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Mantle cell lymphoma (MCL) is a rare, aggressive B-cell non-Hodgkin lymphoma (NHL) accounting for 5% to 7% of all lymphomas. Its prognosis ranges from indolent disease that does not require treatment for years to very aggressive disease, which is associated with poor survival (Silkenstedt et al, 2021). Typically, MCL is diagnosed at advanced stage and in older patients who cannot tolerate intensive therapy (NCCN, 2022). Although recent advances have slightly increased remission rates, recurrence and relapse remain very common, leading to a median overall survival between 3 and 6 years (LLS, 2021). Though there are several effective options, progress is still needed towards establishing an accepted frontline approach for MCL (Castellino et al, 2022). Treatment selection and management of MCL are complicated by the heterogeneity of prognosis, advanced age and comorbidities of patients, and lack of an established standard approach for treatment, making it vital that clinicians be familiar with the latest research and advances in this area. In this activity chaired by Michael Wang, MD, Professor in the Department of Lymphoma & Myeloma at MD Anderson Cancer Center, expert faculty will discuss prognostic factors informing treatment, the promising results of recent trials in new therapeutic approaches, and the implications of treatment resistance in therapeutic selection for MCL.
Target Audience
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1. HIT/HIE & Medical Home Model:
Kansas HI TECH Plan
March 2, 2009
M h2
Marcia Nielsen, PhD, MPH
M i Ni l PhD
Executive Director
Kansas Health Policy Authority
1
2. Alignment of Initiatives
Goals:
•Improve health
Medical Home
•Improve
coordination of care
•Reduce duplication
Health Information
of services
Technology and
Exchange
•Contain health care
costs
Telemedicine and
Telehealth
TT
•Obtain one time
federal stimulus
2
dollars for Kansas
3. Federal Stimulus Package
g
• Improving Care Coordination: Saving the government $10 billion, and
generating additional savings throughout the health sector, through
improvements in quality of care and care coordination, and reductions in
medical errors and duplicative care.
• Investment in HIT/HIE: Investing $19 billion in health information
technology infrastructure and Medicare and Medicaid incentives to
encourage doctors and hospitals to use HIT to electronically exchange
patients’ health information.
• Providing funds to States: Legislation provides funding for health
information technology infrastructure, training, dissemination of best
practices, telemedicine, inclusion of health information technology in
clinical education, and State grants to promote health information
, g p
technology.
3
5. EFFICIENCY
Percentage of National Health Expenditures
Spent on Health Administration and Insurance, 2003
Insurance
Net costs of health administration and health insurance as percent of national health expenditures
8 7.3
73
5.6
6
4.8
4.2
4.1
4.0
4 3.3
2.6
2.1 2.1
1.9
2
0
l ia
ria y
a
n es
e nd s nd
m
ad
pa
nc an
nd st
do at
ra
la la
n
Ja t
a la St
er m
Au
n g
Fr Ca us er
Fi er
in tz d
i
A
th G
K te
Sw
Ne ni
ed
it U
Un
a 2002 b 1999 c 2001
* Includes claims administration, underwriting, marketing, profits, and other administrative costs;
based on premiums minus claims expenses for private insurance.
5
Data: OECD Health Data 2005.
Source: Commonwealth Fund National Scorecard on U.S. Health System Performance, 2006
6. Health Care Opinion Leaders:
Views on Controlling Rising Health Care Costs
“How effective do you think each of these approaches would be
How
to control rising costs and improve the quality of care?”
Percent saying “extremely/very effective”
75%
Reduce inappropriate medical care
Use evidence-based guidelines to determine if a test,
70%
procedure should be done
66%
Increased and more effective use of IT
Increase the use of disease and care management strategies
65%
for the chronically ill
Reward providers who are more efficient and provide higher
61%
quality care
57%
Allow Medicare to negotiate drug prices
54%
Reduce administrative costs of insurers, providers
Establish a public/private mechanism to produce, disseminate
54%
information of effectiveness, best practices
Have all payers, including private insurers, Medicare, and
51%
Medicaid, adopt common payment methods or rates
Consolidate purchasing power by public, private insurers
50%
working together to moderate rising costs of care
Note: Based on a list of 19 issues.
