In spite of investment in and prominent attention paid to racial and ethnic health care disparities, there still exist enormous disparities in the United States across multiple domains including access to care and use of services, prevention and population health, chronic diseases, health status and quality of care
Autism Diagnoses and Access to Services: Latino and African American Parents' Perspectives.
A collaboration between the Autism Speaks Autism Treatment Network at Children's Hospital Los Angeles and the Southern California Clinical and Translational Science Institute.
This document summarizes a study on systems-level barriers that contribute to secondary conditions in individuals with fetal alcohol spectrum disorders (FASD). The study involved interviews and focus groups with parents of children with FASD and service providers.
The key findings were:
1) A pervasive lack of knowledge about FASD exists throughout multiple systems, including healthcare, education, and social services. This lack of knowledge contributes to barriers across different systems.
2) Systems-level barriers that interfere with preventing secondary conditions include delayed diagnosis of FASD, difficulty qualifying for and accessing services, poor implementation of services, and challenges maintaining services long-term.
3) Broad system changes are needed using a public
This document describes a study that examined the sexual health of Latinx LGBTQ women in Seattle through qualitative interviews. It discusses the background and public health significance of focusing on this population, which faces health disparities. It outlines the theoretical framework of intersectional feminism that guided the research. Interviews were conducted using a semi-structured protocol and template analysis was used to analyze the data. Key themes identified included that participants' sexual identities and behaviors were shaped by social and cultural contexts, they lacked sexual health knowledge, valued taking care of their sexual health, and behaviors varied. The document concludes by discussing potential public health strategies to improve healthcare access for LGBTQ populations.
Monica Tsethlikai, Ph.D. - “Participation in Cultural and Family Activities P...youth_nex
Active participation in traditional cultural and family activities is associated with positive development in American Indian children. A study of 50 American Indian children found that those with higher levels of cultural engagement displayed better cognitive flexibility, working memory, and inhibitory control. Additionally, cultural engagement was linked to lower cortisol levels, a stress hormone, and fewer symptoms of depression and anxiety. The findings suggest that promoting involvement in traditional practices may help strengthen resilience and well-being in American Indian youth.
This document discusses family violence prevention strategies. It begins by outlining the national policy context in Australia and the role of Family and Relationship Services (FaRS) in strengthening family relationships and preventing violence. It then discusses the evidence base for family violence prevention, including the ecological model and risk/protective factors across the lifespan. Two family violence prevention projects conducted by FaRS organizations are described: 1) Just Families, which targets the transition to parenthood using a multi-risk prevention approach, and 2) an Indian Australian family violence project. The document emphasizes the importance of evaluation in advancing the evidence base for effective family violence prevention programs.
This internship abstract summarizes a project researching healthcare discrimination against sexual minorities. The intern surveyed 27 high school students in Newark, NJ about their experiences with healthcare discrimination. 14.8% reported experiencing or knowing someone who experienced discrimination. 11.1% had to educate a provider about transgender care. 3.7% had trouble accessing health insurance due to their orientation or gender. The results show that discrimination negatively impacts healthcare access for sexual minorities. The intern aims to address this issue by providing Newark youth with reliable resources on LGBTQ rights and incorporating sexual minority representation in sex education workshops.
Autism Diagnoses and Access to Services: Latino and African American Parents' Perspectives.
A collaboration between the Autism Speaks Autism Treatment Network at Children's Hospital Los Angeles and the Southern California Clinical and Translational Science Institute.
This document summarizes a study on systems-level barriers that contribute to secondary conditions in individuals with fetal alcohol spectrum disorders (FASD). The study involved interviews and focus groups with parents of children with FASD and service providers.
The key findings were:
1) A pervasive lack of knowledge about FASD exists throughout multiple systems, including healthcare, education, and social services. This lack of knowledge contributes to barriers across different systems.
2) Systems-level barriers that interfere with preventing secondary conditions include delayed diagnosis of FASD, difficulty qualifying for and accessing services, poor implementation of services, and challenges maintaining services long-term.
3) Broad system changes are needed using a public
This document describes a study that examined the sexual health of Latinx LGBTQ women in Seattle through qualitative interviews. It discusses the background and public health significance of focusing on this population, which faces health disparities. It outlines the theoretical framework of intersectional feminism that guided the research. Interviews were conducted using a semi-structured protocol and template analysis was used to analyze the data. Key themes identified included that participants' sexual identities and behaviors were shaped by social and cultural contexts, they lacked sexual health knowledge, valued taking care of their sexual health, and behaviors varied. The document concludes by discussing potential public health strategies to improve healthcare access for LGBTQ populations.
Monica Tsethlikai, Ph.D. - “Participation in Cultural and Family Activities P...youth_nex
Active participation in traditional cultural and family activities is associated with positive development in American Indian children. A study of 50 American Indian children found that those with higher levels of cultural engagement displayed better cognitive flexibility, working memory, and inhibitory control. Additionally, cultural engagement was linked to lower cortisol levels, a stress hormone, and fewer symptoms of depression and anxiety. The findings suggest that promoting involvement in traditional practices may help strengthen resilience and well-being in American Indian youth.
This document discusses family violence prevention strategies. It begins by outlining the national policy context in Australia and the role of Family and Relationship Services (FaRS) in strengthening family relationships and preventing violence. It then discusses the evidence base for family violence prevention, including the ecological model and risk/protective factors across the lifespan. Two family violence prevention projects conducted by FaRS organizations are described: 1) Just Families, which targets the transition to parenthood using a multi-risk prevention approach, and 2) an Indian Australian family violence project. The document emphasizes the importance of evaluation in advancing the evidence base for effective family violence prevention programs.
This internship abstract summarizes a project researching healthcare discrimination against sexual minorities. The intern surveyed 27 high school students in Newark, NJ about their experiences with healthcare discrimination. 14.8% reported experiencing or knowing someone who experienced discrimination. 11.1% had to educate a provider about transgender care. 3.7% had trouble accessing health insurance due to their orientation or gender. The results show that discrimination negatively impacts healthcare access for sexual minorities. The intern aims to address this issue by providing Newark youth with reliable resources on LGBTQ rights and incorporating sexual minority representation in sex education workshops.
