MENTAL HEALTH

ASHRAF TANTAWY
 Professor of Psychiatry
  Suez Canal University
     Ismailia, Egypt.
OVERVIEW
        PART I
   MENTAL HEALTH
        PART II
MENTAL HEALTH ISSUES
       PART III
 CAREGIVERS BURDEN
PART I

MENTAL HEALTH
DEFINITION OF HEALTH

   “A state of complete
(Physical, Mental & Social)
       well-being”
(World Health Organization)
The 10 Health Indicators
   1- Physical Activity.
   2- Overweight and Obesity.
   3- Tobacco Use.
   4- Substance Abuse.
   5- Responsible Sexual Behavior.
   6- Mental Health.
   7- Violence and Injury.
   8- Environmental Quality.
   9- Immunization.
   10- Access to Health Care.
MENTAL HEALTH
The successful performance of
Mental Functions.
Resulting in Productive activities

& Fulfilling relationships.
 The ability to adapt to change &
cope with stressors.
 The successful adaptation to
stressors are evidenced by
MENTAL ILLNESS
A Clinically Syndrome, marked by
Distress, Disability, Suffering or
Loss of freedom.
Maladaptive Responses to
stressors evidenced by thoughts,
feelings & behaviors, interfere with

the individual’s physical, social or
Mental Health/ Mental Illness
   Concept Must Be Clear

  Mental Health                  Mental Illness




Continuum - Not Static
(Introversion → Avoidant Personality → Social Phobia
                  → Schizophrenia)
MENTAL HEALTH
         Maslow identified:
     A “Hierarchy of Needs”:
Self-actualization as fulfillment of
        one’s highest potential
Maslow’s Hierarchy of Need (1954)
Aspects of Mental Health
Emotional Intelligence:
 Emotions are skills for living.
 Have emotional self control.
 Recognize emotions in others.
 Handle relationships.

Resiliency:
Emerge and grow from negative life events.

Spirituality:
That part of us that deals with relationships, values and
addresses questions of purpose and meaning in life.
Common & Serious
Mental Health Problems
Common Problems:
 – Depressive Disorders.
 – Anxiety Disorders.
Severe & Enduring Problems:
 – Schizophrenia.
 – Bipolar disorder.
 – Major depression.
 – Dementia.
Problems of Mental Disorders

        Lifespan vs. Health span.

            Physical Burden.

             Poly-Pharmacy.

          Psychosocial Burden.

Biological Basis of Psychiatric Disorders.
Lifespan vs. Health span
Lifespan: Length of life increased.
Health span: Length of healthy life before
             Disability.
Factors affecting lifespan and health span:
1. Exercise: Improves mood and
cognition.
2. Sleep pattern.
3. Eating pattern.
4. Social networks: Protective against
Physical Burden
Comorbid Physical Diseases:
NS, IS, CVS, RS, US & GIT.


Disability: Physical & Mental.


Side Effects: Psychotropic Drugs.
Physical Comorbidity
 Depressive Disorders:
  Diabetes.
  Ischemic Heart Disease.
  Stroke.
  Chronic Neurological Conditions.
  Cancer.
 Anxiety Disorders:
  COPD & Bronchial Asthma.
Physical Comorbidity
Schizophrenia:
 Obesity, Hypertension & Smoking.
 Hepatitis C & HIV.
 Drug related Movement Disorders.
 Cancer Colon.
 Rheumatoid Arthritis.
Bipolar Disorder
 As for schizophrenia. +
 Drug Related Thyroid Diseases.
 Drug Related Renal Diseases (Lithium).
Causes of Death among Mental Patients:
 Cardio-Respiratory Disease & Infectious disease.
Poly-Pharmacy
Multiple Pathology.
- Cardiac Disease: HPT, IHD.
- Diabetes.
- Asthma/ COPD.
- Osteoporosis.
- Neurological Diseases.
- Psychiatric Disorders.
Multiple Medications.
Multiple Adverse Effects.
Drug-Drug Interactions.
Psychosocial Burden
Social Isolation.
Physical & Cognitive Dysfunctions.
Loss of Social & Occupational Status.
Loss of Friends.
Lack of Adequate Health Care.
Financial Insecurity.
Death Preoccupation.
Dependency on Their Families.
.




