The manifesto for the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014
The manifesto fpr the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014
Is there patient involvement in HTA? Can patients influence HTA decision making?Kathi Apostolidis
Is HTA purely technical?
drivers for patient involvement in HTA
patient participation or tokenism
medicines do not reach patients due to delays in HTA evaluation
need for harmonized HTA
This document summarizes opportunities for patient and caregiver involvement in technology appraisals conducted by the National Institute for Health and Clinical Excellence (NICE) in the UK. It outlines when patients can provide input throughout the appraisal process, including topic suggestion, scoping, evidence submission and review, and committee meetings. Patient groups and individuals can comment on draft documents and attend meetings. The document also reviews what information patients provide, such as personal impacts, outcomes, and experiences using technologies. Finally, it discusses challenges of patient involvement and feedback from surveys and interviews, with some patients feeling their views are not weighted equally and processes can be intimidating.
Good practices in patient involvement in HTAEUPATI
Patients and caregivers have unique knowledge and perspectives about living with an illness that can help inform health technology assessments (HTA). Their involvement is recommended at every stage of the HTA process, from topic selection to disseminating results. However, challenges exist in ensuring patient views are representative and not biased. Different countries in Europe are implementing patient involvement in HTA to varying degrees, with some holding training programs and allowing patient groups to initiate research or contribute to appraisals. Ongoing efforts are needed to strengthen patient involvement through resources, training, and embedding it in all new HTA processes.
The Patient Empowerment Project (PEP) aims to empower cancer patients to advocate for improvements in cancer control through focused training and hosting of Cancer Patient Forums. The goals are to prepare organizations to plan forums, support a national call to action on cancer, and contribute to national cancer burden efforts. Forums bring visibility to cancer issues and have led to policy changes in countries like France, Italy, Turkey, and South Africa. Patient voices are a powerful tool for advocating improvements through sharing stories and affecting long-term systemic change.
Activist groups are calling for increased efforts to ensure sustainable and quality HIV/AIDS treatment in Central and South East Europe. They note that HIV infections are rising in the region while access to treatment faces challenges, including limited treatment options, treatment interruptions, inadequate funding, and lack of access to healthcare for some groups. To address these issues, they call on governments to increase funding for HIV treatment, optimize costs through regional procurement and promoting competition, and negotiate affordable drug prices. They also call on pharmaceutical companies to promptly register and reasonably price drugs in the region and support education and early detection efforts.
This chapter discusses the various types of healthcare providers in the United States, including physicians, nurses, and other roles. It outlines the history and education/licensing requirements for physicians and how they typically practice medicine. It also describes the different levels of nurses, from registered nurses to advanced practice nurses. The chapter addresses current and projected nursing shortages in the US healthcare system. It provides an overview of the complex mix of health personnel and some gaps and issues around distribution of providers across geographic areas.
The document summarizes chapters 1-3 of an introduction to the healthcare industry textbook. It provides an overview of healthcare systems, including their components, organization in the US, and management. Key points covered include the uniqueness of the US system compared to other countries, types of healthcare services and facilities, the healthcare workforce, suppliers of therapeutics, training and research institutions, and financing mechanisms. Population characteristics and criteria for assessing healthcare performance are also summarized.
Is there patient involvement in HTA? Can patients influence HTA decision making?Kathi Apostolidis
Is HTA purely technical?
drivers for patient involvement in HTA
patient participation or tokenism
medicines do not reach patients due to delays in HTA evaluation
need for harmonized HTA
This document summarizes opportunities for patient and caregiver involvement in technology appraisals conducted by the National Institute for Health and Clinical Excellence (NICE) in the UK. It outlines when patients can provide input throughout the appraisal process, including topic suggestion, scoping, evidence submission and review, and committee meetings. Patient groups and individuals can comment on draft documents and attend meetings. The document also reviews what information patients provide, such as personal impacts, outcomes, and experiences using technologies. Finally, it discusses challenges of patient involvement and feedback from surveys and interviews, with some patients feeling their views are not weighted equally and processes can be intimidating.
Good practices in patient involvement in HTAEUPATI
Patients and caregivers have unique knowledge and perspectives about living with an illness that can help inform health technology assessments (HTA). Their involvement is recommended at every stage of the HTA process, from topic selection to disseminating results. However, challenges exist in ensuring patient views are representative and not biased. Different countries in Europe are implementing patient involvement in HTA to varying degrees, with some holding training programs and allowing patient groups to initiate research or contribute to appraisals. Ongoing efforts are needed to strengthen patient involvement through resources, training, and embedding it in all new HTA processes.
The Patient Empowerment Project (PEP) aims to empower cancer patients to advocate for improvements in cancer control through focused training and hosting of Cancer Patient Forums. The goals are to prepare organizations to plan forums, support a national call to action on cancer, and contribute to national cancer burden efforts. Forums bring visibility to cancer issues and have led to policy changes in countries like France, Italy, Turkey, and South Africa. Patient voices are a powerful tool for advocating improvements through sharing stories and affecting long-term systemic change.