The research found that children living with family and friends carers often had emotional or behavioral problems, special education needs, or disabilities before placement. These issues occurred at much higher rates than in the general child population. Many of the carers also had their own health issues, stress levels twice that of the general population, and difficulties meeting the needs of the children in their care. Local authorities often failed to provide adequate support to the carers and children and were reluctant to classify kinship care arrangements as formal foster placements, despite the child's needs. Less than half of local authorities had published a family and friends care policy as required.
Talk given at Youth-Nex, at the University of Virginia. During the last decade, there have been significant advances in social and emotional learning (SEL) research, practice, and policy. This talk will highlight key areas of progress and challenges as we broadly implement school-family-community partnerships to foster positive behavioral, academic, and life outcomes for preschool to high school students. My goal for this presentation is to provide a foundation to foster group discussion about future priorities for the next decade.
This presentation explores why a diverse nursing workforce is important for the delivery of quality, patient-centered care, and provides an introduction to the concept of holistic review in admissions. The presentation is intended to prepare nursing deans for participation in a holistic review in nursing workshop provided by AACN.
This document summarizes OHSU School of Nursing's journey to implementing holistic admissions. It discusses drivers for this change including the university's strategic plan and diversity initiative. The SON developed an admissions mission and values statement focusing on diversity. For undergraduate programs, a holistic process considers academic metrics and non-cognitive factors. This has increased enrollment of disadvantaged students. Graduate programs also implement holistic reviews and interview disadvantaged applicants flexibly. Evaluation shows graduation rates remain high for all students. The SON discusses ongoing efforts like developing new holistic criteria and providing admissions data and feedback to improve diversity.
Nursing workforce diversity updates and anticipated trendsJulia Michaels
Presentation by Dr. Shanita D. Williams, PhD, MPH, APRN, Chief, Nursing Education and Practice Branch, Division of Nursing and Public Health, Bureau of Health Workforce, HRSA
Leading the Way: Holistic Review in Nursing at UIC College of NursingJulia Michaels
This document discusses the University of Illinois at Chicago (UIC) College of Nursing's implementation of holistic review in their admissions process. It provides background on the need for a more diverse nursing workforce and student body. The UIC College of Nursing transformed their admissions process through holistic review, which considers a variety of factors beyond grades and test scores. This includes structured interviews, application reviews by trained faculty reviewers, and looking at ratings from multiple perspectives. Since implementing holistic review, the UIC College of Nursing has seen increases in the admission of males and underrepresented minority students. The document discusses challenges of holistic review and maintaining commitment to the process over time.
Presentation by Michael Brennan, MD. Presented at the 2018 Eyes on a Cure: Patient & Caregiver Symposium, hosted by the Melanoma Research Foundation's CURE OM initiative.
Communities for Children evidence-based program requirement – where to from h...FRSA Communications
This document summarizes the requirements for evidence-based programs in the Communities for Children program. It outlines that from July 2015, 30% of funding must go to programs identified by an expert panel as having evidence of effectiveness, increasing to 50% in July 2017. It describes the criteria for programs to be included in the "Guidebook" of approved evidence-based programs or assessed as "other" programs. It provides examples of recently added programs and gives guidance on assessing program adaptations and deliveries in different locations. It emphasizes building the evidence base over the next two years and offers help to organizations through an inquiry helpdesk.
Over one-third of children with developmental disabilities in foster care in this study were cared for by individuals over age 65. Specifically, 42% of children in kinship foster care and 26% of children in non-kinship foster care had caregivers over 65. The study examined 82 children and found that many factors like substance abuse, poverty, and family violence can result in grandparents and other relatives taking on caretaking roles. It concludes that more research is needed to determine if older caretakers are receiving sufficient support services.
This document discusses treating violence as a public health issue and contagious disease. It summarizes the Cure Violence approach, which aims to interrupt transmission of violence through detecting and interrupting conflicts, treating those at highest risk, and changing group and community norms. The approach identifies violence hot spots and highest risk individuals. It employs "credible messengers" from communities to de-escalate conflicts and change social norms. Evaluations found the Cure Violence model reduced shootings and killings in cities like Chicago, Baltimore, and New York City.
The PALETTE program provides intergenerational creative arts classes and cultural outings to improve attitudes towards and competencies in working with older adults. Since 2013, over 170 older adults and healthcare students have participated in visual arts and movement arts activities. Evaluations show improved student attitudes towards aging and decreased aging anxieties. The program fosters strong intergenerational relationships and highlights the individuality of older adults.
The document discusses issues related to substance abuse among teens. It notes that teens who abuse drugs and alcohol are more likely to engage in criminal behavior and end up in the juvenile justice system. Four out of five teens in the justice system have substance abuse problems. Treatment is more effective and cheaper than incarceration, but many teens do not receive treatment. Effective treatment requires a coordinated, long-term, family-focused approach addressing multiple needs.
Jason Axford is a licensed professional counselor in Florida with over 12 years of experience in clinical settings such as residential treatment facilities and outpatient clinics. He has a master's degree in counseling and over 4,000 hours of post-graduate experience. His background includes individual and group therapy, intake assessments, treatment planning, and crisis intervention. He has worked with diverse populations, conducted community outreach, and engaged in clinical supervision.
Project PARTNER (Partnering with Adolescents to Ready The Newest Engaged Rese...YTH
The intersection of community engagement, research, and interactive technology is an innovative way for youth to develop leadership and 21st century skills. The California Adolescent Health Collaborative and community health clinic partners, Livingston Community Health and Asian Health Services, developed Project PARTNER, where youth in rural and urban communities learn critical thinking, problem solving, and collaborative processes through researching community health issues. \n\nYouth and adult allies from the health clinics were recruited to be members of a cross-generational and cross-regional community advisory board and were trained in research methodology. The online educational technology platform Kahoot!, and the mobile app Kahoot!, were utilized in training members on research fundamentals. The advisory boards then developed community surveys through Google Forms and utilized its mobile app feature to canvas neighborhoods to obtain community data. With data collected, they will develop research questions and participate in collaborative cross-site activities to support their research.