   Cukor D et al. JASN 2007;18:3042-3055
©2007 by American Society of Nephrology
CAUSES OF MENTAL
     ILLNESS
The concept of multiple
factors in the causation of
psychogenic disorders has
become generally accepted.

The factors are considered
to involve the individual, the
family & the community.
Biological Basis of Psychiatric Disorders
Nerves                            Environment
Hormones             Brain
Action




  Endocrine Glands           Immune System
               Physiology
               & Behavior
The Biological Basis of
       Psychiatric Disorders

   Brain                          Mind
               Biopsychosocial
                    Model
Psychoneuro-
                                     Medically
 Immunology
                                    Unexplained
                                 Physical Symptoms


                 Body
Diathesis-Stress Model
         Diathesis                                   Stress
  “Predisposing Causes”                     “Precipitating Causes”
(Hereditary Predisposition)                  (Situational Factors)




   Bio-Psycho-Social
       Approach
                                 Disorder       “Maintaining Causes”
• Emphasizes Interaction of                      Physical Conditions
Biological and Social Factors




                                Recovery
.




    Cukor D et al. JASN 2007;18:3042-3055
©2007 by American Society of Nephrology
Quality of Life
Well-being: Physical, Psychological, Social & Spiritual.
      Physical                         Psychological
  Functional Ability                      Anxiety
  Strength/Fatigue                      Depression
    Sleep & Rest                     Enjoyment/Leisure
       Nausea                          Pain Distress
      Appetite                           Happiness
    Constipation                            Fear
        Pain            Quality of   Cognition/Attention
       Social             Life
                                         Spiritual
  Financial Burden
                                          Hope
  Caregiver Burden
                                         Suffering
Roles & Relationships
                                      Meaning of Pain
      Affection
                                        Religiosity
  Sexual Function
                                      Transcendence
     Appearance
How Does The Public View
      The Mentally Ill?
They are fearful.
There is a big stigma.
The mentally ill are labeled.
Care is rationed.
People oppose care by using laws.
The mentally ill are losers when it
comes to the budget for care.
What are The Costs
 of Mental Illness?
   Police costs.
   Public health costs.
   Safety costs.
   Court costs.
   Business costs.
   Social costs.
   Jail costs.
Psychiatrists handle little
number of real psychiatric
patients, WHY?
There are 5 levels and 4 filters.
L1:Community (30%).
           F1 : Illness behavior.
L2:Mental morbidity in primary care (25%).
           F2: Ability to detect.
L3:Mental morbidity by doctors (10%).
           F3: Referral.
L4:Morbidity in mental health services
 (2.5%).
           F4: Admission.
L5: Psychiatric inpatients (0.5%).
The Provider- Caregiver
     Relationship

–   Expectations.
–   Establish & Maintain Boundaries.
–   Building on Strengths.
–   Sharing One’s Own Family Life.
–   Reciprocal & Positive Feelings.
Talking with Caregivers
Be Positive.
Be Flexible.
Be a Good Observer.
Work as Partner.
Listen Actively.
Begin Where The Caregiver Is.
Ask Leading Questions.
Make Comments Thoughtfully.
Answer Personal Questions.
Essential Qualities
of Mental Health Team

 Empathy.

 Respect.

 Perseverance & Resilience.
You Can Differentiate




 Mental Health   Mental Illness
PART II

MENTAL HEALTH
   ISSUES
MENTAL HEALTH APPROACHES



Primary Prevention.
Secondary Prevention.
Tertiary Prevention.
PSYCHIATRY STRATEGIES

Integration of mental health with
primary health care through
the national mental health program.
Provision of tertiary care institutions for
treatment of mental disorders.
Eradication stigmatization of mentally ill
patients.
Protecting patient rights through regulatory
institutions like the central mental health
authority.
Numbers of People
   Affected Globally
  450 million people with mental disorders:

– 150 million with Depression.
– 90 million with Alcohol or Drug Use Disorder.
– 40 million with Epilepsy.
– 25 million with Schizophrenia.
– 10 million Attempt Suicide every year.
– 1 million Commit Suicide every year.
Did You Know?
4 of the 10 leading causes of disability are
mental disorders:
- MD, Schizophrenia, Dementia & OCD.

