Mubnii Morshed, from Women’s Health in Women’s Hands Community Health Centre in Canada, introduces a digital storytelling videos made by seven women representing different stakeholders within the HIV community.
The document summarizes the development of a Massive Open Online Course (MOOC) on death, dying, and palliative care by the CareSearch project. The MOOC aims to build community awareness of palliative care and view death as a normal process. It will involve 6 weekly topics for participants to engage with through tasks and discussions. CareSearch hopes the MOOC will provide insight into consumer needs and facilitate new resource development while contributing to research on digital health and social media. Considerations around participant engagement and handling complex issues are being explored.
The Cochrane Collaboration Colloquium: The mentoring programme of The Cochran...Cochrane.Collaboration
The document discusses training and support programs for authors in less-wealthy countries writing Cochrane reviews on HIV/AIDS. It describes a mentoring program pairing authors with experienced mentors that has supported over 20 authors in completing reviews. The program provides training materials, database searches, and library support. It has helped increase the number of reviews relevant to areas with high disease burden but limited resources for research. Continued funding and expansion of the mentoring model to additional regions is needed to further support authors globally.
Use it or lose it: crowdsourcing support and outreach activities in a hybrid ...Vince Smith
Koureas, D., Livermore, L., Roberts, D., Smith, V. 2013. Use it or lose it: crowdsourcing support and outreach activities in a hybrid sustainability model for e-infrastructures – the ViBRANT project case studies. TDWG, Biodiversity Information Standards. Grand Hotel Mediterraneo Florence, Italy, 27 Oct - 1 Nov., 2013.
This presentation given by Elizabeth Mlambo at the Under the Baobab African Diaspora Networking Zone at the International AIDS Conference, AIDS 2014, discusses the value of a peer support group for African Australians living with HIV.
Martin Holt (Senior Research Fellow, NCHSR), outlines findings from NCHSR studies of living with HIV: the Straightpoz Study (positive heterosexuals & their partners); and the Gay Community Periodic Surveys: HIV-positive gay men.
This presentation was given at the AFAO Positive Services Forum 2012.
Rebekah Israel discusses how the African American HIV University Science and Treatment College helps community-based HIV organisations and Health Departments improve their performance in the treatment cascade.
HIV Today is an initiative of the AIDS Action Council of the ACT that targets human service providers - in the community, public and private sectors. It is specifically designed to enhance the quality of life of people affected by HIV through appropriate mainstream service responses founded on a sound knowledge base. This presentation was given by Nada Ratcliffe, (Manager, Client Services, AIDS Action Council of the ACT), at the AFAO Positive Services Forum 2012.
The document summarizes the development of a Massive Open Online Course (MOOC) on death, dying, and palliative care by the CareSearch project. The MOOC aims to build community awareness of palliative care and view death as a normal process. It will involve 6 weekly topics for participants to engage with through tasks and discussions. CareSearch hopes the MOOC will provide insight into consumer needs and facilitate new resource development while contributing to research on digital health and social media. Considerations around participant engagement and handling complex issues are being explored.
The Cochrane Collaboration Colloquium: The mentoring programme of The Cochran...Cochrane.Collaboration
The document discusses training and support programs for authors in less-wealthy countries writing Cochrane reviews on HIV/AIDS. It describes a mentoring program pairing authors with experienced mentors that has supported over 20 authors in completing reviews. The program provides training materials, database searches, and library support. It has helped increase the number of reviews relevant to areas with high disease burden but limited resources for research. Continued funding and expansion of the mentoring model to additional regions is needed to further support authors globally.
Use it or lose it: crowdsourcing support and outreach activities in a hybrid ...Vince Smith
Koureas, D., Livermore, L., Roberts, D., Smith, V. 2013. Use it or lose it: crowdsourcing support and outreach activities in a hybrid sustainability model for e-infrastructures – the ViBRANT project case studies. TDWG, Biodiversity Information Standards. Grand Hotel Mediterraneo Florence, Italy, 27 Oct - 1 Nov., 2013.
