This document discusses consumer involvement in systematic reviews. It defines consumers as individuals who use or are affected by health services. There are several rationales for involving consumers, including improving research quality and empowering consumers. Frameworks for involvement include consultation, collaboration, and consumer control. Currently, involvement varies and may include consulting consumers on draft protocols or reviews, or collaborating through stakeholder groups. Further discussion is needed on standardizing and improving consumer involvement.
This document summarizes a study on the impact of quality reporting on consumer choice in healthcare. The study reviewed 24 articles on this topic. It found that 58% of studies showed quality reports significantly influence patient choice, while 26% found no significant impact. The magnitude of impact was between 10-20% of patients responding to quality reports. While quality reporting does seem to impact some consumers, it may not have fully solved the problem of information asymmetry.
This proposal submission from clinicalMessage responds to the Matchmaking Innovation request to help connect patients and researchers differently. The clinicalMessage platform can engage providers, patients, and researchers to collaboratively develop research questions, share data according to consent, and disseminate results to improve population health outcomes. clinicalMessage currently provides capabilities for patient engagement, provider decision support, and outcomes registries. Partnering with Matchmaking could help clinicalMessage expand these capabilities to more populations and research areas. The proposal demonstrates how clinicalMessage meets the criteria of connecting diverse groups, developing usable models, and maximizing patient-centeredness while ensuring scientific rigor in potential collaborations.
The long-term goal of this project is to identify critical social, communication and cognitive factors that can inform a fundamental rethinking of effective Drug-Drug Interaction alerts (DDI alerts) for physicians. Specifically, our objective is to uncover, demonstrate and evaluate novel principles for effective and novel alert design that are based on what physicians consider important when sharing advice from peers in the context of their daily clinical activities.
Health Care Stories are Good for You
Presented by Sharon Manson Singer, Steve Buist and Jennifer Verma. Canadian Association of Journalists, Annual Meeting, April 28, 2012.
In this edition....Summaries of innovation projects
Resident transfers from aged care facilities to emergency departments: Can they be avoided?
NSW Trauma App
Queensland’s Digital Hospital
Investigating the relationship between emotional intelligence and transformation leadership in Nurse Managers
Embedding Consumer Engagement in Organisational Governance — Moving Consumers on Committees from Tokenistic to Having an Impact
UK Report Alcohol’s Impact on Emergency Services
This document summarizes key trends in health and wellness according to a report by Ketchum. The top trend is that technology now dominates health decisions, with people researching health issues online before consulting doctors. People are increasingly managing their own health using various tools and technologies. Companies must curate credible health content and programs that engage people through the technologies they use for wellness. The future of health will involve meeting people's needs for information and support across various online and real-world settings.
This document discusses 5 elements of a successful patient engagement strategy:
1. Define your organization's vision for patient engagement.
2. Create a culture of engagement within the practice.
3. Employ the right technology and services like patient portals.
4. Empower patients to become collaborators in their care.
5. Continuously evaluate progress and be ready to adapt the strategy.
True patient engagement involves patients managing their own health, a practice culture that prioritizes engagement, and collaboration between patients and providers.
This document summarizes a study on the impact of quality reporting on consumer choice in healthcare. The study reviewed 24 articles on this topic. It found that 58% of studies showed quality reports significantly influence patient choice, while 26% found no significant impact. The magnitude of impact was between 10-20% of patients responding to quality reports. While quality reporting does seem to impact some consumers, it may not have fully solved the problem of information asymmetry.
This proposal submission from clinicalMessage responds to the Matchmaking Innovation request to help connect patients and researchers differently. The clinicalMessage platform can engage providers, patients, and researchers to collaboratively develop research questions, share data according to consent, and disseminate results to improve population health outcomes. clinicalMessage currently provides capabilities for patient engagement, provider decision support, and outcomes registries. Partnering with Matchmaking could help clinicalMessage expand these capabilities to more populations and research areas. The proposal demonstrates how clinicalMessage meets the criteria of connecting diverse groups, developing usable models, and maximizing patient-centeredness while ensuring scientific rigor in potential collaborations.
The long-term goal of this project is to identify critical social, communication and cognitive factors that can inform a fundamental rethinking of effective Drug-Drug Interaction alerts (DDI alerts) for physicians. Specifically, our objective is to uncover, demonstrate and evaluate novel principles for effective and novel alert design that are based on what physicians consider important when sharing advice from peers in the context of their daily clinical activities.
Health Care Stories are Good for You
Presented by Sharon Manson Singer, Steve Buist and Jennifer Verma. Canadian Association of Journalists, Annual Meeting, April 28, 2012.
In this edition....Summaries of innovation projects
Resident transfers from aged care facilities to emergency departments: Can they be avoided?
NSW Trauma App
Queensland’s Digital Hospital
Investigating the relationship between emotional intelligence and transformation leadership in Nurse Managers
Embedding Consumer Engagement in Organisational Governance — Moving Consumers on Committees from Tokenistic to Having an Impact
UK Report Alcohol’s Impact on Emergency Services
This document summarizes key trends in health and wellness according to a report by Ketchum. The top trend is that technology now dominates health decisions, with people researching health issues online before consulting doctors. People are increasingly managing their own health using various tools and technologies. Companies must curate credible health content and programs that engage people through the technologies they use for wellness. The future of health will involve meeting people's needs for information and support across various online and real-world settings.