Applications of SNA Week 4: Health networksDharmiKapadia
This document provides an overview of how social networks are studied in relation to health. It discusses how health has traditionally been studied separately from a physical and mental perspective, focusing on individual characteristics. However, it notes that social networks may influence health through spreading behaviors like obesity. The document then discusses different methods for studying social networks, including whole network and ego-centric approaches. Specific topics covered in more depth include how social networks relate to mental health, managing long-term health conditions, and the role of pets and social relationships in chronic illness management. It concludes by outlining the author's PhD research on how social networks influence mental health service usage among Pakistani women.
Holiday Hunger Research & Evaluation FrameworkRobin Beveridge
Greta Defayter's presentation of research into evaluation methodologies for holiday hunger programmes in the UK, as delivered to Holiday Hunger North East group on 22 Oct 14.
Supporting Students Studying Abroad With DisabilitiesRmarieseavey
This document discusses supporting students with disabilities who study abroad. It notes the increasing globalization and internationalization of higher education. While around 11% of college students in the U.S. have disabilities, only a small percentage of students who study abroad disclose a disability. The document outlines legal obligations to support students with disabilities studying abroad and provides best practices for institutions, such as developing inclusive study abroad programs and providing advising for students. It emphasizes that with flexibility, students with disabilities can find appropriate study abroad opportunities.
This document provides information about autism spectrum disorder (ASD) including its definition, characteristics, prevalence rates, differences in diagnosis among ethnic groups, and classroom strategies and accommodations for students with ASD. It defines ASD as a neurological disorder affecting social skills, communication, and restricted behaviors. Statistics are presented on the rising diagnosis rates in the US population as well as delays in diagnosis for African American and Hispanic children compared to white children, which may be due to cultural and socioeconomic factors. Suggested classroom strategies include visual schedules, structured environments, sensory accommodations, and individualized behavior plans.
This document summarizes a dissertation investigating potential disparities in the age of diagnosis of autism spectrum disorders between African American and White children. The study examines how caregiver factors such as empowerment levels, reactions to initial symptoms, and attributions of symptoms may impact the age at which children receive an ASD diagnosis. Using survey methods, 168 families reported on diagnostic factors, empowerment, and views of initial ASD symptoms. Results found no significant differences in age of diagnosis between racial groups, but found that severity of symptoms, caregiver worry about symptoms, and attributing symptoms to behavioral problems predicted an earlier age of diagnosis.
1) The document examines cross-cultural challenges in identifying and treating children with autism. Research shows that Latino and African American children are less likely to be diagnosed with autism and receive later diagnoses than white children.
2) Cultural norms and expectations can create barriers to accurate diagnosis by distorting the perceptions of parents, families, and professionals. All diagnostic tools are culturally loaded and may influence test results differently for various cultural groups.
3) Professionals can help address these issues by gaining a deeper understanding of cultural contexts, observing children in their natural environments, acknowledging their own biases, and facilitating open dialogue with parents.
The document discusses autism, its symptoms, potential causes, and recent theories about autism. It notes that autism appears physically normal but is characterized by avoiding eye contact and unusual speech. Recent research has explored the role of mirror neurons and how dysfunctions in these neurons could undermine abilities like empathy. Other potential causes mentioned include abnormalities in the cerebellum and temporal lobe epilepsy during infancy. The document also discusses theories about how mirror neuron dysfunction and distorted salience landscapes in the brain could both contribute to autism symptoms. Further research is still needed to fully understand autism and develop effective treatments.
This study examined differences in parenting stress levels between single-parent and two-parent households raising children with autism. The study found that while single-parent households reported similar levels of stress overall compared to two-parent households, social support was more strongly correlated with reduced stress for two-parent households. Additionally, two-parent households reported a greater reduction in stress levels over the course of an intervention program compared to single-parent households. This suggests that general social support may be less effective at reducing parenting stress for single parents of children with autism.
The research found that children living with family and friends carers often had emotional or behavioral problems, special education needs, or disabilities before placement. These issues occurred at much higher rates than in the general child population. Many of the carers also had their own health issues, stress levels twice that of the general population, and difficulties meeting the needs of the children in their care. Local authorities often failed to provide adequate support to the carers and children and were reluctant to classify kinship care arrangements as formal foster placements, despite the child's needs. Less than half of local authorities had published a family and friends care policy as required.
Talk given at Youth-Nex, at the University of Virginia. During the last decade, there have been significant advances in social and emotional learning (SEL) research, practice, and policy. This talk will highlight key areas of progress and challenges as we broadly implement school-family-community partnerships to foster positive behavioral, academic, and life outcomes for preschool to high school students. My goal for this presentation is to provide a foundation to foster group discussion about future priorities for the next decade.
This presentation explores why a diverse nursing workforce is important for the delivery of quality, patient-centered care, and provides an introduction to the concept of holistic review in admissions. The presentation is intended to prepare nursing deans for participation in a holistic review in nursing workshop provided by AACN.
This document summarizes OHSU School of Nursing's journey to implementing holistic admissions. It discusses drivers for this change including the university's strategic plan and diversity initiative. The SON developed an admissions mission and values statement focusing on diversity. For undergraduate programs, a holistic process considers academic metrics and non-cognitive factors. This has increased enrollment of disadvantaged students. Graduate programs also implement holistic reviews and interview disadvantaged applicants flexibly. Evaluation shows graduation rates remain high for all students. The SON discusses ongoing efforts like developing new holistic criteria and providing admissions data and feedback to improve diversity.
Nursing workforce diversity updates and anticipated trendsJulia Michaels
Presentation by Dr. Shanita D. Williams, PhD, MPH, APRN, Chief, Nursing Education and Practice Branch, Division of Nursing and Public Health, Bureau of Health Workforce, HRSA
Leading the Way: Holistic Review in Nursing at UIC College of NursingJulia Michaels
This document discusses the University of Illinois at Chicago (UIC) College of Nursing's implementation of holistic review in their admissions process. It provides background on the need for a more diverse nursing workforce and student body. The UIC College of Nursing transformed their admissions process through holistic review, which considers a variety of factors beyond grades and test scores. This includes structured interviews, application reviews by trained faculty reviewers, and looking at ratings from multiple perspectives. Since implementing holistic review, the UIC College of Nursing has seen increases in the admission of males and underrepresented minority students. The document discusses challenges of holistic review and maintaining commitment to the process over time.
