and now it is only
fore I had to work hard on my                                                    a memory lost in the pages of
speaking abilities.                                                              my life. My speech from that
   It happened at my school                                                      time has improved and I owe
spelling bee. There were two                                                     that partially to Allie. If she had
ways people got to be a part of                                                  not laughed then I probably
the spelling bee. The first one                                                  would not have experienced real
was where you compete with                                                       vulnerability. Every person that
people in your own advisory and                                                  does stutter, has his or her
then the winners go against peo-           most horrible thing happened,         human form wrapped in a blan-
ple from all of the other advi-            laughter. Never in my life had        ket of vulnerability all the time,
sories. Lucky for me, I won the            anyone really laughed at me like      but it is how we persevere dur-
spelling bee for my advisory. I            this girl did. Her name was           ing these hard times that truly
didn’t think about the fact that I         Allie, and I will never forget her.   define us. I know now that I
would have to spell words in                 I purposefully spelled the word     would not be the same person
front of the school at that mo-            wrong, just to get out of this em-    that I am today if I did not stut-
ment in time because I was just            barrassing situation. I went into     ter. I carry around this memory
happy that I had won. The day              the bathroom and started to cry. I    with me always because it is a
wore on and I started to become            was mortified and angry. I began      reminder that I must keep on
really nervous because I had               asking God why me, why did you        persevering and I must keep on
never given an announcement or             give me this terrible stutter? Why    talking because if I let this stut-
done anything, really, in front of         did you make people laugh? I          ter overcome me, then I have
the entire school. I would partici-        walked backed into the cafeteria      lost all hope. What I am trying to
pate and give presentations in my          and sat in the back. I did not want   convey is that people must per-
class and there I felt very com-           to show myself to anyone. When        severe to overcome any obstacle
fortable. But speaking in front of         I came back the teacher gave          that they are faced with. Maybe
the whole school made me ner-              some weak speech about being          one day I will not have a speech
vous. I was nervous because only           respectful to all of the people in    disfluency, but until then, I will
the people in my grade really              the spelling bee, but everyone        keep living and talking.
THE
                                                          STUTTERING
12      www.stutteringhelp.org                            FOUNDATION                                            800-992-9392




Dear SFA: Reader Response
Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org.

Friendships Help                                                                            If you do stutter, don’t
Dear SFA:                                                                                   worry, it’s all normal. Even
  I feel bad when I stutter. I                                                              some grown people do it.
can’t express what I want to                                                                Everyone stutters some-
say. When I repeat a word I                                                                 time in their life. If you
get frustrated. When this                                                                   have a friend who stutters,
happens, I stop and think                                                                   don’t tease them about it.
about what I’m going to                                                                       There are some strategies
say. Sometimes this helps                                                                   people use to help themselves.
me and sometimes it does-                                                                   Like me, I worked on using a
n’t. If I’m stuttering a lot,                                                               rubber band and stretching out
my friends give me signs to                                                                 the first word so I don’t stutter
do smooth speech. This                                                                      in the middle of the sentence.
helps me control my stutter-       My name is Robbie. I’m 11 years old and I’ve             There’s also using slow, easy
ing. Sometimes I tell my-          been in speech for three years. I work on my             speech to help the muscles in
                                   stuttering by using strategies. The first one is         your mouth not get all tight
self to do smooth speech.          using a speech mountain to remind me to start
Robbie, 11                                                                                  and clenched. All of these
                                   with air and then come out with my word. the             strategies can help you to stop
Winston-Salem, N.C.                second is “think time”/“black out.” It helps me
                                   think of words before I start sentences. Another         stuttering if you just take your
Just Like Dancing                  thing I like to use is eye contact because it helps      time and slow down.
 Dear SFA:                         the person I’m talking to know that I’m not fin-           Plenty of people stutter.
  I don’t like it when people      ished talking. So, if you stutter, you can try           Although some have differ-
ask me, “Do you stutter?” If       using these strategies.                                  ent reactions when they do
they ask me, I say, “Yes, I                                                                 it. Some just continue on
                                   Robbie, 11                                               and don’t pay attention.
do,” and keep on going. I get
embarrassed when I stutter,        Tallahassee, Fla.                                        Others feel that they’re
but I always try to keep going.                                                             going to get nervous and
  I think stuttering is like                                                                start to get worried, and that
dancing. If you practice                                                                    just makes it worse. To stop
dancing you will become                                                                     you need to be calm and
better, just like if you prac-                                                              don’t even think about it.
tice the tricks you learn to                                                                  If people bully you or tease
not stutter, you get better at                                                              you because you stutter, just
not stuttering.                                                                             walk away and don’t do any-
  It is all right to stutter. So                                                            thing to them because some-
many people do it, even                                                                     times the people who bully
celebrities do. If someone                                                                  and tease are usually the
makes fun of you or doesn’t                                                                 people who do stuff like that.
talk to you because you            My name is Jordan. I am 10. I stutter with cer-          They do it to let out their
stutter, that is their loss.       tain letters such as W, L, and B. But I have             anger on other people in-
Keep your hopes up and             found some strategies to help me. I’ve found             stead of trying to calm down.
keep on practicing. DON’T          backing out of tension and think time and they             If you just don’t worry
FEEL ALONE!                        help my stuttering! People used to make fun of           about stuttering, you will
Courtney, 10                       my stuttering. But I did a presentation in our           have a good time and not
Greenwich, CT                      class about stuttering. Now they don’t make fun          even know you do it. So, if
                                   of me. Now that I found some speech strategies           you stutter, don’t even
                                   and the kids in my class know why I stutter, I           worry about it and you will
Tips for Teasing                   feel awesome about stuttering!
Dear SFA:                                                                                   be a happy person.
  Do you stutter? I know I         Jordan, 10                                               Max
do. If you do, do your             Tallahassee, Fla.                                        Carmel, Ind.
friends tease you about it?                                                                             Continued on page 13
THE
                                                       STUTTERING
SUMMER 2010                                            FOUNDATION                              800-992-9392        13


Letters         Continued from page 12   sister is 8.    My friends make        “never mind” and I walk away.
                                         fun of my voice because I stutter.        My brother also stutters. My
Feeling Confident                        They just copy my voice. I have        sister doesn’t stutter. I have
Dear SFA:                                been stuttering for about three        learned some strategies to not
  Hi, my name is Kyle and I am           years. I mostly stutter at home.       stutter. One strategy is called
8 years old. I’ve been stuttering        Sometimes people tell me to “spit      “bouncing.” Bouncing means
for as long as I can remember. I         it out.” That does not help me say     that I might repeat a sound or
didn’t feel confident, but then          what I want to say. I usually say      word, but I do it in an easy way.
started speech class,                                                                   My speech teacher lets
and learned bouncy                                                                      me play games about
talk. Now, I feel more                                                                  talking. I try to ignore
confident and raise my                                                                  people who copy my stut-
hand in class, and talk                                                                 tering. I am a great kid
to     people      more.                                                                and I really don’t care
Because when I didn’t                                                                   about my stuttering. I try
have speech class, I                                                                    to not worry about the
didn't want to talk.                                                                    people who make fun of
Kyle, 8                                                                                 me.
Denver, Colo.                                                                           Nathan, 9
                                                                                        Anamosa, Iowa
Learning
About Me                                                                                Eye Contact
Dear SFA:                     My name is Chetan. I am 10 years old and I am a
  My name is Luke and         good person. I live in a brick duplex in Wichita, Kan.    Works
                              I like cars. In my picture, on the first road I am hav-   Dear SFA:
I am in 4th grade. When                                                                  My name is Willie. I like
I realized I sounded dif-     ing a good day. On the second road, I am not having
                              a good day and my speech is bumpy. I need to take a       to play video games. I
ferent I was five. It                                                                   have been stuttering since
sounded like I ran out of     deep breath and relax. I think going to speech is fun.
                              Chetan, 10                                                I was 3. I go to speech
air, and it gets quieter,                                                               class. I think it is fun. We
quieter, and quieter. I       Wichita, Kan.
                                                                                        have worked on keeping
felt like I hated it. It is                                                             eye contact. Eye contact
easier when I am read-                                                                  is important because it
ing and not talking. I am                                                               helps others know when
calm when I am writing.                                                                 you are finished talking. I
I am less calm in math                                                                  also learned about the
class when the teacher                                                                  speech machine. I don’t
calls on me. I stutter                                                                  like stuttering. I stutter
more when she calls on                                                                  more when I am in my
me. If we are in a crowd                                                                classroom or talking to
I stutter more because I                                                                adults. It makes me feel
am around more people.                                                                  better to know that other
This is my story.                                                                       kids stutter too.
Luke                                                                                    Willie
Delaware                                                                                Alabama
                                                                                                 Continued on page 16
Strategy Helps
Dear SFA:                     I’m 91⁄2 years old and my name is Asta. I live in
  My name is Nathan. I        Tallahasse, Fla. Stuttering makes me feel unhappy be-
am 9 years old and I am       cause children in my school make fun of me. I like to
in third grade. I like to     use easy beginnings because they help me avoid stut-
play video games and I        tering. I also back out of tension when I am about to
like to play baseball. I      stutter. It makes my speech smoother. I gave a presen-
also like to ride my bike     tation about stuttering to my classmates. Now they
and I can ramp really         don’t make fun anymore. And because of my presen-
high. I have one brother      tation, stuttering is much easier for me!
and one sister. My            Asta, 91⁄2
brother is 10 and my          Tallahasse, Fla.                                       Willie drew this picture.
THE
   STUTTERING
   FOUNDATION
   P.O. Box 11749 • Memphis, TN 38111-0749




              ttering
Natio  nal Stu k
             Wee
Aw   areness !
          10-16
 i s May