Source: The Commonwealth Fund Health Care Opinion Leaders Survey, Jan. 2007.
7. EFFICIENCY
Test Results or Medical Record Not Available at
Time of Appointment, Among Sicker Adults 2005
Appointment Adults,
Percent reporting test results/records not available at time of appointment in past two years
International comparison United States, by race/ethnicity,
income, and insurance status
40
30 30
28 27
23
21
20
19 18
20
16 16
12
11
0
White Black Hispanic Above Below Insured Uninsured
GER AUS NZ UK CAN US average average
income income
GER=Germany; AUS=Australia; NZ=New Zealand; UK=United Kingdom; CAN=Canada; US=United States.
Data: Analysis of 2005 Commonwealth Fund International Health Policy Survey of Sicker Adults; Schoen et al. 2005a.
Source: Commonwealth Fund National Scorecard on U.S. Health System Performance, 2006
8. Getting Value for Money:
Health System Transformation
• Transparency; public information on clinical quality, patient-centered care, and
efficiency by provider; insurance premiums, medical outlays, and provider payment
rates
• Payment systems that reward quality and efficiency; transition to population and care
episode payment system
• Patient-centered medical home; Integrated delivery systems and accountable
physician group practices
• Adoption of health information technology; creation of state-based health insurance
state based
exchange
• National Institute of Clinical Excellence; invest in comparative cost-effectiveness
research; evidence-based decision-making
• Investment in high performance primary care workforce
• Health services research and technical assistance to spread best practices
• Public-private collaboration; national aims; uniform policies; simplification; purchasing 8
power
14. Medical Home-Key Elements
Home-
• Team approach to care
• Registries for the top few
diagnoses
• Active care coordination
• Prospective data collection
• Partnership with community
p y
resources
• Advanced patient education and
self management support 14
15. How Will I Know One
When I See One?
Wh SO?
• Commitment to care for the whole
person
• Demonstrated use of tools and
systems including registries and
eventually EHR
y
• New NCQA medical home
recognition p g
g program ( (PPC))
• Patient satisfaction and health
outcomes
15
16. PCMH-PPC Proposed Content and Scoring
Standard 5: Electronic Prescribing Pts
Standard 1: Access and Communication Pt
s A. Uses electronic system to write prescriptions 3
A. Has written standards for patient access and patient
3
B. H electronic prescription writer with safety
B Has l t i i ti it ith f t
communication**
checks
4
B. Uses data to show it meets its standards for patient
C. Has electronic prescription writer with cost 2
access and communication** 5
checks
8
9
Standard 6: Test Tracking Pts
Standard 2: Patient Tracking and Registry Functions Pt
7
sA
A. Tracks tests and identifies abnormal results
A. Uses data system for basic patient information
A
systematically**
(mostly non-clinical data)
B. Uses electronic systems to order and retrieve 6
2
B. Has clinical data system with clinical data in
tests and flag duplicate tests
searchable data fields
13
C. Uses the clinical data system 3
3
D. Uses paper or electronic-based charting tools to organize Standard 7: Referral Tracking PT
clinical information** A. Tracks referrals using paper-based or electronic
paper based 4
6
E. Uses data to identify important diagnoses and conditions system**
4
in practice** 4
F. Generates lists of patients and reminds patients and Standard 8: Performance Reporting and Improvement Pts
clinicians of services needed (population 3 A. Measures clinical and/or service performance by
management) physician or across the practice** 3
21
B. Survey of patients’ care experience
Standard 3 C