This document discusses 5 elements of a successful patient engagement strategy:
1. Define your organization's vision for patient engagement.
2. Create a culture of engagement within the practice.
3. Employ the right technology and services like patient portals.
4. Empower patients to become collaborators in their care.
5. Continuously evaluate progress and be ready to adapt the strategy.
True patient engagement involves patients managing their own health, a practice culture that prioritizes engagement, and collaboration between patients and providers.
Eb m congress 2020 embedding consumer involvement in cochrane richard morleyRichard Morley
This document discusses embedding consumer involvement in evidence-based research. It outlines several ways consumers are currently involved in Cochrane, including through the Cochrane Consumer Network, governance roles, and involvement in evidence production. However, past studies found consumer involvement in Cochrane reviews to be limited. The ACTIVE framework was developed to describe levels of stakeholder involvement in systematic reviews. The document encourages expanding consumer involvement through initiatives like the James Lind Alliance, Patients Included conferences, and Cochrane training resources.
If you're a researcher interested in Cancer Council NSW grant funding, this presentation will guide you through the application process, as well as how and why we ask you to get consumers involved.
This editorial discusses strategies for making public reports on healthcare organization performance more effective in improving quality of care. It identifies three potential pathways for reports to lead to better care: 1) Informing individual healthcare choices, 2) Stimulating delivery system improvements through market forces, and 3) Protecting professional reputations. However, most reports have had minimal impact. The editorial argues reports need to better communicate the existence and meaning of quality problems, provide a framework for understanding quality, and address consumer concerns to engage consumers. It suggests strategies like highlighting best and worst performers could boost all three pathways to impact.
The document summarizes the impact of early community engagement on Phase 1 of the Melbourne Genomics Health Alliance project. It discusses how the Community Advisory Group (CAG) provided input that improved various aspects of the project like communication, website design, patient portal development, and more. Their involvement helped ensure the work was guided by community perspectives and led to things like better consent forms and a more patient-centered approach. The CAG maintained a register to track their impact and recommendations. They advise continuing community involvement in Phase 2 to further improve the project.
This report examines best practices for pharmaceutical companies to build effective relationships with patient advocacy groups. It provides an overview of the advocacy landscape and identifies strategies for collaboration, such as understanding advocacy groups' priorities and goals. The report also offers recommendations for managing relationships with hostile groups, including developing structured approaches, dedicated staff, and rapid response infrastructures. Data comes from surveys of 58 executives from major pharmaceutical companies and in-depth interviews. Key findings cover mapping the advocacy environment, building relationships through opinion leaders, and setting up advocacy organizations to handle positive and negative interactions.
Implementation of an Evaluation Model for Evaluating Complex Health Research ...aihs
This document summarizes a presentation about implementing an evaluation model for complex health research outcomes. The organization Alberta Innovates Health Solutions evaluated 242 health research grants from 2004-2008 using the Canadian Academy of Health Sciences (CAHS) evaluation model. A retrospective data mining study found the CAHS model was useful for categorizing impacts and identifying lessons learned. Key lessons included the need to link research activities to outcomes and tell the evaluation story both quantitatively and qualitatively. The evaluation provided evidence that the CAHS model can effectively measure research impacts across scientific and social domains.
f&I: Amy Lemay: Business Intelligence II: Research ImpactCASRAI
This document discusses a case study of how a public health unit engages with and uses academic research. It finds that the public health unit values research that has been aggregated and synthesized by intermediary organizations. These intermediaries include the WHO, CDC, and other public health agencies. They play an important role in synthesizing large bodies of research and packaging it for direct use. Without these intermediaries to filter and translate research, the public health unit would struggle to directly make use of individual research studies.
Stakeholder Engagement in a Patient-Reported Outcomes Implementation by a Pra...Marion Sills
Kwan BM, Sills MR, Graham D, Hamer MK, Fairclough DL, Hammermeister KE, Kaiser A, Diaz-Perez MJ, Schilling LM. Stakeholder Engagement in a Patient-Reported Outcomes Implementation by a Practice-Based Research Network. JABFM. In Press.
1) The document discusses how to capture patient-reported outcomes (PROs) and patient experiences to demonstrate value from the patient's perspective when securing access to treatments.
2) It notes that traditional clinical measures cannot capture how patients feel or function, so patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are needed.
3) The document argues that capturing the patient voice through PROMs/PREMs and involving patient groups can help define patient-relevant outcomes and the full value of treatment, including quality of life benefits, which are increasingly important to health technology assessments and payers.
Outline of ideas to advance the science of transforming health care organizations. 81. “Advancing Transformational Science”, Bridges to Sustainable Healthcare Transformation Through Evidence, Partnerships & Technology: 19th International Conference San Francisco, CA, January 19-22, 2011.
Patient/citizen related assessments in HTA – what knowledge is needed?Cochrane.Collaboration
This document provides guidance on exploring patient aspects in health technology assessments (HTAs). It discusses:
1) The importance of considering how technologies affect patients and exploring patient knowledge, preferences, and perspectives.
