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SC Home Visiting Summit
                                            September 2012
                                             Jane Witowski
Acknowledgment
The Act Early Ambassador project is a collaborative effort of the Centers for Disease Control and
Prevention (CDC), Health Resources and Services Administration (HRSA) and Association of
University Centers on Disabilities (AUCD) to advance CDC’s “Learn the Signs. Act Early.” program
to improve early identification of developmental disabilities. The project is funded by CDC and
HRSA.

www.cdc.gov/ActEarly
Who and What
Session Overview
• Review the importance of early
  identification of developmental
  delays and early action.

• Take a look at LTSAE campaign,
  messages and materials.

• Case study on the early warning
  signs of Autism.
Let’s Get Started
Brief History

 • 2000       Children’s Health Act
   established National Center on
   Birth Defects and Developmental
   Disabilities (NCBDDD) at the CDC

 •   2001      NCBDDD created
       Div of Birth Defects and DD
       Div of Human Dev & Disability
       Div of Blood Disorders
NCBCDD Mission
• Promote the health of
  babies, children and adults
  and enhance potential for
  full, productive living

•   1 in 33 babies – birth defects
    leading cause of infant death
•   500,000 children diagnosed with dev
    disabilities-usually after school entry
Brief History
 • 2002 Cooperative agreements
   with AUCD and MCH

 • 2005   LTSAE campaign begins

 • 2007-2010 Act Early Summits
                      regional
             meetings
           55 teams, 900 people
Brief History

 • 2008- present
   Act Early State Teams
     45 states

 • 2011- present
  Act Early Ambassador Program
   state liaison to CDC’s LTSAE
Act Early Initiative
 • State and national partners
   work to improve early
   childhood systems in each state
   by:
   1. enhancing collaborative
   efforts to improve screening
   and referral to early
   intervention services.
   2. developing tools and
   resources to help states analyze
   and measure their system.
Act Early Ambassadors
• Represent the Act Early
  initiative
• Promote LTSAE campaign,
  messages and strategies
• Develop network of state
  leaders to expand the LTSAE
  reach
• Support the Act Early team
• Promote ACT curriculum
Pop Quiz
True or False?
 • About 17% of all children will
   experience some kind of
   developmental delay?

 • Most children with a
   developmental delay are identified
   before entering school.

 • In the US, about 1 in 110 children
   has an Autism Spectrum Disorder.

 • Children usually grow out of a
   developmental delay.
Learn the Signs. Act Early
Campaign Mission
• To improve early identification
  of children with Autism and
  other developmental
  disabilities so children and
  families can get the services
  and support they need as soon
  as possible.
LTSAE Components
• Health education campaign

• Act Early initiative

• Research and evaluation
Research& Evaluation
• Improve campaign materials
  and implementation activities
  and increase our understanding
  of the factors that influence
  early identification and referral

        Currently Funded Research
 Helping Family Practitioners Improve Screening
 Early ID and service connection among low-
  income, low literacy urban parents
 Reaching families at risk for child maltreatment
 Benchmarks for Early Screening and Testing
 Building Community Capacity for LTSAE
SC Act Early Team
•   State level team of agency leaders led
    by David Rotholz, PhD, Director, CDR,
    USCSOM

•   Mission: improve quality of life for
    children, youth and adults with ASD
    and their families.

•   Action Plan: Roadmap to
    developmental services, training for
    master clinicians to enhance
    competencies among pediatricians.
Health Education
• Promote awareness of
  developmental milestones

• Importance of tracking each
  child’s development

• Importance of acting early if
  there are concerns
Campaign Tools
• Target audience: parents,
  health care providers, early
  educators
• Research-based, easily
  accessible, customizable and
  free
• Variety of languages
• www.cdc/actearly
• www.cdc/pronto
• 1-800-CDC-INFO
Baby Signs Video
Thoughts and Reactions
Other LTSAE Tools
• www.cdc.gov/actearly
Early Warning Signs of Autism
     An ACT Case Study
Take Home Messages

• Change perceptions

• Learn the signs

• Stock your toolbox

• It does take a village
Questions?