Presentation by Michael Brennan, MD. Presented at the 2018 Eyes on a Cure: Patient & Caregiver Symposium, hosted by the Melanoma Research Foundation's CURE OM initiative.
Communities for Children evidence-based program requirement – where to from h...FRSA Communications
This document summarizes the requirements for evidence-based programs in the Communities for Children program. It outlines that from July 2015, 30% of funding must go to programs identified by an expert panel as having evidence of effectiveness, increasing to 50% in July 2017. It describes the criteria for programs to be included in the "Guidebook" of approved evidence-based programs or assessed as "other" programs. It provides examples of recently added programs and gives guidance on assessing program adaptations and deliveries in different locations. It emphasizes building the evidence base over the next two years and offers help to organizations through an inquiry helpdesk.
Over one-third of children with developmental disabilities in foster care in this study were cared for by individuals over age 65. Specifically, 42% of children in kinship foster care and 26% of children in non-kinship foster care had caregivers over 65. The study examined 82 children and found that many factors like substance abuse, poverty, and family violence can result in grandparents and other relatives taking on caretaking roles. It concludes that more research is needed to determine if older caretakers are receiving sufficient support services.
This document discusses treating violence as a public health issue and contagious disease. It summarizes the Cure Violence approach, which aims to interrupt transmission of violence through detecting and interrupting conflicts, treating those at highest risk, and changing group and community norms. The approach identifies violence hot spots and highest risk individuals. It employs "credible messengers" from communities to de-escalate conflicts and change social norms. Evaluations found the Cure Violence model reduced shootings and killings in cities like Chicago, Baltimore, and New York City.
The PALETTE program provides intergenerational creative arts classes and cultural outings to improve attitudes towards and competencies in working with older adults. Since 2013, over 170 older adults and healthcare students have participated in visual arts and movement arts activities. Evaluations show improved student attitudes towards aging and decreased aging anxieties. The program fosters strong intergenerational relationships and highlights the individuality of older adults.
The document discusses issues related to substance abuse among teens. It notes that teens who abuse drugs and alcohol are more likely to engage in criminal behavior and end up in the juvenile justice system. Four out of five teens in the justice system have substance abuse problems. Treatment is more effective and cheaper than incarceration, but many teens do not receive treatment. Effective treatment requires a coordinated, long-term, family-focused approach addressing multiple needs.
Jason Axford is a licensed professional counselor in Florida with over 12 years of experience in clinical settings such as residential treatment facilities and outpatient clinics. He has a master's degree in counseling and over 4,000 hours of post-graduate experience. His background includes individual and group therapy, intake assessments, treatment planning, and crisis intervention. He has worked with diverse populations, conducted community outreach, and engaged in clinical supervision.
Project PARTNER (Partnering with Adolescents to Ready The Newest Engaged Rese...YTH
The intersection of community engagement, research, and interactive technology is an innovative way for youth to develop leadership and 21st century skills. The California Adolescent Health Collaborative and community health clinic partners, Livingston Community Health and Asian Health Services, developed Project PARTNER, where youth in rural and urban communities learn critical thinking, problem solving, and collaborative processes through researching community health issues. \n\nYouth and adult allies from the health clinics were recruited to be members of a cross-generational and cross-regional community advisory board and were trained in research methodology. The online educational technology platform Kahoot!, and the mobile app Kahoot!, were utilized in training members on research fundamentals. The advisory boards then developed community surveys through Google Forms and utilized its mobile app feature to canvas neighborhoods to obtain community data. With data collected, they will develop research questions and participate in collaborative cross-site activities to support their research.
Applications of SNA Week 4: Health networksDharmiKapadia
This document provides an overview of how social networks are studied in relation to health. It discusses how health has traditionally been studied separately from a physical and mental perspective, focusing on individual characteristics. However, it notes that social networks may influence health through spreading behaviors like obesity. The document then discusses different methods for studying social networks, including whole network and ego-centric approaches. Specific topics covered in more depth include how social networks relate to mental health, managing long-term health conditions, and the role of pets and social relationships in chronic illness management. It concludes by outlining the author's PhD research on how social networks influence mental health service usage among Pakistani women.
Holiday Hunger Research & Evaluation FrameworkRobin Beveridge
Greta Defayter's presentation of research into evaluation methodologies for holiday hunger programmes in the UK, as delivered to Holiday Hunger North East group on 22 Oct 14.
Supporting Students Studying Abroad With DisabilitiesRmarieseavey
This document discusses supporting students with disabilities who study abroad. It notes the increasing globalization and internationalization of higher education. While around 11% of college students in the U.S. have disabilities, only a small percentage of students who study abroad disclose a disability. The document outlines legal obligations to support students with disabilities studying abroad and provides best practices for institutions, such as developing inclusive study abroad programs and providing advising for students. It emphasizes that with flexibility, students with disabilities can find appropriate study abroad opportunities.
This document provides information about autism spectrum disorder (ASD) including its definition, characteristics, prevalence rates, differences in diagnosis among ethnic groups, and classroom strategies and accommodations for students with ASD. It defines ASD as a neurological disorder affecting social skills, communication, and restricted behaviors. Statistics are presented on the rising diagnosis rates in the US population as well as delays in diagnosis for African American and Hispanic children compared to white children, which may be due to cultural and socioeconomic factors. Suggested classroom strategies include visual schedules, structured environments, sensory accommodations, and individualized behavior plans.
This document summarizes a dissertation investigating potential disparities in the age of diagnosis of autism spectrum disorders between African American and White children. The study examines how caregiver factors such as empowerment levels, reactions to initial symptoms, and attributions of symptoms may impact the age at which children receive an ASD diagnosis. Using survey methods, 168 families reported on diagnostic factors, empowerment, and views of initial ASD symptoms. Results found no significant differences in age of diagnosis between racial groups, but found that severity of symptoms, caregiver worry about symptoms, and attributing symptoms to behavioral problems predicted an earlier age of diagnosis.
1) The document examines cross-cultural challenges in identifying and treating children with autism. Research shows that Latino and African American children are less likely to be diagnosed with autism and receive later diagnoses than white children.
