Patient empowerment at EU level - Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG Sanco for the 8th European Patients' Rights Day in Brussels, May 12th 2014
The ESMO-ECPC Cancer Survivorship Guide and Cancer Survivorship Plan is a unique care and cancer advocacy tool.
Cancer patient advocates can include it in their work.
community health center are based on health care where Healthcare for Communities are designed to offer information on how the healthcare system is functioning in order to take care of their own health.
Workshop 6 - Brainstorming
& Policy Development session:
Training, information and education of MDs
"Case study: Italian Training for MDs,"
Renza Galluppi, UNIAMO, Italy
Workshop 6 - Brainstorming & Policy Development session: Training, information and education of MDs
"Feedback from the 15 National Conferences"
Christel Nourissier, EURORDIS
Workshop 6 - Brainstorming & Policy Development session: Training, information and education of MDs
"Training package on RD for medical students"
Bernd Quadder, Deutsche Sarcoidose Vereinigung,
Germany
The ESMO-ECPC Cancer Survivorship Guide and Cancer Survivorship Plan is a unique care and cancer advocacy tool.
Cancer patient advocates can include it in their work.
community health center are based on health care where Healthcare for Communities are designed to offer information on how the healthcare system is functioning in order to take care of their own health.
Workshop 6 - Brainstorming
& Policy Development session:
Training, information and education of MDs
"Case study: Italian Training for MDs,"
Renza Galluppi, UNIAMO, Italy
Workshop 6 - Brainstorming & Policy Development session: Training, information and education of MDs
"Feedback from the 15 National Conferences"
Christel Nourissier, EURORDIS
Workshop 6 - Brainstorming & Policy Development session: Training, information and education of MDs
"Training package on RD for medical students"
Bernd Quadder, Deutsche Sarcoidose Vereinigung,
Germany
Workshop 5 - Brainstorming & Policy Development session: Social Aspects
"Presentation of Social Challenges of RD patients
in the Joint Action on Rare Diseases"
Dorica Dan, Romanian National Alliance
Workshop 7 - Brainstorming & Policy Development session: Prevention
"Presentation of the International Federation for Spina
Bifida and Hydrocephalus’ primary prevention study"
Pierre Mertens, International Federation for Spina Bifida and Hydrocephalus (IF)
Workshop 5 - Brainstorming & Policy Development session: Social Aspects
"Presentation of Social Challenges of RD patients
in the Joint Action on Rare Diseases"
Dorica Dan, Romanian National Alliance
Workshop 7 - Brainstorming & Policy Development session: Prevention
"Presentation of the International Federation for Spina
Bifida and Hydrocephalus’ primary prevention study"
Pierre Mertens, International Federation for Spina Bifida and Hydrocephalus (IF)
The manifesto for the empowerment to "Produce a joint declaration on the empo...Cittadinanzattiva onlus
The manifesto fpr the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014
From disease-centered to patient-centered communication in breast cancerKathi Apostolidis
Breast cancer patient perspectives and experiences in patient-doctor communication
Are physicians educated and skilled to communicate difficult diagnoses to cancer patients?
What is patient centered communication?
How doctors think
Is there patient involvement in HTA? Can patients influence HTA decision making?Kathi Apostolidis
Is HTA purely technical?
drivers for patient involvement in HTA
patient participation or tokenism
medicines do not reach patients due to delays in HTA evaluation
need for harmonized HTA
How Effective is the Public in Influencing HTA Decisions?Kathi Apostolidis
Patients should be involved in HTA process to assure a robust process that embraces patients' needs, preferences, perspectives. ECPC-European Cancer Patient Coalition leverages on European Institutions for a solution to the timely authorization and reimbursement of innovative cancer medicines
Presentation delivered by Dr Zsuzsanna Jakab, WHO Regional Director for Europe, at the 7th Meeting of the European Advisory Committee on Health Research (Copenhagen, Denmark, 6 April 2016)
Similar to Patient empowerment at EU level - Katja Neubauer (20)
Regione che vai, cura che trovi (forse). I principali risultati del XVII Rapporto sulle politiche della cronicità realizzato dal Coordinamento nazionale delle Associazioni dei Malati Cronici di Cittadinanzattiva
I principali dati del Rapporto annuale sulle politiche della cronicità realizzato da Coordinamento nazionale delle Associazioni dei Malati Cronici di Cittadinanzattiva. Presentazione dei principali dati a cura di Maria Teresa Bressi
La presentazione di Tonino Aceti, coordinatore nazionale del Tribunale per i diritti del malato di Cittadinanzattiva e direttore del Coordinamento nazionale delle Associazioni dei Malati Cronici delle principali proposte contenute nella Relazione 2018.
Sannié, member of the patients' consultative group of the French National Agency for Medicines and Health Product Safety, France, for European Patients' Rights Day 2017
Gottfried Endel, Main Association of Austrian Social Insurance Institutions, ...Cittadinanzattiva onlus
Gottfried Endel, Main Association of Austrian Social Insurance Institutions, Austria for 2017 European Patients' Rights Day in Brussels, "The payers' perspective on access to innovation"
Monitoring Health for the SDGs - Global Health Statistics 2024 - WHOChristina Parmionova
The 2024 World Health Statistics edition reviews more than 50 health-related indicators from the Sustainable Development Goals and WHO’s Thirteenth General Programme of Work. It also highlights the findings from the Global health estimates 2021, notably the impact of the COVID-19 pandemic on life expectancy and healthy life expectancy.
