Presentation made at eyeforpharma by Greg Cohen, Global Multi-Channel Lead at UCB Pharma - excellent!
Voice-Over can be accessed under:
https://s3.amazonaws.com/efpharma/Philadelphia2016/Content+%2815+March%29/Greg+Cohen+audio.MP3
Digital Mental Health - UC Berkeley - without hidden - reducedSteven Chan, MD MBA
This document contains a series of tweets from a presentation on digital mental health. It discusses current uses of digital technologies in mental healthcare such as communication between patients and providers and using apps for interventions and monitoring. Challenges discussed include outdated research methodologies and privacy/data concerns with apps. Emerging trends noted include patients taking a more active role in managing their own health using digital tools as the cost of mental healthcare rises and access issues persist.
Understanding Mental Health Apps — Neurotech SF presentationSteven Chan, MD MBA
What does the mental health app and psychiatry informatics landscape look like? A brief 15-minute look given at Neurotech SF conference at UCSF Mission Bay, by Steven Chan — University of California, Davis researcher and resident physician — on barriers, challenges, and near-term solutions on psychology, psychotherapeutics, and digital mental health.
Social media for tracking disease outbreaks–way of the future By.Dr.Mahboob a...Healthcare consultant
Traditional disease surveillance relies on data obtained from doctors, hospitals or laboratories through formal reporting systems. This yields valid and accurate data about emerging outbreaks and the impact of control strategies such as vaccinations. But it’s often not timely. Digital data are now publicly available from many sources. People talk about epidemics on social media using key words such as “fever” and “infection” before they are officially identified.
A surveillance system for detecting outbreaks of Ebola using Twitter, for example, could set geospatial tags for specific locations such as the African continent. It could search for a cluster of terms on the Twittersphere such as “haemorrhage”, “fever”, “virus”, “Ebola”, “Lassa” (an illness that can be confused with Ebola).
A system trying to identify influenza could mine terms that reflect visits to the doctor, purchase of tissues, paracetamol or aspirin from pharmacies, sick leave from work, as well as terms specific to the clinical syndrome of influenza.
Unfortunately, healthcare isn’t as simple as baseball. And to make matters worse, we all know how healthcare loves to use abbreviations, technical jargon, and even use different terminology that essentially all means the same thing. Now lay on top of that the fact that Twitter hashtags are home-grown, without any rules, and without informing the rest of the healthcare community on Twitter what exactly your chosen hashtag means. Take all these issues, stir them up in a pot and healthcare hashtags often become more like mishmash-tags.
Doctors 2.0 & You Special - Diabetes Digital Opinion Leaders with Pharma Inis...CREATION
The Doctors2.0 & You Conference Edition of Creation Healthcare's Digital Opinion Leaders in Diabetes study, presented at the conference by Daniel Ghinn. This conference edition includes unique event insights into healthcare professionals discussing pharma brands and diabetes. Includes analysis of HCPs discussing GSK's Avandia during FDA hearings and illustrates changing attitudes to the brand.
The Unmet Needs and Interests of UK HCPs in Type 1 DiabetesCREATION
This document summarizes key findings from a study of healthcare professionals' online discussions about type 1 diabetes from 2015 to 2016. Some of the main topics discussed include concerns about patient care provided by the UK National Health Service (NHS), a desire to raise awareness about type 1 diabetes and differentiate it from type 2 diabetes, and discussions surrounding the inaugural Talking About Diabetes conference in 2016. HCPs expressed interest in connecting patients and providing resources, as well as concerns about continuous glucose monitors not being available on the NHS and scare tactics being used in patient interactions.
Millennial Mindset - Collaborative Clinician [lo res spreads]Amanda Cote Loban
Millennial physicians approach their practice differently than non-millennial physicians. They expect more collaboration with patients, peers, and pharmaceutical companies. They prefer learning about new treatments from their peers rather than independently. While they value the information provided by pharmaceutical companies, most will only consider it as a second opinion after finding information elsewhere first. Millennial physicians want transparency and authenticity from pharmaceutical companies and tools that integrate with their workflow and facilitate peer interaction.
Millennials worry about health issues like previous generations but also face new challenges. A study found that millennials worry as much or more than baby boomers about health access and costs. Millennials are trying to maintain health through diet, exercise and wellness trends rather than traditional healthcare. They are more likely to trust friends and family over experts for health advice. Marketers need to provide personalized, experiential health utilities that merge lifestyle and wellness to effectively reach millennials.