2) Cultural norms and expectations can create barriers to accurate diagnosis by distorting the perceptions of parents, families, and professionals. All diagnostic tools are culturally loaded and may influence test results differently for various cultural groups.
3) Professionals can help address these issues by gaining a deeper understanding of cultural contexts, observing children in their natural environments, acknowledging their own biases, and facilitating open dialogue with parents.
The document discusses autism, its symptoms, potential causes, and recent theories about autism. It notes that autism appears physically normal but is characterized by avoiding eye contact and unusual speech. Recent research has explored the role of mirror neurons and how dysfunctions in these neurons could undermine abilities like empathy. Other potential causes mentioned include abnormalities in the cerebellum and temporal lobe epilepsy during infancy. The document also discusses theories about how mirror neuron dysfunction and distorted salience landscapes in the brain could both contribute to autism symptoms. Further research is still needed to fully understand autism and develop effective treatments.
This study examined differences in parenting stress levels between single-parent and two-parent households raising children with autism. The study found that while single-parent households reported similar levels of stress overall compared to two-parent households, social support was more strongly correlated with reduced stress for two-parent households. Additionally, two-parent households reported a greater reduction in stress levels over the course of an intervention program compared to single-parent households. This suggests that general social support may be less effective at reducing parenting stress for single parents of children with autism.
iPads and apps have been shown to help address the needs of children with autism by providing visual supports, social tools, easy-to-use interfaces, and more. Studies have found benefits for children with autism using iPads and apps. While an organization granted iPads to over 800 families, there was high demand from more families. Libraries can help fill this need by offering apps for use in the library, providing curated app recommendations for parents, and incorporating apps into programming for children with autism.
Late Autism Diagnosis: Latino Childrenclarygreen22
Late Autism Diagnosis: Latino Children
The document discusses that Latino children are often diagnosed with autism two years later than non-Hispanic children due to barriers like language differences and a lack of awareness about autism in Latino communities. Doctors have difficulty communicating with Spanish-speaking families and identifying autism risks. Not receiving an early diagnosis means that Latino children with autism do not get access to important early intervention services. The document recommends increasing the number of Spanish-speaking doctors, providing resources to families in Spanish, and spreading more awareness about autism in Latino communities.
Best Practices In Vocational Transition Assessment For Adults With AsdMargaret Kay
The document summarizes best practices in vocational transition assessment for adults with autism spectrum disorders. It discusses assessing strengths and weaknesses, using case studies to illustrate keys to finding appropriate jobs. The goals of transition assessment are to prepare students for participation in the adult world by evaluating interests, skills, and needed supports through a coordinated set of school and post-school activities. However, unemployment rates for autistic adults remain extremely high, calling for improved transition planning and support into integrated employment.
The document presented research on nonverbal forms of communication for children with autism. It discussed various methods including American Sign Language, Picture Exchange Communication Systems (PECS), message boards, and voice output communication devices. The research found that no single method was most effective and that the best approach depends on the individual child's needs and abilities.
Art therapy can benefit children with autism by addressing behaviors, improving social skills, and allowing creative expression. It uses art-making to enhance well-being. Individual art therapy allows in-depth assessment and customization to a child's needs, while group art therapy fosters socialization through structured activities and modeling good behaviors. The goals are to improve communication, imagination, socialization and help the child develop abilities at their level through choice of materials.
Autism is a developmental disorder that appears in early childhood and affects social and communication skills. Boys are affected more than girls. While the causes are unknown, early signs may include lack of speech, repetitive movements, lack of eye contact and social skills. Treatment options include applied behavior analysis therapy, occupational therapy, speech therapy and sometimes medications to treat related symptoms. Diet changes eliminating gluten have helped some children with autism.
Autism Spectrum Disorder is a developmental disability affecting communication and social skills that is usually apparent before age 3. It includes conditions like Asperger's Syndrome and requires lifelong support. Characteristics include difficulties with social interaction, communication and repetitive behaviors. Educational adaptations focus on structure, routines, technology assistance and teaching social skills. Research continues on the causes and new treatment approaches to help those with autism achieve their full potential.
Reducing Health Disparities for Latino Children with Special Health Care Needseasy2useservices
The document summarizes the objectives and activities of the National Center on the Ease of Use of Community Based Services. The Center aims to:
1) Determine barriers to care for Latino children with special needs.
2) Identify ways to improve access to community services.
3) Produce a report on improving services for Latino families.
The Center is conducting focus groups with families, reviewing policies, and interviewing pediatricians to understand challenges and recommend solutions in areas like language access, care coordination, and healthcare transitions. The findings will be shared at a stakeholder meeting and in a disseminated report.
This document summarizes a panel presentation on resources for early identification of children at risk for developmental delays. It discusses the objectives of reviewing developmental screening tools, increasing awareness of Help Me Grow (HMG) as a resource, and how HMG can support home visitors. It provides data on child well-being trends in South Carolina and the US. It then outlines challenges in developmental screening and solutions like HMG, a system for linking families to services. HMG launched in South Carolina in 2012 and has expanded access through a call center and outreach events while collecting data to improve the system.
This document summarizes a case study on the factors that contribute to successful perinatal depression support groups. Semi-structured interviews were conducted with facilitators of two support groups, one successful and one unsuccessful, in Lynn, Massachusetts. The interviews identified several barriers to group attendance, such as poverty, high crime rates, lack of childcare, and perceived judgment from others. Enabling factors like social support from coworkers and a strong relationship between facilitators and members helped increase attendance. Comparing the interviews revealed cultural differences in collaboration, education levels, and relationship between facilitators that influenced each group's outcomes.
Autism and Life Transitions: Hard Lessons Learned & Taught as a Person-Center...Cheryl Ryan Chan
In December of 2015, I presented this webinar to members of the National Association for Dual Diagnoses (thenadd.org). I've been conducting Person-Centered Plans for 4 years, and over that time I've seen a number of disturbing trends around the lack of understanding and planning for preparedness in transitioning students; in particular, in the areas of independent skill building specific to the anticipated environment, and personal safety skills. I feel it's important to talk about what I've observed and how my team of co-facilitators and I have identified and tackled these issues within the PCP process. I hope that the "lessons learned" will assist people in planning for IEP/ISP goals that can help maximize success. I offer it free to anyone who would like to attend.