Working with data is a challenge for many organizations. Nonprofits in particular may need to collect and analyze sensitive, incomplete, and/or biased historical data about people. In this talk, Dr. Cori Faklaris of UNC Charlotte provides an overview of current AI capabilities and weaknesses to consider when integrating current AI technologies into the data workflow. The talk is organized around three takeaways: (1) For better or sometimes worse, AI provides you with “infinite interns.” (2) Give people permission & guardrails to learn what works with these “interns” and what doesn’t. (3) Create a roadmap for adding in more AI to assist nonprofit work, along with strategies for bias mitigation.
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
About Potato, The scientific name of the plant is Solanum tuberosum (L).Christina Parmionova
The potato is a starchy root vegetable native to the Americas that is consumed as a staple food in many parts of the world. Potatoes are tubers of the plant Solanum tuberosum, a perennial in the nightshade family Solanaceae. Wild potato species can be found from the southern United States to southern Chile
Synopsis (short abstract) In December 2023, the UN General Assembly proclaimed 30 May as the International Day of Potato.
Donate to charity during this holiday seasonSERUDS INDIA
For people who have money and are philanthropic, there are infinite opportunities to gift a needy person or child a Merry Christmas. Even if you are living on a shoestring budget, you will be surprised at how much you can do.
Donate Us
https://serudsindia.org/how-to-donate-to-charity-during-this-holiday-season/
#charityforchildren, #donateforchildren, #donateclothesforchildren, #donatebooksforchildren, #donatetoysforchildren, #sponsorforchildren, #sponsorclothesforchildren, #sponsorbooksforchildren, #sponsortoysforchildren, #seruds, #kurnool
Combined Illegal, Unregulated and Unreported (IUU) Vessel List.Christina Parmionova
The best available, up-to-date information on all fishing and related vessels that appear on the illegal, unregulated, and unreported (IUU) fishing vessel lists published by Regional Fisheries Management Organisations (RFMOs) and related organisations. The aim of the site is to improve the effectiveness of the original IUU lists as a tool for a wide variety of stakeholders to better understand and combat illegal fishing and broader fisheries crime.
To date, the following regional organisations maintain or share lists of vessels that have been found to carry out or support IUU fishing within their own or adjacent convention areas and/or species of competence:
Commission for the Conservation of Antarctic Marine Living Resources (CCAMLR)
Commission for the Conservation of Southern Bluefin Tuna (CCSBT)
General Fisheries Commission for the Mediterranean (GFCM)
Inter-American Tropical Tuna Commission (IATTC)
International Commission for the Conservation of Atlantic Tunas (ICCAT)
Indian Ocean Tuna Commission (IOTC)
Northwest Atlantic Fisheries Organisation (NAFO)
North East Atlantic Fisheries Commission (NEAFC)
North Pacific Fisheries Commission (NPFC)
South East Atlantic Fisheries Organisation (SEAFO)
South Pacific Regional Fisheries Management Organisation (SPRFMO)
Southern Indian Ocean Fisheries Agreement (SIOFA)
Western and Central Pacific Fisheries Commission (WCPFC)
The Combined IUU Fishing Vessel List merges all these sources into one list that provides a single reference point to identify whether a vessel is currently IUU listed. Vessels that have been IUU listed in the past and subsequently delisted (for example because of a change in ownership, or because the vessel is no longer in service) are also retained on the site, so that the site contains a full historic record of IUU listed fishing vessels.
Unlike the IUU lists published on individual RFMO websites, which may update vessel details infrequently or not at all, the Combined IUU Fishing Vessel List is kept up to date with the best available information regarding changes to vessel identity, flag state, ownership, location, and operations.
RFP for Reno's Community Assistance CenterThis Is Reno
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1. Katja Neubauer
Deputy Head of Unit Health Systems
DG Health and Consumers
European Commission
Patient empowerment at EU level
2. Patient empowerment at EU level
• Patients’ Rights Directive
• Chronic Disease Reflection Process
• Reflection Process on the Sustainability of
Healthcare Systems
3. Patients' Rights Directive
Patients have the right to receive the healthcare in
another MS than at home and get reimbursed
Get a copy of their medical record,
Receive information concerning quality and safety and
complaint procedures
4. Chronic Disease reflection Process
Council Conclusions "Innovative approaches for
Chronic Diseases" in 2010
Informal Council of Health ministers in 2012
'patient empowerment should be a cornerstone of
the EU approach to chronic diseases'
No clear definition of Patient Empowerment: MS
called for a mapping
5. Chronic Disease reflection Process cont.
• Concluding conference 3-4 April:
enable people to take responsibility of their own
health,
help and support patients in managing their own
disease and
promote the participation of patients and patient
organisations in health policy development.
6. Chronic Disease reflection Process cont.
• Concluding conference 3-4 April:
enable people to take responsibility of their own
health,
help and support patients in managing their own
disease and
promote the participation of patients and patient
organisations in health policy development.