6% of the population suffers from Severe &
Persistent Mental Illness:
- Dementia, Schizophrenia, BAD & MD.

 13 % of the population has a diagnosis of:
- Dysthymia, Panic Disorder, Phobia & Antisocial
 Personality Disorder.
Psychiatry by Numbers
25% of the population has a mental
disorder.
15% of patients in population have
depressive illnesses.
90% of the 10 most common
complaints in psychiatric setting
have no organic basis.
50% of mental health care can be
delivered by Non-Psychiatrists.
Relationship Between
   Psychiatry & Medicine
A- Medical Conditions that have
   psychiatric symptoms.
B- Psychosomatic Disorders.
C- Medically Unexplained
   Physical Symptoms.
D- Mental Disorders that may
   have physical symptoms.
A- Medical Conditions That Have
    Psychiatric Symptomatology
1- Neurological Diseases:
   Brain tumors, Epilepsy, MS, Parkinsonism,...
2- Endocrine Syndromes:
   Thyroid, Suprarenal, Ovaries, Pancreas,…
3- Infectious Diseases & Autoimmune Syndromes.
4- System Failures:
   Renal, Hepatic, Cardiac, Respiratory,...
5- Chronic Disability:
   Blindness, Deafness, Muteness, Loss of limb,...
6- Blood Diseases:
   Anemia, Leukemia, Hemolytic diseases,...
B- Psychosomatic Disorders
The physical condition must show either
demonstrable organic pathology or a
known patho-physiologic process.
They can influence not only the cause of
the illness but can also worsen the
symptoms & affect the course of the
disorder.
Examples: Angina, Hypertension,
Bronchial asthma, Rheumatoid arthritis,
Duodenal ulcers, IBS, Eczema, Psoriasis
& Urticaria.
C- Medically Unexplained
          Physical Symptoms
Sometimes psychological factors can cause ill
 health without actually causing a disease.
As a result of unhappiness, anxiety or stress due
 to personal problems, physical symptoms may
 develop.
        A- Somatoform disorders.
          B- Factitious disorders.
              C- Malingering.
Somatoform Disorders
1- Somatization Disorder.
2- Hypochondriasis.
3- Dissociative & Conversion Disorders.
4- Somatoform Pain Disorder.
5- Body Dysmorphic Disorder.
D- Mental Disorders That May
Have Physical Symptomatology
Neurotic Disorders:
Depression, Anxiety, OCD &
Adjustment disorder.
Psychotic Disorders: Dementia,
Delirium, Schizophrenia, Mood
disorders, Delusional disorder &
Substance induced psychosis.
PART III

CAREGIVERS BURDEN
CAREGIVERS BURDEN
 Physical Burden.
 Financial Burden.
 Time Burden.
 Role Burden.
 Emotional Burden.
 Others.
Caregiving Burden
  Signs of Caregiver Burnout
1- Physical Burden:
 Weight Change: Gain or Loss.
 Unexplained Somatic Complaints:
  (Chronic headaches, backaches or
others).
 Caregiver’s Syndrome:
  (Fatigue from physical strain & sleep lack ).
 Osteoporosis and Arthritis.
Caregiving Burden
 Signs of Caregiver Burnout
3- Time Burden:
 Caregiving is time-consuming.
 Less time for other tasks.
 Activities can be stressful.
4- Role Burden:
 Feelings of being pulled in different
directions.
 Family responsibilities.
 Pressure and tension.
Caregiving Burden
    Signs of Caregiver Burnout
5- Emotional Burden:
Common feelings: Being overwhelmed, Anger,
Frustration, Guilt, Exhaustion, Loneliness and
Social withdrawal.
Cognitive disturbances: Lack of concentration
and finding it difficult to complete complex tasks.
Sleep disorders: Sleeplessness / stressful dream.
Anxiety: about facing another day and what the
future holds.
Depression: feeling sad and hopeless.
Adjustment disorders.
Psychiatric Disorders
  Among Caregivers
Depression.
Anxiety disorders.
Unexplained Somatic
Complaints.
Adjustment disorders.
Conclusions
Mental disorders among patients & their
caregivers are frequent, associated with
increased medical & functional morbidity.
Attention to physical, psychological & spiritual
concerns are necessary.
Use of medication, psychotherapy or
counseling in an integrated manner results in
best outcomes.
The good physician will treat the disease but
the great physician will treat the patient.
Mental health means enhancing physical
treatment & promoting mental health.
Nursing Is Of
 Paramount
 Importance
Among Mental
  Patients
NO HEALTH
 WITHOUT
 MENTAL
 HEALTH
Mental health