Supporting Abused and Neglected Children Through Early Care and PolicyHealthy City
Title: Supporting abused and neglected children through early care and policy
This webinar will make the case for supporting abused and neglected children through early care opportunities as well as describe how to use the healthycity.org site to research and identify policy solutions around foster youth and early childhood education issues.
Learning objectives:
1) Strengthen one’s understanding of populations that make up abused and neglected children
2) Learn how to identify data around abused and neglected children on healthycity.org
3) Understand policy opportunities to improve conditions for the youngest abused and neglected children
The document provides a summary of key findings from a report on early childhood education opportunities for Southeast Asian children in Minnesota. It finds that the majority (66%) of Southeast Asian children under age 4 are cared for by family members. Only 11% are enrolled in formal early education programs. Most caretakers believe it is important for children to learn their cultural language but find it difficult. The high cost of quality early education programs presents a significant barrier for Southeast Asian families.
Capstone PowerPoint Grandparents raising grandchildren in Shreveport, laLish'a Bond Reed
Grandparents in Shreveport, Louisiana face challenges caring for their grandchildren. The document summarizes interviews with 15 grandparent caregivers who access services at a local health center. Most have low incomes and lack health insurance. Common reasons for taking in grandchildren include parental substance abuse or death. Grandparents desire resources to help with basic needs like food, clothing, bills and legal advice. A majority were unaware of existing support services and groups and expressed interest in informational materials and a resource center.
This document discusses how early stage mediation can help ensure access to dispute resolution for fragile families. It begins by defining fragile families as unmarried parents and their children born out of wedlock. It then discusses four themes from a task force on how to design an ADR system that effectively addresses diversity: better understanding diverse end users; supporting diversity among ADR providers; increasing cultural competence of providers; and increasing community access to ADR tailored to diverse needs. The document calls for actions to apply these themes to ensure fragile families can access and benefit from early stage mediation.
The document discusses the Strengthening Families approach to child abuse prevention. It focuses on promoting protective factors in families rather than targeting families based on risk factors. The protective factors framework emphasizes parental resilience, social connections, knowledge of parenting and child development, concrete support in times of need, and children's social and emotional competence. The approach aims to strengthen all families through partnerships with organizations already serving families and by integrating the framework into existing systems and policies.
This document summarizes a presentation on treatment as part of the community. It discusses how Arizona agencies like the Adult Probation Services Division are collaborating with community organizations to increase access to evidence-based treatment for probationers. This includes treatment mapping to identify gaps and barriers. It also describes a police department program in Gloucester Township, NJ that employs counselors to assist those at risk of substance abuse. Counselors are also provided in the municipal court room. The goal is to advocate for more community-based strategies and increase treatment access.
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SC CTSI and CHLA Autism Research Poster
1. DISCUSSION
• This first challenge relates to provider knowledge and receptiveness to parents’ concerns. Par-
ents reported their child’s doctors typically responded that they were worried for no reason and
that it was not uncommon for children to have delayed speech or other developmental mile-
stones. These issues suggest a need for continuing education in the diagnosis of ASD as well as
a thorough review of the different symptoms and behaviors that may indicate an ASD diagnosis.
• The second challenge of parent education and awareness relates more to parents’ access to
information about autism. For most parents, when their child received an ASD diagnosis, they
knew little about the disease and had limited support from family. Providers and advocates should
consider developing more individualized educational information that provides an overview of
ASD, where their child currently sits on the spectrum, and basic information on services that may
be effective.
• One challenge with this system is that each regional center, as a private corporation, may offer
services as they deem appropriate. This likely contributes to the perception that some regional
centers offer better and more services than others. Those regional centers that serve families
with more “flexible resources” tend to be the ones perceived to offer better services. Given the
disparities in services that parents reported across Los Angeles County, a review of this policy
and the implications that it may have with regards to disparities in access to care should be
made.
Addressing the issue of disparities in ASD diagnoses cannot be effective alone. Interventions to
minimize these disparities will require team building and community partnership to ensure that
community providers, advocates and parents are integrated into these efforts. Using a CHW/pro-
motora model is one way to ensure that this occurs, as this requires training and education from
various facets of the community. Future research should develop and evaluate such an interven-
tion to assess whether it has a significant impact on access to care among minority populations.
REFERENCES
Accessing Services after Diagnoses
While some parents felt that the challenges they faced receiving services would be ameliorated
after receiving their child’s ASD diagnosis, they reported that they soon found that was not the
case. When working with service coordinators and schools, they found there was a need to be
knowledgeable about available services and advocate for their child.
One parent reported calling her area’s regional center to request specific services for her child and
was told they were “unable to provide them due to funding. Nobody was knocking at my door
telling me what I needed to do. I had to learn from talking to other parents”. This was a common
story, with parents reporting that a list of available services was never actually provided to them.
Advocacy
Given these challenges, respondents felt that one of the most important things a parent needed to
learn when seeking services for their child was advocacy.
• Parents felt this was needed in order to get a diagnosis, and continued as their service needs
changed and children entered school and needed to complete an individualized educational pro-
gram (IEP) on a regular basis.
• In addition to advocating for their child, legal representation was often cited as a necessity. Some
parents reported that once you request legal representation at a school’s IEP meeting, suddenly
all of the school staff who should be involved are there “there were about 22 people there, nor-
mally you have about 4 or five”.
I have come to find that dealing with the regional center, unless you know how to navigate the sys-
tem, or unless you know the proper term, or unless you’re a lawyer, or certain color, or if you’re with
a certain regional center [in other parts of town], you don’t get the services that your child needs
Inequalities
Respondents also shared that they feel inequalities- both racial/ethnic and economic - do exist
when it comes to being able to access services for their child.
• Parents reported that the regional centers in the areas that include a large proportion of minori-
ties or lower income communities have a reputation for providing less services to their clients.
Respondents reported meeting parents who live in other communities in the Los Angeles area
at conferences or workshops who “brag about all the services they are receiving through their
regional center and it makes me question why those services are made available to her”.