St d d 3: Care M Management t Pt C. Reports performance across the practice or by 3
s
A. Adopts and implements evidence-based guidelines for physician ** 3
three conditions ** 3 D. Sets goals and takes action to improve
B. Generates reminders about preventive services for performance 3
clinicians 4 E. Produces reports using standardized measures
C. Uses non-physician staff to manage patient care 2
F. Transmits reports with standardized measures
3
D. Conducts care management, including care plans,
D management plans electronically to external entities 1
assessing progress, addressing barriers 5
15
E. Coordinates care//follow-up for patients who receive
care in inpatient and outpatient facilities 5 Standard 9: Advanced Electronic Communications Pts
A. Availability of Interactive Website 1
20
B. Electronic Patient Identification 2
Sta da d
Standard 4: Patient Se
at e t Self-Management Suppo t
a age e t Support Pt
t C. Electronic Care Management Support 1
s
A. Assesses language preference and other
4
** Priority Elements
communication barriers 2
B. Actively supports patient self-management** 4
16
6
17. Senate Bill 81:
Defining M di l H
D fi i Medical Home
• “a health care delivery model in which a patient
a
establishes an ongoing relationship with a
physician or other personal care provider in a
physician-directed team, to provide
comprehensive, accessible and continuous
evidence-based primary and preventative care,
id b di d t ti
and to coordinate the patient’s health care
needs across the health care system in order to
improve quality and health outcomes in a cost
effective manner.”
17
18. Operationalizing
Medical H
M di l Home
Goal: Create a medical home model(s) for
Kansas through payment reforms
• Technical Support: through State Quality Initiative
(RWJ/Academy Health) – Kansas work plan
• Kansas All Stakeholders Group:
– Principles subgroup
– Pilot Projects subgroup
–CCommunications subgroup
ii b
• Challenge: How to leverage federal stimulus
dollars t advance M di l H
d ll to d Medical Home? ?
18
20. Importance of HIT/HIE
f /
• Need for Health Information Exchange/ Health
Information Technology (HIE/HIT)
– Promote coordination of care
– Improve quality of care
– Improve patient safety
– Potential for achieving long term cost savings
• HIT/HIE fosters coordination of care and
implementation of medical home model of care
20
21. Improving Quality through
Health Information Technology
“If we want safer, higher quality care, we will
need to have redesigned systems of carecare,
including the use of information technology
to support clinical and administrative
processes…the current care systems
cannot do the job Trying harder will not
job.
work. Changing systems of care will”
Crossing the Quality Chasm, Institute of Medicine21
23. HIT/HIE at the Federal Level
• President Bush placed a significant focus on
HIT/HIE Initiatives
• Created the Office National Coordinator for Health
Information Technology (ONCHIT) in 2004
• Call for widespread adoption of Electronic
Health Records (EHR) by 2014
• President’s Aug 2006 Executive Order
President s
requiring Government departments and
agencies involved in health care to adopt
g p
HIT standards 23
24. Obama: American Recovery and
Reinvestment Act (ARRA)
Policy Changes in ARRA Financial Incentives
• Federal interoperability • $2 billion in competitive
standards by 2010 that
y g
grants for HIT infrastructure;
allow for the nationwide $1.5 billion for FQHCs
electronic exchange and • Investing $17 billion for
use of health information Medicare and Medicaid
• Strengthens federal incentives to encourage
privacy and security law doctors and hospitals to use
to protect from health HIT to electronically
information misuse exchange patients’ health
information.
