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Empowering carers through ICT
Stecy Yghemonos – Executive Director
European network of carers' organisations and
relevant research & development organisations
Over 65 member organisations
Eurocarers defines a carer as a person who
provides unpaid care to someone with a chronic
illness, disability or other long lasting health or
care need, outside a professional or formal
framework.
The Eurocarers Network
 Contribute to sustainable social protection systems and recognition of
informal carers
 Prevent carers from falling into poverty and social exclusion
 Stimulate and support the development of carers' organisations in EU
countries and regions
Data collection and production
 Evidence
 Share good practices
among Member States
 Recommendations
 Implement/Document
 Partnerships
 Solidarity and economic argument
 Inform policy makers
 Communication (newsletter,
websites)
Advocacy
 Raise awareness
Our Mission
The Situation of carers in Europe
ThePersonalisPolitical
Across Europe, unpaid family carers and friends are the
largest providers of health and social care support
As demographic change increases demand, the
‘balance of care’ increasingly shifts to informal care
Women are disproportionately affected and are more
likely to give up employment to care
Impact of Caring
Clear correlation between caring and:
• Social exclusion and poverty
• Health and well-being
• Work-life/care balance and employment
“As a carer, you have no social life whatsoever. I have been an
unpaid carer for 20 years. I do not feel part of society at all. I feel a
complete outsider”
What do carers want?
Employment: flexible working, paid
and/or unpaid leave
Pension credits for care time
Training
Regular breaks from caring
Financial support: income based on a
minimum wage
The Potential of ICT for carers
Support carers in their caring role
Support social integration
Care coordination
Give remote access to info and training
The limitations
Digital gap
Need coproduction
Impact of ICT at organisational and
system levels ?
Need relevant and easy to learn/use
solutions
Recommendations
 Carers are a partner in the care systems
 Peer to peer support
 Awareness raising
Thank you
www.eurocarers.org

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Empowering Carers with ICT

  • 1. Empowering carers through ICT Stecy Yghemonos – Executive Director
  • 2. European network of carers' organisations and relevant research & development organisations Over 65 member organisations Eurocarers defines a carer as a person who provides unpaid care to someone with a chronic illness, disability or other long lasting health or care need, outside a professional or formal framework. The Eurocarers Network
  • 3.  Contribute to sustainable social protection systems and recognition of informal carers  Prevent carers from falling into poverty and social exclusion  Stimulate and support the development of carers' organisations in EU countries and regions Data collection and production  Evidence  Share good practices among Member States  Recommendations  Implement/Document  Partnerships  Solidarity and economic argument  Inform policy makers  Communication (newsletter, websites) Advocacy  Raise awareness Our Mission
  • 4. The Situation of carers in Europe ThePersonalisPolitical Across Europe, unpaid family carers and friends are the largest providers of health and social care support As demographic change increases demand, the ‘balance of care’ increasingly shifts to informal care Women are disproportionately affected and are more likely to give up employment to care
  • 5. Impact of Caring Clear correlation between caring and: • Social exclusion and poverty • Health and well-being • Work-life/care balance and employment “As a carer, you have no social life whatsoever. I have been an unpaid carer for 20 years. I do not feel part of society at all. I feel a complete outsider”
  • 6. What do carers want? Employment: flexible working, paid and/or unpaid leave Pension credits for care time Training Regular breaks from caring Financial support: income based on a minimum wage
  • 7. The Potential of ICT for carers Support carers in their caring role Support social integration Care coordination Give remote access to info and training
  • 8. The limitations Digital gap Need coproduction Impact of ICT at organisational and system levels ? Need relevant and easy to learn/use solutions
  • 9. Recommendations  Carers are a partner in the care systems  Peer to peer support  Awareness raising