Mental health

  • 1.
    MENTAL HEALTH ASHRAF TANTAWY Professor of Psychiatry Suez Canal University Ismailia, Egypt.
  • 2.
    OVERVIEW PART I MENTAL HEALTH PART II MENTAL HEALTH ISSUES PART III CAREGIVERS BURDEN
  • 3.
  • 4.
    DEFINITION OF HEALTH “A state of complete (Physical, Mental & Social) well-being” (World Health Organization)
  • 5.
    The 10 HealthIndicators 1- Physical Activity. 2- Overweight and Obesity. 3- Tobacco Use. 4- Substance Abuse. 5- Responsible Sexual Behavior. 6- Mental Health. 7- Violence and Injury. 8- Environmental Quality. 9- Immunization. 10- Access to Health Care.
  • 6.
    MENTAL HEALTH The successfulperformance of Mental Functions. Resulting in Productive activities & Fulfilling relationships. The ability to adapt to change & cope with stressors. The successful adaptation to stressors are evidenced by
  • 7.
    MENTAL ILLNESS A ClinicallySyndrome, marked by Distress, Disability, Suffering or Loss of freedom. Maladaptive Responses to stressors evidenced by thoughts, feelings & behaviors, interfere with the individual’s physical, social or
  • 8.
    Mental Health/ MentalIllness Concept Must Be Clear Mental Health Mental Illness Continuum - Not Static (Introversion → Avoidant Personality → Social Phobia → Schizophrenia)
  • 9.
    MENTAL HEALTH Maslow identified: A “Hierarchy of Needs”: Self-actualization as fulfillment of one’s highest potential
  • 10.
  • 11.
    Aspects of MentalHealth Emotional Intelligence: Emotions are skills for living. Have emotional self control. Recognize emotions in others. Handle relationships. Resiliency: Emerge and grow from negative life events. Spirituality: That part of us that deals with relationships, values and addresses questions of purpose and meaning in life.
  • 12.
    Common & Serious MentalHealth Problems Common Problems: – Depressive Disorders. – Anxiety Disorders. Severe & Enduring Problems: – Schizophrenia. – Bipolar disorder. – Major depression. – Dementia.
  • 13.
    Problems of MentalDisorders Lifespan vs. Health span. Physical Burden. Poly-Pharmacy. Psychosocial Burden. Biological Basis of Psychiatric Disorders.
  • 14.
    Lifespan vs. Healthspan Lifespan: Length of life increased. Health span: Length of healthy life before Disability. Factors affecting lifespan and health span: 1. Exercise: Improves mood and cognition. 2. Sleep pattern. 3. Eating pattern. 4. Social networks: Protective against
  • 15.
    Physical Burden Comorbid PhysicalDiseases: NS, IS, CVS, RS, US & GIT. Disability: Physical & Mental. Side Effects: Psychotropic Drugs.
  • 16.
    Physical Comorbidity DepressiveDisorders: Diabetes. Ischemic Heart Disease. Stroke. Chronic Neurological Conditions. Cancer. Anxiety Disorders: COPD & Bronchial Asthma.
  • 17.
    Physical Comorbidity Schizophrenia: Obesity,Hypertension & Smoking. Hepatitis C & HIV. Drug related Movement Disorders. Cancer Colon. Rheumatoid Arthritis. Bipolar Disorder As for schizophrenia. + Drug Related Thyroid Diseases. Drug Related Renal Diseases (Lithium). Causes of Death among Mental Patients: Cardio-Respiratory Disease & Infectious disease.
  • 18.
    Poly-Pharmacy Multiple Pathology. - CardiacDisease: HPT, IHD. - Diabetes. - Asthma/ COPD. - Osteoporosis. - Neurological Diseases. - Psychiatric Disorders. Multiple Medications. Multiple Adverse Effects. Drug-Drug Interactions.
  • 19.
    Psychosocial Burden Social Isolation. Physical& Cognitive Dysfunctions. Loss of Social & Occupational Status. Loss of Friends. Lack of Adequate Health Care. Financial Insecurity. Death Preoccupation. Dependency on Their Families.
  • 20.
    . Cukor D et al. JASN 2007;18:3042-3055 ©2007 by American Society of Nephrology
  • 21.
    CAUSES OF MENTAL ILLNESS The concept of multiple factors in the causation of psychogenic disorders has become generally accepted. The factors are considered to involve the individual, the family & the community.