24
26. Progression of HIT/HIE in
Kansas
Governor s
Governor’s Health Care Cost Containment
Commission (H4C)
November 2004
Kansas HIT/HIE Policy Initiative
Fall 2005
Kansas HIE Commission
March 2006
E-Health Ad i
E H lth Advisory Council
C il
(Advisory to KHPA Board and Governor) 26
Spring 2008
27. Kansas HIE Initiatives
Overview (2004)
Kansas Health
Policy Authority
H4C
Community Health Privacy & Security HIT/HIE Policy Advanced ID Card
Record Project Summit Initiative Initiative
Health-e Mid- HIT/HIE Steering
g ID Card Steering
g
Privacy & Security
y y
America Committee Committee
Steering Committee
(CareEntrust)
Variations Working Clinical Working Kansas Insurance
Group Group Department
Kansas Department
Technical Working
of Health and Standardized
Legal Working Group
Group Practitioner
Environment
Credentialing
Kansas Public Solutions Working Financial Working
Group Group
Health Information
eXchange
Implementation Governance Working
Working Group Group
InfoLinks
I f Li k
27
28. Kansas: Health Care Cost
Containment Commission (H4C)
• History: Established in November 2004 by Gov
Sebelius, under direction of Lt. Gov John Moore
• Charge: Recommend solutions to improve
patient care and lower costs by (1) reducing
duplicative and inefficient administration
processes and (2) developing strategies for
efficient and effective use of health information
• Results: Development of a statewide shared
vision for HIT/HIE – the “HIE Roadmap
HIE Roadmap”
28
29. HIT/HIE Policy Initiatives: Roadmap
• Charge: Develop shared vision for adoption of HIT &
interoperability in KS; draft set of key principles & high
level actions for statewide E-Health Information strategy
E Health
• Work Groups: Make recommendations on HIE
infrastructure
– Governance: develop sustainable governance model
(oversight, coordination, direction)
– Clinical: recommend data elements to be exchanged
– Technical: assess HIE capability, identify gaps/barriers to
address
dd
– Financial: develop sustainable financial model for
infrastructure development and ongoing HIE
– Security and Privacy: (Health Information Security and
Privacy Collaboration or “HISPC”) – develop implementation
plan to address barriers to interoperable HIE
• Financial Support: Sunflower Foundation, United
Methodist Health Ministry Fund, Kansas H lth
M th di t H lth Mi i t F d K Health
Foundation, and Kansas Health Policy Authority 29
30. Kansas Roadmap & Progress
p g
• Create public-private coordinating entity: E-health Advisory
Council
• P id stakeholder education: K
Provide t k h ld d ti Kansas H lth O li
Health Online
• Leverage existing resources: KHPA has two ongoing Health
Information Exchange (HIE) pilots: Sedgwick County
(Medicaid managed care); KC Metro Area (state employees)
• Demonstrate impact of HIE and foster incremental change:
HIE pilots; challenges re: interoperability, sustainable
il t h ll it bilit t i bl
funding, ROI
• Address privacy and security barriers: Kansas HISPC
Project (I, II, and III)
• Seek funding from multiple sources: Request for SGF in FY
09 and FY 2010; looking for foundation support for HIT/HIE
d 2010 l ki f f d ti tf
and medical home model of health care delivery 30
31. Health Information Exchange
Commission (HIEC)
C ii
• History: Governor’s Executive Order
established the Commission Feb, 2007
• Charge: To serve as a leadership and
g p
advisory group for HIE/HIT in Kansas
• Results:
– Report of the HIEC delivered to the Governor
for her consideration
– HIEC Recommended:
• Establishment of a public/private coordinating entity
p p g y
• Resource support for HIT/HIE efforts in Kansas
31
32. E-Health Advisory Council
• History: Given KHPA’s statutory charge to
y y g
coordinate health care for Kansas, Governor
requested KHPA to guide development and
administration of statewide h lth i f
d i i t ti f t t id health information
ti
technology and exchange
• Ch
Charge: E H lth I f
E-Health Information Ad i
ti Advisory Council
C il
reports to Governor and KHPA, focus on:
– Statewide Community Health Record
– Develop and implement resource center for providers
wishing to implement HIT/HIE
– Develop policy recommendations to advance HIT/HIE
32
in Kansas
33. Statewide Community
Health R
H l h Record
d
• Health Information Technology and Exchange:
gy g
– Facilitate sharing, exchange of health records
– Promote safety and improve quality