Activist groups are calling for increased efforts to ensure sustainable and quality HIV/AIDS treatment in Central and South East Europe. They note that HIV infections are rising in the region while access to treatment faces challenges, including limited treatment options, treatment interruptions, inadequate funding, and lack of access to healthcare for some groups. To address these issues, they call on governments to increase funding for HIV treatment, optimize costs through regional procurement and promoting competition, and negotiate affordable drug prices. They also call on pharmaceutical companies to promptly register and reasonably price drugs in the region and support education and early detection efforts.
This chapter discusses the various types of healthcare providers in the United States, including physicians, nurses, and other roles. It outlines the history and education/licensing requirements for physicians and how they typically practice medicine. It also describes the different levels of nurses, from registered nurses to advanced practice nurses. The chapter addresses current and projected nursing shortages in the US healthcare system. It provides an overview of the complex mix of health personnel and some gaps and issues around distribution of providers across geographic areas.
The document summarizes chapters 1-3 of an introduction to the healthcare industry textbook. It provides an overview of healthcare systems, including their components, organization in the US, and management. Key points covered include the uniqueness of the US system compared to other countries, types of healthcare services and facilities, the healthcare workforce, suppliers of therapeutics, training and research institutions, and financing mechanisms. Population characteristics and criteria for assessing healthcare performance are also summarized.
The US healthcare system has long faced problems of high costs, lack of access, and inefficient use of resources. Several past committees and reports have identified these issues. The document discusses various proposed solutions to reform the system, including national health insurance, a single-payer system, and the Clinton health plan. It also notes issues like the misallocation of expensive medical technologies and the need for a more rational, regulated system.
The document discusses key aspects of evaluating healthcare system performance based on three criteria: quality, equity, and efficiency. Quality is assessed by examining structure, process, and outcomes at both the clinical and population levels. Equity looks at fair access and treatment across groups. Efficiency aims to deliver services at minimum cost. Data and health information technology are critical to comprehensively measure performance over time on a national scale.
The document summarizes the progress of the NHS in England between 1997 and 2010 based on criteria for a high-performing health system. Key successes included reducing waiting times, establishing clinical standards, and improved health outcomes for major diseases. However, challenges remained around access to services, health inequalities, patient experience in mental health, and demonstrating value for money. Moving forward, ensuring consistent quality and addressing long-term conditions would be priorities in light of tighter budgets.
Digital technologies and data have the potential to transform health and care across the European Union by:
1) Allowing citizens secure access to their health data and enabling health providers to exchange information across borders.
2) Pooling health data for research and personalized medicine to allow targeted and faster diagnosis and treatment.
3) Empowering citizens through digital tools to better monitor and manage their health while also facilitating interaction with doctors and care providers.
The document summarizes recent and ongoing policy trends and initiatives related to the opioid epidemic, including expansion of medication-assisted treatment (MAT), increased access to naloxone, implementation of prescription drug monitoring programs (PDMPs), and efforts to improve prescriber education and impose quantity limits on opioid prescriptions. Key pieces of legislation discussed are the Comprehensive Addiction and Recovery Act (CARA) and the Mental Health Parity and Addiction Equity Act. The document also outlines state policies on naloxone access laws, good Samaritan laws, and prescription limits.
Universal access to HIV/AIDS prevention, treatment, care and support means ensuring widespread awareness and access to services. Key barriers to scaling up treatment in India include stigma, lack of women and child-friendly services, discrimination by healthcare providers, inadequate infrastructure and supplies. Actions needed are expanding care services, increasing public-private partnerships, improving infrastructure, and developing partnerships between different organizations. Key targets by 2010 should be 80% access to relevant services within a month, 0% increase in high prevalence areas, 100% ICDS center counselling coverage, and 95% access to treatment education and drugs costs reduced to 10% of production cost.
This chapter discusses financing of the US healthcare system. It notes that healthcare spending has increased annually since 1960 and now accounts for nearly 18% of GDP. Funding comes from various sources including private insurance (34%), out-of-pocket payments (13%), and government programs like Medicare and Medicaid (49%). Medicare provides coverage for those over 65 and some disabled individuals, while Medicaid covers some poor populations. The money spent goes primarily towards personal healthcare services like hospital and physician care. Payment methods include fee-for-service, capitation, and value-based models. Despite high spending, over 50 million Americans still lack health insurance coverage.
Speaking at the 2015 CCIH Annual Conference, Regan Deming, MPH, Monitoring and Evaluation Technical Officer for the General Board of Global Ministries of the United Methodist Church examines how UMC's Imagine NO Malaria program increased access to malaria interventions in Zimbabwe by working with the Ministry of Health to engage community volunteers.