                            www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org

 Letters    Continued from page 13                                                    Books
                                                                                      4Leap of Faith by Richard Benyo. (2009)
 No One’s Fault                                                                       Pennsylvania Heritage Books. Available at
 Dear SFA:                                                                            www.amazon.com.
                                                                                      4Treatment of Stuttering, Established and
   I hope kids around the                                                             Emerging Interventions by Barry Guitar and
 world will read this. I am 10                                                        Rebecca McCauley. (2010) Lippincott,
                                                                                      Williams,     and    Wilkin,     Baltimore.
 years old. I love to play                                                            www.lww.com.
 sports. I play baseball, soc-                                                        4Research on Stuttering in Pre-school and
 cer, football, and basketball. I                                                     School Children by Zbigniew Tarkowski and
                                                                                      Ewa Malgorzata Skorek. (2009) University
 started stuttering when I was                                                        Zielonogorski Press, Poland.
 5. I know what it feels like to             Fourth-grader Rachel of Collegeville,    4Clinical Decision Making in Fluency
 be picked on by other kids. It              PA, drew cars that are stuck.            Disorders by Walter H. Manning. (2009)
                                                                                      Delmar Cengage Learning, Clifton Park, NY.
 made me mad.                                                                         www.cengage.com.
   I go to speech class. I have                                                       4Practical Intervention for Early Childhood
                                                                                      Stammering by Elaine Kelman and Alison
 learned that it is not my fault                                       This           Nicholas. (2008) Speechmark Publishing,
 or my parents’ fault that I                                           drawing        Ltd. Milton Keynes, U.K., www.speech-
 stutter. There are other kids                                         is by          mark.net.
                                                                                      4Stammering, Advice for All Ages by Renee
 in the world like me. It’s not                                        Adam,          Byrne and Louise Wright. (2008), Sheldon
 their fault either. There are                                         5th grade,     Press, London, www.sheldonpress.co.uk.
                                                                       of Trappe,     4Speak Freely: Essential Speech Skills for
 even famous people who                                                               School-Age Children Who Stutter by Mark
 stutter. I have found that                                            PA.
                                                                                      Allen, Ph.D., (2007) Speak Freely
 singing helps me talk better.                                                        Publications, Evanston, IL , www.cfst.com.
                                                                                      4Beyond Stammering, Revised edition by
 Try it! It might work for you.                                                       David Maguire. (2008) Souvenir Press,
 Rae’ Quan, 10                                                                        London.
                                                                                      4Stuttering: An Integrated Approach to Its
 Alabama                                                                              Nature and Treatment, Third Edition by
                                                                                      Barry Guitar. 2006. Available from
                                                                                      Lippincott, Williams & Wilkins, 800-638-
                                                                                      3030, www.LWW.com.
                                                                                      See our Web site, www.stutteringhelp.org,
                                                                                      for a complete list of books.



                                                                                     This newsletter is published quarterly. Please e-mail address
                                                                                     changes and story ideas to info@stutteringhelp.org.

                                                                                                    Volume18, Issue 3
  Kids, find more inspirational                                                      Renee Shepherd . . . . . . . . . . . . . Editor
  stories, fun articles, and videos          Rae’ Quan drew this picture of          Scot Squires . . . . . . . . . . . . . . . . Designer
  on our Web site, www.stutter-              baseball and basketball, which are      Special thanks to Joan Warner, Patty Reed,
  inghelp.org. We have a page                two sports he enjoys playing.           Susie Hall, Pat Hamm, Lisa Hinton, Terri
  just for you!                                                                      Jones, and Carol Ecke.

More Related Content

What's hot

DNA repair
DNA repairDNA repair
Reparación material genético
Reparación material genéticoReparación material genético
Reparación material genético
tomasco22
 
Genes In Psychiatry
Genes In PsychiatryGenes In Psychiatry
Genes In Psychiatry
Adonis Sfera, MD
 
Gene therapy
Gene therapyGene therapy
Gene therapy
pkchoudhury
 
DNA Repair
DNA RepairDNA Repair
reSearch Magazine Issue 4
reSearch Magazine Issue 4reSearch Magazine Issue 4
Mental illness and_genetics_presentation
Mental illness and_genetics_presentationMental illness and_genetics_presentation
Mental illness and_genetics_presentation
ismail sadek
 
Concomitant increase in cognitive behavioral deficits and white matter injury...
Concomitant increase in cognitive behavioral deficits and white matter injury...Concomitant increase in cognitive behavioral deficits and white matter injury...
Concomitant increase in cognitive behavioral deficits and white matter injury...
Susan Schwerin
 
DNA REPLICATION
DNA REPLICATIONDNA REPLICATION
DNA REPLICATION
catar22
 
Genetics research for society and global understanding - Myles Axton
Genetics research for society and global understanding - Myles AxtonGenetics research for society and global understanding - Myles Axton
Genetics research for society and global understanding - Myles Axton
Human Variome Project
 
Au Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
Au Psy492 W7 A2 Ppt Carlisle S.Doc.DocxAu Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
Au Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
Che55master1957
 
Shrinking glaciers under_scrutiny
Shrinking glaciers under_scrutinyShrinking glaciers under_scrutiny
Shrinking glaciers under_scrutiny
Sérgio Sacani
 
DNA Fingerprinting and its uses
DNA Fingerprinting and its usesDNA Fingerprinting and its uses
DNA Fingerprinting and its uses
SindhBiotech
 
Advanced Bio Term Paper
Advanced Bio Term PaperAdvanced Bio Term Paper
Advanced Bio Term Paper
Shayla McCaffery
 
Dna Repair Mechanisms
Dna Repair MechanismsDna Repair Mechanisms
Dna Repair Mechanisms
Maria Clara Ochoa Patiño
 
DNA repair and replication - Biology
DNA repair and replication - BiologyDNA repair and replication - Biology
DNA repair and replication - Biology
Valentina Ruiz
 
Genetic Mapping & its applications in different field of science
Genetic Mapping & its applications in different field of scienceGenetic Mapping & its applications in different field of science
Genetic Mapping & its applications in different field of science
habibullah181
 
Semiario- biologia Molecular
Semiario- biologia Molecular Semiario- biologia Molecular
Semiario- biologia Molecular
Laura Serna
 
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
applebyb
 
Family history
Family history Family history
Family history
David R Bachinsky
 

What's hot (20)

DNA repair
DNA repairDNA repair
DNA repair
 
Reparación material genético
Reparación material genéticoReparación material genético
Reparación material genético
 
Genes In Psychiatry
Genes In PsychiatryGenes In Psychiatry
Genes In Psychiatry
 
Gene therapy
Gene therapyGene therapy
Gene therapy
 
DNA Repair
DNA RepairDNA Repair
DNA Repair
 
reSearch Magazine Issue 4
reSearch Magazine Issue 4reSearch Magazine Issue 4
reSearch Magazine Issue 4
 
Mental illness and_genetics_presentation
Mental illness and_genetics_presentationMental illness and_genetics_presentation
Mental illness and_genetics_presentation
 
Concomitant increase in cognitive behavioral deficits and white matter injury...
Concomitant increase in cognitive behavioral deficits and white matter injury...Concomitant increase in cognitive behavioral deficits and white matter injury...
Concomitant increase in cognitive behavioral deficits and white matter injury...
 
