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Aaron Baggish MD
Professor of Medicine, Institut des sciences du sport (ISSUL)
Centre hospitalier universitaire Vaudois (CHUV)
University of Lausanne, Switzerland
Emeritus Director, Cardiovascular Performance Program
Harvard Medical School, Boston, MA, USA
Aaronleigh.baggish@unil.ch
The Outcomes Registry for Cardiac Conditions in Athletes
(ORCCA)
Financial Disclosures
Affiliations:
Funding Sources:
– National Institutes of Health
– American Heart Association
– American Society of Echocardiography
– Department of Defense
– National Football League Player’s Association
– American Medical Society for Sports Medicine
The Old Days: “Paternalism”
The Present: “Patient Autonomy”
Paternali
sm
Paternalism:
Docs know best
Clearance is our job
The process is simple
Why make it complex?
Autonomy
Autonomy:
Docs don’t always know
Patients are individuals
Medical vs. Non-medical
Because it is complex
The Decision-Making Control Spectrum
Shared Decision Making
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Impact of SDM
for Competitive
Athletes with CVD
is Incompletely
Tested and thus the
Pros and Cons
Remain 100%
Speculative....
This Needs to
Studied and Vetted
to Ensure That
Benefits Outweigh
USA >>>> Canada >>>>> Europe >>>>> Global
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
Shock &
Disbelief
Schools & Universities Close
Restaurants & Bars Shutter
Elective Medical Cancelled
Elite Level Sports Obliterated
The Present: “Patient Autonomy”
3/11: Rudy Gobert (Utah Jazz) COVID+ >> NBA Suspends Season
3/12: Major League Soccer (MLS) suspends season
NCAA Basketball Cancelled (ACC, SEC, Big 12, Big 12, etc.)
Big East (Creighton- St John’s at Halftime)
NHL Suspends season
MLB cancels spring training
3/13: Boston Marathon cancelled
Master’s Golf and all PGA events cancelled
NASCAR cancels series of major races
3/14: Nevada gaming commission suspends all contact sport
Christian Woods (Detroit Pistons) COVID+ after game with Jazz
3/15: CDC orders cancellation events > 50 people for 8 weeks….
The 5 Day Demise of Elite US Sport
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
“Triad” Testing
The Present: “Patient Autonomy”
The “ORCCA” Registry
Outcomes Registry for Cardiac Conditions in Athletes
Aaron Baggish
Nathanial Moulson
Bradley Petek
Jonathan Drezner
Kimberly Harmon
Stephanie Kliethermes
(AMSSM CRN, U of Wisc.)
Manesh Patel (Duke)
Mariell Jessup (AHA)
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
Enrollment
0
10
20
30
40
50
60
70
80
90
Individual Cumulative
The Present: “Patient Autonomy”
Allegheny General Hospital
Atlantic Health System
Atrium Health
Baylor College of Medicine/Texas Children's Hospital
Cedars-Sinai-Los Angeles, CA
Cincinnati Children's Hospital
Cleveland Clinic
Columbia University
Duke University
Emory University
Everett Clinic
Froedtert & the Medical College of Wisconsin
Halifax Health, Florida
Hartford Healthcare
John Hopkins Medical Institute
Maine Health
Mayo Clinic (MN and AZ)
Massachusetts General Hospital
Miami Cardiac & Vascular Institute/Baptist Health
Oregon Health and Science University
Purdue University
SADS
Self Referral
Sports and Performance Cardiology LLC
Stanford University
Texas Health
UNH Hospitals
Univ. of CA- Irvine
University of Michigan
University of Pennsylvania (Penn Medicine)
University of Virginia
University of Washington
Virginia Mason Franciscan
Washington University, St Louis
Yale University
The Present: “Patient Autonomy”
The Present: “Patient Autonomy”
Registration and Enrollment
THANK YOU

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The Outcomes Registry for Cardiac Conditions in Athletes (ORCCA)