This document discusses the impact of telemedicine on rural health through a literature review. It finds that telemedicine can reduce barriers to healthcare access in rural areas by allowing patients to receive immediate treatment through telecommunication technologies without transportation. Common telemedicine techniques described are store-and-forward transmission of patient data, remote patient monitoring, and interactive videoconferencing between patients and clinicians. The literature review identifies increased access to care, reduced transportation issues, and ability to provide follow up appointments and specialty services closer to home as advantages, while reimbursement, coordination, bandwidth, and physician availability are listed as potential barriers. Several current telemedicine programs and networks in Alabama are highlighted.
Sabrina Nardi - Chronic Diseases' Associations Network-Cittadinanzattiva in I...Cittadinanzattiva onlus
CnAMC is a network of 99 Italian patient associations and federations representing those suffering from chronic and rare diseases. It aims to promote common public health policies, supply civic information through an annual report, give voice to chronic patients, improve information sharing, foster communication, promote training, and support civic participation. Through coordinating its member organizations and engaging in various advocacy activities, CnAMC has achieved several policy changes and improvements for chronic patients in Italy.
Ariane Weinman presents at ESMO 2021 on how the integration of a specific section on rare cancers into NCCPs can support patients' from diagnosis to treatment
This document discusses managed care and group medical practices. It describes how group practices can provide benefits to both physicians and patients by sharing resources and responsibilities. However, it also notes potential disadvantages like less choice for patients. The document also examines the development of health maintenance organizations (HMOs) and how they aim to contain costs while providing comprehensive care. However, HMOs have been criticized for potentially limiting access and quality of care in some cases. The appropriate level of control managers should have over clinical decisions compared to physician autonomy is also debated.
The document discusses strategies to reduce the burden of liver disease in the Philippines through hepatitis vaccination and prevention of liver cancer. It outlines the Hepatology Society of the Philippines' strategic focus on research, education, advocacy, and policy formulation to address hepatitis. The summary focuses on key areas of the WHO global hepatitis framework that the HSP plan aligns with and policy levers to support change through advocacy, education, and evidence-based policy development.
The document discusses the role of government in the U.S. healthcare system across federal, state, and local levels. It notes that while the U.S. government is less involved than other countries, it still plays roles in regulating healthcare through over 130,000 pages of rules, financing care for groups like the poor and elderly through programs like Medicare and Medicaid, and providing some direct services. It also describes the activities of different government agencies and levels, and concludes that the lack of a national health plan has necessitated government involvement in both direct care and regulation.
Presentation by Charles Allotey, of Health Access Network and CSO representative, MeTA Ghana on Civil Society Organizations and MeTA, during the MeTA Ghana, CSO and media orientation workshop on 16 April 2009.
UCHAPS PrEP Experiences from Jurisdictional Presentations, December 2013Office of HIV Planning
Jen Chapman, Co-Chair of the Philadelphia HIV Prevention Planning Group (HPG) presented on experiences with PrEP from different jurisdictions across the country at the March 2015 HPG meeting.
The Breast Cancer Update began in 1996 as an educational program organized by the Delaware Breast Cancer Coalition to provide healthcare professionals and the public with information on the latest topics in breast cancer diagnosis and treatment. It started as a panel discussion with regional experts and grew to include keynote speakers on a wide range of topics. Over the years, the Update has expanded from hosting 100 participants to 400, requiring larger venues. While initially planned by an education committee, today the Update Committee explores current issues and themes. Nationally recognized speakers have helped make the Update impactful for raising awareness of the Coalition's services and shaping its programs.
Seeking value: Experience from the UK's National Institute for Health and Car...OECD Governance
This presentation was made by Tommy Wilkinson, United-Kingdom, at the 4th meeting of the Joint DELSA/GOV-SBO Network on Fiscal Sustainability of Health Systems, held in Paris on 16-17 February 2015.
Sentinel Vital Registration & Verbal Autopsy Help Put Malaria on the Map in T...MEASURE Evaluation
The document summarizes a project in Tanzania that used vital registration and verbal autopsy methods to collect cause-specific mortality data from 1993 to 2004. This information helped put malaria on the map by informing national and local health policies and programs. It led to changes like updating the first-line malaria treatment and increasing district budgets for malaria control. The project fostered collaboration between different stakeholders and strengthened local data collection and use of mortality data for decision-making.
Public and patient engagement in the planning process 0609suelb
The document discusses public and patient engagement in health services planning and improvement. It defines public and patient engagement as the active participation of citizens, users, and carers in developing, commissioning, planning, designing, delivering and improving health services. The document also discusses the legal duty of NHS organizations to involve and consult users in planning, developing proposals for changes to services, and decisions affecting service operations. Examples are provided of engagement initiatives undertaken by NHS Milton Keynes, including involving patients in diabetes care redesign, using complaints to improve services, and using marketing to engage different populations.
Patient empowerment at EU level - Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG Sanco for the 8th European Patients' Rights Day in Brussels, May 12th 2014
The US healthcare system has long faced problems of high costs, lack of access, and inefficient use of resources. Several past committees and reports have identified these issues. The document discusses various proposed solutions to reform the system, including national health insurance, a single-payer system, and the Clinton health plan. It also notes issues like the misallocation of expensive medical technologies and the need for a more rational, regulated system.