– Improve efficiency and promote cost savings
• Two ongoing pilot projects
– Wichita: HealthWave managed care providers
– KC Area: State employees participating in employer
sponsored initiative
• Expand statewide for Medicaid and SEHP
p
• Budget Impact FY 2010: $1,096,000 (AF);
$383,600 (SGF)
33
34. Kansas Medicaid
Community Health Record (CHR)
• Location: Sedgwick County, KS
g y,
• Pilot Population: Medicaid Managed Care
• Purpose: To improve the q
p p quality, safety, and
y, y,
cost-effectiveness of care
• Timeline:
– Launched in Feb 2006
– Currently implemented in 20 sites
– Submitted a budget enhancement request of $50 000
$50,000
SGF for FY 2009 to expand program to 20 additional
sites in Sedgwick County
– Statewide expansion included in KHPA Board health
reform recommendations for 2008 legislative session34
35. CareEntrust:
CareEntrust:
Kansas City Health Exchange
• Location and Participants: Non-profit
organization comprised of around 20 of Kansas
City s
City’s leading employers and health care
organizations including Kansas State Employee
Health Plan (for KC residents)
•PPurpose: T develop and manage th CHR as a
To d l d the
means to improving patient safety and avoiding
costly and wasteful health care practices
• Timeline: Developed a business plan for a
Regional Health Information Exchange that
governs and manages a CHR for Wyandotte
Wyandotte,
Leavenworth, and Johnson Counties – Kansas
35
SEHP beginning this month
36. Health Information Security and
Privacy Collaboration (HISPC)
(HISPC)
• Funding: Federal Health and Human Service Grant
funded through RTI International
– Partnership with the National Governor’s Association
• Purpose: Statewide assessment of business practices
and policies around HIE; identify barriers to interoperable
HIE; develop solutions
• HISPC I, II, and III in Kansas:
– Sponsored by Governor’s Health Care Cost Containment
Commission (H4C); Kansas one of 34 states awarded
subcontract
– Public-Private Project Team: KHI – project manager, KU
Center for Health Informatics, and KHPA, Mid-America
Coalition on Healthcare, Lathrop & Gage, other stakeholders
–DDeveloped Tool to Assist States Harmonize Privacy Laws
l d T l t A i t St t H i Pi L
36
37. Numerous Other
Projects
• Central Plains Regional Health Care Foundation –
Clinics Patient Index
• Community Health Center (
y (Health Choice) Project
) j
• Jayhawk Point of Care (POC)
• Northwest Kansas Health Alliance
• Kansas Public Health eXchange (PHIX)
• Kansas City Quality Improvement Consortium
• KAN ED
KAN-ED
• Other Projects: Rural Outreach, KC Carelink, KC Bi-
State Health Information Exchange
37
39. Future of these Initiatives
• Through ARRA, role for federal leadership re:
interoperability and privacy protections
• State of Kansas:
– Well positioned to develop plan for federal funding
given work of the Governor’s Cost Containment
Governor s
Commission, the Kansas HIE Commission, the Health
Information Security and Privacy Collaboration, E-
health Advisory Council and myriad others
Council,
– Goal: Improve coordination of care of health
outcomes
•IIncentivize the use of electronic h l h i f
ii h fl i health information,
i
HIE, telemedicine, etc
• Leverage these resources consistent with a medical
g
home model of care delivery
39
40. Federal HI TECH Act
• HIT/HIE provisions of ARRA
• HITECH: Health Information Technology
for Economic and Clinical Health Act
•C t K
Create Kansas HITECH Pl –
Plan
– Merge efforts of various initiatives (both
HIT/HIE and medical h
d di l home) i t
) into
comprehensive plan
– Determine list of “shovel ready” projects
shovel ready
appropriate for funding
– Bring stakeholders together to determine
priorities and get to work 40
41. Aligning KS HITECH Plan
Federal
Fd l Health
H lth $2 B i G
in Grants
t Payment
P t
Interoperability Information and loans to incentives in
Standards Privacy and purchase HIT ; Medicaid/Medic
Security
y $1.5 B for are for EHR
FQHCs
Kansas Kansas HISPC Kansas grant Kansas payment
standards team team can be team to develop incentives team
to monitor federal integrated into funding priorities to track rules and
work to ensure KS HITECH plan from list of shovel regulations for
alignment – via development ready projects increased
providers will and that promote provider
benefit from implementation medical home reimbursement