  • 22.
    Biological Basis ofPsychiatric Disorders Nerves Environment Hormones Brain Action Endocrine Glands Immune System Physiology & Behavior
  • 23.
    The Biological Basisof Psychiatric Disorders Brain Mind Biopsychosocial Model Psychoneuro- Medically Immunology Unexplained Physical Symptoms Body
  • 24.
    Diathesis-Stress Model Diathesis Stress “Predisposing Causes” “Precipitating Causes” (Hereditary Predisposition) (Situational Factors) Bio-Psycho-Social Approach Disorder “Maintaining Causes” • Emphasizes Interaction of Physical Conditions Biological and Social Factors Recovery
  • 25.
    . Cukor D et al. JASN 2007;18:3042-3055 ©2007 by American Society of Nephrology
  • 26.
    Quality of Life Well-being:Physical, Psychological, Social & Spiritual. Physical Psychological Functional Ability Anxiety Strength/Fatigue Depression Sleep & Rest Enjoyment/Leisure Nausea Pain Distress Appetite Happiness Constipation Fear Pain Quality of Cognition/Attention Social Life Spiritual Financial Burden Hope Caregiver Burden Suffering Roles & Relationships Meaning of Pain Affection Religiosity Sexual Function Transcendence Appearance
  • 27.
    How Does ThePublic View The Mentally Ill? They are fearful. There is a big stigma. The mentally ill are labeled. Care is rationed. People oppose care by using laws. The mentally ill are losers when it comes to the budget for care.
  • 28.
    What are TheCosts of Mental Illness? Police costs. Public health costs. Safety costs. Court costs. Business costs. Social costs. Jail costs.
  • 29.
    Psychiatrists handle little numberof real psychiatric patients, WHY? There are 5 levels and 4 filters.
  • 30.
    L1:Community (30%). F1 : Illness behavior. L2:Mental morbidity in primary care (25%). F2: Ability to detect. L3:Mental morbidity by doctors (10%). F3: Referral. L4:Morbidity in mental health services (2.5%). F4: Admission. L5: Psychiatric inpatients (0.5%).
  • 31.
    The Provider- Caregiver Relationship – Expectations. – Establish & Maintain Boundaries. – Building on Strengths. – Sharing One’s Own Family Life. – Reciprocal & Positive Feelings.
  • 32.
    Talking with Caregivers BePositive. Be Flexible. Be a Good Observer. Work as Partner. Listen Actively. Begin Where The Caregiver Is. Ask Leading Questions. Make Comments Thoughtfully. Answer Personal Questions.
  • 33.
    Essential Qualities of MentalHealth Team  Empathy.  Respect.  Perseverance & Resilience.
  • 34.
    You Can Differentiate Mental Health Mental Illness
  • 35.
  • 36.
    MENTAL HEALTH APPROACHES PrimaryPrevention. Secondary Prevention. Tertiary Prevention.
  • 37.
    PSYCHIATRY STRATEGIES Integration ofmental health with primary health care through the national mental health program. Provision of tertiary care institutions for treatment of mental disorders. Eradication stigmatization of mentally ill patients. Protecting patient rights through regulatory institutions like the central mental health authority.
  • 39.
    Numbers of People Affected Globally 450 million people with mental disorders: – 150 million with Depression. – 90 million with Alcohol or Drug Use Disorder. – 40 million with Epilepsy. – 25 million with Schizophrenia. – 10 million Attempt Suicide every year. – 1 million Commit Suicide every year.
  • 40.
    Did You Know? 4of the 10 leading causes of disability are mental disorders: - MD, Schizophrenia, Dementia & OCD. 6% of the population suffers from Severe & Persistent Mental Illness: - Dementia, Schizophrenia, BAD & MD. 13 % of the population has a diagnosis of: - Dysthymia, Panic Disorder, Phobia & Antisocial Personality Disorder.
  • 41.