The document discusses key aspects of evaluating healthcare system performance based on three criteria: quality, equity, and efficiency. Quality is assessed by examining structure, process, and outcomes at both the clinical and population levels. Equity looks at fair access and treatment across groups. Efficiency aims to deliver services at minimum cost. Data and health information technology are critical to comprehensively measure performance over time on a national scale.
The document summarizes the progress of the NHS in England between 1997 and 2010 based on criteria for a high-performing health system. Key successes included reducing waiting times, establishing clinical standards, and improved health outcomes for major diseases. However, challenges remained around access to services, health inequalities, patient experience in mental health, and demonstrating value for money. Moving forward, ensuring consistent quality and addressing long-term conditions would be priorities in light of tighter budgets.
Digital technologies and data have the potential to transform health and care across the European Union by:
1) Allowing citizens secure access to their health data and enabling health providers to exchange information across borders.
2) Pooling health data for research and personalized medicine to allow targeted and faster diagnosis and treatment.
3) Empowering citizens through digital tools to better monitor and manage their health while also facilitating interaction with doctors and care providers.
The document summarizes recent and ongoing policy trends and initiatives related to the opioid epidemic, including expansion of medication-assisted treatment (MAT), increased access to naloxone, implementation of prescription drug monitoring programs (PDMPs), and efforts to improve prescriber education and impose quantity limits on opioid prescriptions. Key pieces of legislation discussed are the Comprehensive Addiction and Recovery Act (CARA) and the Mental Health Parity and Addiction Equity Act. The document also outlines state policies on naloxone access laws, good Samaritan laws, and prescription limits.
Universal access to HIV/AIDS prevention, treatment, care and support means ensuring widespread awareness and access to services. Key barriers to scaling up treatment in India include stigma, lack of women and child-friendly services, discrimination by healthcare providers, inadequate infrastructure and supplies. Actions needed are expanding care services, increasing public-private partnerships, improving infrastructure, and developing partnerships between different organizations. Key targets by 2010 should be 80% access to relevant services within a month, 0% increase in high prevalence areas, 100% ICDS center counselling coverage, and 95% access to treatment education and drugs costs reduced to 10% of production cost.
This chapter discusses financing of the US healthcare system. It notes that healthcare spending has increased annually since 1960 and now accounts for nearly 18% of GDP. Funding comes from various sources including private insurance (34%), out-of-pocket payments (13%), and government programs like Medicare and Medicaid (49%). Medicare provides coverage for those over 65 and some disabled individuals, while Medicaid covers some poor populations. The money spent goes primarily towards personal healthcare services like hospital and physician care. Payment methods include fee-for-service, capitation, and value-based models. Despite high spending, over 50 million Americans still lack health insurance coverage.
Speaking at the 2015 CCIH Annual Conference, Regan Deming, MPH, Monitoring and Evaluation Technical Officer for the General Board of Global Ministries of the United Methodist Church examines how UMC's Imagine NO Malaria program increased access to malaria interventions in Zimbabwe by working with the Ministry of Health to engage community volunteers.
This document discusses the impact of telemedicine on rural health through a literature review. It finds that telemedicine can reduce barriers to healthcare access in rural areas by allowing patients to receive immediate treatment through telecommunication technologies without transportation. Common telemedicine techniques described are store-and-forward transmission of patient data, remote patient monitoring, and interactive videoconferencing between patients and clinicians. The literature review identifies increased access to care, reduced transportation issues, and ability to provide follow up appointments and specialty services closer to home as advantages, while reimbursement, coordination, bandwidth, and physician availability are listed as potential barriers. Several current telemedicine programs and networks in Alabama are highlighted.
Sabrina Nardi - Chronic Diseases' Associations Network-Cittadinanzattiva in I...Cittadinanzattiva onlus
CnAMC is a network of 99 Italian patient associations and federations representing those suffering from chronic and rare diseases. It aims to promote common public health policies, supply civic information through an annual report, give voice to chronic patients, improve information sharing, foster communication, promote training, and support civic participation. Through coordinating its member organizations and engaging in various advocacy activities, CnAMC has achieved several policy changes and improvements for chronic patients in Italy.
Ariane Weinman presents at ESMO 2021 on how the integration of a specific section on rare cancers into NCCPs can support patients' from diagnosis to treatment
This document discusses managed care and group medical practices. It describes how group practices can provide benefits to both physicians and patients by sharing resources and responsibilities. However, it also notes potential disadvantages like less choice for patients. The document also examines the development of health maintenance organizations (HMOs) and how they aim to contain costs while providing comprehensive care. However, HMOs have been criticized for potentially limiting access and quality of care in some cases. The appropriate level of control managers should have over clinical decisions compared to physician autonomy is also debated.
The document discusses strategies to reduce the burden of liver disease in the Philippines through hepatitis vaccination and prevention of liver cancer. It outlines the Hepatology Society of the Philippines' strategic focus on research, education, advocacy, and policy formulation to address hepatitis. The summary focuses on key areas of the WHO global hepatitis framework that the HSP plan aligns with and policy levers to support change through advocacy, education, and evidence-based policy development.