DNA REPLICATION
DNA REPLICATIONDNA REPLICATION
DNA REPLICATION
 
Genetics research for society and global understanding - Myles Axton
Genetics research for society and global understanding - Myles AxtonGenetics research for society and global understanding - Myles Axton
Genetics research for society and global understanding - Myles Axton
 
Au Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
Au Psy492 W7 A2 Ppt Carlisle S.Doc.DocxAu Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
Au Psy492 W7 A2 Ppt Carlisle S.Doc.Docx
 
Shrinking glaciers under_scrutiny
Shrinking glaciers under_scrutinyShrinking glaciers under_scrutiny
Shrinking glaciers under_scrutiny
 
DNA Fingerprinting and its uses
DNA Fingerprinting and its usesDNA Fingerprinting and its uses
DNA Fingerprinting and its uses
 
Advanced Bio Term Paper
Advanced Bio Term PaperAdvanced Bio Term Paper
Advanced Bio Term Paper
 
Dna Repair Mechanisms
Dna Repair MechanismsDna Repair Mechanisms
Dna Repair Mechanisms
 
DNA repair and replication - Biology
DNA repair and replication - BiologyDNA repair and replication - Biology
DNA repair and replication - Biology
 
Genetic Mapping & its applications in different field of science
Genetic Mapping & its applications in different field of scienceGenetic Mapping & its applications in different field of science
Genetic Mapping & its applications in different field of science
 
Semiario- biologia Molecular
Semiario- biologia Molecular Semiario- biologia Molecular
Semiario- biologia Molecular
 
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
 
Family history
Family history Family history
Family history
 

Viewers also liked

En stutter no-more
En stutter no-moreEn stutter no-more
10. Edicion Html. Estilos Edicion Html. DiseñO Visual 0001
10. Edicion Html. Estilos Edicion Html. DiseñO Visual   000110. Edicion Html. Estilos Edicion Html. DiseñO Visual   0001
10. Edicion Html. Estilos Edicion Html. DiseñO Visual 0001
José M. Padilla
 
Fall2004news
Fall2004newsFall2004news
Summer 2008 newsletter
Summer 2008 newsletterSummer 2008 newsletter
Winter2009newsletter
Winter2009newsletterWinter2009newsletter
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13WHR Corporate
 
Sách chữa tật nói lắp Version 1.0 beta
Sách chữa tật nói lắp Version 1.0 betaSách chữa tật nói lắp Version 1.0 beta
Sách chữa tật nói lắp Version 1.0 beta
Bình Trọng Án
 
stutter no more
stutter no morestutter no more

Viewers also liked (8)

En stutter no-more
En stutter no-moreEn stutter no-more
En stutter no-more
 
10. Edicion Html. Estilos Edicion Html. DiseñO Visual 0001
10. Edicion Html. Estilos Edicion Html. DiseñO Visual   000110. Edicion Html. Estilos Edicion Html. DiseñO Visual   0001
10. Edicion Html. Estilos Edicion Html. DiseñO Visual 0001
 
Fall2004news
Fall2004newsFall2004news
Fall2004news
 
Summer 2008 newsletter
Summer 2008 newsletterSummer 2008 newsletter
Summer 2008 newsletter
 
Winter2009newsletter
Winter2009newsletterWinter2009newsletter
Winter2009newsletter
 
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13
Hootsuite_"Social Media Revenue per il turismo" WHR_Bergamo_27.09.13
 
Sách chữa tật nói lắp Version 1.0 beta
Sách chữa tật nói lắp Version 1.0 betaSách chữa tật nói lắp Version 1.0 beta
Sách chữa tật nói lắp Version 1.0 beta
 
stutter no more
stutter no morestutter no more
stutter no more
 

Similar to Summer newsletter 2010_online(2)

Nucleotide Groupings
Nucleotide GroupingsNucleotide Groupings
Nucleotide Groupings
Kara Bell
 
Dna is not destiny
Dna is not destinyDna is not destiny
Dna is not destiny
Elsa von Licy
 
What’s in a Name? Cerebral Palsy Spectrum Disorder
What’s in a Name? Cerebral Palsy Spectrum DisorderWhat’s in a Name? Cerebral Palsy Spectrum Disorder
What’s in a Name? Cerebral Palsy Spectrum Disorder
Dr. James C Johnston
 
Genetics project
Genetics projectGenetics project
Genetics project
MorganScience
 
Dogma central
Dogma centralDogma central
Dogma central
Camilajaramilloj
 
DNA structure, genes and its chemical composition
DNA structure, genes and its chemical compositionDNA structure, genes and its chemical composition
DNA structure, genes and its chemical composition
Valentina Duque
 
104676280 case-study-brain-tumor-final
104676280 case-study-brain-tumor-final104676280 case-study-brain-tumor-final
104676280 case-study-brain-tumor-final
homeworkping7
 
2018 BDSRA Feuerborn
2018 BDSRA Feuerborn2018 BDSRA Feuerborn
William Faloon on Age Reversal
William Faloon on Age ReversalWilliam Faloon on Age Reversal
William Faloon on Age Reversal
Alex Vidal
 
Genetics research
Genetics researchGenetics research
Genetics research
MorganScience
 
Stem cell project
Stem cell projectStem cell project
Stem cell project
somsscience7
 
Genetic Engineering for Cure
Genetic Engineering for CureGenetic Engineering for Cure
Genetic Engineering for Cure
MorganScience
 
Power Point Genetic Modification
Power Point Genetic ModificationPower Point Genetic Modification
Power Point Genetic Modification
MorganScience
 
DNA structure
DNA structureDNA structure
DNA structure
anavanegast
 

Similar to Summer newsletter 2010_online(2) (14)

Nucleotide Groupings
Nucleotide GroupingsNucleotide Groupings
Nucleotide Groupings
 
Dna is not destiny
Dna is not destinyDna is not destiny
Dna is not destiny
 
What’s in a Name? Cerebral Palsy Spectrum Disorder
What’s in a Name? Cerebral Palsy Spectrum DisorderWhat’s in a Name? Cerebral Palsy Spectrum Disorder
What’s in a Name? Cerebral Palsy Spectrum Disorder
 
Genetics project
Genetics projectGenetics project
Genetics project
 
Dogma central
Dogma centralDogma central
Dogma central
 
DNA structure, genes and its chemical composition
DNA structure, genes and its chemical compositionDNA structure, genes and its chemical composition
DNA structure, genes and its chemical composition
 
104676280 case-study-brain-tumor-final
104676280 case-study-brain-tumor-final104676280 case-study-brain-tumor-final
104676280 case-study-brain-tumor-final
 
2018 BDSRA Feuerborn
2018 BDSRA Feuerborn2018 BDSRA Feuerborn
2018 BDSRA Feuerborn
 
William Faloon on Age Reversal
William Faloon on Age ReversalWilliam Faloon on Age Reversal
William Faloon on Age Reversal
 
Genetics research
Genetics researchGenetics research
Genetics research
 
Stem cell project
Stem cell projectStem cell project
Stem cell project
 
Genetic Engineering for Cure
Genetic Engineering for CureGenetic Engineering for Cure
Genetic Engineering for Cure
 
Power Point Genetic Modification
Power Point Genetic ModificationPower Point Genetic Modification
Power Point Genetic Modification
 
DNA structure
DNA structureDNA structure
DNA structure
 

More from Echo Viet Nam - Cộng đồng người nói lắp Việt Nam

Winter newsletter jan10
Winter newsletter jan10Winter newsletter jan10
Winter newsletter 2006
Winter newsletter 2006Winter newsletter 2006
Summer2009newsletterweb
Summer2009newsletterwebSummer2009newsletterweb
Summer2006newsletter
Summer2006newsletterSummer2006newsletter
Fall 2008 newsletter
Fall 2008 newsletterFall 2008 newsletter
Summer2005
Summer2005Summer2005
Summer2004
Summer2004Summer2004
Newsletter fall2007
Newsletter fall2007Newsletter fall2007
Fall2006newsletter
Fall2006newsletterFall2006newsletter
Fall 2009newsletter
Fall 2009newsletterFall 2009newsletter
Winter2005
Winter2005Winter2005
The childwhostuttertopediatrician
The childwhostuttertopediatricianThe childwhostuttertopediatrician
Stuttering its natureandmanagement
Stuttering its natureandmanagementStuttering its natureandmanagement
Sometimes stutter
Sometimes stutterSometimes stutter
Self therapyforthestutters tenth_ed
Self therapyforthestutters tenth_edSelf therapyforthestutters tenth_ed
Stuttering straighttalkforteacher 2008
Stuttering straighttalkforteacher 2008Stuttering straighttalkforteacher 2008

More from Echo Viet Nam - Cộng đồng người nói lắp Việt Nam (20)

Thiền
ThiềnThiền
Thiền
 
Thôi miên 02
Thôi miên 02Thôi miên 02
Thôi miên 02
 
Thôi miên 01
Thôi miên 01Thôi miên 01
Thôi miên 01
 
Sống vui vẻ
Sống vui vẻSống vui vẻ
Sống vui vẻ
 
Winter newsletter jan10
Winter newsletter jan10Winter newsletter jan10
Winter newsletter jan10
 
Winter newsletter 2006
Winter newsletter 2006Winter newsletter 2006
Winter newsletter 2006
 
Summer2009newsletterweb
Summer2009newsletterwebSummer2009newsletterweb
Summer2009newsletterweb
 
Summer2006newsletter
Summer2006newsletterSummer2006newsletter
Summer2006newsletter
 
Fall 2008 newsletter
Fall 2008 newsletterFall 2008 newsletter
Fall 2008 newsletter
 
Summer2005
Summer2005Summer2005
Summer2005
 
Summer2004
Summer2004Summer2004
Summer2004
 
Newsletter fall2007
Newsletter fall2007Newsletter fall2007
Newsletter fall2007
 
Fall2006newsletter
Fall2006newsletterFall2006newsletter
Fall2006newsletter
 
Fall 2009newsletter
Fall 2009newsletterFall 2009newsletter
Fall 2009newsletter
 
Winter2005
Winter2005Winter2005
Winter2005
 
The childwhostuttertopediatrician
The childwhostuttertopediatricianThe childwhostuttertopediatrician
The childwhostuttertopediatrician
 
Stuttering its natureandmanagement
Stuttering its natureandmanagementStuttering its natureandmanagement
Stuttering its natureandmanagement
 
