Partnering with Educators to Develop Certification in Autism Education for Educators
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The document discusses Rhode Island's efforts to develop certification in autism education for educators through a partnership between various state organizations and higher education institutions. A certification program was created involving an evening series of courses on autism taught with reduced tuition by Rhode Island College and the Paul Sherlock Center. The program was targeted towards administrators, teachers, and other professionals with at least 3 years experience, and included practicum experiences observing children with autism.
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The Autism Treatment Network (ATN) and Autism Intervention Research - Physical Health Network (AIR-P) provide opportunities for collaboration between their 14 centers and MCHB LEND training programs. The ATN aims to improve autism care and research through clinical guidelines, research, and dissemination. The AIR-P conducts research on autism diagnosis, treatments and community outreach. Opportunities for collaboration include mining ATN registry data, connecting on shared research interests, participating in conferences, and sharing technical assistance. However, ATN/AIR-P cannot provide funding and collaborations must follow their publication policies.
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The document discusses the history and evolution of applied behavior analysis (ABA) as a treatment for individuals with autism spectrum disorder (ASD) and other developmental disabilities. It outlines key developments in ABA from the 1930s to the present day, including the establishment of the Behavior Analyst Certification Board in 1998. The document then considers whether board certified behavior analysts (BCBAs) may make good trainees in Leadership Education in Neurodevelopmental and Related Disabilities (LEND) training programs. It lists skills BCBAs could contribute as well as some areas they may not be as well-suited for, and concludes by discussing potential benefits of co-locating LEND programs with ABA programs and coursework.
Health Care Reform
This document summarizes key provisions of the proposed health care reform legislation that would impact individuals with disabilities. It discusses expanded coverage options through prohibiting lifetime limits, coverage of pre-existing conditions for children, an essential benefits package, and Medicaid expansion. It also outlines proposals to improve quality, workforce training, prevention programs, and long-term services and supports through initiatives like the Community Living Assistance Services and Supports Act and improvements to Medicaid home and community-based services.
Act Early Regional Summits
The document summarizes Act Early Regional Summits held from 2007-2010 to improve early identification of autism and other developmental disabilities. The summits brought together stakeholders to develop state plans, identify challenges, and propose high-priority activities like increasing public awareness and creating a technical assistance network. They informed future CDC activities and created synergy between agencies. The summits aimed to enhance coordination and services for early identification and intervention.
Regional Breakout- Region 6 & 7
The document outlines activities and potential areas of collaboration between disability programs in several regions. In Oklahoma, efforts include pediatrician training, county coordinator training, and replicating intensive intervention projects. The group discussed sharing resources on telehealth and training primary care providers to use developmental screeners. In New Mexico, funds have increased diagnostic and parent training programs. Missouri is working on insurance coverage and benefited from the regional summit. Arkansas has an active parent group and is formalizing linkages between programs. Nebraska faced resistance but their summit team continues efforts to improve care coordination.
Regional Breakout- Region 9 & 10
This document summarizes autism-related activities, accomplishments, collaborations, ideas, and action items for regions 9 and 10. Key points include:
1) Activities across the regions include conferences, webinars, advisory groups, workforce development, training, and research.
2) State accomplishments include providing technical assistance, creating state coalitions, and organizing professional development institutes.
3) Areas of collaboration include establishing autism commissions, expanding access to services, screening plans, and addressing issues like care provider turnover and cultural understanding of autism signs.
4) Ideas involve sharing resources, using technical support centers, translating autism materials, and establishing relationships.
Regional Breakout- Region 1
The document summarizes a regional breakout session meeting between professionals from programs that support individuals with autism and developmental disabilities. The group discussed current and potential collaborative activities. They decided to create 1) a shared online space to post resources like videos and training materials and a list of members' expertise, and 2) a survey for members to detail their areas of expertise. The goal is to increase information sharing and cross-program collaboration in the region.
Regional Breakout- Region 2 & 3
This document summarizes activities and plans discussed at a regional breakout meeting for Regions II and III. [1] Various representatives from universities and organizations discussed their current activities in areas like early detection, screening, diagnosis and treatment of autism. [2] Accomplishments since a previous summit were noted for New York/New Jersey. [3] Potential areas for future collaboration between the regions were discussed, such as conferences, increasing awareness and working on access and services issues. [4] Three action items were identified: 1) Region III will hold a summit on autism legislation in March; 2) Region II will meet in January to plan future activities focusing on media use; and 3) future planning will begin for
Regional Breakout- Region 5
The regional action plan for Region 5 lists activities and accomplishments of autism programs in Indiana, Minnesota, Illinois, Wisconsin, and Ohio. It identifies opportunities for collaboration between the programs, such as standardized summer institutes across states, resource mapping and sharing, and a regional summit. The plan selects developing a regional summit in 2010 or 2011 as a collaboration product. It outlines actions needed to organize the summit, including identifying major stakeholders, discussing intrastate and interstate issues, and developing a state plan. Target dates and support needs are identified for the summit and ongoing collaboration.
