This document summarizes autism-related activities, accomplishments, collaborations, ideas, and action items for regions 9 and 10. Key points include: 1) Activities across the regions include conferences, webinars, advisory groups, workforce development, training, and research. 2) State accomplishments include providing technical assistance, creating state coalitions, and organizing professional development institutes. 3) Areas of collaboration include establishing autism commissions, expanding access to services, screening plans, and addressing issues like care provider turnover and cultural understanding of autism signs. 4) Ideas involve sharing resources, using technical support centers, translating autism materials, and establishing relationships.

1. Breakout‐ Region 9 & 10
12/08/09
Activities
‐ LEND PAC‐WEST conference calls
‐ Thinking of webinars
‐ Advisory groups to coordinate
‐ Workforce development
o Primarily screening
o Capacity building among professionals
o Advisory and steering committees
‐ Training
‐ Research
o Learn the Signs Act Early
o Co‐occurrence of ASD and FASD
o Intervention Research
o Guanfacine research
‐ WA‐ Community Asset Management
‐ OR‐ DBPs created ASD screening lecture training parents via webinar
‐ HI‐ Training PCPs now ADOS‐trained
‐ AK‐ Neurodevelopmental outreach clinics, streamline referrals
‐ CA‐ Ethnographic studies, oral health, ophtho
o 2 DBPs in every continuity clinic session
‐ TRAINING
o WA‐ Improving education for family trainees
Increased number of LEND trainees
New autism center @ Seattle Children’s (DBP fellows, interns, and LEND
trainees)
o OR‐ Autism parent training programs‐ rural
o AK‐ statewide Autism Institute
TASSE site‐ grant for behavior service supports
Collaborative system in early childhood
STATE POST‐SUMMIT ACCOMPLISHMENTS
‐ Region 9
o AZ, NV, CA, HI
o Provide technical assistance
o CELPA‐ State of CA divided
o Create a state coalition
o Attempt to organize an autism registry

2. o Professional Development Institute grant funds
o In CA, learning to work more closely between North CA and South CA
‐ Region 10
o WA‐ state implementation grant and LEND joined forces
COLLABORATIVE PRODUCT OR OUTCOME
‐ OR‐ Governor just started Autism Commission (screening, medical, school)
‐ WA‐ Policies‐working on access, capacity building, and expanding access to rural areas
‐ CA‐ Many activities, folks from UCEDD serve on state councils
o Creating screening plan
o Using telehealth to do outreach
‐ AK‐ Struggles with care providers and referrals
o High turnover rate in early care and education how to educate these folks? –
Learn the Signs Act Early
‐ Other‐ Part C on the chopping block in some states
‐ Shared interest in capacity building
‐ Collective interest in screening and intervention
‐ Family‐to‐Family one in every state. Possibility of collaborating to support this?
‐ Referral overload to DBPs
‐ Idea of WIC as a place for ASD screening? Video lectures, webinar
‐ Parent access/screening tool problems with families who struggle with things like this
‐ Problem of cultural miscommunication of signs
o Time if diagnosis differs across different ethnicities (CA, AK, HI, everywhere)
IDEAS
‐ What do we have to share?
‐ Repository of info, tools, and toys
‐ Use technical support centers‐ regional technical support
‐ Learn the Signs‐ English and Spanish
‐ Mass translation (electronically)
‐ SHARING INFO
‐ AMCHIP serves as resource center for state implementation grants‐ Can AMCHIP contribute
to repository?
‐ ITAC Website
‐ SPHARC‐ State Public Health Autism Resource Center
‐ Interest in sharing info via telehealth?
‐ Importance of establishing collaborative relationships
‐ PAC‐WEST LEND consortium
ACTION ITEMS
‐ 1) Resource Sharing

3. o SPHARC has public and private domains
o Idea of a searchable database/list, and can they do the search? There needs to be a
search function
o Partners for new projects‐ ability to find
‐ 2) Identify person to share resources
TARGET DATES AND POINT PERSON(S)
‐ ITAC and SPHARC‐ identify a point person to bring in these resources by January 2010.
SUPPORT NEEDS
‐ Repository of info, tools, etc.
‐ Resource sharing
‐ Relationship development