Sometimes stutter
Sometimes stutterSometimes stutter
Sometimes stutter
 
Self therapyforthestutters tenth_ed
Self therapyforthestutters tenth_edSelf therapyforthestutters tenth_ed
Self therapyforthestutters tenth_ed
 
Stuttering straighttalkforteacher 2008
Stuttering straighttalkforteacher 2008Stuttering straighttalkforteacher 2008
Stuttering straighttalkforteacher 2008
 

Summer newsletter 2010_online(2)

  • 1. Byron Pitts of 60 Minutes Joins Famous People Poster for National Stuttering Awareness Week, May 10-16 Page 5 T HE S TUTTERING F OUNDATION A Nonprofit Organization SUMMER 2010 Since 1947 ... Helping Those Who Stutter Starkweather Receives Malcolm Fraser Award C. Woodruff Starkweather, Ph.D., received the 2010 Malcolm Fraser Award during the January meeting of the Special Interest Division for Fluency and Fluency Disorders. Barbara Amster, Ph.D. made the following award presentation: I was asked to give the high- lights of the awardee’s career. This is not an easy feat as his CV is more than 25 pages long, Dennis Drayna, Ph.D., researcher for the National Institute on Deafness and Other Communication Disorders. See page 2 for the NIDCD press release. but I will try to give you only the highlights. Woody Starkweather is an in- dividual whose contributions Researchers Discover over more than 40 years have promoted and enhanced public First Genes for Stuttering and professional understanding The mystery behind a complex therapy and early intervention of the nature of stuttering and its disorder called stuttering became with young children remain the treatment. He has demonstrated a little clearer with the announce- best option for now.” excellence in the field of stutter- ment of the discovery of three “We have long known that ing as a master teacher, advo- genes for stuttering by Dennis stuttering runs in families,” says cate for people who stutter, and Drayna, Ph.D., a director of the Fraser. “We want to emphasize scholar/researcher. In the words Stuttering Foundation and re- that a genetic predisposition for of one of his nominators, “I be- searcher for the National Institute stuttering does not mean a per- on Deafness and Other son will have a lifelong prob- lieve that he is one of only a few Communication Disorders. lem. Early treatment in young people whose contributions to “This research is important be- children can effectively prevent the field of stuttering go beyond cause it’s another indication that stuttering.” a listing of research, teaching, emotional factors such as anxiety Developing an understanding and service accomplishments. or ‘bad parenting’ do not cause of the biological basis of stutter- Continued on page 6 stuttering. It could also point the ing may someday lead to better way for a cure one day,” says early diagnosis, differential Jane Fraser, president of the treatments for people with ge- Stuttering Foundation. netic indicators, and a better un- “We hear every day from par- derstanding of how speech pro- ents worried that they have duction happens differently for caused their child’s stuttering. people who stutter. Although Parents don’t cause stuttering, Dr. Drayna notes that his find- and this research should lift the ings are unlikely to have any Jean Gruss, grandson of SFA burden of guilt from their shoul- immediate impact on treatment, founder Malcolm Fraser, and ders,” Fraser noted. “But because they nonetheless represent a C. Woodruff Starkweather at a cure may be years away, speech giant step forward. the award ceremony.
  • 2. THE STUTTERING 2 www.stutteringhelp.org FOUNDATION 800-992-9392 Press Release from the National Institute on Deafness and Other Communication Disorders: Findings Suggest Stuttering, in Some Cases, May Actually be an Inherited Metabolic Disorder Feb. 10, 2010 — Stuttering may be rounding a new marker and identi- some. Large deposits of these sub- the result of a glitch in the day-to-day fied mutations in a gene known as stances ultimately cause joint, skele- process by which cellular components in GNPTAB in the affected family tal system, heart, liver, and other key regions of the brain are broken members. The GNPTAB gene is health problems as well as develop- down and recycled, says a study in the carried by all higher animals, and mental problems in the brain. They Feb. 10 Online First issue of the New helps encode an enzyme that assists are also known to cause problems England Journal of Medicine. The in breaking down and recycling cel- with speech. study, led by researchers at the National lular components, a process that “You might ask, why don’t people Institute on Deafness and Other takes place inside a cell structure with the stuttering mutations have Communication Disorders (NIDCD), called the lysosome. more serious complications? Why part of the National Institutes of Health, They then analyzed the genes of don’t they have an ML disease?” has identified three genes as a source of 123 Pakistani individuals who stut- posed Dr. Drayna, senior author of the stuttering in volunteers in Pakistan, the ter—46 from the original families and paper. “ML disorders are recessive. United States, and England. Mutations 77 who are unrelated—as well as 96 You need to have two copies of a de- in two of the genes have already been unrelated Pakistanis who don’t stutter, fective gene in order to get the dis- implicated in other rare metabolic disor- and who served as controls. ease. Nearly all of the unrelated indi- ders also involved in cell recycling, Individuals from the United States and viduals in our study who stuttered had while mutations in a third, closely relat- England also took part in the study, only one copy of the mutation. Also, ed, gene have now been shown to be as- 270 who stutter and 276 who don’t. with stuttering, the protein is still sociated for the first time with a disorder The re- made, but it’s not made exactly right. in humans. searchers With ML diseases, the proteins typi- “For hundreds of years, the cause found cally aren’t made at all. Still, there are of stuttering has remained a mystery some in- a few complexities remaining to be for researchers and health care profes- dividuals understood, and we’d like to learn sionals alike, not to mention people who stut- more about them.” who stutter and their families,” said ter pos- The findings open new research James F. Battey, Jr., M.D., Ph.D., di- sessed the same mutation as that found avenues into possible treatments for rector of the NIDCD. “This is the first in the large Pakistani family. They also stuttering. For example, current study to pinpoint specific gene muta- identified three other mutations in the treatment methods for some lysoso- tions as the potential cause of stutter- GNPTAB gene which showed up in mal storage disorders involve inject- ing, a disorder that affects 3 million several unrelated individuals who stut- ing manufactured enzyme into a per- Americans, and by doing so, might ter but not in the controls. son’s bloodstream to replace the lead to a dramatic expansion in our GNPTAB encodes its enzyme with missing enzyme. The researchers options for treatment.” the help of another gene called wonder if enzyme replacement ther- Stuttering is a speech disorder in GNPTG. In addition, a second en- apy might be a possible method for which a person repeats or prolongs zyme, called NAGPA, acts at the next treating some types of stuttering in sounds, syllables, or words, disrupting step in this process. Together, these the future. the normal flow of speech. It can enzymes make up the signaling The researchers estimate that severely hinder communication and a mechanism that cells use to steer a roughly 9 percent of people who stut- person’s quality of life. Most children variety of enzymes to the lysosome to ter possess mutations in one of the who stutter will outgrow stuttering, do their work. Because of the close three genes. Among the next steps, although many do not; roughly 1 per- relationship among the three genes in they are conducting a worldwide epi- cent of adults stutter worldwide. this process, the GNPTG and demiological study to better deter- Stuttering tends to run in families, NAGPA genes were the next logical mine the percentage of people who and researchers have long suspected a place for the researchers to look for carry one or more of these mutations. genetic component. Previous studies possible mutations in people who They are also conducting biochemi- of stuttering in a group of families stutter. Indeed, when they examined cal studies to determine specifically from Pakistan had been done by these two genes, they found muta- how the mutations affect the en- Dennis Drayna, Ph.D., a geneticist tions in individuals who stutter, but zymes. A long-term goal is to use with the NIDCD, which indicated a not in control groups. these findings to determine how this place on chromosome 12 that was The GNPTAB and GNPTG genes metabolic defect affects structures likely to harbor a gene variant that have already been tied to two serious within the brain that are essential for caused this disorder. metabolic diseases known as mucol- fluent speech. In the latest research, Dr. Drayna ipidosis (ML) II and III. MLII and In addition to the NIDCD, researchers at the and his team refined the location of MLIII are part of a group of diseases University of Punjab, Lahore, Pakistan; the this place on chromosome 12 and called lysosomal storage disorders Hollins Communications Research Institute, focused their efforts on the new because improperly recycled cell Roanoke, Va.; the National Human Genome Research Institute (NHGRI); and the NIH Clinical site. They sequenced the genes sur- components accumulate in the lyso- Center contributed to this work.