2) Different conceptualizations of "patient" (e.g. citizen, user).
3) Recommendations to first review existing literature before conducting primary research with patients. Qualitative research methods are often most appropriate for understanding patient aspects.
Influence of Antecedents on Consumer Attitudes towards Functional (3).pptxastha367738
The presentation is a review presentation of an Article "Influence of Antecedents on consumer Attitudes towards Functional food : Empirical study in Sri Lanka
1) Two hospitals implemented regular hourly rounding programs to improve patient experience.
2) Rounding involves checking on patients' needs, pain levels, comfort and safety every 1-2 hours.
3) Early results show reductions in falls and improvements in HCAHPS scores for nursing communication and responsiveness.
This article discusses approaches to setting standards for evaluating community-based health promotion programs. It presents a typology of different types of standards, including arbitrary, experiential, utility, historical, scientific, normative, propriety, and feasibility standards. The article argues that evaluations should adopt a "salutogenic orientation" focused on health, well-being and empowerment. It also stresses the importance of collaborative and participatory evaluation approaches that incorporate multiple stakeholders' perspectives. Overall, the article aims to provide a framework for setting standards that can make the evaluation process more transparent and mutually beneficial for communities and funders/policymakers.
Implement a Direct-to-Patient Approach to Increase Patient Engagement and Ret...John Reites
Article by MM&M (Medical, Marketing & Media) on 25 Mar 2015 with John Reites discussing direct-to-patient approaches to conduct innovation research models that increase engagement and retention.
Weblink: http://www.mmm-online.com/pharmaceutical/implement-a-direct-to-patient-approach-to-increase-patient-engagement-and-retention/article/405443/
Social Accountability for Improved Community Health OtchereCORE Group
WorldVision uses a social accountability approach called CitizenVoice and Action in 324 health programs across 500 clinics. This approach has been studied in partnerships with universities. The Community Score Card can measure the quality of health services and community access to and use of services. Studies show it reduced child mortality by 33% and increased facility births by 58% in one area. In India, reviving auxiliary nurse-midwife subcenters using the score card and social accountability increased services provided and access to family planning and maternal and child health services. More evidence is still needed but research shows social accountability and community score cards can improve health services and empower communities.
The document provides an overview of 3 studies related to consumer acceptance of functional and nutritional foods. The first study examines socio-demographic, cognitive, and attitudinal determinants of consumer acceptance of functional foods. The second study looks at older consumers' perceptions of conventional and functional yogurts using the repertory grid method. The third study also examines socio-demographic, cognitive, and attitudinal factors influencing consumer acceptance of functional foods. Key findings from the studies include the role of age, gender, education level, health status of family members, knowledge, beliefs, and attitudes in determining consumers' acceptance of these foods. The document outlines the background and objectives of each study.
This document discusses outcomes research, which studies the effects of healthcare treatments and interventions on individuals and populations. Outcomes can be measured at the individual, group, or organizational level, and in the short, intermediate, or long term. Outcomes research establishes evidence-based practices and evaluates care delivery. It is important for value-based care, where reimbursement is based on patient outcomes. The Agency for Healthcare Research and Quality and the Patient-Centered Outcomes Research Institute are two organizations that fund outcomes research to improve healthcare quality, safety, and value. While outcomes research aims to benefit patients, the document notes it could be less wasteful if different research organizations collaborated more on studies.
BD owns the data but shares value with externals through:
- Involving users in product design
- Generating innovative ideas that improve safety
- Deepening customer loyalty
- Improving sustainability practices
The document discusses a panel featuring Sally Okun and Carol Sakala answering questions on the topic of "Where Do We Get Our Information?". The panelists likely answered questions about the various sources people use to get informed, such as traditional media, social media, word-of-mouth, and their reliability. However, no other context or direct quotes from the panelists are provided in the document.
The 11th Annual CUE Membership Meeting celebrates CUE's 10th anniversary and looks ahead to its next 10 years. Nancy Fitton provides an update on CUE's accomplishments including new membership representatives from organizations like Centering Healthcare Institute and work done in collaboration with groups like the Kaiser Family Foundation. The summary highlights CUE's focus on consumer engagement and empowerment as shown through projects like the Consumer Engagement Task Force and Cochrane Colloquium workshop.
Eb m congress 2020 embedding consumer involvement in cochrane richard morleyRichard Morley
This document discusses embedding consumer involvement in evidence-based research. It outlines several ways consumers are currently involved in Cochrane, including through the Cochrane Consumer Network, governance roles, and involvement in evidence production. However, past studies found consumer involvement in Cochrane reviews to be limited. The ACTIVE framework was developed to describe levels of stakeholder involvement in systematic reviews. The document encourages expanding consumer involvement through initiatives like the James Lind Alliance, Patients Included conferences, and Cochrane training resources.
If you're a researcher interested in Cancer Council NSW grant funding, this presentation will guide you through the application process, as well as how and why we ask you to get consumers involved.
