Slides of the 'Show & Tell' by the Access ASD team at the 5th Tiree Techwave (TTW) http://www.catalystproject.org.uk/content/access-asd-0 http://tireetechwave.org/

1. Will, Tim, Sam, Marie
www.catalystproject.org.uk
Lancaster University

2. #catalystas

3. Asa Calow Rod Dillon
Jen Southern
Rebecca
Ellis
Will Simm
M.A. Ferrario
Sharon
Calverley
“A collaboration of people from different backgrounds,
some mad people but no bad people.”

6. #Sprint 2

7. What & Who
Access ASD is a research sprint in the Catalyst
project that will devise digital tools to help
adults in the community with autism.
• Care commissioning managers {APB, LCC}
• NAS
• Psychology, SCC, Sociology

8. What We Have Brought To Tiree
1. Sam: Life Story
2. Tim: ToM
3. Jen: Ripping Sound
4. Will: Tools
5. Marie: Data, a ‘Plan’ &
.... ideas for prototypes

9. Sam
Life story

10. My life before diagnosis
• Struggled with life
 Everyday life overwhelming, social rejection, alienation
• Until a diagnosis I did not understand myself
 Concept I was different
 Tried various explanations
 All felt limited and incomplete
• Schizoid personality disorder suggested
 Just did not seem correct
 Lead me to be sceptical about classification
 Vacillated about if I had psychological problems

11. Receiving a diagnosis
• Autism suggested at age 23
 Checking it on google, just clicked
 Accounted for everything I'd misunderstood
 Further understanding of own problems
• Diagnosis benefited my life
 Learned many behaviours did not help my situation
 Allowed me to access support
 Focus on strengths whilst realising limitations

12. Concepts of autism not helping
• Is autism a disability
 Reject diagnosis as don't conceive self as disabled
 If autism is not a diagnosis why need help?
• Holding a specific stereotype of autism
 Refuse diagnosis if different to stereotype
 Think does not fit stereotype so help will not work
• Need to communicate autism better if we want
people to engage with technology
 Interviewing autistic people to get better picture

13. Autistic spectrum
ASD Spectrum (2D linear space )
Aspergers
low High
• Autism and Asperger's syndrome same or different?
 How does this affect my identity as an autistic person

14. Problems with the spectrum

15. Triad of impairments
People with ASD have
difficulties in three main
areas within their lives; this
is referred to as the 'triad of
impairments' (Lorna Wing
and Judith Gould)

16. A Mismatch?
Triad of impairment (3D Vector Space) ASD Spectrum (2D linear space )
Imagination
Aspergers
low High
• Debate over which best for science
 Triad of impairments an improvement but not suitable for many autistic people

17. The Aloof, the passive, the Odd

18. Personas of autism
Present autism in a manner
more acceptable
Find persona suitable for
individual, avoiding assuming
autistic different to individual
Emphasising both strengths and
weaknesses of specific individual,
reducing difficulties caused by
notions of disabilities

19. MAF 06/03/2013
Tim on ToM

20. Theory of Mind
primatology:
can a chimp attribute mental
states to other apes… including
humans?
mind reading
mentalizing
predicting behaviour

21. Sally – Anne test
ToM
Where is the marble?
mental state - false belief in
Anne
deception by Sally
who knows what?

22. Intentionality Detector (ID) – understanding agency; cause
for an action, goals that it is directed to
The Eye-Direction Detector (EDD) – noticing eyes, noticing
where they are looking, responding to eyes looking at me.
Shared-attention Mechanism (SAM) – ability to share
noticing something, e.g. pointing and eyes, to link two
persons and object of interest.
Theory of Mind Mechanism (ToMM) – this is the ability to
attribute thoughts to other people, to see them as having an
attitude, a reason or a motivation.

