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Agenda
 Introduction to WCBR Project
 Introduction to Digital Storytelling
 Screening of 4 Videos
 Q & A with Video Participants
Panel
 Group Discussion:
Innovative Ideas for Knowledge
Mobilization in Community Research
The WCBR Project
Involving Ontario HIV-positive Women And Their
Service Providers In Determining Their Research
Needs And Priorities
The WCBR Project
 Mixed method study funded by the Canadian Institute of Health
Research (CIHR) between 2007 – 2010
 Implementation team:
 2 Principle investigators
 5 Co-investigators
 25 CAB members
 12 women living with HIV as Peer Research Assistants
 Think Tank of experts in between the two phases to
determine direction for phase II
WCBR - Phase 1
 15 focus groups were conducted with women living with HIV (n=104)
across Ontario, Canada including:
 Aboriginal, African/Caribbean, South Asian, Latina, sex worker,
injection drug user, lesbian/bisexual/queer, and transgender
women
 5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay
 Peer Research Assistants (PRAs) from targeted populations were
trained as a component of study development and implementation
 4 focus groups were also done with service provides and
researchers (n=45) in Ottawa, Hamilton and Toronto
WCBR - Phase 2
 A quantitative survey was developed to further investigate themes and
priorities of women living with HIV
 A total of 166 women ranging from 18 – 69 years of age
 Three regions: Ottawa, Toronto, Southwestern Ontario
1. What is the influence of HIV-related stigma, gender-based discrimination
and racial discrimination on quality of life, depression and access to care
among Black, African, Caribbean and Canadian women?
2. What is the influence of social support and resilient coping on quality of
life, depression and access to care among Black, African, Caribbean and
Canadian women?
KTE Activities
Range of KTE Activities targeted to multiple
audiences:
1. Scientific community:
 18 conference presentations
 6 papers published in peer reviewed journal
 1 paper in review
 2 in preparation
2. Service providers and communities of
women living with HIV
 Community report
 Forums – 7 done across Ontario
3. Multiple audiences
 7 Digital Story Telling videos
Digital Storytelling
What is it?
Why did we choose it?
How does it work?
What is Digital Storytelling?
Digital storytelling combines the
traditional art of storytelling
with multimedia features such
as: photography, animation,
text, audio, voiceover, and
video
“New Folklore of the Digital Age”
Why Digital Stories?
 Initial: ~25 min full video
 Final: 7 digital storytelling videos (~3 mins each)
 Individual vs. collective experiences in research
 Reflexive Process
 Using own voice – individual ownership of video
 Social Media Strategy
How does it work?
1. Story Circle
2. Discussion/Feedback
3. Script Writing (3 min)
4. Storyboard/Plan
5. Voiceover
6. Gather photos/videos/art
7. Final Cut Express
8. Finish & Screen
Q & A with Panelists
Carmen Logie Marvelous Muchenje Wangari Tharao
WCBR Study Report
Website: www.whiwh.com
Digital Storytelling Videos
Website: www.youtube.com/TorontoWHIWHCHC
WCBR Project Interactive Website
(In progress)
Features
• Embedded Videos
• Biographies
• Final Report
• Results + Themes
• Updates/Events
• Pre/Post Survey
• Social Media
• Discussion/Forum
1. What are some
challenges you find in
mobilizing knowledge?
2. How can we facilitate
research to action in
CBR? (“now what?”)
3. Examples of innovative
KTE strategies/projects
4. Breaking the stigma on
HIV research – how can
KTE help?
Open Discussion
Innovative Ideas for
Knowledge Mobilization
in Research
Thank You!
Contact Information:
Mubnii Morshed, MPH
Research Coordinator
Women’s Health in Women’s Hands CHC
Toronto, Canada
mubnii@whiwh.com

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Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

  • 1.
  • 3. Agenda  Introduction to WCBR Project  Introduction to Digital Storytelling  Screening of 4 Videos  Q & A with Video Participants Panel  Group Discussion: Innovative Ideas for Knowledge Mobilization in Community Research
  • 4. The WCBR Project Involving Ontario HIV-positive Women And Their Service Providers In Determining Their Research Needs And Priorities
  • 5. The WCBR Project  Mixed method study funded by the Canadian Institute of Health Research (CIHR) between 2007 – 2010  Implementation team:  2 Principle investigators  5 Co-investigators  25 CAB members  12 women living with HIV as Peer Research Assistants  Think Tank of experts in between the two phases to determine direction for phase II
  • 6. WCBR - Phase 1  15 focus groups were conducted with women living with HIV (n=104) across Ontario, Canada including:  Aboriginal, African/Caribbean, South Asian, Latina, sex worker, injection drug user, lesbian/bisexual/queer, and transgender women  5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay  Peer Research Assistants (PRAs) from targeted populations were trained as a component of study development and implementation  4 focus groups were also done with service provides and researchers (n=45) in Ottawa, Hamilton and Toronto
  • 7. WCBR - Phase 2  A quantitative survey was developed to further investigate themes and priorities of women living with HIV  A total of 166 women ranging from 18 – 69 years of age  Three regions: Ottawa, Toronto, Southwestern Ontario 1. What is the influence of HIV-related stigma, gender-based discrimination and racial discrimination on quality of life, depression and access to care among Black, African, Caribbean and Canadian women? 2. What is the influence of social support and resilient coping on quality of life, depression and access to care among Black, African, Caribbean and Canadian women?
  • 8. KTE Activities Range of KTE Activities targeted to multiple audiences: 1. Scientific community:  18 conference presentations  6 papers published in peer reviewed journal  1 paper in review  2 in preparation 2. Service providers and communities of women living with HIV  Community report  Forums – 7 done across Ontario 3. Multiple audiences  7 Digital Story Telling videos
  • 9. Digital Storytelling What is it? Why did we choose it? How does it work?
  • 10. What is Digital Storytelling? Digital storytelling combines the traditional art of storytelling with multimedia features such as: photography, animation, text, audio, voiceover, and video “New Folklore of the Digital Age”
  • 11. Why Digital Stories?  Initial: ~25 min full video  Final: 7 digital storytelling videos (~3 mins each)  Individual vs. collective experiences in research  Reflexive Process  Using own voice – individual ownership of video  Social Media Strategy
  • 12. How does it work? 1. Story Circle 2. Discussion/Feedback 3. Script Writing (3 min) 4. Storyboard/Plan 5. Voiceover 6. Gather photos/videos/art 7. Final Cut Express 8. Finish & Screen
  • 13. Q & A with Panelists Carmen Logie Marvelous Muchenje Wangari Tharao
  • 14. WCBR Study Report Website: www.whiwh.com
  • 15. Digital Storytelling Videos Website: www.youtube.com/TorontoWHIWHCHC
  • 16. WCBR Project Interactive Website (In progress) Features • Embedded Videos • Biographies • Final Report • Results + Themes • Updates/Events • Pre/Post Survey • Social Media • Discussion/Forum
  • 17. 1. What are some challenges you find in mobilizing knowledge? 2. How can we facilitate research to action in CBR? (“now what?”) 3. Examples of innovative KTE strategies/projects 4. Breaking the stigma on HIV research – how can KTE help? Open Discussion Innovative Ideas for Knowledge Mobilization in Research
  • 18. Thank You! Contact Information: Mubnii Morshed, MPH Research Coordinator Women’s Health in Women’s Hands CHC Toronto, Canada mubnii@whiwh.com

Editor's Notes

  1. Read bios
  2. Currently being made Based on evaluation of digital storytelling screenings
  3. what strategies or approaches have helped you to mobilize knowledge...