Quality of Life Technologies Lab University of Copenhagen University of Geneva In this presentation we describe challenges and opportunities of technology in the context of quantitatively evaluating behaviors, risks, and Quality of Life towards helping people live longer, healthier, and happier. Quality of Life (QoL) technologies lab vision is to be a leading academic laboratory recognized for inter-disciplinary education, research, design and development aimed at improving Quality of Life of individuals throughout their lives. The lab mission is to design, develop and evaluate emerging mobile technologies with the goal of assessing individuals’ life quality as it unfolds naturally over time and in context, and improving it at all stages of life. This presentation has been delivered at the Frederiksberg Toastmasters public speaking club in Copenhagen, Denmark. + See a version in Spanish here: https://www.slideshare.net/vlad.manea/calidad-de-vida-a-su-alcance-156831152 + See a version in Danish here: https://www.slideshare.net/vlad.manea/livskvalitet-lige-ved-hnden Reference our work in your scientific article: Katarzyna Wac, From Quantified Self to Quality of Life, Book Chapter in "Digital Health", Health Informatics, Springer Nature, p. 83-108, Dordrecht, The Netherlands, 2018. Help our research (and your better living) by enrolling in the Quality of Life Living Lab: https://www.qualityoflifetechnologies.com/living-lab/

1. Quality of Life Technologies Lab
University of Copenhagen & University of Geneva
qualityoflifetechnologies.org
Quality of Life at your fingertips
Vlad Manea
PhD fellow, University of Copenhagen
manea@di.ku.dk

2. Quality of Life Technologies Lab
2
qualityoflifetechnologies.org

3. Why do we die?

4. Mostly from diseases.

5. 5
Chronic diseases:
cardiovascular,
metabolic,
digestive,
pulmonary,
mental.
Gregory A Roth, Degu Abate, Kalkidan Hassen Abate, Solomon M Abay, Cristiana Abbafati, et al. (2018). Global, regional, and national age-sex-specific mortality for 282 causes of death in 195 countries and territories, 1980–2017: a systematic analysis for
the Global Burden of Disease Study 2017. The Lancet, 392, 1736-1788.
Which diseases?

6. What causes these diseases?
6Naghavi, M., Abajobir, A. A., Abbafati, C., Abbas, K. M., Abd-Allah, F., Abera, S. F., ... & Ahmadi, A. (2017). Global, regional, and national age-sex specific mortality for 264 causes of death, 1980–2016: a systematic analysis for the Global Burden of Disease
Study 2016. The Lancet, 390(10100), 1151-1210.
Mokdad, A. H., Marks, J. S., Stroup, D. F., & Gerberding, J. L. (2004). Actual causes of death in the United States, 2000. Jama, 291(10), 1238-1245.
Behavioural pattern Risk
Smoking habits 18.1%
Poor diet
Physical inactivity
16.6%
Alcohol consumption 3.5%
Sleep ...{

7. Behavioural markers
If you cannot measure it,
you cannot improve it.
7
William Thomson, 1st Baron Kelvin, 1824-1907

8. At the doctor’s office
Mayo, N. E., Figueiredo, S., Ahmed, S., & Bartlett, S. J. (2017). Montreal Accord on Patient-Reported Outcomes (PROs) use series–Paper 2: terminology proposed to measure what matters in health. Journal of clinical epidemiology, 89, 119-124.
Technology-reported
Self-reported
8

9. Self-reported
sleep
9
During the past month,
how often have you had trouble
sleeping because you wake up in
the middle of the night or early
morning?
Buysse, D. J., Reynolds III, C. F., Monk, T. H., Berman, S. R., & Kupfer, D. J. (1989). The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research. Psychiatry research, 28(2), 193-213.

10. 10
Radiography of a self-reported outcome

11. Challenges of self-reported outcomes
11
Infrequent
Qualitative
Subjective
Memory
Based
Socially
Acceptable
? ? ? ? ?
?
?
?
?
??
?
?
?
?
?
?

12. 12
But what about the
context of daily life?

