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Patient Care as Collaboration: Why Health Care Fails and How IT Can Maintain the Connection
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Keynote for Korean Society for Medical Informatics, Busan, South Korea, 10/1014
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Patient Care as Collaboration: Why Health Care Fails and How IT Can Maintain the Connection
1.
Patient Care
as Collaboration: Why Health Care Fails and How IT Can Maintain the Connection Daniel Z. Sands, MD, MPH, FACP, FACMI @DrDannySands Society for Participatory Medicine Beth Israel Deaconess Medical Center Harvard Medical School Boston, MA © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
2.
Think Back to
Your Last Medical Visit… • Time and cost? • Experience? • Necessity? • Timeliness? • Connection? © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
3.
There is Rising
Demand for Management of Chronic Conditions © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
4.
But We Don’t
Have Enough Clinicians… https://members.aamc.org/eweb/upload/The%20Complexities%20of%20Physician%20Su © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands pply.pdf
5.
…We Can’t Afford
Our Current System… © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
6.
...And Our System
Is Optimized for Managing Acute and Episodic Care © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
7.
http://content.healthaffairs.org/content/20/6/64.full Our
care systems were organized historically to respond rapidly and efficiently to any acute illness or injury that came through the door. The focus was on the immediate problem, its rapid definition and exclusion of more serious alternative diagnoses, and the initiation of professional treatment. Edward Wagner, MD Director, MacColl Institute for Healthcare Innovation at the Center for Health Studies, Group Health Cooperative of Puget Sound, and director of Improving Chronic Illness Care © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
8.
We Must Focus
More on Chronic Disease Prevention and Management © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
9.
What Should Patient
Care Be? © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
10.
A Collaboration On
The Patient’s Health © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
11.
Communication Knowledge Co-Creation
© Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands Mutual Respect Information Sharing
12.
Curing Health Care
Non-Visit- Based Care Patient Engagement New Care Models © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
13.
The Consumerization of
Health and the Virtualization of Care Diagnose and Treat Prevent and Maintain Anywhere Virtual Resources Home Physical Resources © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands Drivers: • Burden of chronic illness • Aging population • Resource maldistribution • Cost-containment • Consumer demand Health Care Health Hospital Built on ideas from Michael Gill $$$$$ $
14.
Some Attributes of
Collaboration Channels Technology Synchronous? Information Density Telephone E-messaging Text messaging/IM / Remote monitoring Telemedicine (usually) Advanced Telemedicine Office visit © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
15.
Personnel Also Have
Attributes Patient Self-care Counselor/ Educator Clinical Nurse NP/PA Physician Different personnel can provide care Each has attributes Each should practice at “top of his/her license” Can add others to this list, even perhaps, Watson… © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
16.
Optimizing Channel and
Personnel Patient Self-care Counselor/ Educator Clinical Nurse NP/PA Physician Telephone E-messaging Text messaging/IM Remote monitoring Telemedicine Advanced Telemedicine Face-to-face visit © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
17.
It can
be argued that the largest yet most neglected health care resource, worldwide, is the patient… Slack WV. CyberMedicine: How Computing Empowers Doctors and Patients for better Health Care. Jossey-Bass 2001. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
18.
What Do Engaged
Patients Want? Communication Patient Engagement Information Convenience © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
19.
Online Population Rising…
© Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
20.
…And Health Info
Seeking Popular © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
21.
Online Health Habits
of US Adults Sources: www.pewinternet.org; PwC HRI Social Media Consumer Survey, 2012 80% of online adults have looked for health info Rising over time Each day, more people search for health information than see a physician! More than half act on the information 1/3 have read about others’ health experiences 1/4 have tracked their health information online 1/3 use social media for health © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
22.
What Do e-Patients
Want? Information © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
23.
Information is No
Longer Locked Up http://www.nlm.n https://twitter.com/HMSCountway ih.gov/share/image/Nlm_building_lg.jpg © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands This work by Old Shoe Woman is licensed under a Creative Commons Attribution-Non-Commercial-ShareAlike 2.0 Generic License. http://cnn.com
24.
© Copyright 2014
D. Z. Sands, All Rights Reserved - @DrDannySands http://www.nytimes.com/pages/health/
25.
Asking Tacit Approval
Honest Disclosures © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
26.
Shifting Paradigm?
Information asymmetry Physician as oracle Comfortable A burden? Information symmetry Physician as partner Threatening vs. liberating Physician as healer © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
27.
No one
knows everything. Everyone knows something. All knowledge resides in networks. Pierre Lévy, PhD Philosopher, cultural theorist, and media scholar, University Of Ottawa, 1997 © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands This photo by cpfl cultura is licensed under a Creative Commons Attribution 2.0 Generic License.