• They reported that some parents would use the zip code of a family member or friend who lived
in another area of town in order to access the regional centers with a better reputation.
I understand that a lot of parents don’t want to file a complaint but I feel that a closed mouth
won’t get fed. I know of other parents who are using other people’s zip codes just not to use cer-
tain regional centers because they know of another regional center that provides more services.
• In addition to geographic inequalities, some parents also perceived that there are some racial and
ethnic inequalities related to access to services. One respondent reported that her service coor-
dinator warned her that there are some “color boundaries” when it comes to accessing services
and she would have to advocate for the services she wanted her son to receive.
• Several parents also perceived some racial/ethnic stereotypes could be attributed to misdiagnos-
es or late diagnoses of ASD among Latinos and African American. As one parent explained:
They [minority children] don’t get diagnosed early because of the status quo the community
has placed on them…that it is typical, especially for male young boys, to be overly aggressive.
And that is why they aren’t taking them seriously.
• In addition to the misperceptions of how minority children may behave, one Latino parent also
expressed that Latino parents are often looked down upon by doctors and other providers, once
again resulting in their concerns for their child being ignored. This belief has contributed to the
general perception that there are more services available for Caucasian children than other racial
or ethnic groups.
There is ‘American autism’ and there is ‘Latino autism’. They hear about an American child
with autism and all of these maternal and paternal instincts come out, that the child is so intel-
ligent and needs help. And for the Latino child, they say he is throwing tantrums, spoiled and
the parents don’t know how to educate him.
Navigating the System
Parents clearly articulated that navigating the system of services for their autistic child was a chal-
lenge. Focus group participants were asked whether a patient navigator or community health
worker (CHW) type model might be helpful in addressing these barriers. The idea of having an
autism navigator or CHW was well received by participants.
• Parents expressed that these individuals could be integral to helping the parent advocate for an
assessment of their child, understanding the diagnosis and receiving the necessary services.
• They felt that such a person would be invaluable for providing resources such as referrals for
assessments and free or low-cost legal assistance: “They can be the connection between giving
parents the diagnosis and the parent receiving the necessary services”.
• One African American parent reported that such a person should “speak our language” – mean-
ing that they need to know how to approach and interact with the community in a meaningful way
“You are the voice of your child, if you don’t speak up, no one
will hear your son”: Latino and African American parents’
perceptions on access to care for children with autism
Katrina Kubicek, Marisela Robles, Kathryn Smith, Leslie Richards and Michele D. Kipke
BACKGROUND:
In spite of investment in and prominent attention paid to racial and ethnic health
care disparities, there still exist enormous disparities in the United States across
multiple domains including access to care and use of services, prevention and
population health, chronic diseases, health status and quality of care.1,2
• Autism spectrum disorders (ASD) are one of these domains where disparities in
access to care and diagnosis continue to exist.3
• ASDs are a growing concern in the United States, as recent reports have high-
lighted the increase in prevalence of ASD nationally, with the Centers for Disease
Control and Prevention (CDC) reporting that one in every 88 children has an ASD,
finding variability in the prevalence estimates of ASD based on race or ethnicity.3
• This increase in prevalence has mobilized advocates, families, public health re-
searchers and policymakers to implement policies and programs that facilitate
assessment, treatment and support for children with ASD and their families.
This is important as research indicates that early diagnosis and treatment are
critical for improved health outcomes for children with ASDs.4-6
• While there is no evidence to suggest that the odds of an ASD diagnosis is
dependent upon family characteristics such as race/ethnicity, income or edu-
cation7
, research examining the diagnosis of autism have found disparities in
diagnosis and access to care among Latino and African American children.3,8-10
• While the recent CDC surveillance data found an increase in the diagnosis of
ASD in African American and Latino children, disparities still remain in the diag-
nosis of ASD among Black and Latino children compared to non-Latino White
children.
METHODS:
A mixed methods approach was taken in order to provide more in-depth discussion and context
of parents’ experience, while also providing the opportunity the objectively describe parents’ ac-
cess to services. A total of 10 focus groups were convened between May and August 2013 with
56 total participants (43 Latino/Hispanic and 13 Black/African American). Participants also com-
pleted a survey to gather demographic information and assess parent’s knowledge of and access
to autism support services.
Focus group discussions revolved around:
• The process parents go through to receive their child’s first diagnosis for ASD
• How do parents of children with ASD access services for their child
• How parents describe/characterize their experiences in accessing services for their children.
In order to qualify, potential participants needed to:
• Be a parent or primary caregiver of a child with an autism diagnosis
• Identify as either Latino/Hispanic or Black/African American
• Speak English or Spanish
ANALYSIS
The qualitative analysis utilized a ‘‘constant comparative’’ approach, an aspect of grounded theory
that entails the simultaneous process of data collection, analysis and description. In this process,
data are analyzed for patterns and themes to discover the most salient categories, as well as any
emergent theoretical implications.11,12
As the data are collected, they are immediately analyzed for
patterns and themes, with a primary objective of discovering theory implicit in the data. To expe-
dite this process, a written summary of each focus group discussion was completed immediately
after each group. Research team members reviewed these summaries and subsequent tran-
scripts to assess whether theoretical saturation had been reached.