  • 3. THE STUTTERING SUMMER 2010 FOUNDATION 800-992-9392 3 More than 100,000,000 People Reached! Feb. 10 was a blockbuster day with news of the discov- ery of the first three genes for stuttering. Stephanie Nano’s Associated Press wire story reached more than 1,700 newspapers, 5,000 radio and television outlets in the United States, and radio, television and newspaper subscribers interna- tionally. In her article, Nano quotes Dennis Drayna as saying “stuttering is almost certainly a biological problem.” She also included SFA’s Jane Fraser’s comment that “in terms of mythbusters, this is re- ally an important step forward.” Richard Knox’s NPR segment for Morning Edition reached more than 20 million listeners. He interviewed Dr. Drayna extensively as well as speech-language pathologist Kristin Chmela and Fraser. Chmela shared her excitement about the new research not only from the viewpoint of a therapist, but also of a person who stutters herself. Fraser shared with Knox how thrilled her father, Stuttering Foundation founder Malcolm Fraser would have been to learn of this discovery. “He always felt that if he just tried hard enough, he wouldn’t stutter. This research would have lifted a heavy burden of guilt from his shoulders.” The news appeared around the world at light- ning speed with additional articles and seg- ments by Agence France Presse, the China Daily, AAJ Pakistan TV, The Tehran Times, The Watan Daily in Kuwait, the Brisbane Times, and a live interview in Sydney, Australia with Dr. Drayna. Coverage of the discovery of the first genes for Other U.S. outlets featuring the findings include stuttering included the Stuttering Foundation’s HealthNewsDigest, The Philadelphia being featured on marquees in Times Square. Inquirer, The Commercial Appeal, the Arizona Daily Star, El Paso Times, Cleveland Plain Dealer, Newsday, MarketWatch, ABC, CBS, Fox News, CNN, the Miami Herald, and many more too numerous to list. Annual Audit funds and expenditures for the year. be assured that their gifts will go direct- The annual audit of the Stuttering The 3.8% of expenditures for ad- ly to support our program services. Foundation financial reports for 2009 ministration and general expenses and The Foundation is a 501(c)(3) pri- was recently completed by the account- the 7/10 of 1% for fund raising are very vate operating foundation which ex- ing firm of Cannon and Company, low, and since we are fortunate to have pends its funds on its own programs and Certified Public Accountants, an endowment which more than cov- operations and does not make grants to Memphis, Tenn. Following is a recap of ers our overhead expenses, donors can other institutions. Funds expended for: Creation, production, printing and distribution of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $503,615 . . . . . . . 36.5% Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 300,781 . . . . . . . 21.8% Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .172,360 . . . . . . . . 12.5% Research on causes/treatment of stuttering and therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 254,687 . . . . . . . . 18.4% Maintain Web site and toll-free information hotline . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 87,169 . . . . . . . . . 6.3% Total for Program Services:. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,318,612 . . . . . . 95.5% Other expenditures: Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51,984 . . . . . . . . . 3.8% Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10,318 . . . . . . . . 0.7% Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,380,914 . . . . . . . 100%
  • 4. THE STUTTERING 4 www.stutteringhelp.org FOUNDATION 800-992-9392 Jane Fraser, Lady Caroline Michael Palin Prince Charles Egremont and Prince Charles. Prince Charles Supports Stammering Centre Stuttering Foundation President Jane Fraser at- tended a luncheon reception at Clarence House hosted by Prince Charles to announce His Royal Highness’ support of an appeal to fund treatment for children who stutter. The appeal was launched by the Association for Research into Stammering Education Secretary Ed in Childhood (ARSC), our Foundation partner in Prince Charles greeting Balls, Michael Palin and the United Kingdom. Travers and Sandra Reid. Prince Charles. “It was a great honor to meet Prince Charles Travers is Life President and work to increase awareness and support for and co-Founder of ARSC. stuttering,” Fraser said. The Prince of Wales commented, “I am so pleased to be Patron of this Appeal particularly in memory of my grandfather, King George VI, who, as many of you will know, was afflicted with a stammer for many years. His stammer cut him off I think in so many ways from his parents and his brothers and sisters and drove him into himself as I suspect so many stammerers will understand. Above all he experienced that awful fear of feel- Dame Gail Ronson and Renowned author Lord ing different from others.” Major General Bryan Max Egremont with Prince Read more about this event, view press cov- Dutton greet Prince Charles. erage, and find the Prince’s entire speech at Charles. www.stutteringhelp.org. Mrs. Jane Fraser and Mr. Joe Fulcher Jane Fraser is seen meet- ing Prince Charles on the Prince Charles and TV news. Frances Cook. National Stuttering Awareness Week May 10-16, 2010
  • 5. THE STUTTERING SUMMER 2010 FOUNDATION 800-992-9392 5 National Stuttering Awareness Week is May 10-16 In response to the exciting genetic find- ings, our Friends on Facebook let us know what they thought: Ray As I listened to the NPR broadcast regarding the new genetic finding about the cause of stuttering, tears were streaming down my cheeks. I reflected back on the 60 years of my life, and it just seemed as though so much of the ridicule, self doubts and struggles melted away; in their stead were knowledge, under- standing and a feeling of inner peace. I now think that I know how Atlas must have felt when he was allowed to remove the weight of the world from his shoulders. Katie As an SLP and Mom to 3 beautiful kids ages 8, 7, and 5 who've all stut- 60 Minutes Correspondent Byron Pitts tered to varying degrees this re- Joins the Team of Famous People search is very exciting! Our oldest and youngest responded positively to modifi- cations at home to promote fluency (modeling reduced speaking rate, daily one on one time, etc.), but for our middle daughter who also Outreach to Pediatricians had multiple articulation errors and relatively weak language skills, the modifications The new Pediatrics Review and weren’t enough. She has been in speech for 3 Education Program, PREP The Curriculum years, and is doing great! As an SLP I knew that there were many misconceptions about 2010, displays the Stuttering Foundation’s stutterers and their parents. However, until I Physician’s Checklist for Referral. faced these misconceptions as a parent, and This Checklist helps physicians know encountered people’s reactions to my chil- dren’s stuttering; I didn’t fully appreciate how when and how to refer their young pa- painful they can be to stutterers and their tients to a speech-language pathologist loved ones! for treatment. Susanne Barry Guitar, Ph.D., and Edward G. As a mother of a 12 year old who stut- Conture, Ph.D., compiled this Checklist; ters, I’ve been told numerous times that it is nothing the parent has done and it is part of the bestseller, The Child to cause this stuttering, yet the doubt Who Stutters: To the Pediatrician, pub- was always lingering there. This is great news lished by the Stuttering Foundation. for all who have been affected by stuttering. “Reaching pediatricans with accurate in- Brandon formation on stuttering is one of our most As a teen that stutters I really hope that it is a gene defect and important goals,” said June Campbell, doctors can somehow change it. M.A., CCC-SLP, who represents the I’ve always joked around with my Foundation at the American Academy of speech teachers about that and now it may actually happen. Pediatrics convention every year. Alan As a life long stutterer this could fi- nally lead to better treatment, too late for me but for the younger peo- T-shirts featuring running backs ple this is potentially good news. LaDanian Tomlinson and Darren Sproles have sold out. Jackie As a mom of a 7 year old boy who Greathouse Screen Printing cranked out has struggled with this for 2 years it thousands of these special edition Chargers is heart breaking knowing there is shirts with the headline “Thunderbolt and not a pill, cure or simple fix. And as with Susanne, I was told there is nothing we Lightning, Very, Very Frightening.” could have done to cause it, you still always Each player donated the proceeds question yourself. But this study helps with relieving some of that doubt. The Stuttering from the sale of the t-shirts to chari- Foundation has provided our family with a lot ties close to his heart. Sproles, an of information & the SLP & my son’s teach- SFA spokesman, chose the Stuttering ers have been amazing. Thank you all! Foundation. T-shirt supports Foundation
  • 6. THE 6 www.stutteringhelp.org STUTTERING 800-992-9392 FOUNDATION Award Continued from front page Woody truly cares about people who stutter, and has worked tirelessly to give them a voice through his writing, his leadership, and his creative vision.” Many of his writings have changed the way speech-language pathologists evaluate and treat stuttering. His work on the Demands and Capacities Model has had a profound impact on stuttering prevention and has influenced our under- Malcolm Fraser and standing of factors that contribute to the onset and maintenance of stuttering be- Woody Starkweather haviors, thus setting the stage for multi-factorial views of stuttering. in the 1970s He has had a stellar career as a scholar and researcher. His book Stuttering, co-writ- ten with Janet Givens, received the Choice Magazine Award as the “Best Academic Book of 1997.” This was the first time that this “Oscar of Academic Publishing” had been given in the field of Speech Pathology. Other books he has written are now considered classics in the field including: Stuttering Prevention: a Clinical Method (1990; co-authored with Sheryl Gottwald & Murray Woody Starkweather Woody Starkweather Halfond) and Fluency and Stuttering (1987). He is the and Jane Fraser and Janet Givens author of more than forty articles and chapters concern- ing: learning processes in stut- tering, the Demands and Capacities Model of stuttering, stuttering development, stutter- ing prevention, the assessment of stuttering, the experience of stuttering, and the efficacy of Woody Starkweather Barbara Amster, Ken St. Woody Starkweather stuttering therapy. and Vianne Bjornberg Louis, Hayley Arnold and Sheryl Gottwald In the words of one nomina- and Vianne Bjornberg tor, “his contributions go far beyond the walls of the class- room and clinic. He has made the greatest contribution of anyone I know towards con- necting people who care about stuttering, and developing mechanisms for allowing them Rossanna Portley, Woody Starkweather Jennifer Watson and to learn and support one anoth- Hayley Arnold, Courtney and Vivian Sisskin Susan Cochrane er. He demonstrated this Byrd and Jane Fraser through his leadership as pres- ident of the International Fluency Association, helping develop and nurture it as it grew from a fledgling organization into a recognized av- enue of exchange and communication among the inter- national community in stuttering. He was instrumental in the development of ASHA’s Specialty Recognition program. He served on ASHA’s Special Interest Glen Tellis, Kathy Rossanna Portley and Division 4, Fluency and Fluency Disorders, helping to Scaler-Scott and Shelley Brundage write guidelines and to unify professionals otherwise Marilyn Langevin working in isolation in schools, clinics, hospitals and universities across the country.” His tireless advocacy for people who stutter has given a strong voice to children and adults who stutter. His leadership in the development of support groups provided the model for future support organizations throughout the world. When he founded STUTT_L, an internet discussion list for researchers, clinicians, and people who stut- ter, individuals from all of these groups had a forum to discuss and share ideas for the first time. He has had a profound influence on people who stutter, their families, and Woody Starkweather, the speech-language pathologists who treat them. It is with great respect and admira- Vivan Sisskin and tion that we present the 2010 Malcolm Fraser award to Dr. C. Woodruff Starkweather. Liz Edwards
