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Influencing Policy:
Developing a national Self-Advocacy
and leadership Group of people with
Intellectual Developmental Disabilities
in Israel
Shosh Kaminsky MSW
Beit Issie Shapiro’s vision is that every
person with a disability is entitled to
full equal rights, and to be integrated
and active in community life.
BIS Strategy of Social Change in the
Field of Disabilities
Innovative
Service
Models
Changing
Policy &
Attitudes
Research &
Training
National - Israel
International
Broad Partnerships
Nothing about us without us
Project Purpose
Promoting quality of life and
independence of people with
Intellectual disability by
self-advocacy and leadership.
Goals
1. Promote a network of self-advocacy groups
2. Provide members of the groups with
concepts and skills of self-advocacy
3. Establish a national leadership group that
will promote policy change
Building Local Grassroots Groups
5
Workshops for professional caregivers
Workshops for significant family
members
Recruiting people to the group
National Conference
Group Meetings
with the assistance of a facilitator
National leadership Group
Based on social action model, representatives
from various groups and organizations are
working as a national leadership group to
promote social change and influence policy.
• They prepare position papers
• participate in various committees
and forums and in the Parliament
• represent and fight for their rights
as equals in society.
Training
Training group leaders
Training people without intellectual
disabilities to become facilitators of
local groups.
Training the national leadership
group to influence policy
Knowledge Foundation
Self -
advocate
Know
myself
Communication
leadership
Rights
CRPD
Participating in national networks
• Joining the Rouderman’s network of
young leaders with disability.
• Joining Coalitions :independent living
in the community, guardianship and
supported decision making, closing
sheltered workplaces.
YES WE CAN
Thank you
Shosh.k@beitissie.org.il

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RIWC_PARA_A058 Self Advocacy

  • 1. Influencing Policy: Developing a national Self-Advocacy and leadership Group of people with Intellectual Developmental Disabilities in Israel Shosh Kaminsky MSW
  • 2. Beit Issie Shapiro’s vision is that every person with a disability is entitled to full equal rights, and to be integrated and active in community life.
  • 3. BIS Strategy of Social Change in the Field of Disabilities Innovative Service Models Changing Policy & Attitudes Research & Training National - Israel International Broad Partnerships
  • 4. Nothing about us without us Project Purpose Promoting quality of life and independence of people with Intellectual disability by self-advocacy and leadership. Goals 1. Promote a network of self-advocacy groups 2. Provide members of the groups with concepts and skills of self-advocacy 3. Establish a national leadership group that will promote policy change
  • 5. Building Local Grassroots Groups 5 Workshops for professional caregivers Workshops for significant family members Recruiting people to the group National Conference Group Meetings with the assistance of a facilitator
  • 6. National leadership Group Based on social action model, representatives from various groups and organizations are working as a national leadership group to promote social change and influence policy. • They prepare position papers • participate in various committees and forums and in the Parliament • represent and fight for their rights as equals in society.
  • 7. Training Training group leaders Training people without intellectual disabilities to become facilitators of local groups. Training the national leadership group to influence policy
  • 9. Participating in national networks • Joining the Rouderman’s network of young leaders with disability. • Joining Coalitions :independent living in the community, guardianship and supported decision making, closing sheltered workplaces.
  • 10. YES WE CAN Thank you Shosh.k@beitissie.org.il

Editor's Notes

  1. Israel’s leading NGO and is involved in social change and innovation. We have 3 core activities: Developing innovative and replicable model of work which we then research and disseminate through training and leverage change on a macro level through influencing policy and legislation. Build solutions to needs-research then share and learn and teach and scale up . We are committed to sharing best practice. We EI, methods of treatment, accessible parks etc….and are now giving priority to technology 2 major challenges. How to encourage the development of more technology for PWD How to effectively implement technology – each person is different and the application has to be accurate to their needs המודל הייחודי שלנו מאתר את הצרכים האמיתיים העולים מן מהשטח, מהילדים עם המוגבלות בהם אנו מטפלים ומבני משפחותיהם. כמענה לצרכים אלה אנו מפתחים תוכניות ושירותים חדשניים וייחודיים המלווים במחקר אקדמי ובהערכה. בסופו של תהליך אנו מנגישים את הידע שפותח בארגון ומפיצים אותו בארץ ובעולם. בדרך זו אנו מפתחים מודלים לרפליקציה אשר חוצים מגזרים ומדינות. בית איזי שפירא הוא במהותו ארגון startupחברתי המתמקד בתחום של מוגבלות. Evidence based practice עובד אינו פועל בחלל ריק. האסטרטגיה הארגונית היא מגדלור המכון את דרכו. הערכים הארגוניים מתווים את אופי הדרך.
  2. תנועות של אנשים עם מוגבלות במהלך 25 השנים האחרונות הובילו מאבקים שהובילו לשינויים מרחיקי לכת מהיותם "מוסתרים" ומורחקים מהחברה להיותם בחלקים הולכים וגוברים בחברה. בשנת 2004 בכנס של IAASIDD הוצג מושב "Evaluating the impact of national policy in England", פניה הייתה לאקדמאים מומחי הנושא שצירפו אליהם את "people first" וצירפו אנשים עם מוגבלות לקובצת ההערכה. בניית הכלי משותפת, שאלת do u have a key to your own home? שם חל המהפך בתפישת עולמי המקצועית. כיום בUK ובאוסטרליה כל ההערכות ומחקרים העוסקים בתחום המוגבלות המתוקצבים על ידי גורמי ממשל , לא יתקבלו ללא מידת שותפות של אנשים עם מוגבלות בהליך ההערכתי או מחקרי. כמו כן גישה זו נוכחת יותר בתקצוב של האיחוד האירופי בתחום זה.