This presentation given by Elizabeth Mlambo at the Under the Baobab African Diaspora Networking Zone at the International AIDS Conference, AIDS 2014, discusses the value of a peer support group for African Australians living with HIV.
Martin Holt (Senior Research Fellow, NCHSR), outlines findings from NCHSR studies of living with HIV: the Straightpoz Study (positive heterosexuals & their partners); and the Gay Community Periodic Surveys: HIV-positive gay men.
This presentation was given at the AFAO Positive Services Forum 2012.
Rebekah Israel discusses how the African American HIV University Science and Treatment College helps community-based HIV organisations and Health Departments improve their performance in the treatment cascade.
HIV Today is an initiative of the AIDS Action Council of the ACT that targets human service providers - in the community, public and private sectors. It is specifically designed to enhance the quality of life of people affected by HIV through appropriate mainstream service responses founded on a sound knowledge base. This presentation was given by Nada Ratcliffe, (Manager, Client Services, AIDS Action Council of the ACT), at the AFAO Positive Services Forum 2012.
The document discusses user research conducted to understand how data from Wikimedia projects can better support diversity efforts.
Key findings include developing 6 personas representing potential users, including diversity-focused editors, community leaders, developers, and researchers. Interviews revealed challenges around technical accessibility of tools, a need for customization and localization, and tracking underrepresented groups over time.
The research aims to provide actionable insights to inform diversity through an integrated tool called "humaniki" that merges existing projects. Overall, the research identified improving usability of existing data and expanding analysis dimensions as important themes to address gaps.
Amina is a community leader and activist who is concerned about receiving consent when identifying and categorizing individuals as members of the LGBTQ community. She aims to compile biographies of important LGBTQ figures but faces challenges with Wikipedia's stringent citation rules and a lack of local high-profile sources. She is interested in tools that can help identify resources and support diversity efforts like tracking progress in underrepresented groups' content growth. Other participants expressed a need for easy-to-use tools to find relevant local diversity statistics and content recommendations to address knowledge gaps. Developers face challenges in indexing data by categories like location, language and field to support initiatives seeking to analyze diversity metrics.
Brent Allan, Local Co-Chair of the Community Programme Committee for AIDS 2014, provides an overview of the plans for the conference with suggestions for how Australian organisations can be involved.
This document summarizes a research report on a consultation with diverse communities in the Langworthy area of Salford, England. The report was commissioned by the Langworthy Cornerstone Association to inform its 2016-2019 business strategy. The research had two aims: to inform amendments to current service provision and to inform the development of new provision considering local requirements. It employed a participatory research design using 10 community researchers from diverse backgrounds. The researchers conducted focus groups in multiple languages to understand how the association could better engage local communities and their needs. The findings will be used to improve and expand the association's services to reflect the area's increasingly diverse population.
First annual scientific conference - overviewIFPRI-PIM
This presentation was given by Rhiannon Pyburn (KIT), as part of the Annual Scientific Conference hosted by the CGIAR Collaborative Platform for Gender Research. The event took place on 5-6 December 2017 in Amsterdam, the Netherlands, where the Platform is hosted (by KIT Royal Tropical Institute).
Read more: http://gender.cgiar.org/gender_events/annual-scientific-conference-capacity-development-workshop-cgiar-collaborative-platform-gender-research/
First annual scientific conference - overviewCGIAR
The First Annual Scientific Conference of the CGIAR Collaborative Platform for Gender Research was held from December 4-8, 2017 at KIT Royal Tropical Institute in Amsterdam. Over 90 participants from across CGIAR discussed developing a cross-CGIAR framework for gender research. The conference included presentations of current gender research, discussions of CGIAR research program gender plans for 2017-2022, and sessions on communicating and building capacity for gender research. Additionally, a capacity development workshop covered topics such as integrating gender, resource mobilization, and knowledge sharing within CGIAR Communities of Practice on gender and agriculture issues.
Evaluating a community media approach to promote nutrition in NigerJSI
A presentation from the SBCC Summit in Addis Ababa, Ethiopia, February 2016, presented by Peggy Koniz-Booher.