This editorial discusses strategies for making public reports on healthcare organization performance more effective in improving quality of care. It identifies three potential pathways for reports to lead to better care: 1) Informing individual healthcare choices, 2) Stimulating delivery system improvements through market forces, and 3) Protecting professional reputations. However, most reports have had minimal impact. The editorial argues reports need to better communicate the existence and meaning of quality problems, provide a framework for understanding quality, and address consumer concerns to engage consumers. It suggests strategies like highlighting best and worst performers could boost all three pathways to impact.
The document summarizes the impact of early community engagement on Phase 1 of the Melbourne Genomics Health Alliance project. It discusses how the Community Advisory Group (CAG) provided input that improved various aspects of the project like communication, website design, patient portal development, and more. Their involvement helped ensure the work was guided by community perspectives and led to things like better consent forms and a more patient-centered approach. The CAG maintained a register to track their impact and recommendations. They advise continuing community involvement in Phase 2 to further improve the project.
This report examines best practices for pharmaceutical companies to build effective relationships with patient advocacy groups. It provides an overview of the advocacy landscape and identifies strategies for collaboration, such as understanding advocacy groups' priorities and goals. The report also offers recommendations for managing relationships with hostile groups, including developing structured approaches, dedicated staff, and rapid response infrastructures. Data comes from surveys of 58 executives from major pharmaceutical companies and in-depth interviews. Key findings cover mapping the advocacy environment, building relationships through opinion leaders, and setting up advocacy organizations to handle positive and negative interactions.
Implementation of an Evaluation Model for Evaluating Complex Health Research ...aihs
This document summarizes a presentation about implementing an evaluation model for complex health research outcomes. The organization Alberta Innovates Health Solutions evaluated 242 health research grants from 2004-2008 using the Canadian Academy of Health Sciences (CAHS) evaluation model. A retrospective data mining study found the CAHS model was useful for categorizing impacts and identifying lessons learned. Key lessons included the need to link research activities to outcomes and tell the evaluation story both quantitatively and qualitatively. The evaluation provided evidence that the CAHS model can effectively measure research impacts across scientific and social domains.
f&I: Amy Lemay: Business Intelligence II: Research ImpactCASRAI
This document discusses a case study of how a public health unit engages with and uses academic research. It finds that the public health unit values research that has been aggregated and synthesized by intermediary organizations. These intermediaries include the WHO, CDC, and other public health agencies. They play an important role in synthesizing large bodies of research and packaging it for direct use. Without these intermediaries to filter and translate research, the public health unit would struggle to directly make use of individual research studies.
Stakeholder Engagement in a Patient-Reported Outcomes Implementation by a Pra...Marion Sills
Kwan BM, Sills MR, Graham D, Hamer MK, Fairclough DL, Hammermeister KE, Kaiser A, Diaz-Perez MJ, Schilling LM. Stakeholder Engagement in a Patient-Reported Outcomes Implementation by a Practice-Based Research Network. JABFM. In Press.
1) The document discusses how to capture patient-reported outcomes (PROs) and patient experiences to demonstrate value from the patient's perspective when securing access to treatments.
2) It notes that traditional clinical measures cannot capture how patients feel or function, so patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are needed.
3) The document argues that capturing the patient voice through PROMs/PREMs and involving patient groups can help define patient-relevant outcomes and the full value of treatment, including quality of life benefits, which are increasingly important to health technology assessments and payers.
Outline of ideas to advance the science of transforming health care organizations. 81. “Advancing Transformational Science”, Bridges to Sustainable Healthcare Transformation Through Evidence, Partnerships & Technology: 19th International Conference San Francisco, CA, January 19-22, 2011.
Patient/citizen related assessments in HTA – what knowledge is needed?Cochrane.Collaboration
This document provides guidance on exploring patient aspects in health technology assessments (HTAs). It discusses:
1) The importance of considering how technologies affect patients and exploring patient knowledge, preferences, and perspectives.
2) Different conceptualizations of "patient" (e.g. citizen, user).
3) Recommendations to first review existing literature before conducting primary research with patients. Qualitative research methods are often most appropriate for understanding patient aspects.
Influence of Antecedents on Consumer Attitudes towards Functional (3).pptxastha367738
The presentation is a review presentation of an Article "Influence of Antecedents on consumer Attitudes towards Functional food : Empirical study in Sri Lanka
1) Two hospitals implemented regular hourly rounding programs to improve patient experience.
2) Rounding involves checking on patients' needs, pain levels, comfort and safety every 1-2 hours.
3) Early results show reductions in falls and improvements in HCAHPS scores for nursing communication and responsiveness.
This article discusses approaches to setting standards for evaluating community-based health promotion programs. It presents a typology of different types of standards, including arbitrary, experiential, utility, historical, scientific, normative, propriety, and feasibility standards. The article argues that evaluations should adopt a "salutogenic orientation" focused on health, well-being and empowerment. It also stresses the importance of collaborative and participatory evaluation approaches that incorporate multiple stakeholders' perspectives. Overall, the article aims to provide a framework for setting standards that can make the evaluation process more transparent and mutually beneficial for communities and funders/policymakers.
Implement a Direct-to-Patient Approach to Increase Patient Engagement and Ret...John Reites
Article by MM&M (Medical, Marketing & Media) on 25 Mar 2015 with John Reites discussing direct-to-patient approaches to conduct innovation research models that increase engagement and retention.