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Learn the Signs, Act Early

  • 1. SC Home Visiting Summit September 2012 Jane Witowski Acknowledgment The Act Early Ambassador project is a collaborative effort of the Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA) and Association of University Centers on Disabilities (AUCD) to advance CDC’s “Learn the Signs. Act Early.” program to improve early identification of developmental disabilities. The project is funded by CDC and HRSA. www.cdc.gov/ActEarly
  • 3. Session Overview • Review the importance of early identification of developmental delays and early action. • Take a look at LTSAE campaign, messages and materials. • Case study on the early warning signs of Autism.
  • 5. Brief History • 2000 Children’s Health Act established National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the CDC • 2001 NCBDDD created Div of Birth Defects and DD Div of Human Dev & Disability Div of Blood Disorders
  • 6. NCBCDD Mission • Promote the health of babies, children and adults and enhance potential for full, productive living • 1 in 33 babies – birth defects leading cause of infant death • 500,000 children diagnosed with dev disabilities-usually after school entry
  • 7. Brief History • 2002 Cooperative agreements with AUCD and MCH • 2005 LTSAE campaign begins • 2007-2010 Act Early Summits regional meetings 55 teams, 900 people
  • 8. Brief History • 2008- present Act Early State Teams 45 states • 2011- present Act Early Ambassador Program state liaison to CDC’s LTSAE
  • 9. Act Early Initiative • State and national partners work to improve early childhood systems in each state by: 1. enhancing collaborative efforts to improve screening and referral to early intervention services. 2. developing tools and resources to help states analyze and measure their system.
  • 10. Act Early Ambassadors • Represent the Act Early initiative • Promote LTSAE campaign, messages and strategies • Develop network of state leaders to expand the LTSAE reach • Support the Act Early team • Promote ACT curriculum
  • 12. True or False? • About 17% of all children will experience some kind of developmental delay? • Most children with a developmental delay are identified before entering school. • In the US, about 1 in 110 children has an Autism Spectrum Disorder. • Children usually grow out of a developmental delay.
  • 13. Learn the Signs. Act Early
  • 14. Campaign Mission • To improve early identification of children with Autism and other developmental disabilities so children and families can get the services and support they need as soon as possible.
  • 15. LTSAE Components • Health education campaign • Act Early initiative • Research and evaluation
  • 16. Research& Evaluation • Improve campaign materials and implementation activities and increase our understanding of the factors that influence early identification and referral Currently Funded Research  Helping Family Practitioners Improve Screening  Early ID and service connection among low- income, low literacy urban parents  Reaching families at risk for child maltreatment  Benchmarks for Early Screening and Testing  Building Community Capacity for LTSAE
  • 17. SC Act Early Team • State level team of agency leaders led by David Rotholz, PhD, Director, CDR, USCSOM • Mission: improve quality of life for children, youth and adults with ASD and their families. • Action Plan: Roadmap to developmental services, training for master clinicians to enhance competencies among pediatricians.
  • 18. Health Education • Promote awareness of developmental milestones • Importance of tracking each child’s development • Importance of acting early if there are concerns
  • 19. Campaign Tools • Target audience: parents, health care providers, early educators • Research-based, easily accessible, customizable and free • Variety of languages • www.cdc/actearly • www.cdc/pronto • 1-800-CDC-INFO
  • 22. Other LTSAE Tools • www.cdc.gov/actearly
  • 23. Early Warning Signs of Autism An ACT Case Study
  • 24. Take Home Messages • Change perceptions • Learn the signs • Stock your toolbox • It does take a village

Editor's Notes

  1. More than 5,500 infants die each year because of birth defects. CDC and partners working to change these figures. Much of the work of the NCBDDD focuses on protecting people who are especially vulnerable to health risks—including children. The early years of life—birth to 5– are critical to a child’s development.
  2. These partnerships helped to strengthen the national capacity to carry out public health activities. Regional summits build upon and initiated new relationship among key stakeholders in the field, provided forums to share important information and served as catalysts for the development of state teams. State leaders received technical assistance from AUCD, MCH and CDC to develop state action plans for improving early identification of Autism and other DD.
  3. 10 ambassadors 2011- 15 ambassadors this year South Carolina is well represented this year- Walt Jenner from MUSC who is education and outreach officer for the SC Ausitm and Developmental Disabilites Monitoring Program (ASSM) at MUSC selected to serve as ambassador to other states ADDM networks. These groups responsible for providing information to the CDC to assist with determining prevalence numbers.
  4. True- Sometimes you will see a range of 15-20%, but AAP uses 17%. False- Sad, but true. Despite improvements in routine developmental screening, only 30% of children are identified prior to school entry. Every year, more than a million children with unidentified disabilities enter school with learning and health issues that put them far behind their peers  and have a lasting, negative effect on their ability to meet their full potential. False-new prevalence data release earlier this year indicates that 1 in 88 children has ASD- in SC, it’s 1 in 90 with boys about 4 times more likely than girls to have the diagnosis…average age of diagnosis is between 4 and 4 ½ years. African American children are diagnoses with ASD at later ages and Hispanic children are less likely to diagnosed at all. False- developmental delays are not things that children grow out of- so it’s vital that we all learn the signs of delays and help to identify children as early as possible so intervention can begin and children can reach full potential.
  5. Research projects address information need of parents, health care providers, and early educators to improve early identification in populations with health disparities. Also research about how to reach special populations with campaign messages and how to improve systems that identify and serve children with developmental delays.
  6. AE team works to improve awareness on asd prevallence and the importance of screening and early referral Diagnostic and intervention efforts are implemented effectively in timely manner consistent with appropriate professional and evidence-based practice Information about services is easily available to families Services are provided by competent personnel at a high level of quality and Cross system collaboration is seamless and ongoing evaluation of effectiveness of services.
  7. Video is about 4 minutes long-English only Learn how to look for developmental milestones and what to do if you’re worried about your child’s development or think there’s a problem.
  8. anyone who works with young children is in a position to make valuable observations about a child’s development