DBP & Research Breakout
This document summarizes a research and developmental disabilities breakout session that discussed challenges researchers face. The main challenges identified were: large amounts of data collection from thousands of children, collaboration across multiple networks, ambitious time frames, and difficulties with participant recruitment. Other challenges discussed included issues with infrastructure development, working with school districts and IRBs, and securing long-term funding. Potential solutions focused on facilitating collaboration, standardizing IRB processes, developing community partnerships, and exploring alternative models of participant recruitment and data collection.
LEND Breakout
The document summarizes discussions from a LEND breakout session focused on addressing challenges in implementing greater autism training at LEND centers. Key challenges discussed included lack of time in curriculums to add more autism content and difficulty tracking autism-related data and outcomes. Suggestions from various LEND programs centered on developing online training modules, tiered training approaches, and leveraging autism fellows to help disseminate expertise. Tracking autism referrals and outcomes remains an ongoing challenge due to limitations in billing practices and data collection across clinics.
Combating Autism Act InitiativeState Autism Implementation Grants
Combating Autism Act InitiativeState Autism Implementation GrantsAssociation of University Centers on Disabilities
The document summarizes state autism implementation grants awarded under the Combating Autism Act Initiative. It provides overviews of the original 6 grantees from 2008 (Illinois, Wisconsin, Alaska, Washington, Missouri, Utah) and the 3 new grantees from 2009 (Rhode Island, New Mexico, New York). For each set of grantees, it describes their collaborators and highlights their work to meet several national performance measures focused on improving services for children with autism spectrum disorder, including increasing family involvement, access to medical homes, insurance coverage, early screening and community-based services. It also notes some of the successes and challenges experienced by the grantees.Educating Pediatric Residents about Autism: A National Curriculum
Educating Pediatric Residents about Autism: A National CurriculumAssociation of University Centers on Disabilities
This document outlines the development of a national curriculum to educate pediatric residents about autism spectrum disorders. It was created through collaboration between multiple developmental behavioral pediatrics programs and the Centers for Disease Control. The curriculum contains 7 modules on topics like screening, diagnosis and treatment. It was developed by a team of faculty and trainees over several months in 2009. It will be piloted at select sites in early 2010 before being revised and distributed nationally to pediatric residency programs later that year.Opportunities for Systems Change
This document summarizes a presentation on opportunities for systems change related to autism. It discusses collaboration between organizations to address violence and facilitate autistic community involvement. It advocates using respectful language and concepts, and moving away from institutionalization toward person-centered planning. Intervention approaches should assess strengths and address difficulties in a positive way, respecting individuals' abilities. The needs and perspectives of various stakeholders, including autistic children and adults, parents, and autistic professionals, should be considered in developing support systems.
State Autism Insurance Reform Initiatives
Autism Speaks advocates for state laws requiring health insurance to cover autism treatments, as 15 states have passed such laws while others are considering bills. These laws aim to help families pay for applied behavior analysis and other evidence-based therapies by complementing services provided through schools. While costs to insurers are estimated to be low, autism treatments could help reduce the lifetime costs of care for individuals and billions in societal expenses.
Implications of Autism and Developmental Screening in the Office Setting
Implications of Autism and Developmental Screening in the Office SettingAssociation of University Centers on Disabilities
1) The document discusses developmental screening tools that can be used in pediatric offices and provides results from pilot programs implementing two such tools, the PEDS and M-CHAT, at different practices.
2) It finds that most parents complete developmental screening forms with little disruption to workflow, though multiple reminders are needed for staff. Screening can be quickly integrated into standard care.
3) Initial results found high screening rates of eligible patients around 73-93% across different practices, though the 9 month visit was least likely. Revenue from billing for screening was also collected.The Family Navigator ClinicUniversity of Southern California LEND Program
The Family Navigator ClinicUniversity of Southern California LEND ProgramAssociation of University Centers on Disabilities
The Family Navigator Clinic at USC aims to increase parents' ability to participate effectively in their child's IEP by coaching them in understanding evaluations, the IEP process, and advocating for their child's needs. The target population is families of children with autism transitioning to school or not meeting IEP goals. Trainees are taught to help parents analyze assessments, evaluate school supports, develop IEP goals, and monitor progress. This model is being adapted by the Southwest SELPA and discussions are underway for the USC UCEDD to provide it as a service through the Lanterman Regional Center.Act Early Regional Summits
The document summarizes Act Early Regional Summits held from 2007-2010 to improve early identification of autism and other developmental disabilities. The summits brought together stakeholders to develop state plans, identify challenges, and propose high-priority activities like increasing public awareness and creating a technical assistance network. They informed future CDC activities and created synergy between CDC and HRSA programs. The summits aimed to enhance coordination across early identification and intervention systems.
Federal Legislative Update CAAI Meeting 2009
The document summarizes recent federal legislative activity related to autism and disability services. It discusses funding amounts for autism research and services through the Combating Autism Act. It also provides updates on health care reform legislation and bills addressing issues like insurance coverage of autism treatment, long term services and supports, reducing restraint and seclusion in schools, and reauthorizing acts related to education, workforce development, and developmental disabilities.
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Combating Autism Act InitiativeState Autism Implementation Grants
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Educating Pediatric Residents about Autism: A National Curriculum
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