This document discusses the connected experiences of patients in the 21st century. It describes how being a long-term patient impacts people physically, psychologically, socially, and financially. It outlines how embracing online tools and connecting with other patients through social media and online communities can help patients feel less isolated and anxious. The document advocates for increased patient engagement with healthcare providers and cites data on growing patient use of technology and online resources to manage their health conditions.

1. The 21st Century Connected
Patient
Michael Seres
@mjseres

2. Background to my health journey
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3. Impact of being a long-term patient
• It is so much more than just taking a tablet
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Psychological
Social
Family
Friendships
Financials

4. My connected world – my patient dashboard
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5. Embracing online tools – it started with a blog
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6. The power of patient-to-patient
• This article directly led to
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7. Four patients undergoing the same transplant
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8. The value of engaging with other patients
25% of all patients access
online communities
Expected to rise to 35%
by 2016
Source: Pew Institute & HIT Consultant
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9. Citizen-driven health – a growing global revolution
• Quantified ‘self experts’ coming out of Scandinavia
• Data experts in Holland
• E-patient movement driven by the US
• Patient engagement embedded in NHS culture
• Patients named as top health innovators
• Patients included in conferences
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10. How social media democratises the voice
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• Google can now predict
health trends
NHS
We trust our staff with patients’
lives, so why don’t we trust them
with social media?
Mayo Clinic
• Twitter health tweets up 53%
• YouTube uploads 100 million
hours of content every day
The biggest risk in health care
social media is not participating in
the conversation

11. Data protection is not an excuse
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12. What can pharma do for me?
• Understand what it is like to walk in my shoes
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13. Patient use of technology
•86% of people go online to look up health-related matters
•71% do it via a mobile phone whilst at home
•Biggest age group online is 55+
•Most common reason for online use – chronic conditions
•60% of adults get information or support from friends and family
•35% of US adults say that at one time or another they have gone online
specifically to try to figure out what medical condition they or someone else might
have
Sources: CDW Report/ Pew Institute/Patient.co.uk
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14. Skype clinics
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15. Texting blood results
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16. What about tweeting them…
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17. Patients as innovators
Delivering remote monitoring, self management and improved quality of life
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18. A technological future
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• Patients like to be able to access advice when they feel anxious or have questions
• Waiting can often exacerbate the anxiety and online communities reduce that anxiety
Improves
communication
Improves
compliance
Increases
patient
engagement
  

19. • A cultural shift to a policy of YES we can
• Build a tripartite relationship: pharma, doctor and patient
• Understand what it is like to be me
• Help me improve my outcomes whatever they are
My call to action