The collaboration was established between SPRING/Digital Green and 3 USAID/Niger programs - REGIS-ER (NCBA CLUSA), LAHIA (Save the Children) & Sawki (Mercy Corps)
Focused on the development and dissemination of 10 videos by community facilitators working with 4 distinct groups in each participating village.
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Technical Capacity Building Training Module of Radio Staffsardar ali
The document outlines a training module for radio staff on gender sensitization and technical capacity building. The one-day workshop aims to raise awareness of gender issues, promote advocacy for gender equality, and update production staff on modern broadcasting tools and techniques. The training covers topics such as community radio for gender sensitization, transforming ideas on gender issues into radio programs, emerging concepts in radio production, and refurbishing traditional tools and techniques from a gender perspective. Participants engage in planning a catchy radio program on a selected gender issue. The overall goal is to empower radio staff to effectively address gender topics and portray women positively through their broadcasts.
Participatory video for inclusive research: Opportunities & challenges ident...CIAT
The document discusses the opportunities and challenges of using participatory video (PV) for inclusive agricultural research. PV allows marginalized groups like rural women to communicate their perspectives in their own words. It has been used in projects in Nicaragua to understand challenges facing young farmers and rural women. While PV enables inclusion and empowerment, challenges include the quality of videos produced, reaching policymakers, and the time-intensive nature of workshops. Overall, the document concludes that PV is an effective tool for inclusive research that allows understanding local needs, but has limitations such as cultural barriers and small scale.
This document provides an overview of TEKTIC, a Canadian university eHealth research collaboration. TEKTIC is a multi-disciplinary group that funds projects exploring how information technologies can accelerate health research translation. It has funded 34 projects across 5 themes. TEKTIC engages in knowledge translation activities like seminars, newsletters, and conferences to share project findings. It is growing its membership and continuing to fund innovative eHealth projects.
This document summarizes several case studies of assistive technology services:
- COGKNOW helped people with dementia navigate their day through reminders, activity support and safety warnings.
- NOCTURNAL provided therapeutic support for people with dementia at night through music, images and sleep monitoring.
- A project in Belfast supported independent living for the elderly through a reablement program co-created with social enterprises.
- A project designed social prescription services for people with long-term conditions like obesity through user research, personas and prototypes to improve health literacy and self management.
The document summarizes the En Avant initiative, which was a collaborative effort between ACCHO and OHTN to develop an impact-focused HIV/AIDS research strategy for African, Caribbean and Black communities in Ontario. It involved forming a planning committee to identify priority research areas and hosting a meeting where stakeholders developed research concepts within those priority areas. The priority areas were: 1) research and evidence-based practices in HIV prevention, treatment and care; 2) clinical and immunological issues across the lifespan; and 3) methodological innovations in HIV research. The meeting resulted in several identified research concepts. Next steps include transitioning leadership of En Avant to ACCHO and providing support for developing the research concepts into grant proposals.
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This document discusses involving members of the public in disseminating research findings. It aims to explain why public involvement is important, what the benefits and challenges are, and how they can be involved. Examples are provided of past studies that engaged the public, such as creating films about a clinical trial from the perspectives of participants, doctors, and advocates. The document also provides links to resources on developing dissemination strategies and training for public involvement.
Innovations conference 2014 leissa pitts the cancer good news projectCancer Institute NSW
This document describes the Cancer Good News project which aimed to address cancer stigma and promote help-seeking within Serbian and Macedonian communities in Illawarra, Australia. Formative research found that these communities strongly associated cancer with death and prevented open discussion. The project developed culturally appropriate resources emphasizing positive cancer facts, screening tests, and survivor stories. Evaluation found the resources increased discussion of cancer, promoted screening intentions, and built community capacity to address cancer issues. Partnerships with local organizations were important to the project's success in engaging the communities.