Digital Mental Health - UC Berkeley - without hidden - reducedSteven Chan, MD MBA
This document contains a series of tweets from a presentation on digital mental health. It discusses current uses of digital technologies in mental healthcare such as communication between patients and providers and using apps for interventions and monitoring. Challenges discussed include outdated research methodologies and privacy/data concerns with apps. Emerging trends noted include patients taking a more active role in managing their own health using digital tools as the cost of mental healthcare rises and access issues persist.
Understanding Mental Health Apps — Neurotech SF presentationSteven Chan, MD MBA
What does the mental health app and psychiatry informatics landscape look like? A brief 15-minute look given at Neurotech SF conference at UCSF Mission Bay, by Steven Chan — University of California, Davis researcher and resident physician — on barriers, challenges, and near-term solutions on psychology, psychotherapeutics, and digital mental health.
Social media for tracking disease outbreaks–way of the future By.Dr.Mahboob a...Healthcare consultant
Traditional disease surveillance relies on data obtained from doctors, hospitals or laboratories through formal reporting systems. This yields valid and accurate data about emerging outbreaks and the impact of control strategies such as vaccinations. But it’s often not timely. Digital data are now publicly available from many sources. People talk about epidemics on social media using key words such as “fever” and “infection” before they are officially identified.
A surveillance system for detecting outbreaks of Ebola using Twitter, for example, could set geospatial tags for specific locations such as the African continent. It could search for a cluster of terms on the Twittersphere such as “haemorrhage”, “fever”, “virus”, “Ebola”, “Lassa” (an illness that can be confused with Ebola).
A system trying to identify influenza could mine terms that reflect visits to the doctor, purchase of tissues, paracetamol or aspirin from pharmacies, sick leave from work, as well as terms specific to the clinical syndrome of influenza.
Unfortunately, healthcare isn’t as simple as baseball. And to make matters worse, we all know how healthcare loves to use abbreviations, technical jargon, and even use different terminology that essentially all means the same thing. Now lay on top of that the fact that Twitter hashtags are home-grown, without any rules, and without informing the rest of the healthcare community on Twitter what exactly your chosen hashtag means. Take all these issues, stir them up in a pot and healthcare hashtags often become more like mishmash-tags.
Doctors 2.0 & You Special - Diabetes Digital Opinion Leaders with Pharma Inis...CREATION
The Doctors2.0 & You Conference Edition of Creation Healthcare's Digital Opinion Leaders in Diabetes study, presented at the conference by Daniel Ghinn. This conference edition includes unique event insights into healthcare professionals discussing pharma brands and diabetes. Includes analysis of HCPs discussing GSK's Avandia during FDA hearings and illustrates changing attitudes to the brand.
The Unmet Needs and Interests of UK HCPs in Type 1 DiabetesCREATION
This document summarizes key findings from a study of healthcare professionals' online discussions about type 1 diabetes from 2015 to 2016. Some of the main topics discussed include concerns about patient care provided by the UK National Health Service (NHS), a desire to raise awareness about type 1 diabetes and differentiate it from type 2 diabetes, and discussions surrounding the inaugural Talking About Diabetes conference in 2016. HCPs expressed interest in connecting patients and providing resources, as well as concerns about continuous glucose monitors not being available on the NHS and scare tactics being used in patient interactions.
Millennial Mindset - Collaborative Clinician [lo res spreads]Amanda Cote Loban
Millennial physicians approach their practice differently than non-millennial physicians. They expect more collaboration with patients, peers, and pharmaceutical companies. They prefer learning about new treatments from their peers rather than independently. While they value the information provided by pharmaceutical companies, most will only consider it as a second opinion after finding information elsewhere first. Millennial physicians want transparency and authenticity from pharmaceutical companies and tools that integrate with their workflow and facilitate peer interaction.
Millennials worry about health issues like previous generations but also face new challenges. A study found that millennials worry as much or more than baby boomers about health access and costs. Millennials are trying to maintain health through diet, exercise and wellness trends rather than traditional healthcare. They are more likely to trust friends and family over experts for health advice. Marketers need to provide personalized, experiential health utilities that merge lifestyle and wellness to effectively reach millennials.
What Do Patients Really Want Out Of Adherence Technology?Inspire
Drawing insights from the 13,000-response Inspire Annual Survey, Dave Taylor, Inspire's director of research, presented at CBI’s Patient Adherence (PAAS) conference in Philadelphia, PA, in June 2015.
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Crotty engaging patients in new ways from open notes to social mediaTrimed Media Group
The document discusses new ways to engage patients through open notes and social media. It describes initial findings from the OpenNotes project that showed patients found value in reading clinical notes. It also outlines how patients use social media to find health information and connect with others. The document argues that healthcare providers can leverage these technologies and concepts to reduce information asymmetry, educate patients, and learn from them to provide more engaging and effective care.
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
Summary from the very first Capital C event held at Impact Hub Kings Cross on Saturday 29th November.