  • 1. Aaron Baggish MD Professor of Medicine, Institut des sciences du sport (ISSUL) Centre hospitalier universitaire Vaudois (CHUV) University of Lausanne, Switzerland Emeritus Director, Cardiovascular Performance Program Harvard Medical School, Boston, MA, USA Aaronleigh.baggish@unil.ch The Outcomes Registry for Cardiac Conditions in Athletes (ORCCA)
  • 2. Financial Disclosures Affiliations: Funding Sources: – National Institutes of Health – American Heart Association – American Society of Echocardiography – Department of Defense – National Football League Player’s Association – American Medical Society for Sports Medicine
  • 3. The Old Days: “Paternalism”
  • 4. The Present: “Patient Autonomy” Paternali sm Paternalism: Docs know best Clearance is our job The process is simple Why make it complex? Autonomy Autonomy: Docs don’t always know Patients are individuals Medical vs. Non-medical Because it is complex The Decision-Making Control Spectrum Shared Decision Making
  • 10. The Present: “Patient Autonomy” The Impact of SDM for Competitive Athletes with CVD is Incompletely Tested and thus the Pros and Cons Remain 100% Speculative.... This Needs to Studied and Vetted to Ensure That Benefits Outweigh USA >>>> Canada >>>>> Europe >>>>> Global
  • 11. The Present: “Patient Autonomy”
  • 12. The Present: “Patient Autonomy” Shock & Disbelief Schools & Universities Close Restaurants & Bars Shutter Elective Medical Cancelled Elite Level Sports Obliterated
  • 13. The Present: “Patient Autonomy” 3/11: Rudy Gobert (Utah Jazz) COVID+ >> NBA Suspends Season 3/12: Major League Soccer (MLS) suspends season NCAA Basketball Cancelled (ACC, SEC, Big 12, Big 12, etc.) Big East (Creighton- St John’s at Halftime) NHL Suspends season MLB cancels spring training 3/13: Boston Marathon cancelled Master’s Golf and all PGA events cancelled NASCAR cancels series of major races 3/14: Nevada gaming commission suspends all contact sport Christian Woods (Detroit Pistons) COVID+ after game with Jazz 3/15: CDC orders cancellation events > 50 people for 8 weeks…. The 5 Day Demise of Elite US Sport
  • 14. The Present: “Patient Autonomy”
  • 15. The Present: “Patient Autonomy” “Triad” Testing
  • 16. The Present: “Patient Autonomy” The “ORCCA” Registry Outcomes Registry for Cardiac Conditions in Athletes Aaron Baggish Nathanial Moulson Bradley Petek Jonathan Drezner Kimberly Harmon Stephanie Kliethermes (AMSSM CRN, U of Wisc.) Manesh Patel (Duke) Mariell Jessup (AHA)
  • 17. The Present: “Patient Autonomy”
  • 18. The Present: “Patient Autonomy”
  • 19. The Present: “Patient Autonomy”
  • 20. The Present: “Patient Autonomy” Enrollment 0 10 20 30 40 50 60 70 80 90 Individual Cumulative
  • 21. The Present: “Patient Autonomy” Allegheny General Hospital Atlantic Health System Atrium Health Baylor College of Medicine/Texas Children's Hospital Cedars-Sinai-Los Angeles, CA Cincinnati Children's Hospital Cleveland Clinic Columbia University Duke University Emory University Everett Clinic Froedtert & the Medical College of Wisconsin Halifax Health, Florida Hartford Healthcare John Hopkins Medical Institute Maine Health Mayo Clinic (MN and AZ) Massachusetts General Hospital Miami Cardiac & Vascular Institute/Baptist Health Oregon Health and Science University Purdue University SADS Self Referral Sports and Performance Cardiology LLC Stanford University Texas Health UNH Hospitals Univ. of CA- Irvine University of Michigan University of Pennsylvania (Penn Medicine) University of Virginia University of Washington Virginia Mason Franciscan Washington University, St Louis Yale University
  • 22. The Present: “Patient Autonomy”
  • 23. The Present: “Patient Autonomy” Registration and Enrollment