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Using Maps in Community-Based Research (3/12/15)Healthy City
Through this webinar you will:
• Explore Healthy City's community-based research approach
• Hear case studies of how others have used community mapping
• Learn how to create your own maps on HealthyCity.org
How can community-based participatory research contribute to Program Scienceamusten
This document summarizes the development and evaluation of a community-based participatory research program called Pouvoir Partager/Pouvoirs Partagés (PP/PP) aimed at empowering women living with HIV to make thoughtful decisions about disclosing or not disclosing their HIV status. Over three cycles from 2002-2011, the program was developed with input from women living with HIV, implemented as a pilot, improved based on evaluation, scaled up provincially, and adapted for other cultural contexts. Evaluation found the program improved participants' ability to disclose their status proactively and their sense of control and self-efficacy around disclosure decisions.
This project proposal is from Revival Ministries International to provide livelihood support for refugees in Nakivale camp, Uganda over 12 months. The project will train refugees in vocational skills and small business management, and provide start-up grants and kits. A sample of 10,000 refugees will be selected randomly to participate in skills training in areas like auto mechanics, carpentry, and tailoring. The project aims to improve the socio-economic conditions of refugees through capacity building and sustainable livelihoods.
This presentation on AFAO's recent work with Culturally and Linguistically Diverse (CALD) communities was given by Michael Frommer at the SiREN Symposium in Perth, June 2016.
The document outlines a four-phase activity to develop culturally appropriate online health resources for Aboriginal and Torres Strait Islander communities as well as several CALD populations in Australia. The activity will be overseen by ASHM and involves auditing existing resources, consulting with communities, developing new resources, distributing and promoting them, and evaluating their uptake. Key steps include establishing advisory committees, reviewing current resources, holding workshops to prioritize new materials, subcontracting organizations to create resources, and measuring the impact through surveys and web analytics. The goal is to prevent blood-borne viruses and sexually transmitted infections among these at-risk communities through improved health education.
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The document discusses user research conducted to understand how data from Wikimedia projects can better support diversity efforts.
Key findings include developing 6 personas representing potential users, including diversity-focused editors, community leaders, developers, and researchers. Interviews revealed challenges around technical accessibility of tools, a need for customization and localization, and tracking underrepresented groups over time.
The research aims to provide actionable insights to inform diversity through an integrated tool called "humaniki" that merges existing projects. Overall, the research identified improving usability of existing data and expanding analysis dimensions as important themes to address gaps.
Amina is a community leader and activist who is concerned about receiving consent when identifying and categorizing individuals as members of the LGBTQ community. She aims to compile biographies of important LGBTQ figures but faces challenges with Wikipedia's stringent citation rules and a lack of local high-profile sources. She is interested in tools that can help identify resources and support diversity efforts like tracking progress in underrepresented groups' content growth. Other participants expressed a need for easy-to-use tools to find relevant local diversity statistics and content recommendations to address knowledge gaps. Developers face challenges in indexing data by categories like location, language and field to support initiatives seeking to analyze diversity metrics.
Brent Allan, Local Co-Chair of the Community Programme Committee for AIDS 2014, provides an overview of the plans for the conference with suggestions for how Australian organisations can be involved.
This document summarizes a research report on a consultation with diverse communities in the Langworthy area of Salford, England. The report was commissioned by the Langworthy Cornerstone Association to inform its 2016-2019 business strategy. The research had two aims: to inform amendments to current service provision and to inform the development of new provision considering local requirements. It employed a participatory research design using 10 community researchers from diverse backgrounds. The researchers conducted focus groups in multiple languages to understand how the association could better engage local communities and their needs. The findings will be used to improve and expand the association's services to reflect the area's increasingly diverse population.
First annual scientific conference - overviewIFPRI-PIM
This presentation was given by Rhiannon Pyburn (KIT), as part of the Annual Scientific Conference hosted by the CGIAR Collaborative Platform for Gender Research. The event took place on 5-6 December 2017 in Amsterdam, the Netherlands, where the Platform is hosted (by KIT Royal Tropical Institute).