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Healthcare Social Media: The Conversation That Is Defining Your BrandNM Incite
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As part of the presentation, Melissa shared some new benchmarking data related to online conversations within the healthcare space. “We have always looked at total volume of online discussion, and that is still important,” Melissa said. “But we are also looking at new ways to understand engagement with social media and how that differs across therapeutic areas. Our new data plots the volume of online discussion against disease prevalence as one way to measure that engagement.”
Presentation on Social Media presented Wednesday, November 19, 2014 at University of Minnesota, Division of Gynecologic Oncology Annual Translational Working Group Research Day
This document discusses developing an ethical framework for communicating information about an ocular gene transfer clinical trial for choroideremia to patients and families. It summarizes perspectives from patients, clinicians, and advocates about risks, benefits, and timelines for treatment. It also analyzes media coverage of gene therapy and finds that most articles do not mention risks and conflate research with treatment. The document recommends avoiding therapeutic misconceptions, managing expectations rather than messaging, and positioning timelines in the context of clinical trial phases to ensure responsible communication with vulnerable patients.
BlogWell Bay Area Social Media Case Study: UCB Pharma, presented by Greg Cohen SocialMedia.org
Greg Cohen presented on using social media to increase patient connectivity and engagement. He discussed how the Epilepsy Advocates program utilized Facebook, a public relations campaign called "My Four Words", and other initiatives to help epilepsy patients feel less isolated and build community. Cohen emphasized the importance of truly listening to patients, empowering them to share their stories, and engaging with them through social media to make programs more patient-centric.
This document discusses the connected experiences of patients in the 21st century. It describes how being a long-term patient impacts people physically, psychologically, socially, and financially. It outlines how embracing online tools and connecting with other patients through social media and online communities can help patients feel less isolated and anxious. The document advocates for increased patient engagement with healthcare providers and cites data on growing patient use of technology and online resources to manage their health conditions.
OpenNotes: Transparent Clinicians' Notes for Health & IllnessOpenNotes
OpenNotes began as a research project that studied the effects of allowing patients access to their primary care doctors' visit notes. The study found that patients who read their notes felt more engaged in their care, better understood their conditions, and were better prepared for visits. Doctors had initial concerns about increased workload, but found little real impact. After one year, 99% of patients and the majority of doctors wanted to continue open notes access. The research demonstrated that open notes can help patients manage their health more effectively with little negative impact. The open notes movement has now expanded beyond primary care and many organizations are adopting the practice.
Master chef in healthcare- integrating social media - @DrNic1Nick van Terheyden
Social Media is rapidly becoming an integral part of our lives. Despite the pervasive nature of the communication channel healthcare remains a technology laggard. This presentation will offer insights to help understand why they should join the community,
My presentation to the Healthcare Public Relations and Marketing Society of Greater New York on May 18, 2010, at an event hosted by the New York Times.
Mastering the Concepts Tested in the Databricks Certified Data Engineer Assoc...SkillCertProExams
• For a full set of 760+ questions. Go to
https://skillcertpro.com/product/databricks-certified-data-engineer-associate-exam-questions/
• SkillCertPro offers detailed explanations to each question which helps to understand the concepts better.
• It is recommended to score above 85% in SkillCertPro exams before attempting a real exam.
• SkillCertPro updates exam questions every 2 weeks.
• You will get life time access and life time free updates
• SkillCertPro assures 100% pass guarantee in first attempt.
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19. @gcohen85 #e4pCE
Combing through these collections of digital artifacts can yield
robust, longitudinal patient-as-hero journey mappings
IMS Health - Nexxus Social Media
20102005 2007 2011 20132012 2014
Symptom
Headaches and
fatigue
Grand mal seizure
Other seizures
along with Tonic
clonic
Seizures
increased
Tonic clonic
seizures
30 seizures/day
Diagnosis
Misdiagnosed as
pituitary adenoma
and migraine
Epilepsy diagnosis
Treatment Started on ###
May: VNS*
surgery and
treatment with
###
June:
Reduction of
dose followed
by seizures
October:
Switchover from
###
July: Addition
of ###
February:
Adjustment of
VNS*
April: Patient
on ###; Higher
dose of
###and
withdrawal of
###
February:
Addition of
###; Brain
surgery to
remove left
temporal and
left occipital
January:
Switchover from
### to ###
due to in-
efficacy
September:
Switchover from
### to ###
Outcome
Drug did not
work; GP
referred patient
to epileptologist
Side effects on
###triggered
switchover to
###
Stopped ###
due to side
effect issues
Reduction of
seizures
Side effects
triggered
switchover from
### to ###
Amanda (diagnosed
at the age of 14)
20. @gcohen85 #e4pCE
20
Frodo: I wish the ring had never come to me. I wish
none of this had happened.