  • 7. THE SUMMER 2010 STUTTERING 800-992-9392 7 FOUNDATION The recent Disney version of read out the first verse where the Lewis Carroll’s classic, Alice in two words ‘strife, strengthened’ Wonderland, garnered a great deal of “Rules & Regulations” coming together were media hype. Even though the main- Learn well your grammar too much for me, stream media has not made mention And never stammer… and I had to that Carroll was a person who stut- Eat bread with butter leave the verse tered, his family history gives cre- Once more, don’t stutter. unfinished.” dence to the discovery of the genetic ~Lewis Carroll C a r r o l l ’s link to stuttering. Carroll was born to true essential life, expressed in the nephew, parents who were first cousins; al- Alice books and in some poems ….. S t u a r t most all of their eleven children, When he spoke to these children, he Dodgson three girls and seven boys, struggled lost his habitual stammer. He simply Collingwood, with stuttering past childhood. became one of them …… This wrote that his In Lewis perennial childhood, together with uncle “saw that Carroll: A the fantasy and poetry that some- the impediment of Biography, au- times expressed it, was his reality.” speech from which he suffered thor Morton N. In 1859, Carroll undertook speech would greatly interfere with the prop- Cohen stated, er performance of clerical duties.” “The newborn One longtime friend, May Barber, son was the described Carroll’s speech, “Those third of what stammering bouts were rather terri- eventually be- fying. It wasn’t exactly a stammer came a family because there was no noise, he just of eleven chil- opened his mouth …. When he was dren, and if these bloodlines deserve in the middle of telling a story …… credit for the creative genius we he suddenly stopped and you won- know to be Lewis Carroll’s, so per- dered if you had done anything haps they bear the blame for the wrong. Then you looked at him and stammer epidemic in Charles’ you knew that you hadn’t, it was all speech and in the speech of much of right. You got used to it after a bit. his brothers and sisters.” He fought it wonderfully.” Lewis Carroll, the pseudonym of Biographer John Pudney wrote, Charles Lutwidge Dodgson, was “Perhaps his failure to correct his born in 1827 to Charles Dodgson speech impediment was the overar- and the former Frances Jane ching symbol of his entire life. He Lutwidge. In addition to being a learned to live with his stammering; writer, Carroll was a mathematician, therapy lessons from James Hunt, he knew a logician, an Anglican deacon and a what it per- who was considered the foremost photographer. His most notable lit- mitted him erary works are Alice’s Adventures speech correctionist in Great Britain to do, what in Wonderland, Through the at the time and was estimated to have not, where Looking Glass, The Hunting of the treated 1,700 people who stutter. In it would Snark, and Jabberwocky. The Mystery of Lewis Carroll, biog- snare him Biographer John Pudney ex- rapher Jenny Woolf stated that Hunt and de- pressed in Lewis Carroll and his boasted he taught the patient to stroy the World how Carroll’s childlike fan- speak consciously in a way that other effects he tasies were not only the spark for his men spoke unconsciously. sought to creative genius but also brought him Nothing bothered Carroll more achieve and how to avoid the traps.” into a new about his speech than how it affect- Stuttering did not stop Lewis world where ed his ministry in the Anglican Carroll. He brought to life many last- stuttering did Church. His father had been an ing and imaginative stories for chil- not exist, “This Anglican priest, and Carroll himself dren. It is a shame that his own strug- ‘perfectly hard became a deacon. Upon one occa- gles and family history of stuttering crystal’ con- sion he accepted the invitation to are not well known as they would taining child- preach and recalled, “I got through it further inspire as well as help chil- hood was his all with great success, till I came to dren who stutter.
  • 8. THE STUTTERING 8 FOUNDATION www.stutteringhelp.org 800-992-9392 From One Clutterer to Another … Strategies that Helped Me By Lacey Heid how strained my voice sound- I was diagnosed with a mild clut- ed at the end of my sentences tering disorder when I was 24 years (because I would speak on old. Cluttering is a type of fluency residual air). Then, we lis- disorder, and it often gets misdiag- tened to the recordings of the nosed or undiagnosed altogether. I reading samples. want to discuss what has helped me This was the turning point in improve my speech. Hopefully, my speech therapy, because I this will help others who clutter heard the difference. I heard the find some strategies that may help pausing. I heard every sound in every word. I understood every- improve their speech, as well as The Stuttering Foundation thing I had said. That is the point shed some light for SLPs on ways offers a DVD and brochure when I realized that I could talk to help their clients with fluency on cluttering. more slowly and I could be un- disorders. derstood. All I had to do was take As I got older, my peers started unaware of them, and there- these strategies and apply them reacting to my speech rate. fore, has a hard time self-mon- to everyday conversation. Although I had a lot of friends, itoring. Cluttering is often mis- there would be that occasional per- Self-Monitoring — This was diagnosed, or in my case, undi- by far the most important strate- son that playfully mocked my agnosed, even though onset “stuttering” or mentioned that I al- gy for me. I needed to be able to can occur as early as the hear my own speech rate as I was ways talked too fast. preschool years. In the working world, it be- speaking and adjust my speech After my initial speech and accordingly. came worse. Co-workers and language evaluation, my SLP customers had a hard time under- If I couldn’t hear myself omit- (who at the time was a student ting syllables, or hear myself standing me, and it became more clinician) and I began to work on obvious to me as their comments “cramming” words together, I numerous strategies focusing on wouldn’t be successful in stop- became more numerous. I had slowing my speech rate, and be- difficulties speaking to authority ping or preventing myself from coming more intelligible. cluttering. figures, as well as talking on the Although I understood the phone. I was constantly told to This is where the uncomfort- point to the exercises, I didn’t able recordings of my voice speak more quietly, and “what’s” appreciate their meaning until and “huh’s” became a more fre- helped so much, because I was the day I walked into the room able to feel myself performing quent response from my listen- and my SLP told me we were the action of speaking more ers. At age 24, I realized how going to record parts of the ses- slowly, and then I was able to much I was letting my speech sion, and then play the record- play back and hear myself speak hold me back from better jobs ings back so that I could hear at a normal rate. There was a and opportunities. I wanted to be myself talk. huge positive reinforcement an overall better communicator. I Not many people like hearing when I discovered this. decided to start speech therapy. the sound of their own voice, my To read more about what And that’s when I learned the being one of them, so I was high- worked for Lacey, go to www.stut- truth. I was not a stutterer at ly reluctant, but I turned to my teringhelp.org. all. In fact, I was a clutterer. positive attitude. It was for my While stuttering is noted by own good. repetitions, prolongations, blocking, and secondary “es- She had taped our casual conversations at the start of the T he Stuttering Foundation of America is a tax-ex- empt organization under cape” behaviors, cluttering is session, and then she taped my section 501(c)(3) of the noted by excessive normal dis- reading samples using the Internal Revenue Code and fluencies, rapid bursts of strategies that we were focus- is classified as a private op- speech (“excited speech”), and ing on. When she replayed our erating foundation as de- fined in section 4942(j)(3). slurred/omitted syllables. conversations, I heard it. I Charitable contributions While a stutterer can usually heard how fast I spoke. I heard and bequests to the Foundation are hear and feel their speech dis- the missing parts of the words, tax-deductible, subject to limitations the rapid speech, and I heard under the Code. fluencies, a clutterer is usually