The document discusses the role of government in the U.S. healthcare system across federal, state, and local levels. It notes that while the U.S. government is less involved than other countries, it still plays roles in regulating healthcare through over 130,000 pages of rules, financing care for groups like the poor and elderly through programs like Medicare and Medicaid, and providing some direct services. It also describes the activities of different government agencies and levels, and concludes that the lack of a national health plan has necessitated government involvement in both direct care and regulation.
Presentation by Charles Allotey, of Health Access Network and CSO representative, MeTA Ghana on Civil Society Organizations and MeTA, during the MeTA Ghana, CSO and media orientation workshop on 16 April 2009.
UCHAPS PrEP Experiences from Jurisdictional Presentations, December 2013Office of HIV Planning
Jen Chapman, Co-Chair of the Philadelphia HIV Prevention Planning Group (HPG) presented on experiences with PrEP from different jurisdictions across the country at the March 2015 HPG meeting.
The Breast Cancer Update began in 1996 as an educational program organized by the Delaware Breast Cancer Coalition to provide healthcare professionals and the public with information on the latest topics in breast cancer diagnosis and treatment. It started as a panel discussion with regional experts and grew to include keynote speakers on a wide range of topics. Over the years, the Update has expanded from hosting 100 participants to 400, requiring larger venues. While initially planned by an education committee, today the Update Committee explores current issues and themes. Nationally recognized speakers have helped make the Update impactful for raising awareness of the Coalition's services and shaping its programs.
Seeking value: Experience from the UK's National Institute for Health and Car...OECD Governance
This presentation was made by Tommy Wilkinson, United-Kingdom, at the 4th meeting of the Joint DELSA/GOV-SBO Network on Fiscal Sustainability of Health Systems, held in Paris on 16-17 February 2015.
Sentinel Vital Registration & Verbal Autopsy Help Put Malaria on the Map in T...MEASURE Evaluation
The document summarizes a project in Tanzania that used vital registration and verbal autopsy methods to collect cause-specific mortality data from 1993 to 2004. This information helped put malaria on the map by informing national and local health policies and programs. It led to changes like updating the first-line malaria treatment and increasing district budgets for malaria control. The project fostered collaboration between different stakeholders and strengthened local data collection and use of mortality data for decision-making.
Public and patient engagement in the planning process 0609suelb
The document discusses public and patient engagement in health services planning and improvement. It defines public and patient engagement as the active participation of citizens, users, and carers in developing, commissioning, planning, designing, delivering and improving health services. The document also discusses the legal duty of NHS organizations to involve and consult users in planning, developing proposals for changes to services, and decisions affecting service operations. Examples are provided of engagement initiatives undertaken by NHS Milton Keynes, including involving patients in diabetes care redesign, using complaints to improve services, and using marketing to engage different populations.
Public and patient engagement in the planning process 0609
Similar to The manifesto for the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014
Patient empowerment at EU level - Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG Sanco for the 8th European Patients' Rights Day in Brussels, May 12th 2014
Presentation by Jo Ward, North West Social Prescribing Network Co-Chair: Social Prescribing Network and creative health agenda at the Health, wellbeing and the environment event on Monday 28 January 2019 at The Isla Gladstone Conservatory, Liverpool
The document discusses challenges around access to medical devices from patients' perspectives across Europe. It notes a lack of transparency in pricing and reimbursement processes and criteria for medical devices. In Hungary specifically, prior to 2010 the reimbursement system for medical devices was non-transparent without clear criteria or patient involvement. A new regulation in 2010 introduced a point-based system for reimbursement decisions, but there is still no experience with how well it will work.
Presentation in the framework of the International Conference "10th anniversary of the Spanish Network of Health Technology Assessment Agencies. Towads patient and public engagement in HTA" Zaragoza 27-28 April 2017
How Effective is the Public in Influencing HTA Decisions?Kathi Apostolidis
Patients should be involved in HTA process to assure a robust process that embraces patients' needs, preferences, perspectives. ECPC-European Cancer Patient Coalition leverages on European Institutions for a solution to the timely authorization and reimbursement of innovative cancer medicines
CSC Insight into Patient Access to Care in CancerBev Soult
The document summarizes key findings from a survey of 692 cancer patients and their families about access to care. It finds that while most patients had health insurance, many did not receive recommended social/emotional support services or referrals to such services. Over 20% reported delays in care and nearly 20% felt they did not have adequate time with providers. Only 34% discussed costs of treatment with providers. Nearly half paid more for care in the past year due to insurance premiums, deductibles, and co-pays. Over a third were seriously concerned about out-of-pocket costs and bankruptcy from medical expenses. The survey aimed to understand challenges patients face in accessing comprehensive cancer care.