federal of state model of care or for those
inoperability harmonization follow specifics of providers utilizing
standards th t
t d d that laws and rural
l d l ARRA federal
fd l electronic h lth
l t i health
will ease health consumer funding information and
information education guidelines (not provide
exchange –
g yp
yet published) ) education for
select team to interested
providers 41
42. Foundation of Research and
Education of AHIMA/State Level
Health Information Exchange
Setting f t d d
S tti of standards
enables providers to begin
selecting and/or modifying
Medicare and Medicaid
existing systems to Medicare and payment incentives give
comply with Medicare and Medicaid incentive way to penalties on
Medicaid incentive payments begin
begin, providers for failing to
payment requirements for presuming HIEs have adopt HIT
HIE interoperability come online
2009 2010 2011 2012 2013 2014 2015 2016
HHS to establish State
St t grant monies
t i
interoperability begin flowing from
standards by the HHS to develop
end of 2009; such technical, privacy,
standards governance and
expected to guide financing frameworks
HIE development necessary for HIE to
take shape
43. Foundation of Research and
Education of AHIMA/State Level
Health Information Exchange
Funding Mechanism
g Payment Agent
y g
Appropriations, subject to annual review & authorization States or state-designated entities
Payment Recipients Level of Funding
•State Department of Health or a qualified state-designated •At least $300 million in grants to be divided
HIE governing entity
entity. among planning & implementation activities
activities.
•Recipients must consult with wide range of stake holders •State matching funds may be required in FY 09 &
throughout health care. 10 (and will be required in FY 11)
Requirements for Funding
•Submission of a plan, approved by HHS, that describes the activities to facilitate and expand the electronic
movement and use of HIE according to nationally recognized standards and implementation specifications.
Use of Funds
•Enhancing broad and varied participation in nationwide HIE
•Identifying State or local resources available towards a nationwide effort to promote health IT
•Complementing other federal programs and efforts towards the promotion of health IT
•Providing technical assistance to develop & disseminate solutions to advance HIE
•Promoting effective strategies to adopt and utilize health IT in medically underserved communities
•Assisting patients in utilizing health IT
•Encouraging clinicians to work with Health IT Regional Extension Centers
•Supporting public health agencies’ access to electronic health information
•Promoting the use of EHRs for quality improvement
44. Foundation of Research and
Education of AHIMA/State Level
Health Information Exchange
Consideration
•HIE provision distinguishes between planning an implementation
grants, and it is likely that much larger grants will go toward
implementation.
implementation
•Key characteristics for implementation funding TBD, but will likely
involve:
–An operating governance structure
A ti tt
–A defined technical plan
–Defined clinical use cases
–Statewide policy g
p y guidance as to p
privacy and security
y y
•There is an implicit onus on States to develop HIE infrastructure in the
near-term to enable otherwise-eligible providers to earn their
Medicare/Medicaid incentive payments
payments.
45. Foundation of Research and
Education of AHIMA/State Level
Health Information Exchange
Medicare Medicaid
Funding Incentive payments Incentive payments, State matching
mechanism(s) payments (administrative costs)
Payment Agent Medicare carriers and contractors State Medicaid agencies
Payment Recipients Hospitals and physicians Hospitals and physicians; State
Medicaid agencies for administration
Amounts for Hospitals $2 million base amount For eligible Acute Care & Children’s
Children s
hospitals…limited to amount
calculated under Medicare, by
Medicaid share
Amounts for May receive up to $41,000 In aggregate, an eligible professional
physicians and other may receive up to 85 percent of
health professionals $75,000 over a five year period.
Key Consideration Hospitals will qualify for both Medicare and Medicaid dollars (unlike
professionals) but will be forced to participate in HIE projects and be
“meaningful user” to drawn down funds