Read more: http://gender.cgiar.org/gender_events/annual-scientific-conference-capacity-development-workshop-cgiar-collaborative-platform-gender-research/
First annual scientific conference - overviewCGIAR
The First Annual Scientific Conference of the CGIAR Collaborative Platform for Gender Research was held from December 4-8, 2017 at KIT Royal Tropical Institute in Amsterdam. Over 90 participants from across CGIAR discussed developing a cross-CGIAR framework for gender research. The conference included presentations of current gender research, discussions of CGIAR research program gender plans for 2017-2022, and sessions on communicating and building capacity for gender research. Additionally, a capacity development workshop covered topics such as integrating gender, resource mobilization, and knowledge sharing within CGIAR Communities of Practice on gender and agriculture issues.
Evaluating a community media approach to promote nutrition in NigerJSI
A presentation from the SBCC Summit in Addis Ababa, Ethiopia, February 2016, presented by Peggy Koniz-Booher.
The collaboration was established between SPRING/Digital Green and 3 USAID/Niger programs - REGIS-ER (NCBA CLUSA), LAHIA (Save the Children) & Sawki (Mercy Corps)
Focused on the development and dissemination of 10 videos by community facilitators working with 4 distinct groups in each participating village.
The presentation covers the approach to community video and lessons learned from the activities.
Technical Capacity Building Training Module of Radio Staffsardar ali
The document outlines a training module for radio staff on gender sensitization and technical capacity building. The one-day workshop aims to raise awareness of gender issues, promote advocacy for gender equality, and update production staff on modern broadcasting tools and techniques. The training covers topics such as community radio for gender sensitization, transforming ideas on gender issues into radio programs, emerging concepts in radio production, and refurbishing traditional tools and techniques from a gender perspective. Participants engage in planning a catchy radio program on a selected gender issue. The overall goal is to empower radio staff to effectively address gender topics and portray women positively through their broadcasts.
Participatory video for inclusive research: Opportunities & challenges ident...CIAT
The document discusses the opportunities and challenges of using participatory video (PV) for inclusive agricultural research. PV allows marginalized groups like rural women to communicate their perspectives in their own words. It has been used in projects in Nicaragua to understand challenges facing young farmers and rural women. While PV enables inclusion and empowerment, challenges include the quality of videos produced, reaching policymakers, and the time-intensive nature of workshops. Overall, the document concludes that PV is an effective tool for inclusive research that allows understanding local needs, but has limitations such as cultural barriers and small scale.
This document provides an overview of TEKTIC, a Canadian university eHealth research collaboration. TEKTIC is a multi-disciplinary group that funds projects exploring how information technologies can accelerate health research translation. It has funded 34 projects across 5 themes. TEKTIC engages in knowledge translation activities like seminars, newsletters, and conferences to share project findings. It is growing its membership and continuing to fund innovative eHealth projects.
This document summarizes several case studies of assistive technology services:
- COGKNOW helped people with dementia navigate their day through reminders, activity support and safety warnings.
- NOCTURNAL provided therapeutic support for people with dementia at night through music, images and sleep monitoring.
- A project in Belfast supported independent living for the elderly through a reablement program co-created with social enterprises.
- A project designed social prescription services for people with long-term conditions like obesity through user research, personas and prototypes to improve health literacy and self management.
The document summarizes the En Avant initiative, which was a collaborative effort between ACCHO and OHTN to develop an impact-focused HIV/AIDS research strategy for African, Caribbean and Black communities in Ontario. It involved forming a planning committee to identify priority research areas and hosting a meeting where stakeholders developed research concepts within those priority areas. The priority areas were: 1) research and evidence-based practices in HIV prevention, treatment and care; 2) clinical and immunological issues across the lifespan; and 3) methodological innovations in HIV research. The meeting resulted in several identified research concepts. Next steps include transitioning leadership of En Avant to ACCHO and providing support for developing the research concepts into grant proposals.
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This document provides an overview and summary of the 2014 CCCR National Summit proceedings. The goal of the summit was to extend and deepen the impact of collaborative community-campus research in solving complex problems by sharing lessons learned, building consensus on excellence indicators, identifying hubs of excellence on specific issues, and mobilizing the summit learnings. The summit included keynote presentations, discussions on categories and indicators of excellence, and hubs of excellence. It engaged participants in evaluating the summit and exploring next steps to further collaborative community-campus research. The proceedings captured the results and discussions over the course of the summit.