European Cancer Patients Achievements in cancer HTA AdvocacyKathi Apostolidis
The European Cancer Patient Coalition (ECPC) has advocated for harmonized health technology assessment (HTA) in the EU since 2014. Some of their milestones include publishing position papers, participating in EU consultations, and meeting with EU officials. HTA can promote innovation but differences between EU countries result in delays and inequities. Few HTA agencies involve patients systematically. The ECPC calls for mandatory uptake of joint clinical assessments and formal involvement of patient organizations at the EU and national levels. Patients are directly affected by HTA and their preferences on treatment are an important element.
PharmaCon2007 Congress, Dubrovnik, Croatia "New Technologies and Trends in Pharmacy, Pharmaceutical Industry and Education" http://www.pharmacon2007.com
Abstract is available at http://www.pharmaconnectme.com
new approaches and national guidelines in oncorehabilitation in GERMANY & NET...Shabana2428
A report about the cancer rehabilitation guidelines of GERMANY & NETHERLANDS with the differences ans similarity comparison between the 2 countries.
Also there is information about how the cancer rehabilitation is carried in the 2 countries and also the new approaches that are being brought into action.
Philippine AIDS Prevention and Control Act of.pptxMartinGeraldine
The document summarizes two key Philippine laws related to health:
1) The Philippine AIDS Prevention and Control Act of 1998 (RA 8504) which aims to prevent and control the spread of HIV/AIDS through public education campaigns, protecting human rights of those infected, and ensuring access to health services.
2) The National Blood Services Act of 1994 (RA 7719) which promotes voluntary and safe blood donation through establishing a national blood transfusion network, regulating blood banks, and educating the public on the importance of voluntary donation over commercial sale.
Primary Health Care. A key concern in a changing socio-economic environment.Evangelos Fragkoulis
I. The document discusses the importance of primary health care (PHC) in improving population health outcomes, ensuring the sustainability of health systems, and achieving universal health coverage and sustainable development goals.
II. It notes that countries with strong, quality primary health care systems see better health outcomes relative to their level of economic development. Integrating PHC into health systems also improves health equity, coverage, cost-effectiveness, and patient experience.
III. The document calls for a reorientation of health systems away from an overemphasis on specialty and hospital care, and toward people-centered primary care delivered through multidisciplinary teams.
Greece: Primary Care in a time of crisis. 2nd VdGM Forum, Dublin 2015Evangelos Fragkoulis
2nd Vasco Da Gama Movement Forum, Dublin 2015
The Effect of the Economic Crisis on the Health Systems of the peripheral countries: Greece, Ireland, Spain, Portugal and Italy.
Integrating Community Strategy with HIV Programs:A Research Paper Appropriate...Stephen Olubulyera
Integrating Community Strategy with HIV Programs-A Research Paper Appropriate for Turkana County Setting-A review of evidence and implementation strategies
Kathi Apostolidis on Cross Border Healthcare DirectivefrancescoECPC
The Vice President of the European Cancer Patient Coalition - ECPC (www.ecpc.org) explains the role of the EU Directive 2011/24/EU a.k.a. Cross Border Healthcare Directive in the mobility of cancer patients in Europe.
- The document discusses ensuring community care is provided in close collaboration with citizens and communities. It emphasizes the importance of patient empowerment, health literacy, digital health, patient involvement, and inclusiveness.
- Patient empowerment in community settings requires a shift towards seeing patients as equal partners in their care. This involves improving health literacy, self-management support, and shared decision-making between patients and healthcare professionals.
- Digital technologies can help facilitate chronic disease management and patient-centered care if designed and implemented in a way that strengthens patient empowerment and health literacy. Meaningful patient involvement in healthcare, research, and policy is also critical.
The EU Directive on cross-border healthcare aims to increase transparency in healthcare across EU countries. It will initially involve publishing information for all hospitals and hospital services, and then expand to include outpatient services. This will form an EU-wide standard for healthcare quality, guidelines, price lists, and other consumer information. Each member state must create easy-to-use websites providing this information by the end of 2013. The goal is to drive competition for better quality and value in healthcare through transparency and increased patient involvement in healthcare choices.
This document summarizes a conference on chronic diseases and patients' rights in the framework of EU healthcare sustainability. It discusses how healthcare systems can remain active over time despite problems and crises by balancing solidarity and individualistic values with available resources and increasing costs. It also examines how increasing population age and disease prevalence are contributing to rising healthcare needs and costs. An alternative approach is proposed that bases healthcare financing on quality of care rather than amount of services provided. The document advocates for more objective and transparent criteria in healthcare systems that focus on health outcomes rather than diseases.
Similar to The manifesto for the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014 (20)
Regione che vai, cura che trovi (forse). I principali risultati del XVII Rapporto sulle politiche della cronicità realizzato dal Coordinamento nazionale delle Associazioni dei Malati Cronici di Cittadinanzattiva
I principali dati del Rapporto annuale sulle politiche della cronicità realizzato da Coordinamento nazionale delle Associazioni dei Malati Cronici di Cittadinanzattiva. Presentazione dei principali dati a cura di Maria Teresa Bressi
La presentazione di Tonino Aceti, coordinatore nazionale del Tribunale per i diritti del malato di Cittadinanzattiva e direttore del Coordinamento nazionale delle Associazioni dei Malati Cronici delle principali proposte contenute nella Relazione 2018.