  • 9. THE STUTTERING FOUNDATION 800-992-9392 9 SUMMER 2010 Workshopper Reaches Spanish Speaking Community Judi Cheng, M.S., CCC-SLP, a ? Stuttering Foundation Eastern Did You Know? 2009 workshopper appeared re- The Stuttering Foundation has cently on Univision Television numerous resources in Spanish N e t w o r k ’s as well as a Spanish Web site, Despierta www.tartamudez.org. America for a segment on Spanish speaking ed the mother of a 6-year old boy. kids who stutter. “I want more information on how Immediately following to help him with teasing, and I Cheng’s interview with Yahaira need the name of a therapist.” Maldonado, the Foundation Another concerned parent Another began receiv- ing hundreds emailed, “My child Great Year! of calls and e-mails from began stut- tering when The Stuttering Foundation Spanish he was 5 and PSAs are in national and re- speaking now he is 7. gional magazines as well as people look- He is getting newspapers across the country. ing for help therapy two Readers may spot an ad featur- with stutter- days a week, ing Winston Churchill, Nick ing. but we need Brendon, conservationist Alan One view- more help.” Rabinowitz and many others. er wrote, “I “My daugh- A new PSA with San Diego am 17 years ter is 6-years Charger Darren Sproles has old. I have Stuttering Foundation workshopper Judi old and has a been sent to sports magazines been stutter- Cheng, M.S., CCC-SLP, speaks about stut- slight stutter for use in upcoming issues. ing since I tering on Univision’s Despierta America. when she Recent PSAs appeared in Good was about 5. My mother saw speaks Spanish and sometimes Housekeeping, Redbook, ESPN, your interview on TV. We saw on when she speaks English. Can you Seventeen, Popular Mechanics, your website that you can give us send me information to help?” Time, American Baby and news- a list of people that might be able asked a mother from New Jersey. papers including the Philadelphia to help.” To view the Univision Despierta Inquirer, New York Post, and the “My son is the only one who America segment on stuttering, NY Times Magazine. stutters at his school,” comment- visit www.stutteringhelp.org. The Stuttering Foundation thanks these publications for this valuable donated space that reaches thousands and thousands of readers looking for help. Gregory’s Basic Principles on DVD Clinicians are still receiving training in the treatment of stuttering by the expert speech Help Available in Croatian language pathologist, Hugo Gregory, The Child Who Stutters: Ph.D., through footage shot at Texas To the Pediatrician has Christian University in 1998. The been translated into new DVD, Basic Principles of Croatian by Dubravka Stuttering Therapy, is now available Prpic. It can be down- at www.stutteringhelp.org. The loaded from our Web Foundation is grateful for the tireless site, www.stutter- efforts of Carolyn Gregory, June Campbell, inghelp.org. Click on Diane Hill, Jennifer Watson and Kristin Chmela “Translations” on the left. who worked to make this DVD a reality.
  • 10. THE STUTTERING 10 FOUNDATION 800-992-9392 www.stutteringhelp.org Keep a Positive Attitude ily. It’s easy for me to talk to peo- I’ve been a stutterer for as long ple without bumping when I as I can remember. It has always quote others, and it makes me weighed down my shoulders like happy when I tell stories to peo- I’m wearing a backpack full of ple that make them laugh. rocks. It has stopped me from try- It’s also good to have a sense of ing out in plays, doing extra-credit humor when other kids say things oral reports, running for 7th grade that hurt your feelings. You just officer, and, in general, speaking have to remember that they don’t aloud to any kind of audience. understand and haven’t learned how When I came to the Center, I was to treat anyone with respect. Carol Ecke was ably assisted by Jennifer able to learn some new techniques to Remember, bullies have more Watson, Valerie Johnston, Tara Hepler, control my stuttering, ones that actu- personal issues than other kids. Montse Vallejo, and Geoff Coalson at ally worked. Sadly, although “pro- Ignore them and remember always the marvelously successful convention of longation”, “pull outs”, and “easy how great you are. the Texas Speech-Language-Hearing Association. Russ Hicks of NSA provided bumps” had helped my stuttering, London, 12 this fine photo. they didn’t really help my confi- dence. I could use the tools and speak What Listeners Should Know okay, but it didn’t mean I wanted to One percent of the world’s popu- talk to an audience. lation stutters as adults and 1 in So Maria gave me a challenge to every 20 children have a stuttering volunteer to read at school, offer to problem. We need time to get out pray at church, and raise my hand if I what to say, and if you insult one of knew the answer to a teacher’s ques- us, are you going to insult all 6.7 tion. This chal- million of us? lenge terrified We need time me, and at first to get our it was like tor- words out, and Darlene Sommers, Kavita Kaul, and Maryann ture. Gradually, if you ignore Kaminsky at the conference of the Speech- I realized that us, can you be Language-Hearing Association of Virginia. each time I did certain you it, it became didn’t miss easier and easi- something im- er. Soon it was portant? Do no big deal Students in the Wasatch Children’s Stuttering not make as- when I spoke or Management Program wrote these stories s u m p t i o n s read in class, and presented them to the group on selected about people and now I even topics regarding stuttering. who stutter, find it fun. you might be Stuttering is what makes me an quite a bit wrong. individual, and I’m not ashamed I am saying this because I do not that I’m a little different from ev- want people to assume I have a eryone else. mental issue, or that I forgot my We should keep practicing our name, just because I got stuck on Charlie Osborne and Jessica DeMille at techniques to stay fluent, but most of the first C. Give us time, let us the conference of the Wisconsin Speech- speak! Language Pathology and Audiology the stuttering is in your heart. When Professional Association. you release the embarrassment, the Clay, 13 sadness, and the stress of stuttering out of you, it will become little more Feels Like a Maze than the nose on your face, the shape I’m in a maze, trying to find my of your eyes, the color of your hair. way out. It seems like, there’s no Yes, I stutter, but I don’t care. It’s way out of this never-ending what makes me, me. maze. Every stutter, block, and Megan, 14 struggle makes me more con- fused. The only way out is to use Sense of Humor Helps my techniques, prolongation, I think it’s good for everyone pull-outs, easy/fake stuttering, SFA’s Terri Jones prepares the booth at to have a good sense of humor. I and responding to my moments of the Georgia Organization of School- stuttering. Finally, I’ve found my Based Speech-Language Pathologists like Jeff Dunham and Dane Best Practices Conference in March. Cook. I like to quote some of way out of the maze. Patty Reed joined her at the booth. their lines to my friends and fam- Devan, 14
  • 11. THE STUTTERING FOUNDATION 11 SUMMER 2010 800-992-9392 Turning a Negative Into a Positive By Dylan Levin knew that I stuttered and that could tell that it was directed at bothered me because what if I what happened to me. Nobody Two years ago Dylan Levin asked stuttered during the spelling bee? knew what I had just gone friends and family to donate to the How would people respond? through and nobody understood Stuttering Foundation as a way to honor his Bar-Mitzvah. Now as a high At 2 p.m., it was time for the my situation. school student, he is busy making spelling bee. I walked down the Later that night, the phone rang speeches and presentations without let- stairs to the cafeteria where it and it was Allie’s teacher calling ting stuttering get in the way. The fol- was being held and I took my to discuss what happened at lowing essay is a podcast script Dylan seat on the stage. The problem school. I did not tell my mom be- gave recently at his school. was that I psyched myself out. I cause I did not want her to get in- As many of you knew that I was going to fail. volved. I did not want her to get know or don’t know, I One by one the kids spelled and upset. The truth is that I probably have a speech disflu- one by one they got it right. My should have told her the moment ency called stuttering. turn. The word was population. I got in the car, right after school. I have had this since Dead silence. I must have said Mr. L told my mom the whole sit- the age of four. My uh and um about a hundred uation, and she wanted to come stuttering is an invol- times to make it seem like I was- into his class, to talk with the untary movement, which I can’t n’t stuttering. And the thing was kids about my disfluency and control. Stuttering was never an that I knew how to spell the how to be accepting of a person issue at school; I always participat- word, but I just could not get the with disabilities. I know that my ed in class and I never felt that there word out. Population is not a mom, when it comes to my was a problem until one day in hard word to spell. Then the speech disfluency, will always sixth grade. That was the day when have my back. I realized that my stuttering was Four years have passed since never going to go away and there- this happened and now it is only fore I had to work hard on my a memory lost in the pages of speaking abilities. my life. My speech from that It happened at my school time has improved and I owe spelling bee. There were two that partially to Allie. If she had ways people got to be a part of not laughed then I probably the spelling bee. The first one would not have experienced real was where you compete with vulnerability. Every person that people in your own advisory and does stutter, has his or her then the winners go against peo- most horrible thing happened, human form wrapped in a blan- ple from all of the other advi- laughter. Never in my life had ket of vulnerability all the time, sories. Lucky for me, I won the anyone really laughed at me like but it is how we persevere dur- spelling bee for my advisory. I this girl did. Her name was ing these hard times that truly didn’t think about the fact that I Allie, and I will never forget her. define us. I know now that I would have to spell words in I purposefully spelled the word would not be the same person front of the school at that mo- wrong, just to get out of this em- that I am today if I did not stut- ment in time because I was just barrassing situation. I went into ter. I carry around this memory happy that I had won. The day the bathroom and started to cry. I with me always because it is a wore on and I started to become was mortified and angry. I began reminder that I must keep on really nervous because I had asking God why me, why did you persevering and I must keep on never given an announcement or give me this terrible stutter? Why talking because if I let this stut- done anything, really, in front of did you make people laugh? I ter overcome me, then I have the entire school. I would partici- walked backed into the cafeteria lost all hope. What I am trying to pate and give presentations in my and sat in the back. I did not want convey is that people must per- class and there I felt very com- to show myself to anyone. When severe to overcome any obstacle fortable. But speaking in front of I came back the teacher gave that they are faced with. Maybe the whole school made me ner- some weak speech about being one day I will not have a speech vous. I was nervous because only respectful to all of the people in disfluency, but until then, I will the people in my grade really the spelling bee, but everyone keep living and talking.