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This document discusses involving members of the public in disseminating research findings. It aims to explain why public involvement is important, what the benefits and challenges are, and how they can be involved. Examples are provided of past studies that engaged the public, such as creating films about a clinical trial from the perspectives of participants, doctors, and advocates. The document also provides links to resources on developing dissemination strategies and training for public involvement.
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This document describes the Cancer Good News project which aimed to address cancer stigma and promote help-seeking within Serbian and Macedonian communities in Illawarra, Australia. Formative research found that these communities strongly associated cancer with death and prevented open discussion. The project developed culturally appropriate resources emphasizing positive cancer facts, screening tests, and survivor stories. Evaluation found the resources increased discussion of cancer, promoted screening intentions, and built community capacity to address cancer issues. Partnerships with local organizations were important to the project's success in engaging the communities.
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This document summarizes the development and evaluation of a community-based participatory research program called Pouvoir Partager/Pouvoirs Partagés (PP/PP) aimed at empowering women living with HIV to make thoughtful decisions about disclosing or not disclosing their HIV status. Over three cycles from 2002-2011, the program was developed with input from women living with HIV, implemented as a pilot, improved based on evaluation, scaled up provincially, and adapted for other cultural contexts. Evaluation found the program improved participants' ability to disclose their status proactively and their sense of control and self-efficacy around disclosure decisions.
This project proposal is from Revival Ministries International to provide livelihood support for refugees in Nakivale camp, Uganda over 12 months. The project will train refugees in vocational skills and small business management, and provide start-up grants and kits. A sample of 10,000 refugees will be selected randomly to participate in skills training in areas like auto mechanics, carpentry, and tailoring. The project aims to improve the socio-economic conditions of refugees through capacity building and sustainable livelihoods.
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The document outlines a four-phase activity to develop culturally appropriate online health resources for Aboriginal and Torres Strait Islander communities as well as several CALD populations in Australia. The activity will be overseen by ASHM and involves auditing existing resources, consulting with communities, developing new resources, distributing and promoting them, and evaluating their uptake. Key steps include establishing advisory committees, reviewing current resources, holding workshops to prioritize new materials, subcontracting organizations to create resources, and measuring the impact through surveys and web analytics. The goal is to prevent blood-borne viruses and sexually transmitted infections among these at-risk communities through improved health education.
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Diagnosis and Staging
The diagnosis of HR+ breast cancer begins with clinical evaluation, imaging, and biopsy. Imaging modalities such as mammography, ultrasound, and MRI help in assessing the extent of the disease. Histopathological examination and immunohistochemical staining of the biopsy sample confirm the diagnosis and hormone receptor status by identifying the presence of estrogen receptors (ER) and progesterone receptors (PR) on the tumor cells.
Staging involves determining the size of the tumor (T), the involvement of regional lymph nodes (N), and the presence of distant metastasis (M). The American Joint Committee on Cancer (AJCC) staging system is commonly used. Accurate staging is critical as it guides treatment decisions.
Treatment Options
Endocrine Therapy
Endocrine therapy is the cornerstone of treatment for HR+ breast cancer in postmenopausal women. The primary goal is to reduce the levels of estrogen or block its effects on cancer cells. Commonly used agents include:
Selective Estrogen Receptor Modulators (SERMs): Tamoxifen is a SERM that binds to estrogen receptors, blocking estrogen from stimulating breast cancer cells. It is effective but may have side effects such as increased risk of endometrial cancer and thromboembolic events.
Aromatase Inhibitors (AIs): These drugs, including anastrozole, letrozole, and exemestane, lower estrogen levels by inhibiting the aromatase enzyme, which converts androgens to estrogen in peripheral tissues. AIs are generally preferred in postmenopausal women due to their efficacy and safety profile compared to tamoxifen.
Selective Estrogen Receptor Downregulators (SERDs): Fulvestrant is a SERD that degrades estrogen receptors and is used in cases where resistance to other endocrine therapies develops.