Arnaud Emerieu, President of the European Social Insurance Platform, BelgiumCittadinanzattiva onlus
The document outlines 5 priority areas for payers' perspectives on access to innovation: 1) Steering R&D to public health needs, 2) Ensuring evidence base for innovation through strengthened health technology assessment, 3) Strengthening national pricing and reimbursement mechanisms in interests of patients, payers and society, 4) Increasing transparency around innovative pharmaceuticals, and 5) Supporting innovation in context of sustainable healthcare systems. It advocates for transparent health technology assessment processes, voluntary collaboration between countries on pricing negotiations, ensuring access to medicines based on proven patient benefit, and promoting transparency around clinical trial data and pharmaceutical prices and expenditures to balance innovation and sustainability of health systems.
Sannié, member of the patients' consultative group of the French National Agency for Medicines and Health Product Safety, France, for European Patients' Rights Day 2017
The world's population is growing larger, older, and sicker, placing increasing challenges on healthcare systems to expand access to care with finite resources. Chronic diseases now account for 70% of illnesses, and the population over 50 will increase by over 500 million by 2025. Healthcare systems face constraints like aging populations, growing disease burdens, and limited budgets. However, new medical technologies in development and advances in data analytics provide optimism for healthier futures. Key questions remain around how to introduce high-value innovations and make systems more sustainable.
Alessia Squillace, Tribunal for Patients' Rights - A campaign on acces on inn...Cittadinanzattiva onlus
The Tribunale per i diritti del malato di Cittadinanzattiva promotes citizens' rights in health services in Italy with over 10,000 active citizens working out of 330 locations. New drugs for treating Hepatitis C offer a cure and simplify treatment but elevated prices and eligibility criteria limit access for many patients. The organization established a national tutelage program providing information, counseling, and monitoring access to the new drugs which has helped increase funding and prescription centers, expand eligibility criteria, and start over 53,000 patients on treatment, though access remains limited for some groups.
This document discusses ways to make access to innovative medicines more sustainable in the EU. It suggests the EU take a more comprehensive approach when negotiating medicine prices that considers public and private research contributions, product benefits, healthcare budget and organization impacts, and patent duration. It also recommends compulsory licensing be considered when prices are abnormally high. The role of regulators could be improved by expanding compassionate use programs, aligning regulatory and health technology assessment timelines, and increased post-approval monitoring. The EU should protect solidarity principles, encourage transparency, generalize orphan medicine access mechanisms, and encourage joint procurement to reduce prices.
Gottfried Endel, Main Association of Austrian Social Insurance Institutions, ...Cittadinanzattiva onlus
Gottfried Endel, Main Association of Austrian Social Insurance Institutions, Austria for 2017 European Patients' Rights Day in Brussels, "The payers' perspective on access to innovation"
Presentation by Julie Topoleski, CBO’s Director of Labor, Income Security, and Long-Term Analysis, at the 16th Annual Meeting of the OECD Working Party of Parliamentary Budget Officials and Independent Fiscal Institutions.
Presentation by Rebecca Sachs and Joshua Varcie, analysts in CBO’s Health Analysis Division, at the 13th Annual Conference of the American Society of Health Economists.
FT author
Amanda Chu
US Energy Reporter
PREMIUM
June 20 2024
Good morning and welcome back to Energy Source, coming to you from New York, where the city swelters in its first heatwave of the season.
Nearly 80 million people were under alerts in the US north-east and midwest yesterday as temperatures in some municipalities reached record highs in a test to the country’s rickety power grid.
In other news, the Financial Times has a new Big Read this morning on Russia’s grip on nuclear power. Despite sanctions on its economy, the Kremlin continues to be an unrivalled exporter of nuclear power plants, building more than half of all reactors under construction globally. Read how Moscow is using these projects to wield global influence.
Today’s Energy Source dives into the latest Statistical Review of World Energy, the industry’s annual stocktake of global energy consumption. The report was published for more than 70 years by BP before it was passed over to the Energy Institute last year. The oil major remains a contributor.
Data Drill looks at a new analysis from the World Bank showing gas flaring is at a four-year high.
Thanks for reading,
Amanda
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New report offers sobering view of the energy transition
Every year the Statistical Review of World Energy offers a behemoth of data on the state of the global energy market. This year’s findings highlight the world’s insatiable demand for energy and the need to speed up the pace of decarbonisation.
Here are our four main takeaways from this year’s report:
Fossil fuel consumption — and emissions — are at record highs
Countries burnt record amounts of oil and coal last year, sending global fossil fuel consumption and emissions to all-time highs, the Energy Institute reported. Oil demand grew 2.6 per cent, surpassing 100mn barrels per day for the first time.