Weblink: http://www.mmm-online.com/pharmaceutical/implement-a-direct-to-patient-approach-to-increase-patient-engagement-and-retention/article/405443/
Social Accountability for Improved Community Health OtchereCORE Group
WorldVision uses a social accountability approach called CitizenVoice and Action in 324 health programs across 500 clinics. This approach has been studied in partnerships with universities. The Community Score Card can measure the quality of health services and community access to and use of services. Studies show it reduced child mortality by 33% and increased facility births by 58% in one area. In India, reviving auxiliary nurse-midwife subcenters using the score card and social accountability increased services provided and access to family planning and maternal and child health services. More evidence is still needed but research shows social accountability and community score cards can improve health services and empower communities.
The document provides an overview of 3 studies related to consumer acceptance of functional and nutritional foods. The first study examines socio-demographic, cognitive, and attitudinal determinants of consumer acceptance of functional foods. The second study looks at older consumers' perceptions of conventional and functional yogurts using the repertory grid method. The third study also examines socio-demographic, cognitive, and attitudinal factors influencing consumer acceptance of functional foods. Key findings from the studies include the role of age, gender, education level, health status of family members, knowledge, beliefs, and attitudes in determining consumers' acceptance of these foods. The document outlines the background and objectives of each study.
This document discusses outcomes research, which studies the effects of healthcare treatments and interventions on individuals and populations. Outcomes can be measured at the individual, group, or organizational level, and in the short, intermediate, or long term. Outcomes research establishes evidence-based practices and evaluates care delivery. It is important for value-based care, where reimbursement is based on patient outcomes. The Agency for Healthcare Research and Quality and the Patient-Centered Outcomes Research Institute are two organizations that fund outcomes research to improve healthcare quality, safety, and value. While outcomes research aims to benefit patients, the document notes it could be less wasteful if different research organizations collaborated more on studies.
BD owns the data but shares value with externals through:
- Involving users in product design
- Generating innovative ideas that improve safety
- Deepening customer loyalty
- Improving sustainability practices
The document discusses a panel featuring Sally Okun and Carol Sakala answering questions on the topic of "Where Do We Get Our Information?". The panelists likely answered questions about the various sources people use to get informed, such as traditional media, social media, word-of-mouth, and their reliability. However, no other context or direct quotes from the panelists are provided in the document.
The 11th Annual CUE Membership Meeting celebrates CUE's 10th anniversary and looks ahead to its next 10 years. Nancy Fitton provides an update on CUE's accomplishments including new membership representatives from organizations like Centering Healthcare Institute and work done in collaboration with groups like the Kaiser Family Foundation. The summary highlights CUE's focus on consumer engagement and empowerment as shown through projects like the Consumer Engagement Task Force and Cochrane Colloquium workshop.
The document discusses the Guidelines International Network (G-I-N) and G-I-N North America. It summarizes that G-I-N is a global network of guideline organizations that aims to reduce duplication of effort and promote best practices in guideline development. It also discusses G-I-N's consumer involvement activities through G-I-N PUBLIC and the toolkit it has created on patient and public involvement in guidelines. Finally, it promotes partnership opportunities between G-I-N North America and CUE to further consumer engagement in guideline development.
Lorraine Johnson, co-chair of CUE and CEO of Lymedisease.org, welcomed attendees and provided a steering committee report. As co-chair, she discussed the committee's work to organize the conference and their goals to facilitate discussion and information sharing.
Kate Ryan, a senior program coordinator at the National Women's Health Network, discusses the TEST Act, a proposed federal legislation. The TEST Act would require medical tests to be evaluated for their effectiveness, safety, and clinical validity before being marketed directly to consumers. It aims to establish oversight of direct-to-consumer genetic testing and protect consumers from potentially misleading or ambiguous results without appropriate medical guidance.
The document discusses the benefits of exercise for mental health. Regular physical activity can help reduce anxiety and depression and improve mood and cognitive function. Exercise causes chemical changes in the brain that may help protect against mental illness and improve symptoms.
The document discusses a panel on open access to research data featuring Peter Doshi, Kate Ryan, and Steven Salzberg. The panel addressed questions about making research data openly available and addressed barriers to open data as well as ways to increase access.
The document is a Q&A session with Ann Fonfa, Jim Hulbert, Sue Sheridan, and Claire Snyder from the Patient-Centered Outcomes Research Institute (PCORI) panel. The panelists answered questions about their work at PCORI.
This document summarizes a presentation given at the Consumers United for Evidence-based Healthcare 2013 Annual Membership Meeting. The presentation discussed how social networking sites like PatientsLikeMe can provide important information to patients and advance research. PatientsLikeMe allows patients to connect with others, track their health over time, and participate in research. Analysis of patient-reported data on the site has provided insights that illuminate gaps in evidence-based care and treatment impacts. The presenter argues that engaging patients through sites like PatientsLikeMe can advance research and improve patient outcomes.
The document summarizes the history of HIV/AIDS treatment activism from the early days of ACT UP to modern times. It discusses how ACT UP accelerated drug approval and access to treatment, yet deaths still rose due to a lack of national strategy. It then covers how treatment activism matured and focused on reforming research, improving clinical trials, and holding companies accountable. It describes key campaigns around treatment guidelines and addressing issues like coinfections, aging, and engagement in care. It stresses the importance of education, collaboration, and using influence wisely.