    Psychiatry by Numbers 25%of the population has a mental disorder. 15% of patients in population have depressive illnesses. 90% of the 10 most common complaints in psychiatric setting have no organic basis. 50% of mental health care can be delivered by Non-Psychiatrists.
  • 42.
    Relationship Between Psychiatry & Medicine A- Medical Conditions that have psychiatric symptoms. B- Psychosomatic Disorders. C- Medically Unexplained Physical Symptoms. D- Mental Disorders that may have physical symptoms.
  • 43.
    A- Medical ConditionsThat Have Psychiatric Symptomatology 1- Neurological Diseases: Brain tumors, Epilepsy, MS, Parkinsonism,... 2- Endocrine Syndromes: Thyroid, Suprarenal, Ovaries, Pancreas,… 3- Infectious Diseases & Autoimmune Syndromes. 4- System Failures: Renal, Hepatic, Cardiac, Respiratory,... 5- Chronic Disability: Blindness, Deafness, Muteness, Loss of limb,... 6- Blood Diseases: Anemia, Leukemia, Hemolytic diseases,...
  • 44.
    B- Psychosomatic Disorders Thephysical condition must show either demonstrable organic pathology or a known patho-physiologic process. They can influence not only the cause of the illness but can also worsen the symptoms & affect the course of the disorder. Examples: Angina, Hypertension, Bronchial asthma, Rheumatoid arthritis, Duodenal ulcers, IBS, Eczema, Psoriasis & Urticaria.
  • 45.
    C- Medically Unexplained Physical Symptoms Sometimes psychological factors can cause ill health without actually causing a disease. As a result of unhappiness, anxiety or stress due to personal problems, physical symptoms may develop. A- Somatoform disorders. B- Factitious disorders. C- Malingering.
  • 46.
    Somatoform Disorders 1- SomatizationDisorder. 2- Hypochondriasis. 3- Dissociative & Conversion Disorders. 4- Somatoform Pain Disorder. 5- Body Dysmorphic Disorder.
  • 47.
    D- Mental DisordersThat May Have Physical Symptomatology Neurotic Disorders: Depression, Anxiety, OCD & Adjustment disorder. Psychotic Disorders: Dementia, Delirium, Schizophrenia, Mood disorders, Delusional disorder & Substance induced psychosis.
  • 48.
  • 49.
    CAREGIVERS BURDEN PhysicalBurden. Financial Burden. Time Burden. Role Burden. Emotional Burden. Others.
  • 50.
    Caregiving Burden Signs of Caregiver Burnout 1- Physical Burden: Weight Change: Gain or Loss. Unexplained Somatic Complaints: (Chronic headaches, backaches or others). Caregiver’s Syndrome: (Fatigue from physical strain & sleep lack ). Osteoporosis and Arthritis.
  • 51.
    Caregiving Burden Signsof Caregiver Burnout 3- Time Burden: Caregiving is time-consuming. Less time for other tasks. Activities can be stressful. 4- Role Burden: Feelings of being pulled in different directions. Family responsibilities. Pressure and tension.
  • 52.
    Caregiving Burden Signs of Caregiver Burnout 5- Emotional Burden: Common feelings: Being overwhelmed, Anger, Frustration, Guilt, Exhaustion, Loneliness and Social withdrawal. Cognitive disturbances: Lack of concentration and finding it difficult to complete complex tasks. Sleep disorders: Sleeplessness / stressful dream. Anxiety: about facing another day and what the future holds. Depression: feeling sad and hopeless. Adjustment disorders.
  • 53.
    Psychiatric Disorders Among Caregivers Depression. Anxiety disorders. Unexplained Somatic Complaints. Adjustment disorders.
  • 55.
    Conclusions Mental disorders amongpatients & their caregivers are frequent, associated with increased medical & functional morbidity. Attention to physical, psychological & spiritual concerns are necessary. Use of medication, psychotherapy or counseling in an integrated manner results in best outcomes. The good physician will treat the disease but the great physician will treat the patient. Mental health means enhancing physical treatment & promoting mental health.
  • 56.
    Nursing Is Of Paramount Importance Among Mental Patients
  • 57.
    NO HEALTH WITHOUT MENTAL HEALTH