Meanwhile, the share of fossil fuels in the energy mix declined slightly by half a percentage point, but still made up more than 81 per cent of consumption.
The Power of Community Newsletters: A Case Study from Wolverton and Greenleys...Scribe
YOU WILL DISCOVER:
The engaging history and evolution of Wolverton and Greenleys Town Council's newsletter
Strategies for producing a successful community newsletter and generating income through advertising
The decision-making process behind moving newsletter design from in-house to outsourcing and its impacts
Dive into the success story of Wolverton and Greenleys Town Council's newsletter in this insightful webinar. Hear from Mandy Shipp and Jemma English about the newsletter's journey from its inception to becoming a vital part of their community's communication, including its history, production process, and revenue generation through advertising. Discover the reasons behind outsourcing its design and the benefits this brought. Ideal for anyone involved in community engagement or interested in starting their own newsletter.
The manifesto for the empowerment to "Produce a joint declaration on the empowerment of chronic patients and their associations addressed to the new MEPs - 8th European Patients' Rights Day in Brussels, May 12th 2014
1.
2. MANIFESTO
“Empowered patients are a resource and not a cost”
Civic Recommendations to improve the empowerment of
citizens with chronic diseases and their organizations
3. OVERALL RECOMMENDATIONS
• Supporting the Member States in singling out forms of assistance to
help families with a member suffering from a chronic disease, starting
from low income families with one or more elderly chronic relatives.
• Analysing at EU level, with the contribution from civic and patient
organisations, the phenomenon of unbearably high electricity bills to
families with people suffering from chronic diseases and using electro-
medical equipment.
• Allowing family members to reconcile their work commitments with the
need to take care of their relatives suffering for chronic diseases at
home.
4. EDUCATION:
Within a supporting healthcare system, patients self manage their own
pathologies if correct information on treatment and patients’ rights is supplied
to them.
How can this be guaranteed?
• By providing continuous high quality information and health literacy for
people with chronic diseases and their caregivers on all aspects of disease
management, to enforce the role and the added value of an “Expert Chronic
Patient”;
• By supporting the development of patient empowerment mechanisms
across the EU, with specific focus on Cross-European standards for patient
empowerment in clinical healthcare practices;
• By embedding patient empowerment and engagement within the European
education frameworks for health care professionals.
5. PARTICIPATION & EVALUATION:
Engage patients collectively and pro-actively through patient organizations in
policy decision making (development, implementation and law enforcement),
and Health Services evaluation.
How can this be guaranteed?
• By establishing a Cross-Commission taskforce in the new EU Parliament, in
order to facilitate the institutional relationship;
• By organizing EU Parliamentary hearings (at least once a year) on chronic
diseases;
• By embedding representatives of civic and patients organisations in the
decision making processes regarding medication policies at EU level;
• By collecting the best practices in terms of involvement by civic and
patients organisations both in the programming and in gauging the quality
of services.
6. INNOVATION:
Promote and support public and private research
How can this be guaranteed?
• By developing a clear framework for chronic patient involvement across the
range of health research, through the entire cycle of the innovation chain
(starting from Health technology assessment);
• By making the decision and authorisation processes more accessible both at
European level through the European Drug Agency and through the National
Drug Agencies;
• By carrying out a European survey with the contribution of civic and patient
associations to define the main obstacles which hinder and discriminate
access to pharmaceutical innovation and innovative therapies from one
country to another and within parts of the same country;
7. • By developing new procedures at zero or almost zero cost. Simplified
bureaucratic procedures: less waiting time for citizens, lower costs for the
public administration. By carrying out a research on good practices at
European level with the contribution of civic and patients organisation to find
solution to define the criteria for access to healthcare allowances and to
streamline the procedures enabling chronic patients to use available benefits
(i.e. socio-economic benefits for the recognition of civil disabilities/invalidity,
bonuses for electro-medical equipment) already included in the current
regulations.
8. COOPERATION:
Foster a collaborative approach among patients and health care professionals.
How can this be guaranteed?
• By promoting initiatives that facilitate meaningful relationship between
patient and health care professionals (doctors, nurses etc), including
partnerships.
9. INFORMATION & COMMUNICATION:
Promote initiatives to empower patient and civic organizations to help patients
understand their rights and therefore make informed choices.
How can this be guaranteed?
• By supplying civic information as a necessary support for any research on
chronic patients’ conditions;
• By supporting a civic assessment on the respect of chronic patients right to
avoid unnecessary suffering and pain;
• promoting a EU widespread communication campaign on chronic pain as a
common denominator in chronic diseases, in order to stress what for many
patients suffering from chronic diseases is not visible in their everyday life;
10. • By informing citizens about their cross-border health care rights. In particular,
for chronic patients and those suffering from rare diseases, “the Directive on
Patients' Rights in Cross-border Healthcare means empowerment: greater
choice of healthcare, more information, easier recognition of prescriptions
across-borders”. (Tonio Borg, European Commissioner for Health, October
2013).