23. Testing ToM in autism spectrum
items 5,6,9 & 10

24. “ If you tear paper in the right kind of way and
really pay attention, again there's a symphony,
there's a music. There's each fibre of paper
produces a tiny little sound. You get several
sequences of these fibres and there's a
variation there. Now the way to do it is to be
completely absorbed in the sound, so your
whole world is absorbed in the sound of the
paper tearing. (tears)”

25. MAF 06/03/2013
Will

27. Sensory
• Miracle Modus
• iPod

28. Navigation / Prep: Way Finder

29. Organisation / routine / scheduling
• Usual Calendar / to do “apps”
• Targeted apps
– “ ASD Planner”
Brain in the Hand
• Scheduling
• Anxiety tracking - response to unscheduled
events
• Peer / network support

31. MAF 06/03/2013
MAF {Marie}

32. 1. Training I&II 2. Design Brief 3. Tiree 4. Prototype Selection 5. Final Prototype 6. HL Report
A. Understand & Observe
Prepare
B. Visioning &
Visualising
Design
C. Iterative Prototyping
(Evaluate & Refine)
Build
D. User Study
Easter Evaluate
Protee
Jan Feb Mar Apr May June July

33. Social Media Data (Online forum)- ‘Big’ Data

34. ...from the same source ‘Deep Data’
...Joining the conversation
Top three difficulties caused by autism: Most difficult Socially Sensory...
Problem # Problem #
Social 21 Problem #
Eye contact 9
Sensory 14 Sound 11
Small Talk 8 Lighting 7
Anxiety 5 Asking questions in conversation 5
Being Organised 5 Certain clothing 6
Knowing the diff between joining & forcing your 5 Difficulty detecting pressure 2
Dealing with changes 4 way in
Multitasking 3 Smell 2
Humour 4 Flicker of an analog TV 1
Too logical 2
Low self esteem 2 Talking to opposite sex 4 Filtering out visual information 1
Isolation 2 Jokingly insulting people 4 Need to stim 1
Getting Diagnosis as a female 2 Going into a monologue 3 Food 1
Expressing emotion 2 Giving advice to friend 3 Temperature of food 1
Overwhelming interests 2 Being assertive 3 Handwashing OCD style 1
Understanding emotions 2 Being confident 3 Sensitive to tempreatue 1
Understanding body language 1 HD TVs too blurry 1
Awkwardness making you seize up 3
Weak memory 1 Stimming in public 2
Maintaining job 1 Specifics on sound
Knowing how to finish a conversation 3 Sudden noise 2
Bad diet 1 Being too honest in conversations 2
Depression 1 Focusing on sound when trying to sleep 1
Staring conversations 2 Filtering out sound 1
Accepting other’s views 1 Being too logical 1
Not using social speech 1 Loud noise 1
Unsure how much information to give 1 Continual noise for more than a few 1
Concern over wasting time 1
Introducing yourself to people 1 minutes
Group conversations 1
Knowing social status 1 Focusing too much on other people’s facial 1
Ineffectiveness 1 expressions
Bad sleep patterns 1 Dealing with silences 1
Dependent upon specific people 1 Remembering names 1
socially Interacting with people passed in corridor 1

35. @the Tuesday
On the Ground Social Club
'What About 'BrainInHand' (...)? But it is
expensive £1,000 per person'
'These people do not need much help but
when they need it, they need it badly'
'I am not good at technology ... for me even
answering the phone is a big achievement' 'I
had to go to the shop to buy bread and I had
to stop, I was in complete panic'

36. MAF 06/03/2013
...Ideas
.....

37. MAF 05/03/2013
Benefit s of Working in Tiree:
no reliable Internet connection so we need to think
about what happens in real-real emergency situations

38. From Spectrum To Types...
Data collection via Digital ‘Multi-
Sensory’ Assessment tool (e.g. play
loud sound, what is the reaction?).
Output: description by features,
what your are good, not that good
at & link up with local relevant
‘peer’ resources

39. And your Type is..
It seems that you are ... the friendly one!
What you may like/ are good at: XXXXXX
What you may not do that well/Dislike: XXXXX
Famous people like you ...
People Like you in Your Area
(connect with a local ‘champion’)
Groups with your same interests in the Area