  • 12. THE STUTTERING 12 www.stutteringhelp.org FOUNDATION 800-992-9392 Dear SFA: Reader Response Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail info@stutteringhelp.org. Friendships Help If you do stutter, don’t Dear SFA: worry, it’s all normal. Even I feel bad when I stutter. I some grown people do it. can’t express what I want to Everyone stutters some- say. When I repeat a word I time in their life. If you get frustrated. When this have a friend who stutters, happens, I stop and think don’t tease them about it. about what I’m going to There are some strategies say. Sometimes this helps people use to help themselves. me and sometimes it does- Like me, I worked on using a n’t. If I’m stuttering a lot, rubber band and stretching out my friends give me signs to the first word so I don’t stutter do smooth speech. This in the middle of the sentence. helps me control my stutter- My name is Robbie. I’m 11 years old and I’ve There’s also using slow, easy ing. Sometimes I tell my- been in speech for three years. I work on my speech to help the muscles in stuttering by using strategies. The first one is your mouth not get all tight self to do smooth speech. using a speech mountain to remind me to start Robbie, 11 and clenched. All of these with air and then come out with my word. the strategies can help you to stop Winston-Salem, N.C. second is “think time”/“black out.” It helps me think of words before I start sentences. Another stuttering if you just take your Just Like Dancing thing I like to use is eye contact because it helps time and slow down. Dear SFA: the person I’m talking to know that I’m not fin- Plenty of people stutter. I don’t like it when people ished talking. So, if you stutter, you can try Although some have differ- ask me, “Do you stutter?” If using these strategies. ent reactions when they do they ask me, I say, “Yes, I it. Some just continue on Robbie, 11 and don’t pay attention. do,” and keep on going. I get embarrassed when I stutter, Tallahassee, Fla. Others feel that they’re but I always try to keep going. going to get nervous and I think stuttering is like start to get worried, and that dancing. If you practice just makes it worse. To stop dancing you will become you need to be calm and better, just like if you prac- don’t even think about it. tice the tricks you learn to If people bully you or tease not stutter, you get better at you because you stutter, just not stuttering. walk away and don’t do any- It is all right to stutter. So thing to them because some- many people do it, even times the people who bully celebrities do. If someone and tease are usually the makes fun of you or doesn’t people who do stuff like that. talk to you because you My name is Jordan. I am 10. I stutter with cer- They do it to let out their stutter, that is their loss. tain letters such as W, L, and B. But I have anger on other people in- Keep your hopes up and found some strategies to help me. I’ve found stead of trying to calm down. keep on practicing. DON’T backing out of tension and think time and they If you just don’t worry FEEL ALONE! help my stuttering! People used to make fun of about stuttering, you will Courtney, 10 my stuttering. But I did a presentation in our have a good time and not Greenwich, CT class about stuttering. Now they don’t make fun even know you do it. So, if of me. Now that I found some speech strategies you stutter, don’t even and the kids in my class know why I stutter, I worry about it and you will Tips for Teasing feel awesome about stuttering! Dear SFA: be a happy person. Do you stutter? I know I Jordan, 10 Max do. If you do, do your Tallahassee, Fla. Carmel, Ind. friends tease you about it? Continued on page 13
  • 13. THE STUTTERING SUMMER 2010 FOUNDATION 800-992-9392 13 Letters Continued from page 12 sister is 8. My friends make “never mind” and I walk away. fun of my voice because I stutter. My brother also stutters. My Feeling Confident They just copy my voice. I have sister doesn’t stutter. I have Dear SFA: been stuttering for about three learned some strategies to not Hi, my name is Kyle and I am years. I mostly stutter at home. stutter. One strategy is called 8 years old. I’ve been stuttering Sometimes people tell me to “spit “bouncing.” Bouncing means for as long as I can remember. I it out.” That does not help me say that I might repeat a sound or didn’t feel confident, but then what I want to say. I usually say word, but I do it in an easy way. started speech class, My speech teacher lets and learned bouncy me play games about talk. Now, I feel more talking. I try to ignore confident and raise my people who copy my stut- hand in class, and talk tering. I am a great kid to people more. and I really don’t care Because when I didn’t about my stuttering. I try have speech class, I to not worry about the didn't want to talk. people who make fun of Kyle, 8 me. Denver, Colo. Nathan, 9 Anamosa, Iowa Learning About Me Eye Contact Dear SFA: My name is Chetan. I am 10 years old and I am a My name is Luke and good person. I live in a brick duplex in Wichita, Kan. Works I like cars. In my picture, on the first road I am hav- Dear SFA: I am in 4th grade. When My name is Willie. I like I realized I sounded dif- ing a good day. On the second road, I am not having a good day and my speech is bumpy. I need to take a to play video games. I ferent I was five. It have been stuttering since sounded like I ran out of deep breath and relax. I think going to speech is fun. Chetan, 10 I was 3. I go to speech air, and it gets quieter, class. I think it is fun. We quieter, and quieter. I Wichita, Kan. have worked on keeping felt like I hated it. It is eye contact. Eye contact easier when I am read- is important because it ing and not talking. I am helps others know when calm when I am writing. you are finished talking. I I am less calm in math also learned about the class when the teacher speech machine. I don’t calls on me. I stutter like stuttering. I stutter more when she calls on more when I am in my me. If we are in a crowd classroom or talking to I stutter more because I adults. It makes me feel am around more people. better to know that other This is my story. kids stutter too. Luke Willie Delaware Alabama Continued on page 16 Strategy Helps Dear SFA: I’m 91⁄2 years old and my name is Asta. I live in My name is Nathan. I Tallahasse, Fla. Stuttering makes me feel unhappy be- am 9 years old and I am cause children in my school make fun of me. I like to in third grade. I like to use easy beginnings because they help me avoid stut- play video games and I tering. I also back out of tension when I am about to like to play baseball. I stutter. It makes my speech smoother. I gave a presen- also like to ride my bike tation about stuttering to my classmates. Now they and I can ramp really don’t make fun anymore. And because of my presen- high. I have one brother tation, stuttering is much easier for me! and one sister. My Asta, 91⁄2 brother is 10 and my Tallahasse, Fla. Willie drew this picture.
  • 14. THE STUTTERING FOUNDATION P.O. Box 11749 • Memphis, TN 38111-0749 ttering Natio nal Stu k Wee Aw areness ! 10-16 i s May www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org Letters Continued from page 13 Books 4Leap of Faith by Richard Benyo. (2009) No One’s Fault Pennsylvania Heritage Books. Available at Dear SFA: www.amazon.com. 4Treatment of Stuttering, Established and I hope kids around the Emerging Interventions by Barry Guitar and world will read this. I am 10 Rebecca McCauley. (2010) Lippincott, Williams, and Wilkin, Baltimore. years old. I love to play www.lww.com. sports. I play baseball, soc- 4Research on Stuttering in Pre-school and cer, football, and basketball. I School Children by Zbigniew Tarkowski and Ewa Malgorzata Skorek. (2009) University started stuttering when I was Zielonogorski Press, Poland. 5. I know what it feels like to Fourth-grader Rachel of Collegeville, 4Clinical Decision Making in Fluency be picked on by other kids. It PA, drew cars that are stuck. Disorders by Walter H. Manning. (2009) Delmar Cengage Learning, Clifton Park, NY. made me mad. www.cengage.com. I go to speech class. I have 4Practical Intervention for Early Childhood Stammering by Elaine Kelman and Alison learned that it is not my fault This Nicholas. (2008) Speechmark Publishing, or my parents’ fault that I drawing Ltd. Milton Keynes, U.K., www.speech- stutter. There are other kids is by mark.net. 4Stammering, Advice for All Ages by Renee in the world like me. It’s not Adam, Byrne and Louise Wright. (2008), Sheldon their fault either. There are 5th grade, Press, London, www.sheldonpress.co.uk. of Trappe, 4Speak Freely: Essential Speech Skills for even famous people who School-Age Children Who Stutter by Mark stutter. I have found that PA. Allen, Ph.D., (2007) Speak Freely singing helps me talk better. Publications, Evanston, IL , www.cfst.com. 4Beyond Stammering, Revised edition by Try it! It might work for you. David Maguire. (2008) Souvenir Press, Rae’ Quan, 10 London. 4Stuttering: An Integrated Approach to Its Alabama Nature and Treatment, Third Edition by Barry Guitar. 2006. Available from Lippincott, Williams & Wilkins, 800-638- 3030, www.LWW.com. See our Web site, www.stutteringhelp.org, for a complete list of books. This newsletter is published quarterly. Please e-mail address changes and story ideas to info@stutteringhelp.org. Volume18, Issue 3 Kids, find more inspirational Renee Shepherd . . . . . . . . . . . . . Editor stories, fun articles, and videos Rae’ Quan drew this picture of Scot Squires . . . . . . . . . . . . . . . . Designer on our Web site, www.stutter- baseball and basketball, which are Special thanks to Joan Warner, Patty Reed, inghelp.org. We have a page two sports he enjoys playing. Susie Hall, Pat Hamm, Lisa Hinton, Terri just for you! Jones, and Carol Ecke.