Gandalf: So do all who live to see such times, but that
is not for them to decide. All we have to decide is
what to do with the time that is given us.
23. @gcohen85 #e4pCE
Online users discussed patient stories and shared articles related to
key therapeutic area as well as treatments
IMS Health - Nexxus Social Media
10%
Alternative treatment
7%
Quality of life
1%
Others*
Tree Map depicting themes of conversation on ### (N=1,107)
5%
Efficacy and side effects of
### drugs
8%
Symptoms and diagnostic tests
for ###
3%
Diet and lifestyle
2%
Financial issues
1%
Dosing and administration of
drugs
30%
Conversations were about ###
patient stories, fundraisers for
them, and awareness campaigns
on epilepsy
23%
Sharing and discussion of news
and research articles on ### and
### drugs
10%
Treatment experiences of patients
24. @gcohen85 #e4pCE
Cost of drugs
Conversation analysis reveals highest priority topics
that patients are seeking
Emotional support
Lack of knowledge among
doctors
Information needs
Low quality of life
Alternative treatment options
Concerns and unmet needs (N=92)
28%
22%
19%
15%
5%
Patients are unfamiliar with the
signs and symptoms of ###
Patients and caregivers
mentioned limited access to
alternative treatment options for
###
Patients sought emotional
support and mentioned about the
absence of patient support groups
11%
Insights Verbatim
“We have to relocate To
California for that reason To
secure Medical Cannabis for
him”
“have ##.this changed my life, my
long-term memory, my lifestyle,
my independence”
“the insurance would only cover
$508/month of the cost of this
relatively new ###drug. So I was
stuck paying the rest. ”
“###worry me. I live alone and
have no supports so if I go down,
I'm not sure what will happen”
“My current specialist didn’t
believe I have ###.After 5 years..i
knw I did..never diagnosed”
“Has anybody noticed a
connection between ### and
###?”
Expensive ### drugs for
treatment was a concern as well
Patients mentioned the low
quality of life due to ###
Patients mentioned that improper
guidance of physicians sometimes
led to delayed diagnosis
IMS Health - Nexxus Social Media
29. @gcohen85 #e4pCE
Surveyed social communities to gain
insight that patients value a caring
attitude and higher levels of service over
physician time
29
Source: UCB survey analysis, n = 288
31. @gcohen85 #e4pCE
Follow up survey utilized advanced free-
text analytics to understand how patients
assign value…what will come next???
31
Spending time
with doctor
Knowledgeable staff &
state-of-the-art facilities
Relationship &
conversation
with doctor
Insurance, cost, and
access to medicine
Source: UCB survey analysis, n = 525
33. @gcohen85 #e4pCE
With personal acceptance and community
development, patients go from a ‘victim’ mentality…
33
…to a
“champion”
mindset!
34. @gcohen85 #e4pCE
Coping With Parkinson’s Contest combined active
social listening with audience engagement to create
new pilot programs for Parkinson’s patients
34
35. @gcohen85 #e4pCE
My Four Words… a social campaign to drive
engagement that started offline…
35
Encourage patients to
explain their experience
living with epilepsy in a mere
4 words
It included local and national
events and media outreach…
36. @gcohen85 #e4pCE
Online-to-Offline Engagement
A personalized welcome reflected our
commitment to patients as individuals
36
Online engagement enabled us to personally
connect at the National Epilepsy Walk
42. @gcohen85 #e4pCE
Understanding goes beyond demographics
into psychographic understanding of who
your audience really is
42
Source: Facebook Audience Insights for the Epilepsy Advocate Page – dated October 13, 2015
43. @gcohen85 #e4pCE
As well as understanding how they are
connecting with your platforms
43
Source: Facebook Audience Insights for the Epilepsy Advocate Page – dated October 13, 2015
45. @gcohen85 #e4pCE
Build relationships the right way to
utilize #influence
45
Regulatory
bodies exist
to protect
patients
Come from the
right place
Don’t intend to
deceive –
intend to
educate using
known rules
When in
doubt,
DISCLOSE
There is no
substitute for
REAL brand
advocates
49. @gcohen85 #e4pCE
Key Takeaways
49
Social data does not necessarily mean a social response -
be creative with how you apply insights to your business
Don’t overlook social as a ‘vocal minority’ – these voices
are just as potent (if not more so) as your official messages
Look for opportunities to co-create
Don’t be afraid of massive amounts of unstructured data
(i.e. free text) – find experts to help you navigate and make
sense of the mess
Share, share, share – you never know who within your
company will be inspired with the next big idea