This document summarizes global initiatives to increase open access to clinical trial data. It discusses several key events and studies from 2000-2013 that highlighted issues of incomplete or suppressed trial results. Regulatory agencies like the EMA and FDA have since taken steps to increase reactive and proactive publication of trial data. However, pharmaceutical companies have argued against full data sharing due to concerns about misleading analyses, commercial confidentiality, and costs. Patient and advocacy groups are campaigning for all trial results to be reported. Regulators are now seeking public comments on policies to improve access to clinical trial data.
The document summarizes key findings from three national surveys on mothers' experiences with pregnancy and childbirth. It finds that while many mothers use online sources for information, they rate their healthcare providers as the most trustworthy sources. However, many mothers report not receiving sufficient information and guidance from providers about options for procedures like cesareans and inductions. The surveys also identify gaps in mothers' knowledge about issues like breastfeeding recommendations and complications of different birthing methods. Overall, the surveys provide insights into how to better support informed decision-making and improve the quality of maternity care in the US.
CUE celebrated its 10th anniversary at its annual membership meeting on July 26, 2013. Over the past decade, CUE has accomplished much in advocating for evidence-based healthcare and anticipates continued progress in the next 10 years. CUE thanked its funders, steering committee members, and staff for their contributions over the past 10 years. The first CUE meeting was held in 2003 with representatives from various consumer advocacy organizations discussing their shared goals of promoting evidence-based healthcare and influencing healthcare reform. Looking ahead, CUE aims to make learning about evidence-based healthcare more accessible and establish itself as a leading consumer partnership network recognized for its knowledgeable, unbiased representation of patients.
The document provides advice from John Santa of the Consumer Reports Health Ratings Center on partnerships for the next decade. It suggests focusing partnerships on improving health outcomes, lowering costs, and increasing patient satisfaction by sharing data and coordinating care across organizations for better results.
Rebecca Burkholder, co-chair of CUE and Vice President of Health Policy at the National Consumers League, welcomed attendees and provided a steering committee report. The report discussed the committee's work over the past year to advance consumer priorities in healthcare and their goals for the coming year.
Ann Fonfa, President of the Annie Appleseed Project, discusses the role of CUE members serving as peer reviewers. She notes that CUE members can provide valuable feedback and perspectives to other organizations applying for grants. Their experience and knowledge of what works can help strengthen applications. CUE members reviewing applications brings transparency and credibility to the process.
This document summarizes a project to standardize the presentation of patient-reported outcomes (PRO) data to improve understanding and use by patients and clinicians. The project will engage stakeholders including patients, caregivers, clinicians, and PRO researchers to determine how PRO data is currently presented, identify barriers to interpretation, and develop standardized presentation methods. An investigative team led by Drs. Claire Snyder and Michael Brundage was funded by PCORI to conduct the research with guidance from a stakeholder advisory board representing key perspectives. The goal is to actively involve stakeholders throughout the research process from designing the study to disseminating the results to ultimately increase understanding and use of PRO data.
The document outlines a proposed mentorship program for reviewers to provide peer-to-peer guidance and hands-on support to build a community of reviewers and help them grow. Mentors would assist with training, provide ongoing support and feedback to help reviewers strengthen their written critiques, and identify strong reviewers who could mentor others. The goal is for reviewers to feel confident, develop lasting relationships, and clearly articulate their viewpoints and ideas through knowledge transfer between experienced and new reviewers.
The document outlines the Patient-Centered Outcomes Research Institute's (PCORI) vision for patient engagement in research. PCORI aims to establish a large, diverse community of patients and caregivers that are actively involved in all aspects of the research process. This includes having patients help determine research topics, evaluate funding proposals, monitor study conduct, and disseminate findings. The goal is for research to be done differently through meaningful patient partnership.
Marguerite Koster, John Santa and Lisa Simpson participated in a panel discussion about CUE in Partnership. The panelists discussed CUE's partnership approach and how they work with other organizations. They took questions from the audience about specific partnerships and how CUE collaborates with different partners to advance shared goals.
More from CUE - Consumers United for Evidence-based Healthcare (20)
ABDOMINAL TRAUMA in pediatrics part one.drhasanrajab
Abdominal trauma in pediatrics refers to injuries or damage to the abdominal organs in children. It can occur due to various causes such as falls, motor vehicle accidents, sports-related injuries, and physical abuse. Children are more vulnerable to abdominal trauma due to their unique anatomical and physiological characteristics. Signs and symptoms include abdominal pain, tenderness, distension, vomiting, and signs of shock. Diagnosis involves physical examination, imaging studies, and laboratory tests. Management depends on the severity and may involve conservative treatment or surgical intervention. Prevention is crucial in reducing the incidence of abdominal trauma in children.