Combination Therapies
Combining endocrine therapy with other treatments enhances efficacy. Examples include:
Endocrine Therapy with CDK4/6 Inhibitors: Palbociclib, ribociclib, and abemaciclib are CDK4/6 inhibitors that, when combined with endocrine therapy, significantly improve progression-free survival in advanced HR+ breast cancer.
Endocrine Therapy with mTOR Inhibitors: Everolimus, an mTOR inhibitor, can be added to endocrine therapy for patients who have developed resistance to aromatase inhibitors.
Chemotherapy
Chemotherapy is generally reserved for patients with high-risk features, such as large tumor size, high-grade histology, or extensive lymph node involvement. Regimens often include anthracyclines and taxanes.
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3. Agenda
Introduction to WCBR Project
Introduction to Digital Storytelling
Screening of 4 Videos
Q & A with Video Participants
Panel
Group Discussion:
Innovative Ideas for Knowledge
Mobilization in Community Research
4. The WCBR Project
Involving Ontario HIV-positive Women And Their
Service Providers In Determining Their Research
Needs And Priorities
5. The WCBR Project
Mixed method study funded by the Canadian Institute of Health
Research (CIHR) between 2007 – 2010
Implementation team:
2 Principle investigators
5 Co-investigators
25 CAB members
12 women living with HIV as Peer Research Assistants
Think Tank of experts in between the two phases to
determine direction for phase II
6. WCBR - Phase 1
15 focus groups were conducted with women living with HIV (n=104)
across Ontario, Canada including:
Aboriginal, African/Caribbean, South Asian, Latina, sex worker,
injection drug user, lesbian/bisexual/queer, and transgender
women
5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay
Peer Research Assistants (PRAs) from targeted populations were
trained as a component of study development and implementation
4 focus groups were also done with service provides and
researchers (n=45) in Ottawa, Hamilton and Toronto
7. WCBR - Phase 2
A quantitative survey was developed to further investigate themes and
priorities of women living with HIV
A total of 166 women ranging from 18 – 69 years of age
Three regions: Ottawa, Toronto, Southwestern Ontario
1. What is the influence of HIV-related stigma, gender-based discrimination
and racial discrimination on quality of life, depression and access to care
among Black, African, Caribbean and Canadian women?
2. What is the influence of social support and resilient coping on quality of
life, depression and access to care among Black, African, Caribbean and
Canadian women?
8. KTE Activities
Range of KTE Activities targeted to multiple
audiences:
1. Scientific community:
18 conference presentations
6 papers published in peer reviewed journal
1 paper in review
2 in preparation
2. Service providers and communities of
women living with HIV
Community report
Forums – 7 done across Ontario
3. Multiple audiences
7 Digital Story Telling videos
10. What is Digital Storytelling?
Digital storytelling combines the
traditional art of storytelling
with multimedia features such
as: photography, animation,
text, audio, voiceover, and
video
“New Folklore of the Digital Age”
11. Why Digital Stories?
Initial: ~25 min full video
Final: 7 digital storytelling videos (~3 mins each)
Individual vs. collective experiences in research
Reflexive Process
Using own voice – individual ownership of video
Social Media Strategy
12. How does it work?
1. Story Circle
2. Discussion/Feedback
3. Script Writing (3 min)
4. Storyboard/Plan
5. Voiceover
6. Gather photos/videos/art
7. Final Cut Express
8. Finish & Screen
13. Q & A with Panelists
Carmen Logie Marvelous Muchenje Wangari Tharao
16. WCBR Project Interactive Website
(In progress)
Features
• Embedded Videos
• Biographies
• Final Report
• Results + Themes
• Updates/Events
• Pre/Post Survey
• Social Media
• Discussion/Forum
17. 1. What are some
challenges you find in
mobilizing knowledge?
2. How can we facilitate
research to action in
CBR? (“now what?”)
3. Examples of innovative
KTE strategies/projects
4. Breaking the stigma on
HIV research – how can
KTE help?
Open Discussion
Innovative Ideas for
Knowledge Mobilization
in Research