Editor's Notes

  • #11 Only when lower order needs have been met can we be concerned with the higher order needs. When you reach self-actualization you may exhibit the following characteristics: keen sense of reality, objective judgment, see problems in terms of challenges and solutions not just complaints and excuses, independent, socially compassionate, accepting others as they are, spontaneous and natural, creative, inventive and original. Story of Ethan and his mom- Ethan having trouble with constipation & pediatrician is not helpful. Ethan is uncomfortable & unhappy. Stresses mom out. Mom needs help but doesn’t know where to get it. If HV helps her what would happen? mom will have energy to devote to Ethan and his intervention Ethan will be more receptive because he will feel better & be healthier Mom will see professional as invested. Will trust more. Will listen more. Mom will feel better about herself because she got Ethan the help he needs. She was effective.
  • #32 *Parents need to know that we care before they care what we know. Boundaries What you can do & aren’t prepared to handle If problem is beyond your expertise-REFER Professional distance is the boundary we, as the professionals, set with each family To be successful at HV we need good boundaries When we do not have appropriate professional boundaries we lose our objectivity Without objectivity we can’t use proper judgment and fully serve the families Don’t expect families to set the boundaries Building on strengths Recognize/acknowledge parent as expert on the child Sharing one’s own family life Appropriate if related to family’s life Communicates understanding & support Validates the parent’s experience/feelings Trust the power of the process of developing the relationship Relationship is dynamic, varies in nature & effect Development occurs through relationship Relationships are patterns of interaction over time All relationships involves mutuality Each person influences the other at the moment and in important ways over time Shared Delight Korfmacher Article 1190 EHS mothers from 17 sites around the US How moms rated HR correlated with how their involvement was viewed by professionals Parent-report measures tend to be positively biased…rated very highly even when qualitative reports suggest much more variability in the relationship HR should not be static, should change over time as the child matures and needs change and families and prof get to know each other more This study showed relationships went down from first (6 months) to second eval (15 months) and leveled off at third (26 months)
  • #33 Communication=process by which families and professionals exchange messages that influence, facilitate and define the purposes of EI Help parents strive for realistic optimism Don’t assume you know more about the child than the parent Start with something where parents can be successful Use “door openers” which invite them to say more about the incident or their feelings. Such as “I see” “oh” “tell me more” “No kidding Speak in plain, everyday language Generalizations about parents of children with disabilities will influence your actions, so don’t label Brady Article Identifying and describing types and patterns of talk during interactions b/w 15 families of ycwd and EI prof Video-taped and then analyzed with computerized coding system What amt & type of talk are used by prof & families? Prof talked 50% of the total visit time-23% direct to families, 27% to child Families talked 44% of the time-1/2 to child, ½ to professional Considerable variability-Prof 33-70% & Family 25%-63% Professionals give info (direct) and praise (indirect) most often Families initiates (direct) and responds (indirect) most often Lots of variability here also Is there a rel. b/w amt & types of professional talk and the amt & types of family talk? Positive correlation b/w total indirect prof and total family talk (& family initiates) The more prof praised, encourages, and accepted families’ ideas the more involved families were in the ix Younger prof less likely to give info and more likely to direct families What sequential patterns of talk are most common? Older prof give info more (gave it in a f-c way) but prof give info and then tend to give more info indicating lack of ix by family. When major focus is prof giving info that wasn’t requested by families power and control in the relationship are likely not being shared. Following a family member’s expression of feelings prof tended to react to content and not to expression of feelings…tendency to rush in , offer solutions, and try to “fix” the problem Key tenet of family-centered tx is to listen actively, acknowledge, and address families concerns and needs Need to reflect feelings (a microskill in active listening) allows families to identify and clarify their concerns and accept their feelings as valid
  • #34 Empathy seeing things from the other person’s perspective Respect belief in the worth of all human beings and acting on those beliefs Perseverance & resilience commitment and conviction that enable professionals to continue in the face of obstacles, set backs, and lack of progress Passion need to have a strong drive to know more regardless of current knowledge or skill. Lifelong learner! Don’t be afraid to say “I don’t know” but then find out! Don’t be guided by “traditional” expectations…won’t know until we try or let’s try another way