28.
https://www.acor.org © Copyright
2014 D. Z. Sands, All Rights Reserved - @DrDannySands
29.
My doctor prescribed
ACOR and it saved my life. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands Copyright © 2012 D. Z. Sands and R. D. deBronkart. All rights reserved.
30.
What Do e-Patients
Want? Communication © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
31.
“Sorry, Dr. Sands
no longer sees people. He e-mails them.” © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
32.
What Have We
Learned About e-Messaging? Includes encrypted e-mail or, more commonly, secure web messaging Enables efficient communication because it is asynchronous Is cost-effective and benefits both patients and physicians Augments relationship building Is a channel for care delivery Sources: Kane B, Sands DZ, JAMIA 1998. Delbanco T, Sands DZ, NEJM 2004. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
33.
What Do e-Patients
Want? Convenience © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
34.
…stand in line
to withdraw money from a bank? …make airline reservations through a travel agent? © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands How Many of You… http://thingsmykidswontknow.tumblr.com http://www.triporama.com/
35.
Then Why Is
Healthcare So Backwards? The doctor’s booked for the next five months! © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
36.
The Era of
Inconvenience Is Ending © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands http://www.zocdoc.com/
37.
…But We Make
it Difficult: Mismatch Between Desires and Service Offering "Thinking now of new technologies your health care provider could implement, how important would each of the following be to you?” (of patients who saw physician in past year) 0% 10% 20% 30% 40% 50% 60% 70% Online Appts Online Billing/Pmts Online Costs E-mail Viewing Record Available Desired (Important/Very Impt) © Copyright 2014 D. Z. Sands and D. deBronkart, All Rights Reserved Source: Harris Interactive 9/10/12 at http://goo.gl/VzfmT
38.
The Technology Foundation:
A Patient Portal https://www.patientsite.org © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
39.
Services: Prescription refills
Appointment requests Referrals View bill Education: Search Info prescriptions Patient selected links Predefined collections © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands Mail: Secure Automated routing Task assignment Records: Secure All system records Upcoming appointments Meds, Problems, Results … and Notes! Personal records
40.
Where and How
Do We Share Health Records? In the office EHR as collaboration tool not barrier Sharing is encouraged when all align: Attitude Geometry Communication habits Workflow challenges Beyond the office: patient access to records online Workflow challenges (patient) Comprehension challenges (patient) Portability? © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
41.
Dave (Pre-diagnosis) This
is too cool. It's almost SILLY that things can be this easy. I am having a very good patient/customer experience so far. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
42.
Affective Impact: 61M
Minister with DM and Chronic Pain I have a lot of medical issues. This email system has left me feeling comfortable and in good hands! Otherwise, I would feel as cold, depleted, and alone, as the lifeless tree in my front yard in the deepest of winter! © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
43.
© Copyright 2014
D. Z. Sands, All Rights Reserved - @DrDannySands
44.
© Copyright 2014
D. Z. Sands, All Rights Reserved - @DrDannySands
45.
Engaging Patients Leads
to Benefits Better outcomes Triple Aim Improved satisfaction Reduced costs © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
46.
http://participatorymedicine.org Participatory Medicine
is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. Society for Participatory Medicine Community Advocacy Research Education © Copyright 2014 D. Z. Sands, All Rights Reserved -@DrDannySands
47.
Health is What
Happens Between Medial Visits…And Dwarfs Them Visit Visit Visit © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
48.
Frequent Light Touches
May Be Better Visit Visit Visit As payment changes to reward value (better outcomes at lower cost), patient satisfaction, and panel size, we can rethink practice model © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands Support self-care and caregivers Understand social and cultural determinants
49.
© Copyright 2014
D. Z. Sands, All Rights Reserved - @DrDannySands
50.
Patient-Generated Health Information
© Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
51.
Tertiary Secondary Primary
Self-Care (Off the Map) Professional Care Discouraged Encouraged $ ¢ Source: Ferguson, T. Consumer Health Informatics. Healthcare Forum Journal, 1995. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
52.
Individual self-care Friends
and families Self-health networks Professionals as facilitators Professionals as partners Professionals as authorities Professional Care Discouraged Encouraged ¢ $ Source: Ferguson, T. Consumer Health Informatics. Healthcare Forum Journal, 1995. © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
53.
Conclusions Traditional
health care is not adequate Viewing patient care as a collaboration can open our minds to health care transformation Non-visit based care, new care models, and patient engagement all leverage HCIT and offer tremendous opportunities for research, development, and healthcare transformation © Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands
54.
Questions? Danny@DrDannySands.com http://www.DrDannySands.com
© Copyright 2014 D. Z. Sands, All Rights Reserved - @DrDannySands @DrDannySands