13. 13
Dey, A. K., Wac, K., Ferreira, D., Tassini, K., Hong, J. H., & Ramos, J. (2011, September). Getting closer: an empirical investigation of the proximity of user to their smart phones. In Proceedings of the 13th international conference on Ubiquitous
computing (pp. 163-172). ACM.
Mobiles &
wearables
88%
of time in our
proximity

14. 14
Radiography of a new paradigm:
self-reported and technology-reported

15. Añadiendo contexto
15
Infrequent
Qualntitative
Suobjective
Memory
Sensor Based
Socially
Non
Judgemental
Acceptable
!
!
!
!
!
!
!
!
!
!!
!
!! Context Rich
Continuous
Longitudinal
! !! !! !
!

16. 16
How do we do our
research?

17. 17
De Masi, A., Berrocal, A., …, & Wac, K., (2018). Mixed-Methods Research Methodology Enabling Identification, Modelling and Predicting Human Aspects of Mobile Interaction "In the Wild". User Modelling and User-Adapted Interaction (under evaluation)
Research infrastructure

18. Spring Summer Fall Winter
18
Physical activity evaluation using wearables
Laghouila, S., Manea, V., Estrada, V., Wac, K. (2018). Digital Health Tools for Chronic Illness and Dementia Risk Assessment in Older Adults, 39th Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine (SBM 2018), USA, 2018
75 people of senior age from Denmark, Hungary, Netherlands, and Spain
The participants are enrolled since 2017 and provided data at least 6 months
Study details
Near future: multivariate regression quantifying relations between self- and tech-reported outcomes

19. Spring Summer Fall Winter
19
Sleep evaluation and disease risk assessment
using wearables
Laghouila, S., Manea, V., Estrada, V., Wac, K. (2018). Digital Health Tools for Chronic Illness and Dementia Risk Assessment in Older Adults, 39th Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine (SBM 2018), USA, 2018
75 people of senior age from Denmark, Hungary, Netherlands, and Spain
The participants are enrolled since 2017 and provided data at least 6 months
Study details
Near future: multivariate regression quantifying relations between self- and tech-reported outcomes

20. 20
But what about the
participant and their
Quality of Life?

21. 21
World Health Organization | www.who.int
Quality of Life domains: all

22. 22
World Health Organization | www.who.int
Quality of Life domains: quantifying

23. 23
Wac, K., Rivas, H., & Fiordelli, M. (2016). Use and misuse of mobile health information technologies for health self-management. Annals of Behavioral Medicine, 50 (Supplement 1).
Wac, K. et al., “I Try Harder”: The Design Implications for Mobile Apps and Wearables Contributing to Self-Efficacy of Patients with Chronic Conditions, Frontiers in Psychology, SI: Improving Wellbeing in Patients with Chronic Conditions (under revision)
What apps do you use for your Quality of Life?
What are the most important factors of your Quality of life?
I only want my life back
Participant No. 11
Human factors

24. 24
Let’s take a step back
to see the Big Picture

25. 25

26. “Change the health
of yesterday...
A state of complete
physical, mental and
social well-being and not
merely the absence of
disease or infirmity
26
World Health Organization | www.who.int
Constitution of the World Health Organization, 22 July 1946
Callahan, D. (1973). The World Health Organization definition of 'health'. Hastings Center Studies, 77-87.

27. “ … to the health of
today...
The ability to adapt and
self manage in the face
of social, physical, and
emotional challenges
27
Huber, M., Knottnerus, J. A., Green, L., van der Horst, H., Jadad, A. R., Kromhout, D., ... & Schnabel, P.
(2011). How should we define health?. Bmj, 343, d4163.
Change the health
of yesterday...
A state of complete
physical, mental and
social well-being and not
merely the absence of
disease or infirmity
World Health Organization | www.who.int
Constitution of the World Health Organization, 22 July 1946
Callahan, D. (1973). The World Health Organization definition of 'health'. Hastings Center Studies, 77-87.

28. 28
Wac, K., Fiordelli, M., Gustarini, M., & Rivas, H. (2015). Quality of life technologies: Experiences from the field and key challenges. IEEE Internet Computing, 19(4), 28-35.
Fries, J. F. (2002). Aging, natural death, and the compression of morbidity. Bulletin of the World Health Organization, 80, 245-250.
… and bending the curve for tomorrow!

29. Quality of Life Technologies Lab
University of Copenhagen & University of Geneva
qualityoflifetechnologies.org
Thank you for your attention
Vlad Manea
PhD fellow, University of Copenhagen
manea@di.ku.dk

30. 30
Quality of Life
living lab
Join our journey at
mqol.unige.ch