Integrating Ayurveda into Parkinson’s Management: A Holistic ApproachAyurveda ForAll
Explore the benefits of combining Ayurveda with conventional Parkinson's treatments. Learn how a holistic approach can manage symptoms, enhance well-being, and balance body energies. Discover the steps to safely integrate Ayurvedic practices into your Parkinson’s care plan, including expert guidance on diet, herbal remedies, and lifestyle modifications.
micro teaching on communication m.sc nursing.pdfAnurag Sharma
Microteaching is a unique model of practice teaching. It is a viable instrument for the. desired change in the teaching behavior or the behavior potential which, in specified types of real. classroom situations, tends to facilitate the achievement of specified types of objectives.
share - Lions, tigers, AI and health misinformation, oh my!.pptxTina Purnat
• Pitfalls and pivots needed to use AI effectively in public health
• Evidence-based strategies to address health misinformation effectively
• Building trust with communities online and offline
• Equipping health professionals to address questions, concerns and health misinformation
• Assessing risk and mitigating harm from adverse health narratives in communities, health workforce and health system
Basavarajeeyam is a Sreshta Sangraha grantha (Compiled book ), written by Neelkanta kotturu Basavaraja Virachita. It contains 25 Prakaranas, First 24 Chapters related to Rogas& 25th to Rasadravyas.
- Video recording of this lecture in English language: https://youtu.be/kqbnxVAZs-0
- Video recording of this lecture in Arabic language: https://youtu.be/SINlygW1Mpc
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...Oleg Kshivets
Overall life span (LS) was 1671.7±1721.6 days and cumulative 5YS reached 62.4%, 10 years – 50.4%, 20 years – 44.6%. 94 LCP lived more than 5 years without cancer (LS=2958.6±1723.6 days), 22 – more than 10 years (LS=5571±1841.8 days). 67 LCP died because of LC (LS=471.9±344 days). AT significantly improved 5YS (68% vs. 53.7%) (P=0.028 by log-rank test). Cox modeling displayed that 5YS of LCP significantly depended on: N0-N12, T3-4, blood cell circuit, cell ratio factors (ratio between cancer cells-CC and blood cells subpopulations), LC cell dynamics, recalcification time, heparin tolerance, prothrombin index, protein, AT, procedure type (P=0.000-0.031). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and N0-12 (rank=1), thrombocytes/CC (rank=2), segmented neutrophils/CC (3), eosinophils/CC (4), erythrocytes/CC (5), healthy cells/CC (6), lymphocytes/CC (7), stick neutrophils/CC (8), leucocytes/CC (9), monocytes/CC (10). Correct prediction of 5YS was 100% by neural networks computing (error=0.000; area under ROC curve=1.0).
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
Here is the updated list of Top Best Ayurvedic medicine for Gas and Indigestion and those are Gas-O-Go Syp for Dyspepsia | Lavizyme Syrup for Acidity | Yumzyme Hepatoprotective Capsules etc
Ozempic: Preoperative Management of Patients on GLP-1 Receptor Agonists Saeid Safari
Preoperative Management of Patients on GLP-1 Receptor Agonists like Ozempic and Semiglutide
ASA GUIDELINE
NYSORA Guideline
2 Case Reports of Gastric Ultrasound
Rasamanikya is a excellent preparation in the field of Rasashastra, it is used in various Kushtha Roga, Shwasa, Vicharchika, Bhagandara, Vatarakta, and Phiranga Roga. In this article Preparation& Comparative analytical profile for both Formulationon i.e Rasamanikya prepared by Kushmanda swarasa & Churnodhaka Shodita Haratala. The study aims to provide insights into the comparative efficacy and analytical aspects of these formulations for enhanced therapeutic outcomes.
1. Involving
Consumers
in
Systema3c
Reviews
Julia
Kreis
Harkness/Bosch
Fellow
Johns
Hopkins
Bloomberg
School
of
Public
Health
Support for this research was provided by The Institute of Medicine and The Commonwealth Fund.
The views presented here are those of the author and should not be attributed to The Institute of
Medicine, The Commonwealth Fund or its respective directors, officers, or staff.
2. Consumer
involvement
is
a
priority
for
Compara-ve
Effec-veness
Research
IOM
Report
on
Ini-al
Na-onal
Priori-es
in
Compara-ve
Effec-veness
Research
(2009):
“the
CER
program
should
fully
involve
consumers,
pa:ents,
and
caregivers
in
key
aspects
of
CER,
including
strategic
planning,
priority
se<ng,
research
proposal
development,
peer
review,
and
dissemina:ons”
3. What
do
we
know
about
consumer
involvement
in
systema-c
reviews?
How
are
“consumers”
defined
in
the
literature?
What
is
the
ra-onale
for
involving
consumers
in
health
research?
What
are
frameworks
to
describe
consumer
involvement
in
health
research?
How
are
consumers
currently
involved
in
systema-c
reviews?
Which
issues
deserve
further
aNen-on?
4. How
are
“consumers”
defined
in
the
literature?
Cochrane
Glossary:
“someone
who
uses,
is
affected
by,
or
who
is
en3tled
to
use
a
health-‐related
service”
CCNet:
“Consumer
in
Cochrane”
=
“an
individual
who
has
unique
personal
experiences
that
allow
him
or
her
to
provide
an
effec-ve
healthcare
user/receiver
perspec-ve
to
a
systema-c
review
ques-on”
A.