RESULTS
Parent Demographic Survey (N=56)
N (%)/Mean (SD)
Gender
Male 4 (7)
Female 52 (93)
Age
18 – 25 1 (2)
26 – 35 12 (22)
36 – 45 26 (46)
46 – 55 15 (27)
55 or older 2 (4)
Ethnicity
Black / African American 12 (21)
Latino / Hispanic 45 (80)
American Indian 1 (2)
Other 1 (2)
Household income
Less than $20,000 25 (45)
$20,000 to $29,000 10 (18)
$30,000 to $39,000 9 (16)
$40,000 to $49,000 5 (9)
$50,000 to $74,000 4 (7)
$75,000 + 3 (6)
Highest level of education
Less than high school 12 (21)
High school graduate/GED 16 (29)
Some college 15 (27)
Bachelor’s degree 8 (14)
Graduate school 5 (9)
Marital status
Single 17 (30)
Married 30 (54)
Divorced 5 (9)
Living with partner 4 (7)
Spanish preferred language 31 (56)
Have health insurance for self 37 (66
Has not received any information on
autism from doctor
32 (57)
Parents’ Knowledge of and Access to Autism Support
Services (N=56)
Service
Heard of it
N (%)
Would help
my child*
N (%)
Accessed it
N (%)
Speech Therapy 56 (100) 54 (96) 50 (89)
Occupational Therapy 52 (93) 46 (82) 43 (77)
Physical Therapy 31 (55) 21 (38) 11 (20)
Applied Behavioral Analysis 45 (80) 40 (72) 34 (61)
Floortime 38 (68) 34 (61) 26 (46)
Social Skills Training 45 (80) 43 (77) 31 (55)
Behavioral Management 42 (75) 36 (64) 30 (54)
Help with Individual Education Program (IEP) 51 (91) 51 (91) 47 (84)
Help with Regional Center 38 (68) 37 (66) 36 (64)
Family Therapy 28 (50) 27 (48) 16 (29)
Nutritional Counseling 34 (61) 30 (54) 23 (41)
Medical Specialists (e.g., neurologist) 30 (54) 27(48) 21(38)
* Those who indicated it would help “a lot” or “a little” on a 5-point scale
Process of Receiving Diagnosis
Most parents in the study expressed knowing there was something wrong or different about their
child relatively early on, around the age of one or two. Symptoms parents noticed included: lining
up toys, infants or toddlers tilting their heads repeatedly, being very picky eaters, crying uncontrol-
lably, rocking, spinning, not walking at the age of two or three, loss of speech, and other behavior-
al issues. Although, the majority of parents did not know much about autism, they felt concerned
enough to turn to their child’s doctor for answers.
• Many of the families involved in this study receive services at a community clinic where they
generally do not see a pediatrician for their child’s care but rather a family doctor or someone in
general practice.
• They would go to this provider with their concerns and were told not to worry, that “a lot of kids
don’t start talking until they are five.”
• This led to parents feeling not heard or believed by their child’s doctor. Even after countless doc-
tor visits where they continued to express concerns, parents were still told, “it’s normal”, “every-
thing is fine” and “don’t worry”.
• While this reaction from their doctor was frustrating, most parents simply accepted what they
were told by their providers, although they continued to have concerns about their child’s devel-
opment.
• Other parents reported changing doctors multiple times in an attempt to find a provider who
would take their concerns seriously. One mother explained that in Latino cultures, doctors are
highly respected and “know it all, so if he says there is nothing wrong, then there is nothing
wrong” – so it is difficult to challenge their advice or diagnosis.
Characterization of the ASD diagnosis experience and access
to services
To better understand the disparities in ASD diagnoses, it is important to consider the context in
which parents must navigate when seeking care for their child. In general, parents reported a
number of challenges in working with providers.
Cultural Barriers
Some of these challenges were related to cultural beliefs such as reticence to question a doctor’s
opinions.
• An additional cultural barrier described by Latino parents is the tendency to keep problems
“behind closed doors” in Mexican culture. One parent reported “part of the problem is that cul-
turally we [Mexican people] don’t tend to air our problems” and that this can be a major barrier
to seeking help.
• Some parents also reported that other family members often “dismissed” their child’s ASD diag-
nosis and were often the “first to judge” and question whether there was truly something wrong
with the child. Parents reported resistance from family when taking their child for assessments,
with family members believing nothing was wrong and the mother was “crazy” for taking the child
to see psychologists or other providers.
Parents as the Ultimate Resource
When asked about the people in their lives who have been most helpful and supportive in their
process of dealing with their child’s ASD diagnosis, parents were almost unanimous in citing other
parents. Whether this was in a more formal setting such as a parent support group of more infor-
mally through networking, respondents found that other parents also dealing with identifying and
obtaining the best services for their autistic child were the best resource for them.
1. Flores G. Technical Report:
Racial and ethnic dispari-
ties in the health and health
care of children. Pediatrics.
2010;125:e183–e193.
2. Strickland BB, Singh GS,
Kogan MD, Mann MY, van Dyck
PC, Newacheck PW. Access
to the medical home: New find-
ings form the 2005–06 national
survey of children with special
health care needs. Pediatrics.
2009;123(e996–e1004).
3. Centers for Disease Control
and Prevention. Prevalence of
autism spectrum disorders:
Autism and Developmental
Disabilities Monitoring Network,
14 sites, United States, 2008.
Morbidity and Mortality Weekly
Report 2012;61(3):1-24.
4. Andersen RM, Avery DL, DiPi-
etro EK, Edwards GL, Christian
WP. Intensive home-based early
intervention with autistic chil-
dren. Education and Treatment
of Children. 1987;10:352–366.
5. National Research Council.
Educating children with autism.
Washington, DC: Committee
on Educational Interventions for
Children with Autism, Division of
Behavioral and Social Sciences
and Education;2001.
6. Howard JS, Sparkman CR,
Cohen H, Green G, Stanislaw
H. A comparison of intensive
behavior analytic and eclectic
treatments for young chil-
dren with autism Research
in Developmental Disabilities.
2005;26(359–383).
7. Dyches TT, Wilder LK, Sud-
weeks RR, Obiakor FE, Algoz-
zine B. Multicultural issues
in autism. Journal of Autism
and Developmental Disorders.
2004;34(211-222).
8. Fontaine C, Bearman P.
Risk as social context: Im-
migration policy and autism in
California. Sociological Forum.
2011;26(215–240).
9. Mandell DS, Wiggins LD, Car-
penter LA, et al. Racial/ethnic
disparities in the identification of
children with autism spectrum
disorders. American Journal
of Public Health 2009;99(493-
498).
10. Magana S, Lopez K, Aguinaga
A, Morton H. Access to diag-
nosis and treatment services
among Latino children with
autism spectrum disorders.
Intellectual and Developmental
Disabilities 2013;51(3):141-153.
11. Glaser BG. Basics of grounded
theory analysis: Emergence vs
forcing. Mill Valley, CA: Sociol-
ogy Press; 1992.
12. Strauss A, Corbin J. Grounded
theory research: Procedures,
canons, and evaluative cri-
teria. Qualitative Sociology.
1990;13(1):3-21.