Transforming Care: Share and Learn Webinar – 28 June 2018
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Topic: The words we use …… and why we need to change them Guest speakers: Di Domenico and Katie Matthews, Learning Disability Programme, NHS England This webinar explores the relationship between language, power and citizenship and how this can affect the way we think about (and then treat) people with a learning disability, autism or both.
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Transforming Care: Share and Learn Webinar – 28 June 2018
- 1. www.england.nhs.uk 28 June 2018 Transforming Care Share and Learn Webinar #TransformingCare The words we use …… and why we need to change them Di Domenico and Katie Matthews, Learning Disability Programme, NHS England
- 2. www.england.nhs.uk Di Domenico and Katie Matthews June 2018 The words we use ……and why we need to change them
- 3. www.england.nhs.uk History “If you don’t know your history, you’re like a leaf that doesn’t know it’s part of a tree” (Jenny Morris)
- 6. www.england.nhs.uk How do you measure how good YOUR life is? A question …
- 7. www.england.nhs.uk • I have time to spend with the people I love • I am a member of at least one (but preferably several) choirs • I am able to go swimming at least 3 times a week • I have time to read • Being able to control how I live my life • Having the ability to contribute at work and do a good job • I am able to live in my house and see the garden from my kitchen table • A good gin and tonic!! Di’s good life
- 8. www.england.nhs.uk • My Mum • My job • Having no pain • Shopping!! • My phone • Social media • Winning my award….. • Being able to act (I’ve been on TV) • My work family (and especially my work ‘mum’) Katie’s good life
- 9. www.england.nhs.uk 7 keys to citizenship Simon Duffy www.centreforwelfarereform.org
- 10. www.england.nhs.uk Fundamentally it’s about thinking in a different way! So……….
- 11. www.england.nhs.uk But if thought corrupts language, language can also corrupt thought……. How can we think differently?
- 12. www.england.nhs.uk A good way to start - words we use • Words and language are powerful – they can change how we see people and situations…. • Some words we don’t use
- 14. www.england.nhs.uk An example……. • The words on that slide are horrible – but these are words that many disabled people carry around with them • These words are incredibly negative!
- 15. www.england.nhs.uk But what about these?
- 16. www.england.nhs.uk Different words • We often use different words to describe disabled people • These words are not used to describe how non-disabled people live their lives
- 18. www.england.nhs.uk Service Land • Words like these are about being in Service land. • If you are trapped in Service Land it’s really hard to be a citizen and be seen as equal to non- disabled people and be described like everyone else
- 19. www.england.nhs.uk People not labels • People are not service users, clients, patients, beds, LD or numbers • Labels are for clothes, people are just people
- 20. www.england.nhs.uk Use everyday words • Don’t use ‘special’ words to describe people and what happens to them • Use everyday language and say it like it is (shorter isn’t always better)! • Talk about people as if they were a member of your own family and if in doubt – ask what they would prefer!
- 21. www.england.nhs.uk To conclude • Changing the words we use seems like a small thing but……it has a BIG impact! • We have to lead by example – if we use de-humanising words then the rest of the system will think that’s ok!! NOT SPECIAL NEEDS - YouTube https://www.youtube.com/watch?v=rsjnHC ZOfg8
- 24. www.england.nhs.uk Suggested word changes Use Rather than Why? No abbreviations The use of abbreviations shows a disrespect for the individuals that it refers to. Support Care Bearing in mind that for some people they may wish to agree the definition for themselves. However the programme as a whole is about supporting individuals to live a positive life and caring when they are in need of this (e.g. admitted to hospital) Person or individual Patient, client or service user We may sometimes be other things but we are all people first. Group of people Cohort Because a cohort is impersonal and linked to research rather than supporting people to get lives. Using group of people also emphasises that these are people and not just numbers Learning disability or learning impairment Learning disabilities Why would you want more than one learning disability Brother or sister Siblings When any individual talks about their family they refer to brothers and sisters not siblings Behaviour that challenges Challenging behaviour Accepting that all behaviour is communication, and the challenge is in those working with individuals understanding that behaviour. Behaviour that challenges removes the responsibility from the individual whereas challenging behaviour implies the behaviour is the problem or difficulty of the individual People or person in hospital Beds There is always a person attached to a bed
- 25. www.england.nhs.uk Some more suggestions Going out Accessing the community Because part of having a life is going out. ‘Accessing the community’ continues the link to ‘serviceland’ rather than life Home Placement Although noting that sometimes it is not appropriate to call something a home when it clearly is not. For e.g. For e.g. a hospital admission for assessment and treatment Holiday or break Respite The term respite actually means the laying down of a burden. Is that what we think people with a learning disability are? Going home or getting out Re-settlement or re- patriation or re-homing We re-home animals from a shelter. Is this what we want to do with fellow human beings? Learning disability or autism or both Learning disability and/or autism And/or implies less value on autism, this definition confers equal value. Choice Compliant/non-compliant Because people should be able to make informed choices and take risks rather than being forced to do things which professionals think are good for them
- 26. Over the last two years, the NHS England Sustainable Improvement Team have led 28 Share & Learn Webinars attracting an audience of over 5,000 people in this period as well as 8,000+ slide viewings and recording downloads. We know how valuable this ‘learning from your desk’ is, given the time pressures that prevent us from going to conferences and sharing information, however, we need to recognise that subject specific webinars are becoming much more common place therefore this will be our last regular webinar. Finally …
- 27. NHS Quality Checkers is designed and led by people with lived experience. Want to hear more? Register for one of the following webinars by e- mailing Judith Knapton judith.knapton@nhs.net • 7 June 2018 (1.30pm) • 10 July 2018 (1.30pm) • 13 Sep 2018 (1.30pm) • 11 Oct 2018 (1.30pm) NHS Quality Checkers Webinars
- 28. Large Scale Change Webinars Webinar Number Subject Date & Time N/A Virtual Academy of Large Scale Change Induction Thursday 24 May 2018 12:30 to 13:30 Webinar 1/6 Systems Leadership Thursday 7 June 2018 12:30 to 13:30 Webinar 2/6 Leading Large Scale Change Thursday 14 June 2018 12:30 to 13:30 Webinar 3/6 The Change Model Thursday 21 June 2018 12:30 to 13:30 Webinar 4/6 Mobilising Thursday 28 June 2018 12:30 to 13:30 Webinar 5/6 Measurement for Improvement Thursday 5 July 2018 12:30 to 13:30 Webinar 6/6 Creating & Managing Networks Thursday 12 July 2018 12:30 to 13:30 The series consists of an induction webinar, in May 2018, followed by six topic- themed sessions in June and July 2018. You are encouraged to join all seven webinars to get the most from the series. Please register in advance for each webinar using the links below:
- 29. We thank you for your participation over the last two years in the Transforming Care Share and Learn webinars and for making sharing and learning possible through your contributions. Sustainable Improvement Team NHS England Thank You!