Herxheimer:
“informed
pa3ent
who
has
taken
the
trouble
to
learn
about
research
methods
and
can
contribute
insight
and
personal
experience
to
trial
design,
or
even
suggest
new
topics
for
research”
5. What
is
the
ra-onale
for
involving
consumers
in
health
research?
it
improves
the
quality
of
it
is
poli-cally
&
ethically
the
research
product
required
Perspec3ves:
“Consumerism”
“Empowerment”
Increase
consumers’
Enable
consumers
to
greater
sa-sfac-on
with
the
product
autonomy
in
decision
making
Different
status
of
consumers
within
a
research
project.
Different
methods
for
involvement.
Boote
J
et
al.
Consumer
involvement
in
health
research:
a
review
and
research
agenda.
Health
Policy.
2002;
61(2):213-‐36.
6. What
are
frameworks
to
describe
consumer
involvement
in
health
research?
Consumer
control
“Consumers
designing,
undertaking
and
dissemina-ng
the
results
of
a
research
project”
Increasing
empowerment
Collabora3on
of
consumers
“Ac-ve,
on-‐going
partnership”
within
the
research
process
Consulta3on
“Asking
consumers
for
their
views
and
using
these
views
to
inform
decision-‐making”
Boote
J
et
al.
Consumer
involvement
in
health
research:
a
review
and
research
agenda.
Health
Policy.
2002;
61(2):213-‐36.
Hanley
B
et
al.
Involving
the
Public
in
NHS,
Public
Health
and
Social
Care
Research:
Briefing
Notes
for
Researchers.
Eastleigh:
INVOLVE,
2003
7. How
are
consumers
currently
involved
in
systema-c
reviews?
Interviews
with
key
informants
• of
15
selected
organiza-ons
that
conduct
and/or
commission
systema-c
reviews
• in
the
United
States
• and
Campbell
Collabora-on,
Cochrane
Collabora-on
Preliminary
results
• Few
organiza-ons
of
the
sample
have
an
explicit
policy
to
involve
consumers
• No
common
standard
of
involving
consumers
in
systema-c
reviews
• Different
types
of
involvement:
aim
/
groups
of
consumers
involved
/
methods
of
involvement
8. Possible
aims
of
involving
consumers
in
systema-c
reviews
-‐
from
the
interviews
-‐
• Increase
the
relevance
of
the
review
Quality
• Increase
the
accessibility
of
the
review
• Increase
the
acceptance
of
the
review
results
Percep-on
• Increase
the
transparency,
public
trust
and
accountability
of
the
research
process
• Promote
the
evidence-‐based
approach
Cultural
changes
• Establish
a
culture
of
knowledge-‐exchange
between
researchers
and
consumers
9. Consulta3on
“Personal
Experience”
Aim:
Ensure
the
relevance
of
the
review:
understand
and
address
the
ques-ons
that
are
relevant
from
the
pa-ents’
perspec-ve
Who:
Pa-ents
with
a
personal
experience
of
the
target
condi-on
Pa-ent
representa-ves
Informal
caregivers,
families
How:
Interviews
or
focus
groups
Review
phase:
Development
of
drai
protocol
Perceived
impact:
Possibly
cri-cal
for
usefulness
Things
to
consider
(raised
by
the
interviewees):
• Representa-veness?
• Pa-ents
or
pa-ent
representa-ves?
• Researchers’
interest
vs.
pa-ents’
interest?
10. Consulta3on
“Public
Comment”
Aim:
Increase
transparency,
public
trust
and
accountability
Who:
The
public
How:
Comment
on
drai
protocol
&
drai
review
via
website
Review
phase:
Drai
protocol
/
drai
review
Perceived
impact:
“Safeguard”
for
excep-onal
cases
Things
to
consider
(raised
by
the
interviewees):
• How
are
comments
handled?
11. Collabora3on
“Stakeholder
Group”
Aim:
Increase
acceptance
of
the
review’s
results
and
of
the
evidence-‐based
approach
Who:
Stakeholders,
i.e.
pa-ent/consumer
organiza-ons
How:
Stakeholder
advisory
groups
Review
phase:
Discuss
drai
protocol,
drai
review
Perceived
impact:
Helped
to
increase
acceptance
Things
to
consider
(raised
by
the
interviewees):
• Collabora-on
with
stakeholders
vs.
integrity
of
research?
• Person
with
media-ng
skills
between
researchers
and
stakeholders
available?
12. What
do
we
know
about
consumer
involvement
in
systema-c
reviews?
Consumers
are
currently
involved
in
a
variety
of
ways.
These
reflect
different
ra-onales
for
involving
consumers.
More
evidence
on
the
impact
is
desirable.
13. Which
issues
deserve
further
aNen-on?
Issues
for
CUE
to
discuss
• Level
of
involvement
Which
level
of
involvement
is
preferred
from
a
consumer
perspec-ve?
• Choosing
the
“right”
consumer
organiza3ons
What
if
a
consumer
organiza-on
is
not
dedicated
to
the
principles
of
evidence-‐based
health
care?
• Individuals
or
representa3ves
Should
consumers
be
involved
as
individuals
or
as
